Journal of Intellectual & Developmental Disability最新文献_第9页

Reasonable adjustments to the application of the comprehensive care standard within an Australian mainstream internal medicine outpatient clinic attended by adults with Down syndrome 合理调整综合护理标准的应用在澳大利亚主流内科门诊就诊的成人唐氏综合症

4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-13 DOI: 10.3109/13668250.2023.2248401

Robyn A. Wallace

引用次数: 0

The Back to Back Theatre film internship program for people with intellectual disability: A summative evaluation. 为智障人士而设的背靠背剧场电影实习计划:总结性评估

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2023-01-24 DOI: 10.3109/13668250.2022.2128080

Angela Dew, Kevin Murfitt, Monica Wellington, Cadeyrn J Gaskin

{"title":"The Back to Back Theatre film internship program for people with intellectual disability: A summative evaluation.","authors":"Angela Dew, Kevin Murfitt, Monica Wellington, Cadeyrn J Gaskin","doi":"10.3109/13668250.2022.2128080","DOIUrl":"10.3109/13668250.2022.2128080","url":null,"abstract":"Background: Internships may be a successful pathway for increasing employment rates among people with intellectual disability. This paper presents a summative evaluation of a brief film internship program for people with intellectual disability.Method: At the commencement and conclusion of the internship, semi-structured interviews were conducted with eight interns and 10 mentors. The interview material was analysed thematically.Results: Five themes described the experiences of interns: enhancing intern skill development and recognising gaps, building intern confidence, providing interns with assistance, meeting interns' expectations of the program, and working towards ongoing employment. Four themes were present in the discussions with mentors: drawing on previous experience with people with disability and mentoring roles, feeling confident in a mentor role, providing mentors with support, and reflecting on interns' future job prospects.Conclusion: Although the program developed interns' skills and confidence, an expanded program appears needed to generate open employment outcomes.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"313-323"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44157286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The impact of sexual abuse on body experience in adults with mild intellectual disability or borderline intellectual functioning. 性虐待对轻度智障或边缘性智障成人身体体验的影响

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2023-02-23 DOI: 10.3109/13668250.2022.2158725

Manon J Smit, Claudia Emck, Mia Scheffers, Jooske T van Busschbach, Peter J Beek

{"title":"The impact of sexual abuse on body experience in adults with mild intellectual disability or borderline intellectual functioning.","authors":"Manon J Smit, Claudia Emck, Mia Scheffers, Jooske T van Busschbach, Peter J Beek","doi":"10.3109/13668250.2022.2158725","DOIUrl":"10.3109/13668250.2022.2158725","url":null,"abstract":"Background: Research is lacking on body-related consequences of sexual abuse in adults with mild intellectual disability or borderline intellectual functioning (MID-BIF), although the prevalence of abuse is high and body- and movement-oriented diagnostics and therapeutics seem warranted for this group.Method: Body experience in adults with MID-BIF who were sexually abused (SA) and were not sexually abused (NSA) was compared using a self-report instrument, the Body Experience Questionnaire-mb, and an instrument to observe non-verbal psychomotor behaviour, the PsyMot-mb.Results: The SA group showed significantly higher self-reported body awareness and more observed problems with body acceptance than the NSA group. No significant group differences were found for self-reported body satisfaction and body attitude.Conclusions: Adults with MID-BIF who were sexually abused are more aware of their body signals, but less able to adequately attend to, tolerate, and interpret these signals. Therefore, body- and movement-oriented therapies hold promise for this group.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"324-333"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48734218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents of children with developmental disorders: Family hardiness and resilience. 发育障碍儿童的父母:家庭适应力和复原力

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2022-06-22 DOI: 10.3109/13668250.2022.2079056

Maria Cristina Gugliandolo, Francesca Liga, Rosalba Larcan, Francesca Cuzzocrea

引用次数: 0

Short Physical Performance Battery reliability and validity in adults with mild to moderate intellectual disability. 轻度至中度智力残疾成年人短体力测试的信度和有效性

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2023-02-23 DOI: 10.3109/13668250.2023.2166198

Iraia Bidaurrazaga-Letona, José Carlos Diz, Jon Torres-Unda, Izaro Esain, Xabier Monasterio, Biotz Zulueta, Carlos Ayán

{"title":"Short Physical Performance Battery reliability and validity in adults with mild to moderate intellectual disability.","authors":"Iraia Bidaurrazaga-Letona, José Carlos Diz, Jon Torres-Unda, Izaro Esain, Xabier Monasterio, Biotz Zulueta, Carlos Ayán","doi":"10.3109/13668250.2023.2166198","DOIUrl":"10.3109/13668250.2023.2166198","url":null,"abstract":"Background: People with intellectual disability have poor balance skills and greater fall risk. The Short Physical Performance Battery (SPPB) provides comprehensive information on functional status and can predict fall risk. However, the reliability and validity of the SPPB have not been evaluated in people with intellectual disability.Methods: Seventy-eight adults with intellectual disability were assessed using the SPPB twice. Reliability was analysed with intraclass correlation coefficient and validity was assessed against the Timed Up & Go (TUG) test and the stabilometric test using Spearman's rho.Results: Reliability was moderate to high in all SPPB components except for the semi-tandem and full tandem positions. The SPPB summary score indicated moderate test-retest reliability and showed mostly significant moderate associations with the TUG and poor agreement with the stabilometric test.Conclusions: The SPPB summary score indicated high internal consistency, moderate reliability, and moderate validity when applied to adults with intellectual disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"238-246"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49294531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents with intellectual disability and mental health conditions: Early intervention providers' perceptions. 有智力残疾和心理健康状况的父母：早期干预提供者的看法

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2022-09-14 DOI: 10.3109/13668250.2022.2112530

Nicole Megan Edwards, Rebecca Lieberman-Betz, Sarah Wiegand

{"title":"Parents with intellectual disability and mental health conditions: Early intervention providers' perceptions.","authors":"Nicole Megan Edwards, Rebecca Lieberman-Betz, Sarah Wiegand","doi":"10.3109/13668250.2022.2112530","DOIUrl":"10.3109/13668250.2022.2112530","url":null,"abstract":"Background: It is highly recommended that professionals promote caregivers' capacity-building to use intervention strategies to support children with developmental delays or disabilities in natural learning environments, particularly in the earliest years of life. There is a gap, however, in understanding the extent to which these professionals may feel supported in tailoring outreach to support parents with Intellectual Disability and/or mental health conditions (MHCs).Methods: We surveyed providers (n = 55) who work with families of infants and toddlers in Early Intervention programs across the United States.Results: Most had at least one family with intellectual disability (87%) or a MHC (92%). At least half felt parents with intellectual disability or MHCs warranted more time/resources (64% or 50%, respectively) and half were \"extremely interested\" in trainings to support parents with intellectual disability (48%) or MHCs (56%).Conclusions: Findings and implications are discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"225-237"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45061246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluating a visual communications tool to explore risk and safety with nurses and patients within an intellectual disability forensic service: A pilot study. 评估一种视觉沟通工具，以探索智力残疾法医服务中护士和患者的风险和安全性:一项试点研究

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2022-08-24 DOI: 10.3109/13668250.2022.2106697

Sam Quinn, Sarah J Rhynas, Susan Gowland, Lois Cameron, Nicola Braid, Aisha Holloway, Siobhan O'Connor

{"title":"Evaluating a visual communications tool to explore risk and safety with nurses and patients within an intellectual disability forensic service: A pilot study.","authors":"Sam Quinn, Sarah J Rhynas, Susan Gowland, Lois Cameron, Nicola Braid, Aisha Holloway, Siobhan O'Connor","doi":"10.3109/13668250.2022.2106697","DOIUrl":"10.3109/13668250.2022.2106697","url":null,"abstract":"Background: Issues of risk and safety can be challenging to discuss with forensic patients with an intellectual disability. Talking Mats is a visual communication tool that facilitates therapeutic conversations.Method: A pilot study, adopting an ethnographic approach, was used to evaluate Talking Mats. Interviews and video observations were conducted with nurses and forensic patients with an intellectual disability from two forensic wards in Scotland.Results: Exploratory evidence suggests that Talking Mats offers a non-biased platform to discuss potentially emotive issues around risk, safety, and wellbeing. Pre-existing notions of Talking Mats, staff availability, and the context of COVID-19 acted as barriers to adopting the visual communications tool.Conclusion: There is value in further research regarding communication tools to facilitate input on care planning and risk management for patients with an intellectual disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"284-299"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46593881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The adaptation experience of families with children with developmental disabilities in Mainland China. 中国大陆发育障碍儿童家庭的适应经验

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2022-08-24 DOI: 10.3109/13668250.2022.2098937

Hui Su, Hailing Gong, Gwynnyth Llewellyn, Jinxia Liu, Yali Yi, Yaqian Gao

{"title":"The adaptation experience of families with children with developmental disabilities in Mainland China.","authors":"Hui Su, Hailing Gong, Gwynnyth Llewellyn, Jinxia Liu, Yali Yi, Yaqian Gao","doi":"10.3109/13668250.2022.2098937","DOIUrl":"10.3109/13668250.2022.2098937","url":null,"abstract":"Background: Families of children with developmental disabilities face extraordinary changes in their life circumstances and needs that require adaptations to create sustainable and meaningful daily routines. The present study explored the adaptation of Chinese families of children with developmental disabilities from an ecocultural theoretical perspective.Method: A total of 34 families of children with developmental disabilities were interviewed using the adapted Family Life Interview, and the data were analysed thematically.Results: The Chinese families put the needs of their child with developmental disabilities as their highest priority, sought to maintain family harmony, faced an unpredictable future, and experienced limited services to support their endeavours.Conclusion: The findings stress the importance of having a deep understanding of the cultural and social contexts that impact the lives of families of children with developmental disabilities prior to developing family-centred interventions to assist families in their changed life circumstances.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"271-283"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46798771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Giving guidance in the online lives of young people with intellectual disabilities: Challenges and guiding approaches in the daily practice of Dutch care staff. 为智障青年的在线生活提供指导：荷兰护理人员日常实践中的挑战和指导方法

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2022-12-11 DOI: 10.3109/13668250.2022.2149066

Rogier de Groot, Hendrien L Kaal, Wouter Ph Stol

{"title":"Giving guidance in the online lives of young people with intellectual disabilities: Challenges and guiding approaches in the daily practice of Dutch care staff.","authors":"Rogier de Groot, Hendrien L Kaal, Wouter Ph Stol","doi":"10.3109/13668250.2022.2149066","DOIUrl":"10.3109/13668250.2022.2149066","url":null,"abstract":"Background: This study reports the findings from a Dutch study, exploring care workers' challenges and approaches in guiding young people with intellectual disabilities in their online lives.Method: Using an inductive research design 33 semi-structured interviews were conducted with care workers.Results: Care workers report challenges that revolve around three themes: (1) the perceived intangibility of the online lives of clients and (2) Risk perception: feeling stuck between control and freedom. (3) Differences in guiding approach between care workers. Based on these results a conceptual model is presented that aims to show the connection between these challenges and guiding approaches.Conclusion: Perceptional processes may influence care workers' guiding approaches. This raises important questions about the implications of these guiding approaches on the level of support clients with intellectual disabilities receive and the effectuation of their rights and liberties under the 2006 United Nations (UN) Convention on the Rights of Persons with Disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"260-270"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42906570","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study. 深度智力残疾和多重残疾者自决权的实施：德尔菲研究

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-09-01 Epub Date: 2022-12-07 DOI: 10.3109/13668250.2022.2147053

S Nijs, M Zijlmans, C Schuengel, P J C M Embregts

{"title":"Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study.","authors":"S Nijs, M Zijlmans, C Schuengel, P J C M Embregts","doi":"10.3109/13668250.2022.2147053","DOIUrl":"10.3109/13668250.2022.2147053","url":null,"abstract":"Background: The high support needs of persons with profound intellectual and multiple disabilities hamper their possibilities for self-determination. To support their self-determination understanding of what this means for this group is necessary.Method: A three-round Delphi procedure with international experts was undertaken to operationalise self-determination for persons with profound intellectual and multiple disabilities. The quantitative output of Likert scales guided us in finding consensus or differences in the qualitative data. First round qualitative data were analysed thematically.Results: The analysis revealed four topics: (1) statements regarding the characteristics of the person with profound intellectual and multiple disabilities, (2) statements regarding characteristics of the social environment, (3) statements regarding the concept of self-determination, and (4) statements regarding the definition and operationalisation of concepts.Conclusion: Consensus was found on the assumption that persons with profound intellectual and multiple disabilities can live a self-determined life and on the importance of the interplay between persons with profound intellectual and multiple disabilities and the environment in order to experience self-determination.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"300-312"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46020338","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0