Child Care Health and Development最新文献

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The 24-Hour Activity Checklist for Cerebral Palsy: Translation, Content Validity and Test–Retest Reliability of Portuguese Versions 脑瘫24小时活动量表:葡萄牙语版本的翻译、内容效度和重测信度
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-03-05 DOI: 10.1111/cch.70057
Fabio Vila-Nova, Cristina dos Santos Cardoso de Sá, Hércules Ribeiro Leite, Ana Cadete, Teresa Folha, Egmar Longo, Maria Elisabete Martins, Raul Oliveira
{"title":"The 24-Hour Activity Checklist for Cerebral Palsy: Translation, Content Validity and Test–Retest Reliability of Portuguese Versions","authors":"Fabio Vila-Nova,&nbsp;Cristina dos Santos Cardoso de Sá,&nbsp;Hércules Ribeiro Leite,&nbsp;Ana Cadete,&nbsp;Teresa Folha,&nbsp;Egmar Longo,&nbsp;Maria Elisabete Martins,&nbsp;Raul Oliveira","doi":"10.1111/cch.70057","DOIUrl":"https://doi.org/10.1111/cch.70057","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The importance of 24-h movement behaviour, including sleep, physical activity (PA) and sedentary behaviour (SB), has gained prominence due to its significant impact on the health and development of children, including those with cerebral palsy (CP). The 24-h activity checklist for CP, a tool developed in the Netherlands to monitor the activity in CP paediatric population, requires translation and cultural adaptation to Portuguese for use in Brazil and Portugal.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This cross-sectional methodological study involved translating and culturally adapting the 24-h activity checklist for CP into Brazilian Portuguese (BP) and European Portuguese (EP) languages. The process included forward translation, synthesis and backward translation, expert panel evaluation and pretesting. Brazilian and Portuguese experts appraised content validity, assessed by the individual item (I-CVI) and scale level content validity index scores (S-CVI/Ave). Sixty parents of children with CP participated in the test–retest analysis, reported with the Intraclass Correlation Coefficients (ICCs).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>I-CVI scores were higher than 0.78 for both versions. S-CVI/Ave scores were considered excellent for BP (0.91) and EP version (1.0). Expert's appraisal results in the inclusion of a question about sleep-related time indicators and the split of sleep, PA, and screen time questions for weekdays and weekends. Brazilian and Portuguese parents of children with CP reported understanding on instructions, questions, and answer options. The ICC values range from 0.81 to 0.99 and 0.6 to 0.98, for BP and EP, respectively.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The BP and EP versions of 24-h activity checklist for CP demonstrated good content validity and test–retest reliability, supporting its use in Brazil and Portugal. This tool can contribute to improving communication between families and healthcare professionals to monitor and develop tailored interventions for healthy movement behaviours in children with CP.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-03-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143554330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Youth Depression After an Environmental Disaster: Is There a Relationship to Caregiver Stress and Depression? 环境灾难后的青少年抑郁:照顾者压力和抑郁之间是否存在关系?
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-03-03 DOI: 10.1111/cch.70058
Jacqueline Dannis, Sarah Jenuwine, Kenyetta Dotson, Nicole Jones
{"title":"Youth Depression After an Environmental Disaster: Is There a Relationship to Caregiver Stress and Depression?","authors":"Jacqueline Dannis,&nbsp;Sarah Jenuwine,&nbsp;Kenyetta Dotson,&nbsp;Nicole Jones","doi":"10.1111/cch.70058","DOIUrl":"https://doi.org/10.1111/cch.70058","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>In the United States, female youth have been experiencing high levels of mental health challenges, including depression. Many factors increase the risk of developing mental health issues, including exposure to traumatic events, like the Flint water crisis. To better understand this connection, this study aims to answer the question: How do depression symptoms in this Flint Registry sample of girls compare with national norms and how are child depression symptoms related to parental/caregiver depression symptoms and perceived stress?</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The cohort included 539 girls, ages 6–17, and their parents who were Flint residents and had completed a baseline survey for their child and themselves during 2019–2021 and a follow-up survey (2020–2022). The Behavior Assessment System for Children (BASC-3) measured child depression symptoms; the Quality of Life in Neurological Disorders (Neuro-QoL) depression subscale and Perceived Stress Scale Short Form (PSS-4) measured adult depressive symptoms and perceived stress. Statistical analysis included One-Sample Chi-Square and Bayesian correlation and regression analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>At enrolment, the prevalence of at-risk or clinically significant depression symptoms in Flint girls was higher than in the general population (23.6% vs. 15.9%, <i>p</i> &lt; 0.01). At follow-up, the prevalence decreased, yet there was still a significant difference between Flint girls (19.3%) and the general population (<i>p</i> &lt; 0.05). Child measures of depressive symptoms at follow-up were significantly correlated with caregiver measures of depression and stress at both time points. Child depression symptoms at baseline and caregiver depression and stress were predictive of child depressive symptoms at follow-up.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Results reveal high rates of depressive symptoms after a manmade environmental disaster, as well as a relationship between female youth mental wellness and caregiver well-being. Being able to understand and identify depression symptoms in both children and caregivers is an important aspect of public health services and reinforces the call for expanding mental health screening and treatment.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70058","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143533554","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Children's Risky Play and Resilience: Perspectives of Emergency Care Practitioners 儿童的危险游戏和复原力:紧急护理从业人员的观点
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-02-26 DOI: 10.1111/cch.70056
Michelle E. E. Bauer, Laura Cunningham, Meghan Gilley, Ian Pike
{"title":"Children's Risky Play and Resilience: Perspectives of Emergency Care Practitioners","authors":"Michelle E. E. Bauer,&nbsp;Laura Cunningham,&nbsp;Meghan Gilley,&nbsp;Ian Pike","doi":"10.1111/cch.70056","DOIUrl":"https://doi.org/10.1111/cch.70056","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parents' perspectives on children's risky play can provide researchers with insight into their injury prevention and safety needs and support researchers in understanding how challenging and exciting play may positively shape children's physical, cognitive, and social development. To date, however, the perspectives of parents who witness severe injuries as part of occupational experiences, and who have medical training, are lacking within this scholarship. In this study, we worked with emergency room practitioners to understand their perspectives on children's risky play and resilience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A risk and sociocultural theoretical lens informed our approach and we conducted semi-structured interviews with doctors and nurses (<i>n</i> = 56) across Canada who had children between the ages of 4 and 13.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Findings from a thematic analysis were threefold: (1) learning to persevere through failure, (2) developing distress tolerance, and (3) supporting child autonomy and independence.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Findings indicate doctors and nurses can perceive children as more emotionally and physically equipped to cope with stressful and potentially injurious situations across their lifespan if they are exposed to challenging and exciting play during childhood. Further, while the practitioners believed it was important to intervene in play which could result in children experiencing severe injuries, they believed adults should support children in testing their physical and cognitive boundaries during risky play without adult interference.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70056","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143490013","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caregiver Experiences of a Peer Mentor Family Physical Activity Programme in England: A Qualitative Interview Study 照顾者经验的同伴导师家庭体育活动计划在英格兰:一个定性访谈研究
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-02-24 DOI: 10.1111/cch.70053
Rebecca Symes, Leah Jayes, Elizabeth Orton
{"title":"Caregiver Experiences of a Peer Mentor Family Physical Activity Programme in England: A Qualitative Interview Study","authors":"Rebecca Symes,&nbsp;Leah Jayes,&nbsp;Elizabeth Orton","doi":"10.1111/cch.70053","DOIUrl":"https://doi.org/10.1111/cch.70053","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Physical inactivity is a major risk factor for developing chronic disease and contributes to health inequalities. Many children and adults do not achieve recommended physical activity targets. Active Families was a pilot programme that aimed to increase physical activity in families in the East Midlands, UK, using volunteer peer mentor support. This study aimed to explore caregiver experiences of family physical activity in participants of the programme Active Families.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Qualitative, semi-structured interviews were conducted with 13 caregiver participants of Active Families. Interview transcripts were explored using thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Most caregivers reported increased family physical activity and improvements in health and relationships. Attitudes towards family physical activity became more positive and role modelling encouraged families to be active. Volunteer peer mentors aided families using behaviour change techniques and provided psychological, emotional and practical support. Volunteers maintained programme delivery during the coronavirus pandemic, and exercise was used by some as a coping strategy. Some older children did not engage well with the programme, and maintaining physical activity was a challenge for others.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Caregivers reported improved experiences of family physical activity, with positive impacts on wellbeing and family life reported. The family–volunteer relationship appeared to be key. Behaviour change techniques and providing holistic support should therefore be considered when designing family physical activity programmes. Further research is needed to understand how best to engage older children in family physical activity and ensuring physical activity is maintained.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70053","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143481613","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Outpatient Management of Clinical Comorbidities in Children With Cerebral Palsy in Low- and Middle-Income Countries 中低收入国家脑瘫儿童临床合并症的门诊管理
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-02-22 DOI: 10.1111/cch.70052
Bruno Leonardo Scofano Dias, Lenamaris Mendes Rocha Duarte, Daniela Fava, Fernanda Marinho de Lima
{"title":"Outpatient Management of Clinical Comorbidities in Children With Cerebral Palsy in Low- and Middle-Income Countries","authors":"Bruno Leonardo Scofano Dias,&nbsp;Lenamaris Mendes Rocha Duarte,&nbsp;Daniela Fava,&nbsp;Fernanda Marinho de Lima","doi":"10.1111/cch.70052","DOIUrl":"https://doi.org/10.1111/cch.70052","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Cerebral palsy (CP) is the most common physical disability of childhood. Its prevalence in low-and middle-income countries (LMICs) is over 3/1000 live births, about double the 1.6/1000 in high income countries (HICs). Multimorbidity is highly prevalent in CP. In LMICs, there are higher rates of prevalence, severity, comorbidities and mortality in children with CP. The evidence base for the recommendations in CP emanates overwhelmingly from studies conducted in HICs. Research conducted in LMICs settings, involving local clinicians, considering local context and investigating local solutions are urgently needed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This scoping review aimed to identify and synthesise current evidence on management of clinical comorbidities in children with CP in LMICs. The Joanna Briggs Institute guidelines were followed for the data extraction and analysis phases. The following questions guided the scoping review: What are the main clinical comorbidities in children with CP? What are the gold standards for diagnosis and treatment of these comorbidities? What options do we have to diagnose and treat these comorbidities in LMICs when gold standards are not available?</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 22 188 citations were identified by our search strategy, with 21 380 remaining after the removal of 808 duplicates. After screening titles and abstracts, 1918 citations progressed to full text review. A total of 194 articles met the eligibility criteria and were included in the review. The guiding questions of the review were answered for the following morbidities: respiratory impairments, dysphagia and aspiration, gastroesophageal reflux disease, drooling, obstructive sleep apnea syndrome, malnutrition, constipation, epilepsy, sleep disorders, spasticity, dystonia, pain, hip disorders, scoliosis and osteoporosis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This article highlights the need for interventions adapted to the realities of LMICs. Empowering paediatricians and healthcare professionals in LMICs is crucial for early diagnosis and proactive interventions. Specific guidelines for LMICs can better guide professionals in managing these complex conditions.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143466104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of Telerehabilitation on Handwriting Performance in Children With Attention Deficit Hyperactivity Disorder: Randomized Controlled Trial 远程康复训练对注意力缺陷多动障碍儿童手写能力的影响:随机对照试验
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-02-20 DOI: 10.1111/cch.70055
Büşra Kaplan Kılıç, Gonca Bumin, Hakan Öğütlü
{"title":"Effect of Telerehabilitation on Handwriting Performance in Children With Attention Deficit Hyperactivity Disorder: Randomized Controlled Trial","authors":"Büşra Kaplan Kılıç,&nbsp;Gonca Bumin,&nbsp;Hakan Öğütlü","doi":"10.1111/cch.70055","DOIUrl":"https://doi.org/10.1111/cch.70055","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Children with attention deficit hyperactivity disorder (ADHD) frequently encounter challenges in their fine motor skills, an area that therapists target for enhancement through therapeutic interventions. This study aimed to effect of telerehabilitation on handwriting performance in children with ADHD.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>In this randomized controlled trial, 70 children (33 girls and 37 boys) with ADHD aged between 6 and 8 years were randomly assigned to intervention and control groups. Fine motor skills and handwriting performance of both groups were evaluated pre–post-intervention using the Bruininks-Oseretsky Test of Motor Proficiency-2nd Edition (BOT-2) and Minnesota Handwriting Assessment (MHA) tests. The intervention group received fine motor skills training through telerehabilitation for 8 weeks, 3 days a week, 40 min each session (totalling 24 sessions). The control group was placed on a waiting list for 8 weeks and did not receive any intervention. Statistical methods analysed changes within and between groups pre–post-intervention.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In the intervention group, intra-group change pre–post-intervention was observed in all subdomains of MHA except legibility (<i>p</i> &lt; 0.05). Compared with the control group, the intervention group showed significant differences in BOT-2 and MHA's subdomains.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>The results of this study suggest that fine motor skills training through telerehabilitation may be effective in improving the handwriting performance of children with ADHD.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70055","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143455880","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Environmental Factors Linked to Birth Outcomes in Urban Localities Across Argentina 环境因素与阿根廷城市地区的生育结果有关
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-02-20 DOI: 10.1111/cch.70054
Micaela Natalia Campero, María Dolores Román, Carlos Marcelo Scavuzzo
{"title":"Environmental Factors Linked to Birth Outcomes in Urban Localities Across Argentina","authors":"Micaela Natalia Campero,&nbsp;María Dolores Román,&nbsp;Carlos Marcelo Scavuzzo","doi":"10.1111/cch.70054","DOIUrl":"https://doi.org/10.1111/cch.70054","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The impact of environmental factors on health is a key focus in public health research. More studies are needed to explore how environmental determinants influence birth outcomes. This study investigates the regional relationship between environmental conditions and birth outcomes in urban areas of Argentina during 2018–2019.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data from 657 urban localities were analyzed. Prevalence rates of low birth weight (LBW), macrosomia, preterm births (PTB), and small for gestational age (SGA) births were calculated using data from the Health Statistics and Information Division. Environmental data were obtained from satellite sources. A principal component analysis with varimax rotation was applied to 22 environmental variables using Stata v15. The Kaiser–Meyer–Olkin (KMO) test evaluated sampling adequacy, and factor scores were calculated using regression analysis. Spatial distributions were mapped in QGIS 3.28, and clusters of environmental factors were identified through optimized hotspot analysis in ArcGIS Pro 3.2. Correlations between environmental factors and birth outcomes were assessed using correlograms in RStudio (<i>p</i> &lt; 0.05).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The spatial distribution of birth outcomes varied across the country. The analysis identified five factors, with a KMO score of 0.73. Spatial clustering was observed for all factors, with Pampeana and northern regions of Argentina showing the strongest adherence. Factor 1 (related to urban expansion) and Factor 3 (associated with high temperature) showed positive correlations with all birth outcomes. Factor 2 (favorable for vegetation) positively correlated with LBW and SGA births but negatively with macrosomia. Factor 4 (linked to extensive agriculture) was positively associated with LBW and PTB. Factor 5 (PM10 concentration) negatively correlated with macrosomia and SGA births.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study provides new insights into environmental determinants of birth outcomes. Regional analysis of these factors is essential for evidence-based decision-making, particularly in climate change context.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143447084","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychosocial Functioning for Preschool-Aged Siblings of Children With Chronic Disorders: A Scoping Review 患有慢性疾病儿童的学龄前兄弟姐妹的社会心理功能:一项范围审查
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-02-18 DOI: 10.1111/cch.70039
Caitlin M. Prentice, Krister Fjermestad, Yngvild Bjartveit Haukeland, Torun M. Vatne
{"title":"Psychosocial Functioning for Preschool-Aged Siblings of Children With Chronic Disorders: A Scoping Review","authors":"Caitlin M. Prentice,&nbsp;Krister Fjermestad,&nbsp;Yngvild Bjartveit Haukeland,&nbsp;Torun M. Vatne","doi":"10.1111/cch.70039","DOIUrl":"https://doi.org/10.1111/cch.70039","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>School-aged siblings of children with chronic disorders, including somatic, neurodevelopmental and psychological diagnoses, are at a small but significant risk of experiencing psychosocial difficulties. It is unclear whether this is the case for such siblings when they are preschool age.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>This scoping review examined research describing psychosocial challenges and adaptation among preschool-aged children who have a sibling with a chronic disorder, and interventions aimed to serve this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>We searched online databases for peer-reviewed studies published between 1998 and 2024 and identified 18 studies that reported psychosocial functioning such as psychological states, mental health variables and descriptions of experiences for 3- to 6-year-olds who were siblings of children with a neurodevelopmental disorder, somatic illness, mental illness or rare genetic disorder.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Of the 18 studies included, 15 were related to siblings of autistic children, and 12 of these aimed to study the development of autism in infants. Only two intervention studies were identified, and these had very small samples with maximum three participants in the 3- to 6-year-old age range.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Results across the included studies suggest that preschool-aged siblings may be at an increased risk of psychosocial difficulties, but it was difficult to draw definitive conclusions due to the large proportion of included studies related to the development of autism and the heterogeneity of study types represented. Future research should focus on the psychosocial functioning of preschool-aged siblings and target preschool-aged siblings of children with chronic disorders beyond autism.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70039","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143438877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Needs and Expectations of Nurse-Led Digital Support Among Parents of Children in Child Health Care 儿童卫生保健中护士主导的儿童家长数字化支持的需求与期望
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-02-14 DOI: 10.1111/cch.70032
Lotha Valan, Ulf Isaksson, Åsa Hörnsten
{"title":"Needs and Expectations of Nurse-Led Digital Support Among Parents of Children in Child Health Care","authors":"Lotha Valan,&nbsp;Ulf Isaksson,&nbsp;Åsa Hörnsten","doi":"10.1111/cch.70032","DOIUrl":"https://doi.org/10.1111/cch.70032","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Sweden has an extensive national child health care programme (CHCP) implying that all parents are offered support to raise their children and support them for healthy development. The programme is today built on personal physical contacts and digital components unusual. Although the digital world could be frightening and insecure, it also has benefits, because it is not dependent on face-to face meetings and is accessible more hours. In order to develop a digital channel to complement the CHPC, for the support of parents of children within child health care (CHC), parents' perspectives must be investigated. The aim of the study was therefore to describe parents' needs and expectations of digital support in the context of child health care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The study had a qualitative approach using workshop discussions with parents as data. The interview data were analysed using qualitative content analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The main theme highlights that parents expected that a digital support channel would be something that might strengthen them towards independence concerning the care of their children, in a positive way. However, they also felt that they needed personal support and that relationships with other parents and the child health care nurse were significant and meaningful. Another parental desire that emerged was that a future digital channel would facilitate and simplify access to care and they suggested having both planned and urgent times available for parents to book. The digital channel was expected to make this possible and be a good complement to the physical contacts the traditional child health care currently offers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion/Conclusions</h3>\u0000 \u0000 <p>The parents in this study believed that digital solutions could increase their parental power in relation to the care of their children. Examples were given as digital nurse-led parent groups where parents with similar problems and experiences around their children could support each other and were expected to strengthen them over time. The parents stressed that a planned digital support channel also needs satisfactory solutions for both contact and response and have bookable digital meetings for both planned and urgent needs.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70032","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143423650","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers and Facilitators of Home Programmes in Children With Cerebral Palsy: A Systematic Review and a Metasynthesis 脑瘫儿童家庭项目的障碍与促进因素:系统回顾与综合
IF 1.8 4区 医学
Child Care Health and Development Pub Date : 2025-02-12 DOI: 10.1111/cch.70049
Mª. Inmaculada Medina-Valera, Aarón Fernández-Del Olmo, Elena Pinero-Pinto
{"title":"Barriers and Facilitators of Home Programmes in Children With Cerebral Palsy: A Systematic Review and a Metasynthesis","authors":"Mª. Inmaculada Medina-Valera,&nbsp;Aarón Fernández-Del Olmo,&nbsp;Elena Pinero-Pinto","doi":"10.1111/cch.70049","DOIUrl":"https://doi.org/10.1111/cch.70049","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>One of the treatments with the greater scientific support for children with cerebral palsy (CP) are home programmes (HP). However, its implementation may be complex in some cases. A systematic review was conducted to explore the existing literature on the following question: What are the barriers and facilitators to implementing HP for children with CP?</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Material and Methods</h3>\u0000 \u0000 <p>The articles were extracted from the Web of Science (WoS), Scopus, ERIC, PubMed and CINAHL databases. Inclusion criteria: articles based on therapies conducted at home, for children with CP aged 0–8 years and their families, published in English and Spanish. Exclusion criteria: reviews, studies of cases and controls and one-case studies. The risk of bias was assessed through Cochrane tools Risk of Bias (RoB) I, RoB 2 and RoB E.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-one articles were selected from a total of 1.336, with 523 families and professionals. A qualitative research was carried out through content analysis using inductive coding and subsequent analytical categorization within an interpretative paradigm. Six themes were obtained: participation, personal cost and social support, family impact, training, professional role and efficacy. The quantitative results were analysed descriptively. They address HP research in a superficial manner.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Barriers: lack of time or availability to attend to the children one by one, poor economic and social support networks and sensitive emotional situation. Facilitators: training, adapted treatment objectives, activities within the daily routine and fluid family-professional communication. Limitation: Only one article could be found that analysed family variables, considering the possible confounding variables. There is no funding source for this review. Registered in PROSPERO with code number: CRD42023477735.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143388916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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