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Presidential Address 2025-Mentoring Across the Professional Spectrum: Doing the Fundamental Work to Get to the Next Level. 2025年总统演讲：跨专业领域的指导：做好基础工作以达到下一个水平。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.363
Anthony M Rodriguez
{"title":"Presidential Address 2025-Mentoring Across the Professional Spectrum: Doing the Fundamental Work to Get to the Next Level.","authors":"Anthony M Rodriguez","doi":"10.1352/1934-9556-63.5.363","DOIUrl":"https://doi.org/10.1352/1934-9556-63.5.363","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"363-369"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of the Relationship Between Siblings and Adults With Intellectual Disability. 兄弟姐妹与智障成人之间的关系。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.441
Stanisława Byra, Katarzyna Ćwirynkało
{"title":"The Role of the Relationship Between Siblings and Adults With Intellectual Disability.","authors":"Stanisława Byra, Katarzyna Ćwirynkało","doi":"10.1352/1934-9556-63.5.441","DOIUrl":"https://doi.org/10.1352/1934-9556-63.5.441","url":null,"abstract":"<p><p>The aim of this study was to examine the relationship between the feeling of loneliness and life satisfaction in siblings of adults with intellectual disability, considering the potential role of the assessment of the quality of the relationship as a mediator and moderator of this relationship. A total of 103 siblings of persons with intellectual disability completed a set of questionnaires. The results indicated a significant relationship between the feeling of loneliness and life satisfaction, showed that the association between these variables is not direct, and one of the factors that explains the association is the quality of the relationship with a sibling with a disability. Knowledge on these correlations may be used by professionals working with siblings of adults with intellectual disability.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"441-451"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187068","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"She Like, Sugarcoats Things": Maternal Influence on Sexual (in)Agency of Young College Women With Disabilities. “她喜欢，粉饰一切”：母亲对残疾女大学生性行为的影响。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.401
Jenny Sperling
{"title":"\"She Like, Sugarcoats Things\": Maternal Influence on Sexual (in)Agency of Young College Women With Disabilities.","authors":"Jenny Sperling","doi":"10.1352/1934-9556-63.5.401","DOIUrl":"https://doi.org/10.1352/1934-9556-63.5.401","url":null,"abstract":"<p><p>By amplifying the voices of young college women with intellectual and developmental disabilities, this study explores the intersections of disability, gender, sexuality, and higher education. It highlights how maternal socialization shapes their sexual knowledge prior to college, revealing that mothers often leave their daughters misinformed, disempowered, and dependent, even into adulthood. The study also addresses how persistent taboos and embodied avoidance strategies, such as euphemisms and gestures, limit these women's agency and reflect constrained communication patterns from their upbringing. The findings underscore the crucial role of mothers in their daughters' sexual self-determination and advocate for tailored resources to support both mothers and their daughters, aiming to enhance sexual autonomy and education for women with disabilities.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"401-413"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Treating Substance Use Disorder in Individuals With Intellectual Disability: A Regional System Capacity Assessment. 治疗物质使用障碍的个人智力残疾：区域系统能力评估。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.384
Lori Ann Eldridge, Jon Agley, Jennifer Piatt, Kristin Hamre, Derek Nord
{"title":"Treating Substance Use Disorder in Individuals With Intellectual Disability: A Regional System Capacity Assessment.","authors":"Lori Ann Eldridge, Jon Agley, Jennifer Piatt, Kristin Hamre, Derek Nord","doi":"10.1352/1934-9556-63.5.384","DOIUrl":"https://doi.org/10.1352/1934-9556-63.5.384","url":null,"abstract":"<p><p>This mixed-methods study assessed substance use disorder (SUD) treatment for individuals with intellectual and developmental disabilities within California's regional center system. The system is the primary organization in California that coordinates and monitors services for these individuals. Data were solicited from the 21 service centers in the system and six vendored programs overseeing SUD services. This article reports on those programs and analyzes qualitative data from seven service coordinators regarding overall SUD treatment. Both the programs and the coordinators identified 0barriers to treatment, such as a lack of training and inadequate service structures. Despite being formal referral targets, these programs often only offered adaptations for physical access. Proposed solutions included interagency collaboration and adopting a biopsychosocial model of care.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"384-400"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Acquisition of Digital Literacy Skills in Learners With Developmental Disabilities. 发展性障碍学习者数字读写技能的习得。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.428
Lanqi Wang, Chengan Yuan, Jiawei He, Bingxin Jiang
{"title":"Acquisition of Digital Literacy Skills in Learners With Developmental Disabilities.","authors":"Lanqi Wang, Chengan Yuan, Jiawei He, Bingxin Jiang","doi":"10.1352/1934-9556-63.5.428","DOIUrl":"https://doi.org/10.1352/1934-9556-63.5.428","url":null,"abstract":"<p><p>Learners with developmental disabilities often encounter difficulties in performing daily activities that involve digital platforms, operating systems, applications, and other digital tools. Considering the growing importance of digital literacy, we examined the effectiveness of the clustered forward chaining (CFC) procedure in teaching digital transaction skills to three adolescents with intellectual and developmental disabilities (IDD). In the context of a multiple-baselines-across-skills design with between-participant replications, we taught participants four digital transaction tasks. The results showed that all participants acquired the four tasks during CFC and maintained their performance post-intervention. Two participants completed the intervention before all clusters were targeted, possibly due to observational learning and continuous performance probes. Furthermore, both the participants and the instructors found CFC to be an acceptable intervention for teaching digital literacy.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"428-440"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145186953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Respite Support From Adolescence to Adulthood in Families of People With Neurodevelopmental Disorders. 神经发育障碍患者家庭从青春期到成年期的喘息支持。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.414
Maira Tafolla, Hillary Schiltz, Catherine Lord
{"title":"Respite Support From Adolescence to Adulthood in Families of People With Neurodevelopmental Disorders.","authors":"Maira Tafolla, Hillary Schiltz, Catherine Lord","doi":"10.1352/1934-9556-63.5.414","DOIUrl":"https://doi.org/10.1352/1934-9556-63.5.414","url":null,"abstract":"<p><p>Respite is a priority for caregivers of people with neurodevelopmental disabilities across the lifespan. The present study aimed to characterize respite availability and frequency of use among 126 caregivers of young people with neurodevelopmental disabilities (from ages 16-22) using an ongoing longitudinal sample. Results indicated that the availability of respite support was greater and more consistent over time for caregivers of those with lower verbal abilities compared to those with higher verbal abilities. On average, the frequency of respite use from household members declined over time, with overall higher frequency of use reported by caregivers of those with a lower verbal intelligence quotient (VIQ). Our findings indicate that respite remains an important resource for caregivers of young people with neurodevelopmental disabilities well into adulthood, particularly for those caring for higher needs individuals.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"414-427"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Technology Access, Utility, and Unmet Needs: Results From the Arc's FINDS Survey. 技术获取、效用和未满足的需求：Arc的FINDS调查结果。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.370
Emily K Unholz-Bowden, Yue Wu, Alec Nyce, Brian H Abery, Lynda Lahti Anderson
{"title":"Technology Access, Utility, and Unmet Needs: Results From the Arc's FINDS Survey.","authors":"Emily K Unholz-Bowden, Yue Wu, Alec Nyce, Brian H Abery, Lynda Lahti Anderson","doi":"10.1352/1934-9556-63.5.370","DOIUrl":"10.1352/1934-9556-63.5.370","url":null,"abstract":"<p><p>Technology can enhance the quality of life of people with intellectual and developmental disabilities (IDD). However, little is known about the extent to which it is accessible to and useful for people with IDD and their caregivers from different backgrounds. A secondary analysis was conducted using 3,113 caregiver responses from the Arc's Family and Individual Needs for Disability Supports Survey to explore associations between technology access, utility, unmet needs, and various demographic characteristics of individuals with IDD and their families. Overall, reports of family members with IDD being older, employed, having more education, less health-related needs, and greater access to state-based services were associated with technology being reported as accessible and useful. Implications for research, practice, and policy are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"370-383"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12483175/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187097","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
SAATHI: A Pilot Transition Intervention for South Asian Parents of Children With Intellectual and Developmental Disabilities. 南亚智障儿童父母的过渡性干预试验。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-08-01 DOI: 10.1352/1934-9556-63.4.271
Sehrish Shikarpurya, Carly B Gilson
{"title":"SAATHI: A Pilot Transition Intervention for South Asian Parents of Children With Intellectual and Developmental Disabilities.","authors":"Sehrish Shikarpurya, Carly B Gilson","doi":"10.1352/1934-9556-63.4.271","DOIUrl":"10.1352/1934-9556-63.4.271","url":null,"abstract":"<p><p>Racially minoritized parents often experience significant systemic barriers when accessing and navigating transition planning for their young adults with intellectual and developmental disabilities. Despite the benefits of transition-focused parent interventions, only a few studies have developed or adapted these interventions for racially minoritized parents. We developed a 6-week, transition-focused online parent education intervention for 31 South Asian parents, South Asians Accessing and Advocating for Transition and Higher Education Inclusion (SAATHI). We found that SAATHI increased parents' transition knowledge, advocacy skills, and coping skills. Parents reported an increased sense of community and belonging after participating in SAATHI. Participants considered SAATHI feasible and beneficial. Implications of SAATHI for research, practice, and policy are also discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"271-285"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838247","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating Measurement Invariance Over Time for a Personal Opportunities Scale for People With IDD: Implications for Policy and Practice. 评估IDD患者个人机会量表随时间的测量不变性：对政策和实践的影响。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-08-01 DOI: 10.1352/1934-9556-63.4.315
Sarah Lineberry, Michael D Broda, Parthenia Dinora, Matthew Bogenschutz, Seb Prohn, Angela West
{"title":"Evaluating Measurement Invariance Over Time for a Personal Opportunities Scale for People With IDD: Implications for Policy and Practice.","authors":"Sarah Lineberry, Michael D Broda, Parthenia Dinora, Matthew Bogenschutz, Seb Prohn, Angela West","doi":"10.1352/1934-9556-63.4.315","DOIUrl":"10.1352/1934-9556-63.4.315","url":null,"abstract":"<p><p>Personal opportunities refer to chances for people with intellectual and developmental disabilities (IDD) to take self-directed action based on their interests, strengths, and preferences. This study tested for measurement invariance across five years of cross-sectional data, including data collected during the COVID-19 pandemic, to determine whether the scale performed consistently over time. Analysis revealed significant differences in both the National Core Indicators In-Person Survey (NCI-IPS) outcomes and in the Personal Opportunities scale. Measurement invariance testing indicated partial threshold and loading invariance, but not intercept invariance, suggesting that the ways in which participants perceived or responded to scale items changed over time. We recommend that researchers utilizing scaled measures with longitudinal outcomes employ statistical checks, including measurement invariance, to ensure the scale performs consistently over time.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"315-328"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intellectual and Developmental Disabilities Health Care Transition: Stakeholder Perspectives. 智力和发育障碍卫生保健转型：利益相关者的观点。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-08-01 DOI: 10.1352/1934-9556-63.4.299
Christine Bottrell Mirzaian, Alexis Deavenport-Saman, Sharon Hudson, Cecily L Betz
{"title":"Intellectual and Developmental Disabilities Health Care Transition: Stakeholder Perspectives.","authors":"Christine Bottrell Mirzaian, Alexis Deavenport-Saman, Sharon Hudson, Cecily L Betz","doi":"10.1352/1934-9556-63.4.299","DOIUrl":"10.1352/1934-9556-63.4.299","url":null,"abstract":"<p><p>Youth and young adults (YYA) with intellectual and developmental disabilities (IDD) and YYA with IDD and co-occurring mental health (MH) conditions experience unique challenges during the period of health care transition compared to those with other long-term conditions. This investigation explored respondents' (N = 277) perceptions of the needs associated with the transition experience of these two groups. Community-based organization respondents were significantly more likely to indicate stigma/bias were barriers for YYA with IDD compared to advocates or providers. Advocates were more likely to indicate access to postsecondary training or education was needed for YYA with IDD and co-occurring MH conditions. Greater services or supports were needed for YYA with co-occurring MH conditions than those with IDD: employment-related, housing, transportation/mobility, financial/food security.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 4","pages":"299-314"},"PeriodicalIF":1.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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