以社区为基础支持智力和发育障碍儿童的父母倡议:阿达非营利模式。

IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL
Orly Ganany-Dagan
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引用次数: 0

摘要

背景:患有智力或发育障碍的孩子的出生天生就给父母带来了关于孩子长期未来的挑战。这项定性研究考察了作为基布兹成员的父母的看法,重点关注他们建立的非营利组织和他们为确保有智力和发育障碍的孩子未来的福祉而发展的社会经济模式。方法:对12名参与者进行深度访谈,采用基于案例研究法的专题分析。结果:基布兹父母开发的社会经济模式有助于减轻他们的担忧,但也带来了与基布兹私有化和要求根据个人需求量身定制方案相关的挑战。该研究强调了家庭、社区和政府机构之间的合作如何有助于为残疾人提供个人和集体解决方案。结论:这些见解扩展了我们在意向社区和其他背景下对父母社会企业家精神的理解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parents' initiative in community-based support for children with intellectual and developmental disabilities: The Ahada non-profit model.

Background: The birth of a child with an intellectual or developmental disability inherently presents challenges to parents regarding the child's long-term future. This qualitative study examined the perceptions of parents who are kibbutz members, focusing on the non-profit organisation they established and the socioeconomic model they developed to ensure the future wellbeing of their children with intellectual and developmental disabilities.

Method: In-depth interviews were conducted with 12 participants and used a thematic analysis based on case study methodology.

Results: The socioeconomic model developed by kibbutz parents helps alleviate their concerns, but also gave rise to challenges related to kibbutz privatisation and the requirement for programs to be tailored to individual needs. The study highlighted how cooperation among families, the community, and government institutions can contribute to individual and collective solutions for people with disabilities.

Conclusion: These insights expand our understanding of parental social entrepreneurship within intentional communities and other contexts.

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来源期刊
CiteScore
3.40
自引率
7.70%
发文量
35
期刊介绍: Journal of Intellectual & Developmental Disability (formerly the Australia and New Zealand Journal of Developmental Disabilities) is the official journal of the Australasian Society for the Study of Intellectual Disability (ASSID). JIDD is an international, multidisciplinary journal in the field of intellectual and developmental disability. The journal publishes original qualitative and quantitative research papers, literature reviews, conceptual articles, brief reports, case reports, data briefs, and opinions and perspectives.
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