Child Care Health and Development最新文献

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Cultural Adaptation, Validity and Reliability of the Turkish Version of Canadian Occupational Performance Measure in Children With Cerebral Palsy 加拿大脑瘫儿童职业表现量表土耳其语版的文化适应、效度和信度
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-15 DOI: 10.1111/cch.70139
Emine Sağlamoğlu, Ege Temizkan, Meral Huri, Gamze Ekici
{"title":"Cultural Adaptation, Validity and Reliability of the Turkish Version of Canadian Occupational Performance Measure in Children With Cerebral Palsy","authors":"Emine Sağlamoğlu,&nbsp;Ege Temizkan,&nbsp;Meral Huri,&nbsp;Gamze Ekici","doi":"10.1111/cch.70139","DOIUrl":"https://doi.org/10.1111/cch.70139","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Due to its complex nature, cerebral palsy (CP) leads to impairments in body structure and functions, decreased participation and affected occupational performance. The Canadian Occupational Performance Measure (COPM) is commonly used with both children diagnosed with CP and their parents, but it has not been culturally adapted in this population. The primary aim of this study was to evaluate the psychometric properties (validity and reliability) of the COPM when used directly with children with CP. A secondary aim involved translating the specific administration instructions into Turkish to facilitate child self-report.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>All analyses conducted to examine validity and reliability were performed using the COSMIN (Consensus-based Standards for the selection of health status Measurement Instruments) guideline. The scale and instructions were translated following Beaton's procedure.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The discriminative construct validity analysis revealed no significant gender-based differences in COPM performance and satisfaction scores (<i>p</i> = 0.75, <i>p</i> = 0.11), indicating consistency across genders. Item analysis showed acceptable internal consistency (Cronbach's alpha: 0.76–0.81). Test–retest analysis demonstrated excellent reliability for time-related equability in COPM performance and satisfaction parameters (ICC &gt; 0.9).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The COPM is a valid and reliable measurement tool for children aged 8–18 with CP, with adapted instruction in Turkish.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144624380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding School Presenteeism and Absence in Adolescents Affected by Chronic Musculoskeletal Pain: A Qualitative Study 了解青少年慢性肌肉骨骼疼痛的出勤与缺勤:一项质性研究
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-15 DOI: 10.1111/cch.70140
Beau Sherwood, Lisa Roberts, Rhiannon Joslin
{"title":"Understanding School Presenteeism and Absence in Adolescents Affected by Chronic Musculoskeletal Pain: A Qualitative Study","authors":"Beau Sherwood,&nbsp;Lisa Roberts,&nbsp;Rhiannon Joslin","doi":"10.1111/cch.70140","DOIUrl":"https://doi.org/10.1111/cch.70140","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Objectives</h3>\u0000 \u0000 <p>Absenteeism among adolescents experiencing chronic pain is a critical issue, and factors influencing absence have been identified as an evidence gap. Existing research overlooks aspects beyond attendance, such as presenteeism, reflecting adolescents' school functioning before becoming absent. This novel qualitative study sought to identify the influencing factors on presenteeism and absence from school in adolescents (11–18 years) experiencing chronic pain, through exploration of adolescent and parent perspectives.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This study conducted a secondary analysis of qualitative data using semi-structured interviews and a timeline drawing from 21 adolescents treated for chronic musculoskeletal pain and 21 parents. Data regarding school experiences were extracted and analysed using the six stages of thematic analysis, identified by Braun and Clarke. Initial codes were identified manually, discussed and validated by all authors in a face-to-face meeting.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thematic analysis of the data identified three themes: (1) understanding the unseen struggle, (2) the feeling of belonging and (3) navigating transitions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>A key finding was the importance of adolescents feeling understood and supported by their peers and teachers throughout their education. Receiving validation of their symptoms, despite the invisible nature of chronic pain, affirmed a sense of security at school, contributed to a more positive school experience and improved adolescents' reported attendance. This has important practice implications in healthcare and education, in validating the adolescents' struggle, fostering a sense of belonging through shared goal setting and advocating for their voices to be heard.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70140","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144624516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Paediatric Moderate to Severe Injury to the Central Nervous System: Patients' and Caregivers' Experiences of Medical Complications and Related Healthcare Needs 小儿中重度中枢神经系统损伤:患者和护理者的医疗并发症经历和相关的医疗保健需求
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-14 DOI: 10.1111/cch.70137
Kristine Marie M. Vege, Grethe Månum, Katharina Stibrant Sunnerhagen, Frank Becker
{"title":"Paediatric Moderate to Severe Injury to the Central Nervous System: Patients' and Caregivers' Experiences of Medical Complications and Related Healthcare Needs","authors":"Kristine Marie M. Vege,&nbsp;Grethe Månum,&nbsp;Katharina Stibrant Sunnerhagen,&nbsp;Frank Becker","doi":"10.1111/cch.70137","DOIUrl":"https://doi.org/10.1111/cch.70137","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Few studies describe medical complications after central nervous injury in children and adolescents as a whole, with a focus on their consequences for patients and their caregivers. This study explores the frequency and effects of medical complications on such children and youth, as well as their caregivers, after discharge from a tertiary rehabilitation centre.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Materials and Methods</h3>\u0000 \u0000 <p>This questionnaire-based study included 151 patients aged 2–18 years admitted to a tertiary rehabilitation centre due to acquired injury to the central nervous system in the years 2016–2021.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Seventy answers were retrieved between 11 and 85 months post-injury. The majority of the patients (67%) had experienced medical complications following their central nervous system injury. The most frequent complications were sleep difficulties (39%), pain (26%), spasticity (26%), constipation (22%) and overweight (17%). There were no substantial differences related to gender, age, or diagnosis group. Frequency of complications and length of rehabilitation stay were associated with an increase of 4% for each additional day of admission. Those reporting medical complications more frequently used medication for the same complications during subacute rehabilitation. They also tended to have more serious injuries. Just above a quarter of those reporting medical complications needed hospital admission and/or surgery, while the majority could be treated at a lower healthcare level. The majority answered that the complications were time consuming and had consequences for the ability to perform everyday tasks and the capacity to participate in leisure activities. The complications' psychological impact was also highlighted.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Medical complications occur frequently in children/youth who have sustained an injury to the central nervous system that requires inpatient rehabilitation. They have consequences for multiple aspects of the patient's life, even years after discharge from the rehabilitation institution.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144624388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family Involvement in Learning From Expected Child Deaths: A Qualitative Study of UK Parents 从预期儿童死亡中学习的家庭参与:对英国父母的定性研究
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-07 DOI: 10.1111/cch.70134
Joanna Garstang, Anna Pease, Karen Shaw, Jenna Spry, Gayle Routledge, Sara Kenyon
{"title":"Family Involvement in Learning From Expected Child Deaths: A Qualitative Study of UK Parents","authors":"Joanna Garstang,&nbsp;Anna Pease,&nbsp;Karen Shaw,&nbsp;Jenna Spry,&nbsp;Gayle Routledge,&nbsp;Sara Kenyon","doi":"10.1111/cch.70134","DOIUrl":"https://doi.org/10.1111/cch.70134","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Bereaved parents often have questions about their child's illness and care even when the cause was established prior to death. Child Death Review (CDR) seeks to understand the full reasons for each child's death to help improve care. In the United Kingdom, parents should be informed of CDR, asked for questions or feedback and outcomes shared with them. They should be allocated a keyworker for support with bereavement and CDR. This study aims to explore parents' experiences of CDR following expected child deaths.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Parents whose children died in England during 2021–2022, in a hospital, hospice or at home with palliative care were recruited through social media, charities and hospitals. Children were aged 1 month to 18 years. Parents had semi-structured interviews, which were analysed using template thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Parents of 22 children were interviewed. Two integrative themes were generated from analysis: positive and negative CDR experiences. Keyworkers appeared to ensure more positive experiences; these included understanding the purpose of CDR, having answers and reassurance and feeling their CDR involvement could help other families. Negative experiences included confusion around the role of the keyworker, not understanding or being involved in CDR, being left without answers and information from CDR not providing any comfort. Communication and support were the factors driving these experiences. Not all parents wanted to be involved in CDR.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Keyworkers appear to facilitate parental involvement in CDR. Adequate resources and training should be provided for keyworkers to augment learning from child deaths and bereavement support.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70134","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144573271","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Attention-Deficit Hyperactivity Disorder and Childhood Allergy: Evidence From Mendelian Randomization 注意缺陷多动障碍与儿童过敏:来自孟德尔随机化的证据
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-07 DOI: 10.1111/cch.70135
Maolin Liu, Zhongyao Zeng, Yuanzhi Song, Yan Liu, Miao Sun, Guanghui Wei, Shengde Wu, Lihua Kou
{"title":"Attention-Deficit Hyperactivity Disorder and Childhood Allergy: Evidence From Mendelian Randomization","authors":"Maolin Liu,&nbsp;Zhongyao Zeng,&nbsp;Yuanzhi Song,&nbsp;Yan Liu,&nbsp;Miao Sun,&nbsp;Guanghui Wei,&nbsp;Shengde Wu,&nbsp;Lihua Kou","doi":"10.1111/cch.70135","DOIUrl":"https://doi.org/10.1111/cch.70135","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The association between attention-deficit hyperactivity disorder (ADHD) and allergic diseases in children has been reported in observational studies, yet whether the relationship reflects causality remains unclear.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>To address this, we performed a two-sample bidirectional Mendelian randomization (MR) analysis using genetic instrumental variables associated with ADHD (<i>N</i> = 38 691) and childhood allergy (<i>N</i> = 5337) from the largest available genome-wide association studies. Inverse-variance weighted was used as the primary estimate, whereas Cochran's Q test and MR-Egger regression were used to detect heterogeneity and pleiotropy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The main MR estimates indicated that ADHD significantly associated with the risk of allergic diseases in children (odds ratio = 1.14, 95% confidence interval: 1.02–1.27, <i>p</i> = 0.017). The mediation analysis via two-step MR showed no evidence for mediating roles of gut microbiota and metabolites in the effect of ADHD on childhood allergy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>These findings may inform neuroimmune interaction and interventions for allergic diseases in children with ADHD.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144573270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Beyond the (Log)book: Comparing Accelerometer Nonwear Detection Techniques in Toddlers 超越(日志)书:比较加速度计无磨损检测技术在幼儿
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-04 DOI: 10.1111/cch.70133
Elyse Letts, Sarah M. da Silva, Natascja Di Cristofaro, Sara King-Dowling, Joyce Obeid
{"title":"Beyond the (Log)book: Comparing Accelerometer Nonwear Detection Techniques in Toddlers","authors":"Elyse Letts,&nbsp;Sarah M. da Silva,&nbsp;Natascja Di Cristofaro,&nbsp;Sara King-Dowling,&nbsp;Joyce Obeid","doi":"10.1111/cch.70133","DOIUrl":"https://doi.org/10.1111/cch.70133","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Accelerometers are increasingly used to measure physical activity and sedentary time in toddlers. Data cleaning or wear time validation can impact outcomes of interest, particularly in young children who spend less time awake. However, no study has systematically compared wear time validation strategies in toddlers. As such, the objective of this study is to compare different fully automated methods of distinguishing wear and nonwear time (counts and raw data algorithms) methods to the semi automated (counts with logbooks) criterion method in toddlers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We recruited 109 toddlers (age 12–35 months) as part of the iPLAY study to wear an ActiGraph w-GT3X-BT accelerometer on the right hip for ~7 consecutive days (removed for sleep and water activities). Parents completed a logbook to indicate monitor removal and nap times. We tested 15 nonwear detection methods grouped into four main categories: semi-automated logbook, consecutive 0 counts, modified consecutive 0 counts (Troiano and Choi) and raw data methods (van Hees and Ahmadi). Using semi-automated logbooks as the criterion standard (all wear and wake-time only wear), we calculated the accuracy and F1 scores (a metric which balances precision and recall) and compared overall wear time with a two one-sided test of equivalence.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participant daily wear time ranged from 556 to 684 min/day depending on method. Accuracy and F1 score ranged from 86% to 95%. Five methods were considered equivalent to the AllWear nonwear criterion (true wear time including sleep-time wear), with only one equivalent to the AwakeWear criterion. Mean absolute differences were lower for the AllWear criterion but ranged from 49 to 192 min/day.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The 5min0count, 10min_0count, 30min_0count, Troiano60s and Ahmadi methods provide high accuracy and equivalency when compared with semi-automated cleaning using logbooks. This paper provides insights and quantitative results that can help researchers decide which method may be the most appropriate given their population of interest, sample size and study protocol.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70133","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144550839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Developmental Profiles of Young Deaf and Hard of Hearing Children and Their Associated Predictors 青少年失聪和听障儿童的发育特征及其相关预测因素
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-03 DOI: 10.1111/cch.70129
Natalie Zehnwirth, Libby Smith, Daisy A. Shepherd, Valerie Sung
{"title":"Developmental Profiles of Young Deaf and Hard of Hearing Children and Their Associated Predictors","authors":"Natalie Zehnwirth,&nbsp;Libby Smith,&nbsp;Daisy A. Shepherd,&nbsp;Valerie Sung","doi":"10.1111/cch.70129","DOIUrl":"https://doi.org/10.1111/cch.70129","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Concomitant developmental disability is common in deaf and hard of hearing (DHH) children. We describe the early developmental profiles of DHH children and explore factors that may be predictive of these profiles.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We report on data from DHH children aged 0–66 months who are participants of a longitudinal child hearing databank in Victoria, Australia. Developmental profiles were measured using the Ages and Stages Questionnaire (ASQ) across five domains (communication, gross motor, fine motor, personal social and problem solving). We reported descriptive statistics and used logistic regression to estimate odds ratios and determined which characteristics were associated with below cut-off ASQ scores.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Caregivers of 882 children aged 0–66 months completed the ASQ between 2012 and 2022. A considerable proportion of children scored below their developmental expectations for age with 35% below ASQ cut-off for communication, 24% fine motor, 23% problem solving, 21% gross motor and 20% personal social. Children with a mild degree of hearing loss scored below cut-off ranging from 16% to 26% across the domains. Predictive factors for below cut-off development included admission to neonatal intensive care, extreme prematurity, infection requiring intravenous antibiotics and having more than one comorbidity for all domains. Bilateral hearing loss, cochlear implant use, jaundice requiring treatment and seizures were associated with communication delays. Cochlear implant use was a protective factor for gross motor development.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Early developmental screening is vital for DHH children, as these children have multiple developmental needs. Degree of hearing loss does not predict overall development; however, children with a mild degree of hearing loss can have developmental impairments and benefit from developmental monitoring. Early targeted intervention to support DHH children is imperative in maximizing their functional abilities and well-being.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Summary&lt;/h3&gt;\u0000 \u0000 &lt;div&gt;\u0000 \u0000 &lt;ul&gt;\u0000 \u0000 \u0000 &lt;li&gt;Deaf and hard of hearing children may have additional developmental disabilities and comorbidities, and early intervention supports their development.&lt;/li&gt;\u0000 \u0000 ","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70129","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144550828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caregiver Peer Support for Families of Autistic Children in France 法国自闭症儿童家庭的照顾者同伴支持
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-02 DOI: 10.1111/cch.70123
Jeffrey McCrossin, Lucyna Lach, Sophie Biette, Émilie Cappe
{"title":"Caregiver Peer Support for Families of Autistic Children in France","authors":"Jeffrey McCrossin,&nbsp;Lucyna Lach,&nbsp;Sophie Biette,&nbsp;Émilie Cappe","doi":"10.1111/cch.70123","DOIUrl":"https://doi.org/10.1111/cch.70123","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Caring for autistic children presents significant emotional and practical challenges, impacting family well-being and creating a need for social supports. In France, these challenges are compounded by historical reliance on psychoanalytic approaches to autism care. This study aims to identify caregiver peer support programmes for families of autistic children in France and explore their contributions to autism care.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;An environmental scan was conducted to identify relevant caregiver peer support programmes. This approach involved an internet search using keywords related to autism, caregiver peer support and France, supplemented by informal consultations in the autism support community to contextualize findings and refine the identification of programmes. Inclusion criteria focused on services offering ongoing support to caregivers by peers. Data extraction was performed on publicly available sources and through direct correspondence with service administrators.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Sixteen organizations were identified, offering various forms of caregiver peer support, including group meetings and individual follow-ups. Most services were in-person, with some online options. Peer support roles varied between paid and volunteer positions. Few organizations reported offering training to peers. Key support formats included informal gatherings like discussion groups focusing on emotional support, sharing experiences and advocacy. However, inconsistencies in the availability of detailed information about services and peer training highlight limited clarity in programme descriptions, which may pose challenges for families seeking support.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Caregiver peer support is underdeveloped in France. Insufficient detail regarding service delivery models, support structures and training hinders broader accessibility and adoption. Aligning terminology and promoting the value of caregiver peer support could enhance its role in autism care. Future research should evaluate the impact of these programmes on caregiver and family outcomes and explore stakeholder experiences to refine support mechanisms.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Summary&lt;/h3&gt;\u0000 \u0000 &lt;div&gt;\u0000 \u0000 &lt;ul&gt;\u0000 \u0000 \u0000 &lt;li&gt;Caregiver peer support for autism is underdeveloped in ","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70123","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144537090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Socio-Emotional Development in Young Children With Cerebral Palsy: A Scoping Review 幼儿脑瘫的社会情感发展:一项范围回顾
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-02 DOI: 10.1111/cch.70130
Julie Enkebølle Hansen, Laura Lærkegård Støve, Mette Skovgaard Væver, Katrine Røhder
{"title":"Socio-Emotional Development in Young Children With Cerebral Palsy: A Scoping Review","authors":"Julie Enkebølle Hansen,&nbsp;Laura Lærkegård Støve,&nbsp;Mette Skovgaard Væver,&nbsp;Katrine Røhder","doi":"10.1111/cch.70130","DOIUrl":"https://doi.org/10.1111/cch.70130","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Cerebral palsy (CP) is the most common physical disability in childhood, yet research on the socio-emotional development of young children with or at high risk of CP remains limited. The aim of the study is to describe how socio-emotional development has been investigated in young children diagnosed with or at high risk of CP and identify knowledge gaps and areas for future research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A scoping review based on a systematic search of PsycInfo, PubMed and Web of Science including studies on children aged 0–6:11 years diagnosed with or at high risk of CP, examining socio-emotional development. No restrictions on publication year or language were applied. Data were extracted following PRISMA guidelines for scoping reviews.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-five studies, representing 1914 toddlers and preschool children, were included. No studies exclusively examined infants. Most studies were cross-sectional (68%) and used parent-reported data (76%). The most commonly investigated areas of socio-emotional development were expressing negative emotionality, engagement in peer relationships and exploratory behaviour. Less optimal socio-emotional development was frequently reported, with prevalence estimates ranging from 14% to 65%. Socio-emotional difficulties were associated with severity of child motor disability, child delayed language abilities and parenting difficulties.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This review identifies conceptual and methodological limitations in studies of socio-emotional development in young children with CP. Future research should include infants from a diverse range of geographical and cultural contexts, utilize observational or multi-informant methods, investigate positive emotionality and parent–child relationships and adopt longitudinal designs to better capture if and how CP may impact socio-emotional development in early childhood.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70130","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144537091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Impact of Parafunctional Habits on Orthodontic Malocclusions in Children With Cerebral Palsy 辅助功能习惯对脑瘫儿童正畸畸形的影响
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-07-01 DOI: 10.1111/cch.70131
Esra Tunalı, Şeniz Karaçay, Arda Tabancalı, Büşra Seda İmamoğlu, Ersin Yıldırım, Turgay Arık
{"title":"The Impact of Parafunctional Habits on Orthodontic Malocclusions in Children With Cerebral Palsy","authors":"Esra Tunalı,&nbsp;Şeniz Karaçay,&nbsp;Arda Tabancalı,&nbsp;Büşra Seda İmamoğlu,&nbsp;Ersin Yıldırım,&nbsp;Turgay Arık","doi":"10.1111/cch.70131","DOIUrl":"https://doi.org/10.1111/cch.70131","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study aimed to investigate the correlation between orthodontic malocclusion and parafunctional habits, including atypical swallowing, mouth breathing and drooling, in children with cerebral palsy (CP).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Fifty-one children with CP (ages 6–14) from the Spastic Children Foundation were assessed. Drooling, lip incompetence and malocclusion were evaluated using the Balasco and Ballard methods, Angle Classification and WHO standards. Soft tissue relations, facial type, profile and face ratios were examined via extraoral assessment and photo analysis. Fisher's exact test was used for statistical analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Among the children, 47% had lip incompetence, 57% exhibited mouth breathing, 63% had atypical swallowing and 66% showed increased overjet. Malocclusion findings included 45% with Class II molar relationships and 66% with parafunctional habits. A significant relationship was found between parafunctional habits and orthodontic malocclusion (<i>p</i> &lt; 0.05).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>A high prevalence of parafunctional habits was observed in children with CP, significantly correlating with orthodontic issues. Early preventive and interceptive orthodontic treatment before the growth phase is essential to improve swallowing, chewing, respiratory function and nutritional intake, ultimately enhancing overall quality of life.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Summary</h3>\u0000 \u0000 <div>\u0000 \u0000 <ul>\u0000 \u0000 \u0000 <li>Parafunctional habits are highly prevalent in children with cerebral palsy.</li>\u0000 \u0000 \u0000 <li>These habits are significantly associated with the development of malocclusion and craniofacial morphology.</li>\u0000 \u0000 \u0000 <li>Complex tongue thrust, mouth breathing and severe drooling are strongly linked to skeletal and dental anomalies.</li>\u0000 \u0000 \u0000 <li>Early multidisciplinary follow-up and preventive orthodontic approaches can reduce long-term complications.</li>\u0000 \u0000 \u0000 <li>Swallowing patterns, respiratory types and oral motor functions should be evaluated together in clinical assessment and treatment planning.</li>\u0000 </ul>\u0000 </div>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144524671","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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