Journal of Intellectual & Developmental Disability最新文献

Researching non-symbolic lifeworlds supported by Merleau-Ponty's methodology. 研究梅洛-庞蒂方法论支持的非符号生活世界。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-02 DOI: 10.3109/13668250.2026.2722816

Kristin Vindhol Evensen, Synne Nese Skarsaune

{"title":"Researching non-symbolic lifeworlds supported by Merleau-Ponty's methodology.","authors":"Kristin Vindhol Evensen, Synne Nese Skarsaune","doi":"10.3109/13668250.2026.2722816","DOIUrl":"https://doi.org/10.3109/13668250.2026.2722816","url":null,"abstract":"Background: This article demonstrates the value of applying phenomenology in qualitative early childhood disability research. It offers methodological guidance for disability scholars to support the inclusion of the perspectives of people who communicate non-symbolically.Method: Drawing on the film The Humming Child (Sundby, 2011), which portrays Agnes, a young girl with complex intellectual disabilities, we use essential elements of Merleau-Ponty's extensive work to propose four applied phenomenological methodological cues: \"Embodied expressivity is valid,\" \"Make yourselves visible,\" \"Accept the possibilities for ambiguity,\" and \"Address vulnerability to ensure ethically sound projects.\"Results: These methodological cues show that embodied phenomenology is valuable in countering dominant scientific epistemologies in disability research, including research involving people with profound intellectual and multiple disabilities. Expanding epistemological limits to generate valid knowledge can include those previously omitted.Conclusion: Merleau-Ponty's embodied phenomenology offers valuable methodological insights for understanding non-symbolic perspectives expressed through movement.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.7,"publicationDate":"2026-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148882063","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Individualised funding schemes for people with intellectual disabilities: A systematic review. 智障人士个体化资助计划：系统回顾。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-10-21 DOI: 10.3109/13668250.2025.2565037

Mary-Ann O'Donovan, Emily Gosden-Kaye, Patricia O'Brien, Trevor Parmenter, Vivienne Riches, Tess Aitkens, Gisselle Gallego

{"title":"Individualised funding schemes for people with intellectual disabilities: A systematic review.","authors":"Mary-Ann O'Donovan, Emily Gosden-Kaye, Patricia O'Brien, Trevor Parmenter, Vivienne Riches, Tess Aitkens, Gisselle Gallego","doi":"10.3109/13668250.2025.2565037","DOIUrl":"10.3109/13668250.2025.2565037","url":null,"abstract":"Background: A shift to individualised funding for persons with disabilities, promises greater autonomy for the individual. The extent that this has been achieved for people with intellectual disabilities is unclear. This review sought to synthesise the evidence on the outcomes of individualised funding for people with mild to moderate intellectual disabilities.Method: A systematic review of articles from January 1990 to April 2024 and a narrative synthesis of findings was completed.Results: Ten articles representing seven unique studies across four countries were analysed. Though choice and control were found to improve for some people, the experience was not consistent for all people.Conclusion: Individualised planning processes can exclude people with intellectual disabilities and provide limited ability to plan for the longer term. Thus, scheme and system changes are required to ensure fuller involvement of people with intellectual disabilities in the planning process to ensure proper choice and control.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"321-335"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145337940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Physical activity mentoring programs for people with intellectual and developmental disabilities: A scoping review. 智力和发育障碍者的体育活动指导计划：范围审查。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-10-24 DOI: 10.3109/13668250.2025.2572175

Faten Hamdi, Guillermo R Oviedo, Rita Nunes, Gianluca Di Pinto, Luca Bovolon, Salvatore A Rosito, Maurizio Bertollo

{"title":"Physical activity mentoring programs for people with intellectual and developmental disabilities: A scoping review.","authors":"Faten Hamdi, Guillermo R Oviedo, Rita Nunes, Gianluca Di Pinto, Luca Bovolon, Salvatore A Rosito, Maurizio Bertollo","doi":"10.3109/13668250.2025.2572175","DOIUrl":"10.3109/13668250.2025.2572175","url":null,"abstract":"Background: Physical activity and mentorship programs provide several benefits for people with intellectual and developmental disabilities. This article seeks to provide guidelines for the development of mentoring interventions to support physical activity for this group of people.Method: An interpretative scoping review was implemented. Eligible studies involved people with intellectual and developmental disabilities and mentors, mentees or program beneficiaries of physical activity-related mentoring.Results: Thirteen studies met the inclusion criteria. Mentoring was linked with improved personal factors, enhancement in environmental bindings, and healthier behaviours. Common barriers included caregiver over-protection, transportation limitations, and insufficient mentor-mentee ratios.Conclusion: Effective physical activity mentoring for people with intellectual and developmental disabilities hinges on balancing personal development with supportive social and physical environments. Integrating face-to-face and e-mentoring components may broaden reach and sustainability. Future work should prioritise rigorous trial designs and consistent reporting of FITT principles to refine evidence-based guidelines.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"336-349"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145369259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Communication and feeding skills in Rett syndrome: Case report. Rett综合征的沟通和喂养技巧：病例报告。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-10-15 DOI: 10.3109/13668250.2025.2568297

Louiza Voniati, Rafaella Georgiou

引用次数: 0

A human rights framing of the experiences of supporting people with intellectual disability in congregate care: Post-pandemic reflections. 在集体照料中支助智力残疾者的经验的人权框架：大流行后的思考。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-06-13 DOI: 10.3109/13668250.2025.2513336

Jo Watson, Elena Jenkin, Kate Anderson, Amie O'Shea, Kevin Murfitt, Jennifer David, Susan Taylor, Gemma Ge, Patsie Frawley, Angela Dew

{"title":"A human rights framing of the experiences of supporting people with intellectual disability in congregate care: Post-pandemic reflections.","authors":"Jo Watson, Elena Jenkin, Kate Anderson, Amie O'Shea, Kevin Murfitt, Jennifer David, Susan Taylor, Gemma Ge, Patsie Frawley, Angela Dew","doi":"10.3109/13668250.2025.2513336","DOIUrl":"10.3109/13668250.2025.2513336","url":null,"abstract":"Background: This study explored human rights concerns of advocates and service providers during the COVID-19 pandemic in residential support services in Victoria, Australia.Method: A desk-top review informed the content of individual interviews and focus groups with Victorian disability service providers and key advocacy focused agencies with roles in complaint, community visitor, guardianship, or advocacy.Results: Concerns identified by both stakeholder groups included restricted access to choice, control, and decision making, barriers to communication and self-determination, reduced safeguarding, and a lack of accessible health information. Enablers included increased face to face contact with consistent support staff, and opportunities for increased engagement with friends and family online. Reductions in behaviours of concern and associated restrictive interventions were reported.Conclusion: Prevention of human rights violations in the context of lockdowns due to disease outbreaks or other disasters can and should be a priority for public health policy in Australia and internationally.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"265-275"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144287035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Teachers' knowledge, belief, and experience regarding sex education for students with intellectual and developmental disabilities in China. 中国教师对智力和发育障碍学生性教育的知识、信念和经验。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-09-22 DOI: 10.3109/13668250.2025.2544106

Qichao Pan, Yi Yang, Moon Young Savana Bak, Xuejing Liu, Hongrui Qiu

{"title":"Teachers' knowledge, belief, and experience regarding sex education for students with intellectual and developmental disabilities in China.","authors":"Qichao Pan, Yi Yang, Moon Young Savana Bak, Xuejing Liu, Hongrui Qiu","doi":"10.3109/13668250.2025.2544106","DOIUrl":"10.3109/13668250.2025.2544106","url":null,"abstract":"Background: Sex education is needed for improved mental and physical health and is a vital part of education for young people. However, sex education for students with intellectual and developmental disabilities is largely absent in China.Method: We conducted a survey among 51 special education teachers who worked with students with intellectual and developmental disabilities to explore their knowledge level of sexual and reproductive health, as well as their beliefs and experiences regarding sex education.Results: Results indicated a high knowledge level among teachers and a strong belief in the necessity of sex education. The scarcity of school-based sex education was also reflected in the experiences of special education teachers.Conclusion: The implications for breaking the silence around sex, developing comprehensive school-based sex education, and establishing teacher preparation and training systems in terms of sex education for students with intellectual and developmental disabilities are discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"276-286"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145115028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Interventions to increase cervical screening rates for women with intellectual and developmental disabilities: a scoping review. 提高智力和发育障碍妇女子宫颈筛查率的干预措施：范围审查。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-10-28 DOI: 10.3109/13668250.2025.2567710

Anne Woodruff Jameson, Colby Kelley, Danielle Westmark, Sandra Willett, Kailey Snyder

{"title":"Interventions to increase cervical screening rates for women with intellectual and developmental disabilities: a scoping review.","authors":"Anne Woodruff Jameson, Colby Kelley, Danielle Westmark, Sandra Willett, Kailey Snyder","doi":"10.3109/13668250.2025.2567710","DOIUrl":"10.3109/13668250.2025.2567710","url":null,"abstract":"Background: Women with intellectual and developmental disabilities face barriers to cervical screening. This scoping review charts the literature on interventions designed to improve cervical screening receipt and knowledge in this population. Method: A systematic search of Embase (Elsevier), PubMed.gov, CINHAL (EBSCO), and Scopus (Elsevier) yielded 199 results, six of which met the inclusion criteria of women aged 21-65 years with intellectual and developmental disabilities, intervention studies, and outcomes of cervical screen receipt or knowledge. Results: All interventions, using the socioecological model (SEM) as a framework, reported an increase in receipt or knowledge of cervical screening. Interventions at the individual, interpersonal, and organisational levels of the SEM included education, physical therapy, health assessment programs, provider accompaniment, and screening adaptations. Conclusion: There are interventions that have potential to address disparities in cervical screening for women with intellectual and developmental disabilities. More research would help identify which women would benefit from interventions.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"350-360"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145379326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Physiological synchrony during meaningful moments of interaction: an exploratory study. 有意义的互动时刻的生理同步性：一项探索性研究。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-11-30 DOI: 10.3109/13668250.2025.2572287

Wieneke Penninga, Alexander H C Hendriks, Hedwig J A Van Bakel, Maarten Wijnants, Peter C de Looff, Petri J C M Embregts

{"title":"Physiological synchrony during meaningful moments of interaction: an exploratory study.","authors":"Wieneke Penninga, Alexander H C Hendriks, Hedwig J A Van Bakel, Maarten Wijnants, Peter C de Looff, Petri J C M Embregts","doi":"10.3109/13668250.2025.2572287","DOIUrl":"10.3109/13668250.2025.2572287","url":null,"abstract":"Background: The idiosyncratic ways of communication of people with profound intellectual disabilities complicate meaningful interactions between them and support staff. A physiological explication of their interplay may help to better understand meaningful contact.Method: Five staff-client-dyads were filmed during dyadic interactions, while their heart rate (HR) and electrodermal activity (EDA) were measured. HR and EDA synchrony were explored via Cross Recurrence Quantification analyses (CRQA), and the associations between physiological synchrony and meaningfulness as experienced by support staff were investigated.Results: In the five dyads, HR synchrony was high, while EDA synchrony differed between dyads. The association between HR and/or EDA synchrony and experienced meaningfulness showed inconsistent patterns across dyads and yielded weak, non-significant pooled correlations in the meta-analytic analyses.Conclusion: The association between physiological synchrony and meaningfulness was neither confirmed nor rejected. Follow-up research is needed to find out whether these physiological measures can be applied to quantify experienced meaningfulness.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"372-382"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145649965","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Loss of a sibling with profound intellectual and multiple disabilities: young adults' perspectives. 失去患有严重智力和多重残疾的兄弟姐妹：年轻人的观点。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 DOI: 10.3109/13668250.2026.2717664

Jakub Niedbalski

{"title":"Loss of a sibling with profound intellectual and multiple disabilities: young adults' perspectives.","authors":"Jakub Niedbalski","doi":"10.3109/13668250.2026.2717664","DOIUrl":"https://doi.org/10.3109/13668250.2026.2717664","url":null,"abstract":"Background: The aim of this study was to analyse the experiences of bereaved young adults 2-9 years after the loss of a sibling with profound intellectual and multiple disabilities.Method: The research material comprised information obtained from typically developing siblings (aged 18-29 years) of persons with profound intellectual and multiple disabilities. Data were analysed using grounded theory with open and axial coding.Results: Four main areas were identified, reflecting the key issues explored during the interviews. These included the following: \"Lived emotions,\" \"Quality of life,\" \"Relationships with parents,\" \"Reconceptualisation of identity.\"Conclusion: The research has shown that the death of a sibling with profound intellectual disabilities has significant and long-lasting implications for the brother/sister's entire life. The results of this study, combined with existing literature, provide a basis for understanding the experiences of siblings after the loss of a brother or sister with intellectual disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-14"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148875799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How can we support people with profound intellectual and multiple disabilities in enhancing their self-determination? A scoping review. 我们怎样才能支持严重智力残疾和多重残疾的人加强他们的自决？范围审查。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-09-01 Epub Date: 2025-10-12 DOI: 10.3109/13668250.2025.2567711

Marie-Jane Robitaille, Camille Gauthier-Boudreault, Véronique Rochon

{"title":"How can we support people with profound intellectual and multiple disabilities in enhancing their self-determination? A scoping review.","authors":"Marie-Jane Robitaille, Camille Gauthier-Boudreault, Véronique Rochon","doi":"10.3109/13668250.2025.2567711","DOIUrl":"10.3109/13668250.2025.2567711","url":null,"abstract":"Background: Despite an increasing recognition of the capacity of people with profound intellectual and multiple disabilities to make decisions and act accordingly, parents and professionals lack a sufficient understanding of the concept of self-determination for people with significant disabilities.Method: A scoping review was conducted across several scientific databases using keywords related to profound intellectual and multiple disabilities and self-determination.Results: Current representations of self-determination in people with profound intellectual and multiple disabilities focus primarily on the possibility of decision-making. Several strategies for documenting self-determined behaviours were identified, including direct observation and video recording. The results highlight various means of enhancing self-determination, such as the use of technology and life stories.Conclusion: People with profound intellectual and multiple disabilities can be self-determined when given the opportunity, supported by adaptations suited to their capacities, and participate in social environments that prioritise their needs.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"299-311"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145281665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0