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Intellectual and Developmental Disabilities最新文献

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Functional Literacy Intervention for Postsecondary Students With Intellectual and Developmental Disabilities: A Pilot Study. 智障及发展障碍大学生的功能性读写干预:一项试点研究。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.124
Alison Prahl, Carly Gilson
{"title":"Functional Literacy Intervention for Postsecondary Students With Intellectual and Developmental Disabilities: A Pilot Study.","authors":"Alison Prahl,&nbsp;Carly Gilson","doi":"10.1352/1934-9556-61.2.124","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.124","url":null,"abstract":"<p><p>The rapid growth of inclusive higher education opportunities for young adults with intellectual and developmental disabilities (IDD) has contributed to improvements in students' academics, employment, social, and independent living outcomes. However, many college programs lack a focus on functional literacy, a critical skill for success in adulthood. This study evaluated whether a functional literacy intervention was associated with an increase in the percentage of reading comprehension strategies implemented accurately for college students with IDD. A multiple probe across functional literacy stimuli (e.g., academic assignments, employment emails, social text messages) was replicated across four students. Results indicated an association between the intervention and percentage of strategies implemented accurately. Suggestions for future research and implications for practice are provided.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"124-144"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Tale of Two Adaptations of a Special Education Advocacy Program. 一个特殊教育宣传项目的两个改编故事。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.95
Meghan M Burke, Samantha E Goldman, Chak Li
{"title":"A Tale of Two Adaptations of a Special Education Advocacy Program.","authors":"Meghan M Burke,&nbsp;Samantha E Goldman,&nbsp;Chak Li","doi":"10.1352/1934-9556-61.2.95","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.95","url":null,"abstract":"<p><p>Special education advocacy programs support families to secure services for their children with intellectual and developmental disabilities. Although research demonstrates the efficacy of one such program (the Volunteer Advocacy Project), its effectiveness when replicated by others is unknown. Replication research is critical to ensure that programs can remain effective. The purpose of this study was to explore the adaptation process for two agencies that replicated an advocacy program. Quantitative and qualitative data were collected to examine feasibility, acceptability, and effectiveness. Although it took resources to replicate the advocacy program, agencies reported ongoing implementation would be easier once adaptations were completed. The adapted programs were effective in increasing participants' knowledge, empowerment, advocacy, and insiderness. Implications for research and practice are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"95-109"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Applicants to a Special Education Advocacy Training Program: "Insiders" in the Disability Advocacy World. 特殊教育倡导培训项目申请者:残疾倡导界的“圈内人”。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.110
Brittney L Goscicki, Samantha E Goldman, Meghan M Burke, Robert M Hodapp
{"title":"Applicants to a Special Education Advocacy Training Program: \"Insiders\" in the Disability Advocacy World.","authors":"Brittney L Goscicki,&nbsp;Samantha E Goldman,&nbsp;Meghan M Burke,&nbsp;Robert M Hodapp","doi":"10.1352/1934-9556-61.2.110","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.110","url":null,"abstract":"<p><p>Although social groups have \"insiders,\" this construct has not been measured within the disability advocacy community. Examining 405 individuals who applied for an advocacy training program, this study examined the nature of insiderness within the disability advocacy community and ties to individual roles. Participants showed differences in mean ratings across 10 insider items. A principal components analysis revealed two distinct factors: Organizational Involvement and Social Connectedness. Non-school providers scored highest on Organizational Involvement; family members/self-advocates highest on Social Connectedness. Themes from open-ended responses supported the factors and showed differences in motivation and information sources across insiderness levels and roles. Qualitative analysis revealed two additional aspects of insiderness not addressed in the scale. Implications are discussed for future practice and research.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"110-123"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Caregiver Perceptions of Post-High School Employment Experiences Among Young Adults With Down Syndrome. 探索照顾者对唐氏综合症年轻人高中毕业后就业经历的看法。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.158
Marie Moore Channell, Susan J Loveall, Meghan M Burke
{"title":"Exploring Caregiver Perceptions of Post-High School Employment Experiences Among Young Adults With Down Syndrome.","authors":"Marie Moore Channell,&nbsp;Susan J Loveall,&nbsp;Meghan M Burke","doi":"10.1352/1934-9556-61.2.158","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.158","url":null,"abstract":"<p><p>This qualitative study explored employment experiences and perceived satisfaction of young adults with Down syndrome (DS) who recently exited high school, as reported by their caregivers (n = 101). We analyzed caregivers' open-ended responses about their young adults' type of employment (n = 52 were employed) and identified themes associated with reported satisfaction (for both employed and unemployed). Natural supports were key to caregiver satisfaction; few opportunities for paid, community-based employment and long waiting lists for formal services were related to caregiver dissatisfaction. Job fit (e.g., hours, responsibilities, location), socialization opportunities, and independence were related to caregiver and perceived young adult (dis)satisfaction. These findings highlight unmet service needs, including assistance with finding a job that is the right fit for the individual with DS.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"158-171"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The Right to Science: Centering People With Intellectual Disability in the Process and Outcomes of Science. 科学权利:以智障人士为中心的科学过程与成果。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.172
Karrie A Shogren
{"title":"The Right to Science: Centering People With Intellectual Disability in the Process and Outcomes of Science.","authors":"Karrie A Shogren","doi":"10.1352/1934-9556-61.2.172","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.172","url":null,"abstract":"<p><p>The right to science has been identified in multiple human rights treaties; however, there has not been a clear framework for how governments or research organizations can advance this right particularly ensuring equitable engagement of people with intellectual disability (ID) in the process of scientific research. Although the feasibility and impacts of engaging people with ID in the process of science have been repeatedly demonstrated there remain systemic barriers including ableism, racism, and other systems of oppression that sustain inequities. Researchers in the ID field must take steps to dismantle systemic barriers and advance participatory approaches that advance equity in the process and outcomes of science.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"172-177"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
"More Than a Paycheck": Parent Perspectives on Meaningful Work for Individuals With Intellectual and Developmental Disabilities. “不仅仅是薪水”:父母对智力和发育障碍人士有意义的工作的看法。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.145
Erik W Carter, Emily R Lanchak, Laura Guest, Elise D McMillan, Julie Lounds Taylor, Hannah Rowley
{"title":"\"More Than a Paycheck\": Parent Perspectives on Meaningful Work for Individuals With Intellectual and Developmental Disabilities.","authors":"Erik W Carter,&nbsp;Emily R Lanchak,&nbsp;Laura Guest,&nbsp;Elise D McMillan,&nbsp;Julie Lounds Taylor,&nbsp;Hannah Rowley","doi":"10.1352/1934-9556-61.2.145","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.145","url":null,"abstract":"<p><p>Increasing employment outcomes for individuals with intellectual and developmental disabilities (IDD) remains an enduring emphasis of research, policy, and practice. Parents are often primary partners in the pursuit of meaningful work for their family members with IDD. This qualitative study examined the views of 55 parents regarding the importance of this pursuit and the features of employment that matter most to them. Participants discussed a range of reasons they valued employment for their family members with IDD, including factors that extended beyond a paycheck. Likewise, they described an array of features that they considered to be important to their family member thriving in the workplace (e.g., inclusivity, match with interests, opportunities for growth). We offer recommendations for promoting integrated employment among families and conceptualizing employment outcomes within future research.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"145-157"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-03-30 DOI: 10.1352/1934-9556-61.2.180
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1934-9556-61.2.180","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.180","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Intellect Dev Disabil 1 April 2023; 61 (2): 180–181. doi: https://doi.org/10.1352/1934-9556-61.2.180 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"22 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136150822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français 法文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-03-30 DOI: 10.1352/1934-9556-61.2.178
{"title":"Résumés en Français","authors":"","doi":"10.1352/1934-9556-61.2.178","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.178","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Intellect Dev Disabil 1 April 2023; 61 (2): 178–179. doi: https://doi.org/10.1352/1934-9556-61.2.178 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136195291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español. 英文摘要。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-03-30 DOI: 10.1352/1934-9556-55.2.122
{"title":"Resúmenes al Español.","authors":"","doi":"10.1352/1934-9556-55.2.122","DOIUrl":"https://doi.org/10.1352/1934-9556-55.2.122","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"55 2 1","pages":"122-123"},"PeriodicalIF":1.8,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46487270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Service Use Patterns by Children With Down Syndrome in a Canadian Region. 加拿大地区唐氏综合症儿童的服务使用模式
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.79
John D McLennan, Casey Fulford, Sophia Hrycko, Virginie Cobigo, Munazza Tahir
{"title":"Service Use Patterns by Children With Down Syndrome in a Canadian Region.","authors":"John D McLennan,&nbsp;Casey Fulford,&nbsp;Sophia Hrycko,&nbsp;Virginie Cobigo,&nbsp;Munazza Tahir","doi":"10.1352/1934-9556-61.1.79","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.79","url":null,"abstract":"<p><p>Children with Down syndrome require services from different sectors over time to optimize health and development, however, there is little information on longitudinal, cross-sector service use. Parents of children with Down syndrome attending a Canadian children's hospital participated in semistructured interviews covering life-time multiple sector service use. Five key service patterns were identified: (1) primary care physicians playing a circumscribed role; (2) a marked shift in public habilitative service receipt from development agencies in the preschool years to exclusive school delivery after school entry; (3) families obtaining private services to address gaps from public sector services; (4) a prominent role for parents to identify additional services; and (5) service variability as a function of timing and severity of medical comorbidity.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"79-88"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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