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Shared Citizenship, Context, and the Next Generation of Self-Determination Research. 共享的公民身份，背景和下一代自决研究。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-06-01 DOI: 10.1352/1934-9556-63.3.256
Karrie A Shogren, Ruth Luckasson, Robert L Schalock
{"title":"Shared Citizenship, Context, and the Next Generation of Self-Determination Research.","authors":"Karrie A Shogren, Ruth Luckasson, Robert L Schalock","doi":"10.1352/1934-9556-63.3.256","DOIUrl":"10.1352/1934-9556-63.3.256","url":null,"abstract":"<p><p>Self-determination is recognized as a key outcome in the disability field. However, the alignment of self-determination research with the shared citizenship paradigm and growing research on the role of context and contextual variables in shaping personal and collective self-determination outcomes has not yet been fully explored. In this article we (a) describe the shared citizenship paradigm and self-determination; (b) summarize the current understanding of context; (c) identify contextual variables influencing self-determination; and (d) recommend research approaches, policies, and practices to guide the next generation of self-determination research. We highlight how adopting the shared citizenship paradigm and recognizing that context matters is essential to advancing self-determination, providing direction for future self-determination research, policy, and practice.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 3","pages":"256-266"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162834","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Stakeholder Perspectives on Physical Activity in Youth With Developmental Disabilities: A Mixed Methods Study. 利益相关者对发育障碍青少年体育活动的看法：一项混合方法研究。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.120
Sudha Srinivasan, Natasha Sattar, Aparna Athreya, Susan S Glenney, Deborah Bubela
{"title":"Stakeholder Perspectives on Physical Activity in Youth With Developmental Disabilities: A Mixed Methods Study.","authors":"Sudha Srinivasan, Natasha Sattar, Aparna Athreya, Susan S Glenney, Deborah Bubela","doi":"10.1352/1934-9556-63.2.120","DOIUrl":"10.1352/1934-9556-63.2.120","url":null,"abstract":"<p><p>We explored factors associated with physical activity (PA) engagement in youth with developmental disabilities (DD) as they transition out of school. We conducted focus group discussions with 44 youth, families, special educators, and therapists to obtain information on PA levels, barriers to being active, and recommendations to improve PA among youth. Youth preferred activities that are fun, not too challenging, noncompetitive, and promoted interactions with neurotypical peers. Families face the burden of sustaining PA in their adult children after school age and experience barriers related to accessibility and affordability of adult-oriented programs, availability of trained personnel, and challenges in balancing multiple work and family-related commitments. Our findings can inform the design of programs to promote PA among youth with DD.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"120-135"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Media Portrayals of Individuals With Intellectual and Developmental Disabilities. 探索媒体对智力和发育障碍个体的描绘。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.87
Aesha J John, Jade Presnell, Sabrina Cavazos, Cameron Lewright
{"title":"Exploring Media Portrayals of Individuals With Intellectual and Developmental Disabilities.","authors":"Aesha J John, Jade Presnell, Sabrina Cavazos, Cameron Lewright","doi":"10.1352/1934-9556-63.2.87","DOIUrl":"10.1352/1934-9556-63.2.87","url":null,"abstract":"<p><p>Considering past evidence highlighting the role of media portrayal in shaping community attitudes towards people with intellectual and developmental disabilities (IDD), we analyzed depictions of IDD in seven television shows and three movies. Characters with IDD were coded based on categories representing (a) their attributes (demographic, disability-related, and personality), (b) the salience of IDD and character with IDD, (c) treatment by other characters, and (d) quality of life. The majority of the characters were White and male, and persons with IDD played characters with visible disabilities. Characters with IDD were often bullied, but most were portrayed as having a strong support system and a good quality of life. Themes are discussed in the context of implications and methodological limitations.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"87-104"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Food-Related Interventions in Schools for Students With Significant Disabilities: A Systematic Review and Analysis. 学校对严重残疾学生的食物相关干预：系统回顾与分析。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.165
Brianna Grumstrup, Mary Ann Demchak
{"title":"Food-Related Interventions in Schools for Students With Significant Disabilities: A Systematic Review and Analysis.","authors":"Brianna Grumstrup, Mary Ann Demchak","doi":"10.1352/1934-9556-63.2.165","DOIUrl":"10.1352/1934-9556-63.2.165","url":null,"abstract":"<p><p>The purpose of this systematic review was to summarize research to date on school-based, food-related interventions (e.g., cooking, grocery shopping, food-related literacy, eating behavior) for students with intellectual and developmental disabilities (IDD). The second purpose was to evaluate the quality of eligible studies according to the design criteria of What Works Clearinghouse (WWC; 2020). Two levels of review took place: the first to establish eligibility for inclusion and the second to evaluate studies for research design criteria. Twenty-seven studies were evaluated, with five meeting WWC standards with or without reservations. The percentage of criteria met in each study ranged from 0 to 100 percent. Research needs and quality for the above outcomes in this population are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"165-180"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pregnancy Experiences of Women With Intellectual and Developmental Disabilities. 智力和发育障碍妇女的怀孕经历。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.149
Lauren D Smith, Aishwarya Khanna, Susan L Parish, Monika Mitra
{"title":"Pregnancy Experiences of Women With Intellectual and Developmental Disabilities.","authors":"Lauren D Smith, Aishwarya Khanna, Susan L Parish, Monika Mitra","doi":"10.1352/1934-9556-63.2.149","DOIUrl":"10.1352/1934-9556-63.2.149","url":null,"abstract":"<p><p>Today women with intellectual and developmental disabilities (IDD) are more likely than ever to live in the community and are increasingly likely to give birth. However, they are at increased risk of adverse maternal and infant outcomes. This qualitative study explored pregnancy care experiences of women with IDD. Semi-structured interviews were conducted in 2016-2017 with 16 mothers with IDD from the United States (analysis in 2020-2022). A content analysis approach revealed that perinatal care; social and economic factors; psychosocial factors; and environmental factors impacted pregnancy experiences. Some participants reported exceptional care. This study centers the voices and experiences of women with IDD in the United States. Findings demonstrate a need to improve care through clinician training and to develop accessible programs and services.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"149-164"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation Methods of Dysphagia in Adults With Intellectual Disability: A Scoping Review. 成人智力残疾患者吞咽困难的评估方法综述。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.136
Minttu Sauna-Aho, Leena Tuomiranta, Ahmed Geneid, Kaisa Launonen
{"title":"Evaluation Methods of Dysphagia in Adults With Intellectual Disability: A Scoping Review.","authors":"Minttu Sauna-Aho, Leena Tuomiranta, Ahmed Geneid, Kaisa Launonen","doi":"10.1352/1934-9556-63.2.136","DOIUrl":"10.1352/1934-9556-63.2.136","url":null,"abstract":"<p><p>Dysphagia is a serious but underdiagnosed health-related condition in people with intellectual disability (ID). In this scoping review, we provide an overview of dysphagia evaluation methods used in adults with ID. The data from 31 studies were analyzed qualitatively by identifying the evaluation methods and the validity and reliability of the methods. To summarize, dysphagia has been evaluated in many ways and for different purposes. The most common evaluation method was a videofluorographic swallowing study (VFSS). Four of the reviewed methods were found to be valid and reliable in detecting swallowing problems in adults with ID.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"136-148"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732443","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Characteristics of Workplaces and Employers That Embrace Cognitive Diversity on the Work Floor. 拥抱职场认知多样性的工作场所和雇主的特点。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-04-01 DOI: 10.1352/1934-9556-63.2.105
Hanne Marie Høybråten Sigstad, Veerle Garrels, Evan E Dean, Christian Wendelborg
{"title":"Characteristics of Workplaces and Employers That Embrace Cognitive Diversity on the Work Floor.","authors":"Hanne Marie Høybråten Sigstad, Veerle Garrels, Evan E Dean, Christian Wendelborg","doi":"10.1352/1934-9556-63.2.105","DOIUrl":"10.1352/1934-9556-63.2.105","url":null,"abstract":"<p><p>People with intellectual disability (ID) are only marginally represented in the competitive labor market. This article aims to explore what Norwegian employers describe as important features of their workplace that enable labor market participation for employees with ID. The article was based on a mixed method approach that combined qualitative interviews and a quantitative survey with employers who have hired people with ID. Findings suggest that building inclusive environments and individualized supports can be effective for supporting employees with ID. More research is needed to further understand how employers can provide sufficient support to their workers, and successfully hire and retain workers with ID.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 2","pages":"105-119"},"PeriodicalIF":1.7,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español. 西班牙语摘要。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.84
{"title":"Resúmenes al Español.","authors":"","doi":"10.1352/1934-9556-63.1.84","DOIUrl":"https://doi.org/10.1352/1934-9556-63.1.84","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"84-85"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français. 摘要为法文。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.82
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1934-9556-63.1.82","DOIUrl":"https://doi.org/10.1352/1934-9556-63.1.82","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"82-83"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Being a "Lay Expert": A Choice for Chinese Parents of Young Autistic Children. 做“外行专家”：中国自闭症幼童父母的选择。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.1
Yumin Zhang, Junting Chen, Xiaoyan Li
{"title":"Being a \"Lay Expert\": A Choice for Chinese Parents of Young Autistic Children.","authors":"Yumin Zhang, Junting Chen, Xiaoyan Li","doi":"10.1352/1934-9556-63.1.1","DOIUrl":"10.1352/1934-9556-63.1.1","url":null,"abstract":"<p><p>The lack of rehabilitation teachers for autistic children is common in lower-middle income countries. Designing programs to train parents to become \"para-rehabilitators,\" that is, \"lay experts,\" is one of the ways to solve this problem. The purpose of this study was to explore the feelings, problems, and hopes of Chinese parents participating in the parent-implemented rehabilitation model. Semi-structured qualitative interviews with 19 parents of autistic children were conducted and analyzed thematically. The study found positive changes in the parental understanding of and response to autism disorders, suggesting that training parents to become para-rehabilitators to address the shortage of rehabilitators is useful, and that improvements in training methods are needed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"1-13"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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