Mª. Inmaculada Medina-Valera, Aarón Fernández-Del Olmo, Elena Pinero-Pinto
{"title":"Barriers and Facilitators of Home Programmes in Children With Cerebral Palsy: A Systematic Review and a Metasynthesis","authors":"Mª. Inmaculada Medina-Valera, Aarón Fernández-Del Olmo, Elena Pinero-Pinto","doi":"10.1111/cch.70049","DOIUrl":"https://doi.org/10.1111/cch.70049","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>One of the treatments with the greater scientific support for children with cerebral palsy (CP) are home programmes (HP). However, its implementation may be complex in some cases. A systematic review was conducted to explore the existing literature on the following question: What are the barriers and facilitators to implementing HP for children with CP?</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Material and Methods</h3>\u0000 \u0000 <p>The articles were extracted from the Web of Science (WoS), Scopus, ERIC, PubMed and CINAHL databases. Inclusion criteria: articles based on therapies conducted at home, for children with CP aged 0–8 years and their families, published in English and Spanish. Exclusion criteria: reviews, studies of cases and controls and one-case studies. The risk of bias was assessed through Cochrane tools Risk of Bias (RoB) I, RoB 2 and RoB E.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-one articles were selected from a total of 1.336, with 523 families and professionals. A qualitative research was carried out through content analysis using inductive coding and subsequent analytical categorization within an interpretative paradigm. Six themes were obtained: participation, personal cost and social support, family impact, training, professional role and efficacy. The quantitative results were analysed descriptively. They address HP research in a superficial manner.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Barriers: lack of time or availability to attend to the children one by one, poor economic and social support networks and sensitive emotional situation. Facilitators: training, adapted treatment objectives, activities within the daily routine and fluid family-professional communication. Limitation: Only one article could be found that analysed family variables, considering the possible confounding variables. There is no funding source for this review. Registered in PROSPERO with code number: CRD42023477735.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143388916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Investigation of Complementary Feeding Transition Behaviours in Mothers in the Process of Transition to Complementary Feeding: A Cross-Sectional Study","authors":"Fatma Şule Bilgiç","doi":"10.1111/cch.70043","DOIUrl":"https://doi.org/10.1111/cch.70043","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The transition to complementary feeding directly affects child health. In this period, economic and cultural factors affect the transition to complementary feeding. The aim of this study was to investigate the transition behaviours of mothers with 6-month-old babies who were in the process of transition to complementary feeding.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The cross-sectional study was conducted between February and April 2024. The study sample consisted of 721 mothers with 6-month-old babies. The data were obtained through snowball sampling method on the online platform. The study focused on mothers' demographic and Transition to Complementary Feeding Behaviors Scale (TCFBS) results. Data were obtained on an online platform. Difference, correlation and regression analyses were performed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The mean age of the mothers included in the study was 27.58 ± 3.87. The TCFBS total score of the mothers included in the study was 92.01 ± 15.18. There was a statistically significant difference between the education and income status of the mothers and the gender of the baby and TCFBS total score (<i>p</i> < 0.05). According to the regression analysis, it is possible to explain approximately 46.4% of the variable of transition behaviour to complementary feeding in dependent mothers with the gender of the baby and the educational status of the mother.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Complementary feeding transition behaviour of mothers in the process of transition to complementary feeding was found to be positive. It was found that the complementary feeding behaviour of the mothers was affected by the gender of the baby and education, and the transition to complementary feeding behaviours of mothers with female babies and university graduates were positive. It can be said that mothers need care and counselling from midwives and nurses in this period.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70043","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143389075","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yao Wei, Yan Ji, Miaoying Chen, Tao Deng, Shaofei Liu, Yushen Dai, Lifeng Zhang
{"title":"Affiliate Stigma and Its Predictors in Parents of Children With Autism in the Early Post-diagnosis Phase","authors":"Yao Wei, Yan Ji, Miaoying Chen, Tao Deng, Shaofei Liu, Yushen Dai, Lifeng Zhang","doi":"10.1111/cch.70048","DOIUrl":"https://doi.org/10.1111/cch.70048","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Affiliated stigma refers to internalized stigma among family members of stigmatized individuals. Affiliate stigma experienced by parents of children with autism plays a vital role in both the child's rehabilitation and the parents' well-being, whereas the affiliate stigma and its possible predictors need to be further examined.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aims</h3>\u0000 \u0000 <p>The study aims to describe the characteristics of affiliate stigma experienced by parents of children with autism in the early post-diagnosis period and to explore its predictors.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The study was conducted from September 2020 to March 2022 in Guangzhou, China. Participants included 116 parents of children newly diagnosed with autism who completed baseline self-report measures of affiliate stigma (Affiliate Stigma Scale [ASS]), coping style (Simplified Coping Style Questionnaire [SCSQ]) and social support (Social Support Rating Scale [SSRS]) at the initial diagnosis (T1) and 1-year follow-up (T2). Autism features were assessed by parents using the Autism Behavior Checklist at T1. Generalized estimating equations were used to identify the key predictors of affiliate stigma.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Scores for parental affiliate stigma were 43.4 ± 13.7 at the initial diagnosis and 44.7 ± 15.9 one year later. Parents of children with siblings or co-occurring conditions experienced higher levels of affiliate stigma, and negative coping styles and lower levels of subjective support predicted higher affiliate stigma during the first year after autism diagnosis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Parents experienced moderate and stable affiliate stigma during the first year after their children's autism diagnosis, especially those with children who have siblings or co-occurring conditions and thus need additional support. Interventions should be focused on reducing negative coping and providing more subjective social support.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143389130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Qin Yang, Yachun Ai, Yan Chi, Xuanru Guo, Shuangjin Liu, Qi Qi, Yiqiu Hu
{"title":"The Relationship Between Family Functioning and Depressive Symptoms in Primary School Children: The Mediating Role of Friendship Quality and the Moderating Role of Teacher–Student Relationship","authors":"Qin Yang, Yachun Ai, Yan Chi, Xuanru Guo, Shuangjin Liu, Qi Qi, Yiqiu Hu","doi":"10.1111/cch.70050","DOIUrl":"https://doi.org/10.1111/cch.70050","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study drew on social ecosystem theory, the comprehensive model of family socialization and the multiple-attachment theory to explore three key aspects: the association between family functioning and depressive symptoms in primary school children, the mediating role of friendship quality and the moderating role of teacher–student relationship in these associations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A total of 1024 students in Grades 4 through 6 from five schools in Hunan Province were surveyed using the Short Form of the Center for Epidemiological Studies Depression Scale, the Family Caring Index Questionnaire, the Friendship Quality Questionnaire (FQQ) and teacher–student relationship Subscale of the ‘My Class’ questionnaire.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>(1) Depressive symptoms were significantly negatively correlated with family functioning, friendship quality, and teacher–student relationship. (2) Family functioning was significantly associated with depressive symptoms in primary school children. (3) Friendship quality mediated the relationship between family functioning and depressive symptoms. (4) Teacher–student relationship moderated the relationship between family functioning and friendship quality, as well as between friendship quality and depressive symptoms in primary school children.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Effective family functioning was significantly associated with improved friendship quality in primary school children, which in turn was associated with lower depressive symptoms. This association was further strengthened by a positive teacher–student relationship. These findings provide valuable insights for developing collaborative interventions within the family–school framework to address childhood depression.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143380726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"‘We're Not in a Place Where We Can Thrive Yet’: A Qualitative Exploration of Systems of Health Promotion in Primary Schools in the Aftermath of the COVID-19 Pandemic","authors":"Annemarie E. Bennett","doi":"10.1111/cch.70044","DOIUrl":"https://doi.org/10.1111/cch.70044","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Health promotion in schools can be defined as any activity undertaken to improve the health of all school users. This qualitative study aimed to explore the systems of health promotion in primary schools in the aftermath of the COVID-19 pandemic, from the perspectives of teachers and principals in the Republic of Ireland.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Participants were recruited using snowball and convenience sampling techniques via a larger quantitative study. Participants joined 45-min online focus groups informed by a semi-structured interview guide. A reflexive thematic approach was taken to analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thirty teachers participated, and most (<i>n =</i> 26) identified as female. Teaching experience across the sample ranged from 2 to 38 years. School sizes ranged from 20 to 850 students. All types of eligible publicly funded schools were represented. Three themes were generated: rebuilding the foundation, choosing within our limits and drawing the line.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Findings indicate that systems of health promotion in primary schools were severely challenged during the COVID-19 pandemic and that recovery will be lengthy. School communities are well-positioned to have a leading role in primary and secondary disease prevention, but investment is needed to establish resilient frameworks for health promotion as child health issues provoked by the pandemic are addressed over the coming years.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70044","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143380725","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Occupational Balance and Life Satisfaction in Parents of Children With Autism","authors":"Gülşah Zengin Yazici, Kardelen Yildirim","doi":"10.1111/cch.70047","DOIUrl":"https://doi.org/10.1111/cch.70047","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Having a child with disabilities can affect occupational balance, which is a known risk factor for health and well-being. The objective of this study was to examine the occupational balance and life satisfaction of parents of children with autism and neurotypical development in Turkey.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The cross-sectional study included 140 parents of children with autism and 140 parents of children with typical neurodevelopment. The occupational balance of parents was evaluated using the Turkish Occupational Balance Questionnaire-11 (OBQ11-T), while their life satisfaction was assessed using the Contentment with Life Scale (CLAS).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A significant difference was observed between the groups with regard to the OBQ11-T total score and the scores of Items 4 and 9 (<i>p</i> < 0.05). Additionally, a significant discrepancy was observed in the CLAS total scores between the two groups. A positive correlation was observed between the OBQ11-T and CLAS total scores of parents of children with autism (<i>r</i> = 0.875; <i>p</i> < 0.001).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The findings suggest that occupational therapists should support parents of children with autism by addressing the balance between obligatory and discretionary activities, as well as the connections between work, home, family, leisure, rest and sleep. Assessing life satisfaction and its influencing factors is also essential. Therapists should implement tailored interventions to promote roles, routines and occupational participation, ultimately improving life satisfaction. These findings highlight the importance of targeted strategies to enhance occupational balance and well-being. Future research should explore causal mechanisms through longitudinal and interventional studies to deepen understanding and improve outcomes.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143362715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Revi Bonder, Shauna Beaudoin, Lorry Chen, Paige Church, Marie Hooper, Melissa Thorne, Alene Toulany, Amy C. McPherson
{"title":"Exploring the Extent and Nature of Disordered Eating Among Canadian Adolescents and Young Adults With Spina Bifida and Hydrocephalus","authors":"Revi Bonder, Shauna Beaudoin, Lorry Chen, Paige Church, Marie Hooper, Melissa Thorne, Alene Toulany, Amy C. McPherson","doi":"10.1111/cch.70046","DOIUrl":"https://doi.org/10.1111/cch.70046","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Adolescents and young adults (AYA) with spina bifida and/or hydrocephalus (SBH) are at a higher risk for disordered eating, poor body image and body dissatisfaction. Regrettably, there is limited research on the eating patterns and behaviours of AYA with SBH, as well as their body image perceptions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>The purpose of this study was to explore the nature of disordered eating behaviours among AYA with SBH and their perceptions surrounding their body image. This study represents the first investigation of its kind conducted within a Canadian population. It fills a literature gap regarding the understanding of disordered eating behaviours and body image perceptions among young individuals with SBH in Canada.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The study comprised a self-report, cross-sectional online survey of AYA with SBH across Canada. The survey comprised validated brief measures to evaluate eating behaviours, disordered eating and body esteem. AYA aged 12–26 years with any type of SBH were eligible to participate.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-four participants were recruited. Results indicated that AYA with SBH may face an elevated risk for eating disorders/disordered eating compared to their typically developing peers, due to a myriad of reasons not typically experienced in the general population such as bowel and bladder management, mobility issues and eating aversions. Findings also indicated that some AYA with SBH may have poor body image and that it is possible that this is not discussed in SBH clinics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Our work underscores the urgency for further research that focuses on assessing eating disorders/disordered eating behaviours in AYA with SBH.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70046","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143186523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Manasa Kolibylu Raghupathy, Selim Jahangir, Sonia Khurana, Leslie Edward S. Lewis, Bhamini Krishna Rao
{"title":"‘I Did Not Know We Could Exercise This Small Premature Baby’: Challenges Experienced by Parents While Implementing Early Intervention for Their Preterm Infants—A Qualitative Perspective","authors":"Manasa Kolibylu Raghupathy, Selim Jahangir, Sonia Khurana, Leslie Edward S. Lewis, Bhamini Krishna Rao","doi":"10.1111/cch.70045","DOIUrl":"https://doi.org/10.1111/cch.70045","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Preterm birth is a highly stressful experience for both parents and infants. Parental participation in care enhances developmental outcomes, fosters parent–infant interactions and builds parental confidence. However, low parental adherence has always been a challenge in the successful implementation of intervention programs both in the NICU and at home. It is imperative to understand parents' perspectives and view the challenges that they experience through their lens while providing early intervention to their infants born preterm. This study is aimed at identifying new parents' challenges when implementing early intervention programs for their infants during the transition from hospital to home.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Ten parents of preterm infants trained to administer early intervention programs in the NICU and at home were recruited during their infants' 3-month follow-up. Semistructured in-depth interviews were conducted until data saturation. The audio recordings of the interviews were transcribed and translated into English. Thematic analysis, using ATLAS.ti Version 8.0 software, identified overarching challenges through deductive and inductive coding.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Data analysis identified five recurring themes: (1) navigating early days of parenthood, (2) nurturing resilience in infant care, (3) supporting infants through informed caregiving, (4) maximizing efficiency in infant care through time mastery and (5) balancing equity and flexibility in caregiving. Parents expressed fear of handling their infants born preterm because of their low birth weight and small size. Time constraints, changing sleep patterns and daily routines make it difficult for mothers to adhere to exercise programs. Parents also face challenges when infants exhibit stressful behaviour. Furthermore, gender differences were observed, with fathers often not continuing the program at home.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The study highlights parents' main challenges when providing early intervention for infants born preterm at home. It emphasizes issues related to maternal roles, family support and difficulties in infant handling, exercise and time management.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Trial Registration</h3>\u0000 \u0000 <p>ClinicalTrials.gov identifier: CTRI/2020/09/027994.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70045","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143186524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gráinne Lawlor, Aoife Ryan, Olivia Battault, Laura Brown, Derbhla Peppard, David Mockler, Michelle Spirtos
{"title":"The Transition to Adulthood From the Perspectives of Young People With Cerebral Palsy and Their Caregivers: A Systematic Literature Review","authors":"Gráinne Lawlor, Aoife Ryan, Olivia Battault, Laura Brown, Derbhla Peppard, David Mockler, Michelle Spirtos","doi":"10.1111/cch.70036","DOIUrl":"10.1111/cch.70036","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The transition to adulthood can be a complex time in the lives of young people with cerebral palsy (CP). There is a lack of research examining this period from the perspectives of young people and their caregivers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective/Aims</h3>\u0000 \u0000 <p>The review sought to identify challenging experiences during the transition to adulthood from the perspectives of young people with CP and their caregivers and to examine factors that acted as barriers and enablers to positive transition outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A systematic literature review of peer-reviewed, empirical studies was completed. Thirteen articles were extracted and analysed using a narrative synthesis approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The findings identified challenges for the young people in the areas of independent living, sexuality and relationships, navigating health and social care systems, feeling different from their peers and increasing autonomy. Barriers contributing to negative experiences included overprotective parents and a lack of resources. Greater motor ability, supportive parents and knowledgeable healthcare practitioners enabled positive transition outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The transition to adulthood presents multiple challenges as perceived by young people with CP and their caregivers. Both parties require greater support to address these challenges during this time. Further research is required to develop interventions that can support this transition experience.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Julia de Kadt, Anita Jeyam, Sheru W. Muuo, George Okello, Emma Jolley, Elena Schmidt
{"title":"Developmental Scores and Prevalence of Functional Difficulty Among Preschool Children in Kenya","authors":"Julia de Kadt, Anita Jeyam, Sheru W. Muuo, George Okello, Emma Jolley, Elena Schmidt","doi":"10.1111/cch.70037","DOIUrl":"10.1111/cch.70037","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Disability-inclusive early childhood development and education (ECDE) plays a crucial role in ensuring that all children, including those with disabilities, reach their developmental potential. However, there is little data on the prevalence of disability in mainstream ECDE in most low- and middle-income countries (LMICs), or on early learning and developmental outcomes of children with disabilities in these classrooms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data were collected on 1756 children aged 3–9 years enrolling in ECDE at 18 schools in Homa Bay or Turkana Counties, Kenya, at the start of the 2021 and 2022 school years. The UNICEF/Washington Group Child Functioning Module (CFM) measured the prevalence of functional difficulty, and the International Development Early Learning Assessment (IDELA) measured child development and learning.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Mainstream classes in sampled preschools included significant proportions of children with functional difficulties (19.9% in Homa Bay; 8.8% in Turkana). In both sites, the odds of having at least one functional difficulty were significantly higher among those aged 5 and above (OR = 2.82 for Homa Bay; 5.76 for Turkana). Multivariate regression found no relationship between functional difficulty and sex or household income.</p>\u0000 \u0000 <p>Among children aged 2–4 years in Homa Bay, functional difficulty was most often reported in the domain of controlling behaviour (4.4%), whereas in Turkana, mobility (1.4%) was most common. For children aged 5 and above in Homa Bay, difficulty with accepting change (11%) was most frequently reported, whereas in Turkana it was anxiety (6%).</p>\u0000 \u0000 <p>Median IDELA scores were 49 in Homa Bay and 31 in Turkana. Scores increased with child age. Regression models accounting for age- and school-level clustering found no statistically significant differences by sex. Functional difficulties were associated with lower median IDELA scores in Turkana only (<i>β</i> = −5.44 [−8.86, −2.02]).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Findings highlight the importance of appropriate, sustainable support for inclusive ECDE in both settled communities and refugee settings.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11774131/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054238","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}