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Children with Intellectual and Developmental Disabilities and Mental Health Challenges: Caregiver Familiarity with Clinical Services. 智力和发育障碍儿童和心理健康挑战：护理人员对临床服务的熟悉程度。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-04-06 DOI: 10.1080/19349491.2026.2635300
Leah C Sulmonetti, Verity L Rodrigues, Gabriela Herrera Espinosa, Robert M Hodapp
{"title":"Children with Intellectual and Developmental Disabilities and Mental Health Challenges: Caregiver Familiarity with Clinical Services.","authors":"Leah C Sulmonetti, Verity L Rodrigues, Gabriela Herrera Espinosa, Robert M Hodapp","doi":"10.1080/19349491.2026.2635300","DOIUrl":"10.1080/19349491.2026.2635300","url":null,"abstract":"<p><p>Although children with intellectual and developmental disabilities (IDD) more often experience mental health concerns, they do not always receive mental health services. This study examined the barrier of caregiver familiarity with services. Analyzing a statewide survey of 137 caregivers of children with IDD and mental health concerns, high percentages (35%-60%) were unfamiliar with common school-based child, community-based child, and (community-based) family mental health services. Especially concerning family services (e.g., family therapy, behavioral parent training, caregiver therapy), caregivers did not know what services to ask for or where to find them. Caregivers' service familiarity increased when children received a formal mental health diagnosis, but not when the child had an Individualized Education Program. Implications are discussed for research, policy, and practice.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 2","pages":"160-172"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148726014","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Suicide Risk Screening for Youth with Developmental Disabilities in the Pediatric Emergency Department. 儿童急诊科发育障碍青少年自杀风险筛查
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-16 DOI: 10.1080/19349491.2025.2578156
Paige E Cervantes, Dana E M Seag, Argelinda Baroni, Ethan Wiener, Ee Tein Tay, Sarah M Horwitz
{"title":"Suicide Risk Screening for Youth with Developmental Disabilities in the Pediatric Emergency Department.","authors":"Paige E Cervantes, Dana E M Seag, Argelinda Baroni, Ethan Wiener, Ee Tein Tay, Sarah M Horwitz","doi":"10.1080/19349491.2025.2578156","DOIUrl":"https://doi.org/10.1080/19349491.2025.2578156","url":null,"abstract":"<p><p>Youth with developmental disabilities (DD) are often at increased suicide risk. However, clinician guidance on suicide prevention practices specific to the DD population is rarely available, which may result in care disparities. The current study examined whether rates of standard suicide risk screening in two pediatric emergency departments (ED) differed for youth with and without DD. Then, using data from a NIMH-funded initiative, we compared youth with and without DD on demographic, visit, and clinical characteristics to identify possible factors related to differences in screening rates. Disparities in the completion of suicide risk screening with youth with DD were identified in standard care but few differences were found across groups to suggest a rationale, holding important clinical and research implications.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 1","pages":"29-37"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Engaging Adults with Intellectual and Developmental Disabilities as "Citizen Scientists" to Transform Health Care Accessibility. 让有智力和发育障碍的成年人成为“公民科学家”，改变卫生保健的可及性。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-07-24 DOI: 10.1080/19349491.2026.2682771
Megan Cvitanovic, Alex Vera Szawranskyj, Zakaria N Doueiri, Justin Steinberg, Amanda Young, Sue Digre, Colleen Vega, Kim Hing, Bradley Margetts, Timothy Seay-Morrison, Sarah Taylor, Lauren Clarke, Lisa G Rosas, Abby C King, Holly K Tabor
{"title":"Engaging Adults with Intellectual and Developmental Disabilities as \"Citizen Scientists\" to Transform Health Care Accessibility.","authors":"Megan Cvitanovic, Alex Vera Szawranskyj, Zakaria N Doueiri, Justin Steinberg, Amanda Young, Sue Digre, Colleen Vega, Kim Hing, Bradley Margetts, Timothy Seay-Morrison, Sarah Taylor, Lauren Clarke, Lisa G Rosas, Abby C King, Holly K Tabor","doi":"10.1080/19349491.2026.2682771","DOIUrl":"10.1080/19349491.2026.2682771","url":null,"abstract":"<p><p>Adults with intellectual and developmental disabilities (AIDD) experience persistent barriers to accessing and participating in health care yet are rarely engaged as partners in efforts to improve accessibility. This study used the evidence-based Our Voice (OV) citizen science approach to engage AIDD in identifying barriers and facilitators to primary care access and generating actionable solutions. Twelve participants (six AIDD and six adults without IDD) documented accessibility conditions across three medical clinics using photographs and narratives. Analysis of 170 photographs and 154 narratives identified five themes: (1) sensory considerations, (2) informational materials, (3) signage and wayfinding, (4) accommodations, and (5) physical accessibility. Findings demonstrate the feasibility of engaging AIDD in structured, clinic-based accessibility assessment and suggest a participatory framework that may inform research and quality improvement initiatives aimed at promoting disability-inclusive health care.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 4","pages":"314-327"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148725464","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction. 修正。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-09-11 DOI: 10.1080/19349491.2026.2726173
{"title":"Correction.","authors":"","doi":"10.1080/19349491.2026.2726173","DOIUrl":"10.1080/19349491.2026.2726173","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":" ","pages":"434"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148945882","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caregiver Perspectives on Challenges of Caring for Individuals with Intellectual Disability: A Qualitative Study. 照顾者对照顾智障人士挑战的看法：一项质性研究。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-03-24 DOI: 10.1080/19349491.2026.2642623
Banu Cihan Erdogan, Gulcan Eyüboğlu, Zehra Göçmen Baykara
{"title":"Caregiver Perspectives on Challenges of Caring for Individuals with Intellectual Disability: A Qualitative Study.","authors":"Banu Cihan Erdogan, Gulcan Eyüboğlu, Zehra Göçmen Baykara","doi":"10.1080/19349491.2026.2642623","DOIUrl":"10.1080/19349491.2026.2642623","url":null,"abstract":"<p><p>This study examined the challenges encountered by caregivers of individuals with intellectual disability in a residential care home and their suggested solutions. A basic qualitative design within the interpretive paradigm was employed, using purposive sampling to recruit 21 caregivers. Thematic analysis revealed three overarching themes: disability-related challenges, care home-related challenges, and strategies to improve quality of life. Disability-related challenges involved behavioral issues, cognitive impairments, and difficulties in managing chronic conditions. Care home-related challenges included limitations in the physical environment and care management processes. Suggested improvements emphasized fostering social inclusion, enhancing support for individuals with disabilities, and upgrading the care environment. The findings highlight the dual impact of individual and environmental factors on caregiving and offer actionable strategies for improvement.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 2","pages":"173-185"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148722650","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reconceptualizing Social Acceptance: Stigma, Prejudice, and the Developmental Implications of School Experiences of Students with Intellectual Disability. 重新定义社会接纳：污名、偏见和智障学生学校经历的发展意义。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-09-14 DOI: 10.1080/19349491.2026.2723896
Ayşegül Avşar Tuncay, Ahmet Can Abbak, Turgut Bal
{"title":"Reconceptualizing Social Acceptance: Stigma, Prejudice, and the Developmental Implications of School Experiences of Students with Intellectual Disability.","authors":"Ayşegül Avşar Tuncay, Ahmet Can Abbak, Turgut Bal","doi":"10.1080/19349491.2026.2723896","DOIUrl":"10.1080/19349491.2026.2723896","url":null,"abstract":"<p><p>Societal prejudices shape the social positioning of students with intellectual disability in educational contexts. This study explores how social acceptance is produced and contested through everyday interactions influenced by stigma, cultural norms, and institutional practices. Drawing on Goffman's conceptualization of stigma and Bronfenbrenner's ecological systems framework, social acceptance is treated as a relational and power-laden process rather than an individual trait. Using a qualitative phenomenological design, semi-structured interviews were conducted with teachers and parents of children with and without intellectual disability. Analysis revealed six interconnected themes: empathy and tolerance, peer interaction, language use, teacher attitudes, structural constraints, and parental awareness. Findings highlight that teacher attitudes and school practices are central in reproducing or challenging stigma, while parental awareness mediates peer inclusion. Rather than simply promoting social acceptance, the study emphasizes critically examining the normative conditions through which inclusion is granted within educational settings.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":" ","pages":"414-433"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148971179","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Presidential Address 2026 - Sesquicentennial: 150 Years of Progress. 2026年总统演讲-百周年纪念：150年的进步。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-09-16 DOI: 10.1080/19349491.2026.2723894
Vincent M Chesney
{"title":"Presidential Address 2026 - Sesquicentennial: 150 Years of Progress.","authors":"Vincent M Chesney","doi":"10.1080/19349491.2026.2723894","DOIUrl":"10.1080/19349491.2026.2723894","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":" ","pages":"339-348"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148983855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Lived Experiences of a Psychoeducational Course by Relatives of Young Adults with Mild Intellectual Disability. 轻度智障青年亲属心理教育课程的亲身体验。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-09-18 DOI: 10.1080/19349491.2026.2723891
Hege Almeland Hansen, Anita Skoglund Birkeland, Helene Rosvoll, Ingfrid Oppistov Lien, Marit Therese Schmid
{"title":"Lived Experiences of a Psychoeducational Course by Relatives of Young Adults with Mild Intellectual Disability.","authors":"Hege Almeland Hansen, Anita Skoglund Birkeland, Helene Rosvoll, Ingfrid Oppistov Lien, Marit Therese Schmid","doi":"10.1080/19349491.2026.2723891","DOIUrl":"10.1080/19349491.2026.2723891","url":null,"abstract":"<p><p>Being a relative of children with mild intellectual disability brings both joy and woe. Unfortunately, many face challenges and lack of support to a degree that their health is affected. The transition phase, when children are expected to move out and live more independent lives, can be particularly demanding. Psychoeducation may contribute to making relatives such as parents or foster parents better equipped to handle this phase. In this study we asked: How do relatives of young adults with mild intellectual disability experience participating in a psychoeducational course? We interviewed seven participants who attended such a course and analyzed data thematically, resulting in three themes: (a) The importance of knowledge, (b) Security and community provide space for sharing, and (c) Challenges related to \"letting go.\" The results indicate that relatives recognize both a need for and benefit from psychoeducative courses. We discuss the findings in light of relevant research and theory.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":" ","pages":"374-386"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149002599","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Inclusive Leadership and Attitudes Toward Hiring Workers with Intellectual Disability: The Mediating Role of Autonomy. 包容性领导与雇佣智障员工的态度：自主性的中介作用。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-06-30 DOI: 10.1080/19349491.2026.2682767
Aleksandar Plavsic, Yolanda Estreder, Leady V Fajardo Castro, Carolina Moliner, Vicente Martínez-Tur
{"title":"Inclusive Leadership and Attitudes Toward Hiring Workers with Intellectual Disability: The Mediating Role of Autonomy.","authors":"Aleksandar Plavsic, Yolanda Estreder, Leady V Fajardo Castro, Carolina Moliner, Vicente Martínez-Tur","doi":"10.1080/19349491.2026.2682767","DOIUrl":"10.1080/19349491.2026.2682767","url":null,"abstract":"<p><p>This study examines whether the autonomy of workers with intellectual disability (ID) mediates the relationship between inclusive leadership by supervisors within a business and coworkers' attitudes toward hiring workers with ID. Data were collected from 113 employees without ID across six industries (hotels, public administration, agriculture, construction, social services, and other services) in Spain who worked daily with a coworker with ID. Using a cross-lagged design, inclusive leadership was measured at time one, while autonomy and attitudes were assessed at time one and four consecutive working days later for the focal worker with ID (time two). Mediation was tested using regression-based path analysis with bootstrapped confidence intervals for the indirect effects. Results indicated that autonomy at time two fully mediated the relationship between inclusive leadership at time one and coworkers' attitudes at time two, controlling for baseline autonomy and attitudes. Inclusive leadership was positively associated with autonomy in workers with ID, which in turn was positively related to more positive hiring attitudes toward workers with ID. These findings underscore autonomy as a mediator linking inclusive leadership to attitudes in non-ID coworkers.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 4","pages":"267-281"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148723339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Parental Experiences of Virtual Reality-Based Family Interventions for Children with Autism Spectrum Disorder: Qualitative Insights from China. 探索基于虚拟现实的自闭症谱系障碍儿童家庭干预的父母体验：来自中国的定性见解。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-16 DOI: 10.1080/19349491.2025.2578159
Fengying Han, Xin Gao
{"title":"Exploring Parental Experiences of Virtual Reality-Based Family Interventions for Children with Autism Spectrum Disorder: Qualitative Insights from China.","authors":"Fengying Han, Xin Gao","doi":"10.1080/19349491.2025.2578159","DOIUrl":"10.1080/19349491.2025.2578159","url":null,"abstract":"<p><p>This study explores Chinese parents' experiences with virtual reality (VR)-based family interventions for children with autism spectrum disorder (ASD). Fifteen parents were interviewed, with data analyzed via reflexive thematic analysis. Findings reveal a process of technological mediation where parents personalized VR for caregiving routines and valued its impact on relational care. However, they also navigated challenges including the \"hidden labor\" of maintenance and a central paradox: while VR's structured nature improved the overall emotional climate, it sometimes caused emotional disconnection during task-focused sessions. The study underscores the need for VR applications that are culturally sensitive, employ sensory-inclusive design, and support relational caregiving goals.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 2","pages":"115-128"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148724964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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