Journal of Intellectual Disabilities最新文献_第6页

Psychological interventions for parents of children with intellectual disabilities to enhance child behavioral outcomes or parental well-being: A systematic review, content analysis and effects. 对智障儿童家长进行心理干预，以提高儿童的行为成果或家长的幸福感：系统回顾、内容分析及效果。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-27 DOI: 10.1177/17446295241302857

Kati Ranta, Heini Saarimäki, Johanna Gummerus, Jael Virtanen, Satu Peltomäki, Elina Kontu

{"title":"Psychological interventions for parents of children with intellectual disabilities to enhance child behavioral outcomes or parental well-being: A systematic review, content analysis and effects.","authors":"Kati Ranta, Heini Saarimäki, Johanna Gummerus, Jael Virtanen, Satu Peltomäki, Elina Kontu","doi":"10.1177/17446295241302857","DOIUrl":"https://doi.org/10.1177/17446295241302857","url":null,"abstract":"The aim of this review was to identify the type, content, and effectiveness of psychological parenting interventions for parents of children with intellectual disabilities to enhance child behavior and/or parental well-being. A systematic search yielded 21 studies involving 1825 participants. Studies were evaluated according to intervention content, pre- and post-treatment and follow-up effect sizes, and risk of bias. We categorized the interventions into those targeting 'Child or interaction' (child behavior, interaction and learning, understanding disability), and those targeting 'Parent' (parental well-being) or both themes. All these interventions had positive effects on parental well-being or child behavior. Parental outcomes were improved by interventions targeting 'Parental well-being', as well as 'Child or interaction'. Child behavior showed improvements in programs focusing on 'Child or interaction', and in a mindfulness-based parental well-being program. During follow-up, most effects were sustained or further increased, but some studies showed no improvements over the control group.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241302857"},"PeriodicalIF":1.5,"publicationDate":"2024-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142740983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Embark on the adventure! Advancing inclusive secondary education through narrative game learning for students with intellectual disabilities. 开始冒险！通过智障学生的叙事游戏学习推进全纳中学教育。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-23 DOI: 10.1177/17446295241302400

José Miguel Rodríguez-Ferrer, Ana Manzano-León, Anastasio García-Roca, Raquel Soler-Delgado

引用次数: 0

The recognition and assessment of pain in people with profound intellectual disabilities by nurses: An appreciative inquiry. 护士对深度智障人士疼痛的识别和评估：赞赏性调查。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-22 DOI: 10.1177/17446295241303192

Maeve Goodall, Kate Irving, Mary Nevin

{"title":"The recognition and assessment of pain in people with profound intellectual disabilities by nurses: An appreciative inquiry.","authors":"Maeve Goodall, Kate Irving, Mary Nevin","doi":"10.1177/17446295241303192","DOIUrl":"https://doi.org/10.1177/17446295241303192","url":null,"abstract":"Background: Individuals with profound intellectual disabilities are non-verbal and reliant on carers for pain recognition, assessment and management. Pain is a multifaceted and interconnected experience. Assessment tools designed specifically for this population are needed. This study aimed to develop methods for improved pain care practices by nurses.Methods: This qualitative study followed the four phases of appreciative; Discovery, Dream, Design, Destiny. Eight nurses were recruited as co-researchers from one Irish intellectual disability organisation. Data were analysed from individual and focus group interviews, using thematic analysis and continuous reflexivity.Results: A pain awareness campaign and RAPPID tool (recognition and assessment of pain in people with profound intellectual disabilities) were developed.Conclusion: Respect for personhood in individuals with profound intellectual disabilities is reflected through holistic approaches to pain assessment. The empowerment of nurses enables positive change. Implicit knowledge can be communicated more proficiently with a formal, collaborative tool.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241303192"},"PeriodicalIF":1.5,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142688501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Being a sibling of a child with intellectual disability from the perspective of mothers: A qualitative study. 从母亲的角度看智障儿童的兄弟姐妹：定性研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-19 DOI: 10.1177/17446295241301851

Fatma Dinç, Aylin Kurt, Emine Güneş Şan

引用次数: 0

Corrigendum to "Validity and reliability of the persian version of the world health organization quality of life disabilities module". 世界卫生组织生活质量残疾模块波斯语版本的有效性和可靠性 "的更正。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-13 DOI: 10.1177/17446295241298333

引用次数: 0

Understanding perspectives and research trends in Down syndrome neuropathogenesis: A bibliometric analysis. 了解唐氏综合征神经发病机制的观点和研究趋势：文献计量分析。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-13 DOI: 10.1177/17446295241299160

Tan Huang, Xin-Jieh Lam, Chong-Teik Lim, Norhazlin Jusoh, Sharida Fakurazi, Pike-See Cheah, King-Hwa Ling

{"title":"Understanding perspectives and research trends in Down syndrome neuropathogenesis: A bibliometric analysis.","authors":"Tan Huang, Xin-Jieh Lam, Chong-Teik Lim, Norhazlin Jusoh, Sharida Fakurazi, Pike-See Cheah, King-Hwa Ling","doi":"10.1177/17446295241299160","DOIUrl":"https://doi.org/10.1177/17446295241299160","url":null,"abstract":"Down syndrome (DS), characterised by compromised brain development and intellectual challenges, often manifests Alzheimer's disease (AD) -like symptoms. Utilising the Web of Science Core Collection (WOSCC) database from January 1, 2000, to July 31, 2023, we conducted a comprehensive bibliometric analysis using VOSviewer, CiteSpace, and the R package \"bibliometrix.\" Analyses included co-authorship, co-citation, co-occurrence, cooperative network, reference, and keyword burst citation. Analysing 5,082 papers, the U.S. demonstrated prominence with the highest number of research organisations and citations. Keyword analysis revealed promising research areas, including \"Alzheimer's disease,\" \"development,\" \"inflammation,\" and \"neurogenesis\". This 22-year survey of the brain with trisomy 21 research unveils key trends, contributors, and focal areas in DS neuropathogenesis. Notably, Alzheimer 's-related genes and proteins play a pervasive role in DS neuropathological processes across patients' lifespans. The study contributes foundational knowledge for advancing research and care in the DS neuropathogenesis domain.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241299160"},"PeriodicalIF":1.5,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effectiveness of a Multidisciplinary Expertise Team in the reduction of restrictive measures in sheltered care homes for people with an intellectual disability. 多学科专业团队在减少收容智障人士的养老院限制性措施方面的成效。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-08 DOI: 10.1177/17446295241299153

Baukje Schippers, Sien Vandesande, Maroesjka van Nieuwenhuijzen, Brenda Frederiks, Marleen de Moor, Danielle Immers, Carlo Schuengel

{"title":"Effectiveness of a Multidisciplinary Expertise Team in the reduction of restrictive measures in sheltered care homes for people with an intellectual disability.","authors":"Baukje Schippers, Sien Vandesande, Maroesjka van Nieuwenhuijzen, Brenda Frederiks, Marleen de Moor, Danielle Immers, Carlo Schuengel","doi":"10.1177/17446295241299153","DOIUrl":"https://doi.org/10.1177/17446295241299153","url":null,"abstract":"Background: Minimizing restrictive measures is an important lever to promote self-determination for people with intellectual disabilities. Aims: This study assesses the efficacy of the Multidisciplinary Expertise Team (MDET) program in reducing such measures within Dutch sheltered care homes for people with intellectual disabilities. Methods and Procedures: A clustered randomized trial encompassed 30 residential units, reporting 428 measures on 107 residents through an organization-wide registration system. Units were randomly assigned to the MDET program or care-as-usual. Outcomes and Results: Units assigned to the MDET-program reported a significant stronger reduction in restrictive measures compared to the care-as-usual units (40% versus 20%). Conclusions and Implications: The MDET program shows promise in decreasing restrictive measures by enhancing awareness and sharing expertise across disciplines at staff and resident levels.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241299153"},"PeriodicalIF":1.5,"publicationDate":"2024-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142606969","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Care and choice architecture: Relatives' support for adults with intellectual disabilities in supported decision-making processes. 护理与选择架构：亲属在辅助决策过程中对智障成人的支持。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-10-30 DOI: 10.1177/17446295241297184

Sadeta Demic, Rosemarie van den Breemer, Halvor Hanisch, Inger Marie Lid

引用次数: 0

"They helped me stand on my own two feet": Canadian parents with intellectual disabilities in child protection. "他们帮助我自力更生"：儿童保护中的加拿大智障父母。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-10-25 DOI: 10.1177/17446295241296215

Munazza Tahir, Virginie Cobigo

引用次数: 0

Assessing teachers' beliefs and practices regarding vocational rehabilitation services for individuals with intellectual disabilities. 评估教师对智障人士职业康复服务的信念和实践。