Journal of Intellectual Disabilities最新文献_第2页

A systematic review of attachment interventions for people with intellectual disability and their caregivers. 针对智障人士及其照顾者的依恋干预措施的系统性回顾。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-10-04 DOI: 10.1177/17446295241289734

Ruby Ramsden, Emily Reeves, Eve Whitwell, Nicola Lane, Helen K Fletcher

{"title":"A systematic review of attachment interventions for people with intellectual disability and their caregivers.","authors":"Ruby Ramsden, Emily Reeves, Eve Whitwell, Nicola Lane, Helen K Fletcher","doi":"10.1177/17446295241289734","DOIUrl":"10.1177/17446295241289734","url":null,"abstract":"ObjectiveThe current mixed-methods systematic review evaluated available literature to find out which attachment-based interventions have been implemented for people with intellectual disability and whether they are efficacious and acceptable.MethodsFive databases were searched (in July 2023 and April 2024), using terms related to intellectual disability and attachment-based interventions. The search yielded 793 papers; 15 papers (13 studies) met inclusion criteria. Relevant data was extracted from each study. Paper quality was appraised using the Mixed Methods Appraisal Tool. Findings were synthesised in an integrative review.ResultsOf the included studies, 7 had people with intellectual disability as participants and 6 had their caregivers. Interventions included education, psychotherapy, technology assisted therapy, video interaction guidance/feedback and circle of security. Research methods varied.ConclusionsEvidence for efficacy and acceptability of interventions was mixed but promising. Most studies had limited generalisability. Therefore, further research is required. Pre-registration with PROSPERO [351287].","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"469-499"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12084664/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142376166","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Information needs of caregivers of adults with intellectual and/or developmental disabilities in India. 印度智障和/或发育障碍成人照顾者的信息需求。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-05-15 DOI: 10.1177/17446295241254933

Sumithra Murthy, Sarah Parker Harris, Kelly Hsieh

{"title":"Information needs of caregivers of adults with intellectual and/or developmental disabilities in India.","authors":"Sumithra Murthy, Sarah Parker Harris, Kelly Hsieh","doi":"10.1177/17446295241254933","DOIUrl":"10.1177/17446295241254933","url":null,"abstract":"Many families of adults with intellectual and/or developmental disabilities in India experience difficulty in accessing services/supports, due to lack of awareness/knowledge of disability rights/laws and available services, and in accessing the services. There remains insufficient research on the information needs of these caregivers and on designing interventions that aim to increase their awareness/knowledge about human rights and supports/services. A strengths-based mixed methods needs assessment was conducted to understand the information needs of these family caregivers. Results showed that caregivers ≥50 years had significantly higher information needs than younger caregivers. Specifically, caregivers with no proficiency in English needed more information on the available services for the care recipients (n = 100). Qualitative results showed that very few caregivers had any awareness or access to information on human rights, disability-related laws/policies or available supports/services (n = 15). Study findings underscore the government's role in improving awareness-raising initiatives and imparting the information in multiple Indian languages.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"306-330"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140946153","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A father nevertheless: Self-confident but resigned fathers with children in foster care. 父亲有寄养子女的自信但不甘寂寞的父亲。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2023-12-29 DOI: 10.1177/17446295231225525

Päivi Adolfsson, Helena Lindstedt, Gunnel Janeslätt, Karin Jöreskog

引用次数: 0

Our path together: Development of the inclusive parenting goals questionnaire. 我们一起走过的路开发包容性育儿目标问卷。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-11-28 DOI: 10.1177/17446295241304463

Ines Van Keer, Bea Maes

引用次数: 0

Psychological interventions for parents of children with intellectual disabilities to enhance child behavioral outcomes or parental well-being: A systematic review, content analysis and effects. 对智障儿童家长进行心理干预，以提高儿童的行为成果或家长的幸福感：系统回顾、内容分析及效果。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-06-01 Epub Date: 2024-11-27 DOI: 10.1177/17446295241302857

Kati Ranta, Heini Saarimäki, Johanna Gummerus, Jael Virtanen, Satu Peltomäki, Elina Kontu

{"title":"Psychological interventions for parents of children with intellectual disabilities to enhance child behavioral outcomes or parental well-being: A systematic review, content analysis and effects.","authors":"Kati Ranta, Heini Saarimäki, Johanna Gummerus, Jael Virtanen, Satu Peltomäki, Elina Kontu","doi":"10.1177/17446295241302857","DOIUrl":"10.1177/17446295241302857","url":null,"abstract":"The aim of this review was to identify the type, content, and effectiveness of psychological parenting interventions for parents of children with intellectual disabilities to enhance child behavior and/or parental well-being. A systematic search yielded 21 studies involving 1825 participants. Studies were evaluated according to intervention content, pre- and post-treatment and follow-up effect sizes, and risk of bias. We categorized the interventions into those targeting 'Child or interaction' (child behavior, interaction and learning, understanding disability), and those targeting 'Parent' (parental well-being) or both themes. All these interventions had positive effects on parental well-being or child behavior. Parental outcomes were improved by interventions targeting 'Parental well-being', as well as 'Child or interaction'. Child behavior showed improvements in programs focusing on 'Child or interaction', and in a mindfulness-based parental well-being program. During follow-up, most effects were sustained or further increased, but some studies showed no improvements over the control group.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"500-535"},"PeriodicalIF":1.5,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12084672/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142740983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Belonging involves mutuality, agency, and acceptance: An ethnographic exploration of belonging with adults labelled with intellectual disability. 归属涉及到相互关系、代理和接受：对被贴上智力残疾标签的成年人的归属的民族志探索。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-05-28 DOI: 10.1177/17446295251344355

Paige Reeves, David McConnell, Shanon K Phelan

{"title":"Belonging involves mutuality, agency, and acceptance: An ethnographic exploration of belonging with adults labelled with intellectual disability.","authors":"Paige Reeves, David McConnell, Shanon K Phelan","doi":"10.1177/17446295251344355","DOIUrl":"10.1177/17446295251344355","url":null,"abstract":"An experience of belonging is commonly absent in the lives of adults labelled with intellectual disability, negatively impacting health, well-being, and quality of life. This ethnographic study, informed by critical disability and feminist relational theory, explored the belonging experiences of five adults labelled with intellectual disability in a Canadian city. Using participatory methods, the research identified mutuality, agency, and acceptance as key factors shaping their experiences. Findings emphasize the role of genuine relationships, the connection between agency and belonging, and the need to continue to build community capacity to embrace diversity. Findings call for further research exploring the relationship between belonging, mutuality, agency, and acceptance as one step towards collectively supporting the social inclusion of people labelled with intellectual disability. This work demonstrates how spaces, places, and relationships of belonging identified by people labelled with intellectual disability have generative potential - acting as promising examples of the conditions that enable belonging to flourish.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251344355"},"PeriodicalIF":1.5,"publicationDate":"2025-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144175313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents of individuals with Down's syndrome: Opinions and experience of prenatal testing. 唐氏综合症患者的父母：产前检查的意见和经验。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-05-22 DOI: 10.1177/17446295251343689

Charlotte Bryony Bell, Nick Hutchinson

引用次数: 0

Navigating self-determination: Perspectives of people with intellectual disabilities. 导航自决：智障人士的视角。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-04-18 DOI: 10.1177/17446295251335910

Monika Parchomiuk, Agnieszka Żyta, Katarzyna Ćwirynkało

引用次数: 0

Coffee talks: Positive effects of a friendly visitor program on pragmatic competence and language production skills in adults with intellectual disabilities. 咖啡谈话：友好访客项目对智障成人语用能力和语言表达技能的积极影响。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-03-17 DOI: 10.1177/17446295251327702

Michal Biran, Nophar Ben-David, Michal Icht

{"title":"Coffee talks: Positive effects of a friendly visitor program on pragmatic competence and language production skills in adults with intellectual disabilities.","authors":"Michal Biran, Nophar Ben-David, Michal Icht","doi":"10.1177/17446295251327702","DOIUrl":"https://doi.org/10.1177/17446295251327702","url":null,"abstract":"Background: The prevalence of limited communication abilities in adults with intellectual disabilities is high with adverse effects on social participation. To address their limited opportunities to engage in conversational interchanges, along with the shortage of professional workforce in many rehabilitation settings, we considered a volunteer-based program to enhance communication abilities. Method: In this preliminary study we employed a Friendly Visitor program, in which a group of four women (27-33 years-old) with mild-to-moderate intellectual disabilities were visited weekly for three months by a group of visitors, forming an unstructured social group. Results: Following the meetings, improvements were found for the participants in several pragmatic skills (conversational competence, e.g., initiation, asking questions) and language production abilities (e.g., the number of two-word-utterances). Conclusions: Such effects may promote independence, reduce isolation, and increase integration and quality of life. Further studies with larger samples and more rigorous designs are needed to confirm these initial findings.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251327702"},"PeriodicalIF":1.5,"publicationDate":"2025-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Preventive breast health care, an embarrassing subject for women with intellectual disability. 预防性乳房保健，一个令智障妇女尴尬的话题。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-03-15 DOI: 10.1177/17446295251326010

Päivi Adolfsson, Cecilia Arving, Marie Lange

引用次数: 0