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Journal of Intellectual & Developmental Disability最新文献

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Active support as good support in group homes? A longitudinal interview study with service users. 积极的支持和良好的支持在集体之家吗？服务使用者的纵向访谈研究。
IF 1.9 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2025-03-01 Epub Date: 2024-09-28 DOI: 10.3109/13668250.2024.2400097
Jenny Aspling, Veronica Svärd, Magnus Tideman
{"title":"Active support as good support in group homes? A longitudinal interview study with service users.","authors":"Jenny Aspling, Veronica Svärd, Magnus Tideman","doi":"10.3109/13668250.2024.2400097","DOIUrl":"10.3109/13668250.2024.2400097","url":null,"abstract":"<p><strong>Background: </strong>Support from staff plays an important role in quality of life for people with intellectual disability. This study focuses on service users' views of Active Support as good support and whether Active Support increases the quality of everyday support in group homes.</p><p><strong>Method: </strong>Nine service users were interviewed at baseline and at follow-up one year after staff received Active Support training. Thematic analyses were used to develop themes.</p><p><strong>Results: </strong>Three main themes were created: (1) Home is more than just a place, it is a feeling; (2) Good care is caring with accessible communication; and (3) Time is precious. Participants were more satisfied with most of the support at follow-up, particularly choice-making, control in everyday life, relationships, and emotional support.</p><p><strong>Conclusions: </strong>Active Support corresponds well with service users' perceptions of good support. In future studies of Active Support service users' voices should be a part of the follow-up.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 1","pages":"33-44"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Tacit knowledge in medical consultations for patients with profound intellectual and multiple disabilities: An exploratory qualitative study. 隐性知识在深度智力和多重残疾患者医疗咨询中的应用：一项探索性质的研究。
IF 1.9 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2025-03-01 Epub Date: 2024-09-25 DOI: 10.3109/13668250.2024.2402380
Ilse Harmina Zaal-Schuller, K Kruithof, M Hoogsteyns, A M Nieuwenhuijse, D L Willems, S A Huisman
{"title":"Tacit knowledge in medical consultations for patients with profound intellectual and multiple disabilities: An exploratory qualitative study.","authors":"Ilse Harmina Zaal-Schuller, K Kruithof, M Hoogsteyns, A M Nieuwenhuijse, D L Willems, S A Huisman","doi":"10.3109/13668250.2024.2402380","DOIUrl":"10.3109/13668250.2024.2402380","url":null,"abstract":"<p><strong>Background: </strong>Patients with profound intellectual and multiple disabilities (PIMD) cannot clearly express themselves. Therefore, tacit knowledge (TK) is crucial in caring for individuals with PIMD, while it possibly also plays a significant role in medical consultations.</p><p><strong>Method: </strong>A qualitative inductive, thematic analysis was performed of 14 audio-taped consultations with intellectual disability physicians for patients with PIMD to explore how TK is represented and considered between parents and physicians.</p><p><strong>Results: </strong>Parents conveyed their TK by sensing and perceptions of changes of their child's behaviour. Our findings demonstrate that parents of individuals with PIMD primarily shared TK concerning pain, sleeping issues, and epilepsy. Physicians recognised and incorporated parents' TK, highlighting its significance in patient care.</p><p><strong>Conclusion: </strong>This study underscores the important role of TK in consultations for patients with PIMD. Parents' TK help to shape medical-decisions, urging physicians to validate parents' TK while relating this TK to other types of medical knowledge.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"50 1","pages":"106-115"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parents' perceptions of outcomes of a college program for students with intellectual disabilities: Beyond the classroom. 家长对智障学生大学项目成果的看法：课堂之外。
IF 1.9 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2025-02-27 DOI: 10.3109/13668250.2025.2459806
Gavin W Watts, Mariya T Davis, Eric J López, Megan A Reynolds
{"title":"Parents' perceptions of outcomes of a college program for students with intellectual disabilities: Beyond the classroom.","authors":"Gavin W Watts, Mariya T Davis, Eric J López, Megan A Reynolds","doi":"10.3109/13668250.2025.2459806","DOIUrl":"https://doi.org/10.3109/13668250.2025.2459806","url":null,"abstract":"<p><strong>Background: </strong>As the number of postsecondary education programs offering opportunities for individuals with intellectual disabilities to attend college increases, so does the investigation into the outcomes of these programs. Gaps in the literature are apparent, especially related to programming at Minority Serving Institutions (MSI).</p><p><strong>Method: </strong>The study explored parents' observations of their children's outcomes outside of the classroom (e.g., at home, in the community, related to their participation in an inclusive university program. Fourteen parents of currently enrolled students participated in in-depth exit interviews. Applied thematic analysis was conducted on the qualitative data.</p><p><strong>Results: </strong>Participant responses revealed three major themes: (i) developments at home: generalised skills and behaviours; (ii) enhanced social integration and student self-image; and (iii) developments in parents' perceptions of disability.</p><p><strong>Conclusion: </strong>Implications for practice and more effective programming are discussed in support of students' increased independence and participation as active members of their communities.</p>","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":" ","pages":"1-13"},"PeriodicalIF":1.9,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143517248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
2023 JIDD Awards Announcement. 2023 JIDD奖项公告。
IF 1.9 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2024-12-01 Epub Date: 2024-12-09 DOI: 10.3109/13668250.2024.2426495
{"title":"2023 JIDD Awards Announcement.","authors":"","doi":"10.3109/13668250.2024.2426495","DOIUrl":"https://doi.org/10.3109/13668250.2024.2426495","url":null,"abstract":"","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"49 4","pages":"377"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015918","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family members use superficial justice information to evaluate performance of sheltered workshops: A warning about “cognitive shortcuts” 家庭成员利用肤浅的司法信息来评估庇护工场的表现：关于 "认知捷径 "的警告
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2024-08-27 DOI: 10.3109/13668250.2024.2389190
Alice Maniezki, Vicente Martínez-Tur, Yolanda Estreder, Carolina Moliner, José Ramos
{"title":"Family members use superficial justice information to evaluate performance of sheltered workshops: A warning about “cognitive shortcuts”","authors":"Alice Maniezki, Vicente Martínez-Tur, Yolanda Estreder, Carolina Moliner, José Ramos","doi":"10.3109/13668250.2024.2389190","DOIUrl":"https://doi.org/10.3109/13668250.2024.2389190","url":null,"abstract":"A growing number of services are focused on people with intellectual disabilities. Our study investigates interpersonal justice (interpersonal treatment families receive from service professionals)...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"15 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142194333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The uniquely relational role of nurses during the closure of large residential institutions for people with intellectual disability in Australia: A qualitative study 澳大利亚大型智障人士寄宿机构关闭期间护士的独特关系角色：定性研究
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2024-08-26 DOI: 10.3109/13668250.2024.2394194
Peter Lewis, Kathryn M. Weston
{"title":"The uniquely relational role of nurses during the closure of large residential institutions for people with intellectual disability in Australia: A qualitative study","authors":"Peter Lewis, Kathryn M. Weston","doi":"10.3109/13668250.2024.2394194","DOIUrl":"https://doi.org/10.3109/13668250.2024.2394194","url":null,"abstract":"After decades of planning, nurses played a pivotal role in achieving the closure of large residential institutions for people with intellectual disability by 2018. This paper describes the experien...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"27 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142225045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relatives’ experiences of quality of healthcare services for adults with profound intellectual and multiple disabilities in Sweden 瑞典严重智力和多重残疾成人亲属对医疗服务质量的体验
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2024-07-18 DOI: 10.3109/13668250.2024.2377270
Marie Matérne, Marie Holmefur
{"title":"Relatives’ experiences of quality of healthcare services for adults with profound intellectual and multiple disabilities in Sweden","authors":"Marie Matérne, Marie Holmefur","doi":"10.3109/13668250.2024.2377270","DOIUrl":"https://doi.org/10.3109/13668250.2024.2377270","url":null,"abstract":"There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limi...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"8 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-07-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141738726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Interdisciplinarity and self-injury: Toward an inclusive research and treatment paradigm 跨学科与自我伤害：迈向包容性研究和治疗范式
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2024-07-02 DOI: 10.3109/13668250.2024.2370564
Caroline L. Roberts, Madilyn Larsh, Frank Symons
{"title":"Interdisciplinarity and self-injury: Toward an inclusive research and treatment paradigm","authors":"Caroline L. Roberts, Madilyn Larsh, Frank Symons","doi":"10.3109/13668250.2024.2370564","DOIUrl":"https://doi.org/10.3109/13668250.2024.2370564","url":null,"abstract":"Historically, the research and treatment of self-injury has been disciplinarily siloed. As a result, the behaviour is understood and treated differently among individuals with and without intellect...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"37 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141612276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reducing the risks of maltreatment of older adults with intellectual and developmental disabilities: Development of a research-based intervention 降低智障和发育障碍老年人遭受虐待的风险：开发基于研究的干预措施
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2024-06-28 DOI: 10.3109/13668250.2024.2366283
Mireille Tabin, Ishita Khemka, Linda Hickson
{"title":"Reducing the risks of maltreatment of older adults with intellectual and developmental disabilities: Development of a research-based intervention","authors":"Mireille Tabin, Ishita Khemka, Linda Hickson","doi":"10.3109/13668250.2024.2366283","DOIUrl":"https://doi.org/10.3109/13668250.2024.2366283","url":null,"abstract":"Although older adults with intellectual and/or developmental disabilities face high risks of maltreatment, there are few interventions available to reduce these risks. This study describes the deve...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"67 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141547516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
My plan for a good life, right to the end: An accessible approach to advance care planning 我的美好人生计划，直至生命终结：无障碍的预先护理规划方法
IF 1.3 4区 医学
Journal of Intellectual & Developmental Disability Pub Date : 2024-06-17 DOI: 10.3109/13668250.2024.2362979
Nic McKenzie, Brigit Mirfin-Veitch, Henrietta Trip, Jennifer Conder
{"title":"My plan for a good life, right to the end: An accessible approach to advance care planning","authors":"Nic McKenzie, Brigit Mirfin-Veitch, Henrietta Trip, Jennifer Conder","doi":"10.3109/13668250.2024.2362979","DOIUrl":"https://doi.org/10.3109/13668250.2024.2362979","url":null,"abstract":"People with intellectual disabilities have traditionally been excluded from Advance Care (AC) planning. This study aimed to improve access to and the quality of AC planning for this community.A Par...","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"195 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2024-06-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141508772","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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