Journal of Intellectual & Developmental Disability最新文献_第10页

Childhood experience, family support and parenting by people with intellectual disability. 智力残疾者的童年经历、家庭支持和养育子女

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2021-06-19 DOI: 10.3109/13668250.2021.1929880

David McConnell, Rahel More, Laura Pacheco, Marjorie Aunos, Lyndsey Hahn, Maurice Feldman

{"title":"Childhood experience, family support and parenting by people with intellectual disability.","authors":"David McConnell, Rahel More, Laura Pacheco, Marjorie Aunos, Lyndsey Hahn, Maurice Feldman","doi":"10.3109/13668250.2021.1929880","DOIUrl":"10.3109/13668250.2021.1929880","url":null,"abstract":"Background: Parents with intellectual disability, like all other parents, are embedded in networks of capability-enhancing and/or capability-inhibiting relationships. This study investigated links between how parents with intellectual disability experienced their upbringing, continuity and discontinuity in familial relationships, and their assessments of their own parenting.Method: Structured interviews, incorporating scales and open-ended questions, were conducted with 91 parents in receipt of specialist services for people with intellectual disability, including 82 mothers and 9 fathers.Results: Most participants (81%) had experienced at least one form of childhood abuse or household adversity. Participants who recalled a more positive upbringing, including less adversity and more parental care, tended to have stronger support networks and reported greater parenting role satisfaction and emotional warmth in their interactions with their own children.Conclusion: The results highlight the need to understand parenting by people with intellectual disability in biographical and relational context.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"152-164"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41602492","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Forming and supporting circles of support for people with intellectual disabilities - a comparative case analysis. 智障人士支持圈的形成与支持——个案比较分析

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2021-08-14 DOI: 10.3109/13668250.2021.1961049

Tal Araten-Bergman, Christine Bigby

{"title":"Forming and supporting circles of support for people with intellectual disabilities - a comparative case analysis.","authors":"Tal Araten-Bergman, Christine Bigby","doi":"10.3109/13668250.2021.1961049","DOIUrl":"10.3109/13668250.2021.1961049","url":null,"abstract":"Background: Building Circles of Support is an innovative strategy for developing natural support networks. This study explored some of the ambiguity in the conceptualisations, operational elements, and perceived outcomes of Circles of Support programs.Method: A comparative case study of three Australian Circles of Support programs was conducted. Data included document review and qualitative interviews with 27 key stakeholders. Qualitative analysis of the data from each program was analysed using categories of the program logic as a conceptual framework, followed by cross-case analysis to identify commonalities and differences.Results: Findings show conceptual variability between programs, which shared similar overarching intents but differed in program, strategies, target population and outcomes, which were shaped by the missions of the organisation of which they were part.Conclusion: Findings can inform the future design and evaluation of programs to support the development of informal support network for people with intellectual disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"177-189"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42860964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development of a personalised substance use disorder treatment for people with mild intellectual disabilities or borderline intellectual functioning: An intervention mapping approach. 开发一种针对轻度智力残疾或边缘智力功能人群的个性化物质使用障碍治疗方法：干预映射方法

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2021-06-14 DOI: 10.3109/13668250.2021.1925529

Lotte C F Gosens, Roy Otten, Jannet M de Jonge, Arnt F A Schellekens, Joanneke E L VanDerNagel, Robert Didden, Evelien A P Poelen

{"title":"Development of a personalised substance use disorder treatment for people with mild intellectual disabilities or borderline intellectual functioning: An intervention mapping approach.","authors":"Lotte C F Gosens, Roy Otten, Jannet M de Jonge, Arnt F A Schellekens, Joanneke E L VanDerNagel, Robert Didden, Evelien A P Poelen","doi":"10.3109/13668250.2021.1925529","DOIUrl":"10.3109/13668250.2021.1925529","url":null,"abstract":"Background: The prevalence of Substance Use Disorder (SUD) in people with Mild Intellectual Disability and Borderline Intellectual Functioning (MID-BIF) is high and evidence-based treatment programs are scarce. The present study describes the development of a personalised SUD treatment for people with MID-BIF.Method: The personalised SUD treatment is developed according to the steps of the Intervention Mapping approach, based on literature review, theoretical intervention methods, clinical experience and consultation with experts in the field of addiction and intellectual disability care.Results: We developed a treatment manual called Take it Personal!+. Take it Personal!+ aims to reduce substance use, is based on motivational interviewing and cognitive behavior therapy and personalised based on the client's personality profile. Furthermore, an mHealth application supports the treatment sessions.Conclusion: Take it Personal!+ is the first personalised SUD treatment for individuals with MID-BIF. Future research should test the effectiveness of Take it Personal!+ in reducing SU.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"131-140"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49410803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Psychometric properties of the ABSI-id, an adapted measure for anger-related interoceptive awareness in individuals with mild intellectual disabilities or borderline intellectual functioning. ABSI-id的心理测量特性，一种适用于轻度智力残疾或边缘性智力功能个体的愤怒相关内感受性意识的测量方法

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2020-12-23 DOI: 10.3109/13668250.2020.1846367

Tina Bellemans, Robert Didden, Hubert P L M Korzilius, Jooske T van Busschbach

{"title":"Psychometric properties of the ABSI-id, an adapted measure for anger-related interoceptive awareness in individuals with mild intellectual disabilities or borderline intellectual functioning.","authors":"Tina Bellemans, Robert Didden, Hubert P L M Korzilius, Jooske T van Busschbach","doi":"10.3109/13668250.2020.1846367","DOIUrl":"10.3109/13668250.2020.1846367","url":null,"abstract":"Background: The present study examined the psychometric properties of the Anger Bodily Sensations Interview - intellectual disabilities (ABSI-id), an adapted instrument to measure anger-related interoceptive awareness (IA) in individuals with mild intellectual disabilities or borderline intellectual functioning (MID-BIF).Method: The ABSI-id was individually administered to 208 clients (51% male) with MID-BIF in residential facilities.Results: An EFA and CFA showed a two-factor structure of the ABSI-id, including nine items. The ABSI-id had moderate to good reliability, with an internal consistency ranging from acceptable to good, a test-retest reliability ranging from moderate to good and an adequate convergent validity. There was no significant difference in ABSI-id scores between individuals with MID and BIF.Conclusion: The ABSI-id is a promising instrument for measuring anger-related IA, additional research is needed on validity and sensitivity of change.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"97-106"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43820696","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Worlds of care: The emotional lives of fathers caring for children with disabilities 关爱世界：父亲关爱残疾儿童的情感生活

IF 1.3 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-03-21 DOI: 10.3109/13668250.2021.1997140

P. McKearney

引用次数: 2

"It's ignorant stereotypes": Key stakeholder perspectives on stereotypes associated with fetal alcohol spectrum disorder, alcohol, and pregnancy. “这是无知的刻板印象”:主要利益相关者对胎儿酒精谱系障碍、酒精和怀孕相关刻板印象的看法

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-03-01 Epub Date: 2021-02-10 DOI: 10.3109/13668250.2020.1865649

John Aspler, Aline Bogossian, Eric Racine

{"title":"\"It's ignorant stereotypes\": Key stakeholder perspectives on stereotypes associated with fetal alcohol spectrum disorder, alcohol, and pregnancy.","authors":"John Aspler, Aline Bogossian, Eric Racine","doi":"10.3109/13668250.2020.1865649","DOIUrl":"10.3109/13668250.2020.1865649","url":null,"abstract":"Background: People with fetal alcohol spectrum disorder (FASD) and women who drink alcohol while pregnant can experience stigma, possibly exacerbated by stereotyped media portrayals.Method: To understand experiences of FASD stakeholders and reactions to news coverage, we conducted twelve focus groups across three categories: (1) people with FASD; (2) caregivers; and (3) professionals. Themes were identified using framework analysis.Results: We identified stereotypes about: (1) FASD (e.g., negative life trajectories); (2) alcohol and pregnancy (e.g., bad mothers); and (3) non-biological caregivers. Participants identified potential effects of FASD stereotypes (e.g., self-fulfilling prophecies) and alcohol and pregnancy stereotypes (e.g., exacerbating difficult decisions about disclosing a child's adoptive status).Conclusions: Our results align with research about difficult experiences of FASD stakeholders. However, while Canadian news analyses found people with FASD portrayed as criminals, our participants identified mostly non-crime stereotypes. Participants also sometimes shifted the burden of motherhood stereotypes from low-income to higher-income women.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"53-64"},"PeriodicalIF":1.9,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47648389","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Living with the pandemic - Can we think and act differently? 面对大流行——我们能否以不同的方式思考和行动?

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-03-01 Epub Date: 2022-03-10 DOI: 10.3109/13668250.2021.2021716

Rafat Hussain

引用次数: 0

Growing up with a brother or sister with Down syndrome: Adult siblings' perceptions of their childhood relationships. 与患有唐氏综合症的兄弟姐妹一起长大：成年兄弟姐妹对童年关系的看法

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-03-01 Epub Date: 2021-01-21 DOI: 10.3109/13668250.2020.1855632

Lise Lemoine, Benoît Schneider

引用次数: 0

2020 JIDD Awards Announcement. 2020 JIDD奖公告

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-03-01 Epub Date: 2022-03-10 DOI: 10.3109/13668250.2021.2021717

引用次数: 0

Perspectives of people with intellectual disability about their family networks: A comparison study with key support worker proxy reports. 智障人士对其家庭网络的看法：与关键支持工作者代理报告的比较研究

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-03-01 Epub Date: 2020-10-21 DOI: 10.3109/13668250.2020.1827143

Tess Tournier, Alexander H C Hendriks, Andrew Jahoda, Richard P Hastings, Sanne A H Giesbers, Petri J C M Embregts

{"title":"Perspectives of people with intellectual disability about their family networks: A comparison study with key support worker proxy reports.","authors":"Tess Tournier, Alexander H C Hendriks, Andrew Jahoda, Richard P Hastings, Sanne A H Giesbers, Petri J C M Embregts","doi":"10.3109/13668250.2020.1827143","DOIUrl":"10.3109/13668250.2020.1827143","url":null,"abstract":"Background: The Family Network Method - Intellectual Disability (FNM-ID) was used to compare perspectives of people with mild intellectual disability and their support workers on family networks of people with intellectual disability.Method: 138 participants with mild intellectual disability and support workers were interviewed, using the FNM-ID. Paired t-tests were used to examine differences in perspectives. Multiple regression analyses were used to examine divergence in perspectives.Results: People with mild intellectual disability perceived their family networks to be larger and to provide more support than support workers did. Living in a residential setting and having higher levels of externalising behaviour were associated with differences in perspectives, whereas a higher level of internalising behaviour was associated with more similar views.Conclusions: Individuals with intellectual disability and support workers are unlikely to provide the same information about family networks of people with mild intellectual disability. Behavioural and emotional problems were associated with divergence in perspectives.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"72 20","pages":"27-38"},"PeriodicalIF":1.9,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41249603","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0