Journal of Intellectual & Developmental Disability最新文献_第6页

Views of parents and advocates on embedding inclusive practices within higher education for people with intellectual disability in the Republic of Ireland. 父母和倡导者对在爱尔兰共和国智力残疾者高等教育中纳入包容性做法的看法。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-05-16 DOI: 10.3109/13668250.2025.2499655

Therese Hennessy, Jennifer McMahon, Owen Doody

{"title":"Views of parents and advocates on embedding inclusive practices within higher education for people with intellectual disability in the Republic of Ireland.","authors":"Therese Hennessy, Jennifer McMahon, Owen Doody","doi":"10.3109/13668250.2025.2499655","DOIUrl":"https://doi.org/10.3109/13668250.2025.2499655","url":null,"abstract":"Background: Higher education institutions aim to provide access to individuals with intellectual disability, yet the numbers remain small. Developing inclusive learning environments is a complex process, with parents and advocates playing vital roles in identifying barriers and solutions. This study explores their perspectives on embedding inclusive practices in higher education in the Republic of Ireland.Method: A qualitative design was employed, utilising focus group interviews and purposive sampling to gather in-depth insights.Results: Thematic analysis identified three key themes: (i) advocating for educational opportunities; (ii) preparing for inclusion; and (iii) designing inclusive education. These themes were framed using normalisation process theory constructs to guide interpretation.Conclusion: Inclusive higher education is desirable and achievable through collaboration, positive attitudes, and targeted support. Engaging parents and advocates as stakeholders is essential for overcoming challenges, fostering meaningful participation, and advancing the development of inclusive learning environments for individuals with intellectual disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-14"},"PeriodicalIF":1.9,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Longitudinal analysis of disability acceptance and disability-related stress in people with intellectual and developmental disabilities. 智力与发育障碍者残疾接受与残疾相关压力的纵向分析。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-04-25 DOI: 10.3109/13668250.2025.2458737

Areum Han, Jungjoo Lee, Junhyoung Kim, Heeyong Choi, Hyo-Jin Ju

{"title":"Longitudinal analysis of disability acceptance and disability-related stress in people with intellectual and developmental disabilities.","authors":"Areum Han, Jungjoo Lee, Junhyoung Kim, Heeyong Choi, Hyo-Jin Ju","doi":"10.3109/13668250.2025.2458737","DOIUrl":"https://doi.org/10.3109/13668250.2025.2458737","url":null,"abstract":"Background: People with intellectual and developmental disabilities experience daily challenges leading to high stress. Disability acceptance is crucial for improving their quality of life and reducing disability-related stress. We investigated longitudinal relationships between disability acceptance and disability-related stress among Korean adults with intellectual disabilities using data from the Panel Survey of Employment for the Disabled (PSED, 2016-2022).Method: Data from 3,077 participants who self-reported intellectual disabilities were analysed using generalised estimated equation (GEE) analysis.Results: Higher disability acceptance significantly predicted reduced disability-related stress levels.Conclusion: These findings highlight the importance of interventions promoting disability acceptance. Developing evidence-based guidelines and educational programmes focused on acceptance can enhance psychological and emotional wellbeing among people with intellectual and developmental disabilities.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-8"},"PeriodicalIF":1.9,"publicationDate":"2025-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144039023","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Employment experiences and challenges of parents supporting young people with intellectual disabilities in Harbin, China. 中国哈尔滨市智障青少年父母的就业经验与挑战

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-04-02 DOI: 10.3109/13668250.2025.2480536

Xu Wang, Yingjin Cui, Xianglin Fan

引用次数: 0

A qualitative study of the emotion regulation experiences of children and adolescents with intellectual disabilities: "Because it helps my brain to calm down". 智障儿童和青少年情绪调节经历的定性研究：“因为它帮助我的大脑平静下来”。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-24 DOI: 10.3109/13668250.2025.2474197

Mary Girgis, Josephine Paparo, Ian Kneebone

{"title":"A qualitative study of the emotion regulation experiences of children and adolescents with intellectual disabilities: \"Because it helps my brain to calm down\".","authors":"Mary Girgis, Josephine Paparo, Ian Kneebone","doi":"10.3109/13668250.2025.2474197","DOIUrl":"https://doi.org/10.3109/13668250.2025.2474197","url":null,"abstract":"Background: Children and adolescents with intellectual disabilities are prone to developing emotion dysregulation difficulties. The process model of emotion regulation may offer a comprehensive structure by which to understand this phenomenon.Method: Seventeen children and adolescents with intellectual disabilities participated in semi-structured interviews on their experience of emotion regulation. Reflexive thematic analysis was used to analyse the data obtained.Results: The applicability of the process model of emotion regulation for children and adolescents with intellectual disabilities was confirmed. Additional themes and sub-themes relevant to the model were also identified. Discrepancies in emotion regulation experiences were noted between autistic and non-autistic children and adolescents with intellectual disabilities.Conclusions: The process model was found to be relevant to children and adolescents with intellectual disabilities. The identified themes and sub-themes could guide the development of outcome measures founded on the model for this population.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-12"},"PeriodicalIF":1.9,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143694399","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Personal Outcomes Scale for persons with intellectual disability in Denmark: A preliminary study on validity and reliability. 丹麦智力残疾者个人结果量表效度和信度的初步研究。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-16 DOI: 10.3109/13668250.2025.2475524

Mizuho Tatsuta, Norimune Kawai, Michio Ushiyama, Marco Lombardi

{"title":"Personal Outcomes Scale for persons with intellectual disability in Denmark: A preliminary study on validity and reliability.","authors":"Mizuho Tatsuta, Norimune Kawai, Michio Ushiyama, Marco Lombardi","doi":"10.3109/13668250.2025.2475524","DOIUrl":"10.3109/13668250.2025.2475524","url":null,"abstract":"Background: Quality-of-life assessments for persons with intellectual disability are crucial for enhancing support and services. However, culturally adapted instruments are scarce in many countries. This preliminary study explored the psychometric properties of the Personal Outcomes Scale in the Danish context, examining self-report and other-report measures.Method: Data were collected from 102 persons with intellectual disability (59 men, 43 women; Mage = 35.55 ± 13.48 years) and 72 support workers. Internal consistency, inter-rater reliability, and known group validity were examined.Results: The scale indicated adequate internal consistency overall (self-reports: α = .80; other-reports: α = .87), although domain-level patterns revealed cultural variations. Inter-rater reliability varied across domains and known groups validity analysis showed significant differences across disability levels and age groups.Conclusion: This preliminary validation suggests welfare state structures influence QOL measurement, highlighting areas requiring cultural adaptation. Further validation is warranted.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.9,"publicationDate":"2025-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Fostering self-advocacy development in service-based self-advocacy groups. 促进以服务为基础的自我倡导团体的自我倡导发展。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-15 DOI: 10.3109/13668250.2025.2474199

John Mc Carthy, Valerie McTaggart

{"title":"Fostering self-advocacy development in service-based self-advocacy groups.","authors":"John Mc Carthy, Valerie McTaggart","doi":"10.3109/13668250.2025.2474199","DOIUrl":"https://doi.org/10.3109/13668250.2025.2474199","url":null,"abstract":"Background: While the importance of self-advocacy for those with an intellectual disability is well recognised, little is known about how organisations can support self-advocacy development by implementing self-advocacy groups.Method: This inclusive research study collected empirical data from fourteen self-advocates, two managers, three group supporters, and one advocacy coordinator, all experienced and involved in an established not-for-profit service-based self-advocacy group.Results: Our findings identified several benefits of being involved in a self-advocacy group, including confidence-building, belonging, social inclusion, empowerment and affecting positive social change for the wider community. To ensure the success of self-advocacy groups, there must be \"A Space and Place\", \"Meaningful Inclusion\", and \"Learning to Lead Opportunities\".Conclusion: Despite the positive benefits associated with self-advocacy, challenges remain. Society's expectations about self-advocacy are often not translated into practice, inclusion can be superficial, and a balance between independence and assistance is difficult to achieve where support is required.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.9,"publicationDate":"2025-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143634759","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Caregivers' experiences with diagnosis of fetal alcohol spectrum disorder: A life-course approach. 护理人员对胎儿酒精谱系障碍诊断的经验：一种生命历程方法。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-03 DOI: 10.3109/13668250.2025.2459822

Joanna T W Chu, Nikki Singh, Jessica C McCormack, Andre D McLachlan, Janell Dymus-Kurei, Holly Wilson, Samantha Marsh, David Newcombe

{"title":"Caregivers' experiences with diagnosis of fetal alcohol spectrum disorder: A life-course approach.","authors":"Joanna T W Chu, Nikki Singh, Jessica C McCormack, Andre D McLachlan, Janell Dymus-Kurei, Holly Wilson, Samantha Marsh, David Newcombe","doi":"10.3109/13668250.2025.2459822","DOIUrl":"10.3109/13668250.2025.2459822","url":null,"abstract":"Background: Fetal alcohol spectrum disorder (FASD) is a developmental disability. A diagnosis of FASD is vital for support and wellbeing. However, receiving a diagnosis can be challenging. The aim of this research was to understand the experiences and impact of diagnosis for caregivers of those with FASD in New Zealand.Method: We conducted focus groups with caregivers and whānau (family) to explore their experiences with FASD. The transcripts were analysed using reflexive thematic analysis.Results: We identified three themes across the life course of diagnosis, barriers to diagnosis, meaning of diagnosis and life with diagnosis.Conclusion: A diagnosis is vital for caregivers of those with FASD. However, it is difficult to access a diagnosis in New Zealand due to professionals' lack of training, knowledge, and inadequate professional support. It is essential to build our professionals workforce competence and skills of FASD.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-10"},"PeriodicalIF":1.9,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143542937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Executive function abilities in Mexican people with Down syndrome during the COVID-19 pandemic. COVID-19大流行期间墨西哥唐氏综合征患者的执行功能能力

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-01 Epub Date: 2024-10-09 DOI: 10.3109/13668250.2024.2410846

Julia B Barrón-Martínez, Judith Salvador-Cruz

{"title":"Executive function abilities in Mexican people with Down syndrome during the COVID-19 pandemic.","authors":"Julia B Barrón-Martínez, Judith Salvador-Cruz","doi":"10.3109/13668250.2024.2410846","DOIUrl":"10.3109/13668250.2024.2410846","url":null,"abstract":"Background: The aim was to explore the executive function profile of a group of Mexican people with Down syndrome (DS) aged 12-30 years during the COVID-19 pandemic.Aim: To analyse the relationships between mental, chronological age and eight domains of executive function.Method: Participants were 42 people with DS with a chronological age (CA) of 12-30 years and a mean nonverbal mental age (MA) of 7 years. MA was evaluated with Raven's Progressive Matrices test and executive function with the Behaviour Rating Inventory of Executive Function (BRIEF-2); both were administered online.Results: The Monitor, Emotional Control, Initiative, and Organisation of Materials scales showed strengths, while Working Memory, Plan/Organise, Shift, and Inhibit scales showed weaknesses. CA correlated negatively with seven of the eight executive domains. Chronologically older participants showed less impairment in skills such as inhibition, emotional control, working memory, and monitoring. Nonverbal MA correlated negatively with two domains: emotional control and monitoring.Conclusion: Participants' executive profile during the COVID-19 pandemic was consistent with that reported in studies prior to the pandemic.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 1","pages":"116-126"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Peer-led self-advocacy for people with intellectual disability through the lens of "freedom through encounter". 通过“相遇自由”的视角，为智障人士进行同伴主导的自我倡导。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-01 Epub Date: 2024-09-26 DOI: 10.3109/13668250.2024.2402917

Michelle Bellon, Sandra Gendera, Sally Robinson, Tim Cahalan, Karen R Fisher

{"title":"Peer-led self-advocacy for people with intellectual disability through the lens of \"freedom through encounter\".","authors":"Michelle Bellon, Sandra Gendera, Sally Robinson, Tim Cahalan, Karen R Fisher","doi":"10.3109/13668250.2024.2402917","DOIUrl":"10.3109/13668250.2024.2402917","url":null,"abstract":"Background: A peer-led self-advocacy group, Our Voice SA, is used as a case study to explore how the social engagement of people with intellectual disability contributed to their self-advocacy about things that are important to them.Method: Secondary analyses of data (interviews, observations and program data) were thematically analysed using Clifford Simplican's analytical lens of \"freedom through encounter\".Results: Social engagement encounters in peer-led self-advocacy led to individual and group agency for freedom. The findings explore becoming known, seen, and heard; freedom to express what matters; and unfreedom: silencing self-advocacy.Conclusion: A \"freedom through encounter\" lens is a useful perspective on how people navigate social inclusion to participate and challenge expectations. Allies were critical for overcoming structural, interdependent barriers, and supporting capacity for leadership and rights awareness that helped elevate the confidence and skills of people with intellectual disability to speak up.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 1","pages":"1-9"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Knowledge, attitudes and practices towards fetal alcohol spectrum disorder among healthcare workers in New Zealand. 新西兰保健工作者对胎儿酒精谱系障碍的知识、态度和做法。

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2025-03-01 Epub Date: 2024-09-25 DOI: 10.3109/13668250.2024.2404167

Joanna Ting Wai Chu, Holly Wilson, Sophia Pi, Jessica C McCormack, Samantha Marsh, David Newcombe, Chris Bullen

{"title":"Knowledge, attitudes and practices towards fetal alcohol spectrum disorder among healthcare workers in New Zealand.","authors":"Joanna Ting Wai Chu, Holly Wilson, Sophia Pi, Jessica C McCormack, Samantha Marsh, David Newcombe, Chris Bullen","doi":"10.3109/13668250.2024.2404167","DOIUrl":"10.3109/13668250.2024.2404167","url":null,"abstract":"Background: Fetal alcohol spectrum disorder (FASD) is a highly prevalent neurodevelopmental disability caused by prenatal alcohol exposure (PAE). Healthcare professionals (HCP) are key in prevention, diagnosis, and supporting individuals with FASD. This study explored the FASD knowledge, attitudes, and practices among HCP in Aotearoa, New Zealand (NZ).Methods: We conducted an online survey of HCP working in NZ. The survey measured knowledge of FASD, beliefs and attitudes about FASD, experiences and practices with FASD and future training.Results: Of the 96 participants, more than 90% self-reported a good or very good understanding of FASD, and around half had a patient with FASD. However, less than half felt prepared to support someone with FASD. Participants identified lack of professional training, services, and funding as barriers to support individuals with FASD.Conclusion: We identified a need to provide training and promote awareness and recognition for HCP to support individuals with FASD.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 1","pages":"10-20"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434363","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0