JPGN reports最新文献

Long‐term implications of a multidisciplinary tube‐weaning program: Parental perspectives 多学科试管断奶计划的长期影响：家长的观点

JPGN reports Pub Date : 2024-07-24 DOI: 10.1002/jpr3.12112

Judith N. Blinder, Tal Dror, Patrice L. Weiss, M. Beeri

{"title":"Long‐term implications of a multidisciplinary tube‐weaning program: Parental perspectives","authors":"Judith N. Blinder, Tal Dror, Patrice L. Weiss, M. Beeri","doi":"10.1002/jpr3.12112","DOIUrl":"https://doi.org/10.1002/jpr3.12112","url":null,"abstract":"Children who are unable to eat and drink orally require temporary or permanent enteral nutritional support via tube feeding. The objective was to describe a weaning program held at a children's rehabilitation hospital and to review the long‐term outcomes of the transition from tube nutrition to oral feeding.The parents of 82 children who took part in the ALYN intervention program from 2011 to 2022 were requested to participate in a telephone survey to learn about their child's status related to eating, education, social wellbeing, and overall health. They also provided feedback concerning their experience with the tube‐weaning program and their current reliance on support for eating‐related issues.The parents of 35 (39%) children responded. Their mean ± SD age at the time of treatment were 2.1 ± 1.76, and the mean ± SD age at the time of the survey 8.85 ± 3.96 years. Their mean current zBMI is −0.7. Overall, parents were very satisfied with the child's eating (4.7 out of 5) ± 0.7, and few reported that the child's eating affected the family mealtime routine (2.1 out of 5) ± 1.3. The children's age at weaning was significantly correlated with parental reports of concern with the child's current eating ability, with younger ages at weaning associated with lower parental concern.The data demonstrated that despite the complexity of the participants, most children succeed in achieving long‐term independent eating, good nutritional status, and social participation around mealtimes.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":"65 10","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141806679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The first paediatric living donor auxiliary orthotopic liver transplant for dengue acute liver failure 首例治疗登革热急性肝衰竭的儿科活体辅助正位肝移植手术

JPGN reports Pub Date : 2024-07-11 DOI: 10.1002/jpr3.12103

S. Ramakrishna, Karthik Ageeru, M. Kasala, R. Krupanandan, Karnan Perumal, S. Malleeswaran, Rajanikanth V. Patcha, Joy Varghese, M. S. Reddy, B. Ramachandran, K. Sadasivam

引用次数: 0

Anterior abdominal wall defects and their management outcomes in Tikur Anbessa Specialized Hospital, neonatal intensive care unit Tikur Anbessa 专科医院新生儿重症监护室的前腹壁缺损及其处理结果

JPGN reports Pub Date : 2024-07-10 DOI: 10.1002/jpr3.12110

Abebe Habtamu, Tenagne Million

{"title":"Anterior abdominal wall defects and their management outcomes in Tikur Anbessa Specialized Hospital, neonatal intensive care unit","authors":"Abebe Habtamu, Tenagne Million","doi":"10.1002/jpr3.12110","DOIUrl":"https://doi.org/10.1002/jpr3.12110","url":null,"abstract":"Gastroschisis and omphalocele are common malformations of the anterior abdominal wall and can lead to significant morbidity and mortality in neonates. Despite advances in surgical care, these conditions remain challenging to manage effectively.This retrospective institutional study aimed to assess the management outcomes of neonates with anterior abdominal wall defects, specifically gastroschisis and omphalocele, in the Neonatal Intensive Care Unit (NICU) of Tikur Anbessa Specialized Hospital (TASH) (Tertiary Hospital).A retrospective review was conducted on cases of gastroschisis and omphalocele managed in the NICU of TASH from August 2018 to August 2022. Patient charts of neonates with omphalocele and gastroschisis were identified and retrieved from the NICU records. The collected data were analyzed using statistical software such as SPSS.The study included a total of 50 neonates with abdominal wall defects, consisting of 39 cases of omphalocele and 11 cases of gastroschisis. Maternal age ranged from 18 to 40 years, with a mean age of 27.6 ± 4.5 years. Associated malformations were documented in 33.3% of omphalocele cases and 18.2% of gastroschisis cases. Cardiac anomalies were the most frequently associated malformation with omphalocele. Surgical intervention was performed in 27.3% of gastroschisis cases (3 out of 11) and 41% of omphalocele cases (16 out of 39). The postsurgery mortality rate was 12.5% for both major and minor omphaloceles, with 11 deaths occurring in gastroschisis cases. Sepsis was identified as the cause of death in all neonates who did not survive.The study revealed a significantly higher mortality rate in gastroschisis cases compared to omphalocele cases. Sepsis was identified as the primary cause of death in the neonates. These findings underscore the importance of effective management strategies to prevent and manage sepsis in neonates with abdominal wall defects.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":"72 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141662702","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Eosinophilic myenteric ganglionitis: A case in a 14‐year‐old‐male 嗜酸性肠肌神经节炎：一名 14 岁男性的病例

JPGN reports Pub Date : 2024-07-08 DOI: 10.1002/jpr3.12108

Anthony Price, Tandis Rastegarlari, Sanober Khowaja, Kade Thompson, A. Lahiji, Michelle M. Felicella, Jing He, Annie Goodwin

引用次数: 0

Thirty‐two‐month‐old with multiple duodenal webs diagnosed after failed gastrojejunostomy exchange successfully treated with combination endoscopic therapy 胃空肠造口术换药失败后被诊断为多发性十二指肠蹼的三十二个月大婴儿成功接受了内窥镜联合疗法

JPGN reports Pub Date : 2024-07-08 DOI: 10.1002/jpr3.12107

Naomi E. B. Tjaden, Michael Acord, Jane Minturn, Myron Allukian, P. Mamula

引用次数: 0

Wernicke encephalopathy in a pediatric patient with cannabinoid hyperemesis: A novel case report 一名患有大麻素亢进症的儿科患者出现了韦尼克脑病：一份新病例报告

JPGN reports Pub Date : 2024-07-08 DOI: 10.1002/jpr3.12109

Melissa Munroe, Zalan Shah, Aniruddh Setya

引用次数: 0

Additional abstracts, JPGN reports, volume 5, issue S1 更多摘要，JPGN 报告，第 5 卷第 S1 期

JPGN reports Pub Date : 2024-07-05 DOI: 10.1002/jpr3.12100

引用次数: 0

A multidisciplinary program to wean infants and toddlers from long‐term tube feeding: Lessons learned from a retrospective study 婴幼儿长期管饲断奶的多学科计划：从一项回顾性研究中汲取的经验教训

JPGN reports Pub Date : 2024-07-04 DOI: 10.1002/jpr3.12104

M. Beeri, Tal Dror, Patrice L. Weiss, Judith N. Blinder

{"title":"A multidisciplinary program to wean infants and toddlers from long‐term tube feeding: Lessons learned from a retrospective study","authors":"M. Beeri, Tal Dror, Patrice L. Weiss, Judith N. Blinder","doi":"10.1002/jpr3.12104","DOIUrl":"https://doi.org/10.1002/jpr3.12104","url":null,"abstract":"Children maintain growth and development by ingesting adequate calories and nutrients, typically achieved via oral intake of food and liquids. When unable to eat and drink orally, they need temporary or permanent enteral nutritional support via nasogastric, nasoduodenal, gastrostomy, or jejunostomy tubes. The objectives of this retrospective study are to describe lessons learned from operating a weaning program at ALYN Hospital for over a decade, the characteristics of the patient population (gender, age, medical condition, and type of tube feeding and hospitalization), and which of these characteristics correlate with successful weaning.Data were obtained from the hospital's secure database of 82 infants and toddlers, 37 boys (45.4%) and 45 girls (54.9%) aged 3 months to 10.8 years who took part in a tube feeding intervention from 2011 to 2020. Descriptive and correlational analyses were performed to characterize the participants and their responses to the program.Fifty‐one children (62.2%) were less than 2 years, 26 children (31.7%) were 2–4.11 years, and only 5 children were aged 5 years (6.1%) and older. Fifty‐six children were successfully weaned from tube feeding, 9 children were eventually successful, but the process took longer than anticipated, 11 children were partially weaned and 6 were not successfully weaned.These results are discussed within the context of a successful weaning program related to participant characteristics (medical condition, age, gender, and weight), and subsequent recommendations are offered related to the intervention setting, duration, and intensity; redefining success in weaning and the need for long‐term follow‐up.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":" 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141679283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Successful endoscopic submucosal dissection of an esophageal granular cell tumor in a pediatric patient: A case report and a therapeutic insight 一名小儿食管颗粒细胞瘤的内镜黏膜下剥离术获得成功：病例报告与治疗启示

JPGN reports Pub Date : 2024-07-04 DOI: 10.1002/jpr3.12106

Sara Al Dogom, Jerapas Thongpiya, Marawan Elmassry, Mark Feist, Meenu Sharma, George Rateb

引用次数: 0

Haemostatic spray in the management of acute nonvariceal upper gastrointestinal bleeding in children: A single‐centre experience in Singapore 止血喷雾剂用于治疗儿童急性非静脉曲张性上消化道出血：新加坡单中心经验

JPGN reports Pub Date : 2024-07-02 DOI: 10.1002/jpr3.12105

Christopher Wen Wei Ho, Lynette Suk‐hui Goh, Lay Queen Ng, Charanya Rajan, V. Logarajah, F. K. Chiou

{"title":"Haemostatic spray in the management of acute nonvariceal upper gastrointestinal bleeding in children: A single‐centre experience in Singapore","authors":"Christopher Wen Wei Ho, Lynette Suk‐hui Goh, Lay Queen Ng, Charanya Rajan, V. Logarajah, F. K. Chiou","doi":"10.1002/jpr3.12105","DOIUrl":"https://doi.org/10.1002/jpr3.12105","url":null,"abstract":"Haemostatic spray (HS; Hemospray) is a powder agent for endoscopic haemostasis in patients with acute upper gastrointestinal bleeding (UGIB). It has been shown to be effective and easy to administer. However, published data on efficacy and safety in children remain scarce. Our aim was to describe our experience with the use of HS in the management of UGIB.A retrospective review was conducted of patients aged 0–18 receiving HS for endoscopic haemostasis from January 2017 to December 2021. Information was obtained on demographics, clinical presentation and comorbidities. Outcomes were successful initial haemostasis and rates of re‐bleeding.A total of 25 applications of HS occurred in 23 patients. The median patient age was 8 years (range: 4 months to 16 years). HS was used in 17/25 (68%) applications as monotherapy. Other treatments employed were clip application and adrenaline injection. One hundred per cent initial haemostasis was achieved with three (13.0%) patients who experienced re‐bleeding. All patients tolerated HS applications with no adverse events.Our finding supports the use of HS in the management of UGIB in children. HS, either as monotherapy or in combination with other conventional therapy, could potentially be the treatment of choice in children with UGIB with its excellent feasibility and good safety profile.","PeriodicalId":501015,"journal":{"name":"JPGN reports","volume":"8 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141685084","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0