Journal of Intellectual Disabilities最新文献_第2页

The experience of parents of children with intellectual disabilities/autism who experienced the Kahramanmaraş earthquake in Türkiye. 智力残疾/自闭症儿童的父母在经历了土耳其的kahramanmaraki地震后的经历。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-09 DOI: 10.1177/17446295241307409

Candan Hasret Şahin, Ali Kaya

{"title":"The experience of parents of children with intellectual disabilities/autism who experienced the Kahramanmaraş earthquake in Türkiye.","authors":"Candan Hasret Şahin, Ali Kaya","doi":"10.1177/17446295241307409","DOIUrl":"https://doi.org/10.1177/17446295241307409","url":null,"abstract":"In the Kahramanmaraş earthquake on February 6, 2023, which was described as the most severe earthquake on land worldwide and the disaster of century, the loss of life and material losses reached serious levels. In this study, it was aimed to examine the experiences of 21 individuals diagnosed with autism spectrum disorder and intellectual disabilities affected by the Kahramanmaraş earthquake by interviewing their families regarding this process. Fifteen parents of one/more children diagnosed with intellectual disability/autism spectrum disorder participated in this study, which was conducted with a phenomenological design, one of the qualitative research designs. These themes are (a) the impact of the earthquake on the child with autism spectrum disorder/intellectual disability, (b) the impact of the earthquake on the parents, (c) difficulties experienced and (d) requirements. When the themes are examined, parents state that their children face serious physical, psychological and educational harm, their behavioral problems increase due to trauma they experience.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241307409"},"PeriodicalIF":1.5,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Implementing the Multi-Disciplinary Expertise Team method to reduce involuntary care in intellectual disability care: multi-methods study evaluating adaptation and effectiveness. 实施多学科专家团队方法减少智障护理中的非自愿护理：多方法适应性和有效性评估研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-09 DOI: 10.1177/17446295241307061

Esther Bisschops, Lianne Bakkum, J Clasien de Schipper, Britt Metselaar, Simone van der Plas, Petri Embregts, Carlo Schuengel

{"title":"Implementing the Multi-Disciplinary Expertise Team method to reduce involuntary care in intellectual disability care: multi-methods study evaluating adaptation and effectiveness.","authors":"Esther Bisschops, Lianne Bakkum, J Clasien de Schipper, Britt Metselaar, Simone van der Plas, Petri Embregts, Carlo Schuengel","doi":"10.1177/17446295241307061","DOIUrl":"https://doi.org/10.1177/17446295241307061","url":null,"abstract":"Involuntary care in intellectual disability care may be reduced by deployment of multidisciplinary consultation. The Multi-Disciplinary Expertise Team (MDET) method proved effective in a previous trial on increasing involuntary care reduction. The current study aimed to examine how four organizations adapted MDET during implementation, and tested whether these versions were also effective. Semi-structured interviews with MDET-coordinators were analyzed using the Framework Reporting Adaptions and Modifications-Expanded. A quasi-experimental interrupted time-series design tested change in weekly counts of involuntary care recordings from before to during MDET implementation, in care homes that implemented MDET (n = 24) compared to care homes providing care-as-usual (CAU). Adaptations to MDET varied. These included implementing MDET without an independent MDET-team and loosening recordings of involuntary care. No differential changes in recordings were found between the implementation- and CAU-groups. Scaling-out MDET to other organizations led to adaptations that may have undermined its effects on reducing involuntary care.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241307061"},"PeriodicalIF":1.5,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Barriers and facilitators to implementing transition services for students with intellectual disabilities in the kingdom of Saudi Arabia: A systematic review. 沙特阿拉伯王国实施智力残疾学生过渡服务的障碍和促进因素：一项系统综述。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-04 DOI: 10.1177/17446295241301853

Sarah Alfawzan, Norah Almulhim

{"title":"Barriers and facilitators to implementing transition services for students with intellectual disabilities in the kingdom of Saudi Arabia: A systematic review.","authors":"Sarah Alfawzan, Norah Almulhim","doi":"10.1177/17446295241301853","DOIUrl":"https://doi.org/10.1177/17446295241301853","url":null,"abstract":"In the Kingdom of Saudi Arabia, a deficiency exists in comprehensive assessments of transitional programs and services tailored for students with intellectual disabilities. The present research is a systematic review to discuss the barriers to planning and implementing transitional services for students with intellectual disabilities in the Kingdom of Saudi Arabia and possible facilitators. Consequently, a thorough systematic review and exploration were conducted across ERIC - ProQuest, Education Journals - ProQuest, Google Scholar, EBSCO, Web of Science, and Scopus. The findings spotlighted various barriers from the perspective of stakeholders, categorising them as educational, familial, societal, and functional barriers. Among these, educational obstacles emerged as the most significant challenges impeding the employment prospects of students with intellectual disabilities. The results further disclosed several suggested facilitators to address these challenges, encompassing educational interventions and collaborative practices. This study furnishes decision-makers in the Kingdom, along with professionals in the realm of special education and parents, with valuable insights into the prevailing challenges illuminated by recent studies in the field, as well as the most prominent proposed solutions.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241301853"},"PeriodicalIF":1.5,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142773528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Transition from sheltered workplace: Vocational skills are not the main concern. 从庇护工作场所过渡：职业技能不是主要问题。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-08-02 DOI: 10.1177/17446295231193190

Ahmet Bilal Özbek, Alev Girli

引用次数: 0

Pushing the boundaries of digital social contact: Experiences of people with disabilities and their social networks during the COVID-19 pandemic. 突破数字社交接触的界限：新冠肺炎大流行期间残疾人及其社交网络的经历。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-10-25 DOI: 10.1177/17446295231210021

Lianne Bakkum, Lotte Piekema, Linda Douma, Carlo Schuengel, Paula Sterkenburg, Esmee Adam, Annet Ten Brug, Noud Frielink, Petri Embregts, Anne Tharner

{"title":"Pushing the boundaries of digital social contact: Experiences of people with disabilities and their social networks during the COVID-19 pandemic.","authors":"Lianne Bakkum, Lotte Piekema, Linda Douma, Carlo Schuengel, Paula Sterkenburg, Esmee Adam, Annet Ten Brug, Noud Frielink, Petri Embregts, Anne Tharner","doi":"10.1177/17446295231210021","DOIUrl":"10.1177/17446295231210021","url":null,"abstract":"During the COVID-19 pandemic, many people with intellectual disabilities living in care facilities could not receive visitors. Health authorities suggested the use of digital social contact as an alternative for in-person visits. We examined how people with intellectual disabilities living in care facilities experienced the use of digital social contact with their informal social network throughout 2020. Residents, their relatives, volunteer visitors, direct support staff, and care facility managers (N = 283) completed an online questionnaire, of whom 35 participated in an interview. Video calling and in-person visits were among the most common forms of staying in touch. Experiences with digital social contact depended on residents' abilities and support needs, and on preconditions, such as staff availability. The first phases of the pandemic led to experiences of possibilities and benefits of using digital social contact as complementary to in-person contact for people with different levels of intellectual disability, also after the pandemic.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"940-961"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11585181/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50163231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Intellectual deficits and restoration to competency to stand trial: An examination of IQ cut off scores. 智力缺陷和恢复接受审判的能力:一项IQ考试扣分。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-11-27 DOI: 10.1177/17446295231218782

Karen Grabowski, Robert Morgan, Faith Scanlon

{"title":"Intellectual deficits and restoration to competency to stand trial: An examination of IQ cut off scores.","authors":"Karen Grabowski, Robert Morgan, Faith Scanlon","doi":"10.1177/17446295231218782","DOIUrl":"10.1177/17446295231218782","url":null,"abstract":"Intellectual functioning impacts defendants' competence to stand trial, though research on this population remains limited. This study replicated and advanced prior work, focusing on defendants' demographic, clinical, cognitive, and criminal justice variables and their association with length of hospitalization and restoration determinations. Participants were 74 male and female criminal defendants in a midwestern state who were adjudicated incompetent to stand trial, had a diagnosis related to intellectual deficits, and completed competency restoration. Most defendants (83.7%) were restored to competency. Demographic factors were unrelated to restoration outcomes; violence of alleged offense predicted shorter hospitalization. Receiver Operating Characteristic Curve analyses determined an IQ score cut-off of 63.5 for which participants were of greater likelihood to be determined restored, providing guidance on the likelihood of restoration for defendants with intellectual disability related diagnoses. Specifically, this score can be used with clinical data to inform competency determinations for defendants with cognitive deficits.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1038-1052"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138446541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessing inter-rater agreement of the intellectual disability-frailty index short form: A descriptive pilot study. 评估智力残疾虚弱指数简表的评分者间一致性：一项描述性试点研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-11-03 DOI: 10.1177/17446295231213436

Heather Hirst, Jennifer Campbell, Samantha Chamberlin, Ibukun Olagunju, Frank Bird, James K Luiselli

{"title":"Assessing inter-rater agreement of the intellectual disability-frailty index short form: A descriptive pilot study.","authors":"Heather Hirst, Jennifer Campbell, Samantha Chamberlin, Ibukun Olagunju, Frank Bird, James K Luiselli","doi":"10.1177/17446295231213436","DOIUrl":"10.1177/17446295231213436","url":null,"abstract":"Frailty is a health concern for many adults with intellectual disability and should be measured to detect at-risk conditions, monitor disease, plan treatment, and gauge mortality. This descriptive pilot study evaluated measurement consistency (inter-rater agreement) of the Intellectual Disability-Frailty Index Short Form among multiple assessors with 20 adults (M age = 48.3 years) who had intellectual and multiple disabilities. Agreement percentages were computed for (a) non-frail, pre-frail, and frail categories derived from total index scores, and (b) each of 17 deficits listed on the form. Low average inter-rater agreement (<85%) was obtained on the index frail categories, several of the assessed deficits had acceptable inter-rater agreement (84.2-100%), while the majority of deficits were associated with moderate-to-low agreement percentages. Though research supports the Intellectual Disability-Frailty Index Short Form as a valid and practical frailty assessment instrument, our findings suggest that full-scale inter-rater agreement must be improved by adding more specificity to the form, clarifying instructions for assessors, and providing competency-based training in assessment implementation.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1109-1117"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71487311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Jordanian mothers' perspectives on having their intellectually disabled daughters undergo hysterectomies: A qualitative study. 约旦母亲对智障女儿接受子宫切除手术的看法：定性研究。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-07-27 DOI: 10.1177/17446295231192735

Nawaf S Al-Zyoud, Mizyed A Hyassat, Osamah M Bataineh

引用次数: 0

Application of the positive and negative affect scale in Chinese children with intellectual disability. 正、负情感量表在中国智力残疾儿童中的应用。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-10-28 DOI: 10.1177/17446295231208399

Xiaoyu Song, Minjie Ma, Xue Ma, Ke Zhao, Long Gao, Tingzhao Wang

引用次数: 0

Good life in old age: Qualitative interviews about ageing with older adults with mild intellectual disability, prior to an educational intervention. 老年美好生活：在教育干预之前，对患有轻度智力残疾的老年人进行关于老龄化的定性采访。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2024-12-01 Epub Date: 2023-11-11 DOI: 10.1177/17446295231213689

Marianne Holmgren, Gerd Ahlström

{"title":"Good life in old age: Qualitative interviews about ageing with older adults with mild intellectual disability, prior to an educational intervention.","authors":"Marianne Holmgren, Gerd Ahlström","doi":"10.1177/17446295231213689","DOIUrl":"10.1177/17446295231213689","url":null,"abstract":"Background: Knowledge about ageing from the perspective of people with intellectual disability is extremely scarce, which means a lack of evidence-based interventions for healthy ageing adjusted to their needs.Aim: To investigate how people with intellectual disability experience ageing, prior to an educational intervention.Methods: Twenty-six persons with mild intellectual disability, age 42-74 (mean 61.3) were interviewed and the text was analyzed qualitatively.Results: The main findings are reflected in the themes Live for today - tomorrow you are old and Need of support to enable a meaningful ageing. The participants avoided thinking about ageing, which they associated with retirement, loneliness and social isolation, increased need for help in everyday life, worsening health and death. Meaningful ageing meant continuance of leisure activities and working as long as possible.Conclusions: Interventions to prepare people with mild intellectual disability for healthy ageing must take into account these people's loneliness.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1118-1136"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11585186/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"72211300","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0