Journal of Intellectual Disabilities最新文献

Assessing the quality of online resources for inclusive research methods: Insights from a 2024 rapid review. 评估包容性研究方法的在线资源质量：来自2024年快速回顾的见解。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-14 DOI: 10.1177/17446295251345968

Audrey Hodgins, Melanie Beres, Munazza Tahir, Virginie Cobigo

引用次数: 0

"They helped me stand on my own two feet": Canadian parents with intellectual disabilities in child protection. "他们帮助我自力更生"：儿童保护中的加拿大智障父母。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-10-25 DOI: 10.1177/17446295241296215

Munazza Tahir, Virginie Cobigo

{"title":"\"They helped me stand on my own two feet\": Canadian parents with intellectual disabilities in child protection.","authors":"Munazza Tahir, Virginie Cobigo","doi":"10.1177/17446295241296215","DOIUrl":"10.1177/17446295241296215","url":null,"abstract":"Research on the lived experience of Canadian parents with intellectual disabilities involved in child protection is limited, particularly inclusive research with parents with intellectual disabilities involved in Canada's changing child protection system. This inclusive study was done in collaboration with a co-researcher with intellectual disabilities who had lived experience as a parent. Thirteen parents from three Canadian regions participated in semistructured interviews about their involvement in child protection. Four major themes emerged in the findings: 1) key supports that contributed to positive outcomes; 2) parents' attitudes toward child protection agencies and perceived attitudes about themselves; 3) systemic barriers impacting accessibility and the child protection experience; and 4) parents' advice to other parents and professionals in child protection. This study provides a promising picture of child protection agencies as a key support despite existing barriers. Implications for social service providers are offered and areas for further exploration are discussed.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"349-370"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12084660/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The experience of parents of children with intellectual disabilities/autism who experienced the Kahramanmaraş earthquake in Türkiye. 智力残疾/自闭症儿童的父母在经历了土耳其的kahramanmaraki地震后的经历。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-12-09 DOI: 10.1177/17446295241307409

Candan Hasret Şahin, Ali Kaya

引用次数: 0

Being a sibling of a child with intellectual disability from the perspective of mothers: A qualitative study. 从母亲的角度看智障儿童的兄弟姐妹：定性研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-11-19 DOI: 10.1177/17446295241301851

Fatma Dinç, Aylin Kurt, Emine Güneş Şan

引用次数: 0

Parenthood and Glee: An online study to examine differences between viewers and non-viewers of television shows featuring a character with a developmental disability. 为人父母》和《欢乐合唱团》：一项在线研究，旨在探讨观众和非观众在观看以发育障碍人士为主角的电视节目时的差异。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-03-14 DOI: 10.1177/17446295241239103

Aesha John, Spencer Evans, Emily Dow

{"title":"Parenthood and Glee: An online study to examine differences between viewers and non-viewers of television shows featuring a character with a developmental disability.","authors":"Aesha John, Spencer Evans, Emily Dow","doi":"10.1177/17446295241239103","DOIUrl":"10.1177/17446295241239103","url":null,"abstract":"We present findings from our study, which examined whether ability to identify Down syndrome and autism was linked to participants' willingness to maintain social contact with individuals with the respective conditions. Additionally, we explored whether viewers and non-viewers of Parenthood and Glee, television shows featuring a character with autism and Down syndrome respectively, differed in their awareness, beliefs regarding causes and interventions, and desire to maintain social proximity with individuals with these conditions. Participants completed an online survey, which included vignettes based on Max, the character with autism from Parenthood and Becky, the character with Down syndrome from Glee as well as the adapted Intellectual Disabilities Literacy Scale. Based on 300 responses, key differences were noted in the hypothesized direction on the assessed variables (symptom recognition, causal beliefs, and treatment beliefs) between Parenthood and Glee viewers and non-viewers. Findings are discussed in the context of practical implications and methodological limitations.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"289-305"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121064","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The first 1001 days: A scoping review of parenting interventions strengthening good enough parenting in parents with intellectual disabilities. 最初的1001天:对加强智力残疾父母良好教养的育儿干预的范围审查。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2023-12-05 DOI: 10.1177/17446295231219301

Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen, Bram Orobio de Castro

{"title":"The first 1001 days: A scoping review of parenting interventions strengthening good enough parenting in parents with intellectual disabilities.","authors":"Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen, Bram Orobio de Castro","doi":"10.1177/17446295231219301","DOIUrl":"10.1177/17446295231219301","url":null,"abstract":"There are concerns about parents' parenting skills with intellectual disabilities. However, it is reported that parents with intellectual disabilities show good enough parenting if they are supported effectively and in line with their needs. This scoping review identifies and critically evaluates preventive interventions for parents with intellectual disabilities and a cumulation of multiple and complex problems that aim to prepare them for good enough parenting. Six interventions were identified, with preliminary to strong indications of effectiveness. Although none of the interventions focused on all conditions of good enough parenting and only one intervention incorporated all seven key elements to effectively work with parents with intellectual disabilities, the limited evidence on the effectiveness of these interventions suggests that significant and societally relevant effects on parents' knowledge and skills can be attained. This suggests that more comprehensive early preventive interventions with rigorous evaluations can have a significant impact.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"447-468"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12084667/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138483212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Triple-P: Interaction of mother-adolescent with intellectual and developmental disability. Triple-P：母亲与患有智力和发育障碍的青少年之间的互动。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2023-12-21 DOI: 10.1177/17446295231224125

Seyyedeh Somayyeh Jalil-Abkenar

引用次数: 0

Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter? 智障儿童父母的家庭生活质量：心理压力和父母参与是否重要？

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-05-21 DOI: 10.1177/17446295241254624

Sanyin Cheng, Jiaqi Li, Qiaoqiao Li, Xuxu Li, Yan Luo

{"title":"Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter?","authors":"Sanyin Cheng, Jiaqi Li, Qiaoqiao Li, Xuxu Li, Yan Luo","doi":"10.1177/17446295241254624","DOIUrl":"10.1177/17446295241254624","url":null,"abstract":"Background: The psychological stress of parents and improving family quality of life (FQoL) are continuing concerns for families of children with intellectual disability. We need to identify further ways to reduce their stress and improve their FQoL in China. Method: Examine the interrelations between psychological stress, parental involvement, and FQoL for parents with intellectual disability in mainland China. Four hundred sixty seven parents of children with intellectual disability completed instruments measuring variables. Structural equation modelling (SEM) was employed to examine the interrelations. Results: Psychological stress, directly and indirectly, influenced parental involvement in FQoL. Physical and mental response (PMR) and risk awareness (RA) had a positive direct effect on FQoL, and optimistic hope (OH) had a negative effect on FQoL. Conclusions: Psychological stress affects FQoL of parents with children with intellectual disability in complex ways. Policies should be developed to help parents with children with disability decrease stress and develop scientific parental involvement.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"331-348"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141076801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A systematic review of attachment interventions for people with intellectual disability and their caregivers. 针对智障人士及其照顾者的依恋干预措施的系统性回顾。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-10-04 DOI: 10.1177/17446295241289734

Ruby Ramsden, Emily Reeves, Eve Whitwell, Nicola Lane, Helen K Fletcher

{"title":"A systematic review of attachment interventions for people with intellectual disability and their caregivers.","authors":"Ruby Ramsden, Emily Reeves, Eve Whitwell, Nicola Lane, Helen K Fletcher","doi":"10.1177/17446295241289734","DOIUrl":"10.1177/17446295241289734","url":null,"abstract":"ObjectiveThe current mixed-methods systematic review evaluated available literature to find out which attachment-based interventions have been implemented for people with intellectual disability and whether they are efficacious and acceptable.MethodsFive databases were searched (in July 2023 and April 2024), using terms related to intellectual disability and attachment-based interventions. The search yielded 793 papers; 15 papers (13 studies) met inclusion criteria. Relevant data was extracted from each study. Paper quality was appraised using the Mixed Methods Appraisal Tool. Findings were synthesised in an integrative review.ResultsOf the included studies, 7 had people with intellectual disability as participants and 6 had their caregivers. Interventions included education, psychotherapy, technology assisted therapy, video interaction guidance/feedback and circle of security. Research methods varied.ConclusionsEvidence for efficacy and acceptability of interventions was mixed but promising. Most studies had limited generalisability. Therefore, further research is required. Pre-registration with PROSPERO [351287].","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"469-499"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12084664/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142376166","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Information needs of caregivers of adults with intellectual and/or developmental disabilities in India. 印度智障和/或发育障碍成人照顾者的信息需求。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-05-15 DOI: 10.1177/17446295241254933

Sumithra Murthy, Sarah Parker Harris, Kelly Hsieh

{"title":"Information needs of caregivers of adults with intellectual and/or developmental disabilities in India.","authors":"Sumithra Murthy, Sarah Parker Harris, Kelly Hsieh","doi":"10.1177/17446295241254933","DOIUrl":"10.1177/17446295241254933","url":null,"abstract":"Many families of adults with intellectual and/or developmental disabilities in India experience difficulty in accessing services/supports, due to lack of awareness/knowledge of disability rights/laws and available services, and in accessing the services. There remains insufficient research on the information needs of these caregivers and on designing interventions that aim to increase their awareness/knowledge about human rights and supports/services. A strengths-based mixed methods needs assessment was conducted to understand the information needs of these family caregivers. Results showed that caregivers ≥50 years had significantly higher information needs than younger caregivers. Specifically, caregivers with no proficiency in English needed more information on the available services for the care recipients (n = 100). Qualitative results showed that very few caregivers had any awareness or access to information on human rights, disability-related laws/policies or available supports/services (n = 15). Study findings underscore the government's role in improving awareness-raising initiatives and imparting the information in multiple Indian languages.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"306-330"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140946153","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0