Journal of Intellectual & Developmental Disability最新文献_第2页

Active support as good support in group homes? A longitudinal interview study with service users.

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-01 Epub Date: 2024-09-28 DOI: 10.3109/13668250.2024.2400097

Jenny Aspling, Veronica Svärd, Magnus Tideman

引用次数: 0

Tacit knowledge in medical consultations for patients with profound intellectual and multiple disabilities: An exploratory qualitative study.

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-01 Epub Date: 2024-09-25 DOI: 10.3109/13668250.2024.2402380

Ilse Harmina Zaal-Schuller, K Kruithof, M Hoogsteyns, A M Nieuwenhuijse, D L Willems, S A Huisman

{"title":"Tacit knowledge in medical consultations for patients with profound intellectual and multiple disabilities: An exploratory qualitative study.","authors":"Ilse Harmina Zaal-Schuller, K Kruithof, M Hoogsteyns, A M Nieuwenhuijse, D L Willems, S A Huisman","doi":"10.3109/13668250.2024.2402380","DOIUrl":"https://doi.org/10.3109/13668250.2024.2402380","url":null,"abstract":"Background: Patients with profound intellectual and multiple disabilities (PIMD) cannot clearly express themselves. Therefore, tacit knowledge (TK) is crucial in caring for individuals with PIMD, while it possibly also plays a significant role in medical consultations.Method: A qualitative inductive, thematic analysis was performed of 14 audio-taped consultations with intellectual disability physicians for patients with PIMD to explore how TK is represented and considered between parents and physicians.Results: Parents conveyed their TK by sensing and perceptions of changes of their child's behaviour. Our findings demonstrate that parents of individuals with PIMD primarily shared TK concerning pain, sleeping issues, and epilepsy. Physicians recognised and incorporated parents' TK, highlighting its significance in patient care.Conclusion: This study underscores the important role of TK in consultations for patients with PIMD. Parents' TK help to shape medical-decisions, urging physicians to validate parents' TK while relating this TK to other types of medical knowledge.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 1","pages":"106-115"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents' perceptions of outcomes of a college program for students with intellectual disabilities: Beyond the classroom.

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-02-27 DOI: 10.3109/13668250.2025.2459806

Gavin W Watts, Mariya T Davis, Eric J López, Megan A Reynolds

{"title":"Parents' perceptions of outcomes of a college program for students with intellectual disabilities: Beyond the classroom.","authors":"Gavin W Watts, Mariya T Davis, Eric J López, Megan A Reynolds","doi":"10.3109/13668250.2025.2459806","DOIUrl":"https://doi.org/10.3109/13668250.2025.2459806","url":null,"abstract":"Background: As the number of postsecondary education programs offering opportunities for individuals with intellectual disabilities to attend college increases, so does the investigation into the outcomes of these programs. Gaps in the literature are apparent, especially related to programming at Minority Serving Institutions (MSI).Method: The study explored parents' observations of their children's outcomes outside of the classroom (e.g., at home, in the community, related to their participation in an inclusive university program. Fourteen parents of currently enrolled students participated in in-depth exit interviews. Applied thematic analysis was conducted on the qualitative data.Results: Participant responses revealed three major themes: (i) developments at home: generalised skills and behaviours; (ii) enhanced social integration and student self-image; and (iii) developments in parents' perceptions of disability.Conclusion: Implications for practice and more effective programming are discussed in support of students' increased independence and participation as active members of their communities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.9,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143517248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Predictors of family quality of life among Ghanaian families of people with intellectual disability.

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-02-24 DOI: 10.3109/13668250.2025.2457106

Daniel Miezah, Martha-Pearl Okai, Emmanuel Eshun, Frederick Sey, Francis Britwum, Frank Quansah, Ebenezer Takyi-Wadieh

{"title":"Predictors of family quality of life among Ghanaian families of people with intellectual disability.","authors":"Daniel Miezah, Martha-Pearl Okai, Emmanuel Eshun, Frederick Sey, Francis Britwum, Frank Quansah, Ebenezer Takyi-Wadieh","doi":"10.3109/13668250.2025.2457106","DOIUrl":"https://doi.org/10.3109/13668250.2025.2457106","url":null,"abstract":"Background: Past studies examining the associations of emotional intelligence, family support and financial stress with family quality of life (FQOL) in families of people with intellectual disability are scarce.Objective: To examine the predictors of FQOL among Ghanaian families of people with intellectual disability.Method: A sample of 176 parents (M = 41.64 years, SD = 9.21) of people with intellectual disability participated in the study.Results: Financial stress, family support, and emotional intelligence significantly predicted FQOL among Ghanaian parents of people with intellectual disability. In addition, emotional intelligence and family support significantly moderated the relationship between financial stress and FQOL.Conclusion: The noted protective roles of emotional intelligence and family support in reducing the negative influence of financial stress on FQOL among families of people with intellectual disability suggest a need to develop interventions that account for these variables.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.9,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143494057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Situational experiences of meaningfulness of support staff during their interactions with people with profound intellectual disabilities: An explorative study.

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-02-13 DOI: 10.3109/13668250.2024.2447998

Wieneke Penninga, Alexander H C Hendriks, Hedwig J A van Bakel, Petri J C M Embregts

{"title":"Situational experiences of meaningfulness of support staff during their interactions with people with profound intellectual disabilities: An explorative study.","authors":"Wieneke Penninga, Alexander H C Hendriks, Hedwig J A van Bakel, Petri J C M Embregts","doi":"10.3109/13668250.2024.2447998","DOIUrl":"https://doi.org/10.3109/13668250.2024.2447998","url":null,"abstract":"Background: Support staff often face challenges with respect to experiencing meaningful moments of interaction with people with profound intellectual disabilities. Explicating such situational experiences of meaningfulness by staff members could facilitate the experience of meaningfulness for all staff.Method: In this multiple case study, three staff members indicated specific moments of interaction as meaningful when viewing a recording of themselves interacting with a person with profound intellectual disabilities. Subsequently, they were asked to explain why they experienced each specific moment as meaningful. Their answers were thematically analysed.Results: Two overarching clusters were identified as being related to meaningfulness: (1) experiencing meaning in certain actions, and (2) experiencing meaning in being together.Conclusion: In interactions, support staff need to be aware of the tiny signals of people with profound intellectual disabilities and give meaning to them, and subsequently link \"what happens\" to their own professional aims and values to experience meaningfulness.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-14"},"PeriodicalIF":1.9,"publicationDate":"2025-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143416154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Maths matter for life: Towards an integrated approach to numeracy for the quality of life of young people with intellectual disabilities.

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-02-11 DOI: 10.3109/13668250.2025.2455569

Maëlle Neveu, Romina Rinaldi

{"title":"Maths matter for life: Towards an integrated approach to numeracy for the quality of life of young people with intellectual disabilities.","authors":"Maëlle Neveu, Romina Rinaldi","doi":"10.3109/13668250.2025.2455569","DOIUrl":"https://doi.org/10.3109/13668250.2025.2455569","url":null,"abstract":"Background: In the last decades, quality of life (QoL) approaches have become increasingly important in planning services for people with intellectual disabilities. These approaches have recently been extended to the field of education. The Educational Quality of Life (EQoL) approach is defined as a multidimensional construct that looks at resources and curricula from a functional perspective, to ensure that students with intellectual disabilities acquire the functional skills they need throughout their lives to improve their QoL. To date, the functional use of mathematics in daily activities, also known as numeracy, has been largely neglected.Objective: In this Opinions and Perspectives, we propose that numeracy should be seen as a tool for improving the QoL of young people with intellectual disabilities.Conclusion: To this end, we suggest research be conducted to better understand how mathematics contributes to the achievement of math-related daily activities relevant to their life contexts and its interactions with QoL.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-4"},"PeriodicalIF":1.9,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143400549","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Co-existence of strabismus and Down syndrome in relation to visual impairment in institutionalised adults with intellectual disabilities: Implications for vision care.

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-02-03 DOI: 10.3109/13668250.2024.2446218

Ching-Ju Hsieh, I-Mo Fang, Fu-Gong Lin

{"title":"Co-existence of strabismus and Down syndrome in relation to visual impairment in institutionalised adults with intellectual disabilities: Implications for vision care.","authors":"Ching-Ju Hsieh, I-Mo Fang, Fu-Gong Lin","doi":"10.3109/13668250.2024.2446218","DOIUrl":"https://doi.org/10.3109/13668250.2024.2446218","url":null,"abstract":"Background: Visual impairment (VI) is common among people with intellectual disabilities, with rates up to 19%. This study assessed the prevalence and risk factors for ocular disorders in 341 institutionalised adults with intellectual disabilities in Taipei City from January 2016 to December 2017.Method: The cross-sectional survey included visual acuity testing, cycloplegic refraction, strabismus evaluation, slit-lamp biomicroscopy, tonometry, and retinal exams.Results: Most participants were aged 20-39 years (72.9%), and 57.6% were male. VI or blindness was found in 19.7%, with strabismus (28.0%) and high myopia (23.6%) as key risk factors. Logistic regression indicated strabismus and high myopia significantly increased VI risk (OR 2.32 and 4.86). In participants with Down syndrome, the strabismus-VI association was stronger (OR 4.83 vs 1.73 without DS), with an interactive effect increasing VI risk sixfold.Conclusion: Early ocular screening and targeted interventions are crucial to reduce VI risk in adults with intellectual disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-9"},"PeriodicalIF":1.9,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123072","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Processing ambiguity in a social situation: A developmental and comparative study between a neurotypical population and a population with mild intellectual developmental disorder or borderline intellectual functioning. 在社会情境中处理歧义：一项神经正常人群与轻度智力发育障碍或边缘性智力功能人群的发展和比较研究。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-01-19 DOI: 10.3109/13668250.2025.2449819

Kaëlig Raspail, Suzanne Igier, Valérie Pennequin

{"title":"Processing ambiguity in a social situation: A developmental and comparative study between a neurotypical population and a population with mild intellectual developmental disorder or borderline intellectual functioning.","authors":"Kaëlig Raspail, Suzanne Igier, Valérie Pennequin","doi":"10.3109/13668250.2025.2449819","DOIUrl":"https://doi.org/10.3109/13668250.2025.2449819","url":null,"abstract":"Background: The Social Information Processing (SIP) model has helped to identify specificities in the stages preceding the execution of social behaviour in people with mild intellectual developmental disorder or borderline intellectual functioning. However, uncertainties remain about the involvement of the underlying processes and their developmental expression.Method: The aim of this research was to explore the stages of SIP from a comparative and developmental perspective. A total of 175 participants, from childhood to adulthood, with or without mild intellectual developmental disorder or borderline intellectual functioning, watched videos before answering a structured questionnaire relating to the SIP model.Results: The results showed developmental specificities in encoding, a hostile intention attribution bias and the absence of specific behavioural patterns in a population with mild intellectual developmental disorder or borderline intellectual functioning compared with a neurotypical population.Conclusion: These advances are discussed in relation to current clinical remediation therapies and new exploration methods.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-10"},"PeriodicalIF":1.9,"publicationDate":"2025-01-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents' initiative in community-based support for children with intellectual and developmental disabilities: The Ahada non-profit model. 以社区为基础支持智力和发育障碍儿童的父母倡议：阿达非营利模式。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-01-17 DOI: 10.3109/13668250.2024.2437767

Orly Ganany-Dagan

{"title":"Parents' initiative in community-based support for children with intellectual and developmental disabilities: The Ahada non-profit model.","authors":"Orly Ganany-Dagan","doi":"10.3109/13668250.2024.2437767","DOIUrl":"https://doi.org/10.3109/13668250.2024.2437767","url":null,"abstract":"Background: The birth of a child with an intellectual or developmental disability inherently presents challenges to parents regarding the child's long-term future. This qualitative study examined the perceptions of parents who are kibbutz members, focusing on the non-profit organisation they established and the socioeconomic model they developed to ensure the future wellbeing of their children with intellectual and developmental disabilities.Method: In-depth interviews were conducted with 12 participants and used a thematic analysis based on case study methodology.Results: The socioeconomic model developed by kibbutz parents helps alleviate their concerns, but also gave rise to challenges related to kibbutz privatisation and the requirement for programs to be tailored to individual needs. The study highlighted how cooperation among families, the community, and government institutions can contribute to individual and collective solutions for people with disabilities.Conclusion: These insights expand our understanding of parental social entrepreneurship within intentional communities and other contexts.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.9,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Does preservice teachers' contact with children with intellectual disabilities during their practicum impact their attitudes and teaching practices? "If you don't have the heart, you can't cope … ". 职前教师在实习期间与智障儿童的接触是否会影响他们的态度和教学实践？“如果你没有勇气，你就无法应付……”

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-01-17 DOI: 10.3109/13668250.2024.2437757

Daniel Miezah, Maxwell Peprah Opoku, Christopher Fenu, Keziah Deila Yankey, Ebenezer Mensah Gyimah, William Nketsia

{"title":"Does preservice teachers' contact with children with intellectual disabilities during their practicum impact their attitudes and teaching practices? \"If you don't have the heart, you can't cope … \".","authors":"Daniel Miezah, Maxwell Peprah Opoku, Christopher Fenu, Keziah Deila Yankey, Ebenezer Mensah Gyimah, William Nketsia","doi":"10.3109/13668250.2024.2437757","DOIUrl":"https://doi.org/10.3109/13668250.2024.2437757","url":null,"abstract":"Background: This study sought to explore the effects of preservice teachers' contact with children with intellectual disabilities on their attitudes. The study was conducted against the backdrop of the exclusion and discrimination experienced by children with intellectual disabilities in Ghanaian schools.Method: Twenty-two preservice teachers who interned at a special school for children with intellectual disabilities were interviewed before and after their practicums, and the gathered data underwent thematic analysis.Results: There were changes in the participants' knowledge and willingness to interact and work with children with intellectual disabilities. For instance, before the practicum, the participants held stereotypical understandings of intellectual disabilities. However, after their practicums, their level of discussion of the core characteristics of intellectual disabilities had improved.Conclusion: Based on these findings, this study concludes by recommending that contact with children with intellectual disabilities be included as an integral part of preservice teacher training programmes.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-15"},"PeriodicalIF":1.9,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0