Journal of Intellectual & Developmental Disability最新文献_第5页

Awareness of intellectual disability and intervention beliefs among teachers and university students in Kuwait. 科威特教师和大学生对智力残疾的认识与干预信念。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-01 Epub Date: 2024-12-02 DOI: 10.3109/13668250.2024.2430625

Fauzia Abdalla, Abdessatar Mahfoudhi

{"title":"Awareness of intellectual disability and intervention beliefs among teachers and university students in Kuwait.","authors":"Fauzia Abdalla, Abdessatar Mahfoudhi","doi":"10.3109/13668250.2024.2430625","DOIUrl":"https://doi.org/10.3109/13668250.2024.2430625","url":null,"abstract":"Background: Service providers' knowledge and attitude of people with disabilities is the foundation for inclusion. This qualitative study explored awareness and intervention beliefs of intellectual disability in 106 teachers and 170 preservice students in Kuwait.Method: After reading an unlabelled vignette about a young man with an intellectual disability, participants answered two open-ended questions to identify his problem and possible intervention. Data were coded and thematically analysed.Results: The four causal belief themes involved cognitive, academic-occupational, psychosocial, and personal/life-skill factors. The three intervention themes that emerged promoted personal/professional growth, educational and career enhancement and rehabilitation/psychosocial support. Results revealed few participants accurately identified intellectual disability. Most attributed the problem to personal factors. Recommendations for intervention centred on personal/professional development and rehabilitation and psychosocial support, in line with the causal beliefs.Conclusions: The findings are discussed in relation to the participants' local culture, and implications are suggested for training and assessment.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 2","pages":"235-248"},"PeriodicalIF":1.9,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144103141","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The immediate effect of listening to music on postural balance and mobility in individuals with intellectual disability. 听音乐对智力残疾人士的姿势平衡和活动能力的直接影响。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-01 Epub Date: 2024-10-28 DOI: 10.3109/13668250.2024.2417432

Rym Baccouch, Rabeb Laatar, Rihab Borji, Fatma Ben Waer, Hiba Kachouri, Haithem Rebai, Sonia Sahli

{"title":"The immediate effect of listening to music on postural balance and mobility in individuals with intellectual disability.","authors":"Rym Baccouch, Rabeb Laatar, Rihab Borji, Fatma Ben Waer, Hiba Kachouri, Haithem Rebai, Sonia Sahli","doi":"10.3109/13668250.2024.2417432","DOIUrl":"https://doi.org/10.3109/13668250.2024.2417432","url":null,"abstract":"Background: Individuals with intellectual disability have deficits in postural balance and mobility. This study aimed to explore the effect of listening to music on postural balance and mobility in individuals with intellectual disability.Method: Ten participants with intellectual disability and 10 participants with typical development performed postural balance and mobility tests [Time Up and Go (TUGT)/Ten Metre Walking (TMWT)] in three music conditions: no music, preferred music, and Mozart's Jupiter music.Results: Results revealed that listening to Mozart's Jupiter decreased (p < 0.001) the center of pressure mean velocity values for both groups. In individuals with intellectual disability, the TUGT and the TMWT time to execution increased (p < 0.001) in the preferred music compared to the no music condition whereas the Mozart music has no significant effect (p ≥ 0.05).Conclusion: Listening to Mozart's Jupiter enhanced static postural balance, whereas listening to the preferred music impaired mobility in individuals with intellectual disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 2","pages":"183-195"},"PeriodicalIF":1.9,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144103160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

What is it like to be a twin of a person with profound intellectual and multiple disabilities? 作为一个有严重智力残疾和多重残疾的人的双胞胎是什么感觉？

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-01 Epub Date: 2024-10-24 DOI: 10.3109/13668250.2024.2419412

Jakub Niedbalski

{"title":"What is it like to be a twin of a person with profound intellectual and multiple disabilities?","authors":"Jakub Niedbalski","doi":"10.3109/13668250.2024.2419412","DOIUrl":"https://doi.org/10.3109/13668250.2024.2419412","url":null,"abstract":"Background: The aim of this study was to establish the perceived quality of life in twin siblings of individuals with profound intellectual and multiple disabilities (PIMD) living in Poland.Method: Semi-structured interviews were conducted with siblings of people with PMID. The interviews were subjected to thematic analysis according to grounded theory methodology principles.Findings: The results of this study yielded insights into the quality of life of twin siblings of persons with profound intellectual and multiple disabilities. Inquired about their lives in the capacity of siblings, the interviewees provided a narrative around their experiences as twins of individuals with PIMD.Conclusion: Research participants described both positive and negative experiences, indicating that having a sibling with profound intellectual and multiple disabilities affected their quality of life in diverse ways. In addition, the obtained results may be of cognitive merit to practitioners and researchers working with families of people with PIMD.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 2","pages":"221-234"},"PeriodicalIF":1.9,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144103162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Attitudes towards individuals with intellectual disabilities: Comparison between Special Olympic partners and non-partners during the Special Olympics World Summer Games 2023. 对智障人士的态度：2023年世界夏季特奥会合作伙伴与非合作伙伴的比较

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-01 Epub Date: 2024-10-01 DOI: 10.3109/13668250.2024.2405972

Marlena Huber, Florian Pochstein

{"title":"Attitudes towards individuals with intellectual disabilities: Comparison between Special Olympic partners and non-partners during the Special Olympics World Summer Games 2023.","authors":"Marlena Huber, Florian Pochstein","doi":"10.3109/13668250.2024.2405972","DOIUrl":"https://doi.org/10.3109/13668250.2024.2405972","url":null,"abstract":"Background: Despite progress in implementing the rights outlined in the UN Convention on the Rights of Persons with Disabilities, individuals with intellectual disability encounter challenges in participating in daily life autonomously. Exclusion and stereotypes persist, impacting education, employment, and social participation. Inclusive sports programs, particularly the Special Olympics Unified Sports® program, aim to enhance social inclusion for these persons.Method: This quantitative cross-sectional study compares attitudes across three groups: Unified Sports® partners, volunteers, and general population. Attitudes were measured using the Attitudes Toward Intellectual Disability Questionnaire.Results: Results reveal that both Unified Sports® partners and volunteers exhibit more positive attitudes compared to the general population. More frequent contact with individuals with intellectual disability is associated with more positive attitudes.Conclusion: While limitations exist, this study provides insights into the relationship between inclusive sports programs and attitudes toward individuals with intellectual disability, laying the groundwork for further research and practical applications.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 2","pages":"211-220"},"PeriodicalIF":1.9,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144103138","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Navigating uncertainty: taking methodological cues from relatives and care professionals for researching the perspectives of people with profound intellectual and multiple disabilities. 驾驭不确定性：从亲属和护理专业人员那里获取方法线索，研究重度智力残疾和多重残疾人士的观点。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-01 Epub Date: 2024-10-01 DOI: 10.3109/13668250.2024.2408553

Femmianne Bredewold, Simon van der Weele

{"title":"Navigating uncertainty: taking methodological cues from relatives and care professionals for researching the perspectives of people with profound intellectual and multiple disabilities.","authors":"Femmianne Bredewold, Simon van der Weele","doi":"10.3109/13668250.2024.2408553","DOIUrl":"https://doi.org/10.3109/13668250.2024.2408553","url":null,"abstract":"Background: Researching the perspectives of people with profound intellectual and multiple disabilities (PIMD) presents complexity and uncertainty. Traditional research often prioritises rational, objectivist methods, which may overlook this complexity.Aims: This study aimed to develop methodological cues for researchers studying the perspectives of people with PIMD by exploring how support workers and relatives deal with the uncertainty of uncovering these perspectives, drawing on Zinn's typology of strategies for dealing with uncertainty: \"rational,\" \"non-rational,\" and \"in-between\".Method: We conducted interviews with support workers and relatives and observed interactions through shadowing.Results: All of Zinn's strategies were observed, leading to six cues: (1) practicing an ethic of engagement; (2) valuing non-rational knowledge; (3) collaborating closely with caregivers; (4) acknowledging intertwined perspectives; (5) adopting phenomenological approaches; and (6) accepting uncertainty as inevitable.Conclusion: These cues promote an \"anti-sceptical ethic of engagement\" that encourages researchers to actively attune to the perspectives of people with PIMD.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 2","pages":"139-150"},"PeriodicalIF":1.9,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144103154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Change in function in activities of daily living associated with lower community participation for adults with Down syndrome. 唐氏综合症成人日常生活功能改变与社区参与度降低相关

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-01 Epub Date: 2024-11-21 DOI: 10.3109/13668250.2024.2428220

Angela Caldwell, Jennie L Dorris, Elizabeth Gilbert, Nada Alshahwan, Juleen Rodakowski

{"title":"Change in function in activities of daily living associated with lower community participation for adults with Down syndrome.","authors":"Angela Caldwell, Jennie L Dorris, Elizabeth Gilbert, Nada Alshahwan, Juleen Rodakowski","doi":"10.3109/13668250.2024.2428220","DOIUrl":"https://doi.org/10.3109/13668250.2024.2428220","url":null,"abstract":"Background: Adults with Down syndrome have demonstrated lower rates of community participation, which is known to reflect a poorer quality of life. This cross-sectional study used survey data completed by 27 care partners of adults with Down syndrome to understand if lower community participation was associated with a recent decreased independence in activities of daily living.Method: Decreased independence in activities of daily living were examined using the NTG-Early Detection Screen for Dementia. The frequency of participation was reported using the Guernsey Community Participation and Leisure Assessment.Results: All changes in activities of daily living showed statistically significant associations with lower participation. Decreased independence in dressing was most strongly associated with a lower frequency of visiting museums (ρ=-0.533, p = .006).Conclusions: Decreased independence in activities of daily living may be useful clinical indicators of lower community participation.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 2","pages":"249-253"},"PeriodicalIF":1.9,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144103144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A systematic review of the characteristics of programs and services resulting in competitive employment outcomes for young people with an intellectual disability. 对导致智障青年就业竞争结果的项目和服务特点的系统回顾。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-05-25 DOI: 10.3109/13668250.2025.2499674

Alison Enticott, Angela Dew

{"title":"A systematic review of the characteristics of programs and services resulting in competitive employment outcomes for young people with an intellectual disability.","authors":"Alison Enticott, Angela Dew","doi":"10.3109/13668250.2025.2499674","DOIUrl":"https://doi.org/10.3109/13668250.2025.2499674","url":null,"abstract":"Background: Transitioning to paid employment is part of the natural progression to adulthood, yet the number of people with an intellectual disability who are competitively employed globally is low. This study systematically reviewed the literature to understand characteristics of programs that support competitive employment outcomes for young people with an intellectual disability.Method: Five databases were searched. Two quality assessment tools were used: the Effective Public Health Practice Project (EPHPP) tool; and the Mixed Methods Appraisal Tool (MMAT). Content analysis was conducted using Braun and Clarke's theoretical thematic analysis framework.Results: Key findings demonstrated the importance of early career planning, work exposure, post-secondary education and certification, and on-the-job training.Conclusion: Further research, along with the application and adaptation of existing international studies presented in this systematic review, could drive system-wide changes prioritising competitive employment outcomes for young people with intellectual disability, enabling them to experience the benefits of competitive employment.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.9,"publicationDate":"2025-05-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144144458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring stakeholder perspectives on antipsychotic use for challenging behaviours in intellectual disabilities using a World Café approach. 使用世界咖啡方法探索利益相关者对使用抗精神病药物治疗智力残疾患者挑战性行为的看法。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-05-20 DOI: 10.3109/13668250.2025.2499669

Aoibhin McCool, Gurjot Brar, Owen Doody, Drona Sharma, Marie Kehoe, Dervla Kelly

{"title":"Exploring stakeholder perspectives on antipsychotic use for challenging behaviours in intellectual disabilities using a World Café approach.","authors":"Aoibhin McCool, Gurjot Brar, Owen Doody, Drona Sharma, Marie Kehoe, Dervla Kelly","doi":"10.3109/13668250.2025.2499669","DOIUrl":"https://doi.org/10.3109/13668250.2025.2499669","url":null,"abstract":"Aims: Adults with intellectual disability frequently experience challenging behaviours and are prescribed antipsychotics (AP). Management of challenging behaviours remains controversial and AP use is often based on low-quality evidence. Our study explores the development of educational resources with healthcare workers and paid carers regarding the use of AP.Method: A mixed-methods approach utilised a \"World Café Event\". Thematic analysis and descriptive analysis were conducted.Results: Participants reported the importance of training that explores the balancing of the risks and benefits of AP use and the setting of a pluralistic approach towards treatment. We identified the need for further education of caregivers to improve confidence in AP prescribing to facilitate correct protocols and dose tapering where possible.Clinical implications: Engaging mixed disciplines to discuss medication safety is feasible using a World Café approach and useful to create shared values, identify knowledge gaps and promote change via a social movement.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-9"},"PeriodicalIF":1.9,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A systematic review of digital activity schedule use in individuals with autism spectrum disorder and intellectual disability. 自闭症谱系障碍和智力残疾患者使用数字活动时间表的系统回顾。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-05-20 DOI: 10.3109/13668250.2025.2499009

Adelaide W Hammond, Jared R Morris, Terisa Gabrielsen, Timothy B Smith, Nathaniel Medsker

{"title":"A systematic review of digital activity schedule use in individuals with autism spectrum disorder and intellectual disability.","authors":"Adelaide W Hammond, Jared R Morris, Terisa Gabrielsen, Timothy B Smith, Nathaniel Medsker","doi":"10.3109/13668250.2025.2499009","DOIUrl":"https://doi.org/10.3109/13668250.2025.2499009","url":null,"abstract":"Background: This systematic review examined the effectiveness of digital activity schedules as an intervention for individuals with autism spectrum disorder (ASD) or intellectual disability.Method: To be included, studies had to use a digitally presented activity schedule, excluding task analyses of single activities or group visual schedules, and the intervention must involve individuals with ASD or intellectual disability as the participants.Results: Seventeen studies met the criteria, involving 58 participants, and focused on leisure, independent living, and academic skills across different age groups, with 82% reporting fidelity of implementation.Conclusion: The review found that most interventions were concentrated in early childhood, primarily aimed at teaching leisure activities, and often combined with other concurrent interventions. The settings, participant ages, and interventions varied, with 41% meeting What Works Clearinghouse quality indicators. Future research should focus on interventions implemented in secondary education and independent living skills, with more rigorous methodological standards.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-15"},"PeriodicalIF":1.9,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A qualitative process evaluation of Active Support in the Dutch context: An investigation of implementation and contextual factors. 荷兰背景下积极支持的定性过程评价：对实施和背景因素的调查。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-05-16 DOI: 10.3109/13668250.2025.2503101

Aniek van Herwaarden, Nienke C Peters-Scheffer, Vaso Totsika, Robert Didden

{"title":"A qualitative process evaluation of Active Support in the Dutch context: An investigation of implementation and contextual factors.","authors":"Aniek van Herwaarden, Nienke C Peters-Scheffer, Vaso Totsika, Robert Didden","doi":"10.3109/13668250.2025.2503101","DOIUrl":"https://doi.org/10.3109/13668250.2025.2503101","url":null,"abstract":"Background: A qualitative process evaluation was carried out to investigate implementation of Active Support in services for people with mild and moderate intellectual disability in the Netherlands, and to identify contextual factors that may contribute to variation in implementation, perceived effectiveness, and pathways to successful outcomes.Method: Qualitative semi-structured interviews were conducted with stakeholders who were involved with the Active Support implementation. Interviews with practice leaders (n = 6), Active Support trainers (n = 4), direct support staff (n = 8), and residents with mild intellectual disabilities (n = 7) were analysed through a thematic analysis.Results: Organisational and managerial preparation appeared to lead to positive Active Support training experiences, in turn leading to behavioural changes in staff, resulting in resident wellbeing. Practice leaders' coaching, staff collaboration, and additional staffing resources through volunteers and students facilitated implementation of Active Support.Conclusions: Identification of these factors enhances our understanding of the dynamic process of Active Support implementation in a Dutch context.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.9,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144086915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0