Family Caregivers' Burden and Coping With Caring for Children With Cerebral Palsy: A Qualitative Study in a Low-Resourced Context, Ghana

IF 2 4区医学 Q2 PEDIATRICS

Child Care Health and Development Pub Date : 2025-07-21 DOI:10.1111/cch.70141

Asongo Akwobi Kisinna, Lillian Akorfa Ohene, Priscilla A. A. Attafuah

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Abstract

Background

The family caregivers of children with cerebral palsy experience various challenges during the caregiving trajectory.

Objectives

This study explores the family caregivers' burden and coping strategies with caring for children with cerebral palsy in Tamale Metropolis, Ghana.

Design

The study adopted an exploratory, descriptive phenomenological approach. Participants were recruited using a purposive sampling technique. Semistructured interviews were conducted, and we achieved data saturation with 15 participants. The data were analysed using a thematic approach.

Findings

The findings identified that physical strain, work-related challenges and stigma constituted the primary caregiver's burden. The coping strategies employed included emotional coping, displacement/ignoring, seeking knowledge and religious coping.

Implications

The nature of the care burden requires deliberate caregiver information and care support throughout the care trajectory. A formal support system will contribute to caregivers' effective and efficient coping with caring for children with cerebral palsy.

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家庭照顾者的负担和应对照顾脑瘫儿童：在低资源背景下的定性研究，加纳

背景脑瘫儿童的家庭照护者在照护过程中面临着各种挑战。目的探讨加纳塔马利市家庭照顾者照顾脑瘫儿童的负担及应对策略。本研究采用探索性、描述性现象学方法。参与者是使用有目的的抽样技术招募的。我们进行了半结构化访谈，15名参与者达到了数据饱和。使用专题方法对数据进行了分析。研究结果表明，身体压力、工作挑战和耻辱构成了照顾者的主要负担。应对策略包括情绪应对、转移/忽视、寻求知识和宗教应对。护理负担的性质需要在整个护理过程中提供深思熟虑的护理者信息和护理支持。一个正式的支持系统将有助于照料者有效和高效地照料脑瘫儿童。

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.