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An Examination of Support Needs, Supports, and Outcomes for People With Intellectual and Developmental Disabilities. 智力和发育障碍者的支持需求、支持和结果的检查。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.65
Parthenia Dinora, Seb M Prohn, Matthew Bogenschutz, Michael D Broda, Sarah Lineberry, Angela West
{"title":"An Examination of Support Needs, Supports, and Outcomes for People With Intellectual and Developmental Disabilities.","authors":"Parthenia Dinora,&nbsp;Seb M Prohn,&nbsp;Matthew Bogenschutz,&nbsp;Michael D Broda,&nbsp;Sarah Lineberry,&nbsp;Angela West","doi":"10.1352/1934-9556-61.1.65","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.65","url":null,"abstract":"<p><p>Researchers used a merged dataset to examine if more resources were expended on those with greater support needs and if support needs impacted personal outcomes when controlling for relevant personal and contextual factors. Results indicated that the amount of support a person receives had a direct relationship to their needs. However, we also found that people with the greatest needs had weaker personal outcomes suggesting that distribution of resources based on need may not result in equivalent outcomes. The authors suggest strategies at an individual and systems level to address the outcomes gap for people with the greatest support needs.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"65-78"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of Information and Knowledge in COVID-19 Vaccination Among People With Intellectual and Developmental Disabilities and Their Families. 信息和知识在智力和发育障碍者及其家庭COVID-19疫苗接种中的作用
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.16
Sarah Lineberry, Matthew Bogenschutz, Parthenia Dinora, Kara Ayers
{"title":"The Role of Information and Knowledge in COVID-19 Vaccination Among People With Intellectual and Developmental Disabilities and Their Families.","authors":"Sarah Lineberry,&nbsp;Matthew Bogenschutz,&nbsp;Parthenia Dinora,&nbsp;Kara Ayers","doi":"10.1352/1934-9556-61.1.16","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.16","url":null,"abstract":"People with intellectual and developmental disabilities (IDD) may be at an increased risk of severe illness and death from COVID-19. This article examines the role of information and knowledge in COVID-19 vaccine uptake for people with IDD and their families. We developed a survey about COVID-19 vaccine uptake, confidence, and knowledge for people with IDD and their families. COVID-19 vaccine uptake was associated with higher self-reported knowledge about the vaccine, learning about the vaccine from one's doctor, and social media use. Qualitative results reflected the importance of trusted relationships with medical providers in vaccination.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"16-30"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Views of Speech-Language Pathologists on Telepractice for Children Who Use Augmentative and Alternative Communication. 语言病理学家对使用增强和替代交流的儿童远程练习的看法。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.31
Elizabeth E Biggs, Sarah N Douglas, Michelle C S Therrien, Melinda R Snodgrass
{"title":"Views of Speech-Language Pathologists on Telepractice for Children Who Use Augmentative and Alternative Communication.","authors":"Elizabeth E Biggs,&nbsp;Sarah N Douglas,&nbsp;Michelle C S Therrien,&nbsp;Melinda R Snodgrass","doi":"10.1352/1934-9556-61.1.31","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.31","url":null,"abstract":"<p><p>Telepractice has become increasingly utilized in disability services, particularly with recent and ongoing measures to slow the spread of the novel coronavirus (COVID-19). In this study, 361 speech-language pathologists (SLPs) responded to a national, web-based survey about their views on utilizing telepractice with children aged 3 to 21 who used aided augmentative and alternative communication (AAC), such as picture symbols or speech-generating devices. The views of SLPs varied, and SLPs who received training on AAC telepractice within the last 12 months had more positive views about telepractice than those who did not. Several factors were associated with when and how SLPs thought telepractice was beneficial to serve children who use aided AAC, including SLPs' foundational perspectives about telepractice, service delivery options, considerations related to the child and family, and broader resources and constraints.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"31-48"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Direct Support Professionals and COVID-19 Vaccination: A Comparison of Vaccinated and Unvaccinated Direct Support Professionals. 直接支持专业人员与 COVID-19 疫苗接种：接种疫苗和未接种疫苗的直接支持专业人员的比较。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.1
Sandra L Pettingell, Julie Bershadsky, Amy Hewitt, Lynda Lahti Anderson, Alicia Zhang
{"title":"Direct Support Professionals and COVID-19 Vaccination: A Comparison of Vaccinated and Unvaccinated Direct Support Professionals.","authors":"Sandra L Pettingell, Julie Bershadsky, Amy Hewitt, Lynda Lahti Anderson, Alicia Zhang","doi":"10.1352/1934-9556-61.1.1","DOIUrl":"10.1352/1934-9556-61.1.1","url":null,"abstract":"<p><p>Direct support professionals (DSPs) may be at increased risk of contracting COVID-19 due to the proximal nature of their work. In response to the pandemic a three-wave study was launched to understand experiences of DSPs. An on-line national survey found that 70% of DSPs were vaccinated. Vaccinated DSPs were older and had higher education levels. Among the unvaccinated, 56% reported concerns about COVID-19 vaccination safety. Unvaccinated DSPs were more likely to report that the people they supported were also unvaccinated. Encouraging DSPs to get vaccinated to protect the people they support is essential. Paid time off, arranging for vaccinations, and setting an expectation for vaccination may encourage vaccination uptake among DSPs.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"1-15"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10161721/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455055","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mental Health Concerns in Individuals With Developmental Disabilities: Improving Mental Health Literacy Trainings for Caregivers. 发展性残疾个体的心理健康问题:改善照顾者的心理健康素养培训。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.49
Ty B Aller, Raechel B Russo, Heather H Kelley, Lexi Bates, Elizabeth B Fauth
{"title":"Mental Health Concerns in Individuals With Developmental Disabilities: Improving Mental Health Literacy Trainings for Caregivers.","authors":"Ty B Aller,&nbsp;Raechel B Russo,&nbsp;Heather H Kelley,&nbsp;Lexi Bates,&nbsp;Elizabeth B Fauth","doi":"10.1352/1934-9556-61.1.49","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.49","url":null,"abstract":"Although approximately a third of individuals with intellectual and developmental disabilities (IDD) also experience a mental health concern, caregivers often miss early identification of these issues. In this perspective piece, we present an outline for a mental health literacy program that can enhance existing training approaches for caregivers of individuals with IDD. We describe three processes of the Mental Health Awareness and Advocacy (MHAA) curriculum and detail how it provides a strong preventative model to train caregivers to increase their mental health literacy. In describing these processes, we provide illustrative examples and conclude by providing a brief vignette that highlights how this process could be used by caregivers to help reduce mental health concerns in individuals with IDD.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"49-64"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9460691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Résumés en Français 法文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-01-27 DOI: 10.1352/1934-9556-61.1.89
{"title":"Résumés en Français","authors":"","doi":"10.1352/1934-9556-61.1.89","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.89","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn MailTo Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Intellect Dev Disabil 1 February 2023; 61 (1): 89–90. doi: https://doi.org/10.1352/1934-9556-61.1.89 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"85 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135794815","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-01-27 DOI: 10.1352/1934-9556-61.1.91
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1934-9556-61.1.91","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.91","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn MailTo Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Intellect Dev Disabil 1 February 2023; 61 (1): 91–92. doi: https://doi.org/10.1352/1934-9556-61.1.91 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"33 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135794816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français. 英文摘要。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-12-22 DOI: 10.1352/1934-9556-54.5.377
Christine Bigby
{"title":"Résumés en Français.","authors":"Christine Bigby","doi":"10.1352/1934-9556-54.5.377","DOIUrl":"https://doi.org/10.1352/1934-9556-54.5.377","url":null,"abstract":"La promotion de résultats rapides et permanents pour les enfants placés en famille d’accueil est un objectif central dans la politique de protection de l’enfance. Cependant, alors que les enfants ayant une déficience intellectuelle (DI) sont plus à risques d’être impliqués dans les services de la protection de l’enfance, peu de connaissances sont acquises quant à leurs résultats. Cette étude transversale nationale étudie les résultats entre les groupes provenant de familles d’accueil. Les enfants avec une DI placés en famille d’accueil étaient plus enclins à avoir expérimenté des problèmes liés à l’adoption ou à une séparation, mais moins enclins à être réunis avec un parent, un donneur de soin principal ou un autre membre de la famille. Les implications pour la collaboration intersectorielle en soutien à la pré et post-rupture des services de soutien des familles d’accueil sont discutées.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"54 5 1","pages":"377-8"},"PeriodicalIF":1.8,"publicationDate":"2022-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/1934-9556-54.5.377","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"66571867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hospitalizations Among Children and Youth With Autism in the United States: Frequency, Characteristics, and Costs. 美国自闭症儿童和青少年的住院治疗:频率、特征和费用
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-12-01 DOI: 10.1352/1934-9556-60.6.484
Darcy Jones Dj McMaughan, Jennifer L Jones, Abigail Mulcahy, Emily C Tucker, Judith G Beverly, Maria Perez-Patron
{"title":"Hospitalizations Among Children and Youth With Autism in the United States: Frequency, Characteristics, and Costs.","authors":"Darcy Jones Dj McMaughan,&nbsp;Jennifer L Jones,&nbsp;Abigail Mulcahy,&nbsp;Emily C Tucker,&nbsp;Judith G Beverly,&nbsp;Maria Perez-Patron","doi":"10.1352/1934-9556-60.6.484","DOIUrl":"https://doi.org/10.1352/1934-9556-60.6.484","url":null,"abstract":"<p><p>National estimates of hospitalization diagnoses and costs were determined using the 2016 HCUP Kids' Inpatient Database. Children and youth with autism were hospitalized over 45,000 times at over $560 million in costs and 260,000 inpatient days. The most frequent principal diagnoses for hospitalizations of children and youth with autism were epilepsy, mental health conditions, pneumonia, asthma, and gastrointestinal disorders, which resulted in almost $200 million in costs and 150,000 inpatient days. Mental health diagnoses accounted for 24.8% of hospitalizations, an estimated $82 million in costs, and approximately 94,000 inpatient days. Children and youth with autism were more likely hospitalized for epilepsy, mental health diagnoses, and gastrointestinal disorders, and less likely for pneumonia and asthma compared to other children and youth.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 6","pages":"484-503"},"PeriodicalIF":1.8,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10486558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Understanding Characteristics and Predictors of Admission From the Emergency Department for Patients With Intellectual Disability. 了解急诊科智力残疾患者入院的特点和预测因素。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-12-01 DOI: 10.1352/1934-9556-60.6.465
Elisha M Acosta, Deepa Dongarwar, Tara Everett, Hamisu M Salihu
{"title":"Understanding Characteristics and Predictors of Admission From the Emergency Department for Patients With Intellectual Disability.","authors":"Elisha M Acosta,&nbsp;Deepa Dongarwar,&nbsp;Tara Everett,&nbsp;Hamisu M Salihu","doi":"10.1352/1934-9556-60.6.465","DOIUrl":"https://doi.org/10.1352/1934-9556-60.6.465","url":null,"abstract":"<p><p>The goal of this investigation is to compare rates of admission from the emergency department (ED) and the characteristics of patients with intellectual disability (ID) who get admitted from the ED. This was a retrospective study using data from the United States' Nationwide Emergency Data Sample (NEDS) to investigate the associations between the diagnosis of ID and admission to the hospital in patients ≥ 18 years during the years 2016-2017. Adults with ID were almost four times as likely to be admitted to the hospital from the ED as patients who were not identified as having ID. Identifying the major contributors to increased admission for patients with ID may help improve their care.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 6","pages":"465-476"},"PeriodicalIF":1.8,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10486556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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