Kalina M. Kazmierska-Kowalewska, Anthony D. Okely, Iram Siraj, Carol Archer, Sanne L. C. Veldman, Rachel A. Jones
{"title":"Potential Efficacy of the MOVERS Professional Development Programme: A Pilot Randomised Controlled Trial","authors":"Kalina M. Kazmierska-Kowalewska, Anthony D. Okely, Iram Siraj, Carol Archer, Sanne L. C. Veldman, Rachel A. Jones","doi":"10.1111/cch.70146","DOIUrl":"https://doi.org/10.1111/cch.70146","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>High-quality early childhood education (ECE) environments positively impact child outcomes. This study examined the potential efficacy of a professional development (PD) programme on improving the quality of the ECE movement environment and children's physical activity, motor, literacy and numeracy skills.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A 6-month RCT involving 5 ECE services and 157 children (mean age 3.84 ± 0.61 years) was conducted. ECE services were randomly assigned to the intervention group (<i>n</i> = 3) or wait-list control group (<i>n</i> = 2). The PD comprised five monthly face-to-face sessions, including theory, practice and reflective thinking components. Outcomes included the quality of the ECE movement environment (MOVERS), children's gross motor skills (TGMD-2), physical activity (GT3X accelerometers), fine motor skills (ASQ-3), receptive vocabulary (PPVT-4) and numeracy (PENS). All outcomes were assessed at baseline and follow-up. Data were analysed using linear mixed models (SPSS, Version 26) and effect sizes were calculated. Educator engagement was collected using questionnaires.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Large effect sizes were reported for the quality of the ECE movement environment (<i>d</i> = 1.77–9.35). Medium to large effect sizes were reported for children's gross motor skills (<i>d</i> = 0.68–1.23), and small to medium effect sizes were reported for three subscales of the numeracy test (<i>d</i> = 0.43–0.63). In the intervention group, a significantly greater number of children moved from being at risk of delay or delayed to normal development in fine motor skills (Phi = 0.21). Educators reported that the PD content was relevant and clearly explained, highlighting the hands-on components as the most valued aspect.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The MOVERS PD pilot programme resulted in changes in educators' pedagogy and practice and in children's gross and fine motor skills and numeracy skills. Future studies with larger sample sizes will be important to confirm these results.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 5","pages":""},"PeriodicalIF":2.0,"publicationDate":"2025-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70146","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144740451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nathalie J. S. Patty, Karen M. van Meeteren, Minke Verdonk, Marjolijn Ketelaar, Carlo Schuengel, Agnes M. Willemen
{"title":"Risk and Protective Factors for Burnout Among Parents of Children With Complex Care Needs: Parents' Perspectives","authors":"Nathalie J. S. Patty, Karen M. van Meeteren, Minke Verdonk, Marjolijn Ketelaar, Carlo Schuengel, Agnes M. Willemen","doi":"10.1111/cch.70143","DOIUrl":"https://doi.org/10.1111/cch.70143","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parental burnout has been proposed as resulting from a persistent imbalance between stress-enhancing factors (demands/risk factors) and stress-alleviating factors (resources/protective factors). Parents of children with complex care needs (CCN) face this imbalance more often than parents in general. To address this, we need to know which factors are considered risky and protective for burnout from the perspectives of parents of children with CCN. To facilitate targeted interventions, this study sought to explore both risk and protective factors associated with burnout as perceived by parents of children with CCN.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We conducted semi-structured interviews with 38 parents, who recognized or identified themselves with burnout-related thoughts and feelings. Parents were selected for maximal variation, based on parental, child and family characteristics. The data was analysed through inductive thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Fifteen themes, divided into three categories, were identified: (1) ‘the parent’ encompassing factors intrinsic to the parent, such as emotional factors and internal drivers, and physical health; (2) ‘the environment interacting with the parent’ including organization of care, social support and socio-economic factors; and (3) ‘the sum of all factors’—themes underscoring the collective impact of the context including the caregiving and parental responsibility, and the perception of no option but to endure. Most factors were identified as both risk and protective factors, underscoring the dynamic nature of burnout.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Participating parents ascribed burnout to unique combinations of risk and protective factors. Notably, these factors extended beyond the personal sphere to encompass societal structures that current conceptual models for dealing with burnout often ignore. From the perspective of parents, broad multisystem approaches to address parental burnout would likely appear most relevant.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70143","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144687923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Asongo Akwobi Kisinna, Lillian Akorfa Ohene, Priscilla A. A. Attafuah
{"title":"Family Caregivers' Burden and Coping With Caring for Children With Cerebral Palsy: A Qualitative Study in a Low-Resourced Context, Ghana","authors":"Asongo Akwobi Kisinna, Lillian Akorfa Ohene, Priscilla A. A. Attafuah","doi":"10.1111/cch.70141","DOIUrl":"https://doi.org/10.1111/cch.70141","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The family caregivers of children with cerebral palsy experience various challenges during the caregiving trajectory.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>This study explores the family caregivers' burden and coping strategies with caring for children with cerebral palsy in Tamale Metropolis, Ghana.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>The study adopted an exploratory, descriptive phenomenological approach. Participants were recruited using a purposive sampling technique. Semistructured interviews were conducted, and we achieved data saturation with 15 participants. The data were analysed using a thematic approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>The findings identified that physical strain, work-related challenges and stigma constituted the primary caregiver's burden. The coping strategies employed included emotional coping, displacement/ignoring, seeking knowledge and religious coping.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Implications</h3>\u0000 \u0000 <p>The nature of the care burden requires deliberate caregiver information and care support throughout the care trajectory. A formal support system will contribute to caregivers' effective and efficient coping with caring for children with cerebral palsy.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144681179","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Johanna Beukes, Stephanie Alcock, Michelle Leal, Urlridge Thompson, Catherine E. Draper, Shane A. Norris
{"title":"Exploring Early Childhood Development Interventions for Building Human Capital in Sub-Saharan Africa: A Scoping Review","authors":"Johanna Beukes, Stephanie Alcock, Michelle Leal, Urlridge Thompson, Catherine E. Draper, Shane A. Norris","doi":"10.1111/cch.70138","DOIUrl":"https://doi.org/10.1111/cch.70138","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Inequalities in the provision and implementation of early childhood development (ECD) interventions in Sub-Saharan Africa remain a challenge. This scoping review aimed to investigate the types and extent of ECD interventions in this region, using the Nurturing Care framework (NCF).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This review included randomised controlled trial (RCT) studies related to ECD interventions in Sub-Saharan Africa. Sources from 2019 to 2024 were included. PubMed, MEDLINE (Ebsco), Web of Science, ProQuest and PsychInfo were searched in September 2024. Abstracts and full texts were reviewed using Rayyan.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Of 85 studies retrieved, 21 conducted across 13 countries were included in our review. Most were conducted in Eastern and Southern Africa, with Western and Central Africa notably underrepresented. Sample sizes varied from 134 to over 9000 participants. ECD interventions targeting children from 0 to 8 years old were included. Nutrition-focused interventions were the most common (<i>n</i> = 9) and showed the biggest positive impact on child weight and growth. Responsive caring interventions were the second most common (<i>n</i> = 2), resulting in fewer reports of maltreatment, reduced endorsement of corporal punishment and fewer behavioural problems in children. The remaining three NCF dimensions (i.e., early learning opportunities, safety and security, and good health) each had only one intervention focusing solely on that dimension and showed mixed results on child development. Multidimensional interventions were common, with seven studies combining multiple ECD support elements to create a holistic approach. Although these interventions showed mixed results, they were more likely to report positive outcomes across multiple NCF domains compared to single-focus interventions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Most interventions focus only on a couple of NCF elements. There is a need for increased focus on underrepresented regions to address local ECD needs effectively and to develop and evaluate interventions that incorporate all elements of NCF in African contexts.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70138","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144635185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Leigh M. Vanderloo, Matthew Bourke, Leah G. Taylor, Sophie M. Phillips, Aidan Loh, Katerina Disimino, Rebecca L. Bassett-Gunter, Tyler Koo, Molly Thompson-Hill, Patricia Tucker
{"title":"Screen Time Among and Youth Children With Disabilities: A Systematic Review and Meta-Analysis","authors":"Leigh M. Vanderloo, Matthew Bourke, Leah G. Taylor, Sophie M. Phillips, Aidan Loh, Katerina Disimino, Rebecca L. Bassett-Gunter, Tyler Koo, Molly Thompson-Hill, Patricia Tucker","doi":"10.1111/cch.70136","DOIUrl":"https://doi.org/10.1111/cch.70136","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>This paper aimed to review and synthesize screen time research among children and youth with disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Seven online databases were searched, and a machine learning–assisted systematic review model was used to identify relevant studies. English and French papers reporting on screen time among children and youth with a disability were eligible. Extracted data were synthesized by participant age, followed by type of screen time reporting. Meta-analyses were conducted to estimate daily screen time and adherence to screen time guidelines using random effects meta-analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Eighty-one studies were included. Screen time ranged from 0.5 to 7.27 h/day and varied widely based on disability type. Pooled average screen time was 3.70, 3.28 and 3.39 h/day for children and youth with ASD, ADHD and CP, respectively.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Screen use is prominent among children and youth with disabilities. Limiting screen time in this group is critical in preventing numerous related consequences of excessive, prolonged use.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Policy Implications</h3>\u0000 \u0000 <p>Interventions targeting children and youth with disabilities are needed to decrease excessive screen time among this population and to inform future public health policy and setting-specific practice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70136","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144635186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emine Sağlamoğlu, Ege Temizkan, Meral Huri, Gamze Ekici
{"title":"Cultural Adaptation, Validity and Reliability of the Turkish Version of Canadian Occupational Performance Measure in Children With Cerebral Palsy","authors":"Emine Sağlamoğlu, Ege Temizkan, Meral Huri, Gamze Ekici","doi":"10.1111/cch.70139","DOIUrl":"https://doi.org/10.1111/cch.70139","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Due to its complex nature, cerebral palsy (CP) leads to impairments in body structure and functions, decreased participation and affected occupational performance. The Canadian Occupational Performance Measure (COPM) is commonly used with both children diagnosed with CP and their parents, but it has not been culturally adapted in this population. The primary aim of this study was to evaluate the psychometric properties (validity and reliability) of the COPM when used directly with children with CP. A secondary aim involved translating the specific administration instructions into Turkish to facilitate child self-report.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>All analyses conducted to examine validity and reliability were performed using the COSMIN (Consensus-based Standards for the selection of health status Measurement Instruments) guideline. The scale and instructions were translated following Beaton's procedure.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The discriminative construct validity analysis revealed no significant gender-based differences in COPM performance and satisfaction scores (<i>p</i> = 0.75, <i>p</i> = 0.11), indicating consistency across genders. Item analysis showed acceptable internal consistency (Cronbach's alpha: 0.76–0.81). Test–retest analysis demonstrated excellent reliability for time-related equability in COPM performance and satisfaction parameters (ICC > 0.9).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The COPM is a valid and reliable measurement tool for children aged 8–18 with CP, with adapted instruction in Turkish.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144624380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Understanding School Presenteeism and Absence in Adolescents Affected by Chronic Musculoskeletal Pain: A Qualitative Study","authors":"Beau Sherwood, Lisa Roberts, Rhiannon Joslin","doi":"10.1111/cch.70140","DOIUrl":"https://doi.org/10.1111/cch.70140","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Objectives</h3>\u0000 \u0000 <p>Absenteeism among adolescents experiencing chronic pain is a critical issue, and factors influencing absence have been identified as an evidence gap. Existing research overlooks aspects beyond attendance, such as presenteeism, reflecting adolescents' school functioning before becoming absent. This novel qualitative study sought to identify the influencing factors on presenteeism and absence from school in adolescents (11–18 years) experiencing chronic pain, through exploration of adolescent and parent perspectives.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This study conducted a secondary analysis of qualitative data using semi-structured interviews and a timeline drawing from 21 adolescents treated for chronic musculoskeletal pain and 21 parents. Data regarding school experiences were extracted and analysed using the six stages of thematic analysis, identified by Braun and Clarke. Initial codes were identified manually, discussed and validated by all authors in a face-to-face meeting.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thematic analysis of the data identified three themes: (1) understanding the unseen struggle, (2) the feeling of belonging and (3) navigating transitions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>A key finding was the importance of adolescents feeling understood and supported by their peers and teachers throughout their education. Receiving validation of their symptoms, despite the invisible nature of chronic pain, affirmed a sense of security at school, contributed to a more positive school experience and improved adolescents' reported attendance. This has important practice implications in healthcare and education, in validating the adolescents' struggle, fostering a sense of belonging through shared goal setting and advocating for their voices to be heard.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70140","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144624516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kristine Marie M. Vege, Grethe Månum, Katharina Stibrant Sunnerhagen, Frank Becker
{"title":"Paediatric Moderate to Severe Injury to the Central Nervous System: Patients' and Caregivers' Experiences of Medical Complications and Related Healthcare Needs","authors":"Kristine Marie M. Vege, Grethe Månum, Katharina Stibrant Sunnerhagen, Frank Becker","doi":"10.1111/cch.70137","DOIUrl":"https://doi.org/10.1111/cch.70137","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Few studies describe medical complications after central nervous injury in children and adolescents as a whole, with a focus on their consequences for patients and their caregivers. This study explores the frequency and effects of medical complications on such children and youth, as well as their caregivers, after discharge from a tertiary rehabilitation centre.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Materials and Methods</h3>\u0000 \u0000 <p>This questionnaire-based study included 151 patients aged 2–18 years admitted to a tertiary rehabilitation centre due to acquired injury to the central nervous system in the years 2016–2021.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Seventy answers were retrieved between 11 and 85 months post-injury. The majority of the patients (67%) had experienced medical complications following their central nervous system injury. The most frequent complications were sleep difficulties (39%), pain (26%), spasticity (26%), constipation (22%) and overweight (17%). There were no substantial differences related to gender, age, or diagnosis group. Frequency of complications and length of rehabilitation stay were associated with an increase of 4% for each additional day of admission. Those reporting medical complications more frequently used medication for the same complications during subacute rehabilitation. They also tended to have more serious injuries. Just above a quarter of those reporting medical complications needed hospital admission and/or surgery, while the majority could be treated at a lower healthcare level. The majority answered that the complications were time consuming and had consequences for the ability to perform everyday tasks and the capacity to participate in leisure activities. The complications' psychological impact was also highlighted.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Medical complications occur frequently in children/youth who have sustained an injury to the central nervous system that requires inpatient rehabilitation. They have consequences for multiple aspects of the patient's life, even years after discharge from the rehabilitation institution.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144624388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joanna Garstang, Anna Pease, Karen Shaw, Jenna Spry, Gayle Routledge, Sara Kenyon
{"title":"Family Involvement in Learning From Expected Child Deaths: A Qualitative Study of UK Parents","authors":"Joanna Garstang, Anna Pease, Karen Shaw, Jenna Spry, Gayle Routledge, Sara Kenyon","doi":"10.1111/cch.70134","DOIUrl":"https://doi.org/10.1111/cch.70134","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Bereaved parents often have questions about their child's illness and care even when the cause was established prior to death. Child Death Review (CDR) seeks to understand the full reasons for each child's death to help improve care. In the United Kingdom, parents should be informed of CDR, asked for questions or feedback and outcomes shared with them. They should be allocated a keyworker for support with bereavement and CDR. This study aims to explore parents' experiences of CDR following expected child deaths.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Parents whose children died in England during 2021–2022, in a hospital, hospice or at home with palliative care were recruited through social media, charities and hospitals. Children were aged 1 month to 18 years. Parents had semi-structured interviews, which were analysed using template thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Parents of 22 children were interviewed. Two integrative themes were generated from analysis: positive and negative CDR experiences. Keyworkers appeared to ensure more positive experiences; these included understanding the purpose of CDR, having answers and reassurance and feeling their CDR involvement could help other families. Negative experiences included confusion around the role of the keyworker, not understanding or being involved in CDR, being left without answers and information from CDR not providing any comfort. Communication and support were the factors driving these experiences. Not all parents wanted to be involved in CDR.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Keyworkers appear to facilitate parental involvement in CDR. Adequate resources and training should be provided for keyworkers to augment learning from child deaths and bereavement support.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70134","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144573271","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Attention-Deficit Hyperactivity Disorder and Childhood Allergy: Evidence From Mendelian Randomization","authors":"Maolin Liu, Zhongyao Zeng, Yuanzhi Song, Yan Liu, Miao Sun, Guanghui Wei, Shengde Wu, Lihua Kou","doi":"10.1111/cch.70135","DOIUrl":"https://doi.org/10.1111/cch.70135","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The association between attention-deficit hyperactivity disorder (ADHD) and allergic diseases in children has been reported in observational studies, yet whether the relationship reflects causality remains unclear.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>To address this, we performed a two-sample bidirectional Mendelian randomization (MR) analysis using genetic instrumental variables associated with ADHD (<i>N</i> = 38 691) and childhood allergy (<i>N</i> = 5337) from the largest available genome-wide association studies. Inverse-variance weighted was used as the primary estimate, whereas Cochran's Q test and MR-Egger regression were used to detect heterogeneity and pleiotropy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The main MR estimates indicated that ADHD significantly associated with the risk of allergic diseases in children (odds ratio = 1.14, 95% confidence interval: 1.02–1.27, <i>p</i> = 0.017). The mediation analysis via two-step MR showed no evidence for mediating roles of gut microbiota and metabolites in the effect of ADHD on childhood allergy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>These findings may inform neuroimmune interaction and interventions for allergic diseases in children with ADHD.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144573270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}