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Intellectual and Developmental Disabilities最新文献

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Feasibility and Acceptability of Spanish-Language Parenting Interventions for Young Children With Developmental Delays. 西班牙语育儿干预对发育迟缓幼儿的可行性和可接受性。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.307
Jonathan Safer-Lichtenstein, Laura Lee McIntyre, Geovanna Rodriguez, Douglas Gomez, Stephanie Puerta, Cameron L Neece
{"title":"Feasibility and Acceptability of Spanish-Language Parenting Interventions for Young Children With Developmental Delays.","authors":"Jonathan Safer-Lichtenstein, Laura Lee McIntyre, Geovanna Rodriguez, Douglas Gomez, Stephanie Puerta, Cameron L Neece","doi":"10.1352/1934-9556-61.4.307","DOIUrl":"10.1352/1934-9556-61.4.307","url":null,"abstract":"<p><p>Hispanic/Latinx parents of children with developmental delays/disabilities (DD) face disparities in service access and research participation. In the present study, 60 Spanish-speaking caregivers of young children with DD participated in randomly assigned stress reduction interventions (psychoeducation/support groups or Mindfulness-Based Stress Reduction [MBSR]), followed by behavioral parent training (BPT). Caregiver attendance and satisfaction ratings were measured, and focus groups gathered additional information on caregivers' takeaways from the interventions. Caregivers demonstrated high satisfaction across interventions, with slightly greater preference for psychoeducation/support groups, and qualitative data indicated that the relevance of the information and style of delivery may be responsible. Researchers and clinicians may attain greater engagement with this population by focusing on intervention services that include psychoeducation and peer support elements.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10575569/pdf/nihms-1935164.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10323355","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Participation and Companions for Socially Inclusive Community Activities by U.S. Adults With Intellectual and Developmental Disabilities. 美国智力和发育障碍成人参与社会包容性社区活动及其同伴。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.326
Roger J Stancliffe, Sandra L Pettingell, James Houseworth, Renáta Tichá
{"title":"Participation and Companions for Socially Inclusive Community Activities by U.S. Adults With Intellectual and Developmental Disabilities.","authors":"Roger J Stancliffe,&nbsp;Sandra L Pettingell,&nbsp;James Houseworth,&nbsp;Renáta Tichá","doi":"10.1352/1934-9556-61.4.326","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.326","url":null,"abstract":"<p><p>We investigated socially inclusive participation in mainstream community groups and religious services by U.S. adults with intellectual and developmental disabilities using weighted secondary analyses of 2018-2019 National Core Indicators data. Overall, 34.4% participated in community groups and 42.4% in religious services. Some 45.0% had an unmet desire for community-group participation, whereas most (75.0%) attended a religious service as often as preferred. The type of companion varied by living arrangements and age group. Attending community groups and religious services were each strongly associated with better friendship outcomes but were not related to loneliness. The large unmet demand for community-group participation reveals a major gap. The friendship outcomes underline the benefits of socially inclusive community participation.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9945730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Medicaid Home- and Community-Based Services Waivers for People With Intellectual and Developmental Disabilities. 智力和发育障碍者医疗补助家庭和社区服务豁免。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.269
Carli Friedman
{"title":"Medicaid Home- and Community-Based Services Waivers for People With Intellectual and Developmental Disabilities.","authors":"Carli Friedman","doi":"10.1352/1934-9556-61.4.269","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.269","url":null,"abstract":"<p><p>Medicaid Home- and Community-Based Services (HCBS) 1915(c) waivers are the most prominent funding mechanism for the long-term services and supports (LTSS) of people with intellectual and developmental disabilities (IDD). This study's aim was to conduct an in-depth national analysis of fiscal year (FY) 2021 HCBS 1915(c) waivers for people with IDD. In FY 2021, over $43.2 billion was projected for the HCBS of 861,038 people with IDD. An average of $47,315 was projected per person with IDD annually. The services that received the most funding were: residential habilitation; supports to live in one's own home; and day habilitation. HCBS is necessary so people with IDD can live and thrive in their communities.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9945728","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Factors Mediating the Link Between Socioeconomic Status and Academic Outcomes of Children With Intellectual Disability. 社会经济地位对智障儿童学业成绩影响的中介因素。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.280
Xichen Wang, Qianqian Wang, Minjie Ma, Zhengwei Gu, Yang Shi, Tingzhao Wang
{"title":"Factors Mediating the Link Between Socioeconomic Status and Academic Outcomes of Children With Intellectual Disability.","authors":"Xichen Wang,&nbsp;Qianqian Wang,&nbsp;Minjie Ma,&nbsp;Zhengwei Gu,&nbsp;Yang Shi,&nbsp;Tingzhao Wang","doi":"10.1352/1934-9556-61.4.280","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.280","url":null,"abstract":"<p><p>The study explores the influence of socioeconomic status (SES) on the academic outcomes of children with intellectual disability (ID), and the role of parental participation and parental attitudes toward educational communicators in this process. A total of 305 children with ID from special needs schools and their parents and teachers in China completed the survey. A structural equation model was built to explore the relation between the factors. Results indicated SES not only positively predicts the academic outcomes, but also predicts academic outcomes through the chain mediation of parental participation and parental attitudes towards educational communicators. Findings show the robustness of the Family Investment Model in Chinese contexts. Moreover, the role of parental participation and parental attitudes towards educational communicators cannot be ignored.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9945299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Resúmenes al Español 英文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.347
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1934-9556-61.4.347","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.347","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Intellect Dev Disabil 1 August 2023; 61 (4): 347–348. doi: https://doi.org/10.1352/1934-9556-61.4.347 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136064294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français 法文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.345
{"title":"Résumés en Français","authors":"","doi":"10.1352/1934-9556-61.4.345","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.345","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Intellect Dev Disabil 1 August 2023; 61 (4): 345–346. doi: https://doi.org/10.1352/1934-9556-61.4.345 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136064286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Direct Support Workforce: An Examination of Direct Support Professionals and Frontline Supervisors During COVID-19. 直接支持人员队伍：在 COVID-19 期间对直接支持专业人员和一线主管的考察。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.197
Sandra L Pettingell, Julie Bershadsky, Lynda Lahti Anderson, Amy Hewitt, John Reagan, Alicia Zhang
{"title":"The Direct Support Workforce: An Examination of Direct Support Professionals and Frontline Supervisors During COVID-19.","authors":"Sandra L Pettingell, Julie Bershadsky, Lynda Lahti Anderson, Amy Hewitt, John Reagan, Alicia Zhang","doi":"10.1352/1934-9556-61.3.197","DOIUrl":"10.1352/1934-9556-61.3.197","url":null,"abstract":"<p><p>Direct support professionals (DSPs) and frontline supervisors (FLSs) have critical roles in home and community-based services for people with intellectual and developmental disabilities. Low wages and high levels of responsibility created a long-term crisis in recruitment and retention and are exacerbated by the COVID-19 pandemic. A national sample of DSPs and FLSs were compared on demographics and work-related circumstances using data from the third Direct Support Workforce COVID-19 Survey. Significant differences were found in demographics, hours worked, wages, wage augmentations, and quality of work-life. Policy recommendations to address the worsening workforce crisis are provided.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10320723/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9756936","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Financial Planning Among Parents of Children With Intellectual and Developmental Disabilities. 智障儿童家长的财务规划。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.211
Rumi Agarwal, Laura M Heron, Shanna L Burke
{"title":"Financial Planning Among Parents of Children With Intellectual and Developmental Disabilities.","authors":"Rumi Agarwal,&nbsp;Laura M Heron,&nbsp;Shanna L Burke","doi":"10.1352/1934-9556-61.3.211","DOIUrl":"https://doi.org/10.1352/1934-9556-61.3.211","url":null,"abstract":"<p><p>Families of children with intellectual and developmental disabilities (IDD) experience significant financial hardship, which could improve through financial planning and utilization of accounts such as the Achieving a Better Life Experience (ABLE). Unfortunately, current rates of banking are low among individuals with disabilities, and no study has examined this phenomenon specifically among families of children with IDD. In this cross-sectional study, 176 parents shared their financial planning and utilization experience. Findings indicate that parents worry about their child's financial future, however, paradoxically, are not engaging in financial planning. Utilization of ABLE, checking and savings accounts, and special needs trusts are also low. Parents reported several programmatic and personal barriers which could inform immediate programmatic changes and long-term policy considerations.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9613807","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Promoting Resilience in Direct Support Professionals of Adults With Intellectual and Developmental Disabilities: A Qualitative Descriptive Study. 促进智力和发育障碍成人直接支持专业人员的弹性:一项定性描述性研究。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.250
Melissa L Desroches, Mirinda Tyo
{"title":"Promoting Resilience in Direct Support Professionals of Adults With Intellectual and Developmental Disabilities: A Qualitative Descriptive Study.","authors":"Melissa L Desroches,&nbsp;Mirinda Tyo","doi":"10.1352/1934-9556-61.3.250","DOIUrl":"https://doi.org/10.1352/1934-9556-61.3.250","url":null,"abstract":"<p><p>The direct support professional (DSP) workforce shortage crisis has reached untenable levels during the COVID-19 pandemic as DSPs rapidly exit the workforce. To gain a better understanding of factors that contribute to DSP resilience during stressful and challenging times, we interviewed 10 DSPs identified by colleagues as resilient to elicit strategies to promote DSP resilience. Our content analysis revealed nine distinct strategies: (a) communication; (b) self-worth and recognition; (c) authentic, equitable relationships; (d) embracing change and learning; (e) establishing and maintaining boundaries; (f) cultivating an intentional mindset; (g) self-care; (h) spirituality/\"the bigger picture\"; and (i) a daily practice of humor and fun.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9606053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.267
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1934-9556-61.3.267","DOIUrl":"https://doi.org/10.1352/1934-9556-61.3.267","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Intellect Dev Disabil 1 June 2023; 61 (3): 267–268. doi: https://doi.org/10.1352/1934-9556-61.3.267 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134903823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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