Journal of Intellectual Disabilities最新文献

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Fostering resilience in young people with intellectual disabilities using a 'settings' approach. 采用 "设置 "方法培养智障青少年的抗逆能力。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-28 DOI: 10.1177/17446295231168186
Sandy Whitelaw, Anthony Bell, Ailsa Mackay, Heather Hall
{"title":"Fostering resilience in young people with intellectual disabilities using a 'settings' approach.","authors":"Sandy Whitelaw, Anthony Bell, Ailsa Mackay, Heather Hall","doi":"10.1177/17446295231168186","DOIUrl":"10.1177/17446295231168186","url":null,"abstract":"<p><p>The need to foster resilience amongst young people with intellectual disabilities is increasingly recognised within policy. Critically, understanding of the actual means by which this aspiration might be most sensitively and effectively met is considered weak. This paper reports on an exploratory case-study of a social enterprise community café - <i>The Usual Place</i> - that through the promotion of employability, seeks to promote resilience amongst its young 'trainees' with intellectual disabilities. Two research questions were set: \"<i>how is 'resilience' conceptualized within the organisation</i>\" and \"<i>what features within the organisation are significant in fostering resilience\"?</i> We identify a range of significant features associated with being able to successfully foster resilience - the need for a foundational 'whole organisation'(settings) approach based on high levels of participation and choice; the negotiation of a constructive dynamic tension between 'support' and 'exposure'; and the embedding of these actions in embodied actions and day-to-day organisational activities.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"549-566"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11059839/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9253277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"The change was as big as night and day": Experiences of professors teaching students with intellectual disabilities. "变化之大,如日夜交替":教授教授智障学生的经历。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-01-11 DOI: 10.1177/17446295221148791
Gavin W Watts, Eric J López, Mariya T Davis
{"title":"<i>\"The change was as big as night and day\"</i>: Experiences of professors teaching students with intellectual disabilities.","authors":"Gavin W Watts, Eric J López, Mariya T Davis","doi":"10.1177/17446295221148791","DOIUrl":"10.1177/17446295221148791","url":null,"abstract":"<p><p>Since the inception of the Higher Education Opportunity Act in 2008, there has been an increase in the number of post-secondary education institutions in the United States that have established inclusive postsecondary programs for individuals with intellectual disabilities to attend college and achieve higher levels of employment. Previous studies have investigated the development and outcomes of these programs, however, less has been explored related to professors' experiences and perceptions regarding this unique student population, particularly within Hispanic Serving Institutions (HSI). The current study focused on professors teaching inclusive courses within a new Comprehensive Transition and Postsecondary Program at a HSI and aimed to identify their perceptions and experiences related to instructing students with intellectual disabilities. Six professors participated in pre- and post-semester in-depth interviews. Findings from applied thematic analysis included: (a) barriers to success; (b) academic supports and strategies; (c) successful outcomes and (d) considerations for future, related programming.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"295-314"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10520742","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Bias in assessment of co-occurring mental disorder in individuals with intellectual disabilities: Theoretical perspectives and implications for clinical practice. 智障人士并发精神障碍评估中的偏差:理论视角及对临床实践的影响。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-01-28 DOI: 10.1177/17446295231154119
Arvid Nikolai Kildahl, Hanne Weie Oddli, Sissel Berge Helverschou
{"title":"Bias in assessment of co-occurring mental disorder in individuals with intellectual disabilities: Theoretical perspectives and implications for clinical practice.","authors":"Arvid Nikolai Kildahl, Hanne Weie Oddli, Sissel Berge Helverschou","doi":"10.1177/17446295231154119","DOIUrl":"10.1177/17446295231154119","url":null,"abstract":"<p><p>Influence from bias is unavoidable in clinical decision-making, and mental health assessment seems particularly vulnerable. Individuals with intellectual disabilities have increased risk of developing co-occurring mental disorder. Due to the inherent difficulties associated with intellectual disabilities, assessment of mental health in this population often relies on a different set of strategies, and it is unclear how these may affect risk of bias. In this theoretical paper, we apply recent conceptualisations of bias in clinical decision-making to the specific challenges and strategies in mental health assessment in intellectual disabilities. We suggest that clinical decision-making in these assessments is particularly vulnerable to bias, including sources of bias present in mental health assessment in the general population, as well as potential sources of bias which may be specific to assessments in this population. It follows that to manage potential bias, triangulating information from multi-informant, multi-method, interdisciplinary assessment strategies is likely to be necessary.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"393-414"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11059834/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10845929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effects of UPGRADE your performance on employment soft skills of students with intellectual and developmental disabilities: A pilot study of generalization. UPGRADE your performance 对智力和发育障碍学生就业软技能的影响:普及试点研究。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-14 DOI: 10.1177/17446295231163263
Kelly A Clark, Moira Konrad, David W Test
{"title":"The effects of UPGRADE your performance on employment soft skills of students with intellectual and developmental disabilities: A pilot study of generalization.","authors":"Kelly A Clark, Moira Konrad, David W Test","doi":"10.1177/17446295231163263","DOIUrl":"10.1177/17446295231163263","url":null,"abstract":"<p><p>Previous research has identified <i>UPGRADE Your Performance</i> as a method for teaching employment soft skills to students with disabilities. <i>UPGRADE Your Performance</i> instruction is a multicomponent intervention including self-evaluation, self-graphing, goal setting, and technology-aided instruction. This pilot study investigated the generalized effects of <i>UPGRADE Your Performance</i> on soft skills of secondary students with intellectual and other developmental disabilities participating in an 18-21 transition program located on a university campus. Results indicated that when students improved in two targeted soft skill areas, generalization occurred to three non-targeted soft skill areas. Implications for practice and suggestions for future research are included.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"478-498"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9465818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health challenges in South Dakota: Creation of healthcare provider referral list for Special Olympic athletes. 南达科他州的健康挑战:为特奥会运动员创建医疗服务提供者转介名单。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-21 DOI: 10.1177/17446295231163921
Patrick T Wilson, Marni Johnson Martin
{"title":"Health challenges in South Dakota: Creation of healthcare provider referral list for Special Olympic athletes.","authors":"Patrick T Wilson, Marni Johnson Martin","doi":"10.1177/17446295231163921","DOIUrl":"10.1177/17446295231163921","url":null,"abstract":"<p><p>Special Olympics promotes the health of their athletes year-round and offers their athletes options to obtain free health screenings. Following screening events, athletes often have difficulties finding needed referral care. Obstacles to finding a healthcare provider (HCP) for a referral is what necessitates the need for a state-wide HCP referral list in South Dakota. Creation of a HCP referral list was done via an online two-part survey and sent to HCPs throughout the state of South Dakota. Currently, this is the only database of healthcare providers that is accessible to individuals with intellectual and developmental disabilities (IDD) that are members of Special Olympics South Dakota (SOSD). While the created referral list offers increased opportunities to access HCPs in South Dakota, there are still limits to ensuring easy access to HCPs throughout the entire state.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"415-433"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9156078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Service models for providing sex education to individuals with intellectual disabilities in the United States. 美国为智障人士提供性教育的服务模式。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-16 DOI: 10.1177/17446295231164662
Sarah L Curtiss, Melissa Stoffers
{"title":"Service models for providing sex education to individuals with intellectual disabilities in the United States.","authors":"Sarah L Curtiss, Melissa Stoffers","doi":"10.1177/17446295231164662","DOIUrl":"10.1177/17446295231164662","url":null,"abstract":"<p><p>Individuals with intellectual and developmental disabilities face barriers to accessing sex education, including a lack of professional ownership over providing sex education. Limited information exists regarding educator training background, funding structure, and who they serve. We interviewed 58 sex educators of individuals with intellectual and developmental disabilities. We integrated thematic analysis and composite narratives to identify service models and the benefits and challenges associated with them. We identified seven service delivery models: clinic-based board-certified behavior analysis; mental health therapists; small businesses; public health not-for-profits; disability programs; high school-based educators; and university-based educators; and three themes that addressed the strengths and challenges of these service models: Instructional Implications of the Short-term, Drop-in Approach; Getting on the Same Page; and Questioning Who Should Teach Sex Education. Understanding these typologies and their strengths and challenges provide insights into how we can build capacity for sex education services.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"434-452"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9122567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development of early numeracy skills in children with moderate intellectual disability. 中度智障儿童早期计算能力的发展。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2024-01-21 DOI: 10.1177/17446295241228897
Ozlem Altindag Kumas, Adile Emel Sardohan Yıldırım
{"title":"Development of early numeracy skills in children with moderate intellectual disability.","authors":"Ozlem Altindag Kumas, Adile Emel Sardohan Yıldırım","doi":"10.1177/17446295241228897","DOIUrl":"10.1177/17446295241228897","url":null,"abstract":"<p><p>This study assessed the effectiveness of a program aimed at improving the early numeracy skills of students with moderate intellectual disability. The persistence of the acquired skills and the program's impact on learning were monitored. Feedback from the students and their mothers was also gathered. Using a multiple-probe design across subjects, the results were visually presented through graphical analysis. Three male students aged 8-9 years participated. After obtaining high-reliability findings from reliability analyses, results showed the program effectively increased students' number skills with a high effect size. These skills persisted post-intervention, and both students and mothers expressed positive views of the intervention.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"343-358"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513871","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The social, psychological, and physical impact of COVID-19 restrictions for institutionalized adults with intellectual and developmental disabilities. 限制 COVID-19 对机构中的成年智力和发育障碍者的社会、心理和身体影响。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-31 DOI: 10.1177/17446295231168293
F Bösebeck, H Worthmann, C Möller, C Konrad
{"title":"The social, psychological, and physical impact of COVID-19 restrictions for institutionalized adults with intellectual and developmental disabilities.","authors":"F Bösebeck, H Worthmann, C Möller, C Konrad","doi":"10.1177/17446295231168293","DOIUrl":"10.1177/17446295231168293","url":null,"abstract":"<p><p>During the COVID-19 pandemic, drastic measures to interrupt SARS-CoV-2 infection chains were implemented. In our study we investigated the consequences of pandemic related restrictions on the social, psychological, and physical well-being of institutionalized adults with intellectual and developmental disabilities. <b>Methods:</b> Online survey among professional caregivers in 71 residential groups, caring for 848 residents. <b>Findings:</b> (i.) A lack of participation concerning infection protection measures of the residents, their relatives, and their caregivers; (ii.) A 20% increase in doctor contacts during the pandemic; (iii.) A considerable deterioration in at least one item of the subdomains mood (49%), everyday skills (51%), social interaction (29%), exercise and coordination skills (12%), behavior (11%) and cognition and communication (7%); (iv.) A deterioration of the overall condition in 41%; <b>Summery:</b> Intensive attempts should be made to find individual and less categorical contra-infectious measures without questioning the basic everyday needs of people with intellectual and developmental disabilities.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"567-577"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10067708/pdf/10.1177_17446295231168293.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9611545","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Does Employment Complexity Promote Healthy Cognitive Aging in Down Syndrome? 就业复杂性是否促进唐氏综合症患者的健康认知衰老?
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-04-11 DOI: 10.1177/17446295231169379
Brianna Piro-Gambetti, Emily K Schworer, Benjamin Handen, Masha Glukhovskaya, Sigan L Hartley
{"title":"Does Employment Complexity Promote Healthy Cognitive Aging in Down Syndrome?","authors":"Brianna Piro-Gambetti, Emily K Schworer, Benjamin Handen, Masha Glukhovskaya, Sigan L Hartley","doi":"10.1177/17446295231169379","DOIUrl":"10.1177/17446295231169379","url":null,"abstract":"<p><p>Adults with Down syndrome (DS) experience high risk for Alzheimer's disease (AD), but there is variability in the timing of transition from a cognitively stable state to prodromal AD and dementia. The present study examined the association between a modifiable lifestyle factor, employment complexity, and cognitive decline across two time points in adults with DS. Employment complexity, defined as the degree of problem-solving or critical thinking required for employment activities, was operationalized using the Dictionary of Occupational Titles, a system which classifies occupations based on three categories: <i>Data, People, and Things</i>. Eighty-seven adults with DS (M = 36.28 years, SD = 6.90 years) were included in analyses. Partial correlations revealed that lower employment complexity involving <i>People</i> and <i>Things</i> were associated with increased dementia symptoms. Lower employment complexity involving <i>Things</i> was also associated with memory decline. These findings have implications for vocational programs focused on job training and placement for adults with DS.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"499-513"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10564966/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9669935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effect of Transition to Adulthood Training Program for mothers of young adults with intellectual disability on family quality of life and perceived stress level: A pilot randomized controlled study. 针对智障青少年母亲的成年过渡培训计划对家庭生活质量和感知压力水平的影响:随机对照试验研究。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-05-31 DOI: 10.1177/17446295241259100
Eyşan Hanzade Savaş, Ayfer Aydin, İpek Bertan
{"title":"The effect of Transition to Adulthood Training Program for mothers of young adults with intellectual disability on family quality of life and perceived stress level: A pilot randomized controlled study.","authors":"Eyşan Hanzade Savaş, Ayfer Aydin, İpek Bertan","doi":"10.1177/17446295241259100","DOIUrl":"https://doi.org/10.1177/17446295241259100","url":null,"abstract":"<p><p>Families cannot easily identify and cope with the changing health problems and needs of children transitioning into adulthood. This pilot randomized controlled study aims to improve the family's quality of life and reduce mothers' perceived stress levels by implementing an educational program (Transition to Adulthood Training Program - TATP). A total of 33 mothers of children with intellectual disabilities were randomly assigned to the groups. Data were collected using the Personal Information Form, Beach Center Family Quality of Life (BCFQOL), and Perceived Stress Scale. The intervention group showed a significant increase in the BCFQOL mean score rather than the control group (p<.001). There was a significant decrease in the perceived stress scores of the mothers in the intervention group after the TATP training sessions (p<0.05). The TATP intervention not only increased the quality of family life for these mothers but also led to a reduction in their perceived stress levels.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241259100"},"PeriodicalIF":1.5,"publicationDate":"2024-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141184664","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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