Journal of Intellectual Disabilities最新文献

Psychometric properties of the French version of the Scale of Emotional Development-Short (SED-S) in a multicentre cohort of youth and adults with intellectual disabilities. 法语版情绪发展量表-短量表（SED-S）在多中心智力残疾青年和成人队列中的心理测量特性

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-07-06 DOI: 10.1177/17446295251357672

Romina Rinaldi, Elise Batselé, Lautaro Diaz, Markus Kosel, Vincent Guinchat, Louis Nahum, Joséphine Convertini

{"title":"Psychometric properties of the French version of the Scale of Emotional Development-Short (SED-S) in a multicentre cohort of youth and adults with intellectual disabilities.","authors":"Romina Rinaldi, Elise Batselé, Lautaro Diaz, Markus Kosel, Vincent Guinchat, Louis Nahum, Joséphine Convertini","doi":"10.1177/17446295251357672","DOIUrl":"https://doi.org/10.1177/17446295251357672","url":null,"abstract":"Background: Emotional development in individuals with intellectual disabilities follows distinct trajectories; however, few psychometrically-sound tools target this dimension. Aims: This study examined the psychometric properties of the French version of the Scale of Emotional Development-Short (SED-S) in youth and adults with intellectual disabilities. Methods: A multicentre cohort of 170 participants with mild-to-profound intellectual disabilities was assessed. Internal consistency (McDonald's ω) and inter-rater reliability (intraclass correlation coefficient, ICC) were evaluated. Construct validity was tested using confirmatory factor analysis. Associations with intellectual disabilities severity, adaptive functioning, and age were explored using correlations and nonparametric tests. Results: The SED-S demonstrated high internal consistency (ω = 0.933) and strong inter-rater reliability (ICC = 0.851). A one-factor model supported construct validity. SED-S scores were significantly related to intellectual disability severity and autism spectrum disorder diagnosis but not age. Conclusion: The French SED-S is a reliable and valid tool for assessing emotional development in French-speaking individuals with intellectual disabilities.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251357672"},"PeriodicalIF":1.5,"publicationDate":"2025-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144576651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Deficits and barriers in medical care of people with down syndrome and dementia: A scoping review. 唐氏综合征和痴呆患者医疗护理的缺陷和障碍：范围综述

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-07-05 DOI: 10.1177/17446295251351508

Godwin Denk Giebel, Pascal Raszke, Milena Weitzel, Jürgen Wasem, Elisabeth Wlasich, Olivia Wagemann, Georg Nübling, Johannes Levin, Arthur Schall, Valentina Tesky, Johannes Pantel, Anke Walendzik, Theresa Hüer

{"title":"Deficits and barriers in medical care of people with down syndrome and dementia: A scoping review.","authors":"Godwin Denk Giebel, Pascal Raszke, Milena Weitzel, Jürgen Wasem, Elisabeth Wlasich, Olivia Wagemann, Georg Nübling, Johannes Levin, Arthur Schall, Valentina Tesky, Johannes Pantel, Anke Walendzik, Theresa Hüer","doi":"10.1177/17446295251351508","DOIUrl":"https://doi.org/10.1177/17446295251351508","url":null,"abstract":"Introduction: People with Down syndrome (PwDS) have a substantially increased risk of developing Alzheimer's dementia. This can lead to challenges in medical care. To identify these challenges, a scoping review was conducted. Methods: The search consisted of a systematic database search and a structured search on relevant institutional websites. After inclusion, articles were reviewed for deficits and barriers in health care provision for PwDS and dementia. Results were discussed and systematized in a workshop. Results: Of 3,679 articles identified, 23 were included by systematic search and two by structured search. Finally, results were systematized in two dimensions: (1) Medical areas where problems occurred (diagnostics, therapy, research, and overarching issues) and (2) Stakeholders affected (patients, caregivers, and medical or other service providers). Conclusions: Since multiple deficits and barriers were identified in the medical care for PwDS and dementia, it is crucial to improve healthcare provision for this vulnerable group.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251351508"},"PeriodicalIF":1.5,"publicationDate":"2025-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144567980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessing the quality of online resources for inclusive research methods: Insights from a 2024 rapid review. 评估包容性研究方法的在线资源质量：来自2024年快速回顾的见解。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-14 DOI: 10.1177/17446295251345968

Audrey Hodgins, Melanie Beres, Munazza Tahir, Virginie Cobigo

引用次数: 0

"They helped me stand on my own two feet": Canadian parents with intellectual disabilities in child protection. "他们帮助我自力更生"：儿童保护中的加拿大智障父母。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-10-25 DOI: 10.1177/17446295241296215

Munazza Tahir, Virginie Cobigo

{"title":"\"They helped me stand on my own two feet\": Canadian parents with intellectual disabilities in child protection.","authors":"Munazza Tahir, Virginie Cobigo","doi":"10.1177/17446295241296215","DOIUrl":"10.1177/17446295241296215","url":null,"abstract":"Research on the lived experience of Canadian parents with intellectual disabilities involved in child protection is limited, particularly inclusive research with parents with intellectual disabilities involved in Canada's changing child protection system. This inclusive study was done in collaboration with a co-researcher with intellectual disabilities who had lived experience as a parent. Thirteen parents from three Canadian regions participated in semistructured interviews about their involvement in child protection. Four major themes emerged in the findings: 1) key supports that contributed to positive outcomes; 2) parents' attitudes toward child protection agencies and perceived attitudes about themselves; 3) systemic barriers impacting accessibility and the child protection experience; and 4) parents' advice to other parents and professionals in child protection. This study provides a promising picture of child protection agencies as a key support despite existing barriers. Implications for social service providers are offered and areas for further exploration are discussed.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"349-370"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12084660/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The experience of parents of children with intellectual disabilities/autism who experienced the Kahramanmaraş earthquake in Türkiye. 智力残疾/自闭症儿童的父母在经历了土耳其的kahramanmaraki地震后的经历。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-12-09 DOI: 10.1177/17446295241307409

Candan Hasret Şahin, Ali Kaya

引用次数: 0

Being a sibling of a child with intellectual disability from the perspective of mothers: A qualitative study. 从母亲的角度看智障儿童的兄弟姐妹：定性研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-11-19 DOI: 10.1177/17446295241301851

Fatma Dinç, Aylin Kurt, Emine Güneş Şan

引用次数: 0

Parenthood and Glee: An online study to examine differences between viewers and non-viewers of television shows featuring a character with a developmental disability. 为人父母》和《欢乐合唱团》：一项在线研究，旨在探讨观众和非观众在观看以发育障碍人士为主角的电视节目时的差异。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-03-14 DOI: 10.1177/17446295241239103

Aesha John, Spencer Evans, Emily Dow

{"title":"Parenthood and Glee: An online study to examine differences between viewers and non-viewers of television shows featuring a character with a developmental disability.","authors":"Aesha John, Spencer Evans, Emily Dow","doi":"10.1177/17446295241239103","DOIUrl":"10.1177/17446295241239103","url":null,"abstract":"We present findings from our study, which examined whether ability to identify Down syndrome and autism was linked to participants' willingness to maintain social contact with individuals with the respective conditions. Additionally, we explored whether viewers and non-viewers of Parenthood and Glee, television shows featuring a character with autism and Down syndrome respectively, differed in their awareness, beliefs regarding causes and interventions, and desire to maintain social proximity with individuals with these conditions. Participants completed an online survey, which included vignettes based on Max, the character with autism from Parenthood and Becky, the character with Down syndrome from Glee as well as the adapted Intellectual Disabilities Literacy Scale. Based on 300 responses, key differences were noted in the hypothesized direction on the assessed variables (symptom recognition, causal beliefs, and treatment beliefs) between Parenthood and Glee viewers and non-viewers. Findings are discussed in the context of practical implications and methodological limitations.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"289-305"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121064","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The first 1001 days: A scoping review of parenting interventions strengthening good enough parenting in parents with intellectual disabilities. 最初的1001天:对加强智力残疾父母良好教养的育儿干预的范围审查。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2023-12-05 DOI: 10.1177/17446295231219301

Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen, Bram Orobio de Castro

{"title":"The first 1001 days: A scoping review of parenting interventions strengthening good enough parenting in parents with intellectual disabilities.","authors":"Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen, Bram Orobio de Castro","doi":"10.1177/17446295231219301","DOIUrl":"10.1177/17446295231219301","url":null,"abstract":"There are concerns about parents' parenting skills with intellectual disabilities. However, it is reported that parents with intellectual disabilities show good enough parenting if they are supported effectively and in line with their needs. This scoping review identifies and critically evaluates preventive interventions for parents with intellectual disabilities and a cumulation of multiple and complex problems that aim to prepare them for good enough parenting. Six interventions were identified, with preliminary to strong indications of effectiveness. Although none of the interventions focused on all conditions of good enough parenting and only one intervention incorporated all seven key elements to effectively work with parents with intellectual disabilities, the limited evidence on the effectiveness of these interventions suggests that significant and societally relevant effects on parents' knowledge and skills can be attained. This suggests that more comprehensive early preventive interventions with rigorous evaluations can have a significant impact.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"447-468"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12084667/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138483212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter? 智障儿童父母的家庭生活质量：心理压力和父母参与是否重要？

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-05-21 DOI: 10.1177/17446295241254624

Sanyin Cheng, Jiaqi Li, Qiaoqiao Li, Xuxu Li, Yan Luo

{"title":"Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter?","authors":"Sanyin Cheng, Jiaqi Li, Qiaoqiao Li, Xuxu Li, Yan Luo","doi":"10.1177/17446295241254624","DOIUrl":"10.1177/17446295241254624","url":null,"abstract":"Background: The psychological stress of parents and improving family quality of life (FQoL) are continuing concerns for families of children with intellectual disability. We need to identify further ways to reduce their stress and improve their FQoL in China. Method: Examine the interrelations between psychological stress, parental involvement, and FQoL for parents with intellectual disability in mainland China. Four hundred sixty seven parents of children with intellectual disability completed instruments measuring variables. Structural equation modelling (SEM) was employed to examine the interrelations. Results: Psychological stress, directly and indirectly, influenced parental involvement in FQoL. Physical and mental response (PMR) and risk awareness (RA) had a positive direct effect on FQoL, and optimistic hope (OH) had a negative effect on FQoL. Conclusions: Psychological stress affects FQoL of parents with children with intellectual disability in complex ways. Policies should be developed to help parents with children with disability decrease stress and develop scientific parental involvement.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"331-348"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141076801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Triple-P: Interaction of mother-adolescent with intellectual and developmental disability. Triple-P：母亲与患有智力和发育障碍的青少年之间的互动。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2023-12-21 DOI: 10.1177/17446295231224125

Seyyedeh Somayyeh Jalil-Abkenar

引用次数: 0