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Social Positioning to Increase Communication of Adults With Extensive Support Needs. 社会定位，以增加沟通的成年人广泛的支持需求。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-02-01 DOI: 10.1352/1934-9556-60.1.1
Dena R Bonnike, Karen H Douglas, Yun-Ching Chung, George R Peterson-Karlan
{"title":"Social Positioning to Increase Communication of Adults With Extensive Support Needs.","authors":"Dena R Bonnike,&nbsp;Karen H Douglas,&nbsp;Yun-Ching Chung,&nbsp;George R Peterson-Karlan","doi":"10.1352/1934-9556-60.1.1","DOIUrl":"https://doi.org/10.1352/1934-9556-60.1.1","url":null,"abstract":"<p><p>Social positioning involves positioning individuals with extensive support needs (ESN) in proximity to and facing a communication partner, with access to a speech-generating device (SGD). We used a multiple probe design to evaluate if social positioning would increase the symbolic and nonsymbolic communication of 10 adults with ESN when they were out of their wheelchairs. Dependent variables included (a) SGD activations, (b) eye gaze, (c) vocalizations, and (d) reaching. Visual analysis of the results indicated a functional relation between the introduction of social positioning and increased eye gaze and SGD activations of participants while maintenance data were variable. Implications for service providers and future research directions are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 1","pages":"1-15"},"PeriodicalIF":1.8,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39877681","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Compound Caregiving: Toward a Research Agenda. 复合护理:迈向研究议程。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-02-01 DOI: 10.1352/1934-9556-60.1.66
Chung Eun Lee, Meghan M Burke, Elizabeth A Perkins
{"title":"Compound Caregiving: Toward a Research Agenda.","authors":"Chung Eun Lee,&nbsp;Meghan M Burke,&nbsp;Elizabeth A Perkins","doi":"10.1352/1934-9556-60.1.66","DOIUrl":"https://doi.org/10.1352/1934-9556-60.1.66","url":null,"abstract":"<p><p>Aging family caregivers of adults with intellectual and developmental disabilities (IDD) have unique circumstances setting them apart from the general caregiving population. Such differences include the extensive duration of the caregiving, and health concerns that manifest in the caregiver and individuals with IDD over time. Because of increasing longevity, family caregivers are likely to become compound caregivers (i.e., individuals caregiving for multiple people). Almost 70% of family caregivers of individuals with IDD experience compound caregiving, yet we know very little about compound caregiving. In this article, we highlight the importance of supporting compound caregivers by identifying research issues that address current challenges and future directions. Implications for research are noted, including the need for multidimensional outcome measures and longitudinal studies.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 1","pages":"66-79"},"PeriodicalIF":1.8,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39579099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Matching Level of Clinical Support to Patient Risk When Caring for Children With Behavioral Challenges. 当照顾有行为障碍的儿童时，临床支持与患者风险的匹配水平。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-02-01 DOI: 10.1352/1934-9556-60.1.32
Kerri Birkett, Melissa Liddle, Emily Jones, Andrea Paulson
{"title":"Matching Level of Clinical Support to Patient Risk When Caring for Children With Behavioral Challenges.","authors":"Kerri Birkett,&nbsp;Melissa Liddle,&nbsp;Emily Jones,&nbsp;Andrea Paulson","doi":"10.1352/1934-9556-60.1.32","DOIUrl":"https://doi.org/10.1352/1934-9556-60.1.32","url":null,"abstract":"<p><p>Adaptive care plans (ACPs) are an innovative method to providing care for children and adolescents with developmental disabilities who have challenging behaviors during healthcare encounters. ACPs take a family-centered approach to ensure that children with developmental disabilities are able to receive safe and appropriate healthcare by increasing communication and collaboration between caregivers and healthcare team members. Differing healthcare professionals are strategically involved in order to appropriately match the level of support to the patient's behavioral risk through a review of two case examples from the pediatric physical medicine and rehabilitation department. Specifically, case examples describe varying levels of accommodations and support provided to children with challenging behaviors, whose behaviors may have otherwise prevented them from receiving appropriate health interventions.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 1","pages":"32-40"},"PeriodicalIF":1.8,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39579100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Short-Term Changes of Frailty in Prematurely Aging Adults With Intellectual Disability. 智力残疾的早衰成人的短期衰弱变化。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-02-01 DOI: 10.1352/1934-9556-60.1.57
Shu-Yuan Lin, Hui-Chen Tseng
{"title":"Short-Term Changes of Frailty in Prematurely Aging Adults With Intellectual Disability.","authors":"Shu-Yuan Lin,&nbsp;Hui-Chen Tseng","doi":"10.1352/1934-9556-60.1.57","DOIUrl":"https://doi.org/10.1352/1934-9556-60.1.57","url":null,"abstract":"<p><p>The purpose of this study was to investigate short-term changes of frailty in adults and identify predictors of frailty and disability changes between baseline and the follow-up. A cohort study was conducted in 85 adults with intellectual disability (ID) in southern Taiwan. Variables of frailty phenotype, Barthel Index, fall, comorbidity, and hospitalization were measured at baseline and at a 9-month follow-up. Descriptive statistics, correlations, and generalized linear model technique were used for data analysis. The percentages of frailty and pre-frail conditions were high at baseline. Improvement or deterioration on frailty was noticed in 37.6% of participants. Disability and comorbidity were significant predictors to changes in frailty, and severity of ID and frailty conditions were significant predictors to changes in disability.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 1","pages":"57-65"},"PeriodicalIF":1.8,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39579101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Psychometric Properties of Self-Determination Inventory: Student Report Among Chinese Students With and Without Intellectual and Developmental Disabilities. 自我决定量表的心理测量特征:中国有和没有智力和发育障碍学生的报告。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-02-01 DOI: 10.1352/1934-9556-60.1.41
Tianxi Xu, Xueqin Qian, Graham G Rifenbark, Karrie A Shogren, Mayumi Hagiwara
{"title":"Psychometric Properties of Self-Determination Inventory: Student Report Among Chinese Students With and Without Intellectual and Developmental Disabilities.","authors":"Tianxi Xu,&nbsp;Xueqin Qian,&nbsp;Graham G Rifenbark,&nbsp;Karrie A Shogren,&nbsp;Mayumi Hagiwara","doi":"10.1352/1934-9556-60.1.41","DOIUrl":"https://doi.org/10.1352/1934-9556-60.1.41","url":null,"abstract":"<p><p>This study explores the psychometric properties of Self-Determination Inventory: Student Report (SDI:SR) in students with intellectual and developmental disabilities (IDD) and without disabilities in China. The paper-and-pencil version of SDI:SR Chinese Translation (SDI:SR Chinese) was used to explore self-determination across students with IDD (n = 245) and students without disabilities (n = 315) from 16 schools across six cities in China. We examined the factor structure of the measure, conducted analysis of measurement invariance, and compared the latent means across students with IDD and without disabilities. Findings suggest that the data fit a one-factor model better than a three-factor model. We found greater variability in self-determination among students with IDD than students without disabilities. However, the two groups did not differ in latent means.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 1","pages":"41-56"},"PeriodicalIF":1.8,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39579102","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Résumés en Français. 英文摘要。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-01-01 DOI: 10.1352/1934-9556-53.5.377
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1934-9556-53.5.377","DOIUrl":"https://doi.org/10.1352/1934-9556-53.5.377","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"53 5 1","pages":"377-8"},"PeriodicalIF":1.8,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/1934-9556-53.5.377","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46661760","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medical Student Choices Regarding Ventilator Allocation for People With Disabilities. 医学生对残疾人呼吸机分配的选择。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2021-12-01 DOI: 10.1352/1934-9556-59.6.441
Carly Muller, Canon Brodar, Kaitlyn E Brodar, Kenneth Goodman, Jeffrey P Brosco
{"title":"Medical Student Choices Regarding Ventilator Allocation for People With Disabilities.","authors":"Carly Muller,&nbsp;Canon Brodar,&nbsp;Kaitlyn E Brodar,&nbsp;Kenneth Goodman,&nbsp;Jeffrey P Brosco","doi":"10.1352/1934-9556-59.6.441","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.441","url":null,"abstract":"<p><p>In the COVID-19 pandemic, concerns exist that ventilator triage policies may lead to discrimination against people with disabilities. This study evaluates whether preclinical medical students demonstrate bias towards people with disabilities during an educational ventilator-allocation exercise. Written student responses to a triage simulation activity were analyzed to describe ventilator priority rankings and to identify themes regarding disability. Disability status was not cited as a reason to withhold a ventilator. Key themes observed in ventilator triage decisions included life expectancy, comorbidities, and social worth. Although disability discrimination has historically been perpetuated by health care professionals, it is encouraging that preclinical medical students did not demonstrate explicit bias against people with disabilities in ventilator triage scenarios.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"441-445"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652172","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
The Continuum of Support for Building Intimacy Knowledge in College for Students With Intellectual Disability. 智障学生在大学建立亲密知识的持续支持。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2021-12-01 DOI: 10.1352/1934-9556-59.6.472
Chelsea VanHorn Stinnett, Anthony J Plotner, Kathleen J Marshall
{"title":"The Continuum of Support for Building Intimacy Knowledge in College for Students With Intellectual Disability.","authors":"Chelsea VanHorn Stinnett,&nbsp;Anthony J Plotner,&nbsp;Kathleen J Marshall","doi":"10.1352/1934-9556-59.6.472","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.472","url":null,"abstract":"<p><p>Postsecondary education (PSE) programs allow for college students with intellectual disability to experience a higher level of autonomy in choice making, which they may not have experienced in their family home or high school. This includes choice making related to romantic and sexual relationships. The Continuum of Support for Intimacy Knowledge in College Survey (CoSIK-C) was used to examine how PSE programs support college students in building their intimacy knowledge. Types of resources and services used to build intimacy knowledge and the frequency and context in which support was provided were identified and varied across programs. Implications for practice and future research are provided.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"472-486"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Friendships Through Inclusive Postsecondary Education Programs: Perspectives of Current and Former Students With Intellectual and Developmental Disabilities. 通过包容性的高等教育项目建立友谊:有智力和发育障碍的当前和以前的学生的观点。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2021-12-01 DOI: 10.1352/1934-9556-59.6.487
Stephanie Spruit, Erik W Carter
{"title":"Friendships Through Inclusive Postsecondary Education Programs: Perspectives of Current and Former Students With Intellectual and Developmental Disabilities.","authors":"Stephanie Spruit,&nbsp;Erik W Carter","doi":"10.1352/1934-9556-59.6.487","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.487","url":null,"abstract":"<p><p>The formation of friendships is central to the college experience. Yet little is known about the relationships young adults with intellectual and developmental disabilities form through their inclusive postsecondary education programs or maintain after graduation. We interviewed 12 current students and alumni about their social networks and their views regarding friendships. Participants shared their perspectives on the multiple meaning of friendship, the size and composition of their social networks, and the areas in which college has positively impacted their social lives. We offer recommendations for research and practice aimed at understanding and enhancing friendship formation within the inclusive higher education movement.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"487-501"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Training Healthcare Professionals to Work With People With Intellectual and Developmental Disabilities. 培训医疗保健专业人员与智力和发育障碍人士一起工作。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2021-12-01 DOI: 10.1352/1934-9556-59.6.446
Sydnie E Smith, Hannah P McCann, Richard C Urbano, Elisabeth M Dykens, Robert M Hodapp
{"title":"Training Healthcare Professionals to Work With People With Intellectual and Developmental Disabilities.","authors":"Sydnie E Smith,&nbsp;Hannah P McCann,&nbsp;Richard C Urbano,&nbsp;Elisabeth M Dykens,&nbsp;Robert M Hodapp","doi":"10.1352/1934-9556-59.6.446","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.446","url":null,"abstract":"<p><p>This study assessed 155 healthcare providers, from nine disciplines, who work professionally with people with intellectual and developmental disabilities (IDD). Using a national, web-based survey, respondents rated their experience, comfort, and competence in treating individuals with different disability types and preferred methods of continuing education; respondents also provided suggestions for attracting others to work with the IDD population. Findings revealed that experiences, comfort, and competence were all higher concerning persons with autism spectrum disorder (ASD) and intellectual disability (ID), lower for those with deaf-blindness. Overall, levels of experience exceeded levels of comfort, which in turn exceeded levels of competence. The most helpful venues for continued training involved day-to-day contact with persons with IDD, which also characterized open-ended responses. Research and practical implications are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"446-458"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
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