Joanne Mampaso Desbrow, Álvaro Moraleda Ruano, Diego Galán-Casado, Diana Ruiz-Vicente
{"title":"Stigmatising young people with intellectual disability: Perceptions of the main stakeholders at a Spanish university","authors":"Joanne Mampaso Desbrow, Álvaro Moraleda Ruano, Diego Galán-Casado, Diana Ruiz-Vicente","doi":"10.3109/13668250.2023.2295244","DOIUrl":"https://doi.org/10.3109/13668250.2023.2295244","url":null,"abstract":"One of the main challenges facing individuals with an intellectual disability is the stigma associated with the various obstacles that hinder their process of full integration. Despite the efforts ...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"26 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139551595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
I. Belperio, R. Walker, C. Bigby, I. Wiesel, F. Rillotta, C. Hutchinson
{"title":"Whose voice is it anyway? Adults with intellectual disabilities and future planning: A scoping review of qualitative studies","authors":"I. Belperio, R. Walker, C. Bigby, I. Wiesel, F. Rillotta, C. Hutchinson","doi":"10.3109/13668250.2023.2293334","DOIUrl":"https://doi.org/10.3109/13668250.2023.2293334","url":null,"abstract":"Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family ...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"197 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139551593","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Siblings of individuals with intellectual and developmental disability: Relations between involvement, personal resources, loneliness, and their adjustment","authors":"Ayelet Siman-Tov, Adi Sharabi","doi":"10.3109/13668250.2023.2298696","DOIUrl":"https://doi.org/10.3109/13668250.2023.2298696","url":null,"abstract":"The study examined relations between a number of variables regarding typically-developing adult siblings of individuals with intellectual and developmental disability: involvement in the lives of t...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"215 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139578952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
D. J. Fitzpatrick, P. McCallion, M. McCarron, E. A. Burke
{"title":"Epidemiology of constipation and its associated factors in an ageing population of people with an intellectual disability in Ireland: A cross-sectional study","authors":"D. J. Fitzpatrick, P. McCallion, M. McCarron, E. A. Burke","doi":"10.3109/13668250.2023.2271759","DOIUrl":"https://doi.org/10.3109/13668250.2023.2271759","url":null,"abstract":"Background: Constipation impacts health-related quality of life with a burden similar to other chronic conditions. This study characterises the prevalence of constipation and its associated factors...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"19 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139057735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Challenges to accessing behaviour support services for people with intellectual disability before and after the NDIS","authors":"Shoshana Dreyfus, Anne Nolan, Melanie Randle","doi":"10.3109/13668250.2023.2289682","DOIUrl":"https://doi.org/10.3109/13668250.2023.2289682","url":null,"abstract":"This study investigated the extent to which behaviour support services are accessible under Australia’s National Disability Insurance Scheme (NDIS).We conducted semi-structured interviews with fami...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"38 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139031437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Siblings of adults with intellectual disabilities in Chinese societies: A scoping review","authors":"Kangwei Xun, Christine Bigby, Tal Araten-Bergman","doi":"10.3109/13668250.2023.2271758","DOIUrl":"https://doi.org/10.3109/13668250.2023.2271758","url":null,"abstract":"Adult siblings without disabilities play important roles in relation to their brothers and sisters with intellectual disabilities. This study reviewed knowledge about adult sibling relationships in...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"34 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139035591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Esther H. Bisschops, J. Clasien de Schipper, Zina Salhi, Petri J.C.M. Embregts, Carlo Schuengel
{"title":"Communities of practice for implementing methods to reduce involuntary care in intellectual disability care: Insights from tacit and experiential knowledge exchange","authors":"Esther H. Bisschops, J. Clasien de Schipper, Zina Salhi, Petri J.C.M. Embregts, Carlo Schuengel","doi":"10.3109/13668250.2023.2275225","DOIUrl":"https://doi.org/10.3109/13668250.2023.2275225","url":null,"abstract":"Intellectual disability organisations in the Netherlands are seeking to improve clients’ quality of care by implementing methods that reduce involuntary care. This study described insights gained f...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"102 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138576174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kim J. H. M. van den Bogaard, Mireille G. D. de Beer, Noud Frielink, Petri J. C. M. Embregts
{"title":"The perspectives of agents working in positions of authority within health sector organisations regarding the involvement of experts by experience with an intellectual disability: An exploratory study","authors":"Kim J. H. M. van den Bogaard, Mireille G. D. de Beer, Noud Frielink, Petri J. C. M. Embregts","doi":"10.3109/13668250.2023.2275943","DOIUrl":"https://doi.org/10.3109/13668250.2023.2275943","url":null,"abstract":"In this study, agents working in positions of authority within health sector organisations shared their perspectives concerning both the involvement of experts by experience with intellectual disab...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"114 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138552726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An Australian online training and support program for caregivers of children and youth with Fetal Alcohol Spectrum Disorder: Families linking with families","authors":"Anita Gibbs, Julie Flanagan, Louise Gray","doi":"10.3109/13668250.2023.2271757","DOIUrl":"https://doi.org/10.3109/13668250.2023.2271757","url":null,"abstract":"Australia has limited supports to help families where Fetal Alcohol Spectrum Disorder (FASD) impacts children and young people. National Organisation for Fetal Alcohol Spectrum Disorder Australia (...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"7 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-11-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138525013","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}