发布求助
文献互助 智能选刊 最新文献

Intellectual and Developmental Disabilities最新文献

筛选
英文 中文
A Social-Ecological Approach to Inclusive Research With People With Intellectual Disability. 智障人士包容性研究的社会生态学方法。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-12-01 DOI: 10.1352/1934-9556-63.6.472
Geonhwa Kim, Jennifer A Kurth, Karrie A Shogren, Alison Zagona
{"title":"A Social-Ecological Approach to Inclusive Research With People With Intellectual Disability.","authors":"Geonhwa Kim, Jennifer A Kurth, Karrie A Shogren, Alison Zagona","doi":"10.1352/1934-9556-63.6.472","DOIUrl":"10.1352/1934-9556-63.6.472","url":null,"abstract":"<p><p>Inclusive research reflects a societal shift in how disability is understood from deficit-based to a social-ecological model. The purpose of this article is to delineate the barriers to and supports for inclusive research and the outcomes that are achieved through inclusive research using a social-ecological approach. In the social-ecological framing of inclusive research, a strength-based understanding of disability and the barriers to inclusive research were emphasized. The supports model was employed to describe the role of individual and environmental supports for the inclusion of researchers with intellectual disability. Personal, research, and social outcomes of inclusive research, mediated by supports, were explained. These outcomes interactively make changes in the context where inclusive research is conducted, further enhancing outcomes.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 6","pages":"472-484"},"PeriodicalIF":1.6,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145589460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
My Daughter Said, "Why Are We Here, Mom?" Experiences of Parents Who Left Their Country for Their Children With Special Needs. 我女儿说：“妈妈，我们为什么在这里？”父母为照顾有特殊需要的孩子而离开祖国的经历。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-12-01 DOI: 10.1352/1934-9556-63.6.524
Ali Kaya, Mehmet Emin Öztürk
{"title":"My Daughter Said, \"Why Are We Here, Mom?\" Experiences of Parents Who Left Their Country for Their Children With Special Needs.","authors":"Ali Kaya, Mehmet Emin Öztürk","doi":"10.1352/1934-9556-63.6.524","DOIUrl":"10.1352/1934-9556-63.6.524","url":null,"abstract":"<p><p>This study investigated the reasons why parents with children with special needs choose to leave their homeland with their children, the difficulties they encounter in their new countries, the services they receive for their children in new countries, and their level of satisfaction with these services. Semistructured interviews were conducted with 15 parents residing in various countries. The findings indicate that parents migrated to developed countries due to negative attitudes toward themselves and their children in Türkiye, discrimination, and dissatisfaction with educational services. These parents emphasized that their children were happy in the countries they migrated to and expressed satisfaction with the special education services they received. Furthermore, most of these parents do not intend to return to Türkiye permanently.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 6","pages":"524-537"},"PeriodicalIF":1.6,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145589478","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals. 自闭症患者兄弟姐妹中个体和系统倡导活动的相关性。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-12-01 DOI: 10.1352/1934-9556-63.6.498
Chak Li, Meghan M Burke, Catherine K Arnold
{"title":"Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals.","authors":"Chak Li, Meghan M Burke, Catherine K Arnold","doi":"10.1352/1934-9556-63.6.498","DOIUrl":"10.1352/1934-9556-63.6.498","url":null,"abstract":"<p><p>Extensive research has focused on parent advocacy, but the advocacy efforts of siblings of autistic individuals remain less studied. This study aims to identify the correlates of individual and systemic advocacy among siblings of autistic individuals. Using a national survey, 256 adult siblings of autistic individuals indicated their advocacy activities. Descriptive statistics and hierarchical regressions were used for analyses. Results indicated that, although siblings often engaged in both individual and systemic advocacy, they present as distinct constructs with varying correlates. Older siblings who engaged in future planning and/or were knowledgeable about disability policy were more likely to conduct individual advocacy. Systemic advocacy was greater among siblings more connected to the disability community and had reciprocal exchanges of tangible support.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 6","pages":"498-511"},"PeriodicalIF":1.6,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145589515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Advancing Inclusive Research in Intellectual and Developmental Disabilities: Building Community and Supports for Participation. 推进智力和发育障碍的包容性研究：建立社区和支持参与。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-12-01 DOI: 10.1352/1934-9556-63.6.457
Karrie A Shogren, Brad Linnenkamp, Rebecca Townsend, Ben Edwards, Lindsay Rentschler, Ashley Taconet, Claire Stelter, Ryan Henley, Kaela Bright, Lisa Hildebrandt, Evan Dean, Roxanne Loyless, Sean Swindler
{"title":"Advancing Inclusive Research in Intellectual and Developmental Disabilities: Building Community and Supports for Participation.","authors":"Karrie A Shogren, Brad Linnenkamp, Rebecca Townsend, Ben Edwards, Lindsay Rentschler, Ashley Taconet, Claire Stelter, Ryan Henley, Kaela Bright, Lisa Hildebrandt, Evan Dean, Roxanne Loyless, Sean Swindler","doi":"10.1352/1934-9556-63.6.457","DOIUrl":"10.1352/1934-9556-63.6.457","url":null,"abstract":"<p><p>People with intellectual and developmental disabilities are often excluded from equitable inclusion in the development and execution of research. Despite increased advocacy for inclusive research over the last decade, the widespread use of such practices remains limited. There is a need for systemic change to foster the inclusion of people with intellectual and developmental disabilities in planning, conducting, and disseminating research. This paper describes actions taken by a research group to make system changes to empower and support people with intellectual and developmental disabilities to learn about and engage in research. It highlights ongoing work that is needed and possible ways to advance systemic change.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 6","pages":"457-471"},"PeriodicalIF":1.6,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145589424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Presidential Address 2025-Mentoring Across the Professional Spectrum: Doing the Fundamental Work to Get to the Next Level. 2025年总统演讲：跨专业领域的指导：做好基础工作以达到下一个水平。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.363
Anthony M Rodriguez
{"title":"Presidential Address 2025-Mentoring Across the Professional Spectrum: Doing the Fundamental Work to Get to the Next Level.","authors":"Anthony M Rodriguez","doi":"10.1352/1934-9556-63.5.363","DOIUrl":"https://doi.org/10.1352/1934-9556-63.5.363","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"363-369"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of the Relationship Between Siblings and Adults With Intellectual Disability. 兄弟姐妹与智障成人之间的关系。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.441
Stanisława Byra, Katarzyna Ćwirynkało
{"title":"The Role of the Relationship Between Siblings and Adults With Intellectual Disability.","authors":"Stanisława Byra, Katarzyna Ćwirynkało","doi":"10.1352/1934-9556-63.5.441","DOIUrl":"10.1352/1934-9556-63.5.441","url":null,"abstract":"<p><p>The aim of this study was to examine the relationship between the feeling of loneliness and life satisfaction in siblings of adults with intellectual disability, considering the potential role of the assessment of the quality of the relationship as a mediator and moderator of this relationship. A total of 103 siblings of persons with intellectual disability completed a set of questionnaires. The results indicated a significant relationship between the feeling of loneliness and life satisfaction, showed that the association between these variables is not direct, and one of the factors that explains the association is the quality of the relationship with a sibling with a disability. Knowledge on these correlations may be used by professionals working with siblings of adults with intellectual disability.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"441-451"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187068","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"She Like, Sugarcoats Things": Maternal Influence on Sexual (in)Agency of Young College Women With Disabilities. “她喜欢，粉饰一切”：母亲对残疾女大学生性行为的影响。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.401
Jenny Sperling
{"title":"\"She Like, Sugarcoats Things\": Maternal Influence on Sexual (in)Agency of Young College Women With Disabilities.","authors":"Jenny Sperling","doi":"10.1352/1934-9556-63.5.401","DOIUrl":"10.1352/1934-9556-63.5.401","url":null,"abstract":"<p><p>By amplifying the voices of young college women with intellectual and developmental disabilities, this study explores the intersections of disability, gender, sexuality, and higher education. It highlights how maternal socialization shapes their sexual knowledge prior to college, revealing that mothers often leave their daughters misinformed, disempowered, and dependent, even into adulthood. The study also addresses how persistent taboos and embodied avoidance strategies, such as euphemisms and gestures, limit these women's agency and reflect constrained communication patterns from their upbringing. The findings underscore the crucial role of mothers in their daughters' sexual self-determination and advocate for tailored resources to support both mothers and their daughters, aiming to enhance sexual autonomy and education for women with disabilities.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"401-413"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Treating Substance Use Disorder in Individuals With Intellectual Disability: A Regional System Capacity Assessment. 治疗物质使用障碍的个人智力残疾：区域系统能力评估。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.384
Lori Ann Eldridge, Jon Agley, Jennifer Piatt, Kristin Hamre, Derek Nord
{"title":"Treating Substance Use Disorder in Individuals With Intellectual Disability: A Regional System Capacity Assessment.","authors":"Lori Ann Eldridge, Jon Agley, Jennifer Piatt, Kristin Hamre, Derek Nord","doi":"10.1352/1934-9556-63.5.384","DOIUrl":"10.1352/1934-9556-63.5.384","url":null,"abstract":"<p><p>This mixed-methods study assessed substance use disorder (SUD) treatment for individuals with intellectual and developmental disabilities within California's regional center system. The system is the primary organization in California that coordinates and monitors services for these individuals. Data were solicited from the 21 service centers in the system and six vendored programs overseeing SUD services. This article reports on those programs and analyzes qualitative data from seven service coordinators regarding overall SUD treatment. Both the programs and the coordinators identified 0barriers to treatment, such as a lack of training and inadequate service structures. Despite being formal referral targets, these programs often only offered adaptations for physical access. Proposed solutions included interagency collaboration and adopting a biopsychosocial model of care.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"384-400"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Respite Support From Adolescence to Adulthood in Families of People With Neurodevelopmental Disorders. 神经发育障碍患者家庭从青春期到成年期的喘息支持。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.414
Maira Tafolla, Hillary Schiltz, Catherine Lord
{"title":"Respite Support From Adolescence to Adulthood in Families of People With Neurodevelopmental Disorders.","authors":"Maira Tafolla, Hillary Schiltz, Catherine Lord","doi":"10.1352/1934-9556-63.5.414","DOIUrl":"10.1352/1934-9556-63.5.414","url":null,"abstract":"<p><p>Respite is a priority for caregivers of people with neurodevelopmental disabilities across the lifespan. The present study aimed to characterize respite availability and frequency of use among 126 caregivers of young people with neurodevelopmental disabilities (from ages 16-22) using an ongoing longitudinal sample. Results indicated that the availability of respite support was greater and more consistent over time for caregivers of those with lower verbal abilities compared to those with higher verbal abilities. On average, the frequency of respite use from household members declined over time, with overall higher frequency of use reported by caregivers of those with a lower verbal intelligence quotient (VIQ). Our findings indicate that respite remains an important resource for caregivers of young people with neurodevelopmental disabilities well into adulthood, particularly for those caring for higher needs individuals.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"414-427"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Acquisition of Digital Literacy Skills in Learners With Developmental Disabilities. 发展性障碍学习者数字读写技能的习得。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-10-01 DOI: 10.1352/1934-9556-63.5.428
Lanqi Wang, Chengan Yuan, Jiawei He, Bingxin Jiang
{"title":"Acquisition of Digital Literacy Skills in Learners With Developmental Disabilities.","authors":"Lanqi Wang, Chengan Yuan, Jiawei He, Bingxin Jiang","doi":"10.1352/1934-9556-63.5.428","DOIUrl":"10.1352/1934-9556-63.5.428","url":null,"abstract":"<p><p>Learners with developmental disabilities often encounter difficulties in performing daily activities that involve digital platforms, operating systems, applications, and other digital tools. Considering the growing importance of digital literacy, we examined the effectiveness of the clustered forward chaining (CFC) procedure in teaching digital transaction skills to three adolescents with intellectual and developmental disabilities (IDD). In the context of a multiple-baselines-across-skills design with between-participant replications, we taught participants four digital transaction tasks. The results showed that all participants acquired the four tasks during CFC and maintained their performance post-intervention. Two participants completed the intervention before all clusters were targeted, possibly due to observational learning and continuous performance probes. Furthermore, both the participants and the instructors found CFC to be an acceptable intervention for teaching digital literacy.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 5","pages":"428-440"},"PeriodicalIF":1.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145186953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
首页 上一页 下一页 尾页
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整，为了账户安全，请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们：info@booksci.cn Book学术提供免费学术资源搜索服务，方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号：604180095
Book学术官方微信
小红书