Kristine Marie M. Vege, Grethe Månum, Katharina Stibrant Sunnerhagen, Frank Becker
{"title":"小儿中重度中枢神经系统损伤：患者和护理者的医疗并发症经历和相关的医疗保健需求","authors":"Kristine Marie M. Vege, Grethe Månum, Katharina Stibrant Sunnerhagen, Frank Becker","doi":"10.1111/cch.70137","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Purpose</h3>\n \n <p>Few studies describe medical complications after central nervous injury in children and adolescents as a whole, with a focus on their consequences for patients and their caregivers. This study explores the frequency and effects of medical complications on such children and youth, as well as their caregivers, after discharge from a tertiary rehabilitation centre.</p>\n </section>\n \n <section>\n \n <h3> Materials and Methods</h3>\n \n <p>This questionnaire-based study included 151 patients aged 2–18 years admitted to a tertiary rehabilitation centre due to acquired injury to the central nervous system in the years 2016–2021.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Seventy answers were retrieved between 11 and 85 months post-injury. The majority of the patients (67%) had experienced medical complications following their central nervous system injury. The most frequent complications were sleep difficulties (39%), pain (26%), spasticity (26%), constipation (22%) and overweight (17%). There were no substantial differences related to gender, age, or diagnosis group. Frequency of complications and length of rehabilitation stay were associated with an increase of 4% for each additional day of admission. Those reporting medical complications more frequently used medication for the same complications during subacute rehabilitation. They also tended to have more serious injuries. Just above a quarter of those reporting medical complications needed hospital admission and/or surgery, while the majority could be treated at a lower healthcare level. The majority answered that the complications were time consuming and had consequences for the ability to perform everyday tasks and the capacity to participate in leisure activities. The complications' psychological impact was also highlighted.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Medical complications occur frequently in children/youth who have sustained an injury to the central nervous system that requires inpatient rehabilitation. They have consequences for multiple aspects of the patient's life, even years after discharge from the rehabilitation institution.</p>\n </section>\n </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8000,"publicationDate":"2025-07-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Paediatric Moderate to Severe Injury to the Central Nervous System: Patients' and Caregivers' Experiences of Medical Complications and Related Healthcare Needs\",\"authors\":\"Kristine Marie M. Vege, Grethe Månum, Katharina Stibrant Sunnerhagen, Frank Becker\",\"doi\":\"10.1111/cch.70137\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Purpose</h3>\\n \\n <p>Few studies describe medical complications after central nervous injury in children and adolescents as a whole, with a focus on their consequences for patients and their caregivers. This study explores the frequency and effects of medical complications on such children and youth, as well as their caregivers, after discharge from a tertiary rehabilitation centre.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Materials and Methods</h3>\\n \\n <p>This questionnaire-based study included 151 patients aged 2–18 years admitted to a tertiary rehabilitation centre due to acquired injury to the central nervous system in the years 2016–2021.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Seventy answers were retrieved between 11 and 85 months post-injury. The majority of the patients (67%) had experienced medical complications following their central nervous system injury. The most frequent complications were sleep difficulties (39%), pain (26%), spasticity (26%), constipation (22%) and overweight (17%). There were no substantial differences related to gender, age, or diagnosis group. Frequency of complications and length of rehabilitation stay were associated with an increase of 4% for each additional day of admission. Those reporting medical complications more frequently used medication for the same complications during subacute rehabilitation. They also tended to have more serious injuries. Just above a quarter of those reporting medical complications needed hospital admission and/or surgery, while the majority could be treated at a lower healthcare level. The majority answered that the complications were time consuming and had consequences for the ability to perform everyday tasks and the capacity to participate in leisure activities. The complications' psychological impact was also highlighted.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusion</h3>\\n \\n <p>Medical complications occur frequently in children/youth who have sustained an injury to the central nervous system that requires inpatient rehabilitation. They have consequences for multiple aspects of the patient's life, even years after discharge from the rehabilitation institution.</p>\\n </section>\\n </div>\",\"PeriodicalId\":55262,\"journal\":{\"name\":\"Child Care Health and Development\",\"volume\":\"51 4\",\"pages\":\"\"},\"PeriodicalIF\":1.8000,\"publicationDate\":\"2025-07-14\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Child Care Health and Development\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/cch.70137\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PEDIATRICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Child Care Health and Development","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/cch.70137","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PEDIATRICS","Score":null,"Total":0}
Paediatric Moderate to Severe Injury to the Central Nervous System: Patients' and Caregivers' Experiences of Medical Complications and Related Healthcare Needs
Purpose
Few studies describe medical complications after central nervous injury in children and adolescents as a whole, with a focus on their consequences for patients and their caregivers. This study explores the frequency and effects of medical complications on such children and youth, as well as their caregivers, after discharge from a tertiary rehabilitation centre.
Materials and Methods
This questionnaire-based study included 151 patients aged 2–18 years admitted to a tertiary rehabilitation centre due to acquired injury to the central nervous system in the years 2016–2021.
Results
Seventy answers were retrieved between 11 and 85 months post-injury. The majority of the patients (67%) had experienced medical complications following their central nervous system injury. The most frequent complications were sleep difficulties (39%), pain (26%), spasticity (26%), constipation (22%) and overweight (17%). There were no substantial differences related to gender, age, or diagnosis group. Frequency of complications and length of rehabilitation stay were associated with an increase of 4% for each additional day of admission. Those reporting medical complications more frequently used medication for the same complications during subacute rehabilitation. They also tended to have more serious injuries. Just above a quarter of those reporting medical complications needed hospital admission and/or surgery, while the majority could be treated at a lower healthcare level. The majority answered that the complications were time consuming and had consequences for the ability to perform everyday tasks and the capacity to participate in leisure activities. The complications' psychological impact was also highlighted.
Conclusion
Medical complications occur frequently in children/youth who have sustained an injury to the central nervous system that requires inpatient rehabilitation. They have consequences for multiple aspects of the patient's life, even years after discharge from the rehabilitation institution.
期刊介绍：
Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
