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Tailoring the WHO Caregiver Skills Training Program: Insights from Implementation in Two Latin American Countries. 调整世卫组织护理人员技能培训规划：来自两个拉丁美洲国家实施的见解。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-16 DOI: 10.1080/19349491.2025.2583726
Cecilia Montiel-Nava, Denise Lecusay, Miriam Ortiz, Sebastián Cukier, Pierinna Landolfi, Alexia Rattazzi, Gabriella Garrido, Ines Podesta, Virginia Besio, Alejandra Iervolina, Pamela Dixon, Lucia Murillo Chacko
{"title":"Tailoring the WHO Caregiver Skills Training Program: Insights from Implementation in Two Latin American Countries.","authors":"Cecilia Montiel-Nava, Denise Lecusay, Miriam Ortiz, Sebastián Cukier, Pierinna Landolfi, Alexia Rattazzi, Gabriella Garrido, Ines Podesta, Virginia Besio, Alejandra Iervolina, Pamela Dixon, Lucia Murillo Chacko","doi":"10.1080/19349491.2025.2583726","DOIUrl":"https://doi.org/10.1080/19349491.2025.2583726","url":null,"abstract":"<p><p>Despite growing needs for caregiver support programs in Latin America, a minimal amount is known about implementing evidence-based interventions in this region. This study assessed the feasibility and acceptability of the WHO Caregiver Skills Training (CST) program in Argentina and Uruguay. Using a phenomenological framework, focus groups with caregivers (<i>n</i> = 18) of children with autistim (ages 2-9) revealed that: (a) collective learning environments aligned with cultural values; (b) implementation faced resource and logistical barriers; and (c) the program enhanced family adaptation and resilience. Results indicate CST's potential sustainability when culturally adapted, as Latino values emphasizing collective support and family-centered care significantly influenced caregivers' perception of the program's relevance in resource-constrained settings such as Latin American countries.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 1","pages":"60-74"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transition Planning for Students With Autism: Building Effective Teams Through Role Recognition, Communication, and Trust. 自闭症学生的过渡计划：透过角色认同、沟通与信任建立有效团队。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-16 DOI: 10.1080/19349491.2025.2576443
Lisa DaVia Rubenstein, Esther Nsiah, Qianhan Xiong, Abigail M A Love, Natalie Morehouse, Lisa Ruble
{"title":"Transition Planning for Students With Autism: Building Effective Teams Through Role Recognition, Communication, and Trust.","authors":"Lisa DaVia Rubenstein, Esther Nsiah, Qianhan Xiong, Abigail M A Love, Natalie Morehouse, Lisa Ruble","doi":"10.1080/19349491.2025.2576443","DOIUrl":"https://doi.org/10.1080/19349491.2025.2576443","url":null,"abstract":"<p><p>Postsecondary outcomes for students with autism remain among the poorest across disability categories. This qualitative study used focus groups to explore the perspectives of 25 caregivers, special education teachers, and Pre-Employment Transition Service (Pre-ETS) providers to identify how transition teams can be strengthened to support students with autism. We identified three key findings: (1) transition planning is most effective when team members' complementary expertise is recognized and utilized, (2) both personal and systemic communication barriers hinder collaboration but can be addressed through intentional structures, and (3) trust develops through role clarity, consistent communication, and early shared successes. Findings highlight the need for school systems and agencies to provide structured role definitions, adaptive communication tools for team members, and support for relationship building.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 1","pages":"1-14"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Role of Institutional Caregivers and Institutional Conditions Shaping Self-Determination in Individuals with Intellectual Disability. 机构照顾者和机构条件在智力残疾个体中塑造自我决定的作用。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-06-23 DOI: 10.1080/19349491.2026.2682770
Jakub Niedbalski
{"title":"Role of Institutional Caregivers and Institutional Conditions Shaping Self-Determination in Individuals with Intellectual Disability.","authors":"Jakub Niedbalski","doi":"10.1080/19349491.2026.2682770","DOIUrl":"10.1080/19349491.2026.2682770","url":null,"abstract":"<p><p>Self-determination of individuals with intellectual disability (ID) remains an important yet still underexplored area, particularly in relation to institutional support and the role of caregivers in fostering the autonomy of young adults. This study examined the institutional conditions that create opportunities for exercising self-determination in young adults with ID, with particular attention to the role of institutional caregivers. In this study, institutional caregivers are understood as trained professionals-such as social workers, special education teachers, therapists, and support staff-who provide formal support in day-care centers, supported living facilities, community homes, and other institutions offering social assistance and social integration services within the Polish social support system. Semi-structured interviews were conducted with fifteen institutional caregivers of young adults with ID. The transcripts were analyzed using grounded theory procedures. Three key themes emerged: caregivers' personal judgments regarding the promotion of self-determination in individuals with ID; the dynamics between parents and institutional caregivers shaped by their respective beliefs; and the role of caregivers in interactions between parents and their adult son or daughter. The findings highlight the complex and demanding role of institutional caregivers in supporting the self-determination of individuals with ID.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 4","pages":"296-313"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148722703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Integration of Occupation in Autism Psychoeducational Interventions for Black and Latino Families: A Systematic Content Analysis. 探索职业在黑人和拉丁裔家庭自闭症心理教育干预中的整合：一个系统的内容分析。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-04-20 DOI: 10.1080/19349491.2026.2642620
Tamara B Mays, Jamie N Pearson, Cambey Mikush
{"title":"Exploring the Integration of Occupation in Autism Psychoeducational Interventions for Black and Latino Families: A Systematic Content Analysis.","authors":"Tamara B Mays, Jamie N Pearson, Cambey Mikush","doi":"10.1080/19349491.2026.2642620","DOIUrl":"10.1080/19349491.2026.2642620","url":null,"abstract":"<p><p>Despite the increased prevalence of autism among children of color, disparities in service access persist. Family-centered autism psychoeducational interventions have emerged to empower racially and ethnically marginalized caregivers of children with autism with knowledge and skills to improve child outcomes. This systematic content analysis explored the extent to which psychoeducational interventions for racially and ethnically marginalized families facilitate occupation, also known as activities of everyday life, through their service delivery. Eight studies met the inclusion criteria, representing four psychoeducational interventions. Findings indicated that, while occupation was not emphasized in these curricula, each intervention facilitated occupation. Our content analysis of the interventions highlights opportunities for occupational therapy and psychoeducation to collaborate to increase occupational engagement and improve health and well-being of Black and Latino children with autism and their families.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 3","pages":"208-223"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148727410","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perspectives of Parents of Children with Intellectual and Developmental Disabilities: An Exploration of Inclusive Education in Botswana. 智力和发育障碍儿童家长的观点：博茨瓦纳全纳教育的探索。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-09-16 DOI: 10.1080/19349491.2026.2723892
Boitumelo Mangope, Ahmed Bawa Kuyini, Matthew Gmalifo Mabefam, Leatile Moletsane, Rumbizani Mashava
{"title":"Perspectives of Parents of Children with Intellectual and Developmental Disabilities: An Exploration of Inclusive Education in Botswana.","authors":"Boitumelo Mangope, Ahmed Bawa Kuyini, Matthew Gmalifo Mabefam, Leatile Moletsane, Rumbizani Mashava","doi":"10.1080/19349491.2026.2723892","DOIUrl":"10.1080/19349491.2026.2723892","url":null,"abstract":"<p><p>This study examined parents' views on the inclusion of their children with intellectual and developmental disabilities (IDD) through six focus group discussions involving parents from two public primary schools in urban, semi-urban, and rural areas of South-Central Botswana. Using purposive sampling, data were analyzed through content analysis. Findings revealed that parents primarily expressed concerns about the lack of suitable programs for their children, teachers' preparedness and teaching quality. Whereas some parents favored specific programs, there was no consensus on the most appropriate option. The discussion emphasizes the need for accessibility, training for parents and teachers, and parental choice in educational decisions.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":" ","pages":"387-399"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148983883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Examining Stress in Parents of Adults with Intellectual and Developmental Disabilities. 研究智力和发育障碍成人父母的压力。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-05-13 DOI: 10.1080/19349491.2026.2659663
Kelli A Sanderson, Meghan M Burke
{"title":"Examining Stress in Parents of Adults with Intellectual and Developmental Disabilities.","authors":"Kelli A Sanderson, Meghan M Burke","doi":"10.1080/19349491.2026.2659663","DOIUrl":"10.1080/19349491.2026.2659663","url":null,"abstract":"<p><p>Many parents of individuals with intellectual and developmental disabilities (IDD) experience high levels of stress. Such stress can negatively impact parents (e.g., create exhaustion, worsen physical and mental health) and their children with IDD (e.g., reduce their quality of care). By identifying specific stressors and their correlates, targeted interventions can be designed to mitigate stress and improve outcomes for families of adults with IDD. In this study, 518 parents of adult children with IDD responded to a national survey about their stress. Top stressors included future planning and a lack of daily activities for their adult children with IDD. Having an adult child with autism and being from collectivistic cultures were consistent correlates of greater stress. Implications for research, policy, and practice are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 3","pages":"187-200"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148723823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact of Secondary Traumatic Stress and Burnout on Organizational Outcomes for the Intellectual and Developmental Disabilities Workforce. 继发性创伤压力和倦怠对智力和发育障碍劳动力组织结果的影响。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-05-22 DOI: 10.1080/19349491.2026.2665617
Daniel A Boamah, Anita P Barbee, Olivia Jones Graham
{"title":"Impact of Secondary Traumatic Stress and Burnout on Organizational Outcomes for the Intellectual and Developmental Disabilities Workforce.","authors":"Daniel A Boamah, Anita P Barbee, Olivia Jones Graham","doi":"10.1080/19349491.2026.2665617","DOIUrl":"10.1080/19349491.2026.2665617","url":null,"abstract":"<p><p>This survey study examined how secondary traumatic stress (STS), emotional exhaustion (EE), and other personal and work-related factors of 406 direct support professionals (DSPs) affected job satisfaction and turnover intentions. Regression and structural equation modeling revealed that STS was positively related to EE that was negatively related to job satisfaction and positively related to turnover intentions, thus mediating the relationship between STS and these workplace outcomes. In addition, both resilience and perceived organizational support were positively and directly related to job satisfaction and perceived organizational support was indirectly through EE and directly related to turnover intentions. Findings highlight the need to address STS, the EE aspect of burnout, and organizational support to retain DSPs in high-stress social service roles.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"64 3","pages":"224-236"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148722619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Preventable Hospitalizations During the COVID-19 Pandemic in Patients With Autism and Without Autism. COVID-19大流行期间自闭症患者和非自闭症患者的可预防住院
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-09-15 DOI: 10.1080/19349491.2026.2723893
Jessica E Rast, Kristy A Anderson, Michael O Killian, Melissa Radey
{"title":"Preventable Hospitalizations During the COVID-19 Pandemic in Patients With Autism and Without Autism.","authors":"Jessica E Rast, Kristy A Anderson, Michael O Killian, Melissa Radey","doi":"10.1080/19349491.2026.2723893","DOIUrl":"10.1080/19349491.2026.2723893","url":null,"abstract":"<p><p>During the COVID-19 pandemic, hospitalizations decreased due to the reallocation of health care resources to support pandemic mitigation efforts and social changes in risk exposure, including preventable hospitalizations for the escalation of conditions that could be better treated within primary care. The purpose of this study was to examine changes in and characteristics of preventable hospitalizations over the COVID-19 period for patients withand without autism using 2019 to 2021 data from the National Inpatient Sample. Overall counts of preventable hospitalizations decreased at the start of the pandemic across groups, while the proportion of hospitalizations that were preventable remained relatively stable. The proportion of hospitalizations that were preventable was higher for children and adults with autism than children and adults without autism, and this remained consistently elevated through out the study period. This study helps evaluate how disparities evolve under conditions of healthcare system stress, providing insight into the resilience and inclusiveness of crisis-era health system responses.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":" ","pages":"400-413"},"PeriodicalIF":1.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148978385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"It's So Tough!": Barriers to Respite Care for Families of Children With Disabilities. “太难了！”：残疾儿童家庭暂托的障碍。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-12-01 DOI: 10.1352/1934-9556-63.6.512
Erik W Carter, Melody V Escobar, Carlee Hollinger, Shannon R Eshman, Sarah S Mire
{"title":"\"It's So Tough!\": Barriers to Respite Care for Families of Children With Disabilities.","authors":"Erik W Carter, Melody V Escobar, Carlee Hollinger, Shannon R Eshman, Sarah S Mire","doi":"10.1352/1934-9556-63.6.512","DOIUrl":"10.1352/1934-9556-63.6.512","url":null,"abstract":"<p><p>Although respite care can have a profound impact on the well-being of families, most parents of children with disabilities struggle to access these scarce services. The purpose of this qualitative study was to map the breadth of barriers families encounter in their pursuit of respite care. We interviewed 31 parents of children and youth with intellectual and developmental disabilities (IDD) about their experiences and the challenges they navigated. Fifteen key barriers emerged in our analyses, highlighting the complexities of this pursuit and the multifaceted issues that can arise for families. We offer recommendations for research and practice aimed at expanding access to this much-needed-but often elusive-family support.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 6","pages":"512-523"},"PeriodicalIF":1.6,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145589454","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gender and Sexual Self-Determination in the Lives of LGBTQ+ Adults With IDD. LGBTQ+ IDD成人生活中的性别和性自决。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-12-01 DOI: 10.1352/1934-9556-63.6.485
Oscar E Hughes
{"title":"Gender and Sexual Self-Determination in the Lives of LGBTQ+ Adults With IDD.","authors":"Oscar E Hughes","doi":"10.1352/1934-9556-63.6.485","DOIUrl":"10.1352/1934-9556-63.6.485","url":null,"abstract":"<p><p>Adults with intellectual and developmental disabilities (IDD) have the right to gender and sexual self-determination, meaning they should have choice and control in how they express their gender and sexuality. In this inclusive research study, I interviewed 23 LGBTQ+ adults with IDD from the United States to examine their perspectives on barriers and facilitators to gender and sexual self-determination. The participants described how societal attitudes, validation, acceptance, access to information, personal agency, and connections with the LGBTQ+ community could present barriers or facilitators to their gender and sexual self-expression. These perspectives have implications for improving practices and policies to promote the right to gender and sexual self-determination.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 6","pages":"485-497"},"PeriodicalIF":1.6,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145589564","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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