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Journal of Intellectual Disabilities最新文献

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The first 100 days: Parental perceptions of the transition to residential care of an autistic adult with intellectual disability. 前100天：父母对有智力残疾的自闭症成人过渡到寄宿照顾的看法。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-08-14 DOI: 10.1177/17446295261477155
Elizabeth Holloway
{"title":"The first 100 days: Parental perceptions of the transition to residential care of an autistic adult with intellectual disability.","authors":"Elizabeth Holloway","doi":"10.1177/17446295261477155","DOIUrl":"https://doi.org/10.1177/17446295261477155","url":null,"abstract":"<p><p>Studies of the transition of disabled children to adult services suggest that family involvement is a key factor in promoting positive outcomes. Few studies, however, include parental perspectives on transition, or focus on adults with intellectual disability. This article identifies the preoccupations of a mother of an autistic man with intellectual disability as he moves from the family home to a residential setting. Drawing on an analysis of blog posts made over a period of 100 days, and a review of the wider literature, key challenges and opportunities for the residential setting and person moving from the family home, as well as for the parent, are identified. It is suggested that the effective transition of an autistic adult with intellectual disability to a residential setting is likely to involve support for parents, as well as support from parents. Recommendations for improving the parental experience of transition are made.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261477155"},"PeriodicalIF":1.4,"publicationDate":"2026-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148760993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effectiveness of family sexual education program (MT-ACEP) for parents of adolescents with intellectual disabilities. 家庭性教育计划对智障青少年父母的效果。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-08-13 DOI: 10.1177/17446295261477158
Hüseyin Teke, Meral Melekoğlu
{"title":"Effectiveness of family sexual education program (MT-ACEP) for parents of adolescents with intellectual disabilities.","authors":"Hüseyin Teke, Meral Melekoğlu","doi":"10.1177/17446295261477158","DOIUrl":"10.1177/17446295261477158","url":null,"abstract":"<p><p>Individuals with intellectual disabilities encounter challenges in their sexual development. Addressing these challenges effectively requires comprehensive sexual education. The study aimed to evaluate the effectiveness of the Family Sexual Education Program (MT-ACEP) conducted with parents of adolescent with intellectual disabilities. This study was designed as a quasi-experimental design with pre- and post-test matched with a control group. A total of 20 participants were included in the experimental and 19 in the control group A criterion sampling method was employed. Independent samples <i>t</i>-test results revealed no significant difference between the mean pre-test scores of the experimental group (X̄ = 11.25) and the control group (X̄ = 12.42) on the knowledge level of parents at the pre-test (<i>t</i> = .973, p>.05). At the post-test stage, with the experimental group scoring significantly higher (X̄ = 24.22) compared to the control group (X̄ = 12.64) at the post-test (<i>t</i> = 8.07, p<.05). The effect size was determined as 2.58.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261477158"},"PeriodicalIF":1.4,"publicationDate":"2026-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148721548","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intellectual disabilities and risk of dementia: A Korean population-based cohort study. 智力残疾和痴呆风险：一项基于韩国人群的队列研究。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-08-10 DOI: 10.1177/17446295261476476
Yoo Jin Um, In Young Cho, Hye Yeon Koo, Yong-Moon Mark Park, Kyung Mee Kim, Chung Eun Lee, Kyungdo Han
{"title":"Intellectual disabilities and risk of dementia: A Korean population-based cohort study.","authors":"Yoo Jin Um, In Young Cho, Hye Yeon Koo, Yong-Moon Mark Park, Kyung Mee Kim, Chung Eun Lee, Kyungdo Han","doi":"10.1177/17446295261476476","DOIUrl":"https://doi.org/10.1177/17446295261476476","url":null,"abstract":"<p><p>This retrospective cohort study assessed the risk of all-cause dementia, Alzheimer's disease (AD), and vascular dementia (VaD) in individuals with intellectual disabilities compared to those without. Using data from the Korean National Disability Registry and National Health Insurance Service, individuals over 40 who underwent health examinations in 2009 were followed until 2020. Cox proportional hazards models estimated hazard ratios (HRs) for dementia outcomes, adjusting for confounders. Over a mean 8-year follow-up, 161 dementia, 111 AD, and 22 VaD cases occurred among individuals with intellectual disabilities. Adjusted HRs for all-cause dementia, AD, and VaD were 5.75, 5.23, and 4.66, respectively, compared to those without intellectual disabilities. The risk was especially elevated among those aged 40-64 years (P for interaction <0.01). In conclusion, individuals with intellectual disabilities have a significantly higher risk of dementia, particularly at younger ages, highlighting the need for increased awareness and targeted healthcare strategies.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261476476"},"PeriodicalIF":1.4,"publicationDate":"2026-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148707814","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The impact of distance to specialty and primary care on health outcomes and service use in adults with Down Syndrome. 与专业和初级保健的距离对唐氏综合征成人健康结局和服务使用的影响
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-08-10 DOI: 10.1177/17446295261476518
Salina Tewolde, Brian G Skotko, Stephanie L Santoro, Marcia Pescador Jiménez, Alyssa Santoso, Eric Rubenstein
{"title":"The impact of distance to specialty and primary care on health outcomes and service use in adults with Down Syndrome.","authors":"Salina Tewolde, Brian G Skotko, Stephanie L Santoro, Marcia Pescador Jiménez, Alyssa Santoso, Eric Rubenstein","doi":"10.1177/17446295261476518","DOIUrl":"10.1177/17446295261476518","url":null,"abstract":"<p><p>Our objective was to describe how distance to specialty clinics and availability of primary care providers affects health and service use for adults with Down syndrome in the United States. We used 2019 data from a cohort of Medicaid enrollees ≥18 years with Down syndrome. We identified specialty clinics and mapped distance from individual's zip codes. We created quantiles by distance and primary care provider density. Our cohort of 89,382 adults showed differences in health outcomes and costs by their geographic proximity to clinics and their access to primary care providers. After adjustment, mortality rates in Quartile III of distance to the specialty clinics were 1.16 times (95% CI: 1.00, 1.34) and Quartile IV was 1.27 times (95% CI: 1.08, 1.49) that of Quartile I. Hospitalization rates were quantitatively similar across groups. Ensuring equitable access to both primary and specialized care for adults with Down syndrome remains a significant challenge.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261476518"},"PeriodicalIF":1.4,"publicationDate":"2026-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148707802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Does virtual reality improve balance abilities in individuals with intellectual disabilities? A meta-analysis of randomized controlled trials. 虚拟现实能改善智障人士的平衡能力吗？随机对照试验的荟萃分析。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-08-09 DOI: 10.1177/17446295261476128
Pei Zhou, Zehui Zhan, Di Wang
{"title":"Does virtual reality improve balance abilities in individuals with intellectual disabilities? A meta-analysis of randomized controlled trials.","authors":"Pei Zhou, Zehui Zhan, Di Wang","doi":"10.1177/17446295261476128","DOIUrl":"https://doi.org/10.1177/17446295261476128","url":null,"abstract":"<p><p>Virtual reality is increasingly recognized as a potential tool for motor rehabilitation in individuals with intellectual disabilities. However, its effectiveness in balance training has not been extensively examined. The current meta-analysis aims to evaluate the impact of virtual reality-based interventions on balance abilities in individuals with intellectual disabilities and examines key moderating factors. Twelve randomized controlled trials comprising 34 effect sizes were analyzed. The results indicate a moderate overall effect size (ES=0.551) of virtual reality training on balance improvement. Specifically, the intervention demonstrated a greater effect on static balance (ES=1.000) compared to dynamic balance (ES=0.380), suggesting that virtual reality interventions may be effective in improving balance ability. Furthermore, subgroup analyses revealed that participant age, intervention length, and frequency significantly influenced the outcomes, highlighting the importance of adapting virtual reality training to individual characteristics to maximize their effectiveness.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261476128"},"PeriodicalIF":1.4,"publicationDate":"2026-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148702283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Supporting the development of number and early algebraic thinking in children with Down syndrome: A parent-led intervention study. 支持唐氏综合症儿童数字和早期代数思维的发展：一项家长主导的干预研究。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-07-27 DOI: 10.1177/17446295261469636
Kathy Cologon
{"title":"Supporting the development of number and early algebraic thinking in children with Down syndrome: A parent-led intervention study.","authors":"Kathy Cologon","doi":"10.1177/17446295261469636","DOIUrl":"https://doi.org/10.1177/17446295261469636","url":null,"abstract":"<p><p>Limited research has investigated early numeracy intervention with children with Down syndrome. This study examines the impact of a parent-led early numeracy intervention, emphasising number skills and early algebraic thinking. Twelve children with Down syndrome aged 28 to 62 months and their parents participated in this small-scale randomised controlled trial. Participants received intervention sessions over 17-weeks. Language, memory and cognition were measured pre-intervention. Mathematical patterning, and highest-count sequence scores were assessed pre- and post-intervention. The experimental group showed significant improvements in mathematical patterning scores (U = .000, p = .004, r = 1.0). There were no significant changes in highest-count sequence scores, though Cohen's d suggests a moderate effect size (U = 7.500, p = .089, d = 0.49). These results suggest that this parent-led early numeracy intervention may be generally effective in supporting the development of early mathematical thinking in children with Down syndrom.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261469636"},"PeriodicalIF":1.4,"publicationDate":"2026-07-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148608348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Workplace environment as a social determinant of well-being for mothers of children with intellectual and developmental disabilities. 工作场所环境是智力和发育障碍儿童母亲福祉的社会决定因素。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-07-11 DOI: 10.1177/17446295261469628
Diana M Gray, Valentina Bruk-Lee
{"title":"Workplace environment as a social determinant of well-being for mothers of children with intellectual and developmental disabilities.","authors":"Diana M Gray, Valentina Bruk-Lee","doi":"10.1177/17446295261469628","DOIUrl":"https://doi.org/10.1177/17446295261469628","url":null,"abstract":"<p><p>This mixed-method study examined family-supportive organization perceptions (FSOP) and family supportive supervisor behaviors (FSSB) as social determinants of well-being and work attitudes among 118 working mothers of children with intellectual and developmental disabilities. Quantitative analyses included weekly caregiving hours as a covariate. Greater caregiving hours were associated with greater family-work conflict and lower quality of life. Higher levels of FSOP were associated with lower family-work conflict and higher quality of life, and higher levels of FSSB were associated with greater affective organizational commitment and work engagement. Using reflexive thematic analysis, seven themes were captured by the qualitative data, highlighting specific workplace practices organizations can adopt to foster a supportive workplace for this worker population. The findings underscore the importance of family-supportive workplace practices in the lives of working mothers of children with intellectual and developmental disabilities.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261469628"},"PeriodicalIF":1.4,"publicationDate":"2026-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148425362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
«Dementia doesn't stand still. If you miss it, it's too late.» early recognition of dementia's signs in people with intellectual disabilities: A qualitative study with formal caregivers in Austria. “痴呆症不会静止不动。如果你错过了，那就太晚了。智力残疾患者痴呆症状的早期识别：奥地利正式护理人员的定性研究。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-06-25 DOI: 10.1177/17446295261464254
Annalisa La Face, Veronica Pucci, Dominik Pendl, Barbara Gasteiger-Klicpera
{"title":"«Dementia doesn't stand still. If you miss it, it's too late.» early recognition of dementia's signs in people with intellectual disabilities: A qualitative study with formal caregivers in Austria.","authors":"Annalisa La Face, Veronica Pucci, Dominik Pendl, Barbara Gasteiger-Klicpera","doi":"10.1177/17446295261464254","DOIUrl":"https://doi.org/10.1177/17446295261464254","url":null,"abstract":"<p><p>Caregivers play a fundamental role in the diagnostic process of dementia in people with intellectual disabilities. However, in many countries they receive no specific training on observing early dementia symptoms. This study investigates which signs formal caregivers interpret as dementia symptoms in people with intellectual disabilities. Thirty semi-structured interviews were conducted with formal caregivers to collect comprehensive reports of their observations regarding dementia signs. Neuropsychological labels were systematically applied to the reported signs, and frequencies were analysed to identify recognition patterns. Results revealed which signs of dementia were most easily observed by formal caregivers and which were most likely overlooked. Cognitive changes were reported more frequently than emotional, body and neurovegetative changes, with most observations occurring during basic care activities. The results emphasise the importance of training on dementia for care professionals when working with older people with intellectual disabilities, in order to improve early detection.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261464254"},"PeriodicalIF":1.4,"publicationDate":"2026-06-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148333620","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Collaborative workshops as a method for researching violence against persons with intellectual disability. 作为研究针对智力残疾者的暴力行为的一种方法的合作讲习班。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-06-24 DOI: 10.1177/17446295261462353
Elisabeth Punzi, Johan Melander Hagborg, Mikaela Starke
{"title":"Collaborative workshops as a method for researching violence against persons with intellectual disability.","authors":"Elisabeth Punzi, Johan Melander Hagborg, Mikaela Starke","doi":"10.1177/17446295261462353","DOIUrl":"https://doi.org/10.1177/17446295261462353","url":null,"abstract":"<p><p>This article examines collaborative workshops as a method for researching violence against persons with intellectual disability. Participants included professionals from healthcare, social services and the police, and experts by experience who took part in three workshops focused on violence against persons with intellectual disability. Eleven participants and three researchers contributed, with researchers facilitating, documenting, and journaling the workshops. Data from documentation and journals were analyzed using reflexive thematic analysis. Participants' experiences were grouped into four themes: Expectations and mutual decisions, A learning experience, The workshop climate, and Being part of something important. Researchers' experiences were grouped into four themes: A mosaic, Atmosphere and commitment, The examined intervention, Expectations and ideas. The findings suggest that collaborative workshops can generate practice-relevant knowledge and integrate diverse perspectives. They also provide valuable learning opportunities for all involved. Successful workshops require careful planning, openness to participant input, and a supportive, inclusive atmosphere.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261462353"},"PeriodicalIF":1.4,"publicationDate":"2026-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148319669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Classroom management and theater-based practices: A qualitative research based on special education teachers' experiences. 课堂管理与戏剧实践：基于特殊教育教师经验的质性研究。
IF 1.4 4区 医学
Journal of Intellectual Disabilities Pub Date : 2026-06-23 DOI: 10.1177/17446295261462993
Gamze Tuti
{"title":"Classroom management and theater-based practices: A qualitative research based on special education teachers' experiences.","authors":"Gamze Tuti","doi":"10.1177/17446295261462993","DOIUrl":"https://doi.org/10.1177/17446295261462993","url":null,"abstract":"<p><p>This qualitative study examines the impact of structured theatre-based practices on classroom management, based on the experiences of special education teachers working with students with intellectual disabilities. It investigates how these practices contribute to classroom interaction, behavioral regulation, and the learning environment. Semi-structured interviews were conducted with ten teachers who observed and implemented the practices in their classrooms. Thematic analysis revealed four main themes: contributions to classroom management, individual behavioral development, changes in peer interactions, and effects on student attitudes toward teachers. The findings show that theatre-based practices enhance students' self-regulation, behavioral adjustment, and social interaction skills, supporting effective classroom management. Moreover, they foster positive transformations in student-teacher and peer relationships, promoting an inclusive and interaction-oriented classroom climate. Structured theatre-based practices thus serve as both pedagogical tools and innovative resources for classroom management in special education settings.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261462993"},"PeriodicalIF":1.4,"publicationDate":"2026-06-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148309993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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