Journal of Intellectual Disabilities最新文献_第2页

Factors affecting the feelings of safety among individuals with mild intellectual disabilities and severe challenging behaviour in residential care: A qualitative study of professional and service users' perspectives. 影响住宿护理中轻度智障者和有严重挑战行为者安全感的因素：对专业人员和服务使用者观点的定性研究。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-06-18 DOI: 10.1177/17446295241246569

Suzanne Lokman, Roland Bal, Robert Didden, Petri Jcm Embregts

{"title":"Factors affecting the feelings of safety among individuals with mild intellectual disabilities and severe challenging behaviour in residential care: A qualitative study of professional and service users' perspectives.","authors":"Suzanne Lokman, Roland Bal, Robert Didden, Petri Jcm Embregts","doi":"10.1177/17446295241246569","DOIUrl":"10.1177/17446295241246569","url":null,"abstract":"This qualitative study focuses on what feeling safe means for people with mild intellectual disabilities and severe challenging behaviour, and which factors affect their sense of safety. Thematic analysis was used to analyse data collected during (1) ethnographic longitudinal research and (2) interviews and focus groups among professionals and service users. Feelings of safety were related to three main themes: (1) a physical environment that reduces risks and temptations; (2) a reliable, predictable, and supportive environment; and (3) an accepting environment that enables service users to establish a normal life. An analysis of which factors affect service users' sense of safety identified 20 themes (e.g. team climate) and 34 subthemes (e.g. interactions with other service users). Many of these factors were interconnected. Future research should explore what residential service organisations for people with intellectual disabilities and external actors (e.g. the police) can do to promote service users' feelings of safety.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"607-628"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397534/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141421387","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base. 将智力和其他认知障碍人士纳入研究和评估团队：对经验知识库的范围审查。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2023-07-18 DOI: 10.1177/17446295231189912

Golnaz Ghaderi, Peter Milley, Rosemary Lysaght, Virginie Cobigo

{"title":"Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base.","authors":"Golnaz Ghaderi, Peter Milley, Rosemary Lysaght, Virginie Cobigo","doi":"10.1177/17446295231189912","DOIUrl":"10.1177/17446295231189912","url":null,"abstract":"We conducted a rapid scoping review of empirical studies to identify how persons with intellectual and other cognitive disabilities have been engaged as active members of research and evaluation teams. We conducted a literature search using a systematic method that accessed peer reviewed studies in relevant library databases and all major evaluation journals. The search resulted in 6,624 potential articles, of which 32 met the inclusion criteria for this study. The findings address three categories of interest: 1) methodological underpinnings and practical justifications for using inclusive approaches, 2) different inclusion processes, and 3) reflections by researchers with and without intellectual and other cognitive disabilities. Findings provide conceptual and practical insights for researchers and evaluators when designing inclusive methods involving persons with intellectual and other cognitive disabilities. Gaps in inclusive research and evaluation are discussed and suggestions for future research are proposed.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"706-726"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397518/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9860800","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Interplay between representations, practices, and stigma variables towards people with intellectual disabilities among healthcare professionals: A cross-sectional study. 医护人员对智障人士的表述、做法和成见变量之间的相互作用：一项横断面研究。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-06-06 DOI: 10.1177/17446295241259913

Laurie Lucassen, Romina Rinaldi, Elise Batsele

{"title":"Interplay between representations, practices, and stigma variables towards people with intellectual disabilities among healthcare professionals: A cross-sectional study.","authors":"Laurie Lucassen, Romina Rinaldi, Elise Batsele","doi":"10.1177/17446295241259913","DOIUrl":"10.1177/17446295241259913","url":null,"abstract":"Disparities in healthcare are observed among people with intellectual disabilities. They generally face stigmatisation and negative attitudes from healthcare professionals. The aim of this study is to investigate the link of diagnostic label and social distance on inclusive health representations and practices towards people with intellectual disabilities among healthcare professionals. We conducted an online survey of 163 healthcare professionals living in French-speaking Belgium. The results highlighted that the diagnostic label and a lower social distance predict better representations and practices in inclusive health. In addition, an analysis of mediation showed the mediating effect of social distance on the link between being in contact with people with intellectual disabilities (through employment) and better representations and practices in inclusive health. This study enabled us to assess the interplay between stigma variables and healthcare professionals' representations and practices towards people with intellectual disabilities and to identify potential facilitators for promoting health equity.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"574-589"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141262175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Photographic visualization of stories: documenting the experiences of people with intellectual disabilities with guided photovoice. 故事的摄影可视化：通过有指导的摄影荐言记录智障人士的经历。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-01-23 DOI: 10.1177/17446295241229002

Femke Scheffers, Xavier Moonen, Eveline van Vugt

{"title":"Photographic visualization of stories: documenting the experiences of people with intellectual disabilities with guided photovoice.","authors":"Femke Scheffers, Xavier Moonen, Eveline van Vugt","doi":"10.1177/17446295241229002","DOIUrl":"10.1177/17446295241229002","url":null,"abstract":"People with intellectual disabilities are often excluded from participation in research, whilst research has the potential to enhance positive change in their lives. In the current study, using a guided photovoice procedure, the experiences of people with intellectual disabilities regarding participation in research are evaluated. A total of 14 participants with intellectual disabilities were interviewed using guided photovoice. Through thematical analyses the experiences of people with intellectual disabilities regarding photovoice are discussed. Benefits were taking time, visual cues and the opportunity to speak out. Challenges were abstract concepts and aftercare. Guided photovoice helps to better understand the perspective of people with intellectual disabilities and thus can help to improve their quality of life. People with intellectual disabilities were interested in taking part in the current research project and experienced participating as a positive experience. However careful planning and expertise in communication with people with intellectual disabilities is necessary to include people with intellectual disabilities in research.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"539-554"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397533/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139542504","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The role of people with intellectual disability in intellectual disability research: A systematic review of Delphi studies. 智障人士在智障研究中的作用：德尔菲研究系统回顾。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2023-12-27 DOI: 10.1177/17446295231225272

Diana K Piantedosi, Amie O'Shea

{"title":"The role of people with intellectual disability in intellectual disability research: A systematic review of Delphi studies.","authors":"Diana K Piantedosi, Amie O'Shea","doi":"10.1177/17446295231225272","DOIUrl":"10.1177/17446295231225272","url":null,"abstract":"The design of intellectual disability research warrants critical examination, as the knowledge produced through these approaches informs evidence-based practices. People with lived experience should be recognised as experts in understanding their own bodies, conditions, and treatment. This systematic review examined the design of Delphi studies to assess the extent to which people with intellectual disability are included as experts. The Delphi method, which gathers structured feedback from experts, offers insight into how lived experience is valued as a source of knowledge. Across fifty-five publications reporting on forty-nine separate Delphi studies that met our inclusion criteria, only nine involved people with intellectual disability directly. In contrast, family and informal caregivers were more frequently represented as experts, and their perspectives carried greater influence. The findings of this review include guidance for practitioners and researchers to facilitate greater participatory roles of people with intellectual disability.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"727-742"},"PeriodicalIF":1.4,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397557/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139049533","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A qualitative analysis of expert interviews on safety and risk. 对安全与风险问题专家访谈的定性分析。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-09-01 Epub Date: 2024-08-24 DOI: 10.1177/17446295241277920

Natalie M Driscoll, Peter F Gerhardt, Mary Jane Weiss, Lisa M Tereshko, Mark R Dixon, Ellie Kazemi, David J Cox

引用次数: 0

How parents of young adults with intellectual disability make sense of their experiences of transitioning from learning disability CAMHS to learning disability adult health service: An IPA study. 智障青年的父母如何理解他们从学习障碍CAMHS过渡到学习障碍成人健康服务的经历：一项IPA研究。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-08-25 DOI: 10.1177/17446295251369599

Abisoye Sotonwa, Richard Meiser-Stedman, Corrina Willmoth

{"title":"How parents of young adults with intellectual disability make sense of their experiences of transitioning from learning disability CAMHS to learning disability adult health service: An IPA study.","authors":"Abisoye Sotonwa, Richard Meiser-Stedman, Corrina Willmoth","doi":"10.1177/17446295251369599","DOIUrl":"https://doi.org/10.1177/17446295251369599","url":null,"abstract":"Whilst existing literature describes the experience of transitioning in mainstream mental health services, little is known about specialist learning disability services. The following study aimed to explore how parents of young adults, aged 17 to 21, with intellectual disability make sense of their experiences of transitioning from learning disability Child and Adolescent Mental Health Service (CAMHS) to adult community learning disability teams. Semi-structured interviews were conducted with four parents of individuals diagnosed with a learning disability who were receiving care in the adult community learning disability team. Transcripts were analysed using interpretative phenomenological analysis. Three group experiential themes emerged: impact of transition on sense of control, making sense of challenges experienced, and wishing for a better service. The findings highlighted experiences of parents transitioning both through specialist health and social care services. Future research should seek to understand the impact of race on transition and experience of service.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251369599"},"PeriodicalIF":1.4,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973890","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluating a toolkit for end-of-life care planning with people with intellectual disabilities: An exploration of implementation outcomes within intellectual disability social care services. 评估智障人士临终关怀计划工具包：智障社会关怀服务实施结果的探索。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-08-25 DOI: 10.1177/17446295251367687

Andrea Bruun, Amanda Cresswell, David Jeffrey, Leon Jordan, Richard Keagan-Bull, Jo Giles, Faye Gardiner, Meg Wilding, Nicola Payne, Sarah Swindells, Sarah L Gibson, Rebecca Anderson-Kittow, Irene Tuffrey-Wijne

{"title":"Evaluating a toolkit for end-of-life care planning with people with intellectual disabilities: An exploration of implementation outcomes within intellectual disability social care services.","authors":"Andrea Bruun, Amanda Cresswell, David Jeffrey, Leon Jordan, Richard Keagan-Bull, Jo Giles, Faye Gardiner, Meg Wilding, Nicola Payne, Sarah Swindells, Sarah L Gibson, Rebecca Anderson-Kittow, Irene Tuffrey-Wijne","doi":"10.1177/17446295251367687","DOIUrl":"https://doi.org/10.1177/17446295251367687","url":null,"abstract":"This study used qualitative surveys and focus groups to evaluate the implementation of an end-of-life care planning toolkit within intellectual disability social care services, by exploring whether it is beneficial and workable in this setting. Participants were staff trialling the toolkit and submitting feedback forms. Focus groups with support staff and service managers were also conducted. Feedback forms and focus group transcripts were coded using a modified framework approach. Data and analyses were discussed within the team (including researchers with intellectual disabilities). Thirty-four participants submitted 44 feedback forms. Two focus groups with seven participants were held. Participants found the toolkit approach and resources acceptable and appropriate, prompting positive eye-opening conversations. There were significant adoption and feasibility implementation challenges such as printing the resources, lack of time, and the sensitive end-of-life topic. Exploration of how to overcome these challenges is needed to successfully implement the toolkit in social care services.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251367687"},"PeriodicalIF":1.4,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Balancing accessible teaching and knowledge acquisition: How teachers describe their reading instruction for students with intellectual disability. 平衡无障碍教学和知识获取：教师如何描述他们对智障学生的阅读指导。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-08-22 DOI: 10.1177/17446295251367682

Karin Nilsson, Gunilla Thunberg, Emil Holmer, Jenny Samuelsson, Mikael Heimann, Monica Reichenberg, Lisa Palmqvist

引用次数: 0

"I would prefer to be prescribing less": Perceptions on antipsychotics and challenging behaviour. “我宁愿少开处方”：对抗精神病药物和挑战行为的看法。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-07-27 DOI: 10.1177/17446295251362348

Caitlin Norris-Grey, Aileen Carmen

{"title":"\"I would prefer to be prescribing less\": Perceptions on antipsychotics and challenging behaviour.","authors":"Caitlin Norris-Grey, Aileen Carmen","doi":"10.1177/17446295251362348","DOIUrl":"https://doi.org/10.1177/17446295251362348","url":null,"abstract":"Aims: Challenging behaviour in individuals with intellectual disabilities affects quality of life and often results in antipsychotic use, despite guidelines recommending non-drug approaches as the first line. This study explores healthcare team perspectives on managing challenging behaviour, barriers to reducing antipsychotic overprescription, and possible solutions. Methods: A cross-sectional qualitative study using thematic analysis of an online team discussion and survey. Findings were used to develop a driver diagram of proposed strategies. Results: Three themes were identified: (1) varied views on current prescribing practices, with concerns about overuse and limited awareness of guidance; (2) key barriers including staffing shortages, reluctance to reduce medication, poor communication, lack of structured reviews, and absence of outcome measures; and (3) proposed solutions such as family involvement, regular reviews, improved outcome tracking, staff education, and clear care pathways. Conclusion: Addressing system-level barriers through coordinated team-based approaches may reduce reliance on antipsychotics and improve care.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251362348"},"PeriodicalIF":1.4,"publicationDate":"2025-07-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0