{"title":"Siblings of individuals with intellectual and developmental disability: Relations between involvement, personal resources, loneliness, and their adjustment","authors":"Ayelet Siman-Tov, Adi Sharabi","doi":"10.3109/13668250.2023.2298696","DOIUrl":"https://doi.org/10.3109/13668250.2023.2298696","url":null,"abstract":"The study examined relations between a number of variables regarding typically-developing adult siblings of individuals with intellectual and developmental disability: involvement in the lives of t...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"215 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139578952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
D. J. Fitzpatrick, P. McCallion, M. McCarron, E. A. Burke
{"title":"Epidemiology of constipation and its associated factors in an ageing population of people with an intellectual disability in Ireland: A cross-sectional study","authors":"D. J. Fitzpatrick, P. McCallion, M. McCarron, E. A. Burke","doi":"10.3109/13668250.2023.2271759","DOIUrl":"https://doi.org/10.3109/13668250.2023.2271759","url":null,"abstract":"Background: Constipation impacts health-related quality of life with a burden similar to other chronic conditions. This study characterises the prevalence of constipation and its associated factors...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"19 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139057735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Challenges to accessing behaviour support services for people with intellectual disability before and after the NDIS","authors":"Shoshana Dreyfus, Anne Nolan, Melanie Randle","doi":"10.3109/13668250.2023.2289682","DOIUrl":"https://doi.org/10.3109/13668250.2023.2289682","url":null,"abstract":"This study investigated the extent to which behaviour support services are accessible under Australia’s National Disability Insurance Scheme (NDIS).We conducted semi-structured interviews with fami...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"38 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139031437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Siblings of adults with intellectual disabilities in Chinese societies: A scoping review","authors":"Kangwei Xun, Christine Bigby, Tal Araten-Bergman","doi":"10.3109/13668250.2023.2271758","DOIUrl":"https://doi.org/10.3109/13668250.2023.2271758","url":null,"abstract":"Adult siblings without disabilities play important roles in relation to their brothers and sisters with intellectual disabilities. This study reviewed knowledge about adult sibling relationships in...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"34 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139035591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Esther H. Bisschops, J. Clasien de Schipper, Zina Salhi, Petri J.C.M. Embregts, Carlo Schuengel
{"title":"Communities of practice for implementing methods to reduce involuntary care in intellectual disability care: Insights from tacit and experiential knowledge exchange","authors":"Esther H. Bisschops, J. Clasien de Schipper, Zina Salhi, Petri J.C.M. Embregts, Carlo Schuengel","doi":"10.3109/13668250.2023.2275225","DOIUrl":"https://doi.org/10.3109/13668250.2023.2275225","url":null,"abstract":"Intellectual disability organisations in the Netherlands are seeking to improve clients’ quality of care by implementing methods that reduce involuntary care. This study described insights gained f...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"102 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138576174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kim J. H. M. van den Bogaard, Mireille G. D. de Beer, Noud Frielink, Petri J. C. M. Embregts
{"title":"The perspectives of agents working in positions of authority within health sector organisations regarding the involvement of experts by experience with an intellectual disability: An exploratory study","authors":"Kim J. H. M. van den Bogaard, Mireille G. D. de Beer, Noud Frielink, Petri J. C. M. Embregts","doi":"10.3109/13668250.2023.2275943","DOIUrl":"https://doi.org/10.3109/13668250.2023.2275943","url":null,"abstract":"In this study, agents working in positions of authority within health sector organisations shared their perspectives concerning both the involvement of experts by experience with intellectual disab...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"114 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138552726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An Australian online training and support program for caregivers of children and youth with Fetal Alcohol Spectrum Disorder: Families linking with families","authors":"Anita Gibbs, Julie Flanagan, Louise Gray","doi":"10.3109/13668250.2023.2271757","DOIUrl":"https://doi.org/10.3109/13668250.2023.2271757","url":null,"abstract":"Australia has limited supports to help families where Fetal Alcohol Spectrum Disorder (FASD) impacts children and young people. National Organisation for Fetal Alcohol Spectrum Disorder Australia (...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"7 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2023-11-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138525013","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
June Alexander, Sandra Gendera, Sally Robinson, Karen R. Fisher, Kellie Howe
{"title":"On-the-job training supports for people with intellectual disability employed in aged care","authors":"June Alexander, Sandra Gendera, Sally Robinson, Karen R. Fisher, Kellie Howe","doi":"10.3109/13668250.2023.2256075","DOIUrl":"https://doi.org/10.3109/13668250.2023.2256075","url":null,"abstract":"Background Traineeships have been proven to be beneficial vocational pathways for people with intellectual disability however to date the on-the-job training provision associated with traineeships has not been well documented.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"32 8","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134906582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Denise De Souza, Zelinna Pablo, Michael Shevlin, Maria Theresa von Fürstenberg, Jennifer Banks, Debashis Sarker, Alejandra Rios Urzua, Donatella Camedda, Des Aston
{"title":"Preconditions influencing the development of post-secondary training programs in universities for individuals with intellectual disabilities","authors":"Denise De Souza, Zelinna Pablo, Michael Shevlin, Maria Theresa von Fürstenberg, Jennifer Banks, Debashis Sarker, Alejandra Rios Urzua, Donatella Camedda, Des Aston","doi":"10.3109/13668250.2023.2260584","DOIUrl":"https://doi.org/10.3109/13668250.2023.2260584","url":null,"abstract":"ABSTRACTBackground Research on post-secondary training for individuals with intellectual disabilities has generally focused on programs, with little consideration of the structures and mechanisms that give rise to them. This article adopts a critical realist perspective to comparatively analyse and theorise about the contextual structures contributing to the introduction of post-secondary training programs in universities for individuals with intellectual disabilities.Method Six stages in critical realist explanatory research were followed. They include (1) description, (2) analytical resolution, (3) abduction/theoretical redescription, (4) retroduction, (5) comparison between different theories and abstractions, and (6) concretisation and contextualisation.Results Historical, socio-political, and educational policy structures and mechanisms, indicated three program typologies: program as niche, as a generalisable prototype, and as an evolutionary response to evolving conditions.Conclusions By developing explanations about preconditions, the study draws out nuanced sub-types occurring within a single university-based program, theorises on trajectories for success, and lays the groundwork for future empirical and conceptual development.KEYWORDS: Intellectual disabilityinclusive post-secondary educationhigher educationcritical realism Disclosure statementNo potential conflict of interest was reported by the author(s).Ethics approvalThe study was conducted according to the guidelines of the National Statement on Ethical Conduct in Human Research (National Statement), and approved by the Human Research Ethics Committee (HREC) at Torrens University Australia (HREC-0131).Additional informationFundingThis work was supported by 2019 Laureate Grant for Inter-Institutional Research.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"43 4","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134905529","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}