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Journal of Intellectual & Developmental Disability最新文献

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Use of health and dental care services in adults with intellectual disability in relation to age and intellectual disability levels 与年龄和智力残疾程度相关的智力残疾成人的保健和牙科保健服务的使用情况
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-10-18 DOI: 10.3109/13668250.2022.2109823
M. I. Olsen, E. Søndenaa, E. Langballe, M. Halvorsen, Per Wilhelmsen, E. Bautz-Holter, A. Anke
{"title":"Use of health and dental care services in adults with intellectual disability in relation to age and intellectual disability levels","authors":"M. I. Olsen, E. Søndenaa, E. Langballe, M. Halvorsen, Per Wilhelmsen, E. Bautz-Holter, A. Anke","doi":"10.3109/13668250.2022.2109823","DOIUrl":"https://doi.org/10.3109/13668250.2022.2109823","url":null,"abstract":"ABSTRACT\u0000 Background This study investigates the use of health and dental care services in adults with intellectual disability in the last 12 months according to Norwegian recommendations and in relation to age and intellectual disability levels. Method A cross-sectional community-based survey including 214 participants (56% men). POMONA health indicators were used for data collection. Results Health checks and contact with general practitioners in the last year increased with age but were less frequent in those with more severe intellectual disability. Hospital admissions were age independent. Less than one-fifth of women had undergone cancer screening, with small variations according to intellectual disability severity levels. Few had an individual plan. More than one-third experienced poor dental health despite frequent controls. Conclusions The use of health checks was lower than recommended, especially in individuals with more severe intellectual disability. Service access and individual plan use need to be enhanced, and dental care services should be improved. Trial registration: ClinicalTrials.gov identifier: NCT03889002","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46886762","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
A questionnaire to measure direct support professionals’ attitude towards healthy nutrition of people with intellectual disabilities 一份测量直接支持专业人员对智障人士健康营养态度的问卷
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-10-16 DOI: 10.3109/13668250.2022.2106696
A. Overwijk, W. Krijnen, T. Hilgenkamp, C. P. van der Schans, A. V. D. van der Putten, A. Waninge
{"title":"A questionnaire to measure direct support professionals’ attitude towards healthy nutrition of people with intellectual disabilities","authors":"A. Overwijk, W. Krijnen, T. Hilgenkamp, C. P. van der Schans, A. V. D. van der Putten, A. Waninge","doi":"10.3109/13668250.2022.2106696","DOIUrl":"https://doi.org/10.3109/13668250.2022.2106696","url":null,"abstract":"ABSTRACT Background Direct support professionals’ (DSPs') attitudes toward nutrition are important for supporting a healthy lifestyle of persons with intellectual disabilities. However, there are no instruments to measure it. The aim of this study was to compose a questionnaire and determine its internal validity. Method The previously validated Health Enhancing Physical Activity questionnaire was adapted into the Attitude of DSPs for Health Enhancing Nutrition (ADSP-HENU) and completed by 31 DSPs. The internal validity of the questionnaire was investigated by Cronbach’s Alpha and an exploratory non-parametric item response analysis (NIRT). Results The internal consistency by Cronbach’s Alpha was good (0.87, 95% CI [0.81–0.94]). NIRT showed monotonicity with wide confidence bounds and sufficient point polyserial correlations of the items. This indicates that each attributes to the overall measured attitude. Conclusion The internal validity of the ADSP-HENU is promising, and it can be used in daily practice for evaluation or adapting interventions to DSPs’ needs.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47402359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The juncture and disjuncture of service delivery systems in post-parental care planning for rural people with intellectual disabilities 农村智力残疾者父母后照护规划中服务提供体系的衔接与脱节
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-10-03 DOI: 10.3109/13668250.2022.2098095
S. Wark, L. Bryant, Tyson Morales-Boyce, Kate Deuter
{"title":"The juncture and disjuncture of service delivery systems in post-parental care planning for rural people with intellectual disabilities","authors":"S. Wark, L. Bryant, Tyson Morales-Boyce, Kate Deuter","doi":"10.3109/13668250.2022.2098095","DOIUrl":"https://doi.org/10.3109/13668250.2022.2098095","url":null,"abstract":"ABSTRACT Background Australian research indicates that post-parental care transitions are rarely planned and primarily occur following a crisis for a primary carer. This paper examines disability staff perceptions of transitions for people with intellectual disability and their ageing carers in rural South Australia. Method A focus group interview model was used, with a semi-structured interview guide initiating group discussions. A thematic analysis methodological approach was selected to analyse the data. Results This paper reports on the theme of Service Delivery, which has three sub-themes of Availability; Distance; and Individual Access. The key findings are presented and supported by the use of exemplar quotes. Conclusions This research indicates a poor intersection of general and specialist services is inhibiting post-parental transitional care for rural people. Simply allocating money to the individual does not resolve the issues, and the interface between different services needs to be better considered at government level.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48120986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
2022 Reviewers 2022年的主持
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-10-02 DOI: 10.3109/13668250.2022.2146846
Roberta D'Alessandro
{"title":"2022 Reviewers","authors":"Roberta D'Alessandro","doi":"10.3109/13668250.2022.2146846","DOIUrl":"https://doi.org/10.3109/13668250.2022.2146846","url":null,"abstract":"We wish to thank 194 colleagues for their reviewing work, which was of tremendous help in contributing to the success of Isogloss in 2022. You can find the list of all Isogloss reviewers here.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43337925","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
2021 JIDD Awards Announcement 2021 JIDD奖公告
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-10-02 DOI: 10.3109/13668250.2022.2126169
Jidd Awards Announcement, Simon van der Weele, Jill Wilson, C. Tilse, B. White
{"title":"2021 JIDD Awards Announcement","authors":"Jidd Awards Announcement, Simon van der Weele, Jill Wilson, C. Tilse, B. White","doi":"10.3109/13668250.2022.2126169","DOIUrl":"https://doi.org/10.3109/13668250.2022.2126169","url":null,"abstract":"Citation: This paper offers an interesting methodology vis-à-vis disability research to glean qualitative insights on lived experiences of people with intellectual disabilities, including those with moderate to profound disabilities. The authors provide a useful overview and methodological details that can enable others to conduct similar research. The most interesting part is the description of their findings and discussion. The paper highlights important dilemmas faced in undertaking this type of research. The intersection of researchers’ observations versus privacy of respondents and how to set boundaries is noteworthy. It offers an opportunity to reflect on “how would I deal with these issues, if I were doing this research?” Despite the challenges, the authors outline a different way of undertaking meaningful qualitative research.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43260906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Loneliness and how to counter it: People with intellectual disability share their experiences and ideas 孤独和如何应对：智障人士分享他们的经历和想法
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-09-28 DOI: 10.3109/13668250.2022.2112510
S. Robinson, Jan Idle
{"title":"Loneliness and how to counter it: People with intellectual disability share their experiences and ideas","authors":"S. Robinson, Jan Idle","doi":"10.3109/13668250.2022.2112510","DOIUrl":"https://doi.org/10.3109/13668250.2022.2112510","url":null,"abstract":"ABSTRACT Background People with intellectual disability are at higher risk of experiencing social isolation in their everyday lives, because of exclusionary practices, discriminatory social policies and structural exclusion. However, less is known about what people with intellectual disability themselves think about loneliness in their lives and what might alleviate it. Method In this inclusive research study, 17 people with intellectual disability participated in focus groups or individual interviews and talked about what makes them feel lonely and what helps them to feel included. Results Our findings indicate that the domains of interaction, participation, personal security and attitudes are areas of strong influence on people’s experience of inclusion and exclusion and hold opportunities for positive change. Conclusions Change at systems and community levels is needed to ensure people with intellectual disability are included, have access to disability-ready places that respect their human rights, listen, recognise and include their strategies to alleviate loneliness.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48296984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Evaluating the impact of a virtual educational intervention on medical students’ knowledge and attitudes towards patients with intellectual and developmental disabilities 评估虚拟教育干预对医学生对智力和发育障碍患者的知识和态度的影响
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-09-23 DOI: 10.3109/13668250.2022.2112511
Itai Berger, S. Weissman, H. Raheel, A. Bagga, Rosalind J Wright, F. Leung, A. Loh, C. Lee-Jones, B. Isaacs, J. Vogt
{"title":"Evaluating the impact of a virtual educational intervention on medical students’ knowledge and attitudes towards patients with intellectual and developmental disabilities","authors":"Itai Berger, S. Weissman, H. Raheel, A. Bagga, Rosalind J Wright, F. Leung, A. Loh, C. Lee-Jones, B. Isaacs, J. Vogt","doi":"10.3109/13668250.2022.2112511","DOIUrl":"https://doi.org/10.3109/13668250.2022.2112511","url":null,"abstract":"ABSTRACT Background Research suggests physicians may harbour paternalistic attitudes towards people with intellectual and developmental disabilities and lack the knowledge and skills to work with them. This study examined the impact of a brief intellectual and developmental disability curriculum intervention on these outcomes. Methods First-year medical students completed a pre–post questionnaire on attitudes and knowledge of intellectual and developmental disabilities in conjunction with a curriculum (a virtual tour of a developmental service site; panel discussions; tutorial presentations). Paired data were available for 33 students. Results Students’ confidence communicating with the person increased (pre-mean = 5.7/10, SD = 1.9; post-mean = 6.3/10, SD = 1.7; p < 0.05) as did their feeling of competence taking a history (pre-mean = 4.2/10, SD = 1.9; post-mean = 5.5, SD = 1.7; p < 0.0001). Their inclination toward sheltering people with intellectual and developmental disabilities also increased (pre-mean = 2.8/6, SD = 0.7; post-mean = 3.2/6, SD = 0.7; p < 0.005). Conclusion This intervention may contribute to student confidence and their sense of competence in interacting with people with intellectual and developmental disabilities but did not suggest they adopted the philosophy of community inclusion.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44668614","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate 将智力/发育障碍纳入医学院课程的必要性:一名学生倡导者的观点
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-09-15 DOI: 10.3109/13668250.2022.2111770
Lauren Clarke
{"title":"The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate","authors":"Lauren Clarke","doi":"10.3109/13668250.2022.2111770","DOIUrl":"https://doi.org/10.3109/13668250.2022.2111770","url":null,"abstract":"ABSTRACT Medical students receive very little instruction related to caring for people with intellectual/developmental disabilities. As a result, medical students and physicians alike report low levels of confidence in their ability to provide care to this population. In this piece, I provide a medical student’s perspective on how to implement changes in the medical school curriculum such that our future physicians are more prepared to provide care to people with intellectual/developmental disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43989151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Parents with intellectual disability and mental health conditions: Early intervention providers’ perceptions 有智力残疾和心理健康状况的父母：早期干预提供者的看法
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-09-14 DOI: 10.3109/13668250.2022.2112530
N. Edwards, Rebecca G. Lieberman-Betz, Sarah D. Wiegand
{"title":"Parents with intellectual disability and mental health conditions: Early intervention providers’ perceptions","authors":"N. Edwards, Rebecca G. Lieberman-Betz, Sarah D. Wiegand","doi":"10.3109/13668250.2022.2112530","DOIUrl":"https://doi.org/10.3109/13668250.2022.2112530","url":null,"abstract":"ABSTRACT Background It is highly recommended that professionals promote caregivers' capacity-building to use intervention strategies to support children with developmental delays or disabilities in natural learning environments, particularly in the earliest years of life. There is a gap, however, in understanding the extent to which these professionals may feel supported in tailoring outreach to support parents with Intellectual Disability and/or mental health conditions (MHCs). Methods We surveyed providers (n = 55) who work with families of infants and toddlers in Early Intervention programs across the United States. Results Most had at least one family with intellectual disability (87%) or a MHC (92%). At least half felt parents with intellectual disability or MHCs warranted more time/resources (64% or 50%, respectively) and half were “extremely interested” in trainings to support parents with intellectual disability (48%) or MHCs (56%). Conclusions Findings and implications are discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45061246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Patterns of presentation to a Children’s Hospital Emergency Department of patients with autism and/or intellectual disability with behaviours of concern 自闭症和/或智力残疾患者在儿童医院急诊科的表现模式
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2022-09-08 DOI: 10.3109/13668250.2022.2109824
D. Efron, Emily Cull, J. Fowler, K. Dunn, C. Prakash
{"title":"Patterns of presentation to a Children’s Hospital Emergency Department of patients with autism and/or intellectual disability with behaviours of concern","authors":"D. Efron, Emily Cull, J. Fowler, K. Dunn, C. Prakash","doi":"10.3109/13668250.2022.2109824","DOIUrl":"https://doi.org/10.3109/13668250.2022.2109824","url":null,"abstract":"ABSTRACT Background The aim of this study was to investigate the demographic, clinical characteristics, and service systems of patients with autism spectrum disorder (ASD) and/or intellectual disability presenting to a large paediatric hospital emergency department (ED) with behaviours of concern (BOC) over a two-year period. Method Retrospective audit of ED presentations with BOC in patients with ASD and/or intellectual disability from 1 January 2019 to 31 December 2020, at the Royal Children’s Hospital, Melbourne, Australia. Results There were 124 presentations (84 patients) in 2019 and 129 presentations (82 patients) in 2020. The mean age was 11.7 years. 55% arrived by ambulance, 24% required physical restraint, and 26% required sedation. Re-presentation was predicted by single-parent household, child protection involvement, and requirement of an interpreter. Conclusions Children and adolescents with ASD and/or intellectual disability regularly present to ED with BOC. New models of care are required to better support this highly vulnerable patient group.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48569844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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