Journal of Intellectual & Developmental Disability最新文献_第7页

Evaluating the impact of a virtual educational intervention on medical students' knowledge and attitudes towards patients with intellectual and developmental disabilities. 评估虚拟教育干预对医学生对智力和发育障碍患者的知识和态度的影响

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-03-01 Epub Date: 2022-09-23 DOI: 10.3109/13668250.2022.2112511

I Berger, S Weissman, H Raheel, A Bagga, R Wright, F Leung, A Loh, C Lee-Jones, B Isaacs, J Vogt

{"title":"Evaluating the impact of a virtual educational intervention on medical students' knowledge and attitudes towards patients with intellectual and developmental disabilities.","authors":"I Berger, S Weissman, H Raheel, A Bagga, R Wright, F Leung, A Loh, C Lee-Jones, B Isaacs, J Vogt","doi":"10.3109/13668250.2022.2112511","DOIUrl":"10.3109/13668250.2022.2112511","url":null,"abstract":"Background: Research suggests physicians may harbour paternalistic attitudes towards people with intellectual and developmental disabilities and lack the knowledge and skills to work with them. This study examined the impact of a brief intellectual and developmental disability curriculum intervention on these outcomes.Methods: First-year medical students completed a pre-post questionnaire on attitudes and knowledge of intellectual and developmental disabilities in conjunction with a curriculum (a virtual tour of a developmental service site; panel discussions; tutorial presentations). Paired data were available for 33 students.Results: Students' confidence communicating with the person increased (pre-mean = 5.7/10, SD = 1.9; post-mean = 6.3/10, SD = 1.7; p < 0.05) as did their feeling of competence taking a history (pre-mean = 4.2/10, SD = 1.9; post-mean = 5.5, SD = 1.7; p < 0.0001). Their inclination toward sheltering people with intellectual and developmental disabilities also increased (pre-mean = 2.8/6, SD = 0.7; post-mean = 3.2/6, SD = 0.7; p < 0.005).Conclusion: This intervention may contribute to student confidence and their sense of competence in interacting with people with intellectual and developmental disabilities but did not suggest they adopted the philosophy of community inclusion.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"91-99"},"PeriodicalIF":1.9,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44668614","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Loneliness and how to counter it: People with intellectual disability share their experiences and ideas. 孤独和如何应对：智障人士分享他们的经历和想法

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-03-01 Epub Date: 2022-09-28 DOI: 10.3109/13668250.2022.2112510

Sally Robinson, Jan Idle

{"title":"Loneliness and how to counter it: People with intellectual disability share their experiences and ideas.","authors":"Sally Robinson, Jan Idle","doi":"10.3109/13668250.2022.2112510","DOIUrl":"10.3109/13668250.2022.2112510","url":null,"abstract":"Background: People with intellectual disability are at higher risk of experiencing social isolation in their everyday lives, because of exclusionary practices, discriminatory social policies and structural exclusion. However, less is known about what people with intellectual disability themselves think about loneliness in their lives and what might alleviate it.Method: In this inclusive research study, 17 people with intellectual disability participated in focus groups or individual interviews and talked about what makes them feel lonely and what helps them to feel included.Results: Our findings indicate that the domains of interaction, participation, personal security and attitudes are areas of strong influence on people's experience of inclusion and exclusion and hold opportunities for positive change.Conclusions: Change at systems and community levels is needed to ensure people with intellectual disability are included, have access to disability-ready places that respect their human rights, listen, recognise and include their strategies to alleviate loneliness.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"58-70"},"PeriodicalIF":1.9,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48296984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Japanese version of the Personal Outcomes Scale for persons with intellectual disability: Validity and reliability. 智障人士个人成果量表的日文版：有效性和可靠性

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-03-01 Epub Date: 2022-07-06 DOI: 10.3109/13668250.2022.2086109

Mizuho Tatsuta, Norimune Kawai, Michio Ushiyama, Marco Lombardi

{"title":"Japanese version of the Personal Outcomes Scale for persons with intellectual disability: Validity and reliability.","authors":"Mizuho Tatsuta, Norimune Kawai, Michio Ushiyama, Marco Lombardi","doi":"10.3109/13668250.2022.2086109","DOIUrl":"10.3109/13668250.2022.2086109","url":null,"abstract":"Background: The Personal Outcomes Scale is a measurement tool to examine quality of life among persons with intellectual disability. This paper addressed the validity and reliability of the Japanese version of the scale using both self-reports and reports of others.Method: Data were collected from 128 people with intellectual disability (90 men and 38 women; Mage = 37.19 ± 11.90 (range = 19-69) years) and 27 support workers. Reliability was examined by Cronbach's alpha coefficients, inter-respondent reliability coefficients, and test-retest reliability. Validity was examined by construct validity and criteria-related validity.Results: Self- and other-reported versions showed adequate internal consistency (α = 0.79); however, some domains had relatively low internal consistency. Validity tests showed weak to moderate correlations between the total score and the domain scores in both versions.Conclusions: The scale is reliable overall; however, cultural aspects should be considered to bolster its reliability for practical application.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"23-39"},"PeriodicalIF":1.9,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44050753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Family relationships in intellectual disability: Parents' perceptions as elicited by family photographs. 智力残疾的家庭关系：家庭照片引发的父母认知

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-03-01 Epub Date: 2022-04-04 DOI: 10.3109/13668250.2022.2052625

Raquel Alveirinho Correia, Maria João Seabra-Santos

引用次数: 0

Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators. 发育障碍者的户外娱乐体验：好处、制约因素和促进因素

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-03-01 Epub Date: 2022-09-08 DOI: 10.3109/13668250.2022.2104449

Merry Armstrong, I Sharaievska, B M Crowe, R J Gagnon

{"title":"Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators.","authors":"Merry Armstrong, I Sharaievska, B M Crowe, R J Gagnon","doi":"10.3109/13668250.2022.2104449","DOIUrl":"10.3109/13668250.2022.2104449","url":null,"abstract":"Background: Individuals with developmental disabilities have specific physical and psychosocial needs that can require extra support to participate fully in and enjoy many benefits of recreation activities. Unfortunately, little is known about individuals with developmental disabilities' experiences in outdoor recreation. The purpose of this study was to explore adults with developmental disabilities' perceived benefits of outdoor recreation, and the constraints or facilitators that affected their participation.Method: Qualitative, semi-structured interviews were conducted with seven adults with developmental disabilities. Interviews were analysed using open, axial, and selective coding techniques.Results: Results revealed three themes: (a) benefits of; (b) constraints to; and (c) facilitators of outdoor recreation. Benefits of outdoor recreation reported by study participants included their experiencing satisfaction, mental reprieve, empowerment, enlightenment, social connectedness, and thrill. Participants also shared intrapersonal, interpersonal, and structural constraints and facilitators related to their outdoor recreation participation.Conclusions: Practical implications and future research recommendations are discussed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"46-57"},"PeriodicalIF":1.9,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43702314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Challenges of parents with children with intellectual and neurodevelopmental disorders during COVID-19: Experiences and their impact on mental health. COVID-19期间智力和神经发育障碍儿童父母面临的挑战:经历及其对心理健康的影响

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-03-01 Epub Date: 2022-08-08 DOI: 10.3109/13668250.2022.2096955

Elisa Kaltenbach, Ting Xiong, Donna Thomson, Patrick J McGrath

引用次数: 0

A survey on the use of remote consultation for people with intellectual disability: The experience of community intellectual disability teams. 智障人士远程会诊的调查:社区智障团队的经验

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-03-01 Epub Date: 2022-08-24 DOI: 10.3109/13668250.2022.2104450

Laura Nicholson, Sudhakar Sharma, Sarah Andrews, Alistair Farquharson, H Welsh

{"title":"A survey on the use of remote consultation for people with intellectual disability: The experience of community intellectual disability teams.","authors":"Laura Nicholson, Sudhakar Sharma, Sarah Andrews, Alistair Farquharson, H Welsh","doi":"10.3109/13668250.2022.2104450","DOIUrl":"10.3109/13668250.2022.2104450","url":null,"abstract":"Background: Since COVID-19, remote consultation (by telephone and video) has become widespread. This study investigated the experience of using remote consultation in Specialist Intellectual Disability Community services.Method: A total of 126 health staff working across eight Specialist Intellectual Disability Community teams in the NHS Health Board of Greater Glasgow and Clyde were asked to complete a short Likert-scale survey about remote consultation.Results: There were 61 (48%) respondents from a range of disciplines. Overall, respondents were positive about remote consultation but found it was often inadequate to complete a full patient assessment. Moving forwards, respondents wanted around 60% of all consultations to remain face-to-face. It was significantly more difficult to engage and communicate with patients with more severe levels of disability.Conclusions: Remote consultation has been successful, but there is still a need for face-to-face assessment in intellectual disability services, particularly when working with people with more severe levels of disability.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"85-90"},"PeriodicalIF":1.9,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48875112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Clinician-reported barriers to providing perinatal care to women with intellectual and developmental disabilities. 临床医生报告的为智力和发育障碍妇女提供围产期护理的障碍。

IF 1.3 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2023-01-01 Epub Date: 2022-06-30 DOI: 10.3109/13668250.2022.2086110

Lauren D Smith, Anne Valentine, Tiffany A Moore Simas, Susan L Parish, Alanna Levy, Monika Mitra

{"title":"Clinician-reported barriers to providing perinatal care to women with intellectual and developmental disabilities.","authors":"Lauren D Smith, Anne Valentine, Tiffany A Moore Simas, Susan L Parish, Alanna Levy, Monika Mitra","doi":"10.3109/13668250.2022.2086110","DOIUrl":"10.3109/13668250.2022.2086110","url":null,"abstract":"Background: Research suggests that women with intellectual and developmental disabilities are at increased risk for adverse pregnancy outcomes. Further, they report unmet perinatal care needs. This qualitative study examined clinician perspectives on barriers to providing perinatal care to women with intellectual and developmental disabilities.Method: We conducted semi-structured interviews and one focus group with US obstetric care clinicians (n=17). We used a content analysis approach to code data and analyse them for larger themes and relationships.Results: The majority of participants were white, non-Hispanic, and female. Participants reported barriers providing care to pregnant women with intellectual and developmental disabilities across individual (e.g., communication challenges), practice (e.g., identification of disability status), and system levels (e.g., lack of clinician training).Conclusions: Clinician training and evidence-based guidelines for perinatal care of women with intellectual and developmental disabilities as well as services and supports during pregnancy are needed.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"48 1","pages":"12-22"},"PeriodicalIF":1.3,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10036077/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9199481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Susceptibility to peer influence in adolescents with mild-to-borderline intellectual disability: Investigating links with inhibition, Theory of Mind and negative interpretation bias. 轻度至边缘智力残疾青少年对同伴影响的易感性：调查与抑制、心理理论和负面解释偏见的联系

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-12-01 Epub Date: 2022-05-19 DOI: 10.3109/13668250.2022.2066511

Eline Wagemaker, Tycho J Dekkers, Anika Bexkens, Elske Salemink, Jacqueline N Zadelaar, Hilde M Huizenga

{"title":"Susceptibility to peer influence in adolescents with mild-to-borderline intellectual disability: Investigating links with inhibition, Theory of Mind and negative interpretation bias.","authors":"Eline Wagemaker, Tycho J Dekkers, Anika Bexkens, Elske Salemink, Jacqueline N Zadelaar, Hilde M Huizenga","doi":"10.3109/13668250.2022.2066511","DOIUrl":"10.3109/13668250.2022.2066511","url":null,"abstract":"Background: This preregistered study compares adolescents with mild-to-borderline intellectual disability (MBID) and typically developing (TD) adolescents on their susceptibility to peer influence. To understand why adolescents with MBID are susceptible to peer influence, links with inhibition, Theory of Mind (ToM) and negative interpretation bias are investigated.Method: We assessed 163 adolescents (111 MBID, 52 TD 14-19 years; 63% boys) using experimental tasks and self- and/or teacher-reports.Results: Adolescents with MBID and TD adolescents did not differ in their susceptibility to peer influence, inhibition, and negative interpretations. On two ToM instruments, adolescents with MBID performed weaker than TD adolescents. In a structural equation model, tested in the MBID group, inhibition, ToM and negative interpretation bias were not related to susceptibility to peer influence.Conclusions: This study revealed new insights by strong methods such as the multimethod approach, a full theoretical model testing relations between all constructs simultaneously, and the large sample.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"376-390"},"PeriodicalIF":1.9,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45438980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Identifying important persons in the promotion of positive behaviour support (PBS) in disability services: A social network analysis. 识别在残疾服务中促进积极行为支持的重要人物:社会网络分析

IF 1.9 4区医学

Journal of Intellectual & Developmental Disability Pub Date : 2022-12-01 Epub Date: 2021-11-18 DOI: 10.3109/13668250.2021.1984084

Brent A Hayward, Lisa McKay-Brown, Shiralee Poed, Keith McVilly

{"title":"Identifying important persons in the promotion of positive behaviour support (PBS) in disability services: A social network analysis.","authors":"Brent A Hayward, Lisa McKay-Brown, Shiralee Poed, Keith McVilly","doi":"10.3109/13668250.2021.1984084","DOIUrl":"10.3109/13668250.2021.1984084","url":null,"abstract":"Background: Little is known about networks for positive behaviour support (PBS) in disability services. This study explores a PBS network to identify influential persons in its promotion and communication.Methods: Quantitative sociometric methods were used to identify persons who occupy positions of either boundary spanning (those that link people and groups) and/or opinion leadership (those that are sought for advice).Results: Nineteen persons were identified. Boundary spanners met all criteria for the position while opinion leaders did not.Conclusions: This is the first published study of a PBS network in disability services and provides insights into persons involved in its systemic promotion. Boundary spanners are effectively bridging the PBS network, yet persons seeking information about PBS are doing so from opinion leaders that do not display a requisite characteristic for this role. These results have implications for the wider utility of PBS within disability service systems.","PeriodicalId":51466,"journal":{"name":"Journal of Intellectual & Developmental Disability","volume":"47 1","pages":"292-307"},"PeriodicalIF":1.9,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42508557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0