Journal of Intellectual Disabilities最新文献_第7页

The effect of increasing exercise in the intellectually disabled community. 增加智障人士锻炼的效果。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-08-30 DOI: 10.1177/17446295231199805

Yasmine S Ghattas, Joshua Cassinat, Cassidy M Foley Davelaar

{"title":"The effect of increasing exercise in the intellectually disabled community.","authors":"Yasmine S Ghattas, Joshua Cassinat, Cassidy M Foley Davelaar","doi":"10.1177/17446295231199805","DOIUrl":"10.1177/17446295231199805","url":null,"abstract":"Background: Intellectually disabled individuals have been observed to lead sedentary lifestyles resulting in poor health. Physical fitness has been positively correlated to better health outcomes with small changes in fitness translating to major health changes among unfit older adults with intellectual disability. However, there is currently no literature on safe exercise regimens for the intellectually disabled population.Methods: In this article, a retrospective review was conducted using the Special Olympics Athlete database and analyzed the mean differences of various performance metrics based on self-reported exercise frequency.Results: These results demonstrated that those who exercised daily performed significantly better in flexibility, static balance and functional strength as compared to those who did not exercise. No statistically significant differences were found among athletes and self-reported exercise frequency for aerobic fitness.Conclusion: Overall, these findings suggest that 3-6 days-a-week of moderate exercise would be a recommended exercise dose to see significant improvement in performance and physiological adaptations.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"962-975"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10110483","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

SALUDIVERSEX: A quality of life and sexual health intervention for adults with mild intellectual disabilities. SALUDIVERSEX：针对轻度智障成人的生活质量和性健康干预措施。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-08-16 DOI: 10.1177/17446295231196258

María Dolores Gil-Llario, Vicente Morell-Mengual, Olga Fernández-García, Verónica Estruch-García, Rafael Ballester-Arnal

{"title":"SALUDIVERSEX: A quality of life and sexual health intervention for adults with mild intellectual disabilities.","authors":"María Dolores Gil-Llario, Vicente Morell-Mengual, Olga Fernández-García, Verónica Estruch-García, Rafael Ballester-Arnal","doi":"10.1177/17446295231196258","DOIUrl":"10.1177/17446295231196258","url":null,"abstract":"Individuals with intellectual disabilities need an affective and sexual education adapted to their characteristics. There are few interventions that meet these objectives and offer empirical evidence of their efficacy. To respond to the limitations of existing interventions, an evidence-based affective-sexual educational intervention for adults with a mild degree of intellectual disability is proposed: SALUDIVERSEX. Participants will be randomly assigned to an intervention group that will receive the SALUDIVERSEX program or to a waiting list group. The intervention will be implemented by educators of occupational centers after a thorough training phase. Our main hypothesis is that the SALUDIVERSEX program will improve the sexual health and quality of life, through the joint action built into three components: the acquisition of basic information, the development of skills and strategies and the achievement of healthy attitudes towards the experience and expression of sexuality. The results of this approach could have important implications for optimizing the quality of life and self-determination of individuals with Intellectual disability by contributing to the development of healthy sexuality.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"909-924"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10004980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parenting Behaviors and Parental self-efficacy: A comparative study of parents of children with intellectual disabilities and typically developing children. 父母行为与父母自我效能感:智障儿童与正常发育儿童父母的比较研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-11-13 DOI: 10.1177/17446295231215414

Emre Laçin, Betül Gökçen Doğan

{"title":"Parenting Behaviors and Parental self-efficacy: A comparative study of parents of children with intellectual disabilities and typically developing children.","authors":"Emre Laçin, Betül Gökçen Doğan","doi":"10.1177/17446295231215414","DOIUrl":"10.1177/17446295231215414","url":null,"abstract":"Purpose: The aim of this study was to investigate the parenting behaviors and parental self-efficacy of parents of typically developing and child with an intellectual disability, considering their children's groups of with or without intellectual disability and other relevant variables. The study involved 1194 parents with children aged 3-6 years, of whom 521 parents had children with intellectual disabilities and the remaining 673 parents had typically developing children.Method: The data collection instruments used in this study were the Parental Behavior Scale Short Form and Parental Efficacy Scale. A t-test was used to compare parenting behavior and parental efficacy according to the child with or without an intellectual disability. In addition, MANOVA was used to compare parenting behavior and parental efficacy in relation to parents' level of education and to examine the possible interaction effect between these two independent variables.Results: The findings indicate that parents of typically developing children exhibit more positive parenting behaviors than parents of children with intellectual disabilities. However, the negative parenting behaviors of both groups were similar. In terms of parenting self-efficacy, parents of children with intellectual disabilities display higher self-efficacy than parents of typically developing children. The study also investigated whether there was a common effect in relation to child with or without an intellectual disability and parental education level, but no common effect was observed.Conclusion: Positive parenting behaviors and parental self-efficacy differed according to whether child with or without an intellectual disability.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"885-897"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89719982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"A little bit more challenging, but more rewarding": Medical-surgical nurses' perspectives on caring for adults with intellectual disabilities. "更具挑战性，但更有价值"：内外科护士对护理智障成人的看法。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-28 DOI: 10.1177/17446295241304135

Melissa L Desroches, Kathleen Fisher, Denise Daudelin

{"title":"\"A little bit more challenging, but more rewarding\": Medical-surgical nurses' perspectives on caring for adults with intellectual disabilities.","authors":"Melissa L Desroches, Kathleen Fisher, Denise Daudelin","doi":"10.1177/17446295241304135","DOIUrl":"https://doi.org/10.1177/17446295241304135","url":null,"abstract":"Background: Despite their central role in hospital care, little research has explored medical-surgical nurses' perspectives on the rewarding aspects of and significant influences on caring for adults with intellectual disabilities, even though they are key to understanding this population's inequitable hospital outcomes. Methods: A qualitative descriptive design was used, and interviews were conducted with 13 medical-surgical nurses from the United States. Manifest content analysis was used to analyze the interview transcripts and categorize findings. Results: Five categories of significant influences: Preparedness to Care for People with Intellectual Disabilities, Communication, Caregiver Involvement, Ethical Concerns, and Context of Care, and four categories of rewards: Connecting, Making a Difference, Enjoyment, and Learning Opportunity, were revealed. Conclusion: Medical-surgical nurses derive meaning from connecting with and making a difference in the lives of hospitalized adults with intellectual disabilities, but face barriers to providing high-quality nursing care, resulting in dehumanized, delayed, or missed care.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241304135"},"PeriodicalIF":1.5,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142740980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Embark on the adventure! Advancing inclusive secondary education through narrative game learning for students with intellectual disabilities. 开始冒险！通过智障学生的叙事游戏学习推进全纳中学教育。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-23 DOI: 10.1177/17446295241302400

José Miguel Rodríguez-Ferrer, Ana Manzano-León, Anastasio García-Roca, Raquel Soler-Delgado

引用次数: 0

The recognition and assessment of pain in people with profound intellectual disabilities by nurses: An appreciative inquiry. 护士对深度智障人士疼痛的识别和评估：赞赏性调查。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-22 DOI: 10.1177/17446295241303192

Maeve Goodall, Kate Irving, Mary Nevin

{"title":"The recognition and assessment of pain in people with profound intellectual disabilities by nurses: An appreciative inquiry.","authors":"Maeve Goodall, Kate Irving, Mary Nevin","doi":"10.1177/17446295241303192","DOIUrl":"https://doi.org/10.1177/17446295241303192","url":null,"abstract":"Background: Individuals with profound intellectual disabilities are non-verbal and reliant on carers for pain recognition, assessment and management. Pain is a multifaceted and interconnected experience. Assessment tools designed specifically for this population are needed. This study aimed to develop methods for improved pain care practices by nurses.Methods: This qualitative study followed the four phases of appreciative; Discovery, Dream, Design, Destiny. Eight nurses were recruited as co-researchers from one Irish intellectual disability organisation. Data were analysed from individual and focus group interviews, using thematic analysis and continuous reflexivity.Results: A pain awareness campaign and RAPPID tool (recognition and assessment of pain in people with profound intellectual disabilities) were developed.Conclusion: Respect for personhood in individuals with profound intellectual disabilities is reflected through holistic approaches to pain assessment. The empowerment of nurses enables positive change. Implicit knowledge can be communicated more proficiently with a formal, collaborative tool.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241303192"},"PeriodicalIF":1.5,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142688501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Corrigendum to "Validity and reliability of the persian version of the world health organization quality of life disabilities module". 世界卫生组织生活质量残疾模块波斯语版本的有效性和可靠性 "的更正。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-13 DOI: 10.1177/17446295241298333

引用次数: 0

Understanding perspectives and research trends in Down syndrome neuropathogenesis: A bibliometric analysis. 了解唐氏综合征神经发病机制的观点和研究趋势：文献计量分析。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-13 DOI: 10.1177/17446295241299160

Tan Huang, Xin-Jieh Lam, Chong-Teik Lim, Norhazlin Jusoh, Sharida Fakurazi, Pike-See Cheah, King-Hwa Ling

{"title":"Understanding perspectives and research trends in Down syndrome neuropathogenesis: A bibliometric analysis.","authors":"Tan Huang, Xin-Jieh Lam, Chong-Teik Lim, Norhazlin Jusoh, Sharida Fakurazi, Pike-See Cheah, King-Hwa Ling","doi":"10.1177/17446295241299160","DOIUrl":"https://doi.org/10.1177/17446295241299160","url":null,"abstract":"Down syndrome (DS), characterised by compromised brain development and intellectual challenges, often manifests Alzheimer's disease (AD) -like symptoms. Utilising the Web of Science Core Collection (WOSCC) database from January 1, 2000, to July 31, 2023, we conducted a comprehensive bibliometric analysis using VOSviewer, CiteSpace, and the R package \"bibliometrix.\" Analyses included co-authorship, co-citation, co-occurrence, cooperative network, reference, and keyword burst citation. Analysing 5,082 papers, the U.S. demonstrated prominence with the highest number of research organisations and citations. Keyword analysis revealed promising research areas, including \"Alzheimer's disease,\" \"development,\" \"inflammation,\" and \"neurogenesis\". This 22-year survey of the brain with trisomy 21 research unveils key trends, contributors, and focal areas in DS neuropathogenesis. Notably, Alzheimer 's-related genes and proteins play a pervasive role in DS neuropathological processes across patients' lifespans. The study contributes foundational knowledge for advancing research and care in the DS neuropathogenesis domain.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241299160"},"PeriodicalIF":1.5,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effectiveness of a Multidisciplinary Expertise Team in the reduction of restrictive measures in sheltered care homes for people with an intellectual disability. 多学科专业团队在减少收容智障人士的养老院限制性措施方面的成效。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-11-08 DOI: 10.1177/17446295241299153

Baukje Schippers, Sien Vandesande, Maroesjka van Nieuwenhuijzen, Brenda Frederiks, Marleen de Moor, Danielle Immers, Carlo Schuengel

{"title":"Effectiveness of a Multidisciplinary Expertise Team in the reduction of restrictive measures in sheltered care homes for people with an intellectual disability.","authors":"Baukje Schippers, Sien Vandesande, Maroesjka van Nieuwenhuijzen, Brenda Frederiks, Marleen de Moor, Danielle Immers, Carlo Schuengel","doi":"10.1177/17446295241299153","DOIUrl":"https://doi.org/10.1177/17446295241299153","url":null,"abstract":"Background: Minimizing restrictive measures is an important lever to promote self-determination for people with intellectual disabilities. Aims: This study assesses the efficacy of the Multidisciplinary Expertise Team (MDET) program in reducing such measures within Dutch sheltered care homes for people with intellectual disabilities. Methods and Procedures: A clustered randomized trial encompassed 30 residential units, reporting 428 measures on 107 residents through an organization-wide registration system. Units were randomly assigned to the MDET program or care-as-usual. Outcomes and Results: Units assigned to the MDET-program reported a significant stronger reduction in restrictive measures compared to the care-as-usual units (40% versus 20%). Conclusions and Implications: The MDET program shows promise in decreasing restrictive measures by enhancing awareness and sharing expertise across disciplines at staff and resident levels.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241299153"},"PeriodicalIF":1.5,"publicationDate":"2024-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142606969","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Care and choice architecture: Relatives' support for adults with intellectual disabilities in supported decision-making processes. 护理与选择架构：亲属在辅助决策过程中对智障成人的支持。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-10-30 DOI: 10.1177/17446295241297184

Sadeta Demic, Rosemarie van den Breemer, Halvor Hanisch, Inger Marie Lid

引用次数: 0