Risk and Protective Factors for Burnout Among Parents of Children With Complex Care Needs: Parents' Perspectives

IF 2 4区医学 Q2 PEDIATRICS

Child Care Health and Development Pub Date : 2025-07-24 DOI:10.1111/cch.70143

Nathalie J. S. Patty, Karen M. van Meeteren, Minke Verdonk, Marjolijn Ketelaar, Carlo Schuengel, Agnes M. Willemen

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引用次数: 0

Abstract

Background

Parental burnout has been proposed as resulting from a persistent imbalance between stress-enhancing factors (demands/risk factors) and stress-alleviating factors (resources/protective factors). Parents of children with complex care needs (CCN) face this imbalance more often than parents in general. To address this, we need to know which factors are considered risky and protective for burnout from the perspectives of parents of children with CCN. To facilitate targeted interventions, this study sought to explore both risk and protective factors associated with burnout as perceived by parents of children with CCN.

Methods

We conducted semi-structured interviews with 38 parents, who recognized or identified themselves with burnout-related thoughts and feelings. Parents were selected for maximal variation, based on parental, child and family characteristics. The data was analysed through inductive thematic analysis.

Results

Fifteen themes, divided into three categories, were identified: (1) ‘the parent’ encompassing factors intrinsic to the parent, such as emotional factors and internal drivers, and physical health; (2) ‘the environment interacting with the parent’ including organization of care, social support and socio-economic factors; and (3) ‘the sum of all factors’—themes underscoring the collective impact of the context including the caregiving and parental responsibility, and the perception of no option but to endure. Most factors were identified as both risk and protective factors, underscoring the dynamic nature of burnout.

Conclusion

Participating parents ascribed burnout to unique combinations of risk and protective factors. Notably, these factors extended beyond the personal sphere to encompass societal structures that current conceptual models for dealing with burnout often ignore. From the perspective of parents, broad multisystem approaches to address parental burnout would likely appear most relevant.

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有复杂照顾需要儿童的家长倦怠的风险及保护因素：家长的观点

父母职业倦怠被认为是压力增强因素（需求/风险因素）和压力缓解因素（资源/保护因素）之间持续失衡的结果。有复杂照顾需要的儿童的父母比一般父母更经常面临这种不平衡。为了解决这个问题，我们需要知道从CCN患儿的父母的角度来看，哪些因素被认为是有风险的，哪些因素对倦怠有保护作用。为了促进有针对性的干预，本研究试图探索CCN患儿家长认为的与倦怠相关的风险因素和保护因素。方法对38位父母进行半结构化访谈，这些父母承认或认同自己有倦怠相关的想法和感受。根据父母、子女和家庭特征，选择变异最大的父母。采用归纳主题分析法对数据进行分析。结果共确定了15个主题，分为三类：(1)“父母”包括父母的内在因素，如情感因素、内在驱动因素和身体健康；(2)“与父母互动的环境”，包括照料组织、社会支持和社会经济因素；(3)“所有因素的总和”——这些主题强调了环境的集体影响，包括照顾和父母的责任，以及除了忍受别无选择的感觉。大多数因素被确定为风险因素和保护因素，强调了倦怠的动态性质。结论参与调查的家长将职业倦怠归因于风险因素和保护因素的独特组合。值得注意的是，这些因素超出了个人领域，涵盖了当前处理倦怠的概念模型经常忽略的社会结构。从父母的角度来看，广泛的多系统方法来解决父母的倦怠可能是最相关的。

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.