Journal of Intellectual Disabilities最新文献_第10页

Exploring the lived experiences and care challenges of formal paid caregivers for people with intellectual disability and dementia. 探索智障和痴呆症患者正式有偿护理人员的生活经历和护理挑战。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-05-30 DOI: 10.1177/17446295241259076

Daniel James Acton, Sujeet Jaydeokar, Ruth Taylor, Steven Jones

引用次数: 0

Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter? 智障儿童父母的家庭生活质量：心理压力和父母参与是否重要？

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-05-21 DOI: 10.1177/17446295241254624

Sanyin Cheng, Jiaqi Li, Qiaoqiao Li, Xuxu Li, Yan Luo

{"title":"Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter?","authors":"Sanyin Cheng, Jiaqi Li, Qiaoqiao Li, Xuxu Li, Yan Luo","doi":"10.1177/17446295241254624","DOIUrl":"https://doi.org/10.1177/17446295241254624","url":null,"abstract":"Background: The psychological stress of parents and improving family quality of life (FQoL) are continuing concerns for families of children with intellectual disability. We need to identify further ways to reduce their stress and improve their FQoL in China. Method: Examine the interrelations between psychological stress, parental involvement, and FQoL for parents with intellectual disability in mainland China. 467 parents of children with intellectual disability completed instruments measuring variables. Structural equation modelling (SEM) was employed to examine the interrelations. Results: Psychological stress, directly and indirectly, influenced parental involvement in FQoL. Physical and mental response (PMR) and risk awareness (RA) had a positive direct effect on FQoL, and optimistic hope (OH) had a negative effect on FQoL. Conclusions: Psychological stress affects FQoL of parents with children with intellectual disability in complex ways. Policies should be developed to help parents with children with disability decrease stress and develop scientific parental involvement.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241254624"},"PeriodicalIF":1.5,"publicationDate":"2024-05-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141076801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Young children with intellectual disabilities and their mathematical attainments: Do parents' attitudes toward mathematics, home numeracy, and literacy practices matter? 智障幼儿及其数学成绩：父母对数学的态度、家庭算术和识字方法重要吗？

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-05-17 DOI: 10.1177/17446295241254625

Garyfalia Charitaki, Anastasia Alevriadou

引用次数: 0

Challenges and best practices for recruiting families of children with intellectual disabilities for health research. 招募智障儿童家庭参与健康研究的挑战和最佳实践。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-05-16 DOI: 10.1177/17446295241255178

Morgan MacNeil, Britney Benoit, Timothy Disher, Aaron J Newman, Marsha Campbell-Yeo

{"title":"Challenges and best practices for recruiting families of children with intellectual disabilities for health research.","authors":"Morgan MacNeil, Britney Benoit, Timothy Disher, Aaron J Newman, Marsha Campbell-Yeo","doi":"10.1177/17446295241255178","DOIUrl":"https://doi.org/10.1177/17446295241255178","url":null,"abstract":"Research focused on children with intellectual disabilities has been of increasing interest over the last two decades. However, a considerable lag in the amount of research that is representative and generalizable to this population in comparison to neurotypical children remains, largely attributed to issues with participant engagement and recruitment. Challenges and barriers associated with engaging and recruiting this population include lack of research to provide a sound foundation of knowledge, ethical considerations, parental attitudes, family commitments, and organizational gatekeeping. Researchers can engage children and their families using participatory research methods, honouring the child's right to assent, and collaborating with parents. Recruitment strategies include partnering with organizations, working with parent and patient partners, and using remote methods. Employing evidence-informed engagement and recruitment strategies may provide substantial social and scientific value to the research field by ensuring that this underrepresented population benefits equitably from research findings.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241255178"},"PeriodicalIF":1.5,"publicationDate":"2024-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140960077","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Information needs of caregivers of adults with intellectual and/or developmental disabilities in India. 印度智障和/或发育障碍成人照顾者的信息需求。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-05-15 DOI: 10.1177/17446295241254933

Sumithra Murthy, Sarah Parker Harris, Kelly Hsieh

{"title":"Information needs of caregivers of adults with intellectual and/or developmental disabilities in India.","authors":"Sumithra Murthy, Sarah Parker Harris, Kelly Hsieh","doi":"10.1177/17446295241254933","DOIUrl":"https://doi.org/10.1177/17446295241254933","url":null,"abstract":"Many families of adults with intellectual and/or developmental disabilities in India experience difficulty in accessing services/supports, due to lack of awareness/knowledge of disability rights/laws and available services, and in accessing the services. There remains insufficient research on the information needs of these caregivers and on designing interventions that aim to increase their awareness/knowledge about human rights and supports/services. A strengths-based mixed methods needs assessment was conducted to understand the information needs of these family caregivers. Results showed that caregivers ≥50 years had significantly higher information needs than younger caregivers. Specifically, caregivers with no proficiency in English needed more information on the available services for the care recipients (n = 100). Qualitative results showed that very few caregivers had any awareness or access to information on human rights, disability-related laws/policies or available supports/services (n = 15). Study findings underscore the government's role in improving awareness-raising initiatives and imparting the information in multiple Indian languages.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241254933"},"PeriodicalIF":1.5,"publicationDate":"2024-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140946153","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A three-years follow-up of extra intensive support for individuals with intellectual disability and severe challenging behaviour in the Netherlands. 对荷兰智障者和有严重挑战行为者的额外强化支持进行为期三年的跟踪调查。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-05-09 DOI: 10.1177/17446295241252918

Linda Verhaar, Yvette M Dijkxhoorn, Leo de Sonneville, Hanna Swaab

{"title":"A three-years follow-up of extra intensive support for individuals with intellectual disability and severe challenging behaviour in the Netherlands.","authors":"Linda Verhaar, Yvette M Dijkxhoorn, Leo de Sonneville, Hanna Swaab","doi":"10.1177/17446295241252918","DOIUrl":"https://doi.org/10.1177/17446295241252918","url":null,"abstract":"Adults with Intellectual Disability who show severe challenging behaviour need intensive individual support. If intensive support proves to be insufficient, extra intensive support can be provided in the Netherlands, which is characterized by more time for individual care. The present study evaluates the impact of extra intensive support over time. Client characteristics of adults receiving intensive support (IS, N=70) or extra intensive support (IS+, N=35) are compared and the impact of provided support on challenging behaviour (Developmental Behaviour Checklist-Adults), adaptive behaviour (Vineland II), and Quality of Life (San Martin Scale) is evaluated over a three years period. Compared to adults receiving intensive support, those receiving extra intensive support initially showed higher intensity of challenging behaviour, higher number of mental health diagnoses and stronger focus on goals to reduce challenging behaviour. Over time, intensity of challenging behaviour decreased in adults receiving extra intensive support, although Quality of Life and adaptive functioning did not improve. Results show that the indications for receiving extra intensive support are clear and that the extra support is effective over time. It is concluded that extra individual support is serving those who need this support.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241252918"},"PeriodicalIF":1.5,"publicationDate":"2024-05-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140899813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A scoping review investigating the perspectives of people with mild to moderate intellectual disabilities on experiences of cyberbullying victimisation and its subtypes. 调查轻度至中度智障人士对网络欺凌受害经历及其亚型的看法的范围界定研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-05-08 DOI: 10.1177/17446295241252214

Fiona A Clements, Lisa J Orchard, Darren D Chadwick

引用次数: 0

People with intellectual disability and their risk of exposure to violence: Identification and prevention - a literature review. 智障人士及其遭受暴力的风险：识别和预防--文献综述。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-05-07 DOI: 10.1177/17446295241252472

Mikaela Starke, Anneli Larsson, Elisabeth Punzi

引用次数: 0

Home- vs gym-based exercise delivery modes of two multicomponent intensity training regimes on cardiorespiratory fitness and arterial stiffness in adults with intellectual and developmental disability during the COVID-19 pandemic - a randomized controlled trial. COVID-19大流行期间，两种多成分强度训练的家庭与健身房运动模式对智力和发育障碍成人心肺功能和动脉僵化的影响--随机对照试验。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-03-27 DOI: 10.1177/17446295241242507

Xavier Melo, Bruno Simão, Catarina Catela, Isabel Oliveira, Sara Planche, Ana Louseiro, João Luís Marôco, Guillermo R Oviedo, Bo Fernhall, Helena Santa-Clara

{"title":"Home- vs gym-based exercise delivery modes of two multicomponent intensity training regimes on cardiorespiratory fitness and arterial stiffness in adults with intellectual and developmental disability during the COVID-19 pandemic - a randomized controlled trial.","authors":"Xavier Melo, Bruno Simão, Catarina Catela, Isabel Oliveira, Sara Planche, Ana Louseiro, João Luís Marôco, Guillermo R Oviedo, Bo Fernhall, Helena Santa-Clara","doi":"10.1177/17446295241242507","DOIUrl":"https://doi.org/10.1177/17446295241242507","url":null,"abstract":"Background: We compared the effects of home- vs gym-based delivery modes of two 8-week supervised multicomponent intensity training regimes on cardiorespiratory fitness and arterial stiffness in 17 adults with intellectual and developmental disability during the COVID-19 pandemic. Methods: Participants were assigned to sprint interval training or continuous aerobic training, both incorporating resistance training. The intervention started with 8-weeks of online training (M1-M2), 1-month of detraining, plus 8-weeks of gym-based training (M3-M4). Results: Peak oxygen uptake decreased from M1-M2 and increased from M2-M4. Central arterial stiffness decreased between M1-M2, and M1-M4, along with peripheral arterial stiffness. Central systolic blood pressure decreased from M1-M2 only with sprint interval training. Conclusion: Home-based training minimized the negative impact of the lockdown on central arterial stiffness and central blood pressure, but it did not match the benefits on cardiorespiratory fitness and peripheral arterial stiffness of a gym-based intervention, irrespective of the multicomponent intensity training regime. Registered in ClinicalTrials.gov NCT05701943.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241242507"},"PeriodicalIF":1.5,"publicationDate":"2024-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140307382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"All I know is that a disabled person is someone who is crippled": Using narratives of parents to unmask the misconceptions of Mild intellectual disabilities concept as a learning support hindrance. "我只知道残疾人就是残废的人"：利用家长的叙述，揭开轻度智障概念作为学习支持障碍的误解。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-03-26 DOI: 10.1177/17446295241242573

Nancy Phyllis Makhosazane Mabaso

{"title":"\"All I know is that a disabled person is someone who is crippled\": Using narratives of parents to unmask the misconceptions of Mild intellectual disabilities concept as a learning support hindrance.","authors":"Nancy Phyllis Makhosazane Mabaso","doi":"10.1177/17446295241242573","DOIUrl":"https://doi.org/10.1177/17446295241242573","url":null,"abstract":"Background: Learning-support provision by parents is key to children's scholastic success. However, when children are diagnosed with mild intellectual disabilities and in need of additional support, learning support provision is hindered. Aim: The study sought to investigate parents' experiences when providing learning support to children diagnosed with Mild intellectual disabilities. Setting: Using a phenomenological design and an interpretive paradigm, anchored in a qualitative research approach, data were gathered from parents whose children were diagnosed with Mild intellectual disabilities across three inclusive schools from disadvantaged backgrounds in the Gauteng province, in South Africa. Methods: Twenty-three (23) parents were purposefully selected to participate in the study by sharing their lived experiences. Data was collected using semi-structured interviews and thematic content data analysis methods. Bronfenbrenner's bio-ecological systems theory underpinned the study. Results: The findings revealed that the parents' misconception of the mild intellectual disability concept is one of the learning support hindrances. Conclusion: Parental empowerment through psycho-education was highlighted as a need for policy and practice adaptation.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241242573"},"PeriodicalIF":1.5,"publicationDate":"2024-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140289257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0