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Implementation Drivers for Organization-Wide Positive Behavior Support: Supporting People With Intellectual and Developmental Disabilities. 组织范围内积极行为支持的实施驱动因素：支持智力和发育障碍者。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-08-01 DOI: 10.1352/1934-9556-63.4.344
Rachel Freeman, Jennifer Jeffrey-Pearsall, Dani Dunphy, Jessica Simacek, Stacy Danov, Ashley MacSuga-Gage, Margaret Moore
{"title":"Implementation Drivers for Organization-Wide Positive Behavior Support: Supporting People With Intellectual and Developmental Disabilities.","authors":"Rachel Freeman, Jennifer Jeffrey-Pearsall, Dani Dunphy, Jessica Simacek, Stacy Danov, Ashley MacSuga-Gage, Margaret Moore","doi":"10.1352/1934-9556-63.4.344","DOIUrl":"10.1352/1934-9556-63.4.344","url":null,"abstract":"<p><p>Organization-wide positive behavior support (OW-PBS) is a framework for improving quality of life and preventing challenging behaviors for children and adults with intellectual and developmental disabilities (IDD). This tiered PBS framework has been adapted from schools for use in disability services. Supporting people with IDD involves a variety of services (family and home, independent living skills, supported employment, and day programs) and requires a values-based approach. Although the process of translating PBS from education to disability service organizations requires adaptations to the technical assistance tools and resources, the foundational implementation science drivers-and challenges-are analogous. In this article, the mechanisms for adapting the PBS framework into disability service organizations is discussed, with considerations for ensuring person-centered, culturally inclusive and responsive practices.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"344-357"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors Affecting Employment for Early Adults With Intellectual and Developmental Disabilities: Influence of Supported Employment. 影响智力和发育障碍早期成人就业的因素：支持就业的影响。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-08-01 DOI: 10.1352/1934-9556-63.4.286
Kanako Iwanaga, Paul Wehman, Carol Schall, Lauren Avellone, Fong Chan, Katherine Inge, Jennifer McDonough
{"title":"Factors Affecting Employment for Early Adults With Intellectual and Developmental Disabilities: Influence of Supported Employment.","authors":"Kanako Iwanaga, Paul Wehman, Carol Schall, Lauren Avellone, Fong Chan, Katherine Inge, Jennifer McDonough","doi":"10.1352/1934-9556-63.4.286","DOIUrl":"10.1352/1934-9556-63.4.286","url":null,"abstract":"<p><p>Public policy directives have emphasized Competitive Integrated Employment (CIE) as the primary employment outcome for individuals with intellectual and developmental disabilities (IDD), yet their overall employment rates remain low. Supported Employment (SE) offers evidence-based vocational rehabilitation with personalized workplace support for CIE success. This study aims to predict CIE outcomes for youth and young adults with IDD by evaluating demographics, SE, and adjunctive state vocational rehabilitation agency (SVRA) services. Analyzing data from 67,884 individuals using hierarchical logistic regression, we found SE significantly associated with CIE success. Adjunctive SVRA services, including workplace support, job placement, and job search assistance, also played crucial roles. These findings emphasize SE's efficacy in helping youth and young adults with IDD achieve CIE, guiding vocational professionals.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"286-298"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Connecting Youth With Significant Disabilities to Paid Work: An Innovative School-Based Intervention. 帮助有严重残疾的青年找到有报酬的工作：一种创新的校本干预。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-08-01 DOI: 10.1352/1934-9556-63.4.329
Michele A Schutz, Jessica M Awsumb, Erik W Carter, Leah Burgess, Ben Schwartzman
{"title":"Connecting Youth With Significant Disabilities to Paid Work: An Innovative School-Based Intervention.","authors":"Michele A Schutz, Jessica M Awsumb, Erik W Carter, Leah Burgess, Ben Schwartzman","doi":"10.1352/1934-9556-63.4.329","DOIUrl":"10.1352/1934-9556-63.4.329","url":null,"abstract":"<p><p>Early work experiences are associated with subsequent employment for students with significant disabilities, but they rarely receive such opportunities. This article presents two case studies illustrating a school-based intervention that connected students with significant disabilities to paid work during high school and included training for special educators, a team approach to employment planning, job connections, and postsecondary planning. We collected and analyzed data on employment outcomes over 18 months from the perspectives of students, their parents, and teachers during and after the intervention. One student was successfully connected to a paid job; the other student was not. We describe the proposed intervention, in-depth student experiences, and lessons learned for informing a randomized control trial evaluating the intervention.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"329-343"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Impact of COVID-19 on Direct Support Professionals and Frontline Supervisors Mental and Physical Health. COVID-19对直接支持专业人员和一线主管身心健康的影响
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-06-01 DOI: 10.1352/1934-9556-63.3.244
Lynda Lahti Anderson, Sandra L Pettingell, Julie Bershadsky, Amy Hewitt
{"title":"The Impact of COVID-19 on Direct Support Professionals and Frontline Supervisors Mental and Physical Health.","authors":"Lynda Lahti Anderson, Sandra L Pettingell, Julie Bershadsky, Amy Hewitt","doi":"10.1352/1934-9556-63.3.244","DOIUrl":"10.1352/1934-9556-63.3.244","url":null,"abstract":"<p><p>Direct support professionals (DSPs) and frontline supervisors (FLSs) play a crucial role in the delivery of home and community-based services for people with intellectual and developmental disabilities (IDD). A four-wave study was launched to understand the experiences of DSPs and FLSs during the COVID-19 pandemic. In the last wave, 2,584 participants responded to questions about mental and physical health issues they experienced. FLSs and DSPs differed in their experiences during the COVID-19 pandemic. Differences included the effect on their daily work, how they viewed the quality of their work life, and whether their employer provided support for staff experiencing adverse mental and physical health outcomes. Policy recommendations to address the mental and physical health of DSPs and FLSs are provided.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 3","pages":"244-255"},"PeriodicalIF":1.6,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12329790/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Shared Citizenship, Context, and the Next Generation of Self-Determination Research. 共享的公民身份，背景和下一代自决研究。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-06-01 DOI: 10.1352/1934-9556-63.3.256
Karrie A Shogren, Ruth Luckasson, Robert L Schalock
{"title":"Shared Citizenship, Context, and the Next Generation of Self-Determination Research.","authors":"Karrie A Shogren, Ruth Luckasson, Robert L Schalock","doi":"10.1352/1934-9556-63.3.256","DOIUrl":"10.1352/1934-9556-63.3.256","url":null,"abstract":"<p><p>Self-determination is recognized as a key outcome in the disability field. However, the alignment of self-determination research with the shared citizenship paradigm and growing research on the role of context and contextual variables in shaping personal and collective self-determination outcomes has not yet been fully explored. In this article we (a) describe the shared citizenship paradigm and self-determination; (b) summarize the current understanding of context; (c) identify contextual variables influencing self-determination; and (d) recommend research approaches, policies, and practices to guide the next generation of self-determination research. We highlight how adopting the shared citizenship paradigm and recognizing that context matters is essential to advancing self-determination, providing direction for future self-determination research, policy, and practice.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 3","pages":"256-266"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162834","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Stakeholder Perspectives on Physical Activity in Youth With Developmental Disabilities: A Mixed Methods Study. 利益相关者对发育障碍青少年体育活动的看法：一项混合方法研究。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.120
Sudha Srinivasan, Natasha Sattar, Aparna Athreya, Susan S Glenney, Deborah Bubela
{"title":"Stakeholder Perspectives on Physical Activity in Youth With Developmental Disabilities: A Mixed Methods Study.","authors":"Sudha Srinivasan, Natasha Sattar, Aparna Athreya, Susan S Glenney, Deborah Bubela","doi":"10.1352/1934-9556-63.2.120","DOIUrl":"10.1352/1934-9556-63.2.120","url":null,"abstract":"<p><p>We explored factors associated with physical activity (PA) engagement in youth with developmental disabilities (DD) as they transition out of school. We conducted focus group discussions with 44 youth, families, special educators, and therapists to obtain information on PA levels, barriers to being active, and recommendations to improve PA among youth. Youth preferred activities that are fun, not too challenging, noncompetitive, and promoted interactions with neurotypical peers. Families face the burden of sustaining PA in their adult children after school age and experience barriers related to accessibility and affordability of adult-oriented programs, availability of trained personnel, and challenges in balancing multiple work and family-related commitments. Our findings can inform the design of programs to promote PA among youth with DD.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"120-135"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Media Portrayals of Individuals With Intellectual and Developmental Disabilities. 探索媒体对智力和发育障碍个体的描绘。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.87
Aesha J John, Jade Presnell, Sabrina Cavazos, Cameron Lewright
{"title":"Exploring Media Portrayals of Individuals With Intellectual and Developmental Disabilities.","authors":"Aesha J John, Jade Presnell, Sabrina Cavazos, Cameron Lewright","doi":"10.1352/1934-9556-63.2.87","DOIUrl":"10.1352/1934-9556-63.2.87","url":null,"abstract":"<p><p>Considering past evidence highlighting the role of media portrayal in shaping community attitudes towards people with intellectual and developmental disabilities (IDD), we analyzed depictions of IDD in seven television shows and three movies. Characters with IDD were coded based on categories representing (a) their attributes (demographic, disability-related, and personality), (b) the salience of IDD and character with IDD, (c) treatment by other characters, and (d) quality of life. The majority of the characters were White and male, and persons with IDD played characters with visible disabilities. Characters with IDD were often bullied, but most were portrayed as having a strong support system and a good quality of life. Themes are discussed in the context of implications and methodological limitations.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"87-104"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Food-Related Interventions in Schools for Students With Significant Disabilities: A Systematic Review and Analysis. 学校对严重残疾学生的食物相关干预：系统回顾与分析。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.165
Brianna Grumstrup, Mary Ann Demchak
{"title":"Food-Related Interventions in Schools for Students With Significant Disabilities: A Systematic Review and Analysis.","authors":"Brianna Grumstrup, Mary Ann Demchak","doi":"10.1352/1934-9556-63.2.165","DOIUrl":"10.1352/1934-9556-63.2.165","url":null,"abstract":"<p><p>The purpose of this systematic review was to summarize research to date on school-based, food-related interventions (e.g., cooking, grocery shopping, food-related literacy, eating behavior) for students with intellectual and developmental disabilities (IDD). The second purpose was to evaluate the quality of eligible studies according to the design criteria of What Works Clearinghouse (WWC; 2020). Two levels of review took place: the first to establish eligibility for inclusion and the second to evaluate studies for research design criteria. Twenty-seven studies were evaluated, with five meeting WWC standards with or without reservations. The percentage of criteria met in each study ranged from 0 to 100 percent. Research needs and quality for the above outcomes in this population are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"165-180"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pregnancy Experiences of Women With Intellectual and Developmental Disabilities. 智力和发育障碍妇女的怀孕经历。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.149
Lauren D Smith, Aishwarya Khanna, Susan L Parish, Monika Mitra
{"title":"Pregnancy Experiences of Women With Intellectual and Developmental Disabilities.","authors":"Lauren D Smith, Aishwarya Khanna, Susan L Parish, Monika Mitra","doi":"10.1352/1934-9556-63.2.149","DOIUrl":"10.1352/1934-9556-63.2.149","url":null,"abstract":"<p><p>Today women with intellectual and developmental disabilities (IDD) are more likely than ever to live in the community and are increasingly likely to give birth. However, they are at increased risk of adverse maternal and infant outcomes. This qualitative study explored pregnancy care experiences of women with IDD. Semi-structured interviews were conducted in 2016-2017 with 16 mothers with IDD from the United States (analysis in 2020-2022). A content analysis approach revealed that perinatal care; social and economic factors; psychosocial factors; and environmental factors impacted pregnancy experiences. Some participants reported exceptional care. This study centers the voices and experiences of women with IDD in the United States. Findings demonstrate a need to improve care through clinician training and to develop accessible programs and services.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"149-164"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation Methods of Dysphagia in Adults With Intellectual Disability: A Scoping Review. 成人智力残疾患者吞咽困难的评估方法综述。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.136
Minttu Sauna-Aho, Leena Tuomiranta, Ahmed Geneid, Kaisa Launonen
{"title":"Evaluation Methods of Dysphagia in Adults With Intellectual Disability: A Scoping Review.","authors":"Minttu Sauna-Aho, Leena Tuomiranta, Ahmed Geneid, Kaisa Launonen","doi":"10.1352/1934-9556-63.2.136","DOIUrl":"10.1352/1934-9556-63.2.136","url":null,"abstract":"<p><p>Dysphagia is a serious but underdiagnosed health-related condition in people with intellectual disability (ID). In this scoping review, we provide an overview of dysphagia evaluation methods used in adults with ID. The data from 31 studies were analyzed qualitatively by identifying the evaluation methods and the validity and reliability of the methods. To summarize, dysphagia has been evaluated in many ways and for different purposes. The most common evaluation method was a videofluorographic swallowing study (VFSS). Four of the reviewed methods were found to be valid and reliable in detecting swallowing problems in adults with ID.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"136-148"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732443","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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