Journal of Intellectual & Developmental Disability最新文献

A qualitative study of organisational support and staff stress in intellectual disability services: Left to cope alone. 智障服务机构的支援和员工压力的质性研究：让他们独自应付。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-10-06 DOI: 10.3109/13668250.2026.2729565

Petra Björne, Ingrid Runesson

{"title":"A qualitative study of organisational support and staff stress in intellectual disability services: Left to cope alone.","authors":"Petra Björne, Ingrid Runesson","doi":"10.3109/13668250.2026.2729565","DOIUrl":"https://doi.org/10.3109/13668250.2026.2729565","url":null,"abstract":"Background: Support from frontline managers and the organisation is crucial for staff wellbeing and the ability to cope with behaviours that challenge services. The aim of this study was to identify organisational factors impacting staff wellbeing and service quality in Swedish group homes and day programs.Method: 96 direct care staff (64 women, 32 men) were interviewed using the problem-centred interview method. The participants were actively involved in the thematic analysis in an interactive process.Results: Participants felt they were abandoned by the organisation, left to solve complex situations without support. This theme was supported by three subthemes: absent frontline leadership; not being part of significant decision-making; and management's focus on budget.Conclusion: A distant organisation, with largely absent frontline managers, left staff to deal with the downstream consequences of decisions they were not part of. Feeling thus disenfranchised seemed to cause more stress than coping with distressed behaviours.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.7,"publicationDate":"2026-10-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149118080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reliability and validity of the Sargent jump in people with intellectual disabilities. 萨金特跳跃在智障人群中的可靠性和有效性。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-23 DOI: 10.3109/13668250.2026.2700791

Daniel González-Devesa, Nerea Blanco-Martínez, Iván Martínez-Lemos, Raquel Castro-Rey, Daniel Martínez-Aldao, Carlos Ayán-Pérez

{"title":"Reliability and validity of the Sargent jump in people with intellectual disabilities.","authors":"Daniel González-Devesa, Nerea Blanco-Martínez, Iván Martínez-Lemos, Raquel Castro-Rey, Daniel Martínez-Aldao, Carlos Ayán-Pérez","doi":"10.3109/13668250.2026.2700791","DOIUrl":"https://doi.org/10.3109/13668250.2026.2700791","url":null,"abstract":"Background: Assessing muscular strength in people with intellectual disabilities requires simple and reliable field tests. This study analysed the reliability and validity of the vertical jump (VJ) across disability levels.Method: Sixty-three participants with intellectual disabilities completed the VJ, standing long jump (SLJ), and countermovement jump (CMJ) twice in separate sessions. Relative and absolute reliability were assessed using the ICC and SEM/MDC, respectively. Validity was examined using Pearson's correlations.Results: The VJ showed good relative reliability (ICC = 0.89) but poor absolute reliability (%SEM = 16.4). The SLJ (ICC = 0.92) and CMJ (ICC = 0.94) showed excellent reliability. Correlations were fair between the VJ and CMJ (r = 0.44) and fair to moderate between the VJ and SLJ (r = 0.56-0.69).Conclusion: The VJ demonstrated good reliability but limited validity, whereas the SLJ was more reliable and valid for assessing lower-body strength in people with intellectual disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-10"},"PeriodicalIF":1.7,"publicationDate":"2026-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149026466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Implementing a direct support staff intervention in services for people with intellectual disabilities and challenging behaviour using the ItFits framework: From needs to action. 使用ItFits框架，在为智障人士和挑战行为的服务中实施直接支持人员干预：从需求到行动。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-20 DOI: 10.3109/13668250.2026.2707840

Petri J C M Embregts, Steffan Widdershoven, Suzanne Lokman, Fleur van Hoof, Laurie de Werdt, Noud Frielink

{"title":"Implementing a direct support staff intervention in services for people with intellectual disabilities and challenging behaviour using the ItFits framework: From needs to action.","authors":"Petri J C M Embregts, Steffan Widdershoven, Suzanne Lokman, Fleur van Hoof, Laurie de Werdt, Noud Frielink","doi":"10.3109/13668250.2026.2707840","DOIUrl":"https://doi.org/10.3109/13668250.2026.2707840","url":null,"abstract":"Background: Effective interventions often fail to achieve lasting impact due to implementation barriers. This study examined how Support Staff in the Spotlight - an intervention that enhances emotional intelligence and interactional awareness among support staff working with service users with intellectual disabilities and challenging behaviour - can be embedded in daily routines within intellectual disability care.Method: Using a hybrid effectiveness-implementation-design guided by the ItFits-framework, two Dutch care organisations completed a two-part-process: a needs assessment to identify barriers and facilitators, followed by communities of practice where key stakeholders co-created and refined tailored strategies. Data from focus-groups, structured logs, and interviews were analysed thematically.Results: The process helped to translate identified needs into concrete actions, such as adapting video-feedback procedures and embedding reflection in team routines. Organisational capacity, managerial continuity, and psychological safety were decisive for sustainability.Conclusion: Leadership engagement and routinised reflection moments were crucial for sustaining staff-focused interventions in practice.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-15"},"PeriodicalIF":1.7,"publicationDate":"2026-09-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149013115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Collaborative play in a mentalisation-based serious game for adults with intellectual disabilities. 为智障成人设计的基于心理的严肃游戏中的合作游戏。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-19 DOI: 10.3109/13668250.2026.2710754

Mitchel Mesker, Suzanne D M Derks, Paula S Sterkenburg

{"title":"Collaborative play in a mentalisation-based serious game for adults with intellectual disabilities.","authors":"Mitchel Mesker, Suzanne D M Derks, Paula S Sterkenburg","doi":"10.3109/13668250.2026.2710754","DOIUrl":"https://doi.org/10.3109/13668250.2026.2710754","url":null,"abstract":"Background: People with mild to borderline intellectual disabilities often struggle with mentalising and stress regulation because of developmental delays. Mentalisation-based serious games offer an accessible, engaging way to support them. Adding collaborative play may further enhance effectiveness through communicative interaction.Method: Participants (n = 82) played the mentalisation-based game 'You & I' with a professional caregiver, matched to RCT data from playing alone. Linear mixed models were used to analyse the data on mentalisation and stress regulation, and social validity was investigated.Results: Collaborative play did not significantly affect mentalising or stress regulation compared to playing alone. Social validity ratings indicated that collaborative play was anticipated and experienced positively.Conclusion: Findings should be interpreted considering non-randomisation, limited reliability, and absence of pre-intervention caregiver training. Further research should examine mechanisms linking communicative behaviours to mentalisation and develop reliable instruments for people with mild to borderline intellectual disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-16"},"PeriodicalIF":1.7,"publicationDate":"2026-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149002764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Frontline Practice Leadership for quality and safe services for people with intellectual disabilities - "ensuring work as expected" becomes "work as done". 前线实践领导为智障人士提供优质及安全的服务-“确保工作符合预期”变成“工作已完成”。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-16 DOI: 10.3109/13668250.2026.2707576

Christine Bigby, Lincoln Humphreys

{"title":"Frontline Practice Leadership for quality and safe services for people with intellectual disabilities - \"ensuring work as expected\" becomes \"work as done\".","authors":"Christine Bigby, Lincoln Humphreys","doi":"10.3109/13668250.2026.2707576","DOIUrl":"https://doi.org/10.3109/13668250.2026.2707576","url":null,"abstract":"Background: Practice Leadership is a subset of frontline management in accommodation services for people with intellectual disabilities. Its influence on staff use of Active Support is well established. This study explores Practice Leadership's role in ensuring safe as well as quality support.Method: A secondary analysis of qualitative data from a subset of 59 accommodation services that had both strong Practice Leadership and good Active Support, from a large Australian study.Results: The characteristics of strong Practice Leadership mirror many that prevent harm in services: (i) Channelling organisational intent to direct support workers, (ii) Monitoring staff implementation of plans, policies and procedures, (iii) Assessing and improving staff competence, and (iv) Reinforcing a culture of person-centred practice that supports quality of life.Conclusion: Seeing Practice Leadership through the lens of safety widens its scope beyond staff use of Active Support to other facets of quality support associated with safe support.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-16"},"PeriodicalIF":1.7,"publicationDate":"2026-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148978547","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Supporting adults with intellectual disabilities to be more involved in decisions about their mental health medications: A co-produced mixed methods study. 支持有智力障碍的成年人更多地参与他们心理健康药物的决定：一项联合生产的混合方法研究。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-16 DOI: 10.3109/13668250.2026.2729575

Sue Caton, Dawn Cavanagh, Katherine Runswick-Cole, Chris Hatton, Francesca Ribenfors, Nathan Rawcliffe, Umesh Chauhan, Christine Hutchinson, Matty Prothero, Jodie Rawles, Mark O'Farrell, Vicky Farnsworth, Jodie Bradley, Alison Owen, Robert Parkin

{"title":"Supporting adults with intellectual disabilities to be more involved in decisions about their mental health medications: A co-produced mixed methods study.","authors":"Sue Caton, Dawn Cavanagh, Katherine Runswick-Cole, Chris Hatton, Francesca Ribenfors, Nathan Rawcliffe, Umesh Chauhan, Christine Hutchinson, Matty Prothero, Jodie Rawles, Mark O'Farrell, Vicky Farnsworth, Jodie Bradley, Alison Owen, Robert Parkin","doi":"10.3109/13668250.2026.2729575","DOIUrl":"https://doi.org/10.3109/13668250.2026.2729575","url":null,"abstract":"Background: People with intellectual disabilities are more likely to take mental health (psychotropic) medications than other people. Despite long-standing concern about this, there has been little focus on how people with intellectual disabilities can be supported to be more involved in decisions about their medications.Method: This co-produced study included interviews (N = 40) and an online survey (N = 134) with people with intellectual disabilities, family members, paid carers and prescribers.Results: It was most commonly medical professionals who made decisions about medications, despite most participants stating that it was the people who take the medications who should make decisions. Very few people with intellectual disabilities had been given written information in an accessible format.Conclusion: Prescribers, family members and paid carers should adopt relational approaches to decision making and use accessible resources to support the involvement of people with intellectual disabilities in decisions about their mental health medications.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.7,"publicationDate":"2026-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148978734","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development, implementation, and impact of a peer mentorship program for healthcare transition in youth with intellectual and developmental disabilities. 在有智力和发育障碍的青年中，同伴指导项目的发展、实施和影响。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-16 DOI: 10.3109/13668250.2026.2711879

K Jordan Kemere, Peter J Boedeker, Ellen Fremion

{"title":"Development, implementation, and impact of a peer mentorship program for healthcare transition in youth with intellectual and developmental disabilities.","authors":"K Jordan Kemere, Peter J Boedeker, Ellen Fremion","doi":"10.3109/13668250.2026.2711879","DOIUrl":"https://doi.org/10.3109/13668250.2026.2711879","url":null,"abstract":"Background: Adolescents and young adults with intellectual and developmental disabilities experience challenges navigating healthcare transition from paediatric to adult systems. Peer mentorship may enhance healthcare transition readiness by leveraging lived experience.Objectives: We developed and piloted a peer mentorship program delivered in person and virtually at an academic transition clinic.Method: Mentors and mentees (n = 55) completed the Transition Readiness Assessment Questionnaire (TRAQ) and Generalised Self-Efficacy Scale before and after participation. Quantitative analyses assessed change in questionnaire scores; qualitative surveys and focus groups evaluated perceived value and lessons learned.Results: Mentees and mentors demonstrated statistically significant improvement in some TRAQ domains. Thematic analysis revealed perceived benefits in goal setting, self-advocacy, emotional development, and social connection.Conclusion: Peer mentorship for adolescents and young adults with intellectual and developmental disabilities appears feasible, acceptable and was associated with preliminary improvements in some transition-readiness domains, representing a strategy for enhancing healthcare transition.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.7,"publicationDate":"2026-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148978601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Harmful sexual behaviours: Perspectives on providing optimal support from clinicians working with people with intellectual disabilities. 有害的性行为：从与智障人士一起工作的临床医生提供最佳支持的观点。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-16 DOI: 10.3109/13668250.2026.2722282

Isabella Broadbent, Lauren J Breen, Emily Castell, Emma J Glasson, Kate P Dorozenko

{"title":"Harmful sexual behaviours: Perspectives on providing optimal support from clinicians working with people with intellectual disabilities.","authors":"Isabella Broadbent, Lauren J Breen, Emily Castell, Emma J Glasson, Kate P Dorozenko","doi":"10.3109/13668250.2026.2722282","DOIUrl":"https://doi.org/10.3109/13668250.2026.2722282","url":null,"abstract":"Background: Children and young people with intellectual disabilities are over-represented among those presenting to services for engaging in harmful sexual behaviour. How clinicians provide optimal support to this population is unknown.Method: Eleven Australian clinicians working with people with intellectual disabilities and those with other disabilities completed an online qualitative survey about their experiences providing support for harmful sexual behaviour and the factors that enable or hinder effective practice.Results: Reflexive thematic analysis identified three themes that reflect clinicians' perceptions and experiences: (i) the importance of individualised, trauma-informed care, (ii) lack of resources and restrictive funding frameworks, and (iii) sex education gaps as a contributor to harmful sexual behaviour.Conclusion: Findings highlight key themes warranting further investigation in harmful sexual behaviour practice with this population. Developing supports that meet the needs of children and young people with intellectual disabilities and others impacted by harmful sexual behaviour is crucial.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-14"},"PeriodicalIF":1.7,"publicationDate":"2026-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148978655","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Researching non-symbolic lifeworlds supported by Merleau-Ponty's methodology. 研究梅洛-庞蒂方法论支持的非符号生活世界。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-02 DOI: 10.3109/13668250.2026.2722816

Kristin Vindhol Evensen, Synne Nese Skarsaune

{"title":"Researching non-symbolic lifeworlds supported by Merleau-Ponty's methodology.","authors":"Kristin Vindhol Evensen, Synne Nese Skarsaune","doi":"10.3109/13668250.2026.2722816","DOIUrl":"https://doi.org/10.3109/13668250.2026.2722816","url":null,"abstract":"Background: This article demonstrates the value of applying phenomenology in qualitative early childhood disability research. It offers methodological guidance for disability scholars to support the inclusion of the perspectives of people who communicate non-symbolically.Method: Drawing on the film The Humming Child (Sundby, 2011), which portrays Agnes, a young girl with complex intellectual disabilities, we use essential elements of Merleau-Ponty's extensive work to propose four applied phenomenological methodological cues: \"Embodied expressivity is valid,\" \"Make yourselves visible,\" \"Accept the possibilities for ambiguity,\" and \"Address vulnerability to ensure ethically sound projects.\"Results: These methodological cues show that embodied phenomenology is valuable in countering dominant scientific epistemologies in disability research, including research involving people with profound intellectual and multiple disabilities. Expanding epistemological limits to generate valid knowledge can include those previously omitted.Conclusion: Merleau-Ponty's embodied phenomenology offers valuable methodological insights for understanding non-symbolic perspectives expressed through movement.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.7,"publicationDate":"2026-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148882063","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Individualised funding schemes for people with intellectual disabilities: A systematic review. 智障人士个体化资助计划：系统回顾。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-10-21 DOI: 10.3109/13668250.2025.2565037

Mary-Ann O'Donovan, Emily Gosden-Kaye, Patricia O'Brien, Trevor Parmenter, Vivienne Riches, Tess Aitkens, Gisselle Gallego

{"title":"Individualised funding schemes for people with intellectual disabilities: A systematic review.","authors":"Mary-Ann O'Donovan, Emily Gosden-Kaye, Patricia O'Brien, Trevor Parmenter, Vivienne Riches, Tess Aitkens, Gisselle Gallego","doi":"10.3109/13668250.2025.2565037","DOIUrl":"10.3109/13668250.2025.2565037","url":null,"abstract":"Background: A shift to individualised funding for persons with disabilities, promises greater autonomy for the individual. The extent that this has been achieved for people with intellectual disabilities is unclear. This review sought to synthesise the evidence on the outcomes of individualised funding for people with mild to moderate intellectual disabilities.Method: A systematic review of articles from January 1990 to April 2024 and a narrative synthesis of findings was completed.Results: Ten articles representing seven unique studies across four countries were analysed. Though choice and control were found to improve for some people, the experience was not consistent for all people.Conclusion: Individualised planning processes can exclude people with intellectual disabilities and provide limited ability to plan for the longer term. Thus, scheme and system changes are required to ensure fuller involvement of people with intellectual disabilities in the planning process to ensure proper choice and control.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"321-335"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145337940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0