Journal of Intellectual Disabilities最新文献_第4页

Understanding the contribution of intellectual disabilities nurses. Paper 4 of 4 - Impacts of intellectual disability nursing interventions. 了解智障护士的贡献。论文 4 之 4 - 智障护理干预措施的影响。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-06-01 Epub Date: 2024-01-18 DOI: 10.1177/17446295241228044

Kay Mafuba, Hazel M Chapman, Rebecca Chester, Joann Kiernan, Chiedza Kudita, Dorothy Kupara

{"title":"Understanding the contribution of intellectual disabilities nurses. Paper 4 of 4 - Impacts of intellectual disability nursing interventions.","authors":"Kay Mafuba, Hazel M Chapman, Rebecca Chester, Joann Kiernan, Chiedza Kudita, Dorothy Kupara","doi":"10.1177/17446295241228044","DOIUrl":"10.1177/17446295241228044","url":null,"abstract":"Internationally, there is a wide variety of roles and expectations for intellectual disabilities nurses, and the range of nursing interventions they undertake in this field has not been clearly identified. In this paper we report the impacts of intellectual nursing interventions from an online survey of intellectual disability nurses. An online survey, using voluntary response sampling was used to collect case study examples from 230 participants from seven countries. We identified 13 themes of the impacts, and 23 broad groups of case examples of intellectual disability nursing interventions with, pregnant women, children, adults, older adults, and people at the end of life. Awareness of the roles of intellectual disability nurses and their importance in addressing health inequalities and facilitating the use of mainstream services for people with intellectual disabilities will enable improved healthcare experience and healthcare outcomes for people with intellectual disabilities.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"243-265"},"PeriodicalIF":1.4,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13230655/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139491662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding the contribution of intellectual disabilities nurses: Paper 3 of 4 - evaluation. 了解智障护士的贡献：第3篇-评价。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-06-01 Epub Date: 2023-08-23 DOI: 10.1177/17446295231196588

Kay Mafuba, Joann Kiernan, Chiedza Kudita, Hazel M Chapman, Dorothy Kupara, Rebecca Chester

{"title":"Understanding the contribution of intellectual disabilities nurses: Paper 3 of 4 - evaluation.","authors":"Kay Mafuba, Joann Kiernan, Chiedza Kudita, Hazel M Chapman, Dorothy Kupara, Rebecca Chester","doi":"10.1177/17446295231196588","DOIUrl":"10.1177/17446295231196588","url":null,"abstract":"The overall objective of this research was to identify intellectual disability nursing interventions and their impact on the health and healthcare of people with intellectual disability. This is part 3 of a 4-part series. In this paper we report the findings from quantitative questions from an online survey of intellectual disability nurses. The objective of this part of the study was to a evaluate intellectual disability nurses' confidence in their understanding of the interventions they undertook. Quantitative data was collected using an online survey questionnaire from a voluntary response and snowball sample of 230 participants from 7 countries. Thematic, descriptive statistical, and inferential statistical analyses were undertaken. The evaluation data suggest and demonstrate a lack of clarity among intellectual disability nurses of the interventions they can effectively undertake. There appears to be correlations between lack of role clarity and the types of employer organisations and countries. Further work need to be undertaken by nurse leaders ascertain and address this lack of clarity.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"222-242"},"PeriodicalIF":1.4,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13230659/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10414882","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the impact educational interventions have on nursing and medical students' attitudes and empathy levels towards people with disability. A systematic review. 探索教育干预对护理专业和医学专业学生对残疾人的态度和同情程度的影响。系统综述。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-06-01 Epub Date: 2023-02-16 DOI: 10.1177/17446295231155781

William Evans, Dominika Lisiecka, Dawn Farrell

{"title":"Exploring the impact educational interventions have on nursing and medical students' attitudes and empathy levels towards people with disability. A systematic review.","authors":"William Evans, Dominika Lisiecka, Dawn Farrell","doi":"10.1177/17446295231155781","DOIUrl":"10.1177/17446295231155781","url":null,"abstract":"This systematic review aimed to explore the impact educational interventions have on undergraduate nursing and medical students' attitudes and empathy levels towards people with disability. There are over one billion people with some form of disability currently. A growing body of research reveals that nurses and doctors display negative attitudes including decreased empathy towards people with disability. A systematic review using narrative synthesis of chosen randomized controlled trials was employed. A comprehensive search was completed in June 2021 on six databases (CINAHL, Medline, Science Direct, Health Research Premium - PROQUEST, Scopus. Cochrane Library). The search strategy yielded 21,616 studies and only three randomised controlled trials fulfilled the eligibility criteria. These trials included 125 participants (n = 50 medical students and n = 75 nursing students) and evaluated the effectiveness of a disabled health course, disability education module with bedside teaching and wheelchair workshop intervention. Findings from one study revealed that a disabled health course using affective learning method based on a transformative learning theory significantly improves attitudes to disability amongst nursing students however there was no statistically significant difference in empathy levels. More high-quality randomised controlled trials with greater theoretical and methodological complexity are needed to identify more effective educational approaches that enhance attitude and empathy levels of these key stakeholders.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"336-355"},"PeriodicalIF":1.4,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13230647/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10736099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding the contribution of intellectual disability nurses. Paper 2 of 4 - Survey. 了解智障护士的贡献。论文2 / 4 -调查。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-06-01 Epub Date: 2023-11-13 DOI: 10.1177/17446295231213434

Kay Mafuba, Joann Kiernan, Hazel M Chapman, Dorothy Kupara, Chiedza Kudita, Rebecca Chester

引用次数: 0

Effects of whole-body vibration exercise on sleep disorders, body composition and clinical parameters in down syndrome children: A study protocol for a randomized cross-over trial. 全身振动运动对唐氏综合症儿童睡眠障碍、身体成分和临床参数的影响：一项随机交叉试验的研究方案

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-06-01 Epub Date: 2023-04-28 DOI: 10.1177/17446295231171197

Luiza Torres-Nunes, Laisa Liane Paineiras-Domingos, Daniel Batouli-Santos, Ana Carolina Coelho-Oliveira, Maria Eduarda de Souza Melo-Oliveira, Adérito Seixas, Danúbia da Cunha Sá-Caputo, Mario Bernardo-Filho

{"title":"Effects of whole-body vibration exercise on sleep disorders, body composition and clinical parameters in down syndrome children: A study protocol for a randomized cross-over trial.","authors":"Luiza Torres-Nunes, Laisa Liane Paineiras-Domingos, Daniel Batouli-Santos, Ana Carolina Coelho-Oliveira, Maria Eduarda de Souza Melo-Oliveira, Adérito Seixas, Danúbia da Cunha Sá-Caputo, Mario Bernardo-Filho","doi":"10.1177/17446295231171197","DOIUrl":"10.1177/17446295231171197","url":null,"abstract":"Down-syndrome the most common genetic disorder worldwide. Whole-body-vibration-exercise (WBVE) has been recommended for individuals with Down-syndrome. To verify the efficacy of WBVE on sleep disorders, body-composition (BC) and clinical parameters of children with Down-syndrome. It is a randomized cross-over-trial. Children with Down-syndrome, 5-12 years, both-genders will be selected. The sleep disorders will be evaluated by the \"Infant sleep questionnaire Reimão and Lefevre\" and by the \"Sleep disturbance scale in children\". The BC will be measure by bioimpedance and the skin temperature using infrared-thermography. WBVE will be performed seating in an ancillary-chair or sitting on the base of the vibrating platform, with 2.5 mm, 5Hz. Each session (5 series, 30-seconds on vibration, 1-minute of rest). It is expected improvement responses on sleep, BC and some clinical parameters. It is expected that this WBVE protocol will bring important clinical contributions for children with Down-syndrome.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"379-395"},"PeriodicalIF":1.4,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9357011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding the contribution of intellectual disabilities nurses. Paper 1 of 4 -Scoping literature review. 了解智障护士的贡献。论文 1 之 4 - 范围文献综述。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-06-01 Epub Date: 2023-12-11 DOI: 10.1177/17446295231220432

Kay Mafuba, Hazel M Chapman, Marc Forster, Rebecca Chester, Joann Kiernan, Dorothy Kupara, Chiedza Kudita

{"title":"Understanding the contribution of intellectual disabilities nurses. Paper 1 of 4 -Scoping literature review.","authors":"Kay Mafuba, Hazel M Chapman, Marc Forster, Rebecca Chester, Joann Kiernan, Dorothy Kupara, Chiedza Kudita","doi":"10.1177/17446295231220432","DOIUrl":"10.1177/17446295231220432","url":null,"abstract":"The objective of this scoping review was to summarise evidence on the contribution of intellectual disabilities nurses to improve the health and well-being of children, adults and older people with intellectual disability, now and for the future. The Preferred Reporting Items for Systematic Reviews and Meta-Analysis (for Scoping Reviews) (PRISMA-ScR) process and Joanna Briggs Institute (JBI) guidance was used. We included 54 publications. We identified 154 interventions undertaken by intellectual disability nurses. We categorised the intellectual disability nursing interventions into three themes: effectuating nursing procedures, enhancing impact of services, and enhancing quality of life.Findings point to high quality research being essential in determining the impact and effectiveness of intellectual disability nursing interventions across the lifespan. We recommend that a searchable online compendium of intellectual disability nurse interventions be established and regularly updated. This will provide opportunities to engage more effectively in evidence-based practice.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"275-304"},"PeriodicalIF":1.4,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13230651/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138801354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sleep disturbances in individuals with down syndrome: An overview. 唐氏综合症患者的睡眠障碍：综述。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-06-01 Epub Date: 2023-04-27 DOI: 10.1177/17446295231173011

Sophie Hirsch, Jane Gaultney

引用次数: 0

Understanding quality of life in people with complex and multiple communication disabilities: Views and opinions of parents and support staff. 理解复杂和多重沟通障碍患者的生活质量：父母和支持人员的观点和意见。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-05-20 DOI: 10.1177/17446295261452553

Nina Wolters-Leermakers, Vera Knapen, Merel Prins, Ulrika Klomp, Willemien Ebels, Marian Sloots, Margje Van der Schuit

引用次数: 0

In a room or on Zoom? Trying out an online research course for people with intellectual disabilities. 在房间里还是变焦？尝试为智障人士开设在线研究课程。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-05-05 DOI: 10.1177/17446295261450027

Andrea Bruun, Dominic Head, Ian Stewart, Isobel Stevenson, Jordan Smith, Kiran Kaur, Lewis Winder, Mo Hakim, Renait Southernwood, Andrew Priest, Gerard Wainwright, Leon Jordan, Richard Keagan-Bull, Jo Giles, Irene Tuffrey-Wijne

{"title":"In a room or on Zoom? Trying out an online research course for people with intellectual disabilities.","authors":"Andrea Bruun, Dominic Head, Ian Stewart, Isobel Stevenson, Jordan Smith, Kiran Kaur, Lewis Winder, Mo Hakim, Renait Southernwood, Andrew Priest, Gerard Wainwright, Leon Jordan, Richard Keagan-Bull, Jo Giles, Irene Tuffrey-Wijne","doi":"10.1177/17446295261450027","DOIUrl":"10.1177/17446295261450027","url":null,"abstract":"Few projects have explored online research courses for people with intellectual disabilities. This practice paper reports the process and experience of trying out an online research course for people with intellectual disabilities. An in-person research course was adapted into an 8-week Zoom course with online lessons and a final in-person session. The paper was written by the teachers, students, and their support persons. Students discussed their experiences. The teachers noted and summarised their thoughts. Support persons fed back via email. All authors reviewed and approved their contributions. Eight students completed the course. They liked the course and learned about research. Zoom allowed students across the country to participate. Support persons and teachers saw students gaining confidence and skills. Technology can be challenging, and students missed face-to-face contact. Online research courses are possible, but no one size fits all. A hybrid course may be best: in a room and on Zoom.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295261450027"},"PeriodicalIF":1.4,"publicationDate":"2026-05-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Public space and social interaction: Perspectives of parents of people with profound intellectual and multiple disabilities. 公共空间与社会互动：深度智障和多重智障人士父母的视角。

IF 1.4 4区医学

Journal of Intellectual Disabilities Pub Date : 2026-04-28 DOI: 10.1177/17446295261449087

Jakub Niedbalski

引用次数: 0