Journal of Intellectual Disabilities最新文献_第10页

"All I know is that a disabled person is someone who is crippled": Using narratives of parents to unmask the misconceptions of mild intellectual disabilities concept as a learning support hindrance. "我只知道残疾人就是残废的人"：利用家长的叙述，揭开轻度智障概念作为学习支持障碍的误解。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-03-26 DOI: 10.1177/17446295241242573

Nancy Phyllis Makhosazane Mabaso

{"title":"\"All I know is that a disabled person is someone who is crippled\": Using narratives of parents to unmask the misconceptions of mild intellectual disabilities concept as a learning support hindrance.","authors":"Nancy Phyllis Makhosazane Mabaso","doi":"10.1177/17446295241242573","DOIUrl":"10.1177/17446295241242573","url":null,"abstract":"Parental involvement in providing learning support plays a crucial role in children's academic achievement. However, this support is often constrained when children are diagnosed with mild intellectual disabilities and require additional assistance. This study aimed to explore the experiences of parents in supporting children with such diagnoses. Adopting a phenomenological design within an interpretive paradigm and qualitative approach, data were collected from 23 purposefully selected parents of learners with mild intellectual disabilities attending three inclusive schools in disadvantaged areas of Gauteng, South Africa. Semi-structured interviews were used, and the data were analyzed through thematic content analysis, with Bronfenbrenner's bio-ecological systems theory serving as the framework. The results indicated that parents' misunderstanding of mild intellectual disability posed a significant barrier to effective learning support. The study concluded that empowering parents through psycho-education is essential, highlighting the need for adjustments in policy and practice.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"555-573"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397532/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140289257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences and perceptions of everyday decision-making in the lives of adults with intellectual disabilities, their care partners and direct care support workers. 智力残疾成人、其护理伙伴和直接护理支持工作者日常生活决策的经验和看法。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2023-07-12 DOI: 10.1177/17446295231189020

Hannah Casey, Áine Trayer, Deirdre Desmond, Laura Coffey

{"title":"Experiences and perceptions of everyday decision-making in the lives of adults with intellectual disabilities, their care partners and direct care support workers.","authors":"Hannah Casey, Áine Trayer, Deirdre Desmond, Laura Coffey","doi":"10.1177/17446295231189020","DOIUrl":"10.1177/17446295231189020","url":null,"abstract":"Decisional support is important to people with intellectual disabilities. This review explores: i) how everyday decision-making is perceived and/or experienced by adults with intellectual disability, their care partners and direct care support workers (DCSWs); ii) techniques/ approaches used to support everyday decision-making; and iii) barriers/facilitators encountered. PRISMA systematic review methodology using PsycInfo, PubMED, Web of Science, CINAHL and Scopus. Eighty-one papers were included [qualitative (n = 69), quantitative (n = 7), mixed methods (n = 5)] was used. Adults with intellectual disability reported wanting to makedecisions and needing support. Care partner support was affected by concerns about safety and decisional capacity. DCSWs reported difficulty balancing client decisions and care partner concerns when providing support. Supported Decision-Making (SDM) was identified as a key method of support. Barriers and facilitators were interconnected and impacted by stressors. This topic is under-researched and ill-defined. Supported decision-making is an increasingly popular approach whose application requires further exploration.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"683-705"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397535/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9767574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Trauma-informed counseling for individuals who have an intellectual developmental disorder: Considerations for mental health counselors. 为智力发育障碍患者提供创伤知情咨询：心理健康顾问的注意事项。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-09-03 DOI: 10.1177/17446295241278477

Christine A McAllister, Meredith A Rausch, Victoria E Kress

{"title":"Trauma-informed counseling for individuals who have an intellectual developmental disorder: Considerations for mental health counselors.","authors":"Christine A McAllister, Meredith A Rausch, Victoria E Kress","doi":"10.1177/17446295241278477","DOIUrl":"10.1177/17446295241278477","url":null,"abstract":"Individuals with an intellectual developmental disorder are four times more likely to have a co-occurring mental health diagnosis, as compared to the general population, and 60%-80% of individuals with IDDs have experienced at least one form of abuse. However, counselors receive little training to adequately help this population. In this article, counseling considerations related to individuals who have intellectual development disorder are discussed, with a particular focus on the presence of trauma in this population. Trauma-focused treatment, potential mental health issues, counseling considerations, general issues related to counseling this population, and common associated mental health experiences among this population are addressed. Specific evidence-based counseling approaches, modifications to counseling, and best practices that can be helpful when counseling this population are presented. Due to the unique challenges that individuals with IDDs face, it is essential that counselors address the counseling and mental health needs of this population.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"798-813"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142126979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A scoping review investigating the perspectives of people with mild to moderate intellectual disabilities on experiences of cyberbullying victimisation and its subtypes. 调查轻度至中度智障人士对网络欺凌受害经历及其亚型的看法的范围界定研究。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-05-08 DOI: 10.1177/17446295241252214

Fiona A Clements, Lisa J Orchard, Darren D Chadwick

引用次数: 0

Care and choice architecture: Relatives' support for adults with intellectual disabilities in supported decision-making processes. 护理与选择架构：亲属在辅助决策过程中对智障成人的支持。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-10-30 DOI: 10.1177/17446295241297184

Sadeta Demic, Rosemarie van den Breemer, Halvor Hanisch, Inger Marie Lid

{"title":"Care and choice architecture: Relatives' support for adults with intellectual disabilities in supported decision-making processes.","authors":"Sadeta Demic, Rosemarie van den Breemer, Halvor Hanisch, Inger Marie Lid","doi":"10.1177/17446295241297184","DOIUrl":"10.1177/17446295241297184","url":null,"abstract":"The UN Convention on the Rights of Persons with Disabilities (CRPD) describes supported decision making as a fundamental human right. This study explores relatives' experiences, dilemmas, as well as key factors in supported decision-making processes with adults with intellectual disabilities living in municipal housing. The study draws on qualitative, in-depth interviews with relatives. Findings suggest that we can learn about supported decision making by using choice architecture and care theories, demonstrating that: (a) supported decision-making sometimes requires careful facilitation with a focus on the person's preferences/perspective; this careful facilitation can be understood in terms of choice architecture, (b) choice architecture in the context of intellectual disability requires an intentionality of care and a focus on the person's preferences/perspective, (c) relatives are concerned, not only with support in the moment, but also the effect of the decision in the long term, and (d) relatives' care is a significant factor in meeting choice architecture in systemic conditions.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"651-666"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397556/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors affecting the feelings of safety among individuals with mild intellectual disabilities and severe challenging behaviour in residential care: A qualitative study of professional and service users' perspectives. 影响住宿护理中轻度智障者和有严重挑战行为者安全感的因素：对专业人员和服务使用者观点的定性研究。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-06-18 DOI: 10.1177/17446295241246569

Suzanne Lokman, Roland Bal, Robert Didden, Petri Jcm Embregts

{"title":"Factors affecting the feelings of safety among individuals with mild intellectual disabilities and severe challenging behaviour in residential care: A qualitative study of professional and service users' perspectives.","authors":"Suzanne Lokman, Roland Bal, Robert Didden, Petri Jcm Embregts","doi":"10.1177/17446295241246569","DOIUrl":"10.1177/17446295241246569","url":null,"abstract":"This qualitative study focuses on what feeling safe means for people with mild intellectual disabilities and severe challenging behaviour, and which factors affect their sense of safety. Thematic analysis was used to analyse data collected during (1) ethnographic longitudinal research and (2) interviews and focus groups among professionals and service users. Feelings of safety were related to three main themes: (1) a physical environment that reduces risks and temptations; (2) a reliable, predictable, and supportive environment; and (3) an accepting environment that enables service users to establish a normal life. An analysis of which factors affect service users' sense of safety identified 20 themes (e.g. team climate) and 34 subthemes (e.g. interactions with other service users). Many of these factors were interconnected. Future research should explore what residential service organisations for people with intellectual disabilities and external actors (e.g. the police) can do to promote service users' feelings of safety.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"607-628"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397534/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141421387","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base. 将智力和其他认知障碍人士纳入研究和评估团队：对经验知识库的范围审查。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2023-07-18 DOI: 10.1177/17446295231189912

Golnaz Ghaderi, Peter Milley, Rosemary Lysaght, Virginie Cobigo

{"title":"Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base.","authors":"Golnaz Ghaderi, Peter Milley, Rosemary Lysaght, Virginie Cobigo","doi":"10.1177/17446295231189912","DOIUrl":"10.1177/17446295231189912","url":null,"abstract":"We conducted a rapid scoping review of empirical studies to identify how persons with intellectual and other cognitive disabilities have been engaged as active members of research and evaluation teams. We conducted a literature search using a systematic method that accessed peer reviewed studies in relevant library databases and all major evaluation journals. The search resulted in 6,624 potential articles, of which 32 met the inclusion criteria for this study. The findings address three categories of interest: 1) methodological underpinnings and practical justifications for using inclusive approaches, 2) different inclusion processes, and 3) reflections by researchers with and without intellectual and other cognitive disabilities. Findings provide conceptual and practical insights for researchers and evaluators when designing inclusive methods involving persons with intellectual and other cognitive disabilities. Gaps in inclusive research and evaluation are discussed and suggestions for future research are proposed.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"706-726"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397518/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9860800","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Interplay between representations, practices, and stigma variables towards people with intellectual disabilities among healthcare professionals: A cross-sectional study. 医护人员对智障人士的表述、做法和成见变量之间的相互作用：一项横断面研究。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-06-06 DOI: 10.1177/17446295241259913

Laurie Lucassen, Romina Rinaldi, Elise Batsele

{"title":"Interplay between representations, practices, and stigma variables towards people with intellectual disabilities among healthcare professionals: A cross-sectional study.","authors":"Laurie Lucassen, Romina Rinaldi, Elise Batsele","doi":"10.1177/17446295241259913","DOIUrl":"10.1177/17446295241259913","url":null,"abstract":"Disparities in healthcare are observed among people with intellectual disabilities. They generally face stigmatisation and negative attitudes from healthcare professionals. The aim of this study is to investigate the link of diagnostic label and social distance on inclusive health representations and practices towards people with intellectual disabilities among healthcare professionals. We conducted an online survey of 163 healthcare professionals living in French-speaking Belgium. The results highlighted that the diagnostic label and a lower social distance predict better representations and practices in inclusive health. In addition, an analysis of mediation showed the mediating effect of social distance on the link between being in contact with people with intellectual disabilities (through employment) and better representations and practices in inclusive health. This study enabled us to assess the interplay between stigma variables and healthcare professionals' representations and practices towards people with intellectual disabilities and to identify potential facilitators for promoting health equity.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"574-589"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141262175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Photographic visualization of stories: documenting the experiences of people with intellectual disabilities with guided photovoice. 故事的摄影可视化：通过有指导的摄影荐言记录智障人士的经历。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-01-23 DOI: 10.1177/17446295241229002

Femke Scheffers, Xavier Moonen, Eveline van Vugt

{"title":"Photographic visualization of stories: documenting the experiences of people with intellectual disabilities with guided photovoice.","authors":"Femke Scheffers, Xavier Moonen, Eveline van Vugt","doi":"10.1177/17446295241229002","DOIUrl":"10.1177/17446295241229002","url":null,"abstract":"People with intellectual disabilities are often excluded from participation in research, whilst research has the potential to enhance positive change in their lives. In the current study, using a guided photovoice procedure, the experiences of people with intellectual disabilities regarding participation in research are evaluated. A total of 14 participants with intellectual disabilities were interviewed using guided photovoice. Through thematical analyses the experiences of people with intellectual disabilities regarding photovoice are discussed. Benefits were taking time, visual cues and the opportunity to speak out. Challenges were abstract concepts and aftercare. Guided photovoice helps to better understand the perspective of people with intellectual disabilities and thus can help to improve their quality of life. People with intellectual disabilities were interested in taking part in the current research project and experienced participating as a positive experience. However careful planning and expertise in communication with people with intellectual disabilities is necessary to include people with intellectual disabilities in research.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"539-554"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397533/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139542504","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The role of people with intellectual disability in intellectual disability research: A systematic review of Delphi studies. 智障人士在智障研究中的作用：德尔菲研究系统回顾。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2023-12-27 DOI: 10.1177/17446295231225272

Diana K Piantedosi, Amie O'Shea

{"title":"The role of people with intellectual disability in intellectual disability research: A systematic review of Delphi studies.","authors":"Diana K Piantedosi, Amie O'Shea","doi":"10.1177/17446295231225272","DOIUrl":"10.1177/17446295231225272","url":null,"abstract":"The design of intellectual disability research warrants critical examination, as the knowledge produced through these approaches informs evidence-based practices. People with lived experience should be recognised as experts in understanding their own bodies, conditions, and treatment. This systematic review examined the design of Delphi studies to assess the extent to which people with intellectual disability are included as experts. The Delphi method, which gathers structured feedback from experts, offers insight into how lived experience is valued as a source of knowledge. Across fifty-five publications reporting on forty-nine separate Delphi studies that met our inclusion criteria, only nine involved people with intellectual disability directly. In contrast, family and informal caregivers were more frequently represented as experts, and their perspectives carried greater influence. The findings of this review include guidance for practitioners and researchers to facilitate greater participatory roles of people with intellectual disability.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"727-742"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397557/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139049533","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0