Journal of Intellectual & Developmental Disability最新文献_第3页

Enhancing the work wellbeing of disability support workers: Solutions from their perspectives. 提高残疾支持工作者的工作幸福感：从他们的角度出发的解决方案。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-08-29 DOI: 10.3109/13668250.2026.2707362

Maria Vassos, Trent Carberry, Karen Nankervis

{"title":"Enhancing the work wellbeing of disability support workers: Solutions from their perspectives.","authors":"Maria Vassos, Trent Carberry, Karen Nankervis","doi":"10.3109/13668250.2026.2707362","DOIUrl":"https://doi.org/10.3109/13668250.2026.2707362","url":null,"abstract":"Background: Disability support workers (DSWs) report experiencing negative work wellbeing outcomes (e.g., burnout). This study asked DSWs about workplace issues that impact their wellbeing most, and solutions that disability support organisations could adopt to enhance their wellbeing.Method: Two hundred and ninety-four DSWs, recruited from organisations that support people with disabilities (including intellectual and developmental disabilities), completed an online survey.Results: Supporting people to achieve positive outcomes and being recognised for their work promotes job satisfaction, while supporting people who exhibit challenging behaviour and experiencing work-home conflict led to job stress. DSWs want more positive behaviour support training, and training that is face-to-face or on-the-job. Dedicated time to complete administrative tasks on shift, regular team meetings, supervision, and co-worker praise and mentoring were also endorsed.Conclusion: These findings offer DSW lived experience guidance to organisations regarding what they can do in the first instance to enhance the work wellbeing of their DSW workforce.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-14"},"PeriodicalIF":1.7,"publicationDate":"2026-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148851954","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Levinasian analysis of disability service providers' work witnessing documented institutional abuse. Levinasian对残疾服务提供者工作的分析，见证了记录在案的机构虐待。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-08-20 DOI: 10.3109/13668250.2026.2710046

Jen Rinaldi, Kate Rossiter

{"title":"A Levinasian analysis of disability service providers' work witnessing documented institutional abuse.","authors":"Jen Rinaldi, Kate Rossiter","doi":"10.3109/13668250.2026.2710046","DOIUrl":"https://doi.org/10.3109/13668250.2026.2710046","url":null,"abstract":"Background: This project was conducted in partnership with an Ontario-based community living agency to study labour undertaken by disability support workers to read the institutional records of clients with intellectual disabilities and submit class action settlement claims for financial compensation. We drew on Levinasian theory to analyse reflections of disability support workers who witnessed violent institutional histories found in survivors' records.Method: We conducted focus groups with disability support workers and their supervisors. We took an interpretive phenomenological approach to analysing data.Results: Our interpretation suggests at least three results: (1) Witnessing was collaborative work that strengthened service relationships; (2) Witnessing was recognition work that cultivated understanding of survivor histories and behaviours; (3) Witnessing was investigatory work that rewrote historical record.Conclusion: These findings are significant for a disability service sector that replaced large-scale institutional facilities but still risks producing conditions of institutionalisation.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.7,"publicationDate":"2026-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Stakeholder views on hospitalisation of adults with intellectual disabilities in New Zealand. 利益相关者对新西兰智力残疾成人住院的看法。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-08-19 DOI: 10.3109/13668250.2026.2681222

Liesje Donkin, Carrie McColl, Marleen Verhoeven

{"title":"Stakeholder views on hospitalisation of adults with intellectual disabilities in New Zealand.","authors":"Liesje Donkin, Carrie McColl, Marleen Verhoeven","doi":"10.3109/13668250.2026.2681222","DOIUrl":"https://doi.org/10.3109/13668250.2026.2681222","url":null,"abstract":"Background: Community stakeholders play a crucial role in supporting the wellbeing of people with intellectual disabilities, including during hospitalisation. This study explored community stakeholder perceptions of the barriers to safe and equitable hospital care for adults with intellectual disabilities in Aotearoa New Zealand.Method: Semi-structured interviews (n = 9) and anonymous online surveys (n = 38) were analysed using reflexive thematic analysis within an interpretive description framework.Results: Four themes were generated: experiencing the hospital as unsafe due to structural and interpersonal discrimination; communication breakdowns that undermine care and amplify distress; distress misread as behavioural issues; and stakeholders becoming the default safety net. Across themes, discrimination emerged as the underlying mechanism shaping patient safety, communication practices, behavioural interpretations, and reliance on stakeholder vigilance.Conclusion: These findings highlight the need for systems-level change, including improved training on working with people with intellectual disabilities, enhanced communication practices, and strengthened continuity of care to support equitable hospital experiences.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.7,"publicationDate":"2026-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801357","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Leadership practices in Saudi centres for people with intellectual disabilities: Leading for quality of life. 沙特智障人士中心的领导实践：领导生活质量。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-08-17 DOI: 10.3109/13668250.2026.2702704

Khalid Abu-Alghayth, Basmah Alshahrani

{"title":"Leadership practices in Saudi centres for people with intellectual disabilities: Leading for quality of life.","authors":"Khalid Abu-Alghayth, Basmah Alshahrani","doi":"10.3109/13668250.2026.2702704","DOIUrl":"https://doi.org/10.3109/13668250.2026.2702704","url":null,"abstract":"Background: Ensuring high quality of life for people with intellectual disabilities is a global priority, with effective leadership in care services recognised as a central determinant. This study investigates how leadership practices in rehabilitation and care centres influence the quality of life of people with intellectual disabilities.Method: Employing a convergent parallel mixed-methods design, the study integrated quantitative data from 116 professionals with qualitative data from interviews with seven centre leaders.Results: Quantitative findings indicate that while organisational culture was rated highly, institutional guidelines and resource allocation received the lowest ratings, with statistically significant differences between leaders and other professionals. Qualitative analysis revealed four themes: organisational approaches versus individual initiatives, multi-dimensional support systems, the role of family involvement, and meaningful community participation.Conclusion: Leadership functions as a critical mechanism for translating policy into meaningful quality of life outcomes; however, leaders require enhanced training and institutional support to fulfil this role.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.7,"publicationDate":"2026-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801395","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Embodied expressiveness: Children with profound intellectual and multiple disabilities' interactions with professionals. 具身表达：重度智障及多重智障儿童与专业人士的互动。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-08-17 DOI: 10.3109/13668250.2026.2705627

Kristin Vindhol Evensen, Borgunn Ytterhus

{"title":"Embodied expressiveness: Children with profound intellectual and multiple disabilities' interactions with professionals.","authors":"Kristin Vindhol Evensen, Borgunn Ytterhus","doi":"10.3109/13668250.2026.2705627","DOIUrl":"https://doi.org/10.3109/13668250.2026.2705627","url":null,"abstract":"Background: This article addresses epistemological challenges arising when children who communicate through gestures are excluded from disability research. We encourage researchers to incorporate the gestures of these children into future research projects.Method: By methodically analysing embodied phenomenological anecdotes and considering the works of Merleau-Ponty and Foucault, we illustrate how professionals foster embodied interactions and use queer objects in educational settings.Results: The results show how professional practitioners exhibited perception, patience and interpretation of the children's gestures, which seem reliable due to the value of everyday life experiences.Conclusion: Perception, patience and interpretation can serve as key methodological cornerstones for qualitative researchers aiming to expand epistemologies. When epistemologies expand, power is redistributed, allowing researchers to learn from others close to children with profound intellectual and multiple disabilities and to investigate their lifeworlds.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.7,"publicationDate":"2026-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801363","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reasonable adjustments in cancer care for people with intellectual disabilities: Perspectives of Australian healthcare professionals. 对智障人士癌症护理的合理调整：澳大利亚医疗保健专业人员的观点。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-08-10 DOI: 10.3109/13668250.2026.2699534

Annabel Sexton, Michelle Bellon, Jennifer Baldock

{"title":"Reasonable adjustments in cancer care for people with intellectual disabilities: Perspectives of Australian healthcare professionals.","authors":"Annabel Sexton, Michelle Bellon, Jennifer Baldock","doi":"10.3109/13668250.2026.2699534","DOIUrl":"https://doi.org/10.3109/13668250.2026.2699534","url":null,"abstract":"Background: People with intellectual disabilities experience inequities across the cancer continuum. Reasonable adjustments are critical to reducing barriers and ensuring equitable care. This study aimed to explore healthcare professionals' perspectives on reasonable adjustments in cancer care for people with intellectual disabilities.Method: Semi-structured interviews were conducted with 15 healthcare professionals with experience in Australian cancer care settings. Deductive-inductive thematic analysis was conducted using the COM-B model as a guiding framework. Data were organised under Capability, Opportunity, Motivation, and Behaviour domains, with subthemes generated inductively.Results: Healthcare professionals were largely unfamiliar with the term 'reasonable adjustments' despite reporting some use in practice. Participants reported limited training and resources, and system- and policy-level barriers and facilitators.Conclusion: Transformative change is needed to ensure consistent application of reasonable adjustments in cancer care. This study highlights opportunities in policy, practice, and health-system processes to enhance accessible cancer care for people with intellectual disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.7,"publicationDate":"2026-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148702867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents with intellectual disabilities navigating formal parenting supports: Meta-synthesis of qualitative studies. 智障父母如何获得正规的养育支持：质性研究的元综合。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-08-05 DOI: 10.3109/13668250.2026.2699535

Anne Honey, Susan Collings, John V Rider, Evelina Pituch, Veronica O'Mara, Margaret McGrath

{"title":"Parents with intellectual disabilities navigating formal parenting supports: Meta-synthesis of qualitative studies.","authors":"Anne Honey, Susan Collings, John V Rider, Evelina Pituch, Veronica O'Mara, Margaret McGrath","doi":"10.3109/13668250.2026.2699535","DOIUrl":"https://doi.org/10.3109/13668250.2026.2699535","url":null,"abstract":"Background: Parents with intellectual disabilities often require support with parenting. Information about their experiences of accessing formal support for parenting is dispersed throughout diverse literature. This study aimed to synthesise current qualitative knowledge about this topic.Method: We conducted a systematic review and qualitative meta-synthesis.Results: Of 38 eligible studies, most reported parents being unable to access needed support for parenting. Support provided was often perceived as unwanted, unsuitable, dictatorial, disempowering, judgemental, or inaccessible. Parents described the right support as offered rather than imposed, available when needed, tailored to their learning needs, encouraging, respectful, and caring. Rather than passively receiving support, they actively sought and responded to support based on these perceptions.Conclusion: The study revealed that parents with intellectual disabilities have clear views on the support they need and exercise agency in trying to access the right support. Practitioners can provide effective support by engaging in relational, trust-based practices.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.7,"publicationDate":"2026-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148680958","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Spatial correlates of wayfinding abilities in people with intellectual disabilities. 智障人士寻路能力的空间相关性。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-07-31 DOI: 10.3109/13668250.2026.2705104

Yingying Yang, Arielle Hershkovich, Daria Lasc, Matthew Baker

{"title":"Spatial correlates of wayfinding abilities in people with intellectual disabilities.","authors":"Yingying Yang, Arielle Hershkovich, Daria Lasc, Matthew Baker","doi":"10.3109/13668250.2026.2705104","DOIUrl":"https://doi.org/10.3109/13668250.2026.2705104","url":null,"abstract":"Background: Previous research has found that people with intellectual disabilities performed wayfinding tasks at or below their intellectual level. This research aims to examine what small-scale spatial abilities predict wayfinding in people with intellectual disabilities.Method: Sixty-one participants with intellectual disabilities aged 12-25 years completed a wayfinding task and eight small-scale spatial ability tasks, the latter of which were based on the double-dimension theoretical framework.Results: Extrinsic-dynamic spatial abilities predict wayfinding route knowledge. Intrinsic-Dynamic spatial abilities predict wayfinding landmark knowledge. Having Down syndrome (vs. not having it) also predicts a unique variance in landmark knowledge. Sensitivity analyses based on intelligence quotient (IQ) attenuate some, but not all, results.Conclusion: Theoretically, small- and large-scale spatial abilities are associated in people with intellectual disabilities, as they are in typically developing people. In practice, future intervention programs might consider training small-scale spatial abilities to enhance wayfinding for people with intellectual disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.7,"publicationDate":"2026-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148649849","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mental health and family quality of life after yoga and compassion meditation: A randomised feasibility study among mothers of children with intellectual disabilities in Nepal. 瑜伽和慈悲冥想后的心理健康和家庭生活质量：尼泊尔智障儿童母亲的随机可行性研究

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-07-15 DOI: 10.3109/13668250.2026.2688672

Namrata Pradhan, Laxmi Bhatta, Gørill Haugan, Poonam Rishal, Jennifer Infanti

{"title":"Mental health and family quality of life after yoga and compassion meditation: A randomised feasibility study among mothers of children with intellectual disabilities in Nepal.","authors":"Namrata Pradhan, Laxmi Bhatta, Gørill Haugan, Poonam Rishal, Jennifer Infanti","doi":"10.3109/13668250.2026.2688672","DOIUrl":"https://doi.org/10.3109/13668250.2026.2688672","url":null,"abstract":"Background: Mothers of children with intellectual disabilities often experience stress, anxiety, and depression, impacting family quality of life (FQOL). Yoga and compassion meditation program (YCMP) may offer accessible strategies to support wellbeing. This feasibility study explored preliminary effects of brief YCMP on mental health and FQOL outcomes among mothers of children with intellectual disabilities in Nepal.Method: A randomised feasibility study enrolled 103 mothers; 90 completed assessments. The YCMP included a 75-minute in-person session, take-home practices, and a 6-week refresher. Outcomes included perceived stress, anxiety and depression symptoms, and FQOL.Results: Post-intervention, YCMP participants were in the \"acceptable\" satisfaction category for disability-related support and physical/material wellbeing, and low perceived stress, compared with controls. Within the intervention group, anxiety and depression symptoms decreased, while emotional wellbeing and parenting satisfaction improved.Conclusion: YCMP may improve mental health and FQOL for mothers of children with intellectual disabilities in low-resource settings. Larger randomised studies are warranted.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-14"},"PeriodicalIF":1.7,"publicationDate":"2026-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148457484","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

From access to belonging: Student-defined experiences and supports in inclusive postsecondary education. 从获得到归属：学生定义的包容性高等教育经历和支持。

IF 1.7 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2026-07-09 DOI: 10.3109/13668250.2026.2684076

Anthony J Plotner, Rebecca B Smith Hill, Sarah Livingston, Palmer Gudmundson, Adrianna Shoemaker, Erica Milliron

{"title":"From access to belonging: Student-defined experiences and supports in inclusive postsecondary education.","authors":"Anthony J Plotner, Rebecca B Smith Hill, Sarah Livingston, Palmer Gudmundson, Adrianna Shoemaker, Erica Milliron","doi":"10.3109/13668250.2026.2684076","DOIUrl":"https://doi.org/10.3109/13668250.2026.2684076","url":null,"abstract":"Background: The current study aimed to identify the college supports, opportunities, and experiences that students with intellectual and developmental disabilities view as most influential to their sense of belonging in higher education.Method: Using the researcher-developed Facilitating Inclusive Reflection and Empowerment-Delphi (FIRE-Delphi) model, 13 students enrolled in an inclusive postsecondary education (IPSE) program engaged in a 3-stage process: semi-structured interviews, a card sort prioritisation activity, and group insight mapping. Each method was adapted to maximise accessibility and ensure participants' voices were centred as sources of expertise.Findings: Across iterative rounds of reflection and consensus building, students emphasised freedom and independence as well as support from coaches employed by the IPSE program to access full campus engagement as paramount in facilitating belonging.Conclusion: The study demonstrates that students with intellectual and developmental disabilities experience belonging in college when they are supported to develop independence, build meaningful relationships, and participate fully in campus and work-based opportunities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-14"},"PeriodicalIF":1.7,"publicationDate":"2026-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148426273","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0