Journal of Intellectual & Developmental Disability最新文献_第9页

A survey of Registered Nurses' educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder. 注册护士护理智障及/或自闭症谱系障碍患者的教育经历及自我认知能力调查

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-08-31 DOI: 10.3109/13668250.2021.1967897

Andrew Cashin, Amy Pracilio, Thomas Buckley, Michelle Kersten, Julian Trollor, Julia Morphet, Virginia Howie, Ken Griffin, Nathan J Wilson

{"title":"A survey of Registered Nurses' educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder.","authors":"Andrew Cashin, Amy Pracilio, Thomas Buckley, Michelle Kersten, Julian Trollor, Julia Morphet, Virginia Howie, Ken Griffin, Nathan J Wilson","doi":"10.3109/13668250.2021.1967897","DOIUrl":"10.3109/13668250.2021.1967897","url":null,"abstract":"Aims and objectives: To survey the educational experience of Registered Nurses in Australia, at undergraduate, post graduate and continuing professional development levels.Background: It has been previously demonstrated that nurses feel unprepared to care for people with intellectually disability and/or autism spectrum disorder in mainstream clinical settings. Specific undergraduate pre-registration curricula content in this domain has been identified to be low in volume, and in the absence of any studies to determine it, it has been presumed that it has diminished over time.Methods: A cross-sectional survey of Australian Registered Nurses using a descriptive survey tool.Results: The level of education undertaken related to intellectual disability and autism spectrum disorder has been consistently low across time and it predates the move from pre-registration hospital based training to the tertiary sector. A relationship was identified between the experience of education and self-reported preparedness, comfort and knowledge to care for people with intellectual disability and/or autism spectrum disorder.Conclusion: Increased educational preparation for nurses to care for people with intellectual disability and/or autism is indicated.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"227-239"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46935425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effectiveness of schema therapy in offenders with intellectual disabilities: a case series design. 图式治疗在智障罪犯中的有效性：案例系列设计

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-10-24 DOI: 10.3109/13668250.2021.1978956

Anke de Klerk, Marije Keulen-de Vos, Jill Lobbestael

引用次数: 0

Signs of abuse in children with disabilities: A rapid review with expert panel social validation. 残疾儿童的虐待迹象:与专家小组社会验证的快速审查

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-11-11 DOI: 10.3109/13668250.2021.1984083

Amanda Nyberg, Ulrika Ferm, Juan Bornman

{"title":"Signs of abuse in children with disabilities: A rapid review with expert panel social validation.","authors":"Amanda Nyberg, Ulrika Ferm, Juan Bornman","doi":"10.3109/13668250.2021.1984083","DOIUrl":"10.3109/13668250.2021.1984083","url":null,"abstract":"Background: Children with intellectual disabilities are at risk of becoming victims of abuse. However, persons working with this population often lack knowledge on how to interpret signs of abuse. The purpose of this study was to identify and socially validate signs of abuse in children with disabilities.Method: The study employed a mixed-method sequential design. The first phase consisted of a rapid review of publications that described signs of abuse in children with disabilities (n = 23). The second phase included social validation using an online survey. The participants were professionals working with disability and/or child abuse (n = 39).Results: A significant difference between the 10 highest rated signs of abuse compared to the 10 lowest rated signs was found. Group comparisons between participants showed significant differences in the ratings of eight signs.Conclusions: The results from the study can provide guidance to the accuracy of signs of abuse in children with disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"206-217"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46951163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adaptive behaviours in children with Down syndrome: A cross-sectional study of developmental trajectories. 唐氏综合症儿童的适应行为:发育轨迹的横断面研究

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-09-26 DOI: 10.3109/13668250.2021.1976008

Josefina Bunster, Marc J Tassé, Marcela Tenorio, Andrés Aparicio, Paulina S Arango

{"title":"Adaptive behaviours in children with Down syndrome: A cross-sectional study of developmental trajectories.","authors":"Josefina Bunster, Marc J Tassé, Marcela Tenorio, Andrés Aparicio, Paulina S Arango","doi":"10.3109/13668250.2021.1976008","DOIUrl":"10.3109/13668250.2021.1976008","url":null,"abstract":"Background: Given the importance of adaptive behaviour (AB) for the identification of intellectual disability and the design of intervention plans for people with Down syndrome (DS), this cross-sectional study explored AB in infants with DS, compared to infants with typical development (TD).Method: we evaluated 60 infants (10-36 months) with ABAS-II (32 with DS, 28 with TD). Using the developmental trajectories method for data analysis, we compared AB between the two groups.Results: We found significant differences between groups in most of the skills assessed, in favour of infants with TD. Three different patterns of trajectories were found for the AB and the relation between the groups: (1) no differences (Leisure and Self-Care Skills); (2) differences at the beginning of the trajectory and then a similar slope (Home Living, Self-Direction, Social and Motor Skills); and (3) a similar starting-point with differences in the trajectories (Communication, Community Use, Pre-Academic, and Health and Safety).Conclusions: This empirical cross-sectional study contributes to the understanding of the development of AB in children with DS, showing both weak areas and skills that continue improving over time in these early years. Contributions and limitations of the study are discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"276-286"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42098411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom. 英国新冠肺炎大流行期间从事智障人士工作的注册心理学家的职业压力、应对和幸福感

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-09-01 Epub Date: 2021-09-28 DOI: 10.3109/13668250.2021.1967588

Peter E Langdon, Magdalena Marczak, Clair Clifford, Paul Willner

{"title":"Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom.","authors":"Peter E Langdon, Magdalena Marczak, Clair Clifford, Paul Willner","doi":"10.3109/13668250.2021.1967588","DOIUrl":"10.3109/13668250.2021.1967588","url":null,"abstract":"Objectives: To characterise the changes at work experienced by psychologists working with people with intellectual disabilities during the pandemic and whether these changes, stressors and aspects of working life were associated with mental wellbeing and occupational stress.Methods: Ninety-seven psychologists completed an online survey. Free text comments were analysed using thematic analysis and triangulated with our quantitative findings.Results: Occupational stress, learning new roles, demands at home, and changes due to COVID-19 were associated with poorer mental wellbeing, while uncertainty about the role, a shortage of personal protective equipment, and poorer mental wellbeing were associated with occupational stress. Two main themes emerged during the thematic analysis: being human and being an employee, and triangulation revealed agreement.Conclusions: The wellbeing and occupational stress of psychologists working with people with intellectual disabilities have been affected during the pandemic. It is of note that almost a quarter of our sample reported having been redeployed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"195-205"},"PeriodicalIF":1.9,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45571158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Post-traumatic stress disorder symptom manifestations in an autistic man with severe intellectual disability following coercion and scalding. 一名患有严重智障的自闭症男子在强迫和烫伤后的创伤后应激障碍症状表现

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2021-12-17 DOI: 10.3109/13668250.2021.1995930

Arvid Nikolai Kildahl, Ingvild Jørstad

{"title":"Post-traumatic stress disorder symptom manifestations in an autistic man with severe intellectual disability following coercion and scalding.","authors":"Arvid Nikolai Kildahl, Ingvild Jørstad","doi":"10.3109/13668250.2021.1995930","DOIUrl":"10.3109/13668250.2021.1995930","url":null,"abstract":"Background: Autistic adults with intellectual disabilities (ID) seem to be particularly vulnerable to potentially traumatic experiences and post-traumatic stress disorder (PTSD). Furthermore, this population may be at risk for a different set of traumatic experiences than the general population. However, knowledge is sparse concerning PTSD symptom manifestations in individuals with severe ID.Method: Exploration of PTSD symptom trajectories and manifestations in an adult, autistic man with severe ID.Results: Altered arousal/reactivity and problematic avoidance were the most easily observable symptoms. Avoidance seemed to become more generalised over time, and the impact of PTSD on behaviour, level of functioning, and quality of life was severe.Conclusions: Negligence and coercion in services for autistic adults with ID may involve a traumatic potential for these individuals. Increased awareness of this risk is needed in service providers and mental health professionals.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"190-194"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44437216","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Body Experience Questionnaire for adults with mild intellectual disability or borderline intellectual functioning (BEQ-mb): Development and initial evaluation. 成人轻度智障或边缘性智障身体体验问卷(BEQ-mb)的编制与初步评价

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2021-06-19 DOI: 10.3109/13668250.2021.1929879

Manon J Smit, Mia Scheffers, Claudia Emck, Jooske T van Busschbach, Peter J Beek

{"title":"The Body Experience Questionnaire for adults with mild intellectual disability or borderline intellectual functioning (BEQ-mb): Development and initial evaluation.","authors":"Manon J Smit, Mia Scheffers, Claudia Emck, Jooske T van Busschbach, Peter J Beek","doi":"10.3109/13668250.2021.1929879","DOIUrl":"10.3109/13668250.2021.1929879","url":null,"abstract":"Background: Body experience is an important facet of psychosocial functioning and health. However, to date no test exists to measure body experience in adults with mild intellectual disability and borderline intellectual functioning (MID-BIF). We therefore adapted the Body Experience Questionnaire (BEQ) to this group, resulting in the BEQ-mb, and evaluated its usability, comprehensibility, and reliability.Method: The BEQ-mb was developed in five stages: concept development, focus group, verbal reports, pilot testing, and evaluation.Results: The BEQ-mb is applicable in, and comprehensible by, adults with MID-BIF. Internal consistency is good for the total scale and the body awareness and body satisfaction subscales, but low for the body attitude subscale. Test-retest reliability is excellent for the total scale and the subscales.Conclusion: The BEQ-mb unlocks new opportunities for clinical examination and research on body experience. Future research is needed to investigate its structural validity.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"141-151"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42621131","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences. 支持智障成年人探索决策偏好、制约因素和后果的父母策略

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2021-08-04 DOI: 10.3109/13668250.2021.1954481

Christine Bigby, Jacinta Douglas, Elizabeth Smith, Terry Carney, Shih-Ning Then, Ilan Wiesel

{"title":"Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences.","authors":"Christine Bigby, Jacinta Douglas, Elizabeth Smith, Terry Carney, Shih-Ning Then, Ilan Wiesel","doi":"10.3109/13668250.2021.1954481","DOIUrl":"10.3109/13668250.2021.1954481","url":null,"abstract":"Background: Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them.Method: Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis.Results: Findings fell into three core categories, making the right decision, factors that made decision support difficult, and strategies to manage uncertainty, which included controlling, influencing, expanding the adult's horizons and enabling risk.Conclusions: The knowledge gained will help in building the capacity of parents to provide decision support that better understands and respects the will and preferences of the person they support.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"165-176"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45339851","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I hope I'll outlive him": A qualitative study of parents' concerns about being outlived by their child with profound intellectual and multiple disabilities. “我希望我能比他活得更久”:一项关于父母担心自己患有严重智力残疾和多重残疾的孩子比自己活得更久的定性研究

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2021-06-02 DOI: 10.3109/13668250.2021.1920377

Kasper Kruithof, Erik Olsman, Appolonia Nieuwenhuijse, Dick Willems

{"title":"\"I hope I'll outlive him\": A qualitative study of parents' concerns about being outlived by their child with profound intellectual and multiple disabilities.","authors":"Kasper Kruithof, Erik Olsman, Appolonia Nieuwenhuijse, Dick Willems","doi":"10.3109/13668250.2021.1920377","DOIUrl":"10.3109/13668250.2021.1920377","url":null,"abstract":"Background: The life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing and parents express concerns about being possibly outlived by their child with PIMD. However, little is known about the nature of these concerns.Method: We interviewed 27 parents of persons with PIMD and analysed the data thematically, to explore parents' concerns about being outlived by their child.Results: Most parents hoped to outlive their child with PIMD and related this to the expectation of a decreased quality of life (QoL) of their child, when they would have passed away. The uncertainty about who would fulfil their parental roles in the future contributed to parents' concerns and sometimes resulted in feelings of despair.Conclusions: Our study provides insight into the nature and gravity of parents' concerns. The division of parents' concerns into roles helps to address future care and support gaps for people with PIMD.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"107-117"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46236848","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study. 重度或重度智障儿童家长依恋强度与需求访谈:可接受性与可行性研究

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-06-01 Epub Date: 2021-06-05 DOI: 10.3109/13668250.2021.1925528

Sien Vandesande, Guy Bosmans, Paula Sterkenburg, Carlo Schuengel, Bea Maes

{"title":"The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study.","authors":"Sien Vandesande, Guy Bosmans, Paula Sterkenburg, Carlo Schuengel, Bea Maes","doi":"10.3109/13668250.2021.1925528","DOIUrl":"10.3109/13668250.2021.1925528","url":null,"abstract":"Background: The feasibility and acceptability was explored of the newly-constructed Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities.Method: A partially mixed methods approach (with focus on the quantitative data) was used to clarify parents' and professionals' viewpoints regarding the acceptability of the interview through websurvey-ratings.Results: Parents generally felt appreciated during or after the interview, were motivated to work on the proposed goals and felt the interview covered their actual needs, but were, however, more neutral on the aspects of reflection and learning. Professionals indicated that the interview gathered sufficient information on most elements of interest at the start of an intervention trajectory, but generally missed information on the origins of parents' questions and the families' expectations towards taking part in an intervention.Conclusions: The current study showed preliminary support for the feasibility and acceptability of the Attachment Strengths and Needs Interview, as part of a broader intake procedure, to inform attachment-focused interventions for parents of children with disabilities by identifying their strengths and needs.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"118-130"},"PeriodicalIF":1.9,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41487257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0