Journal of Applied Research in Intellectual Disabilities最新文献

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Concurrent Validity of Abbreviated Walk Tests Among Adults With Mild to Moderate Intellectual Disability 轻度至中度智障成人简短步行测试的并发有效性。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-29 DOI: 10.1111/jar.13304
Rena Wen Yi Goh, Gideon Ji Yan Chan, Lynn Amelia Mohammad Hanip, Boon Chong Kwok
{"title":"Concurrent Validity of Abbreviated Walk Tests Among Adults With Mild to Moderate Intellectual Disability","authors":"Rena Wen Yi Goh,&nbsp;Gideon Ji Yan Chan,&nbsp;Lynn Amelia Mohammad Hanip,&nbsp;Boon Chong Kwok","doi":"10.1111/jar.13304","DOIUrl":"10.1111/jar.13304","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Walk tests are common gait speed and endurance assessments. Shorter test versions could benefit adults with intellectual disability. Thus, the concurrent validity of shorter tests was studied.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Thirty-five adults with mild to moderate intellectual disability, aged 21–64 years, were assessed with the 4-m walk test, 10-m walk test for gait speed, 2-min walk test, and 6-min walk test for endurance. Correlation and Bland–Altman plots analyses were used to establish concurrent validity between shorter and standard tests.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Strong positive relationships were found for gait speed tests, <i>r</i> = 0.94, <i>p</i> &lt; 0.001, and endurance tests, <i>r</i> = 0.83, <i>p</i> &lt; 0.001, and differences between shorter and standard tests were within limits of agreement.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The concurrent validity of shorter walk tests was established in this study. This would mean that adults with intellectual disability with lower levels of fitness could be assessed.</p>\u0000 \u0000 <p><b>Trial Registration:</b> Australian New Zealand Clinical Trial Registry: ACTRN12624000203550.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142333897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adapting Complicated Grief Therapy for Use With People With Intellectual Disabilities: An Action Research Study 改编复杂悲伤疗法,用于智障人士:行动研究
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-27 DOI: 10.1111/jar.13296
Damien O'Riordan, Emma Conway, Philip Dodd, Suzanne Guerin
{"title":"Adapting Complicated Grief Therapy for Use With People With Intellectual Disabilities: An Action Research Study","authors":"Damien O'Riordan,&nbsp;Emma Conway,&nbsp;Philip Dodd,&nbsp;Suzanne Guerin","doi":"10.1111/jar.13296","DOIUrl":"https://doi.org/10.1111/jar.13296","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>There is established evidence of complicated grief among people with an intellectual disability. This paper describes the process of adapting complicated grief therapy (CGT) for this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Action research documented the adaptation of CGT. Qualitative methods included analysing meeting notes, reflective interviews with two members of the team involved in adapting the materials, and interviews with six professionals working in disability settings who reviewed the adapted materials.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Key processes included adapting the standardised tools that form part of CGT and developing adapted approaches to abstract concepts related to death, dying and bereavement. Key therapeutic components such as imaginal revisiting and the role of significant others required adaptation for implementation with people with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The importance of adapting evidence-based therapies for people with intellectual disabilities is emphasised. This research provides an adapted form of an established therapy for piloting with this population.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13296","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142324587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction to “‘A Potentially Ticking Time Bomb’—Barriers for Prevention, Diagnosis, and Treatment of Cardiovascular Disease in People With Intellectual Disabilities” 对 "潜在的定时炸弹--智障人士心血管疾病的预防、诊断和治疗障碍 "的更正
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-25 DOI: 10.1111/jar.13303
{"title":"Correction to “‘A Potentially Ticking Time Bomb’—Barriers for Prevention, Diagnosis, and Treatment of Cardiovascular Disease in People With Intellectual Disabilities”","authors":"","doi":"10.1111/jar.13303","DOIUrl":"https://doi.org/10.1111/jar.13303","url":null,"abstract":"<p>Plasil, T., E. M. I. Ersfjord, K. Berge, and L. M. Oldervoll. 2024. “‘A Potentially Ticking Time Bomb’—Barriers for Prevention, Diagnosis, and Treatment of Cardiovascular Disease in People With Intellectual Disabilities.” <i>Journal of Applied Research in Intellectual Disabilities</i> 37, no. 6: e13279. https://doi.org/10.1111/jar.13279.</p><p>AUTHOR CONTRIBUTIONS: Tanja Plasil: Recruiting informants, data collection, data analysis, writing article. Ellen Margrete Iveland Ersfjord: Data analysis, input in article. Kim Berge: Recruiting of informants, data collection, input in article. Line M. Oldervoll: Project leader, input in article.</p><p>In the author contributions there was an error in the contributions of the authors. The correct list of contributions is:</p><p><b>Tanja Plasil:</b> recruiting informants, data collection, data analysis, writing article.</p><p><b>Ellen Margrete Iveland Ersfjord:</b> data collection, data analysis, input in article.</p><p><b>Kim Berge:</b> recruiting of informants, data collection, data analysis, input in article.</p><p><b>Line M. Oldervoll:</b> project leader, data collection, data analysis, input in article.</p><p>We apologise for this error.</p>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13303","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142320712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using a Capability Approach to Explore How People With Intellectual Disabilities Can Lead Flourishing Lives 运用能力方法探索智障人士如何过上幸福生活
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-13 DOI: 10.1111/jar.13299
Sara Ryan, Rosaleen O'Brien
{"title":"Using a Capability Approach to Explore How People With Intellectual Disabilities Can Lead Flourishing Lives","authors":"Sara Ryan,&nbsp;Rosaleen O'Brien","doi":"10.1111/jar.13299","DOIUrl":"https://doi.org/10.1111/jar.13299","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disabilities remain disadvantaged in many aspects of everyday life. Capability approach is an underused approach in social care research and has at its core the importance of having capabilities or opportunities to do what we value. We use this approach to explore how people with intellectual disabilities can be supported to lead flourishing lives.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Interviews and focus groups were conducted with 50 people with intellectual disabilities and 28 family carers. Data were analysed using an adapted template approach and conceptual analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Our analysis led to the identification of one overarching theme; ‘Doing what you love and growing’ and sub-themes; ‘Choice, opportunity and empowerment’, ‘Being out in the world’ and ‘Lowered expectations and static lives’.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>People with intellectual disabilities can lead capability-deprived lives. Methodological and practice innovation is needed to better understand what people value and ensure they have capability sets that enable flourishing lives.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13299","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142230979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘It's Not Like a One-Way Street’: Using Photovoice to Understand How College Students With Intellectual Disability Experience Interdependence 这不像单行道":利用摄影荐言了解智障大学生如何体验相互依存关系
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-11 DOI: 10.1111/jar.13297
Jessica N. Hoyle, Jan Warren-Findlow, Lauren Wallace, James N. Laditka, Sarah B. Laditka
{"title":"‘It's Not Like a One-Way Street’: Using Photovoice to Understand How College Students With Intellectual Disability Experience Interdependence","authors":"Jessica N. Hoyle,&nbsp;Jan Warren-Findlow,&nbsp;Lauren Wallace,&nbsp;James N. Laditka,&nbsp;Sarah B. Laditka","doi":"10.1111/jar.13297","DOIUrl":"https://doi.org/10.1111/jar.13297","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Many people view people with intellectual disability primarily as needing help. That perspective limits relationships and can promote discrimination. We sought to better understand social relationships among young adults with intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Seven postsecondary students with intellectual disability participated in a photovoice study, sharing photos and stories about giving and receiving help. They participated in individual interviews, a group meeting, and a photo exhibition, and helped identify results and conclusions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants viewed themselves as helpers and recipients of help. Themes were: foundational importance of families; openness to being helped; personal growth through challenging experiences; and tension between wanting to help and risks of helping others. Participants wanted to raise awareness that people with disabilities can help others, educate them about disability, and contribute to research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Many young adults with intellectual disability want to contribute to relationships, which are often limited by others' expectations about disability.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142170227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Negative and Positive Experiences During the COVID-19 Pandemic in Canadians With Developmental Disabilities: A One-Year Ontario-Based Survey 有发育障碍的加拿大人在 COVID-19 大流行期间的消极和积极经历:基于安大略省的一年期调查
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-11 DOI: 10.1111/jar.13300
Caroline Kassee, Patrick Jachyra, Vijitha Mahalingam, Ami Tint, Hsiang-Yuan Lin, Stephanie H. Ameis, Adriana Di Martino, Yona Lunsky, Meng-Chuan Lai
{"title":"Negative and Positive Experiences During the COVID-19 Pandemic in Canadians With Developmental Disabilities: A One-Year Ontario-Based Survey","authors":"Caroline Kassee,&nbsp;Patrick Jachyra,&nbsp;Vijitha Mahalingam,&nbsp;Ami Tint,&nbsp;Hsiang-Yuan Lin,&nbsp;Stephanie H. Ameis,&nbsp;Adriana Di Martino,&nbsp;Yona Lunsky,&nbsp;Meng-Chuan Lai","doi":"10.1111/jar.13300","DOIUrl":"https://doi.org/10.1111/jar.13300","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Understanding the experiences of people with developmental disabilities during the initial period of COVID-19 pandemic.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Individuals with developmental disabilities and their caregivers completed baseline and up to five follow-up online surveys using the CRISIS-AFAR measures, between July 2020 and September 2021. We used qualitative (thematic analysis) and quantitative (MANOVA) analytic methods.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>One hundred and eighteen participants (64 caregivers on individuals 6–62 years, 54 self-reporting individuals aged 17–55 years) completed baseline survey; 46 participants (23 caregivers, 23 self-reporting adults) completed ≥1 follow-up. Qualitative themes included uncertainty, and negative and positive influences on behaviours and routines, daily life and mental wellness. Those experiencing positive impacts did not stably perceive so longitudinally.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Despite both negative and positive influences on individuals with developmental disabilities and their families, the prolonged pandemic had wide-ranging repercussions. Emergency preparedness planning should consider the disruptive effects of public health measures on routine and support for this vulnerable population.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13300","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142170229","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers and Facilitators to Sustainable Technology Implementation in Care for People With Disabilities—Real World Data From a Three-Year Implementation Programme 残疾人护理中可持续技术实施的障碍和促进因素--来自三年实施计划的真实世界数据。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-06 DOI: 10.1111/jar.13298
Sanne van der Weegen, Agnes van der Poel, Eva Kagenaar, Ilse Bierhoff, Brigitte Boon
{"title":"Barriers and Facilitators to Sustainable Technology Implementation in Care for People With Disabilities—Real World Data From a Three-Year Implementation Programme","authors":"Sanne van der Weegen,&nbsp;Agnes van der Poel,&nbsp;Eva Kagenaar,&nbsp;Ilse Bierhoff,&nbsp;Brigitte Boon","doi":"10.1111/jar.13298","DOIUrl":"10.1111/jar.13298","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Implementation issues often impede the realisation of the potential benefits of technology in disability care organisations for people with disabilities. Therefore, we conducted a longitudinal study to gain insights into the barriers and facilitators to implementation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>From 2019 to 2022, data were collected using questionnaires and interviews during 28 implementation projects in 26 disability care organisations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Barriers and facilitators were identified using 9 themes and 26 subthemes. The main themes identified were finances, disability care organisations, internal collaborations, external collaborations, technology, care staff, project teams, people with disabilities, and context. Most factors mentioned as barriers in one organisation were mentioned as facilitators in others. This suggests that barriers can be resolved to improve implementation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>A large number of barriers and facilitators spanning the organisation suggests that the implementation of technology should be considered an organisational reform. Acting upon them is crucial for the successful implementation of technology.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13298","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142141938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Integrated service delivery for individuals with fetal alcohol spectrum disorder 为胎儿酒精谱系障碍患者提供综合服务。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-04 DOI: 10.1111/jar.13277
Katherine Flannigan, Devon C. Edwards, Lisa Murphy, Jacqueline Pei
{"title":"Integrated service delivery for individuals with fetal alcohol spectrum disorder","authors":"Katherine Flannigan,&nbsp;Devon C. Edwards,&nbsp;Lisa Murphy,&nbsp;Jacqueline Pei","doi":"10.1111/jar.13277","DOIUrl":"10.1111/jar.13277","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Individuals with fetal alcohol spectrum disorder (FASD) experience complex needs that often necessitate support from multiple systems. There is growing evidence that people with FASD may benefit from integrated service delivery (ISD), but little is known about ISD elements and processes for this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Using a multi-method approach involving a literature review, analysis of programme data, and staff interviews, we examined how ISD is enacted at a rural Canadian FASD centre, and identified facilitators, barriers, and potential impacts of ISD at the centre.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We describe key elements of integrated FASD programming and identify important contextual factors and themes related to ISD barriers, facilitators, and impacts: (1) connection, (2) freedom and autonomy, (3) client-centred care, (4) learning and growth, (5) and reframing expectations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study may help to inform a roadmap for enhancing FASD service delivery and guiding FASD research and policy in Canada and beyond.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13277","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142134647","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction to: “Development of a sexual consent intervention for adolescents with intellectual and developmental disabilities” 更正:"为有智力和发育障碍的青少年制定性同意干预措施"。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-02 DOI: 10.1111/jar.13294
{"title":"Correction to: “Development of a sexual consent intervention for adolescents with intellectual and developmental disabilities”","authors":"","doi":"10.1111/jar.13294","DOIUrl":"10.1111/jar.13294","url":null,"abstract":"<p>Greene, A., Baugh, M., Sherwood-Laughlin, C., Greathouse, L., Galyan, J., Simic Stanjovic, I., Sangmo, D., Jozkowski, K., Dubie, M., &amp; Chow, A. (2024). Development of a sexual consent intervention for adolescents with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 37(5), e13272. 10.1111/jar.13272</p><p>In the original article, first published online on 05 July 2024, one of the co-author's surnames had been spelled incorrectly. The correct spelling is Ivanka Simić Stanojević.</p><p>The article has been updated on 12 August 2024 with the correct spelling.</p>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13294","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142115715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘A potentially ticking time bomb’ – barriers for prevention, diagnosis, and treatment of cardiovascular disease in people with intellectual disabilities 潜在的定时炸弹"--智障人士心血管疾病的预防、诊断和治疗障碍
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-08-29 DOI: 10.1111/jar.13279
Tanja Plasil, Ellen Margrete Iveland Ersfjord, Kim Berge, Line M. Oldervoll
{"title":"‘A potentially ticking time bomb’ – barriers for prevention, diagnosis, and treatment of cardiovascular disease in people with intellectual disabilities","authors":"Tanja Plasil,&nbsp;Ellen Margrete Iveland Ersfjord,&nbsp;Kim Berge,&nbsp;Line M. Oldervoll","doi":"10.1111/jar.13279","DOIUrl":"https://doi.org/10.1111/jar.13279","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Research suggests that people with intellectual disabilities have a higher risk for cardiovascular disease than the general population. The aim of this study was to identify barriers for the prevention, diagnosis, and treatment of cardiovascular disease for people with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We conducted individual interviews with relatives and general practitioners and focus group interviews with staff working at an assisted home facility, a cardiac ward, an obesity clinic and two rehabilitation centres (<i>n</i> = 33) in Norway. Inductive approach and thematic analysis were used to analyse the data.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We identified barriers on an individual and a structural level. The underlying reason for these barriers is that health problems, such as cardiovascular disease, are regularly overlooked as the condition of intellectual disability <i>overshadows</i> other possible diagnoses.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This focus on intellectual disability rather than other explanations leads to shortcomings in the prevention, diagnoses, and treatment of cardiovascular disease in this group.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13279","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142100032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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