Journal of Intellectual Disabilities最新文献_第9页

Analysis of an Australian death database of people with intellectual disability living out of the family home: Place of death and associated variables. 对澳大利亚智障人士死亡数据库进行分析：死亡地点及相关变量。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-05-16 DOI: 10.1177/17446295231175541

Michele Y Wiese, Roger J Stancliffe, Seeta Durvasula, Daniel W Piepers, Nathan J Wilson

引用次数: 0

Following 4 months of social distancing during COVID-19 Pandemic in Brazil did not change aspects of functioning in children and adolescents with developmental disabilities: A longitudinal study. 在巴西 COVID-19 大流行期间，经过 4 个月的社会疏远并没有改变发育障碍儿童和青少年的各方面功能：一项纵向研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-06-16 DOI: 10.1177/17446295231184117

Beatriz Helena Brugnaro, Gesica Fernandes, Fabiana Nascimento Vieira, Silvia Letícia Pavão, Nelci Adriana Cicuto Ferreira Rocha

{"title":"Following 4 months of social distancing during COVID-19 Pandemic in Brazil did not change aspects of functioning in children and adolescents with developmental disabilities: A longitudinal study.","authors":"Beatriz Helena Brugnaro, Gesica Fernandes, Fabiana Nascimento Vieira, Silvia Letícia Pavão, Nelci Adriana Cicuto Ferreira Rocha","doi":"10.1177/17446295231184117","DOIUrl":"10.1177/17446295231184117","url":null,"abstract":"The COVID-19 pandemic and its demands of social distancing have created challenges in the lives of children/adolescents with developmental disabilities and their families, which would change aspects of children's functioning. The objetive of this study was to evaluate changes in some components of functioning of children/adolescents with disabilities following 4 months of social distancing during a period of high contamination rate in the year 2020 in Brazil. Participated 81 mothers of children/adolescents with disabilities, 3-17 years, most of them (80%) diagnosed with Down syndrome, cerebral palsy and autism spectrum disorder. Remote assessments of functioning' aspects including IPAQ, YC-PEM/ PEM-C, Social Support Scale and PedsQL V.4.0. Wilcoxon tests compared the measures, with significance level <0.05. No significant changes in participant's functioning were identified. Social adjustments required to facing the pandemic during two points in time in the midst of the pandemic did not change the evaluated aspects of functioning in our sample of Brazilian.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"773-788"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10290936/pdf/10.1177_17446295231184117.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9699465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

We have to stand up for ourselves: Barriers to self-determination experienced by Black youth in the transition to adulthood. 我们必须为自己挺身而出：黑人青年在向成年过渡的过程中遇到的自决障碍。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-05-29 DOI: 10.1177/17446295231180660

Josh P Taylor, LaRon A Scott, Lauren P Bruno, Regina Frazier, Colleen A Thoma, Meagan Dayton

引用次数: 0

Knowledge, attitudes, and practices towards fetal alcohol spectrum disorder in the New Zealand social and community sector: An online survey. 新西兰社会和社区部门对胎儿酒精谱系障碍的认识、态度和做法：在线调查。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-04-24 DOI: 10.1177/17446295231172234

Jessica C McCormack, Joanna Ting Wai Chu, Holly Wilson, Juma Rahman, Samantha Marsh, Chris Bullen

{"title":"Knowledge, attitudes, and practices towards fetal alcohol spectrum disorder in the New Zealand social and community sector: An online survey.","authors":"Jessica C McCormack, Joanna Ting Wai Chu, Holly Wilson, Juma Rahman, Samantha Marsh, Chris Bullen","doi":"10.1177/17446295231172234","DOIUrl":"10.1177/17446295231172234","url":null,"abstract":"Background: Fetal Alcohol Spectrum Disorder (FASD) is a common neurodevelopmental disorder but may be underrecognized and misunderstood by people who provide health and social support services. The aim of the research is to understand the FASD knowledge, attitudes, and practices among people employed by the social and community sector in New Zealand. Methods: We conducted an online survey of people working in the New Zealand social and community sector (i.e., social workers, support workers). The survey focused on the following areas: awareness of FASD; knowledge and beliefs about FASD; the impact of FASD on professional practice; and training needs. Results: Most participants reported a basic understanding of FASD, however only 5% felt very well prepared to support someone with FASD. A large majority of participants believed that FASD diagnosis may be stigmatising for individuals or families. Conclusion: There is a need to improve training, professional development, and workplace support for social and community workers in New Zealand to support people with FASD.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"723-737"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11466031/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9389224","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Resilience in the face of adversity: How people with intellectual disabilities deal with challenging times. 逆境中的韧性：智障人士如何应对挑战。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-06-18 DOI: 10.1177/17446295231184504

Femke Scheffers, Eveline van Vugt, Xavier Moonen

引用次数: 0

Challenging behaviors in adults with autism spectrum disorder and intellectual disability: A differential analysis from a transdiagnostic approach. 自闭症谱系障碍和智障成人的挑战行为：跨诊断方法的差异分析。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-06-14 DOI: 10.1177/17446295231184116

María Álvarez-Couto, Domingo García-Villamisar, Araceli Del Pozo

{"title":"Challenging behaviors in adults with autism spectrum disorder and intellectual disability: A differential analysis from a transdiagnostic approach.","authors":"María Álvarez-Couto, Domingo García-Villamisar, Araceli Del Pozo","doi":"10.1177/17446295231184116","DOIUrl":"10.1177/17446295231184116","url":null,"abstract":"This study aimed at analyzing the differences in challenging behaviors between adults with intellectual disability and ASD and those who only had intellectual disability, as well as to explore associations between transdiagnostic and clinical variables to these differences. Therapists and educators of 163 adults with intellectual disability (83 with additional ASD diagnosis) completed the test battery. Mean difference analysis and univariate analyses of covariance were performed to determine the impact of clinical variables and transdiagnostic variables on the frequency and severity of challenging behaviors. Results showed that adults with ASD and intellectual disability presented higher frequency and severity of these behaviors. A significant effect of the diagnosis of ASD on the frequency and severity of self-injuries and stereotypies was found. Also, some transdiagnostic variables influencing the presence of these behaviors were highlighted. These factors should be considered when planning and designing interventions for behavioral problems in this population.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"808-823"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9624099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Barriers and facilitators to practitioners' implementation of positive behavior support practice in social care organizations in Ireland. 爱尔兰社会护理机构从业人员实施积极行为支持实践的障碍和促进因素。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-05-25 DOI: 10.1177/17446295231178073

Cayleigh Dunworth, Dearbhaile Mahon, Jenny McSharry, Jennifer Holloway, Helena Lydon

{"title":"Barriers and facilitators to practitioners' implementation of positive behavior support practice in social care organizations in Ireland.","authors":"Cayleigh Dunworth, Dearbhaile Mahon, Jenny McSharry, Jennifer Holloway, Helena Lydon","doi":"10.1177/17446295231178073","DOIUrl":"10.1177/17446295231178073","url":null,"abstract":"In Ireland, the provision of behavior support services has developed following the introduction of Health Information and Quality Authority (2013) standards and the regulation of Positive Behavior Support (PBS) under the Health Act (2007). The purpose of this study was to explore what factors facilitate and act as barriers to implementation of behavioral recommendations in Intellectual Disability organizations from the practitioner's perspective. Twelve interviews were carried out, audio recorded, transcribed and analysed using Braun and Clarke's (2006) Thematic Analysis. One superordinate theme (administrator support), four themes (values, resources, relationships and implementation of consequences) and five sub-themes (staff turnover and burnout, training and knowledge, time and physical contact, relationships between practitioners and staff and staff and service users) were identified, all interconnected in the implementation process. A common thread reflected throughout the themes, was the practitioner's acknowledgment of barriers overpowering facilitation which resulted in a less than optimum implementation of PBS.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"789-807"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11468107/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9876162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"She just makes it easier…" The impact of having a dedicated nursing role in supporting people with intellectual disability when accessing acute hospitals, from the perspective of their support staff, the Irish context. "她让一切变得更容易......"从智障人士辅助人员的角度看，专职护理人员在支持智障人士进入急症医院方面的影响，爱尔兰背景。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-07-27 DOI: 10.1177/17446295231190252

Muireann Ní Riain, Sheelagh Wickham

{"title":"\"She just makes it easier…\" The impact of having a dedicated nursing role in supporting people with intellectual disability when accessing acute hospitals, from the perspective of their support staff, the Irish context.","authors":"Muireann Ní Riain, Sheelagh Wickham","doi":"10.1177/17446295231190252","DOIUrl":"10.1177/17446295231190252","url":null,"abstract":"Learning Disability Liaison Nurses have been shown to improve hospital experiences and this is an emerging role in Ireland. This research qualitatively explored the impact of a Clinical Nurse Specialist Acute Hospital Liaison from the perspective of staff in an intellectual disability community organisation. Participants identified significant challenges with supporting people attending hospitals including accessing and understanding information, anxieties and not being prepared for transitions through the hospital. The findings demonstrate the introduction of this role is a supportive, positive step with reports of improved information sharing, feeling better prepared and alleviating anxieties related to supporting someone in hospital. The findings clearly identify that this role has considerable benefits when set in a community organisation. This role has had a positive impact on service users and staff when interacting with hospitals, providing evidence of the value of this role in Ireland and also of they having a specialist qualification in the role.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"839-853"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9885616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Working with adults with intellectual challenges to enhance their employability skills. 与有智力障碍的成年人合作，提高他们的就业技能。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-04-16 DOI: 10.1177/17446295231171198

S Rama Gokula Krishnan, B Preethi Meena

引用次数: 0

Hardiness as a Resilience Factor for Adaptation in Families of Children With 22q11.2 Deletion Syndrome: A Mixed Methods Study of Parents' Perspectives. 22q11.2缺失综合征患儿家庭适应能力的抗逆性因素：家长视角的混合方法研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-07-04 DOI: 10.1177/17446295231186851

Maria Caples, Bridie McCarthy, Eileen Savage

{"title":"Hardiness as a Resilience Factor for Adaptation in Families of Children With 22q11.2 Deletion Syndrome: A Mixed Methods Study of Parents' Perspectives.","authors":"Maria Caples, Bridie McCarthy, Eileen Savage","doi":"10.1177/17446295231186851","DOIUrl":"10.1177/17446295231186851","url":null,"abstract":"22q11.2 deletion syndrome is a rare multisystem genetic disorder with over 200 associated characteristics, occurring in various combinations and severity. Extensive biomedical research has been undertaken on 22q11.2 deletion syndrome, however, there is a dearth of research on families' experiences of managing a family member with this condition. The complex and at times serious phenotypical presentation of the syndrome can make the management of the condition difficult for families. The aim of this mixed method explanatory sequential study was to investigate family hardiness as a resilience factor for adaptation in families of children with 22q11.2 deletion syndrome from parents' perspectives. We found that adaptation scores increased by 0.57 points (95% CI: 0.19-0.94) for every one-point increase in family hardiness score. Qualitative results indicated that acceptance of the child's diagnosis and support positively influenced hardiness whereas fears about the future and their experiences of loss negatively influenced hardiness.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"738-758"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11465608/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9742310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0