JPGN reports最新文献_第7页

Celiac crisis, transient hypertransaminasemia and positive smooth muscle antibodies (SMA): A celiac disease case report 乳糜泻危象、一过性高转氨酶血症和平滑肌抗体 (SMA) 阳性：乳糜泻病例报告

JPGN reports Pub Date : 2024-02-22 DOI: 10.1002/jpr3.12056

Federica Rodofile, Paola Melli, A. Di Siena, Paola Cogo

引用次数: 0

Interventions to alleviate anxiety and pain during venipuncture in children with chronic gastrointestinal and/or liver disease: A single‐center prospective observational study 减轻患有慢性胃肠道疾病和/或肝病的儿童在静脉穿刺过程中的焦虑和疼痛的干预措施：单中心前瞻性观察研究

JPGN reports Pub Date : 2024-02-15 DOI: 10.1002/jpr3.12053

Albert Fuchs, Berrit L Cordes, Rolf van Dick, Gianna Ebers, Antonia Kaluza, Christiane Konietzny, Ulrich Baumann

{"title":"Interventions to alleviate anxiety and pain during venipuncture in children with chronic gastrointestinal and/or liver disease: A single‐center prospective observational study","authors":"Albert Fuchs, Berrit L Cordes, Rolf van Dick, Gianna Ebers, Antonia Kaluza, Christiane Konietzny, Ulrich Baumann","doi":"10.1002/jpr3.12053","DOIUrl":"https://doi.org/10.1002/jpr3.12053","url":null,"abstract":"The goal of this longitudinal study was to reduce anxiety and pain in children with chronic conditions from the gastrointestinal tract during venipuncture. These children undergo regular venipuncture as part of their medical management and the procedure is often accompanied with anxiety and pain. In addition, children as well as their parents and health care professionals (HCPs) often suffer “compassionate pain” because of emotional interference.In a realistic clinical setting, different psychological and medical interventions were examined: (1) Psychoeducational brochures and (2) four different medical‐technical interventions during venipuncture. In a large hospital in Germany, 169 children, their parents, and HCPs were asked to rate anxiety and pain during venipuncture before and after the intervention.Children showed a clear preference for some of the medical‐technical interventions. Using Linear Mixed Models anxiety and pain rated by the children themselves showed no significant reduction. However, parents and HCPs reported a significant reduction. Age, gender, and status of liver transplantation were associated with a reduction in anxiety and pain in most of the analyses.Both psychoeducational brochures and medical‐technical interventions had a positive impact on anxiety and pain. However, effectivity for the medical–technical interventions was lower than in previous studies utilizing individual interventions. Reasons for this difference as well as possibilities to improve the intervention are discussed. In addition, this study provides practical day‐to‐day information about the implementation of interventions for the work in pediatric units such as when and how to provide psychoeducational materials.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":"13 25","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139962697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Massive infected pancreatic necrosis in an 8‐year‐old: Endoscopic management 一名 8 岁儿童的大面积感染性胰腺坏死：内镜治疗

JPGN reports Pub Date : 2024-02-14 DOI: 10.1002/jpr3.12052

William F Abel, Varun Kesar, Reid D. Wasserman, Manoj Kumar, Vishal Patel, P. Yeaton, Vivek Kesar

引用次数: 0

Status seizures as a secondary effect from the “squash drinking syndrome” in an infant 婴儿 "喝壁球综合征 "继发的状态发作

JPGN reports Pub Date : 2024-02-14 DOI: 10.1002/jpr3.12043

A. Rosell-Camps, Lucinda F. Bunce, Bernardí Barceló‐Martí, Artur Sharluyan‐Petrosyan

{"title":"Status seizures as a secondary effect from the “squash drinking syndrome” in an infant","authors":"A. Rosell-Camps, Lucinda F. Bunce, Bernardí Barceló‐Martí, Artur Sharluyan‐Petrosyan","doi":"10.1002/jpr3.12043","DOIUrl":"https://doi.org/10.1002/jpr3.12043","url":null,"abstract":"The “hypotonic drink syndrome” is characterized by loss of appetite, normal activity levels and, in some cases, intestinal disturbances in children with an intake of more than 30% of the recommended daily calories in the form of non‐dairy drinks. Diarrhea and growth retardation are possible complications due to the amount of nonnutritive calorie intake (“empty calories”) contained in this type of hypotonic beverages.We present the case of an 11‐month‐old boy who suffered a “Squash drinking syndrome” requiring admission to the pediatric intensive care unit because of a status seizure secondary to a severe hyponatremia (118 mmol/L) due to massive ingestion of hypotonic drinks, such as squash. The seizure did not subside until sodium levels reached 123 mmol/L with hypertonic saline (3%). Neurological, renal, digestive, endocrine and metabolic problems were all ruled out and normal sodium levels were maintained with dietary recommendations and a restriction of hypotonic fluid intake.To prevent these situations it is important to be aware of this entity and to know how to identify the possible complications that may appear after excessive ingestion of hypotonic drinks, as in the case of our patient, ranging from lack of appetite, growth failure and diarrhea, to a status seizure.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":"2 7","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139779194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Status seizures as a secondary effect from the “squash drinking syndrome” in an infant 婴儿 "喝壁球综合征 "继发的状态发作

JPGN reports Pub Date : 2024-02-14 DOI: 10.1002/jpr3.12043

A. Rosell-Camps, Lucinda F. Bunce, Bernardí Barceló‐Martí, Artur Sharluyan‐Petrosyan

{"title":"Status seizures as a secondary effect from the “squash drinking syndrome” in an infant","authors":"A. Rosell-Camps, Lucinda F. Bunce, Bernardí Barceló‐Martí, Artur Sharluyan‐Petrosyan","doi":"10.1002/jpr3.12043","DOIUrl":"https://doi.org/10.1002/jpr3.12043","url":null,"abstract":"The “hypotonic drink syndrome” is characterized by loss of appetite, normal activity levels and, in some cases, intestinal disturbances in children with an intake of more than 30% of the recommended daily calories in the form of non‐dairy drinks. Diarrhea and growth retardation are possible complications due to the amount of nonnutritive calorie intake (“empty calories”) contained in this type of hypotonic beverages.We present the case of an 11‐month‐old boy who suffered a “Squash drinking syndrome” requiring admission to the pediatric intensive care unit because of a status seizure secondary to a severe hyponatremia (118 mmol/L) due to massive ingestion of hypotonic drinks, such as squash. The seizure did not subside until sodium levels reached 123 mmol/L with hypertonic saline (3%). Neurological, renal, digestive, endocrine and metabolic problems were all ruled out and normal sodium levels were maintained with dietary recommendations and a restriction of hypotonic fluid intake.To prevent these situations it is important to be aware of this entity and to know how to identify the possible complications that may appear after excessive ingestion of hypotonic drinks, as in the case of our patient, ranging from lack of appetite, growth failure and diarrhea, to a status seizure.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":"760 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139838995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Massive infected pancreatic necrosis in an 8‐year‐old: Endoscopic management 一名 8 岁儿童的大面积感染性胰腺坏死：内镜治疗

JPGN reports Pub Date : 2024-02-14 DOI: 10.1002/jpr3.12052

William F Abel, Varun Kesar, Reid D. Wasserman, Manoj Kumar, Vishal Patel, P. Yeaton, Vivek Kesar

引用次数: 0

Herbal and dietary supplement induced liver injury leading to hepatitis‐associated severe aplastic anemia: A case report 草药和膳食补充剂诱发肝损伤，导致肝炎相关性重型再生障碍性贫血：病例报告

JPGN reports Pub Date : 2024-02-12 DOI: 10.1002/jpr3.12041

R. Mercedes, S. Harpavat, Paula M. Hertel, Ghadir Sasa, Susan Kirk, Kalyani Patel, K. Mysore

引用次数: 0

Is it “all in the bag?” Multidisciplinary perspectives on ostomy surgery in pediatric IBD across the ImproveCareNow network 都是 "囊中物 "吗？ImproveCareNow 网络中关于小儿 IBD 造口手术的多学科观点

JPGN reports Pub Date : 2024-02-12 DOI: 10.1002/jpr3.12044

J. David, Jennifer L. Dotson, Laura Mackner

{"title":"Is it “all in the bag?” Multidisciplinary perspectives on ostomy surgery in pediatric IBD across the ImproveCareNow network","authors":"J. David, Jennifer L. Dotson, Laura Mackner","doi":"10.1002/jpr3.12044","DOIUrl":"https://doi.org/10.1002/jpr3.12044","url":null,"abstract":"Pediatric inflammatory bowel disease (IBD) is a chronic illness with various treatments, including ostomy surgery. Ostomy‐related medical decision‐making (MDM) is complex for multidisciplinary healthcare professionals (HCPs). This study sought to understand national multidisciplinary HCPs' perceptions about pediatric IBD ostomy surgery in the United States.This cross‐sectional REDCap survey recruited HCPs in pediatric IBD HCP roles from the ImproveCareNow (ICN) Learning Health System. The survey gathered data on, (1) demographics, (2) participants' perspectives on patients/families' ostomy perceptions, (3) participants' own perspectives on ostomies, and (4) participants' perspectives on multidisciplinary collaboration in ostomy surgery.Participants (n = 69, across n = 30 American ICN sites) were 84% White, 62% female, and 54% gastroenterologists. In reflecting on patients/families' perceptions, participants endorsed most (86%) view ostomies as a “failure,” various psychosocial concerns (e.g., 97% endorsed body image concerns), and most (81%) have moderate to significant stigma about ostomies. In reflecting on their own perceptions, nearly half (44%) endorsed some to moderate stigma about ostomies and felt ostomy discussions were difficult when families had negative perceptions (88%). Over half (54%) endorsed currently having multidisciplinary care for pediatric IBD surgery. Most (70%) endorsed variability in the amount and/or quality of multidisciplinary collaboration.MDM related to pediatric IBD ostomy surgery presents nuanced clinical complexities for HCPs. This work underscores interest in multidisciplinary care, notable ostomy‐related psychosocial needs, and ostomy‐related stigma. Future work should develop systematic approaches to multidisciplinary pediatric IBD ostomy care, bolster psychosocial support, and evaluate how systematic care may impact psychosocial, and healthcare utilization outcomes.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":"69 39","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139844372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reply to letter to the editor in response to: Distinguishing autoimmune hepatitis from steatohepatitis in adolescents with obesity and positive screening alanine aminotransferase 回复致编辑的信：区分肥胖和丙氨酸氨基转移酶筛查阳性青少年的自身免疫性肝炎和脂肪性肝炎

JPGN reports Pub Date : 2024-02-12 DOI: 10.1002/jpr3.12049

Amber Hildreth, J. Schwimmer

引用次数: 0

Is it “all in the bag?” Multidisciplinary perspectives on ostomy surgery in pediatric IBD across the ImproveCareNow network 都是 "囊中物 "吗？ImproveCareNow 网络中关于小儿 IBD 造口手术的多学科观点

JPGN reports Pub Date : 2024-02-12 DOI: 10.1002/jpr3.12044

J. David, Jennifer L. Dotson, Laura Mackner

{"title":"Is it “all in the bag?” Multidisciplinary perspectives on ostomy surgery in pediatric IBD across the ImproveCareNow network","authors":"J. David, Jennifer L. Dotson, Laura Mackner","doi":"10.1002/jpr3.12044","DOIUrl":"https://doi.org/10.1002/jpr3.12044","url":null,"abstract":"Pediatric inflammatory bowel disease (IBD) is a chronic illness with various treatments, including ostomy surgery. Ostomy‐related medical decision‐making (MDM) is complex for multidisciplinary healthcare professionals (HCPs). This study sought to understand national multidisciplinary HCPs' perceptions about pediatric IBD ostomy surgery in the United States.This cross‐sectional REDCap survey recruited HCPs in pediatric IBD HCP roles from the ImproveCareNow (ICN) Learning Health System. The survey gathered data on, (1) demographics, (2) participants' perspectives on patients/families' ostomy perceptions, (3) participants' own perspectives on ostomies, and (4) participants' perspectives on multidisciplinary collaboration in ostomy surgery.Participants (n = 69, across n = 30 American ICN sites) were 84% White, 62% female, and 54% gastroenterologists. In reflecting on patients/families' perceptions, participants endorsed most (86%) view ostomies as a “failure,” various psychosocial concerns (e.g., 97% endorsed body image concerns), and most (81%) have moderate to significant stigma about ostomies. In reflecting on their own perceptions, nearly half (44%) endorsed some to moderate stigma about ostomies and felt ostomy discussions were difficult when families had negative perceptions (88%). Over half (54%) endorsed currently having multidisciplinary care for pediatric IBD surgery. Most (70%) endorsed variability in the amount and/or quality of multidisciplinary collaboration.MDM related to pediatric IBD ostomy surgery presents nuanced clinical complexities for HCPs. This work underscores interest in multidisciplinary care, notable ostomy‐related psychosocial needs, and ostomy‐related stigma. Future work should develop systematic approaches to multidisciplinary pediatric IBD ostomy care, bolster psychosocial support, and evaluate how systematic care may impact psychosocial, and healthcare utilization outcomes.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":"23 7","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139784161","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0