Journal of Intellectual & Developmental Disability最新文献_第10页

Self-advocate perspectives on COVID-19 in Urban Los Angeles: impacts on autonomy and access to supports. 洛杉矶城市对COVID-19的自我倡导观点:对自主性和获得支持的影响

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-12-01 Epub Date: 2022-03-06 DOI: 10.3109/13668250.2022.2028379

Robin L Dodds, Karolyn J Maurer, LaQuita Spivey Montgomery, Sean Cutting, Courtney Jilek

引用次数: 0

Expressions of stress of people with severe intellectual disabilities and sensitive caregiving to regulate stress: A qualitative study. 重度智障人士压力表达与敏感照护调节压力的质性研究

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-12-01 Epub Date: 2022-01-24 DOI: 10.3109/13668250.2021.2011171

Tanja W M Doodeman, Carlo Schuengel, Paula S Sterkenburg

{"title":"Expressions of stress of people with severe intellectual disabilities and sensitive caregiving to regulate stress: A qualitative study.","authors":"Tanja W M Doodeman, Carlo Schuengel, Paula S Sterkenburg","doi":"10.3109/13668250.2021.2011171","DOIUrl":"10.3109/13668250.2021.2011171","url":null,"abstract":"Background: People with severe to profound intellectual disabilities have particular needs for others to help them regulate stress. Such support may be hampered by difficulties in detecting and interpreting expressions of stress. This study aimed to describe and identify stress-related behaviours and sensitive, stress-regulating responses to these behaviours.Method: Video recordings of psychotherapeutic interactions between four clients with severe intellectual disabilities and behavioural problems and two attachment therapists were analysed using a stepwise spiral of analysis approach. Stress-related behaviours were identified with a behaviour rating scale for arousal and valence.Results: Distinct stress-related behaviours were subdivided into stress-specific, non-stress-specific, and client-specific behaviours. Additionally, examples of responsive behaviours to clients' expressions of varying arousal and valence were found.Conclusions: A wide variety of expressions indicative of different levels of arousal were found, with few expressions specific for stress. The descriptions of responsive behaviours might support parents and caregivers in external stress regulation.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"308-317"},"PeriodicalIF":1.9,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47780656","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

2021 JIDD Awards Announcement. 2021 JIDD奖公告

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-12-01 Epub Date: 2022-12-05 DOI: 10.3109/13668250.2022.2126169

引用次数: 0

The showcase of special education in Turkey: Guidance and research centres. 土耳其特殊教育的展示：指导和研究中心

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-12-01 Epub Date: 2022-02-24 DOI: 10.3109/13668250.2021.2011173

Muhammed A Karal, Neslihan Unluol Unal

{"title":"The showcase of special education in Turkey: Guidance and research centres.","authors":"Muhammed A Karal, Neslihan Unluol Unal","doi":"10.3109/13668250.2021.2011173","DOIUrl":"10.3109/13668250.2021.2011173","url":null,"abstract":"Background: Identifying the students with intellectual disabilities and deciding the required services would not be sufficient without parental involvement. The purpose of this study was to understand the perspectives of the parents of students with intellectual disabilities about the Guidance and Research Centres (GRCs) and reveal the parents' experiences at the GRCs.Method: In this qualitative study, unstructured interviews were conducted. Twenty-one parents who had a child with an intellectual disability were asked about their experiences during their visit to the GRCs. Content analysis with an inductive approach was used to analyse the data.Findings: Most of the parents reported problems regarding educational evaluation, and communication and collaboration. The participants provided their suggestions about evaluation procedures, professionalism, and institutional practices.Conclusions: The problems at the GRCs must be considered by educators and other stakeholders to better provide educational evaluation, support services, and guidance to the students and their parents.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"318-328"},"PeriodicalIF":1.9,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46613670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

eHealth content-sharing and emotional support among Italian parents of children with Down Syndrome: A qualitative report. 唐氏综合症患儿意大利父母的电子健康内容共享和情感支持：一份定性报告

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-08-17 DOI: 10.3109/13668250.2021.1964153

Valentina Boursier, Francesca Gioia, Federica Coppola, Adriano Schimmenti

{"title":"eHealth content-sharing and emotional support among Italian parents of children with Down Syndrome: A qualitative report.","authors":"Valentina Boursier, Francesca Gioia, Federica Coppola, Adriano Schimmenti","doi":"10.3109/13668250.2021.1964153","DOIUrl":"10.3109/13668250.2021.1964153","url":null,"abstract":"Parents of children with special healthcare needs search the Internet to learn about and share health-related information. Indeed, online communities (OCs) often increase knowledge and skills, decreasing feelings of isolation and distress. The current study explored the content and functioning of an Italian OC comprising parents of children with Down Syndrome. Following a netnographic method, data were analysed through the Latent Thematic Analysis. Five main themes emerged: the e-group, the child, prescriptive knowhow, being a parent, and personal experience across time. The findings illustrated the complex relationship between parents and children with Down Syndrome within the OC, exploring psychological themes recurring in parents of children with Down Syndrome. Within the e-group, special children and parental challenges can be described, sharing concerns, conflicting emotions, and experience-based information, countering Down Syndrome difficulties and social isolation. Clinicians and healthcare professionals should consider the OCs-related advantages to enhance the healthcare of parents and children with Down Syndrome.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"240-251"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42773958","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patterns of group home culture in organisations supporting people with intellectual disabilities: A cross-sectional study. 支持智障人士的组织中的团体家庭文化模式：一项横断面研究

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-08-17 DOI: 10.3109/13668250.2021.1954482

Lincoln Humphreys, Christine Bigby, Teresa Iacono, Em Bould

{"title":"Patterns of group home culture in organisations supporting people with intellectual disabilities: A cross-sectional study.","authors":"Lincoln Humphreys, Christine Bigby, Teresa Iacono, Em Bould","doi":"10.3109/13668250.2021.1954482","DOIUrl":"10.3109/13668250.2021.1954482","url":null,"abstract":"Background: Organisational culture in group homes for people with intellectual disabilities has been identified as an influence on service delivery and staff behaviour. The aim was to examine patterns of culture across group homes in disability organisations.Method: The Group Home Culture Scale (GHCS) was used to measure staff perceptions of culture. Data were available from 260 staff who worked across 58 group homes managed by eight organisations. Using scatterplots and measures of dispersion, the scores on the seven GHCS subscales were examined for patterns of integrated (i.e., similarities) and differentiated (i.e., variability) culture within the organisations.Results: Patterns of differentiated culture were found in six organisations for one or more GHCS subscales. Patterns of integrated culture were found in three organisations for one subscale. In two organisations, patterns of both integrated and differentiated culture were found.Conclusions: The findings contribute to the conceptualisation of and research into organisational culture in group homes, with implications for changing and maintaining culture.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"252-264"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42083817","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The key elements of ageing well: Perspectives of middle-aged adults with intellectual disabilities and family carers in South Korea. 健康老龄化的关键要素:韩国智障中年人和家庭照顾者的观点

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-11-22 DOI: 10.3109/13668250.2021.1985333

Hyun Seung Kim, Chung Eun Lee, Kyung Mee Kim

{"title":"The key elements of ageing well: Perspectives of middle-aged adults with intellectual disabilities and family carers in South Korea.","authors":"Hyun Seung Kim, Chung Eun Lee, Kyung Mee Kim","doi":"10.3109/13668250.2021.1985333","DOIUrl":"10.3109/13668250.2021.1985333","url":null,"abstract":"Background: Despite the increasing longevity of people with intellectual disability, community care systems are ill prepared to support the choices of people with intellectual disabilities for ageing well. This study aims to understand ageing experiences among middle-aged adults with intellectual disabilities and their family carers with a focus on their perspectives of ageing well.Method: Interviews were conducted with 10 middle-aged people with intellectual disabilities and 12 family carers; the interview data were thematically analysed.Results: The participants highlighted the key elements of ageing well such as importance of living in a familiar place, having a reliable carer, nurturing independence, staying fit and healthy, and actively engaging in social activities.Conclusions: The findings suggest that middle-aged adults with intellectual disabilities can best age well through future planning, along with support services tailored to respond to their changing needs as they age.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"265-275"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44106153","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A survey of Registered Nurses' educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder. 注册护士护理智障及/或自闭症谱系障碍患者的教育经历及自我认知能力调查

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-08-31 DOI: 10.3109/13668250.2021.1967897

Andrew Cashin, Amy Pracilio, Thomas Buckley, Michelle Kersten, Julian Trollor, Julia Morphet, Virginia Howie, Ken Griffin, Nathan J Wilson

{"title":"A survey of Registered Nurses' educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder.","authors":"Andrew Cashin, Amy Pracilio, Thomas Buckley, Michelle Kersten, Julian Trollor, Julia Morphet, Virginia Howie, Ken Griffin, Nathan J Wilson","doi":"10.3109/13668250.2021.1967897","DOIUrl":"10.3109/13668250.2021.1967897","url":null,"abstract":"Aims and objectives: To survey the educational experience of Registered Nurses in Australia, at undergraduate, post graduate and continuing professional development levels.Background: It has been previously demonstrated that nurses feel unprepared to care for people with intellectually disability and/or autism spectrum disorder in mainstream clinical settings. Specific undergraduate pre-registration curricula content in this domain has been identified to be low in volume, and in the absence of any studies to determine it, it has been presumed that it has diminished over time.Methods: A cross-sectional survey of Australian Registered Nurses using a descriptive survey tool.Results: The level of education undertaken related to intellectual disability and autism spectrum disorder has been consistently low across time and it predates the move from pre-registration hospital based training to the tertiary sector. A relationship was identified between the experience of education and self-reported preparedness, comfort and knowledge to care for people with intellectual disability and/or autism spectrum disorder.Conclusion: Increased educational preparation for nurses to care for people with intellectual disability and/or autism is indicated.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"227-239"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46935425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effectiveness of schema therapy in offenders with intellectual disabilities: a case series design. 图式治疗在智障罪犯中的有效性：案例系列设计

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-10-24 DOI: 10.3109/13668250.2021.1978956

Anke de Klerk, Marije Keulen-de Vos, Jill Lobbestael

引用次数: 0

Signs of abuse in children with disabilities: A rapid review with expert panel social validation. 残疾儿童的虐待迹象:与专家小组社会验证的快速审查

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-11-11 DOI: 10.3109/13668250.2021.1984083

Amanda Nyberg, Ulrika Ferm, Juan Bornman

{"title":"Signs of abuse in children with disabilities: A rapid review with expert panel social validation.","authors":"Amanda Nyberg, Ulrika Ferm, Juan Bornman","doi":"10.3109/13668250.2021.1984083","DOIUrl":"10.3109/13668250.2021.1984083","url":null,"abstract":"Background: Children with intellectual disabilities are at risk of becoming victims of abuse. However, persons working with this population often lack knowledge on how to interpret signs of abuse. The purpose of this study was to identify and socially validate signs of abuse in children with disabilities.Method: The study employed a mixed-method sequential design. The first phase consisted of a rapid review of publications that described signs of abuse in children with disabilities (n = 23). The second phase included social validation using an online survey. The participants were professionals working with disability and/or child abuse (n = 39).Results: A significant difference between the 10 highest rated signs of abuse compared to the 10 lowest rated signs was found. Group comparisons between participants showed significant differences in the ratings of eight signs.Conclusions: The results from the study can provide guidance to the accuracy of signs of abuse in children with disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"206-217"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46951163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0