Journal of Intellectual Disabilities最新文献_第10页

Mortality patterns in a Danish nationwide cohort of persons with intellectual disabilities. 丹麦全国智障人士队列中的死亡率模式。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-02-01 DOI: 10.1177/17446295231154102

Lau Caspar Thygesen, Tina Harmer Lassen, Trine Allerslev Horsbøl, Isabelle Pascale Mairey, Knud Juel, Christina Engel Hoei-Hansen, Susan Ishøy Michelsen

{"title":"Mortality patterns in a Danish nationwide cohort of persons with intellectual disabilities.","authors":"Lau Caspar Thygesen, Tina Harmer Lassen, Trine Allerslev Horsbøl, Isabelle Pascale Mairey, Knud Juel, Christina Engel Hoei-Hansen, Susan Ishøy Michelsen","doi":"10.1177/17446295231154102","DOIUrl":"10.1177/17446295231154102","url":null,"abstract":"Mortality disparities among persons with intellectual disability are important to guide health-care practices. The objective was to evaluate mortality patterns of persons with intellectual disability in a nationwide study from 1976 to 2020. This study establishes a Danish nationwide cohort of persons with intellectual disability and age- and sex-matched reference cohort through linkage between several registers. We established a cohort of 79,114 persons with intellectual disability. Standardized mortality ratios were increased for persons with intellectual disability, most pronounced among younger persons and among females. Life expectancies were markedly lower; among persons with intellectual disability 63.6 years among females and 59.8 years among males in 2016-2020 compared to 82.4 and 78.7 years among females and males in the reference cohort. Life expectancies decreased with severity of intellectual disability. This study reports the establishment of a nationwide Danish cohort of persons with intellectual disability.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"359-371"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10597973","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The impact of individuals with profound intellectual and multiple disabilities on peer relationships of typically developing siblings. 深度智障和多重残疾人士对发育正常的兄弟姐妹的同伴关系的影响。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-27 DOI: 10.1177/17446295231168184

Jakub Niedbalski

引用次数: 0

Fostering resilience in young people with intellectual disabilities using a 'settings' approach. 采用 "设置 "方法培养智障青少年的抗逆能力。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-28 DOI: 10.1177/17446295231168186

Sandy Whitelaw, Anthony Bell, Ailsa Mackay, Heather Hall

{"title":"Fostering resilience in young people with intellectual disabilities using a 'settings' approach.","authors":"Sandy Whitelaw, Anthony Bell, Ailsa Mackay, Heather Hall","doi":"10.1177/17446295231168186","DOIUrl":"10.1177/17446295231168186","url":null,"abstract":"The need to foster resilience amongst young people with intellectual disabilities is increasingly recognised within policy. Critically, understanding of the actual means by which this aspiration might be most sensitively and effectively met is considered weak. This paper reports on an exploratory case-study of a social enterprise community café - The Usual Place - that through the promotion of employability, seeks to promote resilience amongst its young 'trainees' with intellectual disabilities. Two research questions were set: \"how is 'resilience' conceptualized within the organisation\" and \"what features within the organisation are significant in fostering resilience\"? We identify a range of significant features associated with being able to successfully foster resilience - the need for a foundational 'whole organisation'(settings) approach based on high levels of participation and choice; the negotiation of a constructive dynamic tension between 'support' and 'exposure'; and the embedding of these actions in embodied actions and day-to-day organisational activities.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"549-566"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11059839/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9253277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"The change was as big as night and day": Experiences of professors teaching students with intellectual disabilities. "变化之大，如日夜交替"：教授教授智障学生的经历。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-01-11 DOI: 10.1177/17446295221148791

Gavin W Watts, Eric J López, Mariya T Davis

{"title":"\"The change was as big as night and day\": Experiences of professors teaching students with intellectual disabilities.","authors":"Gavin W Watts, Eric J López, Mariya T Davis","doi":"10.1177/17446295221148791","DOIUrl":"10.1177/17446295221148791","url":null,"abstract":"Since the inception of the Higher Education Opportunity Act in 2008, there has been an increase in the number of post-secondary education institutions in the United States that have established inclusive postsecondary programs for individuals with intellectual disabilities to attend college and achieve higher levels of employment. Previous studies have investigated the development and outcomes of these programs, however, less has been explored related to professors' experiences and perceptions regarding this unique student population, particularly within Hispanic Serving Institutions (HSI). The current study focused on professors teaching inclusive courses within a new Comprehensive Transition and Postsecondary Program at a HSI and aimed to identify their perceptions and experiences related to instructing students with intellectual disabilities. Six professors participated in pre- and post-semester in-depth interviews. Findings from applied thematic analysis included: (a) barriers to success; (b) academic supports and strategies; (c) successful outcomes and (d) considerations for future, related programming.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"295-314"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10520742","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Bias in assessment of co-occurring mental disorder in individuals with intellectual disabilities: Theoretical perspectives and implications for clinical practice. 智障人士并发精神障碍评估中的偏差：理论视角及对临床实践的影响。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-01-28 DOI: 10.1177/17446295231154119

Arvid Nikolai Kildahl, Hanne Weie Oddli, Sissel Berge Helverschou

{"title":"Bias in assessment of co-occurring mental disorder in individuals with intellectual disabilities: Theoretical perspectives and implications for clinical practice.","authors":"Arvid Nikolai Kildahl, Hanne Weie Oddli, Sissel Berge Helverschou","doi":"10.1177/17446295231154119","DOIUrl":"10.1177/17446295231154119","url":null,"abstract":"Influence from bias is unavoidable in clinical decision-making, and mental health assessment seems particularly vulnerable. Individuals with intellectual disabilities have increased risk of developing co-occurring mental disorder. Due to the inherent difficulties associated with intellectual disabilities, assessment of mental health in this population often relies on a different set of strategies, and it is unclear how these may affect risk of bias. In this theoretical paper, we apply recent conceptualisations of bias in clinical decision-making to the specific challenges and strategies in mental health assessment in intellectual disabilities. We suggest that clinical decision-making in these assessments is particularly vulnerable to bias, including sources of bias present in mental health assessment in the general population, as well as potential sources of bias which may be specific to assessments in this population. It follows that to manage potential bias, triangulating information from multi-informant, multi-method, interdisciplinary assessment strategies is likely to be necessary.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"393-414"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11059834/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10845929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effects of UPGRADE your performance on employment soft skills of students with intellectual and developmental disabilities: A pilot study of generalization. UPGRADE your performance 对智力和发育障碍学生就业软技能的影响：普及试点研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-14 DOI: 10.1177/17446295231163263

Kelly A Clark, Moira Konrad, David W Test

引用次数: 0

Health challenges in South Dakota: Creation of healthcare provider referral list for Special Olympic athletes. 南达科他州的健康挑战：为特奥会运动员创建医疗服务提供者转介名单。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-21 DOI: 10.1177/17446295231163921

Patrick T Wilson, Marni Johnson Martin

引用次数: 0

Service models for providing sex education to individuals with intellectual disabilities in the United States. 美国为智障人士提供性教育的服务模式。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-16 DOI: 10.1177/17446295231164662

Sarah L Curtiss, Melissa Stoffers

{"title":"Service models for providing sex education to individuals with intellectual disabilities in the United States.","authors":"Sarah L Curtiss, Melissa Stoffers","doi":"10.1177/17446295231164662","DOIUrl":"10.1177/17446295231164662","url":null,"abstract":"Individuals with intellectual and developmental disabilities face barriers to accessing sex education, including a lack of professional ownership over providing sex education. Limited information exists regarding educator training background, funding structure, and who they serve. We interviewed 58 sex educators of individuals with intellectual and developmental disabilities. We integrated thematic analysis and composite narratives to identify service models and the benefits and challenges associated with them. We identified seven service delivery models: clinic-based board-certified behavior analysis; mental health therapists; small businesses; public health not-for-profits; disability programs; high school-based educators; and university-based educators; and three themes that addressed the strengths and challenges of these service models: Instructional Implications of the Short-term, Drop-in Approach; Getting on the Same Page; and Questioning Who Should Teach Sex Education. Understanding these typologies and their strengths and challenges provide insights into how we can build capacity for sex education services.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"434-452"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9122567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development of early numeracy skills in children with moderate intellectual disability. 中度智障儿童早期计算能力的发展。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2024-01-21 DOI: 10.1177/17446295241228897

Ozlem Altindag Kumas, Adile Emel Sardohan Yıldırım

引用次数: 0

The social, psychological, and physical impact of COVID-19 restrictions for institutionalized adults with intellectual and developmental disabilities. 限制 COVID-19 对机构中的成年智力和发育障碍者的社会、心理和身体影响。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-31 DOI: 10.1177/17446295231168293

F Bösebeck, H Worthmann, C Möller, C Konrad

{"title":"The social, psychological, and physical impact of COVID-19 restrictions for institutionalized adults with intellectual and developmental disabilities.","authors":"F Bösebeck, H Worthmann, C Möller, C Konrad","doi":"10.1177/17446295231168293","DOIUrl":"10.1177/17446295231168293","url":null,"abstract":"During the COVID-19 pandemic, drastic measures to interrupt SARS-CoV-2 infection chains were implemented. In our study we investigated the consequences of pandemic related restrictions on the social, psychological, and physical well-being of institutionalized adults with intellectual and developmental disabilities. Methods: Online survey among professional caregivers in 71 residential groups, caring for 848 residents. Findings: (i.) A lack of participation concerning infection protection measures of the residents, their relatives, and their caregivers; (ii.) A 20% increase in doctor contacts during the pandemic; (iii.) A considerable deterioration in at least one item of the subdomains mood (49%), everyday skills (51%), social interaction (29%), exercise and coordination skills (12%), behavior (11%) and cognition and communication (7%); (iv.) A deterioration of the overall condition in 41%; Summery: Intensive attempts should be made to find individual and less categorical contra-infectious measures without questioning the basic everyday needs of people with intellectual and developmental disabilities.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"567-577"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10067708/pdf/10.1177_17446295231168293.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9611545","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0