June Alexander, Sandra Gendera, Sally Robinson, Karen R. Fisher, Kellie Howe
{"title":"On-the-job training supports for people with intellectual disability employed in aged care","authors":"June Alexander, Sandra Gendera, Sally Robinson, Karen R. Fisher, Kellie Howe","doi":"10.3109/13668250.2023.2256075","DOIUrl":"https://doi.org/10.3109/13668250.2023.2256075","url":null,"abstract":"Background Traineeships have been proven to be beneficial vocational pathways for people with intellectual disability however to date the on-the-job training provision associated with traineeships has not been well documented.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"32 8","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134906582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Denise De Souza, Zelinna Pablo, Michael Shevlin, Maria Theresa von Fürstenberg, Jennifer Banks, Debashis Sarker, Alejandra Rios Urzua, Donatella Camedda, Des Aston
{"title":"Preconditions influencing the development of post-secondary training programs in universities for individuals with intellectual disabilities","authors":"Denise De Souza, Zelinna Pablo, Michael Shevlin, Maria Theresa von Fürstenberg, Jennifer Banks, Debashis Sarker, Alejandra Rios Urzua, Donatella Camedda, Des Aston","doi":"10.3109/13668250.2023.2260584","DOIUrl":"https://doi.org/10.3109/13668250.2023.2260584","url":null,"abstract":"ABSTRACTBackground Research on post-secondary training for individuals with intellectual disabilities has generally focused on programs, with little consideration of the structures and mechanisms that give rise to them. This article adopts a critical realist perspective to comparatively analyse and theorise about the contextual structures contributing to the introduction of post-secondary training programs in universities for individuals with intellectual disabilities.Method Six stages in critical realist explanatory research were followed. They include (1) description, (2) analytical resolution, (3) abduction/theoretical redescription, (4) retroduction, (5) comparison between different theories and abstractions, and (6) concretisation and contextualisation.Results Historical, socio-political, and educational policy structures and mechanisms, indicated three program typologies: program as niche, as a generalisable prototype, and as an evolutionary response to evolving conditions.Conclusions By developing explanations about preconditions, the study draws out nuanced sub-types occurring within a single university-based program, theorises on trajectories for success, and lays the groundwork for future empirical and conceptual development.KEYWORDS: Intellectual disabilityinclusive post-secondary educationhigher educationcritical realism Disclosure statementNo potential conflict of interest was reported by the author(s).Ethics approvalThe study was conducted according to the guidelines of the National Statement on Ethical Conduct in Human Research (National Statement), and approved by the Human Research Ethics Committee (HREC) at Torrens University Australia (HREC-0131).Additional informationFundingThis work was supported by 2019 Laureate Grant for Inter-Institutional Research.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"43 4","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134905529","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The relationship of productivity-based wages to human rights and occupational justice – an exploratory study","authors":"R. M. Lysaght, N. Bobbette","doi":"10.3109/13668250.2023.2249276","DOIUrl":"https://doi.org/10.3109/13668250.2023.2249276","url":null,"abstract":"ABSTRACTBackground Productivity-based wage systems are intended to enhance the labour market participation of people with disabilities. Limited scholarship exists regarding the impact of such policies in practice. This qualitative study explored stakeholder perspectives on the Australian Supported Wage System (SWS), including perceptions of fairness and equity.Methods Document review provided context and background for the study. 14 semi-structured interviews were subsequently conducted with a range of stakeholders with knowledge of the SWS.Results Four primary themes were identified, related to assessment processes, value contributions of the system, practice risks and challenges, and ethical tensions.Conclusions The SWS appears to enhance worker choice and inclusion. A variety of factors may reduce the quality of these outcomes, however, and employment systems should support a range of evidence-informed approaches to ensure equitable employment outcomes.KEYWORDS: supported wageslabour market participationsocial inclusionoccupational justiceintellectual disability Disclosure statementNo potential conflict of interest was reported by the author(s).Notes1 Intellectual disability is defined by the National Disability Insurance Scheme (NDIS) in Australia as a condition affecting intellectual skills and adaptive behaviours including the ability to learn, communicate, reason and retain information.Additional informationFundingThis work was supported by Association of Commonwealth Universities: [Grant Number 2018-199-141-008340].","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135458178","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Reasonable adjustments to the application of the comprehensive care standard within an Australian mainstream internal medicine outpatient clinic attended by adults with Down syndrome","authors":"Robyn A. Wallace","doi":"10.3109/13668250.2023.2248401","DOIUrl":"https://doi.org/10.3109/13668250.2023.2248401","url":null,"abstract":"Background The Australian Commission on Safety and Quality in Health Care recommends the development of reasonable adjustments to Comprehensive Care Standard to better suit the needs of people with intellectual disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"33 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135783523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Angela Dew, Kevin Murfitt, Monica Wellington, Cadeyrn J Gaskin
{"title":"The Back to Back Theatre film internship program for people with intellectual disability: A summative evaluation.","authors":"Angela Dew, Kevin Murfitt, Monica Wellington, Cadeyrn J Gaskin","doi":"10.3109/13668250.2022.2128080","DOIUrl":"10.3109/13668250.2022.2128080","url":null,"abstract":"<p><strong>Background: </strong>Internships may be a successful pathway for increasing employment rates among people with intellectual disability. This paper presents a summative evaluation of a brief film internship program for people with intellectual disability.</p><p><strong>Method: </strong>At the commencement and conclusion of the internship, semi-structured interviews were conducted with eight interns and 10 mentors. The interview material was analysed thematically.</p><p><strong>Results: </strong>Five themes described the experiences of interns: enhancing intern skill development and recognising gaps, building intern confidence, providing interns with assistance, meeting interns' expectations of the program, and working towards ongoing employment. Four themes were present in the discussions with mentors: drawing on previous experience with people with disability and mentoring roles, feeling confident in a mentor role, providing mentors with support, and reflecting on interns' future job prospects.</p><p><strong>Conclusion: </strong>Although the program developed interns' skills and confidence, an expanded program appears needed to generate open employment outcomes.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"313-323"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44157286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Manon J Smit, Claudia Emck, Mia Scheffers, Jooske T van Busschbach, Peter J Beek
{"title":"The impact of sexual abuse on body experience in adults with mild intellectual disability or borderline intellectual functioning.","authors":"Manon J Smit, Claudia Emck, Mia Scheffers, Jooske T van Busschbach, Peter J Beek","doi":"10.3109/13668250.2022.2158725","DOIUrl":"10.3109/13668250.2022.2158725","url":null,"abstract":"<p><strong>Background: </strong>Research is lacking on body-related consequences of sexual abuse in adults with mild intellectual disability or borderline intellectual functioning (MID-BIF), although the prevalence of abuse is high and body- and movement-oriented diagnostics and therapeutics seem warranted for this group.</p><p><strong>Method: </strong>Body experience in adults with MID-BIF who were sexually abused (SA) and were not sexually abused (NSA) was compared using a self-report instrument, the Body Experience Questionnaire-mb, and an instrument to observe non-verbal psychomotor behaviour, the PsyMot-mb.</p><p><strong>Results: </strong>The SA group showed significantly higher self-reported body awareness and more observed problems with body acceptance than the NSA group. No significant group differences were found for self-reported body satisfaction and body attitude.</p><p><strong>Conclusions: </strong>Adults with MID-BIF who were sexually abused are more aware of their body signals, but less able to adequately attend to, tolerate, and interpret these signals. Therefore, body- and movement-oriented therapies hold promise for this group.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"324-333"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48734218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maria Cristina Gugliandolo, Francesca Liga, Rosalba Larcan, Francesca Cuzzocrea
{"title":"Parents of children with developmental disorders: Family hardiness and resilience.","authors":"Maria Cristina Gugliandolo, Francesca Liga, Rosalba Larcan, Francesca Cuzzocrea","doi":"10.3109/13668250.2022.2079056","DOIUrl":"10.3109/13668250.2022.2079056","url":null,"abstract":"<p><strong>Background: </strong>Raising a child with developmental disorder is often related to higher stress levels for both mothers and fathers. The aim of the present study was to investigate relationships between resilience, family hardiness, life satisfaction and parental stress among parents of children with and without disabilities.</p><p><strong>Method: </strong>Twenty-eight pairs of parents of a child with Autism Spectrum Disorder, 15 of a child with Down Syndrome and 25 of a child without disability took part in the study. All parents completed four questionnaires independently.</p><p><strong>Results: </strong>Significant differences between groups emerged in parental resilience, stress, and life satisfaction. Correlational analyses showed that parental hardiness and resilience were negatively related to parental stress through all the three groups.</p><p><strong>Conclusions: </strong>These findings point to increased evidence that the presence of a disability may not directly affect the sense of family hardiness. Practical implications were discussed.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"334-339"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49017508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Iraia Bidaurrazaga-Letona, José Carlos Diz, Jon Torres-Unda, Izaro Esain, Xabier Monasterio, Biotz Zulueta, Carlos Ayán
{"title":"Short Physical Performance Battery reliability and validity in adults with mild to moderate intellectual disability.","authors":"Iraia Bidaurrazaga-Letona, José Carlos Diz, Jon Torres-Unda, Izaro Esain, Xabier Monasterio, Biotz Zulueta, Carlos Ayán","doi":"10.3109/13668250.2023.2166198","DOIUrl":"10.3109/13668250.2023.2166198","url":null,"abstract":"<p><strong>Background: </strong>People with intellectual disability have poor balance skills and greater fall risk. The Short Physical Performance Battery (SPPB) provides comprehensive information on functional status and can predict fall risk. However, the reliability and validity of the SPPB have not been evaluated in people with intellectual disability.</p><p><strong>Methods: </strong>Seventy-eight adults with intellectual disability were assessed using the SPPB twice. Reliability was analysed with intraclass correlation coefficient and validity was assessed against the Timed Up & Go (TUG) test and the stabilometric test using Spearman's rho.</p><p><strong>Results: </strong>Reliability was moderate to high in all SPPB components except for the semi-tandem and full tandem positions. The SPPB summary score indicated moderate test-retest reliability and showed mostly significant moderate associations with the TUG and poor agreement with the stabilometric test.</p><p><strong>Conclusions: </strong>The SPPB summary score indicated high internal consistency, moderate reliability, and moderate validity when applied to adults with intellectual disability.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"238-246"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49294531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nicole Megan Edwards, Rebecca Lieberman-Betz, Sarah Wiegand
{"title":"Parents with intellectual disability and mental health conditions: Early intervention providers' perceptions.","authors":"Nicole Megan Edwards, Rebecca Lieberman-Betz, Sarah Wiegand","doi":"10.3109/13668250.2022.2112530","DOIUrl":"10.3109/13668250.2022.2112530","url":null,"abstract":"<p><strong>Background: </strong>It is highly recommended that professionals promote caregivers' capacity-building to use intervention strategies to support children with developmental delays or disabilities in natural learning environments, particularly in the earliest years of life. There is a gap, however, in understanding the extent to which these professionals may feel supported in tailoring outreach to support parents with Intellectual Disability and/or mental health conditions (MHCs).</p><p><strong>Methods: </strong>We surveyed providers (n = 55) who work with families of infants and toddlers in Early Intervention programs across the United States.</p><p><strong>Results: </strong>Most had at least one family with intellectual disability (87%) or a MHC (92%). At least half felt parents with intellectual disability or MHCs warranted more time/resources (64% or 50%, respectively) and half were \"extremely interested\" in trainings to support parents with intellectual disability (48%) or MHCs (56%).</p><p><strong>Conclusions: </strong>Findings and implications are discussed.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"225-237"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45061246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}