Care and choice architecture: Relatives' support for adults with intellectual disabilities in supported decision-making processes.

IF 1.5 4区医学 Q2 EDUCATION, SPECIAL

Journal of Intellectual Disabilities Pub Date : 2024-10-30 DOI:10.1177/17446295241297184

Sadeta Demic, Rosemarie van den Breemer, Halvor Hanisch, Inger Marie Lid

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引用次数: 0

Abstract

The UN Convention on the Rights of Persons with Disabilities (CRPD) describes supported decision making as a fundamental human right. This study explores relatives' experiences, dilemmas, as well as key factors in supported decision-making processes with adults with intellectual disabilities living in municipal housing. The study draws on qualitative, in-depth interviews with relatives. Findings suggest that we can learn about supported decision making by using choice architecture and care theories, demonstrating that: (a) care sometimes requires facilitating for making decisions, what we here understands in light of choice architecture, (b) choice architecture in the context of intellectual disability requires an intentionality of care and a focus on the person's preferences/perspective, (c) relatives are concerned, not only with support in the moment, but also the effect of the decision in the long term, and (d) relatives' care is a significant factor in meeting choice architecture in systemic conditions.

查看原文本刊更多论文

护理与选择架构：亲属在辅助决策过程中对智障成人的支持。

联合国《残疾人权利公约》（CRPD）将辅助决策描述为一项基本人权。本研究探讨了居住在市政住房中的智障成人亲属在辅助决策过程中的经验、困境和关键因素。本研究采用了定性、深入的亲属访谈。研究结果表明，我们可以通过使用选择架构和护理理论来了解辅助决策，并证明了以下几点：(a) 护理有时需要为决策提供便利，我们在此根据选择架构来理解这一点；(b) 智障背景下的选择架构需要有意识的护理，并关注个人的偏好/观点；(c) 亲属不仅关注当下的支持，还关注决策的长期影响；(d) 亲属的护理是在系统条件下满足选择架构的一个重要因素。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Intellectual Disabilities Multiple-

CiteScore

3.40

自引率

13.30%

发文量

期刊介绍： The principal aim of the journal is to provide a medium for the exchange of best practice, knowledge and research between academic and professional disciplines from education, social and health settings to bring about advancement of services for people with intellectual disabilities. The idea of a practice-led journal is both exciting and timely. This journal serves as a medium for all those involved with people with intellectual disabilities to submit and publish papers on issues relevant to promoting services for people with intellectual disabilities.