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Professionalizing the Role of Employment Consultants with Data and Microlearning: New Insights and Lessons Learned. 利用数据和微学习使就业顾问的角色专业化：新的见解和经验教训。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-04-16 DOI: 10.1080/19349491.2026.2654859
Alberto Migliore, Jill Eastman, Danielle Mahoehney, Sherry Healey, Ryan Wedeking, Jean Winsor
{"title":"Professionalizing the Role of Employment Consultants with Data and Microlearning: New Insights and Lessons Learned.","authors":"Alberto Migliore, Jill Eastman, Danielle Mahoehney, Sherry Healey, Ryan Wedeking, Jean Winsor","doi":"10.1080/19349491.2026.2654859","DOIUrl":"10.1080/19349491.2026.2654859","url":null,"abstract":"<p><p>Training is often recommended to professionalize the role of employment consultants. However, adult learning theory suggests that applying what is learned in training can be challenging without reinforcement in the workflow. This article examines how integrating data and microlearning into employment consultants' workflows can support the implementation of best practices in supported and customized employment. Thirteen employment programs used a tool that visualized individual, team, and project-wide data on employment service delivery, accompanied by microlearning. Over the 12-month intervention, time dedicated to supports leading to hire increased by 9%, to community-based supports by 49%, and to specific best practices in getting to know job seekers and finding jobs by 12%. Meanwhile, time devoted to non-employment tasks decreased by 20% and administrative tasks by 11%. These promising findings suggest that embedding data and microlearning in the workflow may help strengthen professional practice and improve employment outcomes for job seekers.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 3","pages":"237-252"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148727515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Turning Authorizations into Services: Parent Perspectives on Regional Center Utilization for School-Aged Children in California. 将授权转化为服务：加州学龄儿童区域中心利用的家长视角。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-07-09 DOI: 10.1080/19349491.2026.2692938
Robin L Dodds, Hilary Wu, Christina Toapanta
{"title":"Turning Authorizations into Services: Parent Perspectives on Regional Center Utilization for School-Aged Children in California.","authors":"Robin L Dodds, Hilary Wu, Christina Toapanta","doi":"10.1080/19349491.2026.2692938","DOIUrl":"10.1080/19349491.2026.2692938","url":null,"abstract":"<p><p>Program data from a large California Regional Center (RC) showed school-aged clients (5 to <22 years) under-utilized authorized services, with language factors implicated. We conducted semi-structured focus groups/interviews with parents/caregivers (<i>n</i> = 17) from May to August 2024, including a culturally adapted Spanish version. Transcripts underwent modified grounded-theory analysis. Seven themes emerged: advocacy, family stress, positivity/hope, knowledge gaps, obtaining/using services, service coordinators, and school issues. Parents reported persistent advocacy amid time, financial, and administrative burdens; uneven information (often peer-driven); variable coordinator responsiveness; reimbursement/communication gaps; and school shortages. Utilization hinges on navigability, language access, reimbursement design, and RC-school coordination. Recommendations include standardized bilingual onboarding, direct-pay/vendorized options, mentored coordinator onboarding/warm handoffs, and parent-to-parent navigation supports.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 4","pages":"328-338"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148726202","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Beyond Stereotypes: Understanding Romantic Relationships and Dating Perspectives of Chinese Youth with Intellectual and Developmental Disabilities. 超越刻板印象：理解中国智力和发育障碍青年的恋爱关系和约会观点。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-02-17 DOI: 10.1080/19349491.2025.2605360
Xu Wang, Yanfu Ji, Xianglin Fan
{"title":"Beyond Stereotypes: Understanding Romantic Relationships and Dating Perspectives of Chinese Youth with Intellectual and Developmental Disabilities.","authors":"Xu Wang, Yanfu Ji, Xianglin Fan","doi":"10.1080/19349491.2025.2605360","DOIUrl":"10.1080/19349491.2025.2605360","url":null,"abstract":"<p><p>This study explored the romantic relationship perspectives and experiences of Chinese youth with intellectual and developmental disabilities (IDD) through semi-structured interviews with 18 participants. Analysis revealed three themes: conceptualizations of love and relationships; barriers and facilitators to relationship pursuit; and support systems for romantic aspirations. Findings suggest that participants possess complex understandings of romantic relationships, face multi-layered barriers including family attitudes and limited social opportunities, and benefit from both formal and informal supports. Results highlight the need for comprehensive relationship education and culturally responsive approaches that balance individual aspirations with Chinese family values.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 2","pages":"145-159"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148724426","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Complex Food Insecurity Context Experienced by Households That Include People with Intellectual and Developmental Disabilities in the United States. 在美国，包括智力和发育障碍者在内的家庭所经历的复杂粮食不安全状况。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-08-27 DOI: 10.1080/19349491.2026.2712217
Debra L Brucker, Eric Calloway, Hyun Ju Kim, Grace Stott
{"title":"Complex Food Insecurity Context Experienced by Households That Include People with Intellectual and Developmental Disabilities in the United States.","authors":"Debra L Brucker, Eric Calloway, Hyun Ju Kim, Grace Stott","doi":"10.1080/19349491.2026.2712217","DOIUrl":"10.1080/19349491.2026.2712217","url":null,"abstract":"<p><p>Food security among adults with intellectual and developmental disabilities (IDD) and households that include a person with IDD is an understudied area. We conducted in-depth interviews with 22 low-income food insecure adults with IDD and family members of children with IDD who resided in the U.S. during late 2024 and early 2025 to develop a thorough understanding of their household food security context The four members of the research team used a rapid deductive approach to code the interview transcripts. Coding agreement was assured by having all four members code a small set of initial interviews and refining the codebook until coding agreement was moderate or strong among all coders. Each coder then conducted independent coding on a set of interviews. The study results show that low-income households that include a person with IDD often struggle to access the food necessary for their households due to a complex interaction of dietary requirements, economic factors, food acquisition challenges, limitations in the ability to prepare healthy foods, and barriers to accessing public and community-based nutrition assistance programs. To improve food security for low-income households that include a person with IDD will therefore require strategies that go beyond traditional approaches of providing in-kind assistance to purchase food or free food to consider what changes to environmental factors or policies and practices are needed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":" ","pages":"349-363"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148841853","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Self-Advocacy Activities and Voting Participation in Matched Samples of Americans with Intellectual and Developmental Disabilities. 美国智力和发育障碍配对样本的自我宣传活动和投票参与。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-09-08 DOI: 10.1080/19349491.2026.2712223
Matthew Bogenschutz, Michael Broda, Sarah Lineberry, Parthenia Dinora, Seb Prohn, Angela West
{"title":"Self-Advocacy Activities and Voting Participation in Matched Samples of Americans with Intellectual and Developmental Disabilities.","authors":"Matthew Bogenschutz, Michael Broda, Sarah Lineberry, Parthenia Dinora, Seb Prohn, Angela West","doi":"10.1080/19349491.2026.2712223","DOIUrl":"10.1080/19349491.2026.2712223","url":null,"abstract":"<p><p>Americans with intellectual and developmental disabilities (IDD) vote at rates below those of the total U.S. population. Self-advocacy may hold a key toward increasing voting opportunity. We used data from two sources, merged at the individual level and aggregated over five years to construct statistically equivalent groups of adults with IDD who had and had not participated in self-advocacy activities to see how their voting opportunity differed. People with IDD who participated in self-advocacy activities were 12.7% more likely to have had the opportunity to vote than similar people who had not engaged in self-advocacy activities. This suggests that systemic investments to enhance self-advocacy may assist people with IDD to become a more visible and powerful voting block.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":" ","pages":"364-373"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148913526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
National Profile of Adult SSI Recipients With Autism or Intellectual Disability in Medicaid. 在医疗补助中患有自闭症或智力残疾的成人SSI受助人的全国概况。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-02-18 DOI: 10.1080/19349491.2025.2576450
Kristy A Anderson, Ari Ne'eman, Wei-Lin Lee, Jonas Ventimiglia, Kiley J McLean, Lindsay Shea
{"title":"National Profile of Adult SSI Recipients With Autism or Intellectual Disability in Medicaid.","authors":"Kristy A Anderson, Ari Ne'eman, Wei-Lin Lee, Jonas Ventimiglia, Kiley J McLean, Lindsay Shea","doi":"10.1080/19349491.2025.2576450","DOIUrl":"https://doi.org/10.1080/19349491.2025.2576450","url":null,"abstract":"<p><p>This study uses 2019 national Medicaid data to examine Supplemental Security Income (SSI) recipients, focusing on working-aged beneficiaries with autism or intellectual disability (ID). Our findings reveal higher-than-average SSI participation among these groups, with a significant concentration of transition-aged recipients (18 to 25 years). Notably, outpatient psychiatric services were more commonly used by SSI recipients, despite overall similar service utilization between recipients and non-recipients. Automatic enrollment states have higher SSI participation compared to states requiring separate applications, particularly in those with more restrictive Medicaid eligibility criteria, suggesting that the absence of SSI recipients not enrolled in Medicaid from the data may bias results. These insights emphasize the need for targeted policy interventions to better address the unique needs of this population.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 1","pages":"15-28"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714179","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Supporting the Goal of Shared Citizenship. 支持共享公民的目标。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-04-20 DOI: 10.1080/19349491.2026.2653462
Karrie A Shogren, Marc J Tassé, Robert L Schalock, Ruth Luckasson
{"title":"Supporting the Goal of Shared Citizenship.","authors":"Karrie A Shogren, Marc J Tassé, Robert L Schalock, Ruth Luckasson","doi":"10.1080/19349491.2026.2653462","DOIUrl":"10.1080/19349491.2026.2653462","url":null,"abstract":"<p><p>The shared citizenship paradigm envisions, requires, and supports the engagement and full participation of people with disabilities as equal, respected, valued, participating, and contributing members of all aspects of society. The goals of shared citizenship are to enhance human dignity and autonomy, facilitate human endeavor, and maximize human engagement. This article describes how the goals of shared citizenship can be supported through a greater focus on systemic changes in research, policy, and practice that seeks to advance change across ecological systems and align the goals and principles of the Shared Citizenship Paradigm with change strategies. The article concludes with a discussion of how supporting the goals of shared citizenship involves changing the lens through which disability is viewed, to enhance systemic change across ecological systems.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 3","pages":"201-207"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148726852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Marriage Patterns and Societal Perceptions of Individuals With Intellectual Disability: Caregivers' Perspectives. 智障人士的婚姻模式与社会认知：照顾者的观点。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-01-12 DOI: 10.1080/19349491.2025.2576447
Basmah F Alshahrani, Khalid M Abu-Alghayth
{"title":"Marriage Patterns and Societal Perceptions of Individuals With Intellectual Disability: Caregivers' Perspectives.","authors":"Basmah F Alshahrani, Khalid M Abu-Alghayth","doi":"10.1080/19349491.2025.2576447","DOIUrl":"10.1080/19349491.2025.2576447","url":null,"abstract":"<p><p>Although people with intellectual disability have the right to marriage, societal perceptions may play a crucial role in either facilitating their opportunities or creating barriers. This study seeks to deepen the understanding of how caregivers perceive the marital opportunities of individuals with intellectual disability, as well as the associated concerns and society's roles in enhancing such opportunities. Utilizing an interpretive qualitative research approach, we collected data from 18 caregivers through in-depth semistructured interviews and focus group. The findings uncovered four main themes: right to marriage, intersection of disability and gender, marital concerns, and society's role in enhancing marital opportunities and stability, in addition to a number of subthemes. Implications and future directions are discussed according to the findings.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 2","pages":"101-114"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148723787","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Employment Related Self-Determination: Construct Validation Through Psychometric Evaluation of the Vocational Fit Assessment. 就业相关自我决定：基于职业契合度评估的构念验证。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-07-16 DOI: 10.1080/19349491.2026.2682769
Cristina Parsons, Dennis Cleary, Andrew C Persch
{"title":"Employment Related Self-Determination: Construct Validation Through Psychometric Evaluation of the Vocational Fit Assessment.","authors":"Cristina Parsons, Dennis Cleary, Andrew C Persch","doi":"10.1080/19349491.2026.2682769","DOIUrl":"10.1080/19349491.2026.2682769","url":null,"abstract":"<p><p>Self-determination (SD) of young adults with intellectual disability (ID) is necessary to their success beyond high school, but our understanding of the construct of SD does not sufficiently invoke environmental factors or context. We explore employment-related SD of young adults with ID using psychometric methods. This cross-sectional study examines the construct validity and internal consistency of the Vocational Fit Assessment (VFA)-SD (<i>n</i> = 309), then concurrent validity of the VFA-SD with the Self-Determination Inventory: Parent/Teacher Report (SDI-PTR; <i>n</i> = 233). Ordinal exploratory factor analysis strongly suggests that VFA-SD items measure one unidimensional construct. The mean inter-item correlation was 0.61, ordinal α = 0.97, and McDonald's ω = 0.87. The VFA-SD and the SDI-PTR were positively and moderately correlated, <i>R</i> = 0.61, <i>p</i> < .001. Taken together, these complementary psychometric results validate the use of the VFA-SD but also indicate potential benefits of item refinement and the opportunity to align with widely accepted Causal Agency Theory. This work highlights the critical need for all transition professionals to consider the context when selecting appropriate assessments to measure young adults' SD, as well as the need for future research that considers employment as a relevant contextual factor.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 4","pages":"282-295"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13632539/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148723312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing Privacy: What Aspects of Privacy Are Reported and Whose Experiences Are Not Represented? 评估隐私：隐私的哪些方面被报告了，谁的经验没有被代表？
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-16 DOI: 10.1080/19349491.2025.2583727
Seb M Prohn, Molly Taylor, Parthenia Dinora, Matthew Bogenschutz, Michael D Broda, Sarah Lineberry, Angela West
{"title":"Assessing Privacy: What Aspects of Privacy Are Reported and Whose Experiences Are Not Represented?","authors":"Seb M Prohn, Molly Taylor, Parthenia Dinora, Matthew Bogenschutz, Michael D Broda, Sarah Lineberry, Angela West","doi":"10.1080/19349491.2025.2583727","DOIUrl":"https://doi.org/10.1080/19349491.2025.2583727","url":null,"abstract":"<p><p>Standards of privacy are required for people with intellectual and developmental disabilities (IDD) receiving Medicaid Home and Community-Based Services (HCBS). The National Core Indicators In-Person Survey is one tool that people with IDD use to assess the presence, absence, and quality of their privacy. This study describes privacy assessments from a sample of 2,196 service users with IDD from 2021-2023 and shows that patterns of missing assessments are predicted by level of intellectual disability and nonverbal forms of communication. Missing privacy data, especially from those at greatest risk, poses a threat to community integration for people with IDD and requires the development of more accessible methods for collecting personal outcome data.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 1","pages":"75-86"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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