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Intellectual and Developmental Disabilities最新文献

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Seeking Out Social Learning: Online Self-Education in Parents of Children With Intellectual and Developmental Disabilities. 寻求社会学习:智力和发育障碍儿童父母的在线自我教育。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-08-01 DOI: 10.1352/1934-9556-60.4.303
Christina M Karns, Bonnie Todis, Elizabeth Glenn, Ann Glang, Shari L Wade, Ilka Riddle, Laura Lee McIntyre
{"title":"Seeking Out Social Learning: Online Self-Education in Parents of Children With Intellectual and Developmental Disabilities.","authors":"Christina M Karns,&nbsp;Bonnie Todis,&nbsp;Elizabeth Glenn,&nbsp;Ann Glang,&nbsp;Shari L Wade,&nbsp;Ilka Riddle,&nbsp;Laura Lee McIntyre","doi":"10.1352/1934-9556-60.4.303","DOIUrl":"https://doi.org/10.1352/1934-9556-60.4.303","url":null,"abstract":"<p><p>Supportive, informed parenting is critical to improve outcomes of children who experience intellectual and developmental disabilities (IDD). Parents want to learn about their child's condition, needs, and strategies to improve family life. The internet is a valuable resource, but how parents evaluate and apply information is unknown. We conducted focus groups to understand how parents use internet resources to learn about their children with IDD. Parents described using the internet to access information from trusted sources, find examples to apply their knowledge, and seek social support. Social learning theory, which posits that cognitive, behavioral, and social processes influence each other to support real-world learning, could provide a theoretical framework for unifying these findings and for designing efficacious online interventions.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 4","pages":"303-315"},"PeriodicalIF":1.8,"publicationDate":"2022-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40615927","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Formal and Informal Supports for Women With Intellectual and Developmental Disabilities During Pregnancy. 为怀孕期间有智力和发育障碍的妇女提供正式和非正式支助。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-08-01 DOI: 10.1352/1934-9556-60.4.261
Eliana Rosenthal, Susan L Parish, Cristina Ransom, Lauren D Smith, Monika Mitra
{"title":"Formal and Informal Supports for Women With Intellectual and Developmental Disabilities During Pregnancy.","authors":"Eliana Rosenthal,&nbsp;Susan L Parish,&nbsp;Cristina Ransom,&nbsp;Lauren D Smith,&nbsp;Monika Mitra","doi":"10.1352/1934-9556-60.4.261","DOIUrl":"https://doi.org/10.1352/1934-9556-60.4.261","url":null,"abstract":"<p><p>This article explores the role of formal and informal supports for women with intellectual and developmental disabilities (IDD) throughout their pregnancy, childbirth, and postpartum experiences. Data from qualitative interviews with women with IDD (n = 16) were analyzed. Results showed that formal supports aided in planning, transportation, advocacy, and providing emotional support throughout pregnancy. Informal supports helped with errands, comfort, and emotional encouragement. The community surrounding these women facilitated communication with providers, self-empowerment regarding health choices, and increased preparedness for parenthood. Findings indicate the importance of encouraging and sustaining both formal and informal supports during pregnancy, childbirth, and postpartum to improve pregnancy and parenting experiences for women with IDD.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 4","pages":"261-272"},"PeriodicalIF":1.8,"publicationDate":"2022-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40615926","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
The Benefits of Active, Person-Centered Job Placement: Results From Service Providers Undergoing Organizational Transformation Away From Sheltered Employment. 积极的，以人为本的就业安置的好处:结果从服务提供者经历组织转型远离庇护就业。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-05-31 DOI: 10.1352/1934-9556-60.3.234
Oliver Lyons, J. Timmons, A. Hall, Lara Enein-Donovan, Esther Kamau
{"title":"The Benefits of Active, Person-Centered Job Placement: Results From Service Providers Undergoing Organizational Transformation Away From Sheltered Employment.","authors":"Oliver Lyons, J. Timmons, A. Hall, Lara Enein-Donovan, Esther Kamau","doi":"10.1352/1934-9556-60.3.234","DOIUrl":"https://doi.org/10.1352/1934-9556-60.3.234","url":null,"abstract":"Recent national and state-level policy changes have created an imperative for service providers to transform from sheltered work to competitive integrated employment. The current study sought to understand the impact of participation in a 1-year, comprehensive technical assistance pilot designed to support service providers to transform away from sheltered workshops towards encouraging competitive integrated employment and delivering job development supports. Findings showed competitive integrated employment is attainable if given the appropriate organizational emphasis and when effective job development practices are implemented to a strategically identified group. Implications highlight the values of slowly preparing individuals for competitive integrated employment; facilitating an active, person-centered job placement process; engaging key stakeholders in job development; and focusing on individual job placement in the context of organizational transformation.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 3 1","pages":"234-245"},"PeriodicalIF":1.8,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47723530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Leisure Participation Opportunities for Adults With Intellectual Disability With Moderate Levels of Impairment Residing in Community Apartments. 居住在社区公寓的中度智力残疾成年人的休闲参与机会。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-05-31 DOI: 10.1352/1934-9556-60.3.226
A. Keller, N. Weintraub
{"title":"Leisure Participation Opportunities for Adults With Intellectual Disability With Moderate Levels of Impairment Residing in Community Apartments.","authors":"A. Keller, N. Weintraub","doi":"10.1352/1934-9556-60.3.226","DOIUrl":"https://doi.org/10.1352/1934-9556-60.3.226","url":null,"abstract":"The purpose of this study was to examine the leisure and recreation opportunities available in community apartments for adults with intellectual disability (ID), and their association with leisure participation. The study included 38 adults with ID with moderate levels of impairment residing in 19 apartments. Apartment coordinators reported on apartment characteristics, as well as leisure and recreation schedule and opportunities. Findings revealed diverse leisure and recreation activities. We found correlation between the number of activities (rs = .392 , p = .015; rs = .433, p = .007, respectively) as well as a visible daily schedule (Z = 2.143, p = .035) and leisure participation. Findings suggest that diverse leisure activities and a visible schedule may be associated with improved leisure participation.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 3 1","pages":"226-233"},"PeriodicalIF":1.8,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43199461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français. 英文摘要。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-05-31 DOI: 10.1352/2326-6988-7.1.71
{"title":"Résumés en Français.","authors":"","doi":"10.1352/2326-6988-7.1.71","DOIUrl":"https://doi.org/10.1352/2326-6988-7.1.71","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"54 6 1","pages":"465-466"},"PeriodicalIF":1.8,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47810026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Direct Support Professionals: Stress and Resiliency Amidst the COVID-19 Pandemic. 直接支持专业人员：新冠肺炎大流行期间的压力和复原力。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-05-31 DOI: 10.1352/1934-9556-60.3.246
Kathy Sheppard-Jones, H. Kleinert, Laura Butler, Jian Li, Emily Moseley, Chithra Adams
{"title":"Direct Support Professionals: Stress and Resiliency Amidst the COVID-19 Pandemic.","authors":"Kathy Sheppard-Jones, H. Kleinert, Laura Butler, Jian Li, Emily Moseley, Chithra Adams","doi":"10.1352/1934-9556-60.3.246","DOIUrl":"https://doi.org/10.1352/1934-9556-60.3.246","url":null,"abstract":"This study reports on the results of an online survey of direct support professionals (DSPs) during the COVID-19 pandemic in June 2020 to measure their perceived quality of life, stressors, coping/resilience skills, and knowledge of health care rights directly related to the pandemic for the persons that they support. Specifically, we examined direct support workers' perceptions of their quality of life, levels of stress, and their self-reported resilience skills. We found that perceived stress was strongly correlated with both self-reported quality of life and resilience, but not with years of DSP experience. Moreover, while DSPs overwhelmingly knew and affirmed health care rights for people with disabilities, they were less knowledgeable about their legal rights during hospital stays.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 3 1","pages":"246-255"},"PeriodicalIF":1.8,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49285462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intermediate Care Facilities for Individuals With Intellectual Disabilities: Does Ownership Type Affect Quality of Care? 智障人士中间护理设施:所有权类型是否影响护理质量?
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-05-31 DOI: 10.1352/1934-9556-60.3.212
Alison D. Morantz, L. Ross
{"title":"Intermediate Care Facilities for Individuals With Intellectual Disabilities: Does Ownership Type Affect Quality of Care?","authors":"Alison D. Morantz, L. Ross","doi":"10.1352/1934-9556-60.3.212","DOIUrl":"https://doi.org/10.1352/1934-9556-60.3.212","url":null,"abstract":"Because many large, state-owned Intermediate Care Facilities for Individuals With Intellectual Disabilities (ICF/IIDs) have closed or downsized, their average size has fallen markedly, as has the number that are publicly owned. We probe the relationship between ownership type and four measures of care quality in ICF/IIDs. Data on deficiency citations suggest that for-profits underperform other ownership types, although data on complaints show no clear pattern. Meanwhile, data on staffing ratios and restrictive behavior management practices, based mostly on facility self-reports, generally tell the opposite story. Our results lend some credence to concerns regarding inadequate care in for-profit ICF/IIDs, while underscoring the importance of requiring ICF/IID operators to report more comprehensive, longitudinal data that are less prone to error and reporting bias.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 3 1","pages":"212-225"},"PeriodicalIF":1.8,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47358993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Comparing Perspectives Between Different Agency Structures and Support Models. 不同代理结构和支持模式之间的视角比较。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-05-31 DOI: 10.1352/1934-9556-60.3.199
K. E. Johnson, Caitlin E. Bailey, Nancy R. Weiss, Steven M. Eidelman
{"title":"Comparing Perspectives Between Different Agency Structures and Support Models.","authors":"K. E. Johnson, Caitlin E. Bailey, Nancy R. Weiss, Steven M. Eidelman","doi":"10.1352/1934-9556-60.3.199","DOIUrl":"https://doi.org/10.1352/1934-9556-60.3.199","url":null,"abstract":"The roles and responsibilities of direct support professionals (DSPs) are evolving. This qualitative study explores how DSPs perceive their role and explores those perceptions across DSPs working in traditional, intermediate, and innovative agencies, as defined for the study. Examining 440 DSP survey responses and interviews with 24 DSPs, we found that DSPs working in more individualized settings tended to have expanded role functions (focused on promoting self-determination and community engagement). DSPs working in more traditional settings tended to have more care-focused role functions (concentrated on activities of daily living, medication administration, and health and safety). The role perception of DSPs at intermediate agencies and role conflict due to competing responsibilities demonstrate a need to systemically transform future service delivery.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 3 1","pages":"199-211"},"PeriodicalIF":1.8,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47447850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Professional Responsibility in the Field of Intellectual and Developmental Disabilities: Its Definition, Application, and Impacts. 智力和发育障碍领域的职业责任：定义、应用和影响。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-05-31 DOI: 10.1352/1934-9556-60.3.183
R. Luckasson, M. Tassé, R. Schalock
{"title":"Professional Responsibility in the Field of Intellectual and Developmental Disabilities: Its Definition, Application, and Impacts.","authors":"R. Luckasson, M. Tassé, R. Schalock","doi":"10.1352/1934-9556-60.3.183","DOIUrl":"https://doi.org/10.1352/1934-9556-60.3.183","url":null,"abstract":"This article addresses the need to clearly understand professional responsibility and the critical role it plays in the lives of individuals with intellectual and developmental disabilities (IDD), in shaping professions for the better, and in enhancing the functioning of society for the benefit of all. Understanding professional responsibility is especially timely during the current transformation that is occurring in the field of IDD. To that end, the article discusses what is a profession, who is a professional, and what is professional responsibility. Using a logic model framework, the article describes the components of professional responsibility that include its building blocks such as respect for the person, professional ethics and standards, critical thinking skills, and clinical judgment; its use of nine professional practices including empowerment, evidence-based practices, individualized supports, and person-centered outcome evaluation; its outcomes in terms of mutual trust, the improved effectiveness of clinical functions, and professional accountability; and its impacts regarding individual benefit, professional integrity, and societal enhancement.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"60 3 1","pages":"183-198"},"PeriodicalIF":1.8,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43128954","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Résumés en Français. 法语摘要。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2022-05-20 DOI: 10.1352/1934-9556-55.2.120
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1934-9556-55.2.120","DOIUrl":"https://doi.org/10.1352/1934-9556-55.2.120","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"55 2 1","pages":"120-121"},"PeriodicalIF":1.8,"publicationDate":"2022-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/1934-9556-55.2.120","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43173795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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