Journal of Intellectual & Developmental Disability最新文献_第9页

Caregivers' experiences with diagnosis of fetal alcohol spectrum disorder: A life-course approach. 护理人员对胎儿酒精谱系障碍诊断的经验：一种生命历程方法。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-03-03 DOI: 10.3109/13668250.2025.2459822

Joanna T W Chu, Nikki Singh, Jessica C McCormack, Andre D McLachlan, Janell Dymus-Kurei, Holly Wilson, Samantha Marsh, David Newcombe

{"title":"Caregivers' experiences with diagnosis of fetal alcohol spectrum disorder: A life-course approach.","authors":"Joanna T W Chu, Nikki Singh, Jessica C McCormack, Andre D McLachlan, Janell Dymus-Kurei, Holly Wilson, Samantha Marsh, David Newcombe","doi":"10.3109/13668250.2025.2459822","DOIUrl":"10.3109/13668250.2025.2459822","url":null,"abstract":"Background: Fetal alcohol spectrum disorder (FASD) is a developmental disability. A diagnosis of FASD is vital for support and wellbeing. However, receiving a diagnosis can be challenging. The aim of this research was to understand the experiences and impact of diagnosis for caregivers of those with FASD in New Zealand.Method: We conducted focus groups with caregivers and whānau (family) to explore their experiences with FASD. The transcripts were analysed using reflexive thematic analysis.Results: We identified three themes across the life course of diagnosis, barriers to diagnosis, meaning of diagnosis and life with diagnosis.Conclusion: A diagnosis is vital for caregivers of those with FASD. However, it is difficult to access a diagnosis in New Zealand due to professionals' lack of training, knowledge, and inadequate professional support. It is essential to build our professionals workforce competence and skills of FASD.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"424-433"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143542937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A systematic review of digital activity schedule use in individuals with autism spectrum disorder and intellectual disability. 自闭症谱系障碍和智力残疾患者使用数字活动时间表的系统回顾。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-05-20 DOI: 10.3109/13668250.2025.2499009

Adelaide W Hammond, Jared R Morris, Terisa Gabrielsen, Timothy B Smith, Nathaniel Medsker

{"title":"A systematic review of digital activity schedule use in individuals with autism spectrum disorder and intellectual disability.","authors":"Adelaide W Hammond, Jared R Morris, Terisa Gabrielsen, Timothy B Smith, Nathaniel Medsker","doi":"10.3109/13668250.2025.2499009","DOIUrl":"10.3109/13668250.2025.2499009","url":null,"abstract":"Background: This systematic review examined the effectiveness of digital activity schedules as an intervention for individuals with autism spectrum disorder (ASD) or intellectual disability.Method: To be included, studies had to use a digitally presented activity schedule, excluding task analyses of single activities or group visual schedules, and the intervention must involve individuals with ASD or intellectual disability as the participants.Results: Seventeen studies met the criteria, involving 58 participants, and focused on leisure, independent living, and academic skills across different age groups, with 82% reporting fidelity of implementation.Conclusion: The review found that most interventions were concentrated in early childhood, primarily aimed at teaching leisure activities, and often combined with other concurrent interventions. The settings, participant ages, and interventions varied, with 41% meeting What Works Clearinghouse quality indicators. Future research should focus on interventions implemented in secondary education and independent living skills, with more rigorous methodological standards.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"502-516"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A qualitative process evaluation of Active Support in the Dutch context: An investigation of implementation and contextual factors. 荷兰背景下积极支持的定性过程评价：对实施和背景因素的调查。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-05-16 DOI: 10.3109/13668250.2025.2503101

Aniek van Herwaarden, Nienke C Peters-Scheffer, Vaso Totsika, Robert Didden

{"title":"A qualitative process evaluation of Active Support in the Dutch context: An investigation of implementation and contextual factors.","authors":"Aniek van Herwaarden, Nienke C Peters-Scheffer, Vaso Totsika, Robert Didden","doi":"10.3109/13668250.2025.2503101","DOIUrl":"10.3109/13668250.2025.2503101","url":null,"abstract":"Background: A qualitative process evaluation was carried out to investigate implementation of Active Support in services for people with mild and moderate intellectual disability in the Netherlands, and to identify contextual factors that may contribute to variation in implementation, perceived effectiveness, and pathways to successful outcomes.Method: Qualitative semi-structured interviews were conducted with stakeholders who were involved with the Active Support implementation. Interviews with practice leaders (n = 6), Active Support trainers (n = 4), direct support staff (n = 8), and residents with mild intellectual disabilities (n = 7) were analysed through a thematic analysis.Results: Organisational and managerial preparation appeared to lead to positive Active Support training experiences, in turn leading to behavioural changes in staff, resulting in resident wellbeing. Practice leaders' coaching, staff collaboration, and additional staffing resources through volunteers and students facilitated implementation of Active Support.Conclusions: Identification of these factors enhances our understanding of the dynamic process of Active Support implementation in a Dutch context.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"483-493"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144086915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Employment experiences and challenges of parents supporting young people with intellectual disabilities in Harbin, China. 中国哈尔滨市智障青少年父母的就业经验与挑战

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-04-02 DOI: 10.3109/13668250.2025.2480536

Xu Wang, Yingjin Cui, Xianglin Fan

引用次数: 0

Views of parents and advocates on embedding inclusive practices within higher education for people with intellectual disability in the Republic of Ireland. 父母和倡导者对在爱尔兰共和国智力残疾者高等教育中纳入包容性做法的看法。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-12-01 Epub Date: 2025-05-16 DOI: 10.3109/13668250.2025.2499655

Therese Hennessy, Jennifer McMahon, Owen Doody

{"title":"Views of parents and advocates on embedding inclusive practices within higher education for people with intellectual disability in the Republic of Ireland.","authors":"Therese Hennessy, Jennifer McMahon, Owen Doody","doi":"10.3109/13668250.2025.2499655","DOIUrl":"10.3109/13668250.2025.2499655","url":null,"abstract":"Background: Higher education institutions aim to provide access to individuals with intellectual disability, yet the numbers remain small. Developing inclusive learning environments is a complex process, with parents and advocates playing vital roles in identifying barriers and solutions. This study explores their perspectives on embedding inclusive practices in higher education in the Republic of Ireland.Method: A qualitative design was employed, utilising focus group interviews and purposive sampling to gather in-depth insights.Results: Thematic analysis identified three key themes: (i) advocating for educational opportunities; (ii) preparing for inclusion; and (iii) designing inclusive education. These themes were framed using normalisation process theory constructs to guide interpretation.Conclusion: Inclusive higher education is desirable and achievable through collaboration, positive attitudes, and targeted support. Engaging parents and advocates as stakeholders is essential for overcoming challenges, fostering meaningful participation, and advancing the development of inclusive learning environments for individuals with intellectual disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"460-473"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Announcement. 公告。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-11-16 DOI: 10.3109/13668250.2025.2563426

引用次数: 0

Virtual Special Issue of JIDD and RAPIDD for ASID Conference. 亚洲开发计划署会议JIDD和RAPIDD虚拟特刊。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-11-10 DOI: 10.3109/13668250.2025.2584933

Christine Bigby Ao

引用次数: 0

Announcement. 公告。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-10-15 DOI: 10.3109/13668250.2025.2567744

Stuart Wark

引用次数: 0

Predictors of family quality of life among Ghanaian families of people with intellectual disability. 加纳智力残疾者家庭生活质量的预测因素。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-09-01 Epub Date: 2025-02-24 DOI: 10.3109/13668250.2025.2457106

Daniel Miezah, Martha-Pearl Okai, Emmanuel Eshun, Frederick Sey, Francis Britwum, Frank Quansah, Ebenezer Takyi-Wadieh

{"title":"Predictors of family quality of life among Ghanaian families of people with intellectual disability.","authors":"Daniel Miezah, Martha-Pearl Okai, Emmanuel Eshun, Frederick Sey, Francis Britwum, Frank Quansah, Ebenezer Takyi-Wadieh","doi":"10.3109/13668250.2025.2457106","DOIUrl":"10.3109/13668250.2025.2457106","url":null,"abstract":"Background: Past studies examining the associations of emotional intelligence, family support and financial stress with family quality of life (FQOL) in families of people with intellectual disability are scarce.Objective: To examine the predictors of FQOL among Ghanaian families of people with intellectual disability.Method: A sample of 176 parents (M = 41.64 years, SD = 9.21) of people with intellectual disability participated in the study.Results: Financial stress, family support, and emotional intelligence significantly predicted FQOL among Ghanaian parents of people with intellectual disability. In addition, emotional intelligence and family support significantly moderated the relationship between financial stress and FQOL.Conclusion: The noted protective roles of emotional intelligence and family support in reducing the negative influence of financial stress on FQOL among families of people with intellectual disability suggest a need to develop interventions that account for these variables.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"353-365"},"PeriodicalIF":1.2,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143494057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Family functioning as a mediator or moderator between child behavioural and emotional problems and maternal psychological distress. 家庭在儿童行为和情绪问题与母亲心理困扰之间的中介或调节作用。

IF 1.2 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-09-01 Epub Date: 2025-01-14 DOI: 10.3109/13668250.2024.2448005

Daniel Sutherland, Paul Thompson, Samantha Flynn, Richard Hastings

{"title":"Family functioning as a mediator or moderator between child behavioural and emotional problems and maternal psychological distress.","authors":"Daniel Sutherland, Paul Thompson, Samantha Flynn, Richard Hastings","doi":"10.3109/13668250.2024.2448005","DOIUrl":"10.3109/13668250.2024.2448005","url":null,"abstract":"Background: Mothers of children with intellectual disabilities are more likely to show elevated psychological distress, with child behavioural and emotional problems being a significant risk factor. Family Resilience Theory suggests that family relationships are crucial in influencing adaptation to stressors. We investigated whether family functioning mediates or moderates the relationship between child behavioural and emotional problems and subsequent maternal psychological distress.Method: We conducted mediation and moderation analyses on data from 324 mothers of children with intellectual disabilities in a United Kingdom (UK) prospective longitudinal cohort study.Results: Family functioning had a small mediating effect on the relationship between child behavioural and emotional problems and subsequent maternal psychological distress. Family functioning did not moderate the relationship between child behavioural and emotional problems and later maternal psychological distress.Conclusions: The mechanism of the effect of child behavioural and emotional problems on maternal mental health may at least partially involve changes in family functioning.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 3","pages":"291-300"},"PeriodicalIF":1.2,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144876778","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0