Journal of Intellectual Disabilities最新文献_第2页

Understanding the menopausal experiences of women with intellectual disabilities: A scoping review. 了解智力残疾妇女的绝经期经历：一项范围综述。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-03-01 Epub Date: 2023-06-15 DOI: 10.1177/17446295231182246

Katie Moore, Mary Reidy, Sinead Foran

引用次数: 0

Preventive breast health care, an embarrassing subject for women with intellectual disability. 预防性乳房保健，一个令智障妇女尴尬的话题。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-03-01 Epub Date: 2025-03-15 DOI: 10.1177/17446295251326010

Päivi Adolfsson, Cecilia Arving, Marie Lange

引用次数: 0

Corrigendum to "Validity and reliability of the persian version of the world health organization quality of life disabilities module". 世界卫生组织生活质量残疾模块波斯语版本的有效性和可靠性 "的更正。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-03-01 Epub Date: 2024-11-13 DOI: 10.1177/17446295241298333

引用次数: 0

Population-based cancer screening access needs of disabled people: A qualitative evidence synthesis. 残疾人基于人群的癌症筛查获取需求：定性证据综合。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-03-01 Epub Date: 2025-01-06 DOI: 10.1177/17446295241308708

Kumaresan Cithambaram, Deirdre Corby, Liz Hartnett, David Joyce, Lynn Swinburne, Kristi Egere, Sean Healy

{"title":"Population-based cancer screening access needs of disabled people: A qualitative evidence synthesis.","authors":"Kumaresan Cithambaram, Deirdre Corby, Liz Hartnett, David Joyce, Lynn Swinburne, Kristi Egere, Sean Healy","doi":"10.1177/17446295241308708","DOIUrl":"10.1177/17446295241308708","url":null,"abstract":"Cancer is one of the most common causes of mortality among disabled people, and population-based screening is an effective method to identify some cancers early; however, its uptake is lower among the disabled population. There is a lack of evidence regarding why they access less, and their need to access population-based screening programmes. To synthesise evidence of the experience of accessing population-based screening programmes for disabled people. A qualitative evidence synthesis (QES) was carried out by searching electronic databases including Medline, CINAHL, Web of Science Core Collection, and Scopus. Grey literature was also searched for. The search yielded 32 relevant publications. The findings are based on Levesque's conceptual framework. Several factors affect the accessibility of screening services, including people's perceptions, family support, affordability, literacy, and accessibility.ConclusionScreening services need to acknowledge the needs of disabled people and integrate reasonable accommodations to facilitate their needs.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"137-158"},"PeriodicalIF":1.4,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13049220/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142932713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A scoping review to inform an auditing framework evaluating healthcare environments for inclusion of people with intellectual disability and/or autism. 进行范围审查，为审计框架提供信息，评估医疗保健环境，以纳入智力残疾和/或自闭症患者。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-03-01 Epub Date: 2023-05-22 DOI: 10.1177/17446295231174282

Michelle Kersten, Nathan John Wilson, Amy Pracilio, Virginia Howie, Julian Trollor, Thomas Buckley, Julia Morphet, Julianne Bryce, Ken Griffin, Andrew Cashin

{"title":"A scoping review to inform an auditing framework evaluating healthcare environments for inclusion of people with intellectual disability and/or autism.","authors":"Michelle Kersten, Nathan John Wilson, Amy Pracilio, Virginia Howie, Julian Trollor, Thomas Buckley, Julia Morphet, Julianne Bryce, Ken Griffin, Andrew Cashin","doi":"10.1177/17446295231174282","DOIUrl":"10.1177/17446295231174282","url":null,"abstract":"People with intellectual disability and/or autism are likely to be in hospital more often, for longer, and have poorer health outcomes. Few audit tools exist to identify their barriers in mainstream healthcare environments. This study aimed to identify evidence of audit characteristics of healthcare contexts specifically for people with intellectual disability and/or autism, for conceptual development of an auditing framework. A scoping review of evaluations of healthcare environments was completed in January 2023. Findings were presented using the PAGER framework. Of the sixteen studies identified, most originated in the UK, nine focused on intellectual disability, four on autism, and three were concerned with mixed diagnosis. Six domains for auditing healthcare environments were identified: care imperatives, communication to individuals, understanding communication from individuals, providing supportive environments of care, supporting positive behaviour, and actions to make things go well. Further research is recommended to refine an audit framework.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"173-195"},"PeriodicalIF":1.4,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13049222/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9884779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Pilot Program for Teaching Sexuality and Relationships to Adults with Autism and Developmental Disabilities. 向自闭症和发育障碍成人传授性知识和人际关系的试点项目。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-03-01 Epub Date: 2023-12-29 DOI: 10.1177/17446295231225520

Katherine Wheeler, Alexis Favela, Jennifer Hamrick, Mary Kathryn Dillard, Fatemeh Marzban, Devender Banda

{"title":"A Pilot Program for Teaching Sexuality and Relationships to Adults with Autism and Developmental Disabilities.","authors":"Katherine Wheeler, Alexis Favela, Jennifer Hamrick, Mary Kathryn Dillard, Fatemeh Marzban, Devender Banda","doi":"10.1177/17446295231225520","DOIUrl":"10.1177/17446295231225520","url":null,"abstract":"People often have an innate interest in both platonic and romantic relationships. In fact, feelings toward sexuality and sexuality education do not differ between various individuals. Yet, autistic individuals have been shown to score significantly lower on measures of sexual awareness than their typically developing counterparts. The current project sought to investigate the benefits of a specially tailored socio-sexuality curriculum on the interpersonal relationship knowledge of 12 autistic young adults. The eight-session sexuality education intervention was carefully tailored from an existing, online guide from the Organization for Autism Research. Pre- and post-test data were collected via the Assessment of Functional Living Skills Interpersonal Relationships domain. T-tests were conducted to determine significance. Results from paired-sample t-tests indicated significant gains in interpersonal relationship knowledge from pre- to post-intervention. When provided with specifically tailored sexuality education, young autistic adults can experience socially valid, significant gains on interpersonal relationship knowledge.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"3-20"},"PeriodicalIF":1.4,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139075460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Intra- and inter-examiner Reproducibility of the menstrual hygiene management skills' rating by prepubescent girls in Japan. 日本青春期前少女月经卫生管理技能评分的考官内部和考官之间的再现性。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-03-01 Epub Date: 2024-08-19 DOI: 10.1177/17446295241276272

Satoko Tsuda, Yuki Maruyama, Chika Muroka, Chie Kondo, Satoshi Takada

{"title":"Intra- and inter-examiner Reproducibility of the menstrual hygiene management skills' rating by prepubescent girls in Japan.","authors":"Satoko Tsuda, Yuki Maruyama, Chika Muroka, Chie Kondo, Satoshi Takada","doi":"10.1177/17446295241276272","DOIUrl":"10.1177/17446295241276272","url":null,"abstract":"Prepubescent girls with intellectual disabilities and high support needs encounter difficulties with menstrual hygiene management (MHM) and require individualized education. However, no clear methodology exists for assessing the reliability and validity of premenstrual MHM skills. We developed a 17-item MHM assessment tool to determine the intra- and inter-examiner reproducibility of MHM skills. Prepubescents-9 with intellectual disabilities and 10 with typical development-were educated on menstruation and assessed by three examiners. The intra-class correlation coefficient (ICC) showed high reproducibility, with intra-examiner reproducibility (ICC [1.1]) ranging from 0.87 to 0.99, regardless of disability. Conversely, inter-examiner reproducibilities were ICC (2.1) = 0.69-0.92 and 0.50-0.94 and Kappa coefficients were 0.54-0.81 and 0.37-1.00 for girls with intellectual disability and others, respectively. Items such as lowering underwear and wrapping napkins were less reproducible despite disability. Ability did not affect reproducibility and was useful for identifying MHM changes pre- and post-menstrual education.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"38-52"},"PeriodicalIF":1.4,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142001009","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences of US college students with intellectual and developmental disabilities in developing and maintaining physical wellness. 美国智力和发育障碍大学生发展和保持身体健康的经验。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-02-23 DOI: 10.1177/17446295261428179

Alexander M Fields, Rebecca B Smith Hill, Olivia J Lewis, Madeline Castle, Rachel Gilreath, Lucas M Perez, Megan A Reynolds, Regin Dean, Chelsea V Stinnett

{"title":"Experiences of US college students with intellectual and developmental disabilities in developing and maintaining physical wellness.","authors":"Alexander M Fields, Rebecca B Smith Hill, Olivia J Lewis, Madeline Castle, Rachel Gilreath, Lucas M Perez, Megan A Reynolds, Regin Dean, Chelsea V Stinnett","doi":"10.1177/17446295261428179","DOIUrl":"https://doi.org/10.1177/17446295261428179","url":null,"abstract":"College students with intellectual and developmental disabilities in inclusive postsecondary education (IPSE) programs face unique physical wellness challenges. However, the majority of scholarship highlights family and IPSE staff perspectives as opposed to centering student voices. This study explores the lived experiences of college students with intellectual and developmental disabilities in developing and maintaining physical wellness. We used consensual qualitative research to explore physical wellness experiences gathered from semi-structured interviews of 14 college students with intellectual and developmental disabilities in an IPSE program. Following CQR guidelines, we present four fully differentiated domains organized into development, maintenance, and mediating domains. We offer implications for educators, caregivers, and IPSE staff to better support wellness behaviors and address the interconnected challenges of being a college student and living with intellectual and developmental disabilities.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261428179"},"PeriodicalIF":1.4,"publicationDate":"2026-02-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147277342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A pilot study of the Watch Me Walk program to increase the level of physical activity of older adults with intellectual disabilities. “看着我走路”项目的试点研究，旨在提高智力残疾老年人的体育活动水平。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-02-12 DOI: 10.1177/17446295261421157

Jade Paré, Diane Morin, Stéphanie Turgeon

{"title":"A pilot study of the Watch Me Walk program to increase the level of physical activity of older adults with intellectual disabilities.","authors":"Jade Paré, Diane Morin, Stéphanie Turgeon","doi":"10.1177/17446295261421157","DOIUrl":"https://doi.org/10.1177/17446295261421157","url":null,"abstract":"The importance of promoting active aging in people with intellectual disabilities is documented, but few studies have investigated adapted interventions. This pilot study documented the social validity and measured changes in physical activity (PA), self-efficacy, social support, and self-esteem following the completion of a physical activity intervention designed for the present study and co-constructed with the participants. Method: The authors used quantitative and qualitative designs. Participants were 11 adults (40-68 years old) with intellectual disabilities and 13 staff members. Results showed an improvement of the social support measures after the program and a reduction in PA at the follow-up phase. The intervention led to no significant changes in PA, self-esteem, or self-efficacy between the pretest and intervention phases. The program demonstrated a good social validity. This study showed great appreciation of the intervention by the participants but limited associations with the dependent variables. Our results help provide recommendations for potential further use and studies.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261421157"},"PeriodicalIF":1.4,"publicationDate":"2026-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146167183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Barriers and facilitators to healthcare access for adults with learning disabilities and autistic adults in England: A scoping review and meta-aggregation. 英国成人学习障碍和自闭症患者获得医疗保健的障碍和促进因素：范围审查和荟萃。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-02-09 DOI: 10.1177/17446295261422395

Matthew Cooper, Emma Tuschick, Emma L Giles, Josh Hodgson, Enya Stubbs, Jill Barker

{"title":"Barriers and facilitators to healthcare access for adults with learning disabilities and autistic adults in England: A scoping review and meta-aggregation.","authors":"Matthew Cooper, Emma Tuschick, Emma L Giles, Josh Hodgson, Enya Stubbs, Jill Barker","doi":"10.1177/17446295261422395","DOIUrl":"https://doi.org/10.1177/17446295261422395","url":null,"abstract":"Background: Adults with learning disabilities and autistic adults in England face significantly higher rates of premature mortality, 22 years earlier for those with learning disabilities and over 6 years earlier for autistic adults. Barriers to healthcare access contribute to missed diagnoses and treatments. There, the aim of this review was: What are the barriers and facilitators to healthcare appointment attendance for adults with learning disabilities and autistic adults in England? Methods: A systematic search across ten databases (March 2023; updated June 2024) identified 1,727 papers. Studies were included if they reported qualitative evidence on clinical appointment accessibility for autistic adults or adults with learning disabilities in England. Fifteen studies were included and critically appraised. Findings were synthesised using Joanna Briggs Institute meta-aggregation and interpreted through a socio-ecological lens. Findings and Conclusions: Facilitators included flexible booking systems, positive healthcare professional attitudes, and the ability to develop a positive and trusting relationship between HCPs and the person they were supporting. Barriers existed at individual, relational, organisational, and policy levels, including poor communication, inadequate appointment systems, and lack of professional knowledge. Recommendations include enhanced staff training, use of liaison nurses, flexible appointment systems, and accessible communication. Policy and structural changes are needed, though further evaluation of their impact is essential.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261422395"},"PeriodicalIF":1.4,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146150992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0