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Exploring Caregiver Perceptions of Post-High School Employment Experiences Among Young Adults With Down Syndrome. 探索照顾者对唐氏综合症年轻人高中毕业后就业经历的看法。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.158
Marie Moore Channell, Susan J Loveall, Meghan M Burke
{"title":"Exploring Caregiver Perceptions of Post-High School Employment Experiences Among Young Adults With Down Syndrome.","authors":"Marie Moore Channell,&nbsp;Susan J Loveall,&nbsp;Meghan M Burke","doi":"10.1352/1934-9556-61.2.158","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.158","url":null,"abstract":"<p><p>This qualitative study explored employment experiences and perceived satisfaction of young adults with Down syndrome (DS) who recently exited high school, as reported by their caregivers (n = 101). We analyzed caregivers' open-ended responses about their young adults' type of employment (n = 52 were employed) and identified themes associated with reported satisfaction (for both employed and unemployed). Natural supports were key to caregiver satisfaction; few opportunities for paid, community-based employment and long waiting lists for formal services were related to caregiver dissatisfaction. Job fit (e.g., hours, responsibilities, location), socialization opportunities, and independence were related to caregiver and perceived young adult (dis)satisfaction. These findings highlight unmet service needs, including assistance with finding a job that is the right fit for the individual with DS.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"158-171"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The Right to Science: Centering People With Intellectual Disability in the Process and Outcomes of Science. 科学权利:以智障人士为中心的科学过程与成果。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.172
Karrie A Shogren
{"title":"The Right to Science: Centering People With Intellectual Disability in the Process and Outcomes of Science.","authors":"Karrie A Shogren","doi":"10.1352/1934-9556-61.2.172","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.172","url":null,"abstract":"<p><p>The right to science has been identified in multiple human rights treaties; however, there has not been a clear framework for how governments or research organizations can advance this right particularly ensuring equitable engagement of people with intellectual disability (ID) in the process of scientific research. Although the feasibility and impacts of engaging people with ID in the process of science have been repeatedly demonstrated there remain systemic barriers including ableism, racism, and other systems of oppression that sustain inequities. Researchers in the ID field must take steps to dismantle systemic barriers and advance participatory approaches that advance equity in the process and outcomes of science.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"172-177"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
"More Than a Paycheck": Parent Perspectives on Meaningful Work for Individuals With Intellectual and Developmental Disabilities. “不仅仅是薪水”:父母对智力和发育障碍人士有意义的工作的看法。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-04-01 DOI: 10.1352/1934-9556-61.2.145
Erik W Carter, Emily R Lanchak, Laura Guest, Elise D McMillan, Julie Lounds Taylor, Hannah Rowley
{"title":"\"More Than a Paycheck\": Parent Perspectives on Meaningful Work for Individuals With Intellectual and Developmental Disabilities.","authors":"Erik W Carter,&nbsp;Emily R Lanchak,&nbsp;Laura Guest,&nbsp;Elise D McMillan,&nbsp;Julie Lounds Taylor,&nbsp;Hannah Rowley","doi":"10.1352/1934-9556-61.2.145","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.145","url":null,"abstract":"<p><p>Increasing employment outcomes for individuals with intellectual and developmental disabilities (IDD) remains an enduring emphasis of research, policy, and practice. Parents are often primary partners in the pursuit of meaningful work for their family members with IDD. This qualitative study examined the views of 55 parents regarding the importance of this pursuit and the features of employment that matter most to them. Participants discussed a range of reasons they valued employment for their family members with IDD, including factors that extended beyond a paycheck. Likewise, they described an array of features that they considered to be important to their family member thriving in the workplace (e.g., inclusivity, match with interests, opportunities for growth). We offer recommendations for promoting integrated employment among families and conceptualizing employment outcomes within future research.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 2","pages":"145-157"},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9457749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-03-30 DOI: 10.1352/1934-9556-61.2.180
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1934-9556-61.2.180","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.180","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Intellect Dev Disabil 1 April 2023; 61 (2): 180–181. doi: https://doi.org/10.1352/1934-9556-61.2.180 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"22 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136150822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français 法文摘要
3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-03-30 DOI: 10.1352/1934-9556-61.2.178
{"title":"Résumés en Français","authors":"","doi":"10.1352/1934-9556-61.2.178","DOIUrl":"https://doi.org/10.1352/1934-9556-61.2.178","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Intellect Dev Disabil 1 April 2023; 61 (2): 178–179. doi: https://doi.org/10.1352/1934-9556-61.2.178 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136195291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español. 英文摘要。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-03-30 DOI: 10.1352/1934-9556-55.2.122
{"title":"Resúmenes al Español.","authors":"","doi":"10.1352/1934-9556-55.2.122","DOIUrl":"https://doi.org/10.1352/1934-9556-55.2.122","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"55 2 1","pages":"122-123"},"PeriodicalIF":1.8,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46487270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Service Use Patterns by Children With Down Syndrome in a Canadian Region. 加拿大地区唐氏综合症儿童的服务使用模式
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.79
John D McLennan, Casey Fulford, Sophia Hrycko, Virginie Cobigo, Munazza Tahir
{"title":"Service Use Patterns by Children With Down Syndrome in a Canadian Region.","authors":"John D McLennan,&nbsp;Casey Fulford,&nbsp;Sophia Hrycko,&nbsp;Virginie Cobigo,&nbsp;Munazza Tahir","doi":"10.1352/1934-9556-61.1.79","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.79","url":null,"abstract":"<p><p>Children with Down syndrome require services from different sectors over time to optimize health and development, however, there is little information on longitudinal, cross-sector service use. Parents of children with Down syndrome attending a Canadian children's hospital participated in semistructured interviews covering life-time multiple sector service use. Five key service patterns were identified: (1) primary care physicians playing a circumscribed role; (2) a marked shift in public habilitative service receipt from development agencies in the preschool years to exclusive school delivery after school entry; (3) families obtaining private services to address gaps from public sector services; (4) a prominent role for parents to identify additional services; and (5) service variability as a function of timing and severity of medical comorbidity.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"79-88"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An Examination of Support Needs, Supports, and Outcomes for People With Intellectual and Developmental Disabilities. 智力和发育障碍者的支持需求、支持和结果的检查。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.65
Parthenia Dinora, Seb M Prohn, Matthew Bogenschutz, Michael D Broda, Sarah Lineberry, Angela West
{"title":"An Examination of Support Needs, Supports, and Outcomes for People With Intellectual and Developmental Disabilities.","authors":"Parthenia Dinora,&nbsp;Seb M Prohn,&nbsp;Matthew Bogenschutz,&nbsp;Michael D Broda,&nbsp;Sarah Lineberry,&nbsp;Angela West","doi":"10.1352/1934-9556-61.1.65","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.65","url":null,"abstract":"<p><p>Researchers used a merged dataset to examine if more resources were expended on those with greater support needs and if support needs impacted personal outcomes when controlling for relevant personal and contextual factors. Results indicated that the amount of support a person receives had a direct relationship to their needs. However, we also found that people with the greatest needs had weaker personal outcomes suggesting that distribution of resources based on need may not result in equivalent outcomes. The authors suggest strategies at an individual and systems level to address the outcomes gap for people with the greatest support needs.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"65-78"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of Information and Knowledge in COVID-19 Vaccination Among People With Intellectual and Developmental Disabilities and Their Families. 信息和知识在智力和发育障碍者及其家庭COVID-19疫苗接种中的作用
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.16
Sarah Lineberry, Matthew Bogenschutz, Parthenia Dinora, Kara Ayers
{"title":"The Role of Information and Knowledge in COVID-19 Vaccination Among People With Intellectual and Developmental Disabilities and Their Families.","authors":"Sarah Lineberry,&nbsp;Matthew Bogenschutz,&nbsp;Parthenia Dinora,&nbsp;Kara Ayers","doi":"10.1352/1934-9556-61.1.16","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.16","url":null,"abstract":"People with intellectual and developmental disabilities (IDD) may be at an increased risk of severe illness and death from COVID-19. This article examines the role of information and knowledge in COVID-19 vaccine uptake for people with IDD and their families. We developed a survey about COVID-19 vaccine uptake, confidence, and knowledge for people with IDD and their families. COVID-19 vaccine uptake was associated with higher self-reported knowledge about the vaccine, learning about the vaccine from one's doctor, and social media use. Qualitative results reflected the importance of trusted relationships with medical providers in vaccination.","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"16-30"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Views of Speech-Language Pathologists on Telepractice for Children Who Use Augmentative and Alternative Communication. 语言病理学家对使用增强和替代交流的儿童远程练习的看法。
IF 1.8 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2023-02-01 DOI: 10.1352/1934-9556-61.1.31
Elizabeth E Biggs, Sarah N Douglas, Michelle C S Therrien, Melinda R Snodgrass
{"title":"Views of Speech-Language Pathologists on Telepractice for Children Who Use Augmentative and Alternative Communication.","authors":"Elizabeth E Biggs,&nbsp;Sarah N Douglas,&nbsp;Michelle C S Therrien,&nbsp;Melinda R Snodgrass","doi":"10.1352/1934-9556-61.1.31","DOIUrl":"https://doi.org/10.1352/1934-9556-61.1.31","url":null,"abstract":"<p><p>Telepractice has become increasingly utilized in disability services, particularly with recent and ongoing measures to slow the spread of the novel coronavirus (COVID-19). In this study, 361 speech-language pathologists (SLPs) responded to a national, web-based survey about their views on utilizing telepractice with children aged 3 to 21 who used aided augmentative and alternative communication (AAC), such as picture symbols or speech-generating devices. The views of SLPs varied, and SLPs who received training on AAC telepractice within the last 12 months had more positive views about telepractice than those who did not. Several factors were associated with when and how SLPs thought telepractice was beneficial to serve children who use aided AAC, including SLPs' foundational perspectives about telepractice, service delivery options, considerations related to the child and family, and broader resources and constraints.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"61 1","pages":"31-48"},"PeriodicalIF":1.8,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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