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Evaluation Methods of Dysphagia in Adults With Intellectual Disability: A Scoping Review. 成人智力残疾患者吞咽困难的评估方法综述。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.136
Minttu Sauna-Aho, Leena Tuomiranta, Ahmed Geneid, Kaisa Launonen
{"title":"Evaluation Methods of Dysphagia in Adults With Intellectual Disability: A Scoping Review.","authors":"Minttu Sauna-Aho, Leena Tuomiranta, Ahmed Geneid, Kaisa Launonen","doi":"10.1352/1934-9556-63.2.136","DOIUrl":"10.1352/1934-9556-63.2.136","url":null,"abstract":"<p><p>Dysphagia is a serious but underdiagnosed health-related condition in people with intellectual disability (ID). In this scoping review, we provide an overview of dysphagia evaluation methods used in adults with ID. The data from 31 studies were analyzed qualitatively by identifying the evaluation methods and the validity and reliability of the methods. To summarize, dysphagia has been evaluated in many ways and for different purposes. The most common evaluation method was a videofluorographic swallowing study (VFSS). Four of the reviewed methods were found to be valid and reliable in detecting swallowing problems in adults with ID.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"136-148"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732443","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pregnancy Experiences of Women With Intellectual and Developmental Disabilities. 智力和发育障碍妇女的怀孕经历。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.149
Lauren D Smith, Aishwarya Khanna, Susan L Parish, Monika Mitra
{"title":"Pregnancy Experiences of Women With Intellectual and Developmental Disabilities.","authors":"Lauren D Smith, Aishwarya Khanna, Susan L Parish, Monika Mitra","doi":"10.1352/1934-9556-63.2.149","DOIUrl":"10.1352/1934-9556-63.2.149","url":null,"abstract":"<p><p>Today women with intellectual and developmental disabilities (IDD) are more likely than ever to live in the community and are increasingly likely to give birth. However, they are at increased risk of adverse maternal and infant outcomes. This qualitative study explored pregnancy care experiences of women with IDD. Semi-structured interviews were conducted in 2016-2017 with 16 mothers with IDD from the United States (analysis in 2020-2022). A content analysis approach revealed that perinatal care; social and economic factors; psychosocial factors; and environmental factors impacted pregnancy experiences. Some participants reported exceptional care. This study centers the voices and experiences of women with IDD in the United States. Findings demonstrate a need to improve care through clinician training and to develop accessible programs and services.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"149-164"},"PeriodicalIF":1.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13060149/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Characteristics of Workplaces and Employers That Embrace Cognitive Diversity on the Work Floor. 拥抱职场认知多样性的工作场所和雇主的特点。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.105
Hanne Marie Høybråten Sigstad, Veerle Garrels, Evan E Dean, Christian Wendelborg
{"title":"Characteristics of Workplaces and Employers That Embrace Cognitive Diversity on the Work Floor.","authors":"Hanne Marie Høybråten Sigstad, Veerle Garrels, Evan E Dean, Christian Wendelborg","doi":"10.1352/1934-9556-63.2.105","DOIUrl":"10.1352/1934-9556-63.2.105","url":null,"abstract":"<p><p>People with intellectual disability (ID) are only marginally represented in the competitive labor market. This article aims to explore what Norwegian employers describe as important features of their workplace that enable labor market participation for employees with ID. The article was based on a mixed method approach that combined qualitative interviews and a quantitative survey with employers who have hired people with ID. Findings suggest that building inclusive environments and individualized supports can be effective for supporting employees with ID. More research is needed to further understand how employers can provide sufficient support to their workers, and successfully hire and retain workers with ID.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"105-119"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español. 西班牙语摘要。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.84
{"title":"Resúmenes al Español.","authors":"","doi":"10.1352/1934-9556-63.1.84","DOIUrl":"https://doi.org/10.1352/1934-9556-63.1.84","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"84-85"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français. 摘要为法文。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.82
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1934-9556-63.1.82","DOIUrl":"https://doi.org/10.1352/1934-9556-63.1.82","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"82-83"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Being a "Lay Expert": A Choice for Chinese Parents of Young Autistic Children. 做“外行专家”：中国自闭症幼童父母的选择。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.1
Yumin Zhang, Junting Chen, Xiaoyan Li
{"title":"Being a \"Lay Expert\": A Choice for Chinese Parents of Young Autistic Children.","authors":"Yumin Zhang, Junting Chen, Xiaoyan Li","doi":"10.1352/1934-9556-63.1.1","DOIUrl":"10.1352/1934-9556-63.1.1","url":null,"abstract":"<p><p>The lack of rehabilitation teachers for autistic children is common in lower-middle income countries. Designing programs to train parents to become \"para-rehabilitators,\" that is, \"lay experts,\" is one of the ways to solve this problem. The purpose of this study was to explore the feelings, problems, and hopes of Chinese parents participating in the parent-implemented rehabilitation model. Semi-structured qualitative interviews with 19 parents of autistic children were conducted and analyzed thematically. The study found positive changes in the parental understanding of and response to autism disorders, suggesting that training parents to become para-rehabilitators to address the shortage of rehabilitators is useful, and that improvements in training methods are needed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"1-13"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating Sex Differences in Language Abilities Within Down Syndrome and Autism Spectrum Disorder. 评估唐氏综合症和自闭症谱系障碍中语言能力的性别差异。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.29
Manisha D Udhnani, Nancy Raitano Lee
{"title":"Evaluating Sex Differences in Language Abilities Within Down Syndrome and Autism Spectrum Disorder.","authors":"Manisha D Udhnani, Nancy Raitano Lee","doi":"10.1352/1934-9556-63.1.29","DOIUrl":"10.1352/1934-9556-63.1.29","url":null,"abstract":"<p><p>Down syndrome (DS) and autism spectrum disorder (ASD) are two neurodevelopmental disorders characterized by impairments in language. Most studies do not consider the possible role sex differences may play in language profiles. Thus, the current study aimed to evaluate whether parent-reported structural and pragmatic language vary as a function of sex in youth with DS (n = 37), ASD (n = 106), and typical development (TD; n = 61). Findings suggest a female advantage in both structural and pragmatic language in DS; in contrast, no sex differences were found for either ASD or TD. Results suggest that males with DS may require more extensive interventions for language. Future research should investigate how age, IQ, and mode of measurement may impact the nature of these observations.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"29-41"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Physical Educators' Training and Confidence in Implementing Evidence-Based Practices for Students With ASD. 体育教育者的培训和对ASD学生实施循证实践的信心。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.66
Selena J Layden, Lindsey A Nowland, Justin A Haegele
{"title":"Physical Educators' Training and Confidence in Implementing Evidence-Based Practices for Students With ASD.","authors":"Selena J Layden, Lindsey A Nowland, Justin A Haegele","doi":"10.1352/1934-9556-63.1.66","DOIUrl":"10.1352/1934-9556-63.1.66","url":null,"abstract":"<p><p>Educators working with students with autism spectrum disorder (ASD) should be utilizing evidence-based practices (EBPs) that have been identified for this group of students to promote better outcomes. Physical education (PE) teachers are highly likely to work with students with ASD in educational settings, yet little is known about their level of training and confidence in implementing EBPs for students with ASD. This study used survey methodology to ask PE teachers about their training in EBPs and their perceived confidence in implementing such practices. The results indicate that, although there was little reported training on individual EBPs specific to students with ASD, PE teachers reported feeling relatively confident in supporting students with ASD. Further findings and implications are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"66-81"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061022","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correlates of School-Home Communication From Caregivers of Children With Autism. 自闭症儿童照顾者学校与家庭交流的相关关系
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.14
Chak Li, Meghan M Burke
{"title":"Correlates of School-Home Communication From Caregivers of Children With Autism.","authors":"Chak Li, Meghan M Burke","doi":"10.1352/1934-9556-63.1.14","DOIUrl":"10.1352/1934-9556-63.1.14","url":null,"abstract":"<p><p>School-home communication may be especially critical for families of children with autism given their tenuous partnerships with school professionals. In this study, we explored the child, caregiver, and family-professional partnership correlates of school-home communication. Data were collected from 179 caregivers of children with autism (age 3-21) via a national survey. Participants overwhelmingly reported having less than monthly communication with educators (i.e., general and special education teachers) despite wanting at least weekly communication. A preference for email communication negatively correlated with participants who were Black and/or from lower-income households, but this should be met with caution due to limited sample diversity. These findings indicate that it is necessary to attain a nuanced understanding of school-home communication and identify other potential correlates.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"14-28"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Oral Narrative Abilities of Chilean School-Age Children With Down Syndrome: A Preliminary Study. 智利唐氏综合症学龄儿童口头叙事能力的初步研究。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.51
Victoria Sánchez-Gómez, Antonio M Amor González, Laura Zampini, Miguel Ángel Verdugo, María Isabel Calvo
{"title":"Exploring Oral Narrative Abilities of Chilean School-Age Children With Down Syndrome: A Preliminary Study.","authors":"Victoria Sánchez-Gómez, Antonio M Amor González, Laura Zampini, Miguel Ángel Verdugo, María Isabel Calvo","doi":"10.1352/1934-9556-63.1.51","DOIUrl":"10.1352/1934-9556-63.1.51","url":null,"abstract":"<p><p>Narrative abilities are essential for school achievement and quality of life, yet children with Down syndrome (DS) often struggle with these skills. This work explores the oral narrative abilities of school-age Chilean children with DS. The participants were 11 children with DS aged between 7;2 and 12;1 (years; months). All participated in a retelling task using a wordless picture book. Microstructural and macrostructural performance were analyzed and compared with data from a reference database of typically developing Spanish-speaking children, matched by chronological age or linguistic abilities. Children with DS showed proficiency in identifying introductory story elements but faced difficulties with cohesion. Restricted microstructural performance and task completion time were observed. Ethical-methodological challenges and recommendations for practice and research are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"51-65"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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