Journal of Intellectual Disabilities最新文献_第4页

A three-years follow-up of extra intensive support for individuals with intellectual disability and severe challenging behaviour in the Netherlands. 对荷兰智障者和有严重挑战行为者的额外强化支持进行为期三年的跟踪调查。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-03-01 Epub Date: 2024-05-09 DOI: 10.1177/17446295241252918

Linda Verhaar, Yvette M Dijkxhoorn, Leo de Sonneville, Hanna Swaab

{"title":"A three-years follow-up of extra intensive support for individuals with intellectual disability and severe challenging behaviour in the Netherlands.","authors":"Linda Verhaar, Yvette M Dijkxhoorn, Leo de Sonneville, Hanna Swaab","doi":"10.1177/17446295241252918","DOIUrl":"10.1177/17446295241252918","url":null,"abstract":"Adults with Intellectual Disability who show severe challenging behaviour need intensive individual support. If intensive support proves to be insufficient, extra intensive support can be provided in the Netherlands, which is characterized by more time for individual care. The present study evaluates the impact of extra intensive support over time. Client characteristics of adults receiving intensive support (IS, N=70) or extra intensive support (IS+, N=35) are compared and the impact of provided support on challenging behaviour (Developmental Behaviour Checklist-Adults), adaptive behaviour (Vineland II), and Quality of Life (San Martin Scale) is evaluated over a three years period. Compared to adults receiving intensive support, those receiving extra intensive support initially showed higher intensity of challenging behaviour, higher number of mental health diagnoses and stronger focus on goals to reduce challenging behaviour. Over time, intensity of challenging behaviour decreased in adults receiving extra intensive support, although Quality of Life and adaptive functioning did not improve. Results show that the indications for receiving extra intensive support are clear and that the extra support is effective over time. It is concluded that extra individual support is serving those who need this support.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"130-147"},"PeriodicalIF":1.5,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11898380/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140899813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Home- vs gym-based exercise delivery modes of two multicomponent intensity training regimes on cardiorespiratory fitness and arterial stiffness in adults with intellectual and developmental disability during the COVID-19 pandemic - a randomized controlled trial. COVID-19大流行期间，两种多成分强度训练的家庭与健身房运动模式对智力和发育障碍成人心肺功能和动脉僵化的影响--随机对照试验。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-03-01 Epub Date: 2024-03-27 DOI: 10.1177/17446295241242507

Xavier Melo, Bruno Simão, Catarina Catela, Isabel Oliveira, Sara Planche, Ana Louseiro, João Luís Marôco, Guillermo R Oviedo, Bo Fernhall, Helena Santa-Clara

{"title":"Home- vs gym-based exercise delivery modes of two multicomponent intensity training regimes on cardiorespiratory fitness and arterial stiffness in adults with intellectual and developmental disability during the COVID-19 pandemic - a randomized controlled trial.","authors":"Xavier Melo, Bruno Simão, Catarina Catela, Isabel Oliveira, Sara Planche, Ana Louseiro, João Luís Marôco, Guillermo R Oviedo, Bo Fernhall, Helena Santa-Clara","doi":"10.1177/17446295241242507","DOIUrl":"10.1177/17446295241242507","url":null,"abstract":"Background: We compared the effects of home- vs gym-based delivery modes of two 8-week supervised multicomponent intensity training regimes on cardiorespiratory fitness and arterial stiffness in 17 adults with intellectual and developmental disability during the COVID-19 pandemic. Methods: Participants were assigned to sprint interval training or continuous aerobic training, both incorporating resistance training. The intervention started with 8-weeks of online training (M1-M2), 1-month of detraining, plus 8-weeks of gym-based training (M3-M4). Results: Peak oxygen uptake decreased from M1-M2 and increased from M2-M4. Central arterial stiffness decreased between M1-M2, and M1-M4, along with peripheral arterial stiffness. Central systolic blood pressure decreased from M1-M2 only with sprint interval training. Conclusion: Home-based training minimized the negative impact of the lockdown on central arterial stiffness and central blood pressure, but it did not match the benefits on cardiorespiratory fitness and peripheral arterial stiffness of a gym-based intervention, irrespective of the multicomponent intensity training regime. Registered in ClinicalTrials.gov NCT05701943.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"66-85"},"PeriodicalIF":1.5,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11898390/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140307382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review. 久坐行为对智障成人身体健康的影响：范围综述。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-03-01 Epub Date: 2022-06-12 DOI: 10.1177/17446295221107281

Louise Lynch, Mary McCarron, Jessica Eustace-Cook, Éilish Burke, Phillip McCallion

{"title":"Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review.","authors":"Louise Lynch, Mary McCarron, Jessica Eustace-Cook, Éilish Burke, Phillip McCallion","doi":"10.1177/17446295221107281","DOIUrl":"10.1177/17446295221107281","url":null,"abstract":"This literature review was designed to establish the effects of sedentary behaviour on the physical health of adults with an intellectual disability. Sedentary behaviour is defined as any waking behaviour characterized by an energy expenditure of ≤1.5 METs while in a sitting, lying or reclining posture. An extensive search was executed in six databases: EMBASE, Medline, CINAHL, PsycINFO, ASSIA and Web of Science. Following screening, 18 articles remained for inclusion in the review. A thematic analysis using the Braun and Clarke six step process resulted in the identification of seven broad health areas. Studies showed a prevalence of obesity, multimorbidity and metabolic syndrome as well as elevated levels of sedentary behaviour in adults with an intellectual disability. This literature review demonstrated that sedentary behaviour could be a contributor to the poor health which is common in adults with an intellectual disability. However to date the body of evidence does not confirm a cause-and-effect relationship.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"167-193"},"PeriodicalIF":1.5,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11898391/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9427438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relations between justice and trust in professionals working with persons with intellectual disability. 与智障人士打交道的专业人员的正义与信任之间的关系。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-02-17 DOI: 10.1177/17446295251319383

Alice Maniezki, Vicente Martínez-Tur, Yolanda Estreder, Carolina Moliner, Esther Gracia

引用次数: 0

Evaluation of the patient profile and health interventions offered by a multidisciplinary Intellectual Disability health team. 多学科智力残疾健康小组提供的病人概况和健康干预措施的评估。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-02-17 DOI: 10.1177/17446295251319127

Dominic Bull, Pankaj Garg, Teresa Lai, Natasha Reid, Bridget Farrell, Catherine O'Hea, Shanti Raman

{"title":"Evaluation of the patient profile and health interventions offered by a multidisciplinary Intellectual Disability health team.","authors":"Dominic Bull, Pankaj Garg, Teresa Lai, Natasha Reid, Bridget Farrell, Catherine O'Hea, Shanti Raman","doi":"10.1177/17446295251319127","DOIUrl":"https://doi.org/10.1177/17446295251319127","url":null,"abstract":"Specialised Intellectual Disability Health Teams enhance access to health services and improve intersectoral coordination. This study reviewed the profiles and healthcare recommendations for children and young adults with Intellectual Disability. Data was collected from clinical records and analysed using relevant statistical tests. Most children were referred for challenging behaviours, with 13.9% lacking a disability funding plan, and 60% requiring changes in medication. Three-quarters reported functional improvement at six months. A logistic regression model explained 55% of the variance in six-month outcomes, identifying adherence to team recommendations as a significant factor (p < 0.0001). This study highlights the patient profile of a Specialised Intellectual Disability Health Team, identifies gaps in care plans, and emphasises the importance of addressing complex social determinants to ensure effective enactment of these recommendations in partnership with families, ultimately improving outcomes for children and young adults with Intellectual Disability.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251319127"},"PeriodicalIF":1.5,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143432772","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Employment situation and the formation of stigmatising attitudes towards people with intellectual disabilities. 就业状况和对智障人士污名化态度的形成。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-02-07 DOI: 10.1177/17446295251319386

Roger Bennett, Rohini Vijaygopal

引用次数: 0

Change in self-determination-related constructs in persons with severe or profound intellectual and multiple disabilities in the context of transitions. 重度或极重度智障和多重残疾人士在过渡时期与自决相关的构建的变化。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-01-30 DOI: 10.1177/17446295251317759

Jacqueline M van Tuyll van Serooskerken, Agnes M Willemen, Petri Jcm Embregts, Carlo Schuengel

{"title":"Change in self-determination-related constructs in persons with severe or profound intellectual and multiple disabilities in the context of transitions.","authors":"Jacqueline M van Tuyll van Serooskerken, Agnes M Willemen, Petri Jcm Embregts, Carlo Schuengel","doi":"10.1177/17446295251317759","DOIUrl":"https://doi.org/10.1177/17446295251317759","url":null,"abstract":"Background: This study explored the changes in self-determination-related constructs during transitions in the lives of persons with severe or profound intellectual and multiple disabilities. Method: Questionnaires about autonomy support, basic psychological need expressions, and subjective well-being were filled out twice by family caregivers who foresaw an important transition in the near future (N = 40; pre-post design). Results: Average changes in outcomes across a period of 6-13 months were not statistically significant. Reliable change was observed for 5.6 to 24% of individuals, depending on the outcome variable. Caregiver engagement in and period of impact of the transition, as well as prior expectations, were not associated with these changes. Conclusions: Self-determination-related constructs appear robust against life transitions for most persons with complex support needs. From the caregivers' perspective, improvements and deteriorations were unexpected, underscoring the need for a better understanding of the role of context for self-determination in this population.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295251317759"},"PeriodicalIF":1.5,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143068740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Interventions and measures of social inclusion for students with extensive support needs in K-12 schools: A scoping review. 对K-12学校中有广泛支持需求的学生的社会包容的干预措施和措施：范围审查。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-01-25 DOI: 10.1177/17446295241310517

Savitha Sundar, Patricia Bowyer, Asha Vas, Patricia Laverdure, Elaine Cox

引用次数: 0

The COVID-19 pandemic's impact on UK social workers working with people with learning disabilities: A mixed methods study. COVID-19大流行对英国与学习障碍人士合作的社会工作者的影响：一项混合方法研究

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-01-21 DOI: 10.1177/17446295251315525

Justin MacLochlainn, Jill Manthorpe, Paula McFadden, Rachel Naylor, Heike Schroder, Susan McGrory, Patricia Nicholl, Denise Currie, Karen Kirby, John Mallett

引用次数: 0

Population-based cancer screening access needs of disabled people: A qualitative evidence synthesis. 残疾人基于人群的癌症筛查获取需求：定性证据综合。

IF 1.5 4区医学

Journal of Intellectual Disabilities Pub Date : 2025-01-06 DOI: 10.1177/17446295241308708

Kumaresan Cithambaram, Deirdre Corby, Liz Hartnett, David Joyce, Lynn Swinburne, Kristi Egere, Sean Healy

{"title":"Population-based cancer screening access needs of disabled people: A qualitative evidence synthesis.","authors":"Kumaresan Cithambaram, Deirdre Corby, Liz Hartnett, David Joyce, Lynn Swinburne, Kristi Egere, Sean Healy","doi":"10.1177/17446295241308708","DOIUrl":"https://doi.org/10.1177/17446295241308708","url":null,"abstract":"Background: Cancer is one of the most common causes of mortality among disabled people, and population-based screening is an effective method to identify some cancers early; however, its uptake is lower among the disabled population. There is a lack of evidence regarding why they access less, and their need to access population-based screening programmes.Aim: To synthesise evidence of the experience of accessing population-based screening programmes for disabled people.Method: A qualitative evidence synthesis (QES) was carried out by searching electronic databases including Medline, CINAHL, Web of Science Core Collection, and Scopus. Grey literature was also searched for. The search yielded 32 relevant publications.Results: The findings are based on Levesque's conceptual framework. Several factors affect the accessibility of screening services, including people's perceptions, family support, affordability, literacy, and accessibility.Conclusion: Screening services need to acknowledge the needs of disabled people and integrate reasonable accommodations to facilitate their needs.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241308708"},"PeriodicalIF":1.5,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142932713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0