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Journal of Intellectual Disabilities最新文献

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Interplay between representations, practices, and stigma variables towards people with intellectual disabilities among healthcare professionals: A cross-sectional study. 医护人员对智障人士的表述、做法和成见变量之间的相互作用：一项横断面研究。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-06 DOI: 10.1177/17446295241259913
Laurie Lucassen, Romina Rinaldi, Elise Batsele
{"title":"Interplay between representations, practices, and stigma variables towards people with intellectual disabilities among healthcare professionals: A cross-sectional study.","authors":"Laurie Lucassen, Romina Rinaldi, Elise Batsele","doi":"10.1177/17446295241259913","DOIUrl":"https://doi.org/10.1177/17446295241259913","url":null,"abstract":"<p><p>Disparities in healthcare are observed among people with intellectual disabilities. They generally face stigmatisation and negative attitudes from healthcare professionals. The aim of this study is to investigate the link of diagnostic label and social distance on inclusive health representations and practices towards people with intellectual disabilities among healthcare professionals. We conducted an online survey of 163 healthcare professionals living in French-speaking Belgium. The results highlighted that the diagnostic label and a lower social distance predict better representations and practices in inclusive health. In addition, an analysis of mediation showed the mediating effect of social distance on the link between being in contact with people with intellectual disabilities (through employment) and better representations and practices in inclusive health. This study enabled us to assess the interplay between stigma variables and healthcare professionals' representations and practices towards people with intellectual disabilities and to identify potential facilitators for promoting health equity.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241259913"},"PeriodicalIF":1.5,"publicationDate":"2024-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141262175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A national cohort study of spiritual and religious practices of older people with intellectual disability. 关于智障老年人精神和宗教习俗的全国队列研究。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-23 DOI: 10.1177/17446295231163977
Fiona Timmins, Darren McCausland, Damien Brennan, Fintan Sheerin, Retha Luus, Philip McCallion, Mary McCarron
{"title":"A national cohort study of spiritual and religious practices of older people with intellectual disability.","authors":"Fiona Timmins, Darren McCausland, Damien Brennan, Fintan Sheerin, Retha Luus, Philip McCallion, Mary McCarron","doi":"10.1177/17446295231163977","DOIUrl":"10.1177/17446295231163977","url":null,"abstract":"<p><p><b>Background:</b> Spirituality and spiritual support for older people with intellectual disability are deemed important, however little is known about their specific needs. This paper reports for the first time on the religious and spiritual practices of older adults with intellectual disability. <b>Methods:</b> A national longitudinal study examined the prevalence of spiritual practices among older people with intellectual disability in the Republic of Ireland. <b>Results:</b> Older people with intellectual disability seek and receive solace from religious and spiritual practices, especially if they are lonely, in poor health, distressed or bereaved. There is likely a social benefit to spiritual and religious aspects of life that would be beneficial to explore further. <b>Conclusions:</b> Globally more research is required and efforts should be made to ensure greater opportunities for inclusion in societal spiritual and religious activities and to more clearly determine the spiritual needs of this population.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"533-548"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11059840/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9536091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effect of dance workshops participation on reaction time in persons with moderate intellectual disabilities - pilot study. 参加舞蹈工作坊对中度智障人士反应时间的影响--试点研究。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-13 DOI: 10.1177/17446295231163247
Olga Kałużny
{"title":"The effect of dance workshops participation on reaction time in persons with moderate intellectual disabilities - pilot study.","authors":"Olga Kałużny","doi":"10.1177/17446295231163247","DOIUrl":"10.1177/17446295231163247","url":null,"abstract":"<p><p><b>Background:</b> Persons with intellectual disabilities who are physically active have faster reaction time compared to the physically inactive persons with intellectual disabilities (Yildirim et al. 2010). Aim: To recognize how participation in a series of hip-hop dance workshops can improve reaction time in persons with intellectual disabilities. <b>Methods:</b> 13 persons with moderate intellectual disabilities aged 14-22 (<i>M = 17,30; SD = 2,52</i>). A quasi-experiment was prepared using a single-group plan (nine dance workshops). Study design applied: pre-test - post-test. Measurement Tool - Optogait - acoustic response test. <b>Results:</b> Reaction time measured prior to dance workshops was <i>M = 1,58; SD = 0,48</i> and after workshops was M <i>= 1,34; SD = 0,69</i>. The analysis using Wilcoxon signed-ranks test showed that this difference is statistically significant, Z = 2,06; <i>p</i> < .05. <b>Conclusions:</b> Hip-hop dance classes improve response times in persons with moderate intellectual disabilities.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"469-477"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9110671","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Persevering professionals: dilemmas of relationships and self-determination in work with people with intellectual disability - a multi-method study based on interpersonal process recall. 坚持不懈的专业人员：智障人士工作中的关系困境和自我决定--基于人际关系过程回忆的多方法研究。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-02-01 DOI: 10.1177/17446295231154126
Mari Husabø, Magne Mæhle, Målfrid Råheim, Aud Marie Øien
{"title":"Persevering professionals: dilemmas of relationships and self-determination in work with people with intellectual disability - a multi-method study based on interpersonal process recall.","authors":"Mari Husabø, Magne Mæhle, Målfrid Råheim, Aud Marie Øien","doi":"10.1177/17446295231154126","DOIUrl":"10.1177/17446295231154126","url":null,"abstract":"<p><p>The article focuses on social educators' reflections on their own professional practice in encounters with people with intellectual disability receiving services. Drawing on Interpersonal Process Recall, a video-assisted method, together with a focus group interview, the study explores the experiences from in-situ encounters of five social educators employed in a Norwegian municipality. The key findings are that they view relationship-building as integral to their work, they grant primacy to the ideal of autonomy and they strive towards realizing this in their daily work. The study however displays how these emphases might lead to dilemmas, especially between the wish to support the service users' self-determination and the urge to protect them from harm. Of special note was how the service users' increasing use of social media was perceived as a particular challenge for social educators, who were left with an experience of being unable to protect.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"453-468"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11059826/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9143459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Leisure education in youth with developmental disabilities: Effects on individual quality of life, adaptive behavior, and family quality of life. 发育障碍青少年的休闲教育：对个人生活质量、适应行为和家庭生活质量的影响。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-04-10 DOI: 10.1177/17446295231168442
Marta Badia, Beatriz Pérez, Begoña M Orgaz, María Gómez-Vela
{"title":"Leisure education in youth with developmental disabilities: Effects on individual quality of life, adaptive behavior, and family quality of life.","authors":"Marta Badia, Beatriz Pérez, Begoña M Orgaz, María Gómez-Vela","doi":"10.1177/17446295231168442","DOIUrl":"10.1177/17446295231168442","url":null,"abstract":"<p><p>Leisure participation enhances the learning of adaptive skills and the quality of life in youth with developmental disabilities. The goal of this study was to evaluate the effects of a leisure education program in individuals with developmental disabilities in terms of adaptive behavior and quality of life. Nine participants divided into two small groups and their families were included. A quasi-experimental design was employed to determine whether there was a program effect. The Adaptive Behavior Assessment System, the KIDSCREEN-27, and the Family Quality of Life Scale were administered before and after the intervention. There was a significant increase in social, home, and school skills as well as a better perception of quality of life in relationships with parents, social support, and school. In addition, the program affected the family's perception of practical and emotional support. Findings provide support for the application of this leisure program to enhance quality of life outcomes.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"326-342"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9633861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Challenges and responsibilities in the medication management process in 24/7 group housing services for adults with intellectual disability: Interviews with nurses. 为智障成人提供全天候集体住宿服务的药物管理过程中的挑战和责任：护士访谈。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-18 DOI: 10.1177/17446295231163979
Anne Halmetoja, Antti Teittinen, Raisa Laaksonen
{"title":"Challenges and responsibilities in the medication management process in 24/7 group housing services for adults with intellectual disability: Interviews with nurses.","authors":"Anne Halmetoja, Antti Teittinen, Raisa Laaksonen","doi":"10.1177/17446295231163979","DOIUrl":"10.1177/17446295231163979","url":null,"abstract":"<p><p>Staff in 24/7 group housing services for adults with intellectual disability are responsible for ensuring safe medication management processes and supporting the residents in their health-related issues. Ten interviewed nurses reported several challenges in the medication management process emerging at the staff level, the level of the group home, and the level of the social and healthcare system, and were often related to issues in communication and responsibility. They reported a variety of complex tasks in the medication management process, for which they need a multiple skill set. They also act as healthcare advocates for residents, but healthcare services do not always match residents' needs. Training for social and healthcare professionals, access to healthcare services and the collaboration of social and healthcare services should be improved to provide the people with intellectual disability the best possible pharmacotherapy and healthcare.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"372-392"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11059829/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9501002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effects of lockdown of work and activities for adults with multiple, complex needs including sensory impairments during the pandemic in 2020. 2020 年大流行期间，对有多种复杂需求（包括感官障碍）的成年人封锁工作和活动的影响。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2024-02-02 DOI: 10.1177/17446295241232030
Trine Lise Bakken, Bodil Ellingsen
{"title":"The effects of lockdown of work and activities for adults with multiple, complex needs including sensory impairments during the pandemic in 2020.","authors":"Trine Lise Bakken, Bodil Ellingsen","doi":"10.1177/17446295241232030","DOIUrl":"10.1177/17446295241232030","url":null,"abstract":"<p><p>Sheltered work and leisure activities were locked down in at the Signo centre in March 2020 because of the COVID-19 pandemic. The Signo centre is a Norwegian national centre for adults with multiple, complex needs, including severe sensory loss/impairments. Tension and uncertainty rapidly spread among relatives and workers. To explore the impacts of the pandemic on residents, 24 adults living in Signo Vivo answered a semi-structured interview together with their primary worker. Additionally, reports on staff injuries and PRN medication between April and Aug of 2020 were compared to the period before the lockdown. The reports from the interviews included fewer stressful events for the participants, more rest and sleep, more time spent in their own apartments, and more time with smaller groups of workers. The reports on staff injuries and PRN medication showed decreased occurrence.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"578-587"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11059831/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139673286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Bullying and intellectual disability from the perspective of students. 从学生的角度看欺凌与智障。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-01-22 DOI: 10.1177/17446295231154109
Esther Vela Llauradó, Ana López Estévez
{"title":"Bullying and intellectual disability from the perspective of students.","authors":"Esther Vela Llauradó, Ana López Estévez","doi":"10.1177/17446295231154109","DOIUrl":"10.1177/17446295231154109","url":null,"abstract":"<p><p>Bullying has been a recurrent phenomenon throughout the history of education. Among those most vulnerable are those with intellectual disabilities who tend to suffer greater levels of victimisation. The purpose of this research is to analyse the prevalence of bullying of students with intellectual disability in ordinary schools compared to special education schools. The project used a nonexperimental, descriptive and correlational methodology with a sample of 99 students who completed the validated European Bellying Intervention Project Questionnaire measurement tool. The results show that the majority of students who were victimised by bullies left their ordinary school during secondary education. Within ordinary schools, students with disabilities are more likely to experience bullying in the role of victim while in special education schools the most frequent role is that of observer.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"315-325"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10554519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mortality patterns in a Danish nationwide cohort of persons with intellectual disabilities. 丹麦全国智障人士队列中的死亡率模式。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-02-01 DOI: 10.1177/17446295231154102
Lau Caspar Thygesen, Tina Harmer Lassen, Trine Allerslev Horsbøl, Isabelle Pascale Mairey, Knud Juel, Christina Engel Hoei-Hansen, Susan Ishøy Michelsen
{"title":"Mortality patterns in a Danish nationwide cohort of persons with intellectual disabilities.","authors":"Lau Caspar Thygesen, Tina Harmer Lassen, Trine Allerslev Horsbøl, Isabelle Pascale Mairey, Knud Juel, Christina Engel Hoei-Hansen, Susan Ishøy Michelsen","doi":"10.1177/17446295231154102","DOIUrl":"10.1177/17446295231154102","url":null,"abstract":"<p><p>Mortality disparities among persons with intellectual disability are important to guide health-care practices. The objective was to evaluate mortality patterns of persons with intellectual disability in a nationwide study from 1976 to 2020. This study establishes a Danish nationwide cohort of persons with intellectual disability and age- and sex-matched reference cohort through linkage between several registers. We established a cohort of 79,114 persons with intellectual disability. Standardized mortality ratios were increased for persons with intellectual disability, most pronounced among younger persons and among females. Life expectancies were markedly lower; among persons with intellectual disability 63.6 years among females and 59.8 years among males in 2016-2020 compared to 82.4 and 78.7 years among females and males in the reference cohort. Life expectancies decreased with severity of intellectual disability. This study reports the establishment of a nationwide Danish cohort of persons with intellectual disability.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"359-371"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10597973","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The impact of individuals with profound intellectual and multiple disabilities on peer relationships of typically developing siblings. 深度智障和多重残疾人士对发育正常的兄弟姐妹的同伴关系的影响。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-06-01 Epub Date: 2023-03-27 DOI: 10.1177/17446295231168184
Jakub Niedbalski
{"title":"The impact of individuals with profound intellectual and multiple disabilities on peer relationships of typically developing siblings.","authors":"Jakub Niedbalski","doi":"10.1177/17446295231168184","DOIUrl":"10.1177/17446295231168184","url":null,"abstract":"<p><strong>Introduction/background: </strong>This study aims to determine the impact of a person with profound intellectual and multiple disabilities on peer relationships of their siblings.</p><p><strong>Methods: </strong>Information obtained from typically developing siblings of individuals with profound intellectual and multiple disabilities served as research material for this study. There were a total of 18 participants in the study. The analysis and interpretation were based on the procedures of grounded theory.</p><p><strong>Results and conclusion: </strong>The results of the study show that young adults with a brother or sister with profound intellectual and multiple disabilities have some difficulties in establishing relationships with their peers, especially those more intimate such as friendships or romantic endeavors. At the same time, research confirms that siblings of individuals with profound intellectual and multiple disabilities have high levels of empathy and understanding for others as well as sincere attachment to family.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"514-532"},"PeriodicalIF":1.5,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9246971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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