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Understanding the Effectiveness and Feasibility of a Family Navigator Program for Parents of Children With Autism. 了解自闭症儿童家长家庭导航计划的有效性和可行性。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-10-01 DOI: 10.1352/1934-9556-61.5.426
Meghan M Burke, W Catherine Cheung, Julianna Kim
{"title":"Understanding the Effectiveness and Feasibility of a Family Navigator Program for Parents of Children With Autism.","authors":"Meghan M Burke, W Catherine Cheung, Julianna Kim","doi":"10.1352/1934-9556-61.5.426","DOIUrl":"10.1352/1934-9556-61.5.426","url":null,"abstract":"<p><p>Systems navigation can be difficult, especially for low-resourced families (i.e., families who are \"low income\" or meet one of the following indicators: mother has a high school diploma or less; primary caregiver is unemployed; or the family receives governmental assistance). Navigators may help families access services; however, the training of navigators is unclear. The purpose of this study was to determine the effectiveness and feasibility of Supporting Parents to Access and Navigate Services (SPANS), a program to develop navigators. Altogether, 19 low-resourced parents of children with autism participated in SPANS. Participants demonstrated significantly improved knowledge about autism services and perceived advocacy for other families and systemic change. There was high attendance, low attrition, high acceptability, and high fidelity. Implications are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 5","pages":"426-439"},"PeriodicalIF":1.8,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10637767/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41152860","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Individualizing Instruction for Students With Intellectual and Developmental Disabilities in China: Teachers' Perceptions and Practices. 中国智力和发育障碍学生个性化教学：教师的观念和实践。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-10-01 DOI: 10.1352/1934-9556-61.5.385
Shuoxi Huang, Donna H Lehr, Zachary Rossetti, Mian Wang
{"title":"Individualizing Instruction for Students With Intellectual and Developmental Disabilities in China: Teachers' Perceptions and Practices.","authors":"Shuoxi Huang,&nbsp;Donna H Lehr,&nbsp;Zachary Rossetti,&nbsp;Mian Wang","doi":"10.1352/1934-9556-61.5.385","DOIUrl":"10.1352/1934-9556-61.5.385","url":null,"abstract":"<p><p>This study investigated Chinese special education teachers' perceptions and practices of individualizing instruction for students with intellectual and developmental disabilities (IDD). Semistructured interviews were conducted with 31 teachers who taught elementary Chinese language arts and math in six public special education schools for students with IDD in Shanghai. In addition, lesson plans written by 19 of the 31 teachers were collected. Thematic analysis revealed that teachers recognized the necessity of adapting instruction. However, practices and beliefs associated with one-size-fits-all approaches to teaching were prevalent. Although all teachers described making efforts to address individual differences, these efforts appeared to be inadequate. Teachers perceived fully addressing the needs of individual students as difficult and described challenges in four areas.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 5","pages":"385-398"},"PeriodicalIF":1.8,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41173454","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Recruiting the Voices of Persons With Intellectual and Developmental Disabilities in Policy Development: Priorities for Health Equity Data. 在政策制定中招募智力和发育障碍者的声音：卫生公平数据的优先事项。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-10-01 DOI: 10.1352/1934-9556-61.5.368
Gloria Krahn, Katherine Cargill-Willis, Lynda Bersani, Theresa Moore, Jennifer Johnson
{"title":"Recruiting the Voices of Persons With Intellectual and Developmental Disabilities in Policy Development: Priorities for Health Equity Data.","authors":"Gloria Krahn,&nbsp;Katherine Cargill-Willis,&nbsp;Lynda Bersani,&nbsp;Theresa Moore,&nbsp;Jennifer Johnson","doi":"10.1352/1934-9556-61.5.368","DOIUrl":"10.1352/1934-9556-61.5.368","url":null,"abstract":"<p><p>Through focus groups, adults with intellectual and developmental disabilities (IDD) provided their priorities for health equity data, surveys, and information dissemination by U.S. federal agencies. Participants reported privacy concerns about sharing information, need for better data to promote access to quality health care and services, and need for information on social contexts that influence quality of life. Data should include functional limitations, health risks, and priorities for health care, and should support choice and self-determination. Adults with IDD believe parents or support persons do not always share their views, raising concerns about proxy reporting. Surveys and information need to use clear language, visual aids, and provide neutral supports. Information should be shared broadly, including to persons with IDD and families, health care professionals, and policy makers.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 5","pages":"368-384"},"PeriodicalIF":1.8,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41166033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-09-29 DOI: 10.1352/1934-9556-61.5.442
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1934-9556-61.5.442","DOIUrl":"https://doi.org/10.1352/1934-9556-61.5.442","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Intellect Dev Disabil 1 October 2023; 61 (5): 442–443. doi: https://doi.org/10.1352/1934-9556-61.5.442 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"54 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135133107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français 法文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-09-29 DOI: 10.1352/1934-9556-61.5.440
{"title":"Résumés en Français","authors":"","doi":"10.1352/1934-9556-61.5.440","DOIUrl":"https://doi.org/10.1352/1934-9556-61.5.440","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Intellect Dev Disabil 1 October 2023; 61 (5): 440–441. doi: https://doi.org/10.1352/1934-9556-61.5.440 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135133106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pushing the Integrated Employment Agenda: Employment Systems Partners and the High-Performing States Model. 推动综合就业议程:就业系统合作伙伴和高绩效国家模式。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.292
Jean E Winsor, Cady Landa, Allison Cohen Hall, Caro Narby, Esther Kamau
{"title":"Pushing the Integrated Employment Agenda: Employment Systems Partners and the High-Performing States Model.","authors":"Jean E Winsor,&nbsp;Cady Landa,&nbsp;Allison Cohen Hall,&nbsp;Caro Narby,&nbsp;Esther Kamau","doi":"10.1352/1934-9556-61.4.292","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.292","url":null,"abstract":"<p><p>This article summarizes data collected from key informants in Iowa, Maryland, and Oklahoma regarding efforts to support integrated employment for people with intellectual and developmental disabilities (IDD). We highlight features that contribute to the effectiveness of collaborative structures that have resulted in each state's success in achieving integrated employment outcomes for individuals with IDD across three state systems: IDD, vocational rehabilitation, and education. We present these features using the seven elements of the High-Performing States Employment Model. These elements have been found to be important in achieving higher rates of competitive integrated employment outcomes for people with IDD.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 4","pages":"292-306"},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9945729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Participation and Companions for Socially Inclusive Community Activities by U.S. Adults With Intellectual and Developmental Disabilities. 美国智力和发育障碍成人参与社会包容性社区活动及其同伴。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.326
Roger J Stancliffe, Sandra L Pettingell, James Houseworth, Renáta Tichá
{"title":"Participation and Companions for Socially Inclusive Community Activities by U.S. Adults With Intellectual and Developmental Disabilities.","authors":"Roger J Stancliffe,&nbsp;Sandra L Pettingell,&nbsp;James Houseworth,&nbsp;Renáta Tichá","doi":"10.1352/1934-9556-61.4.326","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.326","url":null,"abstract":"<p><p>We investigated socially inclusive participation in mainstream community groups and religious services by U.S. adults with intellectual and developmental disabilities using weighted secondary analyses of 2018-2019 National Core Indicators data. Overall, 34.4% participated in community groups and 42.4% in religious services. Some 45.0% had an unmet desire for community-group participation, whereas most (75.0%) attended a religious service as often as preferred. The type of companion varied by living arrangements and age group. Attending community groups and religious services were each strongly associated with better friendship outcomes but were not related to loneliness. The large unmet demand for community-group participation reveals a major gap. The friendship outcomes underline the benefits of socially inclusive community participation.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 4","pages":"326-344"},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9945730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Feasibility and Acceptability of Spanish-Language Parenting Interventions for Young Children With Developmental Delays. 西班牙语育儿干预对发育迟缓幼儿的可行性和可接受性。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.307
Jonathan Safer-Lichtenstein, Laura Lee McIntyre, Geovanna Rodriguez, Douglas Gomez, Stephanie Puerta, Cameron L Neece
{"title":"Feasibility and Acceptability of Spanish-Language Parenting Interventions for Young Children With Developmental Delays.","authors":"Jonathan Safer-Lichtenstein, Laura Lee McIntyre, Geovanna Rodriguez, Douglas Gomez, Stephanie Puerta, Cameron L Neece","doi":"10.1352/1934-9556-61.4.307","DOIUrl":"10.1352/1934-9556-61.4.307","url":null,"abstract":"<p><p>Hispanic/Latinx parents of children with developmental delays/disabilities (DD) face disparities in service access and research participation. In the present study, 60 Spanish-speaking caregivers of young children with DD participated in randomly assigned stress reduction interventions (psychoeducation/support groups or Mindfulness-Based Stress Reduction [MBSR]), followed by behavioral parent training (BPT). Caregiver attendance and satisfaction ratings were measured, and focus groups gathered additional information on caregivers' takeaways from the interventions. Caregivers demonstrated high satisfaction across interventions, with slightly greater preference for psychoeducation/support groups, and qualitative data indicated that the relevance of the information and style of delivery may be responsible. Researchers and clinicians may attain greater engagement with this population by focusing on intervention services that include psychoeducation and peer support elements.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 4","pages":"307-325"},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10575569/pdf/nihms-1935164.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10323355","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medicaid Home- and Community-Based Services Waivers for People With Intellectual and Developmental Disabilities. 智力和发育障碍者医疗补助家庭和社区服务豁免。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.269
Carli Friedman
{"title":"Medicaid Home- and Community-Based Services Waivers for People With Intellectual and Developmental Disabilities.","authors":"Carli Friedman","doi":"10.1352/1934-9556-61.4.269","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.269","url":null,"abstract":"<p><p>Medicaid Home- and Community-Based Services (HCBS) 1915(c) waivers are the most prominent funding mechanism for the long-term services and supports (LTSS) of people with intellectual and developmental disabilities (IDD). This study's aim was to conduct an in-depth national analysis of fiscal year (FY) 2021 HCBS 1915(c) waivers for people with IDD. In FY 2021, over $43.2 billion was projected for the HCBS of 861,038 people with IDD. An average of $47,315 was projected per person with IDD annually. The services that received the most funding were: residential habilitation; supports to live in one's own home; and day habilitation. HCBS is necessary so people with IDD can live and thrive in their communities.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 4","pages":"269-279"},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9945728","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Factors Mediating the Link Between Socioeconomic Status and Academic Outcomes of Children With Intellectual Disability. 社会经济地位对智障儿童学业成绩影响的中介因素。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-08-01 DOI: 10.1352/1934-9556-61.4.280
Xichen Wang, Qianqian Wang, Minjie Ma, Zhengwei Gu, Yang Shi, Tingzhao Wang
{"title":"Factors Mediating the Link Between Socioeconomic Status and Academic Outcomes of Children With Intellectual Disability.","authors":"Xichen Wang,&nbsp;Qianqian Wang,&nbsp;Minjie Ma,&nbsp;Zhengwei Gu,&nbsp;Yang Shi,&nbsp;Tingzhao Wang","doi":"10.1352/1934-9556-61.4.280","DOIUrl":"https://doi.org/10.1352/1934-9556-61.4.280","url":null,"abstract":"<p><p>The study explores the influence of socioeconomic status (SES) on the academic outcomes of children with intellectual disability (ID), and the role of parental participation and parental attitudes toward educational communicators in this process. A total of 305 children with ID from special needs schools and their parents and teachers in China completed the survey. A structural equation model was built to explore the relation between the factors. Results indicated SES not only positively predicts the academic outcomes, but also predicts academic outcomes through the chain mediation of parental participation and parental attitudes towards educational communicators. Findings show the robustness of the Family Investment Model in Chinese contexts. Moreover, the role of parental participation and parental attitudes towards educational communicators cannot be ignored.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 4","pages":"280-291"},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9945299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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