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Journal of Intellectual Disabilities最新文献

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Enabling older adults with intellectual disability to become physical activity leaders in their community: Pilot study. 让智障老年人成为社区体育活动的领导者：试点研究。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-07-05 DOI: 10.1177/17446295231177190
Sonia McDermott, Mary McCarron, Eilish Burke, Philip McCallion, Mary-Ann O'Donovan
{"title":"Enabling older adults with intellectual disability to become physical activity leaders in their community: Pilot study.","authors":"Sonia McDermott, Mary McCarron, Eilish Burke, Philip McCallion, Mary-Ann O'Donovan","doi":"10.1177/17446295231177190","DOIUrl":"10.1177/17446295231177190","url":null,"abstract":"<p><p>People with intellectual disabilities (ID) have high levels of sedentary behaviour and co-morbid health conditions. There is also increased longevity for this group which is an incredible success story but one which also poses challenges to the health system. For the first time, the mainstream health system needs to plan for and address age related health needs of people with ID. It also demands consideration of age-appropriate health-promotion efforts to support this ageing population with life-long disability. A physical activity programme, People with Intellectual Disability as Physical Activity Leaders (PPALs), was co-designed and co-developed with older adults (40+ years) with intellectual disability (ID). The process, content and outcomes of the pilot are presented in this paper. Expertise from three sectors: non-statutory academic and people with intellectual disabilities and their supporters worked collaboratively for successful completion of the project.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"706-722"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9752542","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Competencies and employment after a university program in young people with intellectual disabilities. 智障青年大学毕业后的能力与就业。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-05-22 DOI: 10.1177/17446295231178107
Ana Berástegui, Graciela Suárez, María Dolores Gonzalez
{"title":"Competencies and employment after a university program in young people with intellectual disabilities.","authors":"Ana Berástegui, Graciela Suárez, María Dolores Gonzalez","doi":"10.1177/17446295231178107","DOIUrl":"10.1177/17446295231178107","url":null,"abstract":"<p><p>This study analyzes the relationship between the employability competencies acquired after completing an employment training program at university and the subsequent access to employment of young people with intellectual disabilities. To do this, the employability competencies of 145 students were analyzed at the end of the program (T1) and information was gathered on their career path at the time of the study (T2) (n = 72). Sixty-two per cent of the participants have had at least one job since graduation. Job competencies increase the probability of accessing and retaining employment in students who graduated at least 2 years before (<i>X</i><sup>2</sup> = 17.598; <i>p</i> < .001; r<sup>2</sup> = .583). These results compel us to complement employment training programs with new opportunities and greater job accessibility.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"615-628"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9509659","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Analysis of an Australian death database of people with intellectual disability living out of the family home: Place of death and associated variables. 对澳大利亚智障人士死亡数据库进行分析：死亡地点及相关变量。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-05-16 DOI: 10.1177/17446295231175541
Michele Y Wiese, Roger J Stancliffe, Seeta Durvasula, Daniel W Piepers, Nathan J Wilson
{"title":"Analysis of an Australian death database of people with intellectual disability living out of the family home: Place of death and associated variables.","authors":"Michele Y Wiese, Roger J Stancliffe, Seeta Durvasula, Daniel W Piepers, Nathan J Wilson","doi":"10.1177/17446295231175541","DOIUrl":"10.1177/17446295231175541","url":null,"abstract":"<p><p>This study reports on a five-year data set about the deaths of 599 individuals in New South Wales Australia, who at the time of their death were living in out-of-home care. Analysis aimed to: i) gain a clearer understanding of place of death for people with intellectual disability; and ii) identify and analyse associated variables to investigate how well they predict place of death for this population. Hospital admissions, polypharmacy and living situation were the strongest standalone predictors of place of death. A hospital death was more likely if the target population were subject to polypharmacy, lived in a group home, had a moderate intellectual disability or had GORD. Death, and place of death, is an issue requiring individual consideration. This study has identified some of the variables that need attention when supporting people with intellectual disability to have a good death.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"824-838"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11465594/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9847411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Following 4 months of social distancing during COVID-19 Pandemic in Brazil did not change aspects of functioning in children and adolescents with developmental disabilities: A longitudinal study. 在巴西 COVID-19 大流行期间，经过 4 个月的社会疏远并没有改变发育障碍儿童和青少年的各方面功能：一项纵向研究。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-06-16 DOI: 10.1177/17446295231184117
Beatriz Helena Brugnaro, Gesica Fernandes, Fabiana Nascimento Vieira, Silvia Letícia Pavão, Nelci Adriana Cicuto Ferreira Rocha
{"title":"Following 4 months of social distancing during COVID-19 Pandemic in Brazil did not change aspects of functioning in children and adolescents with developmental disabilities: A longitudinal study.","authors":"Beatriz Helena Brugnaro, Gesica Fernandes, Fabiana Nascimento Vieira, Silvia Letícia Pavão, Nelci Adriana Cicuto Ferreira Rocha","doi":"10.1177/17446295231184117","DOIUrl":"10.1177/17446295231184117","url":null,"abstract":"<p><p>The COVID-19 pandemic and its demands of social distancing have created challenges in the lives of children/adolescents with developmental disabilities and their families, which would change aspects of children's functioning. The objetive of this study was to evaluate changes in some components of functioning of children/adolescents with disabilities following 4 months of social distancing during a period of high contamination rate in the year 2020 in Brazil. Participated 81 mothers of children/adolescents with disabilities, 3-17 years, most of them (80%) diagnosed with Down syndrome, cerebral palsy and autism spectrum disorder. Remote assessments of functioning' aspects including IPAQ, YC-PEM/ PEM-C, Social Support Scale and PedsQL V.4.0. Wilcoxon tests compared the measures, with significance level <0.05. No significant changes in participant's functioning were identified. Social adjustments required to facing the pandemic during two points in time in the midst of the pandemic did not change the evaluated aspects of functioning in our sample of Brazilian.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"773-788"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10290936/pdf/10.1177_17446295231184117.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9699465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
We have to stand up for ourselves: Barriers to self-determination experienced by Black youth in the transition to adulthood. 我们必须为自己挺身而出：黑人青年在向成年过渡的过程中遇到的自决障碍。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-05-29 DOI: 10.1177/17446295231180660
Josh P Taylor, LaRon A Scott, Lauren P Bruno, Regina Frazier, Colleen A Thoma, Meagan Dayton
{"title":"We have to stand up for ourselves: Barriers to self-determination experienced by Black youth in the transition to adulthood.","authors":"Josh P Taylor, LaRon A Scott, Lauren P Bruno, Regina Frazier, Colleen A Thoma, Meagan Dayton","doi":"10.1177/17446295231180660","DOIUrl":"10.1177/17446295231180660","url":null,"abstract":"<p><p>Transition outcomes for Black youth with intellectual and developmental disabilities are especially dire, lagging even further behind already poor outcomes among their White peers. Self-determination is a key factor in predicting better outcomes, but it is unclear how self-determination is fostered or hindered within the transition process for Black youth and their families. This study used the DisCrit framework to analyze interview data from Black students with intellectual and developmental disabilities and their parents regarding self-determination and effective transition services. Analysis resulted in four major themes: historical undertones, proxies for racial bias, spacialization of racialization, and interest convergence. Implications for future research, policy, and practice are discussed.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"629-646"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9540291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Knowledge, attitudes, and practices towards fetal alcohol spectrum disorder in the New Zealand social and community sector: An online survey. 新西兰社会和社区部门对胎儿酒精谱系障碍的认识、态度和做法：在线调查。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-04-24 DOI: 10.1177/17446295231172234
Jessica C McCormack, Joanna Ting Wai Chu, Holly Wilson, Juma Rahman, Samantha Marsh, Chris Bullen
{"title":"Knowledge, attitudes, and practices towards fetal alcohol spectrum disorder in the New Zealand social and community sector: An online survey.","authors":"Jessica C McCormack, Joanna Ting Wai Chu, Holly Wilson, Juma Rahman, Samantha Marsh, Chris Bullen","doi":"10.1177/17446295231172234","DOIUrl":"10.1177/17446295231172234","url":null,"abstract":"<p><p><b>Background:</b> Fetal Alcohol Spectrum Disorder (FASD) is a common neurodevelopmental disorder but may be underrecognized and misunderstood by people who provide health and social support services. The aim of the research is to understand the FASD knowledge, attitudes, and practices among people employed by the social and community sector in New Zealand. <b>Methods:</b> We conducted an online survey of people working in the New Zealand social and community sector (i.e., social workers, support workers). The survey focused on the following areas: awareness of FASD; knowledge and beliefs about FASD; the impact of FASD on professional practice; and training needs. <b>Results:</b> Most participants reported a basic understanding of FASD, however only 5% felt very well prepared to support someone with FASD. A large majority of participants believed that FASD diagnosis may be stigmatising for individuals or families. <b>Conclusion:</b> There is a need to improve training, professional development, and workplace support for social and community workers in New Zealand to support people with FASD.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"723-737"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11466031/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9389224","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resilience in the face of adversity: How people with intellectual disabilities deal with challenging times. 逆境中的韧性：智障人士如何应对挑战。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-06-18 DOI: 10.1177/17446295231184504
Femke Scheffers, Eveline van Vugt, Xavier Moonen
{"title":"Resilience in the face of adversity: How people with intellectual disabilities deal with challenging times.","authors":"Femke Scheffers, Eveline van Vugt, Xavier Moonen","doi":"10.1177/17446295231184504","DOIUrl":"10.1177/17446295231184504","url":null,"abstract":"<p><p>In people with intellectual disabilities research and policy are often still focused on risks or the prevention of risks. Research on the process of resilience is in its infancy in the care for people with intellectual disabilities. In the current study, applying a guided photovoice procedure, people with intellectual disabilities were asked what helped them to deal with adverse events. Additionally, informants from their social network were asked to reflect on this question. The following sources of resilience were identified: acceptance, autonomy, beautiful memories, perseverance, physical wellbeing, positive emotions, social skills, spirituality, activities, a home and the social network. Our findings provide practical guidelines for clinicians to talk about resilience with people with intellectual disabilities. Suggestions for future research are made that will contribute to the process of resilience and inclusion of people with intellectual disabilities.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"661-682"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11465606/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9661607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Challenging behaviors in adults with autism spectrum disorder and intellectual disability: A differential analysis from a transdiagnostic approach. 自闭症谱系障碍和智障成人的挑战行为：跨诊断方法的差异分析。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-06-14 DOI: 10.1177/17446295231184116
María Álvarez-Couto, Domingo García-Villamisar, Araceli Del Pozo
{"title":"Challenging behaviors in adults with autism spectrum disorder and intellectual disability: A differential analysis from a transdiagnostic approach.","authors":"María Álvarez-Couto, Domingo García-Villamisar, Araceli Del Pozo","doi":"10.1177/17446295231184116","DOIUrl":"10.1177/17446295231184116","url":null,"abstract":"<p><p>This study aimed at analyzing the differences in challenging behaviors between adults with intellectual disability and ASD and those who only had intellectual disability, as well as to explore associations between transdiagnostic and clinical variables to these differences. Therapists and educators of 163 adults with intellectual disability (83 with additional ASD diagnosis) completed the test battery. Mean difference analysis and univariate analyses of covariance were performed to determine the impact of clinical variables and transdiagnostic variables on the frequency and severity of challenging behaviors. Results showed that adults with ASD and intellectual disability presented higher frequency and severity of these behaviors. A significant effect of the diagnosis of ASD on the frequency and severity of self-injuries and stereotypies was found. Also, some transdiagnostic variables influencing the presence of these behaviors were highlighted. These factors should be considered when planning and designing interventions for behavioral problems in this population.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"808-823"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9624099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers and facilitators to practitioners' implementation of positive behavior support practice in social care organizations in Ireland. 爱尔兰社会护理机构从业人员实施积极行为支持实践的障碍和促进因素。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-05-25 DOI: 10.1177/17446295231178073
Cayleigh Dunworth, Dearbhaile Mahon, Jenny McSharry, Jennifer Holloway, Helena Lydon
{"title":"Barriers and facilitators to practitioners' implementation of positive behavior support practice in social care organizations in Ireland.","authors":"Cayleigh Dunworth, Dearbhaile Mahon, Jenny McSharry, Jennifer Holloway, Helena Lydon","doi":"10.1177/17446295231178073","DOIUrl":"10.1177/17446295231178073","url":null,"abstract":"<p><p>In Ireland, the provision of behavior support services has developed following the introduction of Health Information and Quality Authority (2013) standards and the regulation of Positive Behavior Support (PBS) under the Health Act (2007). The purpose of this study was to explore what factors facilitate and act as barriers to implementation of behavioral recommendations in Intellectual Disability organizations from the practitioner's perspective. Twelve interviews were carried out, audio recorded, transcribed and analysed using Braun and Clarke's (2006) Thematic Analysis. One superordinate theme (administrator support), four themes (values, resources, relationships and implementation of consequences) and five sub-themes (staff turnover and burnout, training and knowledge, time and physical contact, relationships between practitioners and staff and staff and service users) were identified, all interconnected in the implementation process. A common thread reflected throughout the themes, was the practitioner's acknowledgment of barriers overpowering facilitation which resulted in a less than optimum implementation of PBS.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"789-807"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11468107/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9876162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"She just makes it easier…" The impact of having a dedicated nursing role in supporting people with intellectual disability when accessing acute hospitals, from the perspective of their support staff, the Irish context. "她让一切变得更容易......"从智障人士辅助人员的角度看，专职护理人员在支持智障人士进入急症医院方面的影响，爱尔兰背景。
IF 1.5 4区 医学
Journal of Intellectual Disabilities Pub Date : 2024-09-01 Epub Date: 2023-07-27 DOI: 10.1177/17446295231190252
Muireann Ní Riain, Sheelagh Wickham
{"title":"\"She just makes it easier…\" The impact of having a dedicated nursing role in supporting people with intellectual disability when accessing acute hospitals, from the perspective of their support staff, the Irish context.","authors":"Muireann Ní Riain, Sheelagh Wickham","doi":"10.1177/17446295231190252","DOIUrl":"10.1177/17446295231190252","url":null,"abstract":"<p><p>Learning Disability Liaison Nurses have been shown to improve hospital experiences and this is an emerging role in Ireland. This research qualitatively explored the impact of a Clinical Nurse Specialist Acute Hospital Liaison from the perspective of staff in an intellectual disability community organisation. Participants identified significant challenges with supporting people attending hospitals including accessing and understanding information, anxieties and not being prepared for transitions through the hospital. The findings demonstrate the introduction of this role is a supportive, positive step with reports of improved information sharing, feeling better prepared and alleviating anxieties related to supporting someone in hospital. The findings clearly identify that this role has considerable benefits when set in a community organisation. This role has had a positive impact on service users and staff when interacting with hospitals, providing evidence of the value of this role in Ireland and also of they having a specialist qualification in the role.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"839-853"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9885616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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