Sarah Lineberry, Michael D Broda, Parthenia Dinora, Matthew Bogenschutz, Seb Prohn, Angela West
{"title":"Evaluating Measurement Invariance Over Time for a Personal Opportunities Scale for People With IDD: Implications for Policy and Practice.","authors":"Sarah Lineberry, Michael D Broda, Parthenia Dinora, Matthew Bogenschutz, Seb Prohn, Angela West","doi":"10.1352/1934-9556-63.4.315","DOIUrl":"10.1352/1934-9556-63.4.315","url":null,"abstract":"<p><p>Personal opportunities refer to chances for people with intellectual and developmental disabilities (IDD) to take self-directed action based on their interests, strengths, and preferences. This study tested for measurement invariance across five years of cross-sectional data, including data collected during the COVID-19 pandemic, to determine whether the scale performed consistently over time. Analysis revealed significant differences in both the National Core Indicators In-Person Survey (NCI-IPS) outcomes and in the Personal Opportunities scale. Measurement invariance testing indicated partial threshold and loading invariance, but not intercept invariance, suggesting that the ways in which participants perceived or responded to scale items changed over time. We recommend that researchers utilizing scaled measures with longitudinal outcomes employ statistical checks, including measurement invariance, to ensure the scale performs consistently over time.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"315-328"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christine Bottrell Mirzaian, Alexis Deavenport-Saman, Sharon Hudson, Cecily L Betz
{"title":"Intellectual and Developmental Disabilities Health Care Transition: Stakeholder Perspectives.","authors":"Christine Bottrell Mirzaian, Alexis Deavenport-Saman, Sharon Hudson, Cecily L Betz","doi":"10.1352/1934-9556-63.4.299","DOIUrl":"10.1352/1934-9556-63.4.299","url":null,"abstract":"<p><p>Youth and young adults (YYA) with intellectual and developmental disabilities (IDD) and YYA with IDD and co-occurring mental health (MH) conditions experience unique challenges during the period of health care transition compared to those with other long-term conditions. This investigation explored respondents' (N = 277) perceptions of the needs associated with the transition experience of these two groups. Community-based organization respondents were significantly more likely to indicate stigma/bias were barriers for YYA with IDD compared to advocates or providers. Advocates were more likely to indicate access to postsecondary training or education was needed for YYA with IDD and co-occurring MH conditions. Greater services or supports were needed for YYA with co-occurring MH conditions than those with IDD: employment-related, housing, transportation/mobility, financial/food security.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"299-314"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rachel Freeman, Jennifer Jeffrey-Pearsall, Dani Dunphy, Jessica Simacek, Stacy Danov, Ashley MacSuga-Gage, Margaret Moore
{"title":"Implementation Drivers for Organization-Wide Positive Behavior Support: Supporting People With Intellectual and Developmental Disabilities.","authors":"Rachel Freeman, Jennifer Jeffrey-Pearsall, Dani Dunphy, Jessica Simacek, Stacy Danov, Ashley MacSuga-Gage, Margaret Moore","doi":"10.1352/1934-9556-63.4.344","DOIUrl":"10.1352/1934-9556-63.4.344","url":null,"abstract":"<p><p>Organization-wide positive behavior support (OW-PBS) is a framework for improving quality of life and preventing challenging behaviors for children and adults with intellectual and developmental disabilities (IDD). This tiered PBS framework has been adapted from schools for use in disability services. Supporting people with IDD involves a variety of services (family and home, independent living skills, supported employment, and day programs) and requires a values-based approach. Although the process of translating PBS from education to disability service organizations requires adaptations to the technical assistance tools and resources, the foundational implementation science drivers-and challenges-are analogous. In this article, the mechanisms for adapting the PBS framework into disability service organizations is discussed, with considerations for ensuring person-centered, culturally inclusive and responsive practices.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"344-357"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kanako Iwanaga, Paul Wehman, Carol Schall, Lauren Avellone, Fong Chan, Katherine Inge, Jennifer McDonough
{"title":"Factors Affecting Employment for Early Adults With Intellectual and Developmental Disabilities: Influence of Supported Employment.","authors":"Kanako Iwanaga, Paul Wehman, Carol Schall, Lauren Avellone, Fong Chan, Katherine Inge, Jennifer McDonough","doi":"10.1352/1934-9556-63.4.286","DOIUrl":"10.1352/1934-9556-63.4.286","url":null,"abstract":"<p><p>Public policy directives have emphasized Competitive Integrated Employment (CIE) as the primary employment outcome for individuals with intellectual and developmental disabilities (IDD), yet their overall employment rates remain low. Supported Employment (SE) offers evidence-based vocational rehabilitation with personalized workplace support for CIE success. This study aims to predict CIE outcomes for youth and young adults with IDD by evaluating demographics, SE, and adjunctive state vocational rehabilitation agency (SVRA) services. Analyzing data from 67,884 individuals using hierarchical logistic regression, we found SE significantly associated with CIE success. Adjunctive SVRA services, including workplace support, job placement, and job search assistance, also played crucial roles. These findings emphasize SE's efficacy in helping youth and young adults with IDD achieve CIE, guiding vocational professionals.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"286-298"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Michele A Schutz, Jessica M Awsumb, Erik W Carter, Leah Burgess, Ben Schwartzman
{"title":"Connecting Youth With Significant Disabilities to Paid Work: An Innovative School-Based Intervention.","authors":"Michele A Schutz, Jessica M Awsumb, Erik W Carter, Leah Burgess, Ben Schwartzman","doi":"10.1352/1934-9556-63.4.329","DOIUrl":"10.1352/1934-9556-63.4.329","url":null,"abstract":"<p><p>Early work experiences are associated with subsequent employment for students with significant disabilities, but they rarely receive such opportunities. This article presents two case studies illustrating a school-based intervention that connected students with significant disabilities to paid work during high school and included training for special educators, a team approach to employment planning, job connections, and postsecondary planning. We collected and analyzed data on employment outcomes over 18 months from the perspectives of students, their parents, and teachers during and after the intervention. One student was successfully connected to a paid job; the other student was not. We describe the proposed intervention, in-depth student experiences, and lessons learned for informing a randomized control trial evaluating the intervention.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"329-343"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lynda Lahti Anderson, Sandra L Pettingell, Julie Bershadsky, Amy Hewitt
{"title":"The Impact of COVID-19 on Direct Support Professionals and Frontline Supervisors Mental and Physical Health.","authors":"Lynda Lahti Anderson, Sandra L Pettingell, Julie Bershadsky, Amy Hewitt","doi":"10.1352/1934-9556-63.3.244","DOIUrl":"10.1352/1934-9556-63.3.244","url":null,"abstract":"<p><p>Direct support professionals (DSPs) and frontline supervisors (FLSs) play a crucial role in the delivery of home and community-based services for people with intellectual and developmental disabilities (IDD). A four-wave study was launched to understand the experiences of DSPs and FLSs during the COVID-19 pandemic. In the last wave, 2,584 participants responded to questions about mental and physical health issues they experienced. FLSs and DSPs differed in their experiences during the COVID-19 pandemic. Differences included the effect on their daily work, how they viewed the quality of their work life, and whether their employer provided support for staff experiencing adverse mental and physical health outcomes. Policy recommendations to address the mental and physical health of DSPs and FLSs are provided.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 3","pages":"244-255"},"PeriodicalIF":1.6,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12329790/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Karrie A Shogren, Ruth Luckasson, Robert L Schalock
{"title":"Shared Citizenship, Context, and the Next Generation of Self-Determination Research.","authors":"Karrie A Shogren, Ruth Luckasson, Robert L Schalock","doi":"10.1352/1934-9556-63.3.256","DOIUrl":"10.1352/1934-9556-63.3.256","url":null,"abstract":"<p><p>Self-determination is recognized as a key outcome in the disability field. However, the alignment of self-determination research with the shared citizenship paradigm and growing research on the role of context and contextual variables in shaping personal and collective self-determination outcomes has not yet been fully explored. In this article we (a) describe the shared citizenship paradigm and self-determination; (b) summarize the current understanding of context; (c) identify contextual variables influencing self-determination; and (d) recommend research approaches, policies, and practices to guide the next generation of self-determination research. We highlight how adopting the shared citizenship paradigm and recognizing that context matters is essential to advancing self-determination, providing direction for future self-determination research, policy, and practice.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 3","pages":"256-266"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162834","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sudha Srinivasan, Natasha Sattar, Aparna Athreya, Susan S Glenney, Deborah Bubela
{"title":"Stakeholder Perspectives on Physical Activity in Youth With Developmental Disabilities: A Mixed Methods Study.","authors":"Sudha Srinivasan, Natasha Sattar, Aparna Athreya, Susan S Glenney, Deborah Bubela","doi":"10.1352/1934-9556-63.2.120","DOIUrl":"10.1352/1934-9556-63.2.120","url":null,"abstract":"<p><p>We explored factors associated with physical activity (PA) engagement in youth with developmental disabilities (DD) as they transition out of school. We conducted focus group discussions with 44 youth, families, special educators, and therapists to obtain information on PA levels, barriers to being active, and recommendations to improve PA among youth. Youth preferred activities that are fun, not too challenging, noncompetitive, and promoted interactions with neurotypical peers. Families face the burden of sustaining PA in their adult children after school age and experience barriers related to accessibility and affordability of adult-oriented programs, availability of trained personnel, and challenges in balancing multiple work and family-related commitments. Our findings can inform the design of programs to promote PA among youth with DD.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"120-135"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring Media Portrayals of Individuals With Intellectual and Developmental Disabilities.","authors":"Aesha J John, Jade Presnell, Sabrina Cavazos, Cameron Lewright","doi":"10.1352/1934-9556-63.2.87","DOIUrl":"10.1352/1934-9556-63.2.87","url":null,"abstract":"<p><p>Considering past evidence highlighting the role of media portrayal in shaping community attitudes towards people with intellectual and developmental disabilities (IDD), we analyzed depictions of IDD in seven television shows and three movies. Characters with IDD were coded based on categories representing (a) their attributes (demographic, disability-related, and personality), (b) the salience of IDD and character with IDD, (c) treatment by other characters, and (d) quality of life. The majority of the characters were White and male, and persons with IDD played characters with visible disabilities. Characters with IDD were often bullied, but most were portrayed as having a strong support system and a good quality of life. Themes are discussed in the context of implications and methodological limitations.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"87-104"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Food-Related Interventions in Schools for Students With Significant Disabilities: A Systematic Review and Analysis.","authors":"Brianna Grumstrup, Mary Ann Demchak","doi":"10.1352/1934-9556-63.2.165","DOIUrl":"10.1352/1934-9556-63.2.165","url":null,"abstract":"<p><p>The purpose of this systematic review was to summarize research to date on school-based, food-related interventions (e.g., cooking, grocery shopping, food-related literacy, eating behavior) for students with intellectual and developmental disabilities (IDD). The second purpose was to evaluate the quality of eligible studies according to the design criteria of What Works Clearinghouse (WWC; 2020). Two levels of review took place: the first to establish eligibility for inclusion and the second to evaluate studies for research design criteria. Twenty-seven studies were evaluated, with five meeting WWC standards with or without reservations. The percentage of criteria met in each study ranged from 0 to 100 percent. Research needs and quality for the above outcomes in this population are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"165-180"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}