Faten Hamdi, Guillermo R Oviedo, Rita Nunes, Gianluca Di Pinto, Luca Bovolon, Salvatore A Rosito, Maurizio Bertollo
{"title":"Physical activity mentoring programs for people with intellectual and developmental disabilities: A scoping review.","authors":"Faten Hamdi, Guillermo R Oviedo, Rita Nunes, Gianluca Di Pinto, Luca Bovolon, Salvatore A Rosito, Maurizio Bertollo","doi":"10.3109/13668250.2025.2572175","DOIUrl":"10.3109/13668250.2025.2572175","url":null,"abstract":"<p><strong>Background: </strong>Physical activity and mentorship programs provide several benefits for people with intellectual and developmental disabilities. This article seeks to provide guidelines for the development of mentoring interventions to support physical activity for this group of people.</p><p><strong>Method: </strong>An interpretative scoping review was implemented. Eligible studies involved people with intellectual and developmental disabilities and mentors, mentees or program beneficiaries of physical activity-related mentoring.</p><p><strong>Results: </strong>Thirteen studies met the inclusion criteria. Mentoring was linked with improved personal factors, enhancement in environmental bindings, and healthier behaviours. Common barriers included caregiver over-protection, transportation limitations, and insufficient mentor-mentee ratios.</p><p><strong>Conclusion: </strong>Effective physical activity mentoring for people with intellectual and developmental disabilities hinges on balancing personal development with supportive social and physical environments. Integrating face-to-face and e-mentoring components may broaden reach and sustainability. Future work should prioritise rigorous trial designs and consistent reporting of FITT principles to refine evidence-based guidelines.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"336-349"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145369259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Communication and feeding skills in Rett syndrome: Case report.","authors":"Louiza Voniati, Rafaella Georgiou","doi":"10.3109/13668250.2025.2568297","DOIUrl":"10.3109/13668250.2025.2568297","url":null,"abstract":"<p><strong>Background: </strong>Rett syndrome (RTT) is a neurodevelopmental condition that causes regression of previously acquired abilities after normal development. RTT symptoms affect communication and feeding skills, which may have serious consequences for individuals with RTT. Essential aspects of their daily care include feeding and language intervention.</p><p><strong>Method: </strong>This report describes the case of a 14-year-old diagnosed with RTT. The adolescent engaged in an intervention program focusing on speech, language, and feeding needs. The article provides a comprehensive overview of the evaluation, intervention, and re-evaluation process for the challenges she encountered.</p><p><strong>Results: </strong>Reassessments revealed positive outcomes in the adolescent's feeding and communication.</p><p><strong>Conclusion: </strong>This study underscores the importance of speech and language therapy interventions for individuals with RTT and showcases their effectiveness in improving daily life.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"312-320"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145294275","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jo Watson, Elena Jenkin, Kate Anderson, Amie O'Shea, Kevin Murfitt, Jennifer David, Susan Taylor, Gemma Ge, Patsie Frawley, Angela Dew
{"title":"A human rights framing of the experiences of supporting people with intellectual disability in congregate care: Post-pandemic reflections.","authors":"Jo Watson, Elena Jenkin, Kate Anderson, Amie O'Shea, Kevin Murfitt, Jennifer David, Susan Taylor, Gemma Ge, Patsie Frawley, Angela Dew","doi":"10.3109/13668250.2025.2513336","DOIUrl":"10.3109/13668250.2025.2513336","url":null,"abstract":"<p><strong>Background: </strong>This study explored human rights concerns of advocates and service providers during the COVID-19 pandemic in residential support services in Victoria, Australia.</p><p><strong>Method: </strong>A desk-top review informed the content of individual interviews and focus groups with Victorian disability service providers and key advocacy focused agencies with roles in complaint, community visitor, guardianship, or advocacy.</p><p><strong>Results: </strong>Concerns identified by both stakeholder groups included restricted access to choice, control, and decision making, barriers to communication and self-determination, reduced safeguarding, and a lack of accessible health information. Enablers included increased face to face contact with consistent support staff, and opportunities for increased engagement with friends and family online. Reductions in behaviours of concern and associated restrictive interventions were reported.</p><p><strong>Conclusion: </strong>Prevention of human rights violations in the context of lockdowns due to disease outbreaks or other disasters can and should be a priority for public health policy in Australia and internationally.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"265-275"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144287035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Qichao Pan, Yi Yang, Moon Young Savana Bak, Xuejing Liu, Hongrui Qiu
{"title":"Teachers' knowledge, belief, and experience regarding sex education for students with intellectual and developmental disabilities in China.","authors":"Qichao Pan, Yi Yang, Moon Young Savana Bak, Xuejing Liu, Hongrui Qiu","doi":"10.3109/13668250.2025.2544106","DOIUrl":"10.3109/13668250.2025.2544106","url":null,"abstract":"<p><strong>Background: </strong>Sex education is needed for improved mental and physical health and is a vital part of education for young people. However, sex education for students with intellectual and developmental disabilities is largely absent in China.</p><p><strong>Method: </strong>We conducted a survey among 51 special education teachers who worked with students with intellectual and developmental disabilities to explore their knowledge level of sexual and reproductive health, as well as their beliefs and experiences regarding sex education.</p><p><strong>Results: </strong>Results indicated a high knowledge level among teachers and a strong belief in the necessity of sex education. The scarcity of school-based sex education was also reflected in the experiences of special education teachers.</p><p><strong>Conclusion: </strong>The implications for breaking the silence around sex, developing comprehensive school-based sex education, and establishing teacher preparation and training systems in terms of sex education for students with intellectual and developmental disabilities are discussed.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"276-286"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145115028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Interventions to increase cervical screening rates for women with intellectual and developmental disabilities: a scoping review.","authors":"Anne Woodruff Jameson, Colby Kelley, Danielle Westmark, Sandra Willett, Kailey Snyder","doi":"10.3109/13668250.2025.2567710","DOIUrl":"10.3109/13668250.2025.2567710","url":null,"abstract":"<p><p><b>Background:</b> Women with intellectual and developmental disabilities face barriers to cervical screening. This scoping review charts the literature on interventions designed to improve cervical screening receipt and knowledge in this population. <b>Method:</b> A systematic search of Embase (Elsevier), PubMed.gov, CINHAL (EBSCO), and Scopus (Elsevier) yielded 199 results, six of which met the inclusion criteria of women aged 21-65 years with intellectual and developmental disabilities, intervention studies, and outcomes of cervical screen receipt or knowledge. <b>Results:</b> All interventions, using the socioecological model (SEM) as a framework, reported an increase in receipt or knowledge of cervical screening. Interventions at the individual, interpersonal, and organisational levels of the SEM included education, physical therapy, health assessment programs, provider accompaniment, and screening adaptations. <b>Conclusion:</b> There are interventions that have potential to address disparities in cervical screening for women with intellectual and developmental disabilities. More research would help identify which women would benefit from interventions.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"350-360"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145379326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Wieneke Penninga, Alexander H C Hendriks, Hedwig J A Van Bakel, Maarten Wijnants, Peter C de Looff, Petri J C M Embregts
{"title":"Physiological synchrony during meaningful moments of interaction: an exploratory study.","authors":"Wieneke Penninga, Alexander H C Hendriks, Hedwig J A Van Bakel, Maarten Wijnants, Peter C de Looff, Petri J C M Embregts","doi":"10.3109/13668250.2025.2572287","DOIUrl":"10.3109/13668250.2025.2572287","url":null,"abstract":"<p><strong>Background: </strong>The idiosyncratic ways of communication of people with profound intellectual disabilities complicate meaningful interactions between them and support staff. A physiological explication of their interplay may help to better understand meaningful contact.</p><p><strong>Method: </strong>Five staff-client-dyads were filmed during dyadic interactions, while their heart rate (HR) and electrodermal activity (EDA) were measured. HR and EDA synchrony were explored via Cross Recurrence Quantification analyses (CRQA), and the associations between physiological synchrony and meaningfulness as experienced by support staff were investigated.</p><p><strong>Results: </strong>In the five dyads, HR synchrony was high, while EDA synchrony differed between dyads. The association between HR and/or EDA synchrony and experienced meaningfulness showed inconsistent patterns across dyads and yielded weak, non-significant pooled correlations in the meta-analytic analyses.</p><p><strong>Conclusion: </strong>The association between physiological synchrony and meaningfulness was neither confirmed nor rejected. Follow-up research is needed to find out whether these physiological measures can be applied to quantify experienced meaningfulness.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"372-382"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145649965","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Loss of a sibling with profound intellectual and multiple disabilities: young adults' perspectives.","authors":"Jakub Niedbalski","doi":"10.3109/13668250.2026.2717664","DOIUrl":"https://doi.org/10.3109/13668250.2026.2717664","url":null,"abstract":"<p><strong>Background: </strong>The aim of this study was to analyse the experiences of bereaved young adults 2-9 years after the loss of a sibling with profound intellectual and multiple disabilities.</p><p><strong>Method: </strong>The research material comprised information obtained from typically developing siblings (aged 18-29 years) of persons with profound intellectual and multiple disabilities. Data were analysed using grounded theory with open and axial coding.</p><p><strong>Results: </strong>Four main areas were identified, reflecting the key issues explored during the interviews. These included the following: \"Lived emotions,\" \"Quality of life,\" \"Relationships with parents,\" \"Reconceptualisation of identity.\"</p><p><strong>Conclusion: </strong>The research has shown that the death of a sibling with profound intellectual disabilities has significant and long-lasting implications for the brother/sister's entire life. The results of this study, combined with existing literature, provide a basis for understanding the experiences of siblings after the loss of a brother or sister with intellectual disabilities.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-14"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148875799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"How can we support people with profound intellectual and multiple disabilities in enhancing their self-determination? A scoping review.","authors":"Marie-Jane Robitaille, Camille Gauthier-Boudreault, Véronique Rochon","doi":"10.3109/13668250.2025.2567711","DOIUrl":"10.3109/13668250.2025.2567711","url":null,"abstract":"<p><strong>Background: </strong>Despite an increasing recognition of the capacity of people with profound intellectual and multiple disabilities to make decisions and act accordingly, parents and professionals lack a sufficient understanding of the concept of self-determination for people with significant disabilities.</p><p><strong>Method: </strong>A scoping review was conducted across several scientific databases using keywords related to profound intellectual and multiple disabilities and self-determination.</p><p><strong>Results: </strong>Current representations of self-determination in people with profound intellectual and multiple disabilities focus primarily on the possibility of decision-making. Several strategies for documenting self-determined behaviours were identified, including direct observation and video recording. The results highlight various means of enhancing self-determination, such as the use of technology and life stories.</p><p><strong>Conclusion: </strong>People with profound intellectual and multiple disabilities can be self-determined when given the opportunity, supported by adaptations suited to their capacities, and participate in social environments that prioritise their needs.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"299-311"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145281665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Eva Randell, Tommie Forslund, Thomas Strandberg, Marie Holmefur, Birgitta Wennberg
{"title":"Parenting Young Children (PYC) for parents with intellectual and developmental disabilities: parents' experiences of the support program's methodology.","authors":"Eva Randell, Tommie Forslund, Thomas Strandberg, Marie Holmefur, Birgitta Wennberg","doi":"10.3109/13668250.2025.2572401","DOIUrl":"10.3109/13668250.2025.2572401","url":null,"abstract":"<p><strong>Background: </strong>Research on how parents with intellectual and developmental disabilities perceive the Parenting Young Children (PTC) support program for the development of parenting skills is scarce. The study explored parents' experiences of PYC's methodology.</p><p><strong>Method: </strong>Interviews were conducted with 15 Swedish parents (8 mothers, 7 fathers) at risk for child neglect who had received PYC for 6 months or longer. The interviews were analysed with reflexive thematic analysis.</p><p><strong>Results: </strong>Two main themes, with six subthemes, were identified: \"Developing a trusting relationship with the PYC practitioner\" and \"Tailored support, planning, and training in collaboration.\" One overarching theme was also created: \"The PYC methodology facilitates learning of parenting skills through a trusting and collaborative process guided by adapted support.\"</p><p><strong>Conclusion: </strong>Parents with intellectual and developmental disabilities perceived the PYC methodology as helpful and well-adapted. The study highlights that learning parenting skills can be facilitated by a collaborative and tailored approach using behavioural teaching strategies.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"361-371"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145439900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Noemi Schoop-Kasteler, Verena Hofmann, Antonius H N Cillessen, Christoph M Müller
{"title":"Predictors of popularity among students with intellectual disabilities: The role of prosocial and antisocial behaviours.","authors":"Noemi Schoop-Kasteler, Verena Hofmann, Antonius H N Cillessen, Christoph M Müller","doi":"10.3109/13668250.2025.2564063","DOIUrl":"10.3109/13668250.2025.2564063","url":null,"abstract":"<p><strong>Background: </strong>Little attention has been given to the relationship between popularity and social behaviour among students with intellectual disabilities in special needs schools. Based on resource control theory and findings among typically developing students, we expected popularity predictors to include both prosocial and antisocial behaviours.</p><p><strong>Method: </strong>School staff (<i>n</i> = 397) reported on popularity, prosocial, and antisocial behaviours of 1,125 students (<i>Mage</i> = 11.26 years, <i>SD</i> = 3.76; 69% boys) with intellectual disabilities in Swiss special needs schools.</p><p><strong>Results: </strong>Multilevel analyses showed that students with higher prosocial and antisocial behaviours at the start of the school year were more likely to be popular by the end, even after accounting for gender, age, adaptive behaviour, and initial popularity. The effect of antisocial behaviour on popularity was stronger for boys.</p><p><strong>Conclusion: </strong>Findings support the universality of the relationship between prosocial and antisocial behaviours with popularity. Implications for students with intellectual disabilities are discussed.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"287-298"},"PeriodicalIF":1.7,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145208383","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}