Intellectual and Developmental Disabilities最新文献

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Work Participation of Autistic Adolescents. 自闭症青少年的工作参与。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.42
Michelle Menezes, Jessica Pappagianopoulos, Micah O Mazurek
{"title":"Work Participation of Autistic Adolescents.","authors":"Michelle Menezes, Jessica Pappagianopoulos, Micah O Mazurek","doi":"10.1352/1934-9556-63.1.42","DOIUrl":"10.1352/1934-9556-63.1.42","url":null,"abstract":"<p><p>This study sought to compare frequency of paid work by autistic adolescents to paid work by adolescents with other neurodevelopmental disorders and typically developing adolescents, and to examine whether demographic and clinical characteristics were associated with autistic adolescent employment with data from 2016-2019 National Survey of Children's Health. Rate of paid work was significantly lower in the autistic group (22.01%) than typically developing (49.38%) and other neurodevelopmental disorders (44.27%) groups. Younger age, lower household income, co-occurring intellectual disability, and more severe autism were associated with lower odds of an autistic adolescent having worked. This study indicates that work disparities impacting autistic individuals begin in youth and highlights the need for improved vocational support to address employment barriers for autistic youth.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"42-50"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities. 为智障和发育障碍人士的家长制定宣传活动量表。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-12-01 DOI: 10.1352/1934-9556-62.6.486
Chak Li, Meghan M Burke, Julie Lounds Taylor, Leann S DaWalt, Zachary Rossetti
{"title":"Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities.","authors":"Chak Li, Meghan M Burke, Julie Lounds Taylor, Leann S DaWalt, Zachary Rossetti","doi":"10.1352/1934-9556-62.6.486","DOIUrl":"10.1352/1934-9556-62.6.486","url":null,"abstract":"<p><p>Advocacy has long been heralded as a way to create change for individuals with intellectual and developmental disabilities (IDD) and their families. However, without an established measure, it is difficult to accurately characterize advocacy activities. Drawing from extant research, the Advocacy Activities Scale was developed to assess three domains of parent advocacy: advocacy for one's own children, advocacy for other families, and advocacy for systemic change. Factor analyses were conducted using data from two projects reflecting 382 parents of individuals with IDD from seven states and the District of Columbia. The scale confirmed the three moderately correlated domains of parent advocacy and demonstrated that the scale has high: reliability, validity, test-retest reliability, and moderate correlations with related measures.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 6","pages":"486-499"},"PeriodicalIF":1.6,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13088979/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142711530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Preliminary Reliability and Validity of the Self-Determination Inventory: Student Report French Translation. 自我决定量表的初步可靠性和有效性:学生报告法文译本。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-10-01 DOI: 10.1352/1934-9556-62.5.339
Karrie A Shogren, Daria Gerasimova, Yves Lachapelle, Dany Lussier-Desrochers, Mayumi Hagiwara, Geneviève Petitpierre, Barbara Fontana-Lana, Filippo Piazza, Yannick Courbois, Agnès Desbiens, Marie-Claire Haelewyck, Hélène Geurts, Jesse R Pace, Tyler Hicks
{"title":"Preliminary Reliability and Validity of the Self-Determination Inventory: Student Report French Translation.","authors":"Karrie A Shogren, Daria Gerasimova, Yves Lachapelle, Dany Lussier-Desrochers, Mayumi Hagiwara, Geneviève Petitpierre, Barbara Fontana-Lana, Filippo Piazza, Yannick Courbois, Agnès Desbiens, Marie-Claire Haelewyck, Hélène Geurts, Jesse R Pace, Tyler Hicks","doi":"10.1352/1934-9556-62.5.339","DOIUrl":"https://doi.org/10.1352/1934-9556-62.5.339","url":null,"abstract":"<p><p>There is a strong and growing focus on self-determination in French-speaking countries, and this pilot study reports the technical adequacy of the Self-Determination Inventory: Student Report (SDI:SR) French Translation. Data were collected with 471 French-speaking youth with and without disabilities in Canada (Quebec), Switzerland, France, and Belgium. Key findings showed it was feasible to use 20 (of 21) items to represent the self-determination construct in the French-speaking sample. The same set of items function in the same way across students with and without disabilities, and students with disabilities descriptively scored lower. Overall, this study provides promising evidence for reliability and validity of the SDI:SR French Translation and suggests ongoing development and larger-scale testing of the SDI:SR French Translation is warranted.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 5","pages":"339-353"},"PeriodicalIF":1.7,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of a Nurses' Training Program on Early Detection of Egyptian Children With Developmental Disabilities in Assiut Governorate. 护士培训计划对早期发现阿苏特省埃及发育障碍儿童的影响。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-10-01 DOI: 10.1352/1934-9556-62.5.354
Zienab M Mady, Tayseer S Abdeldayem, Seham M Elmwafie, Amr S Ramadan
{"title":"Effect of a Nurses' Training Program on Early Detection of Egyptian Children With Developmental Disabilities in Assiut Governorate.","authors":"Zienab M Mady, Tayseer S Abdeldayem, Seham M Elmwafie, Amr S Ramadan","doi":"10.1352/1934-9556-62.5.354","DOIUrl":"https://doi.org/10.1352/1934-9556-62.5.354","url":null,"abstract":"<p><p>This study aimed to determine the effectiveness of a designed training program for nurses toward early detection of developmental disabilities among children aged 0-3 years. A group of 21 licensed nurses with professional experience ranging from 5-11 years participated in the study. The participants completed the measurements to evaluate their current knowledge, practice, and perception pre- and post-training program, as well as during a follow-up, in relation to early detection of disabilities. The results showed highly statistically significant difference between the studied nurses' total knowledge, perception, and practice in pre- and post-program application (p = 0.01). However, there was no statistically significant difference between the post-program and follow-up application (p = 0.180).</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 5","pages":"354-362"},"PeriodicalIF":1.7,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Empowering Healthcare Professionals: Exploring Experiences Leading a Violence Prevention Course for Adults With Intellectual Disability. 增强医疗保健专业人员的能力:探索为智障成人开设预防暴力课程的经验。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-10-01 DOI: 10.1352/1934-9556-62.5.363
Tone Hee Åker, Karianne Moen, Kristina Areskoug Josefsson, Patsie Frawley
{"title":"Empowering Healthcare Professionals: Exploring Experiences Leading a Violence Prevention Course for Adults With Intellectual Disability.","authors":"Tone Hee Åker, Karianne Moen, Kristina Areskoug Josefsson, Patsie Frawley","doi":"10.1352/1934-9556-62.5.363","DOIUrl":"https://doi.org/10.1352/1934-9556-62.5.363","url":null,"abstract":"<p><p>Violence prevention approaches using social-ecological models inform interventions for people with intellectual disability, who often face barriers to accessing generalist courses. This study explores the experiences of healthcare professionals leading a prevention course specifically designed for adults with intellectual disability. Through semistructured interviews, 12 Norwegian course leaders highlighted the importance of raising awareness and comprehension about rights, and the social and individual factors influencing experiences of violence and its prevention. Challenges were encountered in tailoring the course to the diverse lived experiences of participants with disabilities and addressing ongoing support needs for their safety. The study suggests that adopting a pedagogical or didactic model could serve as a foundation to enhance the planning and delivery of the course.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 5","pages":"363-375"},"PeriodicalIF":1.7,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"I Know How to Get Around Your 'No'": A Follow-Up of the FACES Psychoeducational Intervention. 我知道如何绕过你的 "不":FACES 心理教育干预的后续研究。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-10-01 DOI: 10.1352/1934-9556-62.5.406
Jamie N Pearson, Janet K Outlaw, Jared H Stewart-Ginsburg, DeVoshia L Mason Martin
{"title":"\"I Know How to Get Around Your 'No'\": A Follow-Up of the FACES Psychoeducational Intervention.","authors":"Jamie N Pearson, Janet K Outlaw, Jared H Stewart-Ginsburg, DeVoshia L Mason Martin","doi":"10.1352/1934-9556-62.5.406","DOIUrl":"https://doi.org/10.1352/1934-9556-62.5.406","url":null,"abstract":"<p><p>Black children and their families encounter systemic disadvantages in their journey to and through an autism diagnosis. Black families often experience social and systemic barriers to service use. Providing family-centered, psychoeducational interventions can reduce barriers to service access and utilization for Black families raising autistic children. Fostering Advocacy, Communication, Empowerment, and Support (FACES) has demonstrated preliminary efficacy in strengthening outcomes among Black families, yet little is known about the long-term impact of the intervention. The purpose of this qualitative interview study was to understand the experiences of FACES graduates 16 months after the intervention. Four major themes emerged: (a) strengthened advocacy, (b) strengthened empowerment, (c) systemic barriers, and (d) home and community barriers. We provide implications for research and practice.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 5","pages":"406-419"},"PeriodicalIF":1.7,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336920","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Self-Advocate and Family Member Experiences With Supported Decision Making. 自我辩护人和家庭成员在辅助决策方面的经验。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-10-01 DOI: 10.1352/1934-9556-62.5.392
Evan E Dean, Mayumi Hagiwara, Lashanna Brunson, Brad Linnenkamp, Sean Swindler, Karrie A Shogren
{"title":"Self-Advocate and Family Member Experiences With Supported Decision Making.","authors":"Evan E Dean, Mayumi Hagiwara, Lashanna Brunson, Brad Linnenkamp, Sean Swindler, Karrie A Shogren","doi":"10.1352/1934-9556-62.5.392","DOIUrl":"https://doi.org/10.1352/1934-9556-62.5.392","url":null,"abstract":"<p><p>Supported decision making (SDM) is a needed focus of policy and practice to enhance opportunities for people with disabilities to exercise self-determination as they are supported to make decisions about their life. This study used content analysis to analyze five focus groups comprised of 27 adults with intellectual and developmental disabilities (IDD) and 16 family members to understand how people with IDD use supports for decision making and how families support decision making. People with IDD and family members described a range of strategies and supports they used for decision making, including engaging trusted supporters, accessing technology, and using early experiences to build decision-making skills. Findings from this research can inform development of practices and policy to enhance use of SDM in research, policy, and practice.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 5","pages":"392-405"},"PeriodicalIF":1.7,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336925","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Capturing Staff Perspectives on Quality Interaction With Clients With Intellectual Disability: A Diary Study. 捕捉工作人员与智障服务对象高质量互动的视角:日记研究。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-10-01 DOI: 10.1352/1934-9556-62.5.376
Gilles Droogmans, Sara Nijs, Bea Maes
{"title":"Capturing Staff Perspectives on Quality Interaction With Clients With Intellectual Disability: A Diary Study.","authors":"Gilles Droogmans, Sara Nijs, Bea Maes","doi":"10.1352/1934-9556-62.5.376","DOIUrl":"https://doi.org/10.1352/1934-9556-62.5.376","url":null,"abstract":"<p><p>For people with severe or profound intellectual disability (ID), support staff are important interaction partners. The quality of their interactions, a multidimensional construct, is well documented, but the staff perspective remains underexposed. This study aims to capture the behaviors, thoughts, and emotions of staff when interacting with their clients, and their views on what constitutes quality. Thirty-four support staff completed a 5-day diary about a daily interaction with a specific client. A thematic analysis was carried out. The diary entries depicted behaviors and thoughts with different foci, and emotions with positive and negative valences. The pursuit of Harmonization and the experience of Return emerged as overarching dimensions central to staff's views on quality interaction. Limitations and directions for future research are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 5","pages":"376-391"},"PeriodicalIF":1.7,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Involvement of Autistic Youth in Decision Making About Services. 探索自闭症青少年参与服务决策的情况。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-08-01 DOI: 10.1352/1934-9556-62.4.323
Meghan M Burke, Megan Best, W Catherine Cheung, Leann Smith DaWalt, Julie Lounds Taylor
{"title":"Exploring the Involvement of Autistic Youth in Decision Making About Services.","authors":"Meghan M Burke, Megan Best, W Catherine Cheung, Leann Smith DaWalt, Julie Lounds Taylor","doi":"10.1352/1934-9556-62.4.323","DOIUrl":"10.1352/1934-9556-62.4.323","url":null,"abstract":"<p><p>Although services are critical for many transition-aged youth, it is unclear the extent to which autistic youth participate in decisions about their services. By exploring the perceptions of autistic youth about their role in services, interventions can be developed to improve their participation. In this study, we interviewed 43 transition-aged youth with autism to explore their involvement in decisions about services. Most youth reported not being involved in decision making about the types and modalities of disability services. When youth were involved in decisions, the services were often related to education. Although youth reported that their parents typically spearheaded decisions about services, youth also reported that their parents often listened to their input. Implications for research, policy, and practice are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 4","pages":"323-333"},"PeriodicalIF":1.6,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13085781/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141789418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Criminal Justice and People With Intellectual and Developmental Disabilities. 刑事司法与智力和发育障碍人士。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-06-01 DOI: 10.1352/1934-9556-62.3.211
Roger J Stancliffe, Beverly L Frantz
{"title":"Criminal Justice and People With Intellectual and Developmental Disabilities.","authors":"Roger J Stancliffe, Beverly L Frantz","doi":"10.1352/1934-9556-62.3.211","DOIUrl":"10.1352/1934-9556-62.3.211","url":null,"abstract":"<p><p>People with intellectual and developmental disabilities (IDD) are overrepresented in the criminal justice system both as victims/survivors and as offenders. The needs and circumstances of individuals from underserved communities have received scant attention in the literature. Stakeholders met online at the 2022 State of the Science Conference on Community Living to discuss criminal justice and to identify goals for research involving people with IDD. The group focused more on victimization and less on offenders. Victimization issues examined included prevalence, people from underserved communities, sexual victimization, consequences of victimization, victim compensation, prevention, and risk reduction. Issues regarding offenders included prevalence, people from underserved communities, and competency to stand trial. Future directions are proposed for research on victimization and on offenders.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 3","pages":"211-224"},"PeriodicalIF":1.6,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12360897/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141158319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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