Journal of Intellectual & Developmental Disability最新文献

Evaluation of a comprehensive literacy program in primary school students with intellectual disabilities in single case studies. 以单一个案研究评估智障小学生综合扫盲计划。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-07-22 DOI: 10.3109/13668250.2025.2531710

Marc Tebbe, Jan Kuhl, Carmen L A Zurbriggen

{"title":"Evaluation of a comprehensive literacy program in primary school students with intellectual disabilities in single case studies.","authors":"Marc Tebbe, Jan Kuhl, Carmen L A Zurbriggen","doi":"10.3109/13668250.2025.2531710","DOIUrl":"https://doi.org/10.3109/13668250.2025.2531710","url":null,"abstract":"Background: The comprehensive literacy program Schoolmates, an adaptation of the program Friends on the Block, combines (high-frequency) sight word and phonics instruction for German-speaking students with intellectual disabilities.Method: A single-case multiple baseline design was used to assess the progress of nine primary school students with intellectual disabilities in reading practised sight words and simple syllables (basic decoding). Data were analysed using standardised visual inspection, non-overlapping indices and hierarchical piecewise linear regression.Results: Students demonstrated moderate improvement in reading sight words, with a significant effect on both the level and trend. Six out of nine students improved their basic decoding skills from the baseline to the follow-up phase.Conclusion: The comprehensive literacy program Schoolmates appeares to promote sight word reading among primary school students with intellectual disabilities. Future studies could investigate whether a higher frequency or longer duration of instruction affects basic decoding skills.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.9,"publicationDate":"2025-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144692382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adverse childhood experiences in families with intellectual disabilities under family supervision orders: An exploratory cross-sectional study. 智障家庭在家庭监护下的不良童年经历：一项探索性横断面研究。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-07-20 DOI: 10.3109/13668250.2025.2525663

Jessica Vervoort-Schel, Gabriëlle Mercera, Inge Wissink, Tessel Sterenborg, Maroesjka van Nieuwenhuijzen, Peer van der Helm, Ramón Lindauer, Xavier Moonen

{"title":"Adverse childhood experiences in families with intellectual disabilities under family supervision orders: An exploratory cross-sectional study.","authors":"Jessica Vervoort-Schel, Gabriëlle Mercera, Inge Wissink, Tessel Sterenborg, Maroesjka van Nieuwenhuijzen, Peer van der Helm, Ramón Lindauer, Xavier Moonen","doi":"10.3109/13668250.2025.2525663","DOIUrl":"https://doi.org/10.3109/13668250.2025.2525663","url":null,"abstract":"Background: Families with intellectual disabilities are overrepresented in child protection systems. However, little is known about how adverse experiences co-occur in this population. This study examined the prevalence and interrelations of original and extended adverse childhood experiences (ACEs) and contextual child and family variables in families with intellectual disabilities under family supervision orders (FSOs).Method: We conducted an exploratory cross-sectional analysis of 128 Dutch case files concerning children aged 0-17 under an FSO, using structured codebooks.Results: Children were exposed to M = 4.4 original ACEs (SD = 2.0); 66.4% experienced four or more. Extended ACEs (e.g., out-of-home placement) and family risk factors (e.g., parental mental health problems, limited social support) were common. Several significant interrelations emerged across child, parent, and resource domains.Conclusion: Findings highlight the need to address co-occurring adversities across family contexts when developing ACE-informed strategies in child protection settings.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.9,"publicationDate":"2025-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144668990","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The impact of traumatic and stressful life events on the relatives of trauma-exposed adults with severe or moderate intellectual disabilities: "Each time a piece of your strength breaks off". 创伤性和压力性生活事件对严重或中度智力残疾的创伤暴露成人的亲属的影响：“每次你的力量都有一部分断裂”。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-07-20 DOI: 10.3109/13668250.2025.2525661

Annemieke Hoogstad, Nienke Peters-Scheffer, Liesbeth Mevissen, Robert Didden

{"title":"The impact of traumatic and stressful life events on the relatives of trauma-exposed adults with severe or moderate intellectual disabilities: \"Each time a piece of your strength breaks off\".","authors":"Annemieke Hoogstad, Nienke Peters-Scheffer, Liesbeth Mevissen, Robert Didden","doi":"10.3109/13668250.2025.2525661","DOIUrl":"https://doi.org/10.3109/13668250.2025.2525661","url":null,"abstract":"Background: Adults with severe or moderate intellectual disabilities frequently experience traumatic events, placing them at higher risk for trauma-related disorders. Although these events also affect their relatives, their experiences have not been studied.Method: Thematic analysis was conducted on interviews with eight first-degree relatives of adults with severe or moderate intellectual disabilities who had experienced traumatic events, as identified through a trauma interview.Results: Four themes emerged: (1) the impact varied, with some relatives developing trauma-related symptoms; (2) characteristics of events in terms of severity and frequency, accompanied by feelings of helplessness, guilt, and inadequacy; (3) coping strategies, including social support, persevering and avoidance; and (4) the link between impact and long-term care for the client, potentially increasing relatives' susceptibility to complaints.Conclusion: Professionals must be aware of the effects of trauma on relatives of individuals with severe or moderate intellectual disabilities. Further research needs to explore differences among relatives.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.9,"publicationDate":"2025-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144668991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring perceived usefulness and perceived ease of use of patient-led recording for adults with Down syndrome and their support people: A qualitative study. 探索感知有用性和感知易用性为成人唐氏综合症患者主导的记录及其支持人员：一项定性研究。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-07-17 DOI: 10.3109/13668250.2025.2525664

Laura Ryan, Kathy Ellem, Robyne Le Brocque, Claire Mitchell, Luka Langdon

{"title":"Exploring perceived usefulness and perceived ease of use of patient-led recording for adults with Down syndrome and their support people: A qualitative study.","authors":"Laura Ryan, Kathy Ellem, Robyne Le Brocque, Claire Mitchell, Luka Langdon","doi":"10.3109/13668250.2025.2525664","DOIUrl":"https://doi.org/10.3109/13668250.2025.2525664","url":null,"abstract":"Background: People with Down syndrome often face communication barriers, cognitive limitations, and inadequate service responses during hospital clinical encounters, leading to poorer health outcomes. Patient-led recordings, where individuals use their own smart devices to capture clinical encounters, show promise in helping to address these issues. However, their use in this population remains unexplored.Method: Semi-structured interviews were conducted with 12 adults with Down syndrome and 12 nominated support people. Interviews were transcribed and analysed using a critical realist approach to thematic analysis.Results: Participants identified several benefits of patient-led recordings, including improved communication, enhanced comprehension, supported decision-making, increased empowerment, and positive emotional impacts. However, barriers such as awareness, accessibility, digital literacy, consent, and confidentiality concerns were noted.Conclusion: Patient-led recordings could improve healthcare experiences for some people with Down syndrome, but addressing key barriers is necessary for successful implementation.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.9,"publicationDate":"2025-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144651174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Learning from people with disabilities: Investigating effects on pre-service teachers' beliefs and practices in inclusive education. 向残疾人学习：调查对职前教师全纳教育的信念和实践的影响。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-07-03 DOI: 10.3109/13668250.2025.2525659

Mia Hoffmann, Sonja Krämer, Friederike Zimmermann

{"title":"Learning from people with disabilities: Investigating effects on pre-service teachers' beliefs and practices in inclusive education.","authors":"Mia Hoffmann, Sonja Krämer, Friederike Zimmermann","doi":"10.3109/13668250.2025.2525659","DOIUrl":"https://doi.org/10.3109/13668250.2025.2525659","url":null,"abstract":"Background: Teachers' beliefs are conducive to inclusion at school. Based on the intergroup contact theory, this study examined short - and long-term effects of an innovative contact intervention on pre-service teachers' beliefs and inclusive practices.Method: Using a pre-post-follow-up design, data were collected from N = 356 pre-service teachers in university teacher training, divided into an intervention group attending a seminar session with people with intellectual disabilities as lecturers and a comparison group following the standard curriculum.Results: Structural equation modelling indicated that the intervention influenced pre-service teachers' beliefs (attitudes, modern prejudices, self-efficacy) in the short term; there was no evidence of long-term effects, such as on inclusive practices.Conclusion: Incorporating interactive contact with people with disabilities into university teacher training could be an additional contribution to preparing teachers for inclusive education. An appropriate target for future research is to explore the mechanisms underlying changes in inclusion-related beliefs.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.9,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144561886","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Disability group home residents and support worker perceptions of health communication during an infection outbreak: "Junk mail". 残疾团体之家居民和支助工作者对感染爆发期间健康沟通的看法：“垃圾邮件”。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-30 DOI: 10.3109/13668250.2025.2504277

Joanne Watson, Olumuyiwa Omonaiye, Catherine M Bennett, Melissa J Bloomer, Jennifer Crosbie, Jennifer L David, Angela Dew, Patsie Frawley, Amie O'Shea, Meredith Prain, Susan Taylor, Dion Williams, Nathan J Wilson, Kate L M Anderson

{"title":"Disability group home residents and support worker perceptions of health communication during an infection outbreak: \"Junk mail\".","authors":"Joanne Watson, Olumuyiwa Omonaiye, Catherine M Bennett, Melissa J Bloomer, Jennifer Crosbie, Jennifer L David, Angela Dew, Patsie Frawley, Amie O'Shea, Meredith Prain, Susan Taylor, Dion Williams, Nathan J Wilson, Kate L M Anderson","doi":"10.3109/13668250.2025.2504277","DOIUrl":"https://doi.org/10.3109/13668250.2025.2504277","url":null,"abstract":"Background: During infection outbreaks people with intellectual disability face numerous challenges in accessing appropriate health information and guidance. This research sought to understand how information about infectious diseases was shared in Australian group homes, and what helps or hinders information access.Method: Semi-structured interviews were conducted with six residents and eight support workers during the COVID-19 pandemic (2021-2022), and observational tours of two residential group homes were also completed. Interviews and observations underwent thematic and content analysis.Results: Findings centred around five key themes: (i) the COVID-19 context; (ii) living in an information soup; (iii) seeking information from trusted sources; (iv) sharing information with others; and (v) the value of tailored communication support.Conclusion: Our study found that information sharing about infectious diseases in disability group homes was multidirectional and drew on both formal and informal sources. Inclusive information sharing in these settings demands a coordinated and tailored approach.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.9,"publicationDate":"2025-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144530961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Active ageing in people with intellectual disability: a qualitative evidence synthesis of the experiences, challenges, and pathways to support. 智障人士的积极老龄化：经验、挑战和支持途径的定性证据综合

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-27 DOI: 10.3109/13668250.2025.2517203

Daniel Acton, Grace Talbot, Caroline Mogan, Sujeet Jaydeokar

{"title":"Active ageing in people with intellectual disability: a qualitative evidence synthesis of the experiences, challenges, and pathways to support.","authors":"Daniel Acton, Grace Talbot, Caroline Mogan, Sujeet Jaydeokar","doi":"10.3109/13668250.2025.2517203","DOIUrl":"10.3109/13668250.2025.2517203","url":null,"abstract":"Background: Improved life expectancy, among individuals with intellectual disability, highlights unique health, social, and emotional challenges in ageing, including premature ageing, comorbidities, and access barriers to accessing care. This review explores whether current systems adequately address the holistic needs of ageing individuals with intellectual disability, emphasising the importance of person-centred support.Method: A qualitative evidence synthesis was undertaken using thematic synthesis to identify and analyse patterns across studies. A systematic search of eight databases was conducted, and 15 qualitative studies, published between 2010 and 2023, were included.Results: Five key themes were identified: challenges in managing physical health declines, reduction in personal autonomy and control, increased social isolation, uncertainty about future care, and age-related stigma, and discrimination.Conclusion: This review underscores the importance of a holistic, person-centred approach to supporting ageing individuals with intellectual disability. Addressing health and psychosocial needs, and advocating for inclusive service planning remains essential.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.9,"publicationDate":"2025-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144509313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring parent and service provider expectations for children with autism or intellectual disability: A two-country follow-up study. 探讨父母和服务提供者对自闭症或智力残疾儿童的期望：一项两国随访研究。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-16 DOI: 10.3109/13668250.2025.2508620

Melissa Washington-Nortey, Adote Anum, Zewelanji Serpell, Yaoying Xu, Ioana Rusnac

{"title":"Exploring parent and service provider expectations for children with autism or intellectual disability: A two-country follow-up study.","authors":"Melissa Washington-Nortey, Adote Anum, Zewelanji Serpell, Yaoying Xu, Ioana Rusnac","doi":"10.3109/13668250.2025.2508620","DOIUrl":"https://doi.org/10.3109/13668250.2025.2508620","url":null,"abstract":"Background: Few studies have examined care providers' expectations for children with autism spectrum disorders or intellectual disability in low-and-middle-income countries. We used data from a qualitative study to inform a quantitative investigation of parents' and service providers' expectations for children with autism or intellectual disability in Ghana and Zambia.Method: 207 participants completed country-specific surveys examining expectations for children with autism or intellectual disability. Participants rated each expectation statement on two criteria: (i) the perceived importance and (ii) the perceived likelihood of attainment. We investigated differences using multivariate analysis of variance strategies.Results: There were significant differences between parents and service providers in Ghana on the perceived importance of independence, and the likelihood of children with autism or intellectual disability attaining independence, quality education, and community acceptance and inclusion. No significant differences emerged in Zambia.Conclusion: The findings and research, policy, and practice implications are discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-16"},"PeriodicalIF":1.9,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144303519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A human rights framing of the experiences of supporting people with intellectual disability in congregate care: Post-pandemic reflections. 在集体照料中支助智力残疾者的经验的人权框架：大流行后的思考。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-13 DOI: 10.3109/13668250.2025.2513336

Jo Watson, Elena Jenkin, Kate Anderson, Amie O'Shea, Kevin Murfitt, Jennifer David, Susan Taylor, Gemma Ge, Patsie Frawley, Angela Dew

{"title":"A human rights framing of the experiences of supporting people with intellectual disability in congregate care: Post-pandemic reflections.","authors":"Jo Watson, Elena Jenkin, Kate Anderson, Amie O'Shea, Kevin Murfitt, Jennifer David, Susan Taylor, Gemma Ge, Patsie Frawley, Angela Dew","doi":"10.3109/13668250.2025.2513336","DOIUrl":"https://doi.org/10.3109/13668250.2025.2513336","url":null,"abstract":"Background: This study explored human rights concerns of advocates and service providers during the COVID-19 pandemic in residential support services in Victoria, Australia.Method: A desk-top review informed the content of individual interviews and focus groups with Victorian disability service providers and key advocacy focused agencies with roles in complaint, community visitor, guardianship, or advocacy.Results: Concerns identified by both stakeholder groups included restricted access to choice, control, and decision making, barriers to communication and self-determination, reduced safeguarding, and a lack of accessible health information. Enablers included increased face to face contact with consistent support staff, and opportunities for increased engagement with friends and family online. Reductions in behaviours of concern and associated restrictive interventions were reported.Conclusion: Prevention of human rights violations in the context of lockdowns due to disease outbreaks or other disasters can and should be a priority for public health policy in Australia and internationally.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.9,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144287035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development of a digital library with accessible games for children with cognitive disabilities. 为有认知障碍的儿童开发一个带有无障碍游戏的数字图书馆。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-06-13 DOI: 10.3109/13668250.2025.2508617

Orit Ben Shusan

{"title":"Development of a digital library with accessible games for children with cognitive disabilities.","authors":"Orit Ben Shusan","doi":"10.3109/13668250.2025.2508617","DOIUrl":"https://doi.org/10.3109/13668250.2025.2508617","url":null,"abstract":"Background: This study introduced a novel approach to designing accessible games for children with cognitive disabilities by directly incorporating clinicians' expertise, addressing a critical gap in evidence-based digital interventions.Method: A qualitative study was conducted with 25 children in 15 occupational clinics, with varying levels of cognitive functioning. Interviews examined children's play needs to inform the development of a digital library of accessible games that were implemented in practice. A satisfaction questionnaire was distributed to participants.Results: Useful insights for designing accessible games for children with cognitive disabilities to support their development were obtained. Accessible games allowed children with cognitive disabilities to perform all stages of play and develop social skills, meeting their unique needs.Conclusion: Accessible game design enhances play abilities by offering inclusive opportunities that promote understanding, participation, and skill development. Future research should examine the long-term impact of digital interventions and explore integration within family contexts to maximise therapeutic outcomes beyond clinical settings.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.9,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144287037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0