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Financial Planning Among Parents of Children With Intellectual and Developmental Disabilities. 智障儿童家长的财务规划。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.211
Rumi Agarwal, Laura M Heron, Shanna L Burke
{"title":"Financial Planning Among Parents of Children With Intellectual and Developmental Disabilities.","authors":"Rumi Agarwal, Laura M Heron, Shanna L Burke","doi":"10.1352/1934-9556-61.3.211","DOIUrl":"10.1352/1934-9556-61.3.211","url":null,"abstract":"<p><p>Families of children with intellectual and developmental disabilities (IDD) experience significant financial hardship, which could improve through financial planning and utilization of accounts such as the Achieving a Better Life Experience (ABLE). Unfortunately, current rates of banking are low among individuals with disabilities, and no study has examined this phenomenon specifically among families of children with IDD. In this cross-sectional study, 176 parents shared their financial planning and utilization experience. Findings indicate that parents worry about their child's financial future, however, paradoxically, are not engaging in financial planning. Utilization of ABLE, checking and savings accounts, and special needs trusts are also low. Parents reported several programmatic and personal barriers which could inform immediate programmatic changes and long-term policy considerations.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 3","pages":"211-223"},"PeriodicalIF":1.6,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9613807","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Promoting Resilience in Direct Support Professionals of Adults With Intellectual and Developmental Disabilities: A Qualitative Descriptive Study. 促进智力和发育障碍成人直接支持专业人员的弹性：一项定性描述性研究。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.250
Melissa L Desroches, Mirinda Tyo
{"title":"Promoting Resilience in Direct Support Professionals of Adults With Intellectual and Developmental Disabilities: A Qualitative Descriptive Study.","authors":"Melissa L Desroches, Mirinda Tyo","doi":"10.1352/1934-9556-61.3.250","DOIUrl":"10.1352/1934-9556-61.3.250","url":null,"abstract":"<p><p>The direct support professional (DSP) workforce shortage crisis has reached untenable levels during the COVID-19 pandemic as DSPs rapidly exit the workforce. To gain a better understanding of factors that contribute to DSP resilience during stressful and challenging times, we interviewed 10 DSPs identified by colleagues as resilient to elicit strategies to promote DSP resilience. Our content analysis revealed nine distinct strategies: (a) communication; (b) self-worth and recognition; (c) authentic, equitable relationships; (d) embracing change and learning; (e) establishing and maintaining boundaries; (f) cultivating an intentional mindset; (g) self-care; (h) spirituality/\"the bigger picture\"; and (i) a daily practice of humor and fun.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 3","pages":"250-264"},"PeriodicalIF":1.6,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9606053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.267
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1934-9556-61.3.267","DOIUrl":"https://doi.org/10.1352/1934-9556-61.3.267","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Intellect Dev Disabil 1 June 2023; 61 (3): 267–268. doi: https://doi.org/10.1352/1934-9556-61.3.267 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"17 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134903823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français 法文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.265
{"title":"Résumés en Français","authors":"","doi":"10.1352/1934-9556-61.3.265","DOIUrl":"https://doi.org/10.1352/1934-9556-61.3.265","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Intellect Dev Disabil 1 June 2023; 61 (3): 265–266. doi: https://doi.org/10.1352/1934-9556-61.3.265 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"162 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134903826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using the Independent Monitoring for Quality Program to Examine Longitudinal Outcomes for People With Intellectual and Developmental Disabilities. 使用质量独立监测计划来检查智力和发育障碍者的纵向结果。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.238
Renáta Tichá, Sandra L Pettingell, James Lemanowicz, Celia S Feinstein, Julie Bershadsky, James Houseworth, Alicia Q Zhang
{"title":"Using the Independent Monitoring for Quality Program to Examine Longitudinal Outcomes for People With Intellectual and Developmental Disabilities.","authors":"Renáta Tichá, Sandra L Pettingell, James Lemanowicz, Celia S Feinstein, Julie Bershadsky, James Houseworth, Alicia Q Zhang","doi":"10.1352/1934-9556-61.3.238","DOIUrl":"10.1352/1934-9556-61.3.238","url":null,"abstract":"<p><p>The purpose of this study is to lay a foundation for illustrating the importance of longitudinal data collection by sharing the results of the Independent Monitoring for Quality (IM4Q) program in Pennsylvania designed to collect data over time on the quality of services for adults with intellectual and developmental disabilities. In this article, we report on the history and characteristics of the IM4Q program, describe the key variables of interest, and highlight the trends in the key variables over 3 years of data collection (2013, 2016, and 2019). The descriptive results indicate mixed trends for the three areas of focus: comparable rates of people employed in community-based settings, less support-related choice, and better everyday choice-making outcomes.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 3","pages":"238-249"},"PeriodicalIF":1.6,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9613808","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors Influencing Parents' Decisions to Create a Business for Their Adult Child With Intellectual Disability. 影响父母为智障成年子女创业决定的因素。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.224
Emily T Malouf, Stacy K Dymond
{"title":"Factors Influencing Parents' Decisions to Create a Business for Their Adult Child With Intellectual Disability.","authors":"Emily T Malouf, Stacy K Dymond","doi":"10.1352/1934-9556-61.3.224","DOIUrl":"10.1352/1934-9556-61.3.224","url":null,"abstract":"<p><p>Obtaining and maintaining work can be a challenge for many people with intellectual disability (ID) and parents can play an integral role in supporting their child to secure employment. The purpose of this qualitative research study was to understand factors that influence parents' decisions to create a business for their adult child with ID. Nine parents were identified through purposeful and snowball sampling. Parents participated in individual interviews and data were analyzed using thematic analysis. Our findings suggest that school experiences, expectations for work, presence of specialized support, and encouragement and suggestions from others influenced parents' decisions to create a business. In light of the findings, we discuss how parents' previous experiences and responsiveness influenced the creation of the business.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 3","pages":"224-237"},"PeriodicalIF":1.6,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9613805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Relationship Between Choice and Injuries of People With Intellectual and Developmental Disabilities. 智力和发育障碍者的选择与伤害的关系
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-06-01 DOI: 10.1352/1934-9556-61.3.185
Carli Friedman
{"title":"The Relationship Between Choice and Injuries of People With Intellectual and Developmental Disabilities.","authors":"Carli Friedman","doi":"10.1352/1934-9556-61.3.185","DOIUrl":"10.1352/1934-9556-61.3.185","url":null,"abstract":"<p><p>People with IDD are often denied choices based on concerns for their safety, including to prevent and reduce injuries. This study examined the relationship between the service-related choices of people with IDD and their injuries. In this cross-sectional analysis, we analyzed secondary Personal Outcome Measures® interview data and injury data from 251 people with IDD. Our findings revealed, controlling for all demographics, for every one-unit increase in service-related choice outcomes present, there was a 35% decrease in injuries. Expanding people with IDD's choice-making opportunities may result in fewer injuries. We must move beyond custodial models of care and ensure people with IDD are supported to live the lives of their choosing.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 3","pages":"185-196"},"PeriodicalIF":1.6,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9606052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Functional Literacy Intervention for Postsecondary Students With Intellectual and Developmental Disabilities: A Pilot Study. 智障及发展障碍大学生的功能性读写干预:一项试点研究。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.124
Alison Prahl, Carly Gilson
{"title":"Functional Literacy Intervention for Postsecondary Students With Intellectual and Developmental Disabilities: A Pilot Study.","authors":"Alison Prahl,&nbsp;Carly Gilson","doi":"10.1352/1934-9556-61.2.124","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.124","url":null,"abstract":"<p><p>The rapid growth of inclusive higher education opportunities for young adults with intellectual and developmental disabilities (IDD) has contributed to improvements in students' academics, employment, social, and independent living outcomes. However, many college programs lack a focus on functional literacy, a critical skill for success in adulthood. This study evaluated whether a functional literacy intervention was associated with an increase in the percentage of reading comprehension strategies implemented accurately for college students with IDD. A multiple probe across functional literacy stimuli (e.g., academic assignments, employment emails, social text messages) was replicated across four students. Results indicated an association between the intervention and percentage of strategies implemented accurately. Suggestions for future research and implications for practice are provided.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"124-144"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Tale of Two Adaptations of a Special Education Advocacy Program. 一个特殊教育宣传项目的两个改编故事。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.95
Meghan M Burke, Samantha E Goldman, Chak Li
{"title":"A Tale of Two Adaptations of a Special Education Advocacy Program.","authors":"Meghan M Burke,&nbsp;Samantha E Goldman,&nbsp;Chak Li","doi":"10.1352/1934-9556-61.2.95","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.95","url":null,"abstract":"<p><p>Special education advocacy programs support families to secure services for their children with intellectual and developmental disabilities. Although research demonstrates the efficacy of one such program (the Volunteer Advocacy Project), its effectiveness when replicated by others is unknown. Replication research is critical to ensure that programs can remain effective. The purpose of this study was to explore the adaptation process for two agencies that replicated an advocacy program. Quantitative and qualitative data were collected to examine feasibility, acceptability, and effectiveness. Although it took resources to replicate the advocacy program, agencies reported ongoing implementation would be easier once adaptations were completed. The adapted programs were effective in increasing participants' knowledge, empowerment, advocacy, and insiderness. Implications for research and practice are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"95-109"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Applicants to a Special Education Advocacy Training Program: "Insiders" in the Disability Advocacy World. 特殊教育倡导培训项目申请者:残疾倡导界的“圈内人”。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.110
Brittney L Goscicki, Samantha E Goldman, Meghan M Burke, Robert M Hodapp
{"title":"Applicants to a Special Education Advocacy Training Program: \"Insiders\" in the Disability Advocacy World.","authors":"Brittney L Goscicki,&nbsp;Samantha E Goldman,&nbsp;Meghan M Burke,&nbsp;Robert M Hodapp","doi":"10.1352/1934-9556-61.2.110","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.110","url":null,"abstract":"<p><p>Although social groups have \"insiders,\" this construct has not been measured within the disability advocacy community. Examining 405 individuals who applied for an advocacy training program, this study examined the nature of insiderness within the disability advocacy community and ties to individual roles. Participants showed differences in mean ratings across 10 insider items. A principal components analysis revealed two distinct factors: Organizational Involvement and Social Connectedness. Non-school providers scored highest on Organizational Involvement; family members/self-advocates highest on Social Connectedness. Themes from open-ended responses supported the factors and showed differences in motivation and information sources across insiderness levels and roles. Qualitative analysis revealed two additional aspects of insiderness not addressed in the scale. Implications are discussed for future practice and research.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"110-123"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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