{"title":"脑瘫儿童家长参与以接纳与承诺治疗为基础的线上亲子课程的经验","authors":"Koa Whittingham, Tara Crandon, Catherine Mak, Jeanie Sheffield, Ashleigh Wright, Grace Kirby, Roslyn N. Boyd","doi":"10.1111/cch.70075","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>To understand the experiences of parents of children with cerebral palsy (CP) participating in an online parenting course grounded in acceptance and commitment therapy (PACT) from an implementation perspective.</p>\n </section>\n \n <section>\n \n <h3> Method</h3>\n \n <p>Fifty-five parents from 50 families of children with CP (GMFCS I = 21, II = 15, III = 8, IV = 8, V = 3) participated in this mixed methods study. Families were drawn from 67 families participating in an RCT of PACT. Parents participated in a qualitative interview and gave additional feedback on 10-point Likert scales and open-ended questions via the course platform. The implementation analysis consisted of a thematic analysis as well as descriptive statistics, <i>t</i>-tests and ANOVAs to examine the impact of child age and motor functioning as potential barriers.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Parents reported that they liked both the ACT content and the online format, and the modules were rated highly in the course feedback (7–9 on 10-point Likert scales). Parents reported positive changes for both them and their child. Parents of younger (2–5 years) children rated the videos from Module One Living a Meaningful Life more highly than parents of older (6–10 years) children. There were no other effects of child age or motor functioning.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Overall, parental response to PACT was positive, and child age and motor functioning level were not barriers. The online format of the programme and ACT content were well suited to the needs of this population. In particular, the ACT components of values and mindfulness were found to be particularly relevant. Implementation should focus on understanding that ACT can be psychologically challenging, ensuring that parents who need individualised support for intervention adaptation receive it, providing good support to address technological difficulties and building effective reminders into the intervention protocol.</p>\n \n <p><b>Trial Registration:</b> Australian New Zealand Clinical Trials Registry: ACTRN12616000351415</p>\n </section>\n </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 3","pages":""},"PeriodicalIF":1.8000,"publicationDate":"2025-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.70075","citationCount":"0","resultStr":"{\"title\":\"Experiences of Parents of Children With Cerebral Palsy Participating in an Online Parenting Course Grounded in Acceptance and Commitment Therapy\",\"authors\":\"Koa Whittingham, Tara Crandon, Catherine Mak, Jeanie Sheffield, Ashleigh Wright, Grace Kirby, Roslyn N. 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引用次数: 0
摘要
背景从实施的角度了解脑瘫（CP）患儿家长参与以接纳与承诺治疗（PACT）为基础的在线育儿课程的体验。方法50个CP患儿家庭55名家长（GMFCS I = 21, II = 15, III = 8, IV = 8, V = 3）采用混合方法进行研究。从参与PACT随机对照试验的67个家庭中抽取家庭。家长们参加了一次定性访谈，并通过课程平台就10分李克特量表和开放式问题提供了额外的反馈。实施分析包括专题分析以及描述性统计、t检验和方差分析，以检查儿童年龄和运动功能作为潜在障碍的影响。结果家长们报告说，他们喜欢ACT的内容和在线形式，课程反馈对这些模块的评价很高（10分李克特量表7-9分）。父母们报告说，他们和孩子都发生了积极的变化。年幼孩子（2-5岁）的家长对《第一单元：过有意义的生活》的评价要高于年长孩子（6-10岁）的家长。没有其他儿童年龄或运动功能的影响。结论家长对PACT的反应总体上是积极的，儿童的年龄和运动功能水平没有障碍。课程的在线形式和ACT的内容非常适合这一群体的需求。特别是，价值观和正念的ACT组成部分被发现特别相关。实施的重点应该是理解ACT可能具有心理挑战，确保需要个性化干预适应支持的父母得到它，为解决技术困难提供良好的支持，并在干预协议中建立有效的提醒。试验注册：澳大利亚新西兰临床试验注册：ACTRN12616000351415
Experiences of Parents of Children With Cerebral Palsy Participating in an Online Parenting Course Grounded in Acceptance and Commitment Therapy
Background
To understand the experiences of parents of children with cerebral palsy (CP) participating in an online parenting course grounded in acceptance and commitment therapy (PACT) from an implementation perspective.
Method
Fifty-five parents from 50 families of children with CP (GMFCS I = 21, II = 15, III = 8, IV = 8, V = 3) participated in this mixed methods study. Families were drawn from 67 families participating in an RCT of PACT. Parents participated in a qualitative interview and gave additional feedback on 10-point Likert scales and open-ended questions via the course platform. The implementation analysis consisted of a thematic analysis as well as descriptive statistics, t-tests and ANOVAs to examine the impact of child age and motor functioning as potential barriers.
Results
Parents reported that they liked both the ACT content and the online format, and the modules were rated highly in the course feedback (7–9 on 10-point Likert scales). Parents reported positive changes for both them and their child. Parents of younger (2–5 years) children rated the videos from Module One Living a Meaningful Life more highly than parents of older (6–10 years) children. There were no other effects of child age or motor functioning.
Conclusion
Overall, parental response to PACT was positive, and child age and motor functioning level were not barriers. The online format of the programme and ACT content were well suited to the needs of this population. In particular, the ACT components of values and mindfulness were found to be particularly relevant. Implementation should focus on understanding that ACT can be psychologically challenging, ensuring that parents who need individualised support for intervention adaptation receive it, providing good support to address technological difficulties and building effective reminders into the intervention protocol.
Trial Registration: Australian New Zealand Clinical Trials Registry: ACTRN12616000351415
期刊介绍：
Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.
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