Perspectives of Young Adults With Mild Intellectual Disabilities on the Role Their Siblings Play in Shaping Self-Determination and Independence

IF 1.9 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-09-27 DOI:10.1111/jar.70126

Jakub Niedbalski

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Abstract

Background

The study aimed to identify the perceived role and significance of typically developing siblings in the emergence of self-determination in their brothers/sisters with intellectual disabilities.

Method

The study material consisted of information from individuals with intellectual disabilities. The analytical method relied on grounded theory methodology procedures.

Results

Three main themes were identified in what young adults with mild intellectual disabilities shared about their typically developing siblings: attitude toward self-determination, the degree of involvement in and influence on the self-determination process and the level of (mis)alignment with the parental approach in this regard.

Conclusions

The results of this study show how young adults with intellectual disabilities perceive the role of their siblings in their pursuit of self-determination. The individuals with intellectual disabilities were demonstrated to be empowered to express their views, provided they had the right conditions and were given adequate opportunities.

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青年轻度智障人士对其兄弟姐妹在塑造自我决定和独立中的作用的看法

本研究旨在确定正常发育的兄弟姐妹在智障兄弟姐妹自我决定的出现中所扮演的角色和意义。方法采用智力障碍患者的资料进行研究。分析方法依赖于扎根理论的方法论程序。结果在轻度智力障碍的年轻成人关于其正常发育的兄弟姐妹的分享中，确定了三个主要主题：对自我决定的态度，参与和影响自我决定过程的程度，以及在这方面与父母方法（错误）一致的程度。本研究的结果显示了有智力障碍的年轻人如何看待他们的兄弟姐妹在他们追求自我决定的过程中所扮演的角色。证明有智力残疾的个人有权表达他们的意见，只要他们有适当的条件并得到充分的机会。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.