Journal of Intellectual & Developmental Disability最新文献_第4页

Caregivers' experiences with diagnosis of fetal alcohol spectrum disorder: A life-course approach. 护理人员对胎儿酒精谱系障碍诊断的经验：一种生命历程方法。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-03-03 DOI: 10.3109/13668250.2025.2459822

Joanna T W Chu, Nikki Singh, Jessica C McCormack, Andre D McLachlan, Janell Dymus-Kurei, Holly Wilson, Samantha Marsh, David Newcombe

{"title":"Caregivers' experiences with diagnosis of fetal alcohol spectrum disorder: A life-course approach.","authors":"Joanna T W Chu, Nikki Singh, Jessica C McCormack, Andre D McLachlan, Janell Dymus-Kurei, Holly Wilson, Samantha Marsh, David Newcombe","doi":"10.3109/13668250.2025.2459822","DOIUrl":"10.3109/13668250.2025.2459822","url":null,"abstract":"Background: Fetal alcohol spectrum disorder (FASD) is a developmental disability. A diagnosis of FASD is vital for support and wellbeing. However, receiving a diagnosis can be challenging. The aim of this research was to understand the experiences and impact of diagnosis for caregivers of those with FASD in New Zealand.Method: We conducted focus groups with caregivers and whānau (family) to explore their experiences with FASD. The transcripts were analysed using reflexive thematic analysis.Results: We identified three themes across the life course of diagnosis, barriers to diagnosis, meaning of diagnosis and life with diagnosis.Conclusion: A diagnosis is vital for caregivers of those with FASD. However, it is difficult to access a diagnosis in New Zealand due to professionals' lack of training, knowledge, and inadequate professional support. It is essential to build our professionals workforce competence and skills of FASD.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"424-433"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143542937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A systematic review of digital activity schedule use in individuals with autism spectrum disorder and intellectual disability. 自闭症谱系障碍和智力残疾患者使用数字活动时间表的系统回顾。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-05-20 DOI: 10.3109/13668250.2025.2499009

Adelaide W Hammond, Jared R Morris, Terisa Gabrielsen, Timothy B Smith, Nathaniel Medsker

{"title":"A systematic review of digital activity schedule use in individuals with autism spectrum disorder and intellectual disability.","authors":"Adelaide W Hammond, Jared R Morris, Terisa Gabrielsen, Timothy B Smith, Nathaniel Medsker","doi":"10.3109/13668250.2025.2499009","DOIUrl":"10.3109/13668250.2025.2499009","url":null,"abstract":"Background: This systematic review examined the effectiveness of digital activity schedules as an intervention for individuals with autism spectrum disorder (ASD) or intellectual disability.Method: To be included, studies had to use a digitally presented activity schedule, excluding task analyses of single activities or group visual schedules, and the intervention must involve individuals with ASD or intellectual disability as the participants.Results: Seventeen studies met the criteria, involving 58 participants, and focused on leisure, independent living, and academic skills across different age groups, with 82% reporting fidelity of implementation.Conclusion: The review found that most interventions were concentrated in early childhood, primarily aimed at teaching leisure activities, and often combined with other concurrent interventions. The settings, participant ages, and interventions varied, with 41% meeting What Works Clearinghouse quality indicators. Future research should focus on interventions implemented in secondary education and independent living skills, with more rigorous methodological standards.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"502-516"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A qualitative process evaluation of Active Support in the Dutch context: An investigation of implementation and contextual factors. 荷兰背景下积极支持的定性过程评价：对实施和背景因素的调查。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-05-16 DOI: 10.3109/13668250.2025.2503101

Aniek van Herwaarden, Nienke C Peters-Scheffer, Vaso Totsika, Robert Didden

{"title":"A qualitative process evaluation of Active Support in the Dutch context: An investigation of implementation and contextual factors.","authors":"Aniek van Herwaarden, Nienke C Peters-Scheffer, Vaso Totsika, Robert Didden","doi":"10.3109/13668250.2025.2503101","DOIUrl":"10.3109/13668250.2025.2503101","url":null,"abstract":"Background: A qualitative process evaluation was carried out to investigate implementation of Active Support in services for people with mild and moderate intellectual disability in the Netherlands, and to identify contextual factors that may contribute to variation in implementation, perceived effectiveness, and pathways to successful outcomes.Method: Qualitative semi-structured interviews were conducted with stakeholders who were involved with the Active Support implementation. Interviews with practice leaders (n = 6), Active Support trainers (n = 4), direct support staff (n = 8), and residents with mild intellectual disabilities (n = 7) were analysed through a thematic analysis.Results: Organisational and managerial preparation appeared to lead to positive Active Support training experiences, in turn leading to behavioural changes in staff, resulting in resident wellbeing. Practice leaders' coaching, staff collaboration, and additional staffing resources through volunteers and students facilitated implementation of Active Support.Conclusions: Identification of these factors enhances our understanding of the dynamic process of Active Support implementation in a Dutch context.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"483-493"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144086915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Employment experiences and challenges of parents supporting young people with intellectual disabilities in Harbin, China. 中国哈尔滨市智障青少年父母的就业经验与挑战

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-04-02 DOI: 10.3109/13668250.2025.2480536

Xu Wang, Yingjin Cui, Xianglin Fan

引用次数: 0

Views of parents and advocates on embedding inclusive practices within higher education for people with intellectual disability in the Republic of Ireland. 父母和倡导者对在爱尔兰共和国智力残疾者高等教育中纳入包容性做法的看法。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-05-16 DOI: 10.3109/13668250.2025.2499655

Therese Hennessy, Jennifer McMahon, Owen Doody

{"title":"Views of parents and advocates on embedding inclusive practices within higher education for people with intellectual disability in the Republic of Ireland.","authors":"Therese Hennessy, Jennifer McMahon, Owen Doody","doi":"10.3109/13668250.2025.2499655","DOIUrl":"10.3109/13668250.2025.2499655","url":null,"abstract":"Background: Higher education institutions aim to provide access to individuals with intellectual disability, yet the numbers remain small. Developing inclusive learning environments is a complex process, with parents and advocates playing vital roles in identifying barriers and solutions. This study explores their perspectives on embedding inclusive practices in higher education in the Republic of Ireland.Method: A qualitative design was employed, utilising focus group interviews and purposive sampling to gather in-depth insights.Results: Thematic analysis identified three key themes: (i) advocating for educational opportunities; (ii) preparing for inclusion; and (iii) designing inclusive education. These themes were framed using normalisation process theory constructs to guide interpretation.Conclusion: Inclusive higher education is desirable and achievable through collaboration, positive attitudes, and targeted support. Engaging parents and advocates as stakeholders is essential for overcoming challenges, fostering meaningful participation, and advancing the development of inclusive learning environments for individuals with intellectual disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"460-473"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Physiological synchrony during meaningful moments of interaction: an exploratory study. 有意义的互动时刻的生理同步性：一项探索性研究。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-11-30 DOI: 10.3109/13668250.2025.2572287

Wieneke Penninga, Alexander H C Hendriks, Hedwig J A Van Bakel, Maarten Wijnants, Peter C de Looff, Petri J C M Embregts

{"title":"Physiological synchrony during meaningful moments of interaction: an exploratory study.","authors":"Wieneke Penninga, Alexander H C Hendriks, Hedwig J A Van Bakel, Maarten Wijnants, Peter C de Looff, Petri J C M Embregts","doi":"10.3109/13668250.2025.2572287","DOIUrl":"10.3109/13668250.2025.2572287","url":null,"abstract":"Background: The idiosyncratic ways of communication of people with profound intellectual disabilities complicate meaningful interactions between them and support staff. A physiological explication of their interplay may help to better understand meaningful contact.Method: Five staff-client-dyads were filmed during dyadic interactions, while their heart rate (HR) and electrodermal activity (EDA) were measured. HR and EDA synchrony were explored via Cross Recurrence Quantification analyses (CRQA), and the associations between physiological synchrony and meaningfulness as experienced by support staff were investigated.Results: In the five dyads, HR synchrony was high, while EDA synchrony differed between dyads. The association between HR and/or EDA synchrony and experienced meaningfulness showed inconsistent patterns across dyads and yielded weak, non-significant pooled correlations in the meta-analytic analyses.Conclusion: The association between physiological synchrony and meaningfulness was neither confirmed nor rejected. Follow-up research is needed to find out whether these physiological measures can be applied to quantify experienced meaningfulness.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.2,"publicationDate":"2025-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145649965","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Announcement. 公告。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-11-16 DOI: 10.3109/13668250.2025.2563426

引用次数: 0

Virtual Special Issue of JIDD and RAPIDD for ASID Conference. 亚洲开发计划署会议JIDD和RAPIDD虚拟特刊。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-11-10 DOI: 10.3109/13668250.2025.2584933

Christine Bigby Ao

引用次数: 0

Parenting Young Children (PYC) for parents with intellectual and developmental disabilities: parents' experiences of the support program's methodology. 为有智力和发育障碍的父母提供幼儿养育（PYC）：父母对支持计划方法的经验。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-11-04 DOI: 10.3109/13668250.2025.2572401

Eva Randell, Tommie Forslund, Thomas Strandberg, Marie Holmefur, Birgitta Wennberg

{"title":"Parenting Young Children (PYC) for parents with intellectual and developmental disabilities: parents' experiences of the support program's methodology.","authors":"Eva Randell, Tommie Forslund, Thomas Strandberg, Marie Holmefur, Birgitta Wennberg","doi":"10.3109/13668250.2025.2572401","DOIUrl":"https://doi.org/10.3109/13668250.2025.2572401","url":null,"abstract":"Background: Research on how parents with intellectual and developmental disabilities perceive the Parenting Young Children (PTC) support program for the development of parenting skills is scarce. The study explored parents' experiences of PYC's methodology.Method: Interviews were conducted with 15 Swedish parents (8 mothers, 7 fathers) at risk for child neglect who had received PYC for 6 months or longer. The interviews were analysed with reflexive thematic analysis.Results: Two main themes, with six subthemes, were identified: \"Developing a trusting relationship with the PYC practitioner\" and \"Tailored support, planning, and training in collaboration.\" One overarching theme was also created: \"The PYC methodology facilitates learning of parenting skills through a trusting and collaborative process guided by adapted support.\"Conclusion: Parents with intellectual and developmental disabilities perceived the PYC methodology as helpful and well-adapted. The study highlights that learning parenting skills can be facilitated by a collaborative and tailored approach using behavioural teaching strategies.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.2,"publicationDate":"2025-11-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145439900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Interventions to increase cervical screening rates for women with intellectual and developmental disabilities: a scoping review. 提高智力和发育障碍妇女子宫颈筛查率的干预措施：范围审查。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-10-28 DOI: 10.3109/13668250.2025.2567710

Anne Woodruff Jameson, Colby Kelley, Danielle Westmark, Sandra Willett, Kailey Snyder

{"title":"Interventions to increase cervical screening rates for women with intellectual and developmental disabilities: a scoping review.","authors":"Anne Woodruff Jameson, Colby Kelley, Danielle Westmark, Sandra Willett, Kailey Snyder","doi":"10.3109/13668250.2025.2567710","DOIUrl":"https://doi.org/10.3109/13668250.2025.2567710","url":null,"abstract":"Background: Women with intellectual and developmental disabilities face barriers to cervical screening. This scoping review charts the literature on interventions designed to improve cervical screening receipt and knowledge in this population. Method: A systematic search of Embase (Elsevier), PubMed.gov, CINHAL (EBSCO), and Scopus (Elsevier) yielded 199 results, six of which met the inclusion criteria of women aged 21-65 years with intellectual and developmental disabilities, intervention studies, and outcomes of cervical screen receipt or knowledge. Results: All interventions, using the socioecological model (SEM) as a framework, reported an increase in receipt or knowledge of cervical screening. Interventions at the individual, interpersonal, and organisational levels of the SEM included education, physical therapy, health assessment programs, provider accompaniment, and screening adaptations. Conclusion: There are interventions that have potential to address disparities in cervical screening for women with intellectual and developmental disabilities. More research would help identify which women would benefit from interventions.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-11"},"PeriodicalIF":1.2,"publicationDate":"2025-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145379326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0