Journal of Applied Research in Intellectual Disabilities最新文献

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Identifying Patient Safety Competencies for Healthcare Staff Treating Children and Young People With Intellectual Disability in Hospitals: A Delphi Study 识别医院中治疗智障儿童和青少年的医护人员的患者安全能力:一项德尔菲研究
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-02 DOI: 10.1111/jar.13329
Natalie Ong, Kelsie Boulton, Jacqueline Milne, Gail Tomsic, Adam Guastella, Natalie Silove, Janelle Weise, Janet Long, Merrilyn Walton, Annette Burgess
{"title":"Identifying Patient Safety Competencies for Healthcare Staff Treating Children and Young People With Intellectual Disability in Hospitals: A Delphi Study","authors":"Natalie Ong,&nbsp;Kelsie Boulton,&nbsp;Jacqueline Milne,&nbsp;Gail Tomsic,&nbsp;Adam Guastella,&nbsp;Natalie Silove,&nbsp;Janelle Weise,&nbsp;Janet Long,&nbsp;Merrilyn Walton,&nbsp;Annette Burgess","doi":"10.1111/jar.13329","DOIUrl":"https://doi.org/10.1111/jar.13329","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Children and young people with intellectual disability have poor healthcare and are at risk of patient safety events due to lack of staff training and consensus on competencies for safe and quality care. For the adoption of reasonable adjustments in mainstream paediatric healthcare clinical competencies needed to be adapted to an existing patient safety education framework.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Thirteen experts in intellectual disability health and patient safety participated in an eDelphi survey aimed at reaching consensus on core competencies required of the paediatric healthcare workforce. Four rounds were completed with descriptive and thematic analyses undertaken.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Consensus was achieved for 120 competencies across seven domains. Results highlighted the need for adaptations in all the domains, particularly communication, working safely and specific areas unique to this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>An adapted framework that addresses competencies for safe and quality care that included reasonable adjustments is critical for improving care for this population.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142764274","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceptual Experiences of Autistic People With an Intellectual Disability and People With Williams Syndrome: A Reflexive Thematic Analysis 孤独症伴智障者与威廉姆斯综合症者的知觉经验:反身性主题分析
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-29 DOI: 10.1111/jar.13326
Freya Elise, Brian Irvine, Jana Brinkert, Charlie Hamilton, Emily K. Farran, Elizabeth Milne, Gaia Scerif, Anna Remington
{"title":"Perceptual Experiences of Autistic People With an Intellectual Disability and People With Williams Syndrome: A Reflexive Thematic Analysis","authors":"Freya Elise,&nbsp;Brian Irvine,&nbsp;Jana Brinkert,&nbsp;Charlie Hamilton,&nbsp;Emily K. Farran,&nbsp;Elizabeth Milne,&nbsp;Gaia Scerif,&nbsp;Anna Remington","doi":"10.1111/jar.13326","DOIUrl":"https://doi.org/10.1111/jar.13326","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Autistic people without intellectual disabilities have increased perceptual capacity: they can process more information at any given time compared to non-autistic people. We examined whether increased perceptual capacity is evident across the autistic spectrum (i.e. for autistic people with intellectual disabilities) and whether it is specific to autism, or also experienced by people with Williams Syndrome (WS).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Five autistic adults with intellectual disabilities and five adults with WS took part in accessible, qualitative interviews. Responses were analysed using thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Both groups expressed enjoyment of focussed attention, with autistic participants preferring multiple simultaneous inputs. Responses suggested increased perceptual capacity for autistic participants only. The sensory environment was reported to be anxiety-inducing for both groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study gives preliminary evidence that increased perceptual capacity may be universal across the autistic spectrum, and specific to autism. Understanding differences in capacity offers more targeted suggestions to support sensory challenges.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13326","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142749342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Leveraging Observation Research to Improve Instruction for Students With Intellectual Disability: Guidance for Adapting Tools 利用观察研究改进智障学生的教学:工具改编指南》。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-20 DOI: 10.1111/jar.13320
Esther R. Lindström, Kimberly A. McFadden
{"title":"Leveraging Observation Research to Improve Instruction for Students With Intellectual Disability: Guidance for Adapting Tools","authors":"Esther R. Lindström,&nbsp;Kimberly A. McFadden","doi":"10.1111/jar.13320","DOIUrl":"10.1111/jar.13320","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Aims</h3>\u0000 \u0000 <p>Students with intellectual disability benefit from high-quality instruction in reading and mathematics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This Theoretical Paper outlines the need for effective, evidence-based instructional practices for this population and the potential for observation research to inform such advancements. We report our systematic process of adapting two widely used observation tools initially developed for students with learning disabilities, to address content and instructional practices relevant to classrooms serving elementary students with intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Our revised observation tools facilitated more inclusive data collection, taking into account the needs and goals of students with intellectual disability, in addition to their peers for whom the original tool was designed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>We offer guidance for researchers and practitioners to make similar adaptations when using research tools intended for other populations or instructional settings.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11579562/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142683686","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transitions-Related Support for Ageing Family Carers of Older People With Intellectual Disabilities Who Convey Behaviours That Challenge Others: A Systematic Rapid Scoping Review 为有挑战他人行为的智障老年人的家庭照顾者提供与过渡相关的支持:系统性快速范围界定审查》。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-20 DOI: 10.1111/jar.13322
J. Jordan, M. Larkin, E. Tilley, J. Vseteckova, S. Ryan, L. Wallace
{"title":"Transitions-Related Support for Ageing Family Carers of Older People With Intellectual Disabilities Who Convey Behaviours That Challenge Others: A Systematic Rapid Scoping Review","authors":"J. Jordan,&nbsp;M. Larkin,&nbsp;E. Tilley,&nbsp;J. Vseteckova,&nbsp;S. Ryan,&nbsp;L. Wallace","doi":"10.1111/jar.13322","DOIUrl":"10.1111/jar.13322","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A rapid scoping review of published and unpublished literature, using systematic methods of data searching, extraction and analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Exhaustion, reluctance to burden others, distrust of alternative living arrangements and deep interpersonal ties with their family member with intellectual disabilities mean ageing carers can avoid planning ahead. There is a lack of appropriate information, support and professional advice available. Developing trust in services is critical, as is a ‘whole family’ approach to planning.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>More research is vital to understand the support ageing carers receive to make choices, and how it meets their needs.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13322","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142683690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Systematic Review of Burnout Among Staff Working in Services for Adults With Intellectual and Developmental Disabilities 智障和发育障碍成人服务机构员工职业倦怠的系统回顾
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-18 DOI: 10.1111/jar.13325
Peter Baker, Josephine Chishty-Collins, Nick Gore
{"title":"A Systematic Review of Burnout Among Staff Working in Services for Adults With Intellectual and Developmental Disabilities","authors":"Peter Baker,&nbsp;Josephine Chishty-Collins,&nbsp;Nick Gore","doi":"10.1111/jar.13325","DOIUrl":"https://doi.org/10.1111/jar.13325","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A systematic review of all studies involving staff working with people with intellectual disabilities using the Maslach Burnout Inventory Human Services Version (MBI-HS) published from May 2004 up to and including April 2024 was conducted.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-one studies were found which allowed updated norms and comparisons with previously published norms (Skirrow and Hatton, <i>Journal of Applied Research in Intellectual Disabilities</i> 2007; 20(2):131–144) and normative scores from staff working in human services. Scores indicated significantly lower levels of Emotional Exhaustion and Depersonalisation and less Personal Accomplishment compared to norms for people working in human services. The positive trend in improving burnout scores previously reported by Skirrow and Hatton (<i>Journal of Applied Research in Intellectual Disabilities</i> 2007; 20(2):131–144) had not continued.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>A ‘National Observatory’ approach is recommended to enable regular monitoring of staff wellbeing and exploration of influencing variables.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13325","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142665905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Outcomes of a Creative Ability–Based Intervention: Advancing Independence in Learners With Severe Intellectual Disability 基于创造性能力的干预措施的成果:提高严重智障学习者的独立性
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-18 DOI: 10.1111/jar.13323
Annamarie Elisabet van Wyngaard, Catharina Jacoba Elizabeth Uys
{"title":"Outcomes of a Creative Ability–Based Intervention: Advancing Independence in Learners With Severe Intellectual Disability","authors":"Annamarie Elisabet van Wyngaard,&nbsp;Catharina Jacoba Elizabeth Uys","doi":"10.1111/jar.13323","DOIUrl":"https://doi.org/10.1111/jar.13323","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>When supporting learners with severe intellectual disabilities, teaching methods needs to be adapted. Vona du Toit Model of Creative Ability (VdTMoCA) aims to enhance participation and facilitate adaptive responses through targeted intervention principles. This study aimed to develop and evaluate the impact of an intervention programme for learners with severe intellectual disability based on the VdTMoCA to improve independence in an Instrumental Activity of Daily Living (IADL), namely doing a laundry activity.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A multiple case study with a literal replication design, including six subjects with severe intellectual disability, was used. The intervention consisted of a 1-week baseline assessment and four intervention sessions. To identify changes, levels of prompting and the time taken to initiate each step were measured.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>This study showed that a meticulously designed intervention programme based on the VdTMoCA principles rendered positive outcomes. Activity analysis and adaptation of the steps in a laundry activity, according to the principles of therapeutic relationship, presentation and structuring, contributed to this success.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13323","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142665906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Strengths and Resilience of Siblings of People With Intellectual and Developmental Disabilities 探索智力和发育障碍人士兄弟姐妹的优势和复原力。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-16 DOI: 10.1111/jar.13324
Chung Eun Lee, Sehrish Shikarpurya
{"title":"Exploring the Strengths and Resilience of Siblings of People With Intellectual and Developmental Disabilities","authors":"Chung Eun Lee,&nbsp;Sehrish Shikarpurya","doi":"10.1111/jar.13324","DOIUrl":"10.1111/jar.13324","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Aims</h3>\u0000 \u0000 <p>Siblings play a crucial role in shaping and guiding the experiences of their brother or sister with a disability across the lifespan. However, little is known about the positive outcomes of their roles and experiences as siblings. Understanding the positive outcomes challenges stereotypes and the stigma associated with disabilities and allows for a more holistic view of sibling experiences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We conducted a survey with 140 adult siblings of people with disabilities to explore their strengths, resilience and community belonging.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We found that siblings highly rated their perceived strengths across various domains. Furthermore, siblings maintained high levels of resilience and most belonged to various organisations for social support. We also noted several strengths-based factors that predicted siblings' resilience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Our findings offer significant insights into siblings' inherent and developed strengths and the role of community networks in promoting sibling resilience and expanding their support systems.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142645263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hypothyroidism in a Psychiatric Outpatient Population of People With Intellectual Disabilities 精神科门诊智障人士中的甲状腺功能减退症。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-08 DOI: 10.1111/jar.13321
Verity Chester, Medha Cherukat, Nicholas Smith, Elizabeth Patteril, Indermeet Sawhney, Asif Zia, Regi Alexander
{"title":"Hypothyroidism in a Psychiatric Outpatient Population of People With Intellectual Disabilities","authors":"Verity Chester,&nbsp;Medha Cherukat,&nbsp;Nicholas Smith,&nbsp;Elizabeth Patteril,&nbsp;Indermeet Sawhney,&nbsp;Asif Zia,&nbsp;Regi Alexander","doi":"10.1111/jar.13321","DOIUrl":"10.1111/jar.13321","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Hypothyroidism is a chronic health condition which causes physical, cognitive and psychiatric symptoms. The prevalence of hypothyroidism in adults with intellectual disabilities is under researched.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Hypothyroidism was examined among 463 patients within an outpatient intellectual disability psychiatric team. Clinic records were utilised for this study, including sociodemographic, psychiatric and physical health diagnoses.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Among the 463 patients, 43 (9%) had hypothyroidism. Compared to those without hypothyroidism, the hypothyroid group were significantly older, more likely to be female, and had increased rates of high cholesterol, diabetes, Down's Syndrome and dementia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>Rates of hypothyroidism within this cohort of patients with intellectual disabilities were high (9%). The results suggest hypothyroidism in intellectual disability should be the focus of prospective research, in larger, more representative samples. This study indicates a need for increased awareness of, and resources for hypothyroidism in health services.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142606741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Urinary Tract Infections Amongst Adults With Intellectual Disabilities With Urinary Incontinence 尿失禁智障成人中的尿路感染。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-07 DOI: 10.1111/jar.13317
Janet Finlayson, Nick Gore, Paul Ord, Fiona Roche, John Butcher, Ryan Kean, Dawn A. Skelton
{"title":"Urinary Tract Infections Amongst Adults With Intellectual Disabilities With Urinary Incontinence","authors":"Janet Finlayson,&nbsp;Nick Gore,&nbsp;Paul Ord,&nbsp;Fiona Roche,&nbsp;John Butcher,&nbsp;Ryan Kean,&nbsp;Dawn A. Skelton","doi":"10.1111/jar.13317","DOIUrl":"10.1111/jar.13317","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Between 26% and 52% of adults with intellectual disability experience urinary incontinence (UI). Little is known about the implications of urinary tract infections (UTIs) for this group. The aim was to screen for UTIs in a sample of adults with intellectual disability and UI.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Twenty adults with intellectual disability and UI recruited via community intellectual disability health care teams and provided a urine sample. Each sample was tested for the presence of UTI bacteria.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Half of the sample were found to have a possible or probable UTI. Nine adults had also been treated for a UTI within the previous 12 months; six adults had more than once.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>UTIs appear to be very common amongst adults with intellectual disability and UI, and careful attention to UTI symptoms, screening and treatment options for this group are recommended. Larger studies on UTI prevalence and associated factors are also warranted.</p>\u0000 \u0000 <p><b>Trial Registration:</b> ClinicalTrials.gov: NCT05626062</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13317","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142606745","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parent Involvement in Post-School Transition Services for Senior High School Students With Intellectual Disabilities 家长参与智障高中生毕业后的过渡服务。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-05 DOI: 10.1111/jar.13316
Yu-Jung Hsieh, Wei-Sho Ho, Shu-Jou Sun
{"title":"Parent Involvement in Post-School Transition Services for Senior High School Students With Intellectual Disabilities","authors":"Yu-Jung Hsieh,&nbsp;Wei-Sho Ho,&nbsp;Shu-Jou Sun","doi":"10.1111/jar.13316","DOIUrl":"10.1111/jar.13316","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parents play a key role in the transition process of their children. After high school students with intellectual disabilities leave the school system, they need the cooperation of schools and families to ensure successful employment and independent living.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A case study was conducted in a Taiwanese high school special education class, collecting data from 12 participants through interviews, documents and diaries.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The results showed that active parental involvement in transition activities, strong parent–teacher partnerships, understanding of students' strengths and support from social resources were key to successful transitions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study explored the effectiveness and difficulties of parents' participation in the post-school transition of students with intellectual disabilities from the perspectives of teachers, parents and students. Finally, it proposed the need to be the child's significant other, early participation in transition planning and joint involvement of parents and their children.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142577424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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