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Résumés en Français. 摘要为法文。
IF 1.7 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.82
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1934-9556-63.1.82","DOIUrl":"https://doi.org/10.1352/1934-9556-63.1.82","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"82-83"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Being a "Lay Expert": A Choice for Chinese Parents of Young Autistic Children. 做“外行专家”：中国自闭症幼童父母的选择。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.1
Yumin Zhang, Junting Chen, Xiaoyan Li
{"title":"Being a \"Lay Expert\": A Choice for Chinese Parents of Young Autistic Children.","authors":"Yumin Zhang, Junting Chen, Xiaoyan Li","doi":"10.1352/1934-9556-63.1.1","DOIUrl":"10.1352/1934-9556-63.1.1","url":null,"abstract":"<p><p>The lack of rehabilitation teachers for autistic children is common in lower-middle income countries. Designing programs to train parents to become \"para-rehabilitators,\" that is, \"lay experts,\" is one of the ways to solve this problem. The purpose of this study was to explore the feelings, problems, and hopes of Chinese parents participating in the parent-implemented rehabilitation model. Semi-structured qualitative interviews with 19 parents of autistic children were conducted and analyzed thematically. The study found positive changes in the parental understanding of and response to autism disorders, suggesting that training parents to become para-rehabilitators to address the shortage of rehabilitators is useful, and that improvements in training methods are needed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"1-13"},"PeriodicalIF":1.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating Sex Differences in Language Abilities Within Down Syndrome and Autism Spectrum Disorder. 评估唐氏综合症和自闭症谱系障碍中语言能力的性别差异。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.29
Manisha D Udhnani, Nancy Raitano Lee
{"title":"Evaluating Sex Differences in Language Abilities Within Down Syndrome and Autism Spectrum Disorder.","authors":"Manisha D Udhnani, Nancy Raitano Lee","doi":"10.1352/1934-9556-63.1.29","DOIUrl":"10.1352/1934-9556-63.1.29","url":null,"abstract":"<p><p>Down syndrome (DS) and autism spectrum disorder (ASD) are two neurodevelopmental disorders characterized by impairments in language. Most studies do not consider the possible role sex differences may play in language profiles. Thus, the current study aimed to evaluate whether parent-reported structural and pragmatic language vary as a function of sex in youth with DS (n = 37), ASD (n = 106), and typical development (TD; n = 61). Findings suggest a female advantage in both structural and pragmatic language in DS; in contrast, no sex differences were found for either ASD or TD. Results suggest that males with DS may require more extensive interventions for language. Future research should investigate how age, IQ, and mode of measurement may impact the nature of these observations.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"29-41"},"PeriodicalIF":1.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correlates of School-Home Communication From Caregivers of Children With Autism. 自闭症儿童照顾者学校与家庭交流的相关关系
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.14
Chak Li, Meghan M Burke
{"title":"Correlates of School-Home Communication From Caregivers of Children With Autism.","authors":"Chak Li, Meghan M Burke","doi":"10.1352/1934-9556-63.1.14","DOIUrl":"10.1352/1934-9556-63.1.14","url":null,"abstract":"<p><p>School-home communication may be especially critical for families of children with autism given their tenuous partnerships with school professionals. In this study, we explored the child, caregiver, and family-professional partnership correlates of school-home communication. Data were collected from 179 caregivers of children with autism (age 3-21) via a national survey. Participants overwhelmingly reported having less than monthly communication with educators (i.e., general and special education teachers) despite wanting at least weekly communication. A preference for email communication negatively correlated with participants who were Black and/or from lower-income households, but this should be met with caution due to limited sample diversity. These findings indicate that it is necessary to attain a nuanced understanding of school-home communication and identify other potential correlates.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"14-28"},"PeriodicalIF":1.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Physical Educators' Training and Confidence in Implementing Evidence-Based Practices for Students With ASD. 体育教育者的培训和对ASD学生实施循证实践的信心。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.66
Selena J Layden, Lindsey A Nowland, Justin A Haegele
{"title":"Physical Educators' Training and Confidence in Implementing Evidence-Based Practices for Students With ASD.","authors":"Selena J Layden, Lindsey A Nowland, Justin A Haegele","doi":"10.1352/1934-9556-63.1.66","DOIUrl":"10.1352/1934-9556-63.1.66","url":null,"abstract":"<p><p>Educators working with students with autism spectrum disorder (ASD) should be utilizing evidence-based practices (EBPs) that have been identified for this group of students to promote better outcomes. Physical education (PE) teachers are highly likely to work with students with ASD in educational settings, yet little is known about their level of training and confidence in implementing EBPs for students with ASD. This study used survey methodology to ask PE teachers about their training in EBPs and their perceived confidence in implementing such practices. The results indicate that, although there was little reported training on individual EBPs specific to students with ASD, PE teachers reported feeling relatively confident in supporting students with ASD. Further findings and implications are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"66-81"},"PeriodicalIF":1.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061022","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Oral Narrative Abilities of Chilean School-Age Children With Down Syndrome: A Preliminary Study. 智利唐氏综合症学龄儿童口头叙事能力的初步研究。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.51
Victoria Sánchez-Gómez, Antonio M Amor González, Laura Zampini, Miguel Ángel Verdugo, María Isabel Calvo
{"title":"Exploring Oral Narrative Abilities of Chilean School-Age Children With Down Syndrome: A Preliminary Study.","authors":"Victoria Sánchez-Gómez, Antonio M Amor González, Laura Zampini, Miguel Ángel Verdugo, María Isabel Calvo","doi":"10.1352/1934-9556-63.1.51","DOIUrl":"10.1352/1934-9556-63.1.51","url":null,"abstract":"<p><p>Narrative abilities are essential for school achievement and quality of life, yet children with Down syndrome (DS) often struggle with these skills. This work explores the oral narrative abilities of school-age Chilean children with DS. The participants were 11 children with DS aged between 7;2 and 12;1 (years; months). All participated in a retelling task using a wordless picture book. Microstructural and macrostructural performance were analyzed and compared with data from a reference database of typically developing Spanish-speaking children, matched by chronological age or linguistic abilities. Children with DS showed proficiency in identifying introductory story elements but faced difficulties with cohesion. Restricted microstructural performance and task completion time were observed. Ethical-methodological challenges and recommendations for practice and research are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"51-65"},"PeriodicalIF":1.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Work Participation of Autistic Adolescents. 自闭症青少年的工作参与。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2025-02-01 DOI: 10.1352/1934-9556-63.1.42
Michelle Menezes, Jessica Pappagianopoulos, Micah O Mazurek
{"title":"Work Participation of Autistic Adolescents.","authors":"Michelle Menezes, Jessica Pappagianopoulos, Micah O Mazurek","doi":"10.1352/1934-9556-63.1.42","DOIUrl":"10.1352/1934-9556-63.1.42","url":null,"abstract":"<p><p>This study sought to compare frequency of paid work by autistic adolescents to paid work by adolescents with other neurodevelopmental disorders and typically developing adolescents, and to examine whether demographic and clinical characteristics were associated with autistic adolescent employment with data from 2016-2019 National Survey of Children's Health. Rate of paid work was significantly lower in the autistic group (22.01%) than typically developing (49.38%) and other neurodevelopmental disorders (44.27%) groups. Younger age, lower household income, co-occurring intellectual disability, and more severe autism were associated with lower odds of an autistic adolescent having worked. This study indicates that work disparities impacting autistic individuals begin in youth and highlights the need for improved vocational support to address employment barriers for autistic youth.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"42-50"},"PeriodicalIF":1.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities. 为智障和发育障碍人士的家长制定宣传活动量表。
IF 1.9 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-12-01 DOI: 10.1352/1934-9556-62.6.486
Chak Li, Meghan M Burke, Julie Lounds Taylor, Leann S DaWalt, Zachary Rossetti
{"title":"Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities.","authors":"Chak Li, Meghan M Burke, Julie Lounds Taylor, Leann S DaWalt, Zachary Rossetti","doi":"10.1352/1934-9556-62.6.486","DOIUrl":"10.1352/1934-9556-62.6.486","url":null,"abstract":"<p><p>Advocacy has long been heralded as a way to create change for individuals with intellectual and developmental disabilities (IDD) and their families. However, without an established measure, it is difficult to accurately characterize advocacy activities. Drawing from extant research, the Advocacy Activities Scale was developed to assess three domains of parent advocacy: advocacy for one's own children, advocacy for other families, and advocacy for systemic change. Factor analyses were conducted using data from two projects reflecting 382 parents of individuals with IDD from seven states and the District of Columbia. The scale confirmed the three moderately correlated domains of parent advocacy and demonstrated that the scale has high: reliability, validity, test-retest reliability, and moderate correlations with related measures.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 6","pages":"486-499"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13088979/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142711530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family Resilience in Families of Children With Autism Spectrum Disorders: Ecological Systems Theory Perspective. 自闭症谱系障碍儿童家庭的复原力：生态系统论视角。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-12-01 DOI: 10.1352/1934-9556-62.6.474
Ayelet Gur, Yifat Bar Meir, Maayan Edelstein, Mirit Nagar, Òrly Rokach, Ari Reich, Tali-Noy Hindi
{"title":"Family Resilience in Families of Children With Autism Spectrum Disorders: Ecological Systems Theory Perspective.","authors":"Ayelet Gur, Yifat Bar Meir, Maayan Edelstein, Mirit Nagar, Òrly Rokach, Ari Reich, Tali-Noy Hindi","doi":"10.1352/1934-9556-62.6.474","DOIUrl":"10.1352/1934-9556-62.6.474","url":null,"abstract":"<p><p>Drawing on Bronfenbrenner's ecological systems theory (1992), we asked how certain resources contribute to family resilience in families of children with ASD: family quality of life (FQOL; family resources), sense of community and loneliness (informal resources), and family-centered support provided by the state (formal resources). One hundred and twenty-one Israeli parents of children with ASD completed an online survey. Path analysis using AMOS was conducted. FQOL contributed to increased family resilience. Path analysis showed loneliness, sense of community, and services use contributed to family resilience through FQOL. Overall, the research model explained 68% of the variance in family resilience. Implications for research and practice are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 6","pages":"474-485"},"PeriodicalIF":1.6,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142711533","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Through the Looking Glass: A Data Lens on Health of People With Intellectual and Developmental Disabilities. 透过望远镜：智力和发育障碍人士健康数据透视镜》。
IF 1.6 3区 医学
Intellectual and Developmental Disabilities Pub Date : 2024-12-01 DOI: 10.1352/1934-9556-62.6.433
Gloria L Krahn, Susan M Havercamp, Alexandra Bonardi
{"title":"Through the Looking Glass: A Data Lens on Health of People With Intellectual and Developmental Disabilities.","authors":"Gloria L Krahn, Susan M Havercamp, Alexandra Bonardi","doi":"10.1352/1934-9556-62.6.433","DOIUrl":"10.1352/1934-9556-62.6.433","url":null,"abstract":"<p><p>Population level data on health of people with intellectual and developmental disabilities (IDD) are sorely needed to identify their health status, health disparities, and health needs. Key considerations to inform programs and policies need to address prevalence, problem identification, and progress assessment. Recent advances have been made in health data about people with disabilities generally that identify strategies for improving health data for people with IDD, including critical need for a standardized operational definition and survey identifiers of IDD. Past and current actions by federal agencies' to improve health data for health equity are summarized. Emerging developments in IDD health data are identified, including increasing use of self-report, data linking and harmonizing, intersectionality, and recognition of ableism.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"62 6","pages":"433-445"},"PeriodicalIF":1.6,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142711653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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