Merry Armstrong, I. Sharaievska, B. Crowe, R. Gagnon
{"title":"Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators","authors":"Merry Armstrong, I. Sharaievska, B. Crowe, R. Gagnon","doi":"10.3109/13668250.2022.2104449","DOIUrl":"https://doi.org/10.3109/13668250.2022.2104449","url":null,"abstract":"ABSTRACT Background Individuals with developmental disabilities have specific physical and psychosocial needs that can require extra support to participate fully in and enjoy many benefits of recreation activities. Unfortunately, little is known about individuals with developmental disabilities' experiences in outdoor recreation. The purpose of this study was to explore adults with developmental disabilities’ perceived benefits of outdoor recreation, and the constraints or facilitators that affected their participation. Method Qualitative, semi-structured interviews were conducted with seven adults with developmental disabilities. Interviews were analysed using open, axial, and selective coding techniques. Results Results revealed three themes: (a) benefits of; (b) constraints to; and (c) facilitators of outdoor recreation. Benefits of outdoor recreation reported by study participants included their experiencing satisfaction, mental reprieve, empowerment, enlightenment, social connectedness, and thrill. Participants also shared intrapersonal, interpersonal, and structural constraints and facilitators related to their outdoor recreation participation. Conclusions Practical implications and future research recommendations are discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43702314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Samuel Quinn, S. Rhynas, S. Gowland, L. Cameron, Nicola Braid, A. Holloway, S. O'Connor
{"title":"Evaluating a visual communications tool to explore risk and safety with nurses and patients within an intellectual disability forensic service: A pilot study","authors":"Samuel Quinn, S. Rhynas, S. Gowland, L. Cameron, Nicola Braid, A. Holloway, S. O'Connor","doi":"10.3109/13668250.2022.2106697","DOIUrl":"https://doi.org/10.3109/13668250.2022.2106697","url":null,"abstract":"ABSTRACT Background Issues of risk and safety can be challenging to discuss with forensic patients with an intellectual disability. Talking Mats is a visual communication tool that facilitates therapeutic conversations. Method A pilot study, adopting an ethnographic approach, was used to evaluate Talking Mats. Interviews and video observations were conducted with nurses and forensic patients with an intellectual disability from two forensic wards in Scotland. Results Exploratory evidence suggests that Talking Mats offers a non-biased platform to discuss potentially emotive issues around risk, safety, and wellbeing. Pre-existing notions of Talking Mats, staff availability, and the context of COVID-19 acted as barriers to adopting the visual communications tool. Conclusion There is value in further research regarding communication tools to facilitate input on care planning and risk management for patients with an intellectual disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46593881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
H. Su, Hailing Gong, G. Llewellyn, Jinxia Liu, Yali Yi, Yaqian Gao
{"title":"The adaptation experience of families with children with developmental disabilities in Mainland China","authors":"H. Su, Hailing Gong, G. Llewellyn, Jinxia Liu, Yali Yi, Yaqian Gao","doi":"10.3109/13668250.2022.2098937","DOIUrl":"https://doi.org/10.3109/13668250.2022.2098937","url":null,"abstract":"ABSTRACT Background Families of children with developmental disabilities face extraordinary changes in their life circumstances and needs that require adaptations to create sustainable and meaningful daily routines. The present study explored the adaptation of Chinese families of children with developmental disabilities from an ecocultural theoretical perspective. Method A total of 34 families of children with developmental disabilities were interviewed using the adapted Family Life Interview, and the data were analysed thematically. Results The Chinese families put the needs of their child with developmental disabilities as their highest priority, sought to maintain family harmony, faced an unpredictable future, and experienced limited services to support their endeavours. Conclusion The findings stress the importance of having a deep understanding of the cultural and social contexts that impact the lives of families of children with developmental disabilities prior to developing family-centred interventions to assist families in their changed life circumstances.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46798771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
L. Nicholson, Sudhakar Sharma, S. Andrews, Alistair Farquharson, H. Welsh
{"title":"A survey on the use of remote consultation for people with intellectual disability: The experience of community intellectual disability teams","authors":"L. Nicholson, Sudhakar Sharma, S. Andrews, Alistair Farquharson, H. Welsh","doi":"10.3109/13668250.2022.2104450","DOIUrl":"https://doi.org/10.3109/13668250.2022.2104450","url":null,"abstract":"ABSTRACT Background Since COVID-19, remote consultation (by telephone and video) has become widespread. This study investigated the experience of using remote consultation in Specialist Intellectual Disability Community services. Method A total of 126 health staff working across eight Specialist Intellectual Disability Community teams in the NHS Health Board of Greater Glasgow and Clyde were asked to complete a short Likert-scale survey about remote consultation. Results There were 61 (48%) respondents from a range of disciplines. Overall, respondents were positive about remote consultation but found it was often inadequate to complete a full patient assessment. Moving forwards, respondents wanted around 60% of all consultations to remain face-to-face. It was significantly more difficult to engage and communicate with patients with more severe levels of disability. Conclusions Remote consultation has been successful, but there is still a need for face-to-face assessment in intellectual disability services, particularly when working with people with more severe levels of disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48875112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Understanding parental physical activity behaviours in parents of children with disabilities: An expanded theory of planned behaviour approach","authors":"Byungmo Ku, J. Haegele","doi":"10.3109/13668250.2022.2104448","DOIUrl":"https://doi.org/10.3109/13668250.2022.2104448","url":null,"abstract":"ABSTRACT\u0000 Background The purpose of the current study was to examine association between physical activity (PA) of parents of children with developmental disabilities and theory of planned behaviour-related variables. Methods A total of 95 participants completed questionnaires that measured the following variables: PA behaviours, action planning, intention, affective attitude, instrumental attitude. A path analysis was used to examine the associations between the variables. Results Among participants, 40% did not meet the PA guideline. PA affective attitude was positively associated with PA intention (β = 0.30, p = .009) and PA action planning (β = .22, p = .03). In turn, both PA intention and PA action planning were associated with moderate-to-vigorous PA in parents of children with developmental disabilities (β = 0.23, p = .008; β = 0.52, p < .001, respectively). Conclusion Physical activity in parents of children with developmental disabilities were appropriately explained by theory of planned behaviour-related variables.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42730509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
I. Bakanienė, Martyna Dominiak-Świgoń, Miguel Augusto Meneses da Silva Santos, D. Pantazatos, M. Grammatikou, Marco Montanari, Irene Virgili, G. Galeoto, P. Flocco, L. Bernabei, A. Prasauskienė
{"title":"Challenges of online learning for children with special educational needs and disabilities during the COVID-19 pandemic: A scoping review","authors":"I. Bakanienė, Martyna Dominiak-Świgoń, Miguel Augusto Meneses da Silva Santos, D. Pantazatos, M. Grammatikou, Marco Montanari, Irene Virgili, G. Galeoto, P. Flocco, L. Bernabei, A. Prasauskienė","doi":"10.3109/13668250.2022.2096956","DOIUrl":"https://doi.org/10.3109/13668250.2022.2096956","url":null,"abstract":"ABSTRACT Background The COVID-19 pandemic has affected education at all levels in various ways. This paper provides a review of the literature on the challenges of online learning for children with special educational needs and disabilities (SEND). Method In total, 17 studies from nine countries were analysed. The challenges of online learning for children with SEND reported by teachers and parents and the strategies applied to overcome the challenges were identified. Results The challenges of online learning were the need of parental support, routine change, inequities of resources and access to technology, lack of accommodations, and social isolation. There was a considerable lack of interventions aimed at promoting the educational outcomes of children with SEND. Conclusions The findings emphasise the importance of parent-teacher collaboration and communication. Suggestions for strategies to address challenges as well as for further research are also discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46122303","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elisa Kaltenbach, Ting Xiong, D. Thomson, P. McGrath
{"title":"Challenges of parents with children with intellectual and neurodevelopmental disorders during COVID-19: Experiences and their impact on mental health","authors":"Elisa Kaltenbach, Ting Xiong, D. Thomson, P. McGrath","doi":"10.3109/13668250.2022.2096955","DOIUrl":"https://doi.org/10.3109/13668250.2022.2096955","url":null,"abstract":"ABSTRACT Background Parents of children with intellectual and neurodevelopmental disorders are a highly burdened group that faces additional challenges during the COVID-19 pandemic. Methods In this study, parents of children with intellectual and neurodevelopmental disorders (N = 600) living in Canada participated in a cross-sectional online survey. Results More than 96% of the parents reported facing additional challenges due to the pandemic. COVID-19-related stressors correlated with poorer mental and physical health. Parents who reported a higher amount of COVID-19-related stressors also reported more post-traumatic stress disorder (PTSD) symptoms. Discussion Resuming and implementing new services for children with intellectual and neurodevelopmental disorders and their parents will be key in alleviating the challenges for those parents.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47533081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Japanese version of the Personal Outcomes Scale for persons with intellectual disability: Validity and reliability","authors":"M. Tatsuta, N. Kawai, M. Ushiyama, M. Lombardi","doi":"10.3109/13668250.2022.2086109","DOIUrl":"https://doi.org/10.3109/13668250.2022.2086109","url":null,"abstract":"ABSTRACT Background The Personal Outcomes Scale is a measurement tool to examine quality of life among persons with intellectual disability. This paper addressed the validity and reliability of the Japanese version of the scale using both self-reports and reports of others. Method Data were collected from 128 people with intellectual disability (90 men and 38 women; M age = 37.19 ± 11.90 (range = 19–69) years) and 27 support workers. Reliability was examined by Cronbach's alpha coefficients, inter-respondent reliability coefficients, and test-retest reliability. Validity was examined by construct validity and criteria-related validity. Results Self- and other-reported versions showed adequate internal consistency (α = 0.79); however, some domains had relatively low internal consistency. Validity tests showed weak to moderate correlations between the total score and the domain scores in both versions. Conclusions The scale is reliable overall; however, cultural aspects should be considered to bolster its reliability for practical application.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44050753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M. C. Gugliandolo, F. Liga, R. Larcan, F. Cuzzocrea
{"title":"Parents of children with developmental disorders: Family hardiness and resilience","authors":"M. C. Gugliandolo, F. Liga, R. Larcan, F. Cuzzocrea","doi":"10.3109/13668250.2022.2079056","DOIUrl":"https://doi.org/10.3109/13668250.2022.2079056","url":null,"abstract":"ABSTRACT Background Raising a child with developmental disorder is often related to higher stress levels for both mothers and fathers. The aim of the present study was to investigate relationships between resilience, family hardiness, life satisfaction and parental stress among parents of children with and without disabilities. Method Twenty-eight pairs of parents of a child with Autism Spectrum Disorder, 15 of a child with Down Syndrome and 25 of a child without disability took part in the study. All parents completed four questionnaires independently. Results Significant differences between groups emerged in parental resilience, stress, and life satisfaction. Correlational analyses showed that parental hardiness and resilience were negatively related to parental stress through all the three groups. Conclusions These findings point to increased evidence that the presence of a disability may not directly affect the sense of family hardiness. Practical implications were discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-06-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49017508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Interview skills associated with employment recommendations for individuals with intellectual and developmental disabilities","authors":"Kagendo Mutua, L. Barnard‐Brak, A. Williamson","doi":"10.3109/13668250.2022.2078799","DOIUrl":"https://doi.org/10.3109/13668250.2022.2078799","url":null,"abstract":"ABSTRACT Background Mock or practice interviews have become a typical tool for transition programs for individuals with intellectual and developmental disabilities. Method We examined what interview skills were most associated with subsequent employment for individuals intellectual and developmental disabilities via practice interviews. The likelihood of employment was measured as a function of whether the interviewer responded that they would hire the individual. Results Results indicate that the following job interview skills were considered most important were: sits still and straight; understandable speech; good posture; appropriate voice; and appropriate handshake. Conclusions As these potential employers had hired individuals with intellectual and developmental disabilities, we suggest that their feedback would be particularly relevant.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47872736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}