Journal of Applied Research in Intellectual Disabilities最新文献

筛选
英文 中文
Co-Designing a Toolkit of Approaches and Resources for End-of-Life Care Planning With People With Intellectual Disabilities Within Adult Social Care Settings: A Multi-Phase Study
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-02-10 DOI: 10.1111/jar.70019
Irene Tuffrey-Wijne, Andrea Bruun, Elizabeth Tilley, Jo Giles, Sarah Gibson, Amanda Cresswell, Richard Keagan-Bull, Leon Jordan, Gemma Allen, Sarah Swindells, Nicola Payne, Rhidian Hughes, Rebecca Anderson-Kittow
{"title":"Co-Designing a Toolkit of Approaches and Resources for End-of-Life Care Planning With People With Intellectual Disabilities Within Adult Social Care Settings: A Multi-Phase Study","authors":"Irene Tuffrey-Wijne,&nbsp;Andrea Bruun,&nbsp;Elizabeth Tilley,&nbsp;Jo Giles,&nbsp;Sarah Gibson,&nbsp;Amanda Cresswell,&nbsp;Richard Keagan-Bull,&nbsp;Leon Jordan,&nbsp;Gemma Allen,&nbsp;Sarah Swindells,&nbsp;Nicola Payne,&nbsp;Rhidian Hughes,&nbsp;Rebecca Anderson-Kittow","doi":"10.1111/jar.70019","DOIUrl":"https://doi.org/10.1111/jar.70019","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disabilities are rarely involved in end-of-life decisions. This study investigated and further developed approaches and resources to enable inclusive end-of-life care planning.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A multi-centre, multi-method four-phase study, involving 195 researchers, participants, advisors and co-design members, including 36 people with intellectual disabilities: (i) evidence review; (ii) stakeholder focus groups; (iii) Experience-Based Co-Design and (iv) testing of co-designed resources.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>There was little empirical evidence regarding the efficacy of existing resources. Focus group participants signalled overwhelming support for inclusive end-of-life care planning but notable variance around where/what/when/who/how. The co-design group developed a toolkit of existing and new resources. Feedback from toolkit testers was positive but barriers to staff engagement through the testing period were noted.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Flexible, creative and interactive approaches that open up conversations are the building blocks for inclusive end-of-life care planning. Barriers include lack of staff confidence, time and resources and a death avoidance culture.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70019","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143380116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
School Satisfaction Predicts Quality of Life for Children With Severe Developmental Disabilities and Their Families
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-30 DOI: 10.1111/jar.70013
Sarah E. Bjornson, Adrienne Perry
{"title":"School Satisfaction Predicts Quality of Life for Children With Severe Developmental Disabilities and Their Families","authors":"Sarah E. Bjornson,&nbsp;Adrienne Perry","doi":"10.1111/jar.70013","DOIUrl":"10.1111/jar.70013","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Children with severe developmental disabilities are frequently excluded from research, and little is known about their quality of life (QoL). Using a mixed-methods approach, this study examined relationships between school factors and QoL for these children and their families.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>171 parents of children with severe developmental disabilities completed questionnaires. Hierarchical regression analyses were performed examining predictors of child and family QoL. Of the 171 parents, 123 responded to an open-ended question about their children's school experiences, and responses were analysed qualitatively.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Significant predictors of QoL included challenging behaviours, diagnoses, parent self-efficacy, social support and (importantly) school satisfaction. Seven themes related to school experiences were identified qualitatively.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Many factors contribute to QoL. School has a significant influence on children and their parents and families. Different children have different strengths and difficulties, and school systems need to work with parents to optimise outcomes.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11782910/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143070075","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Acceptability of a Peer-Delivered Mental Health Intervention to Support Young Adults With Intellectual and/or Developmental Disabilities
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-29 DOI: 10.1111/jar.70014
Ariel Schwartz, Nikola Davern, Alix Herer, Micah Peace-Urquilla, Jesse Corey, Dheva Muthuramalingam, Neha Vallabhaneni
{"title":"Exploring the Acceptability of a Peer-Delivered Mental Health Intervention to Support Young Adults With Intellectual and/or Developmental Disabilities","authors":"Ariel Schwartz,&nbsp;Nikola Davern,&nbsp;Alix Herer,&nbsp;Micah Peace-Urquilla,&nbsp;Jesse Corey,&nbsp;Dheva Muthuramalingam,&nbsp;Neha Vallabhaneni","doi":"10.1111/jar.70014","DOIUrl":"10.1111/jar.70014","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Young adults with intellectual and/or developmental disabilities lack access to mental health supports. Peer-delivered services may fill this gap. We adapted a theory-driven and evidence-based peer mentoring intervention for virtual-delivery and investigated its acceptability and participants' preliminary response.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Twelve young adults with intellectual and/or developmental disabilities participated in the 16-week intervention and completed outcome measures at pre-mentoring, post-mentoring and 1-month follow-up. To evaluate acceptability, participants completed interviews and a survey. Preliminary response was measured with the Alexithymia Questionnaire for Children and PROMIS short forms (Self-efficacy for Managing Emotions, Anxiety, and Physical Stress).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants felt emotionally supported, increased self-understanding, and learned to use coping strategies. Participants reported improvements in alexithymia, self-efficacy for managing emotions and anxiety; no changes were observed for physical stress symptoms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Participants were satisfied with peer mentoring and data suggest it may have promise to support development of skills that support mental health outcomes.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143070074","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Impact of Menopause on the Mental Health of Women With an Intellectual Disability: A Scoping Review
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-28 DOI: 10.1111/jar.70017
Stephanie Corrigan, Mary McCarron, Philip McCallion, Éilish Burke
{"title":"The Impact of Menopause on the Mental Health of Women With an Intellectual Disability: A Scoping Review","authors":"Stephanie Corrigan,&nbsp;Mary McCarron,&nbsp;Philip McCallion,&nbsp;Éilish Burke","doi":"10.1111/jar.70017","DOIUrl":"10.1111/jar.70017","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Negative mental health implications of menopause found in the general population, combined with high rates of mental health conditions found in women with intellectual disabilities, provide rationale to examine the existing literature to determine the impact of menopause on women with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The review was conducted using scoping review methodology by Arksey and O'Malley. A systematic search was conducted across multiple databases. Relevant articles were screened according to inclusion/exclusion criteria. Braun and Clarke's thematic analysis was utilised to identify themes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>After screening, eight articles satisfied the inclusion/exclusion criteria, and after thematic analysis, themes found were: <i>changes in mood, lack of reporting of psychological symptoms</i> and <i>difficulty attributing psychological symptoms to menopause</i>.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings indicate the paucity of literature and the lack of attention paid to examining the impact of menopause on the experiences and mental health of women with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11774133/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Australian Registered Nurse's' Awareness of Key Issues, Ambivalence and Education Related to the Health of People With Intellectual Disability and/or Autism
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-27 DOI: 10.1111/jar.70016
A. Cashin, A. Pracilio, T. Buckley, K. Griffin, J. Trollor, N. J. Wilson
{"title":"Australian Registered Nurse's' Awareness of Key Issues, Ambivalence and Education Related to the Health of People With Intellectual Disability and/or Autism","authors":"A. Cashin,&nbsp;A. Pracilio,&nbsp;T. Buckley,&nbsp;K. Griffin,&nbsp;J. Trollor,&nbsp;N. J. Wilson","doi":"10.1111/jar.70016","DOIUrl":"10.1111/jar.70016","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Health outcomes of people with Autism Spectrum Disorder and/or Intellectual Disability are poor. Yet there is a paucity of nurse education and preparation to care for people with Autism Spectrum Disorder and Intellectual Disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A cross sectional survey of Australian Registered Nurses related to their educational experience, awareness of the national disability support scheme and the concept of making reasonable adjustments.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The majority of Australian Registered Nurses did not experience undergraduate content related to caring for people with Autism Spectrum Disorder and/or Intellectual Disability. Few participants experienced a dedicated clinical placement. Just over one half of the participants were aware of reasonable adjustments. Continuing professional education was significantly related to a greater awareness of reasonable adjustments and less ambivalence.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Education plays a key role in promoting awareness and reducing ambivalence. Education focussed on understanding the diversity in the particular types of neurodiversity is particularly efficacious.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11772910/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Inclusive Education for University Students With and Without Intellectual Disabilities: Effectiveness of an Anti-Stigma Intervention
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-23 DOI: 10.1111/jar.70012
Álvaro Moraleda Ruano, Diana Ruiz Vicente, Joanne Mampaso Desbrow, Diego Galán-Casado
{"title":"Inclusive Education for University Students With and Without Intellectual Disabilities: Effectiveness of an Anti-Stigma Intervention","authors":"Álvaro Moraleda Ruano,&nbsp;Diana Ruiz Vicente,&nbsp;Joanne Mampaso Desbrow,&nbsp;Diego Galán-Casado","doi":"10.1111/jar.70012","DOIUrl":"10.1111/jar.70012","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study examines stigma and self-stigma towards individuals with intellectual disabilities among university students, focusing on cognitive, emotional and behavioural dimensions. It highlights the negative impact on social inclusion and the importance of educational interventions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A quantitative pre-/post-test design with a control group assessed stigma towards intellectual disabilities. Differences based on the presence of intellectual disabilities and the effectiveness of an anti-stigma intervention was evaluated using the Goratu questionnaire.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>No significant gender differences in stigma levels were found. Students with intellectual disabilities showed significantly higher stigma levels compared to their peers without disabilities. The anti-stigma intervention improved attitudes in the experimental group versus the control group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings support the efficacy of educational interventions in reducing stigma and promoting inclusive attitudes. Despite limitations like potential social desirability bias, this research offers valuable insights for policymakers and educators to enhance social inclusion and reduce stigma.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143034809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Intersection of Gender Diversity and Intellectual Disability: A Scoping Review With a Focus on Clinical Care
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-22 DOI: 10.1111/jar.70010
Kady F. Sternberg, Joanna G. Cloutier, Kaitlyn Ahlers, Christina Moore, Kathleen A. Koth, Takahiro Soda, Narpinder Kaur Malhi, Shikha Verma, Lisa C. Yeh, Jennifer L. McLaren
{"title":"Exploring the Intersection of Gender Diversity and Intellectual Disability: A Scoping Review With a Focus on Clinical Care","authors":"Kady F. Sternberg,&nbsp;Joanna G. Cloutier,&nbsp;Kaitlyn Ahlers,&nbsp;Christina Moore,&nbsp;Kathleen A. Koth,&nbsp;Takahiro Soda,&nbsp;Narpinder Kaur Malhi,&nbsp;Shikha Verma,&nbsp;Lisa C. Yeh,&nbsp;Jennifer L. McLaren","doi":"10.1111/jar.70010","DOIUrl":"10.1111/jar.70010","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Little research has been conducted solely exploring gender diversity in people with intellectual disabilities. This review explores the literature, discusses the prevalence, and identifies clinical best practices for people at the intersection of gender diversity and intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A scoping review was conducted utilising PRISMA methodology of the following databases: PubMed, CINAHL Complete (EBSCO), Cochrane Library (Wiley), Dissertations &amp; Theses Global (ProQuest), PsycInfo (EBSCO), Scopus and Web of Science.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five hundred seventy five titles and abstracts were screened, 61 full-text articles were reviewed and 17 met inclusion criteria. Four major themes were identified: prevalence, trauma and co-occurring mental health disorders, barriers to care and best practices.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This review highlights the lack of research and provides valuable insight into the experiences of people with gender diversity and intellectual disability. Further research is needed to understand the prevalence and explore the intersection and experience of gender-diverse people with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating a Virtual Community-of-Practice as Implementation Strategy for the Needs Assessment Framework in Intellectual Disability Care: A Quasi-Experimental Multi-Methods Study 评估虚拟实践社区作为智障护理需求评估框架的实施策略:一项准实验的多方法研究。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-18 DOI: 10.1111/jar.70007
Esther H. Bisschops, Noud Frielink, J. Clasien de Schipper, Carlo Schuengel, Petri J. C. M. Embregts
{"title":"Evaluating a Virtual Community-of-Practice as Implementation Strategy for the Needs Assessment Framework in Intellectual Disability Care: A Quasi-Experimental Multi-Methods Study","authors":"Esther H. Bisschops,&nbsp;Noud Frielink,&nbsp;J. Clasien de Schipper,&nbsp;Carlo Schuengel,&nbsp;Petri J. C. M. Embregts","doi":"10.1111/jar.70007","DOIUrl":"10.1111/jar.70007","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The Needs Assessment Framework (NAF) stimulates awareness of care staff to consider perspectives of clients with intellectual disabilities in decisions on involuntary care. We explored the effect of implementers' participation in a Virtual Community-of-Practice (VCoP) for designing implementation plans, on NAF implementation and staff awareness.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A quasi-experimental design was used to compare implementation and awareness by care staff (<i>n =</i> 54) between organisations that implemented NAF with VCoP participation (<i>N =</i> 4) and organisations that implemented NAF as usual (<i>N =</i> 3). The ItFits toolkit work routine in the VCoP was qualitatively analysed to understand choices regarding implementation plans.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>No statistical differences in implementation and awareness among care staff were found between the intervention and control groups. Implementers evaluated collaboration on implementation and the ItFits toolkit as helpful.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Evaluation of implementation effectiveness and process are both needed to offer unique insights for iteratively changing daily practice around involuntary care.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11742692/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘It Feels Very Weird and Normal at the Same Time’: Sibling Perceptions of Their Relationships With an Autistic Brother or Sister With Complex Care Needs “感觉很奇怪,同时又很正常”:兄弟姐妹对他们与有复杂照顾需求的自闭症兄弟姐妹关系的看法。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-16 DOI: 10.1111/jar.70009
Louise Rixon, Richard P. Hastings, Hanna Kovshoff
{"title":"‘It Feels Very Weird and Normal at the Same Time’: Sibling Perceptions of Their Relationships With an Autistic Brother or Sister With Complex Care Needs","authors":"Louise Rixon,&nbsp;Richard P. Hastings,&nbsp;Hanna Kovshoff","doi":"10.1111/jar.70009","DOIUrl":"10.1111/jar.70009","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The impact of having a disabled brother or sister on siblings' psychological well-being and sibling relationships has been the subject of several research studies. However, research which focuses on the relationship between siblings and their autistic brother or sister with an intellectual disability and complex care needs is rare. We explored siblings' views and experiences of their sibling relationship with their autistic brother or sister with complex care needs.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Eleven children and early adolescents (4 male/7 female) between the ages of 8 and 14 years took part in semi-structured interviews with questions focussing on their relationship with their autistic brother or sister who had complex care needs. Reflexive thematic analysis was used as a guide to analyse the data.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four themes are presented: positive interactions bring joy, sibling conflict is driven by verbal interactions, behaviours may have different meanings for the sibling, perceptions of change in the sibling relationship.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The siblings of autistic brothers and sisters with an intellectual disability and complex care needs described warmth and positivity. Siblings of autistic children, who have complex care needs, deeply valued their interactions with their brother or sister despite reciprocity being on their terms. When autistic brothers and sisters had some functional spoken language, this often changed the context for the siblings relationship; perhaps leading to an increased chance of conflict or perceived negative experiences. These findings highlight the importance of understanding the individual meaning of these sibling relationships.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11736244/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Valemee Visual System Helps Reduce Risk for Chronic Illness by Promoting Physical Fitness, Self-Efficacy and Independence in Adults With Intellectual Disabilities Valemee 视觉系统通过增强智障成人的体能、自我效能和独立性,帮助他们降低罹患慢性疾病的风险。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-13 DOI: 10.1111/jar.70011
Anthony Dujmovic-Bračak, Alisa D. Blazek, Emily M. Post, Jacqueline D. Goodway, Carmen B. Swain
{"title":"The Valemee Visual System Helps Reduce Risk for Chronic Illness by Promoting Physical Fitness, Self-Efficacy and Independence in Adults With Intellectual Disabilities","authors":"Anthony Dujmovic-Bračak,&nbsp;Alisa D. Blazek,&nbsp;Emily M. Post,&nbsp;Jacqueline D. Goodway,&nbsp;Carmen B. Swain","doi":"10.1111/jar.70011","DOIUrl":"10.1111/jar.70011","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Sedentary behaviour among individuals with intellectual disabilities, driven by barriers such as limited access to adapted programs and low self-efficacy, contributes to chronic health conditions. This study evaluates the effectiveness of the Valemee Visual System (VVS), a novel tool offering visual support and structured exercise programming, in improving physical fitness and promoting exercise independence in this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A repeated measures design was employed with an 8-week intervention involving 22 participants aged 22–44 with mild to moderate intellectual disabilities. The program utilised the VVS for total body fitness training.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants demonstrated significant improvements in grip strength, sit-to-stand performance, bench press capacity, 400-m walk time, and flexibility. Self-efficacy increased, and reduced reliance on prompts indicated greater exercise independence and autonomy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The VVS shows promise in enhancing physical fitness, accessibility, and adherence in adults with intellectual disabilities, supporting long-term health and reducing chronic disease risk.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11730804/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142980920","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信