Chelsea VanHorn Stinnett, Anthony J Plotner, Kathleen J Marshall
{"title":"The Continuum of Support for Building Intimacy Knowledge in College for Students With Intellectual Disability.","authors":"Chelsea VanHorn Stinnett, Anthony J Plotner, Kathleen J Marshall","doi":"10.1352/1934-9556-59.6.472","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.472","url":null,"abstract":"<p><p>Postsecondary education (PSE) programs allow for college students with intellectual disability to experience a higher level of autonomy in choice making, which they may not have experienced in their family home or high school. This includes choice making related to romantic and sexual relationships. The Continuum of Support for Intimacy Knowledge in College Survey (CoSIK-C) was used to examine how PSE programs support college students in building their intimacy knowledge. Types of resources and services used to build intimacy knowledge and the frequency and context in which support was provided were identified and varied across programs. Implications for practice and future research are provided.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"472-486"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring Patterns of Advocacy and Well-Being of Parents of Children With Intellectual and Developmental Disabilities.","authors":"Kristina Rios, Janeth Aleman-Tovar, Meghan Burke","doi":"10.1352/1934-9556-59.6.459","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.459","url":null,"abstract":"<p><p>Advocacy is often an expectation for parents of children with intellectual and developmental disabilities (IDD). However, little is known about how advocacy may impact parent well-being, including stress, family dynamics, and marital relationships. By exploring the effects of advocacy on well-being, interventions can be implemented to support both the advocacy and well-being of parents of children with IDD. To this end, the purpose of the study was to explore the pattern between positive and negative advocacy experiences of parents of children with IDD and the well-being of parents, families, and marriages. Semi-structured interviews were conducted with 38 parents of children with IDD. Regardless of the nature (i.e., positive, or negative) of the advocacy experience, participants reported that advocacy increased their stress. When the advocacy experience was positive, some participants reported improved family quality of life. Also, regardless of the nature of the advocacy experience, some participants reported feeling frustration within their marital relationships. Implications for future research and practice are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"459-471"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652173","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Resúmenes al Español.","authors":"","doi":"10.1352/1934-9556-54.4.297","DOIUrl":"https://doi.org/10.1352/1934-9556-54.4.297","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"54 4 1","pages":"297-8"},"PeriodicalIF":1.8,"publicationDate":"2021-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/1934-9556-54.4.297","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47926128","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1934-9556-54.1.77","DOIUrl":"https://doi.org/10.1352/1934-9556-54.1.77","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"54 1 1","pages":"77-8"},"PeriodicalIF":1.8,"publicationDate":"2021-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/1934-9556-54.1.77","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42630673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Toward Freedom and Dignity: Comments on the Occasion of the Publication of the 12th Edition of the AAIDD Definition and Classification Manual.","authors":"Michael L Wehmeyer","doi":"10.1352/1934-9556-59.5.376","DOIUrl":"https://doi.org/10.1352/1934-9556-59.5.376","url":null,"abstract":"<p><p>Dr. Wehmeyer provides a reflection on how the 12th edition AAIDD Definition, Diagnosis, Classification, and Systems of Supports Manual might move the field of intellectual disability forward.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"376-379"},"PeriodicalIF":1.8,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39440309","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Matthew J Smith, Kari Sherwood, Shannon Blajeski, Brittany Ross, Justin D Smith, Neil Jordan, Leann Dawalt, Lauren Bishop, Marc S Atkins
{"title":"Job Interview and Vocational Outcomes Among Transition-Age Youth Receiving Special Education Pre-Employment Transition Services.","authors":"Matthew J Smith, Kari Sherwood, Shannon Blajeski, Brittany Ross, Justin D Smith, Neil Jordan, Leann Dawalt, Lauren Bishop, Marc S Atkins","doi":"10.1352/1934-9556-59.5.405","DOIUrl":"10.1352/1934-9556-59.5.405","url":null,"abstract":"<p><p>Vocational outcomes among transition-age youth receiving special education services are critically poor and have only incrementally improved since the implementation of the Workforce Innovation Opportunity Act. Few studies highlight whether interviewing may be critical to obtaining vocational outcomes such as competitive employment or internships. This study evaluated vocational interviewing and outcomes among 656 transition-age youth receiving special education pre-employment transition services from 47 schools. Results suggest 20.8% of these youth were currently employed, and 88.8% of these employed youth interviewed prior to obtaining their job, which is higher than anecdotal evidence suggests and speaks to the importance of job interview skills as an intervention target for special education pre-employment transition services. We discuss the implications and directions for further study.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"405-421"},"PeriodicalIF":1.7,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10732084/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39439234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effect of Online Palliative Care Training on Knowledge and Self-Efficacy of Direct Care Workers.","authors":"Jinsook Kim, Jennifer A Gray","doi":"10.1352/1934-9556-59.5.392","DOIUrl":"https://doi.org/10.1352/1934-9556-59.5.392","url":null,"abstract":"<p><p>We evaluated the effectiveness of an online training on palliative care knowledge and self-efficacy among staff working with people with intellectual and developmental disabilities (IDD) using a one-group pretest-posttest design. Staff from four nonprofit residential and day services organizations in a U.S. Midwestern state participated. Among 132 staff who completed a baseline assessment, a 2-hour online training, and a posttest, 98 staff completed a 1-month follow-up survey. Palliative care knowledge was assessed before and after the training, and palliative care self-efficacy, at baseline and 1-month follow-up. We used linear regression to identify the factors that influence the effect of the training on main outcomes. Overall palliative care knowledge and self-efficacy significantly improved while higher education and longer work tenure enhanced training effectiveness.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"392-404"},"PeriodicalIF":1.8,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39439233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ongoing Transformation in the Field of Intellectual and Developmental Disabilities: Taking Action for Future Progress.","authors":"Robert L Schalock, Ruth Luckasson, Marc J Tassé","doi":"10.1352/1934-9556-59.5.380","DOIUrl":"https://doi.org/10.1352/1934-9556-59.5.380","url":null,"abstract":"<p><p>There has been a significant transformation in the field of intellectual and developmental disabilities (IDD) over the last 5 decades. Although this transformation has profoundly influenced multiple stakeholders, the field is currently at a critical juncture and facing a number of social and political challenges. Given the relevance of the question, \"where is the field of IDD and where do we go,\" the present article describes the field's transformation, and suggests future action steps to facilitate and sustain the transformation. The seven action steps discussed in the article relate to using precise terminology, incorporating a functional and holistic approach to IDD, embracing the supports model and evidence-based practices, implementing outcome evaluation, empowering individuals and families, understanding better the multidimensional properties of context, and incorporating an explicit notion of professional responsibility.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"380-391"},"PeriodicalIF":1.8,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39440310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Is the Intellectual Functioning Component of AAIDD's 12th Manual Satisficing?","authors":"Kevin S McGrew","doi":"10.1352/1934-9556-59.5.369","DOIUrl":"https://doi.org/10.1352/1934-9556-59.5.369","url":null,"abstract":"In the world of design and decision making, perfect or optimal solutions typically only work in simplified worlds. In the complex constraint-driven nature of reality, satisfactory and sufficient (satisficing) designs and decisions are the norm (Leahey, 2003; Simon, 1956). Cleary a manual produced with input from a large and diverse committee of experts and stakeholders, when committees have been characterized as ‘‘a cul-de-sac down which ideas are lured and then quietly strangled’’ (Barnett Cocks, 1973), will not be perfect. Given this context, the opinions expressed here are based on the author’s 45þ years of experience, including 12 years as a practicing school psychologist, an intelligence researcher and scholar, a university professor, an author of a major intelligence test (Woodcock-Johnson IV [WJ IV]), and a frequent expert regarding the intelligence quotient (IQ) prong in intellectual disability (ID) death penalty cases following Atkins v. Virginia. This author offers opinions on whether the American Association on Intellectual and Developmental Disabilities (AAIDD) 12 edition of Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Support (Schalock et al., 2021; hereafter referred to as the purple manual) provides satisficing treatment on a handful of select issues. The complex and unresolved issue of using part scores for proxies of general intelligence (g) receives the largest discussion.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"369-375"},"PeriodicalIF":1.8,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39439860","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1934-9556-59.5.436","DOIUrl":"https://doi.org/10.1352/1934-9556-59.5.436","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5 1","pages":"436-437"},"PeriodicalIF":1.8,"publicationDate":"2021-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46228869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}