Journal of Applied Research in Intellectual Disabilities最新文献

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Preliminary Evaluation of the Step-by-Step Parenting Program for Expfectant Parents With Intellectual Disabilities 智障准父母分步育儿计划初步评估。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-20 DOI: 10.1111/jar.70034
Maurice A. Feldman, Amanda Cappon, Kay Corbier, Vicky Caruana, Mechane Laronde, Kendra Thomson
{"title":"Preliminary Evaluation of the Step-by-Step Parenting Program for Expfectant Parents With Intellectual Disabilities","authors":"Maurice A. Feldman,&nbsp;Amanda Cappon,&nbsp;Kay Corbier,&nbsp;Vicky Caruana,&nbsp;Mechane Laronde,&nbsp;Kendra Thomson","doi":"10.1111/jar.70034","DOIUrl":"10.1111/jar.70034","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study evaluated the Step-by-Step Parenting Program (SBSPP) to prepare expectant parents with intellectual disabilities to care for their newborns.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Two expectant parents with intellectual disabilities were seen once or twice weekly in their homes for about 2 h over 16 and 20 weeks (21 and 27 sessions), respectively. The key measure was percentage correct scores on parenting skill checklists with an infant simulator (IS) and eventually the newborn. Newborn-care skills trained were sponge bath, dressing, ear and nose care, and treating cradle cap. SBSPP-IS training consisted of instructions, prompting, modelling, and feedback. Multiple baselines across skills and participant designs were used.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Trained skills increased and transferred to the newborns. Both parents have maintained custody of their infants for over 1 year.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study provides preliminary evidence that prenatal parent training may help expectant parents with intellectual disabilities to properly care for their newborns.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11926509/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143671783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction to “Development of the Guernsey Community Participation and Leisure Assessment-Revised (GCPLA-R)” 更正“根西岛社区参与和休闲评估的发展-修订(GCPLA-R)”。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-19 DOI: 10.1111/jar.70015
{"title":"Correction to “Development of the Guernsey Community Participation and Leisure Assessment-Revised (GCPLA-R)”","authors":"","doi":"10.1111/jar.70015","DOIUrl":"10.1111/jar.70015","url":null,"abstract":"<p>\u0000 Baker, P., L. Taylor-Roberts, and F. W. Jones. 2021. “Development of the Guernsey Community Participation and Leisure Assessment—Revised (GCPLA-R).” <i>Journal of Applied Research in Intellectual Disabilities</i> 34, no. 1: 218–228.\u0000 </p><p>All references to 23 item scale should be 22 item scale. There are 3 mentions in the paper. All in the discussion—2 on page 8 and 1 page 10.</p><p>We apologise for this error.</p>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70015","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143665559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Predictors of the Friendship Quality in Adults With Mild Intellectual Disability 轻度智力障碍成人友谊质量的预测因素
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-19 DOI: 10.1111/jar.70041
Bojana Mastilo, Mirjana Đorđević, Nenad Glumbić, Haris Memisevic, Špela Golubović
{"title":"Predictors of the Friendship Quality in Adults With Mild Intellectual Disability","authors":"Bojana Mastilo,&nbsp;Mirjana Đorđević,&nbsp;Nenad Glumbić,&nbsp;Haris Memisevic,&nbsp;Špela Golubović","doi":"10.1111/jar.70041","DOIUrl":"https://doi.org/10.1111/jar.70041","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Friendship quality is crucial for psychological well-being, yet is often lower in persons with intellectual disabilities compared to their peers. This study explores the predictors of friendship quality among adults with mild intellectual disability, focusing on age, gender, living setting, psychiatric traits, and social cognition.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The sample comprised 62 adults with mild intellectual disability (32 males, 30 females; ages 19–53), and 30 with significant psychiatric traits. Tools included the Friendship Quality Scale, Edinburgh Social Cognition Test, MINI PAS-ADD scale, and a demographic questionnaire.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Social cognition and age were the strongest predictors of friendship quality, with higher social cognition scores and younger age correlating with better quality. Gender, living setting, and psychiatric traits had less impact.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Social cognition and age are primary determinants of friendship quality in adults with mild intellectual disability, suggesting that interventions to enhance social cognition may benefit this population's social well-being.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143646012","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Association of Mild Intellectual Disability/Borderline Intellectual Functioning and Post-Traumatic Stress Disorder to Treatment Outcome in Patients With Severe Mental Illness 重度精神疾病患者轻度智力残疾/边缘性智力功能和创伤后应激障碍与治疗结果的关系
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-19 DOI: 10.1111/jar.70043
H. J. H. Smits, B. L. Seelen-de Lang, H. L. I. Nijman, E. J. M. Penterman, J. G. Nieuwenhuis, E. O. Noorthoorn
{"title":"Association of Mild Intellectual Disability/Borderline Intellectual Functioning and Post-Traumatic Stress Disorder to Treatment Outcome in Patients With Severe Mental Illness","authors":"H. J. H. Smits,&nbsp;B. L. Seelen-de Lang,&nbsp;H. L. I. Nijman,&nbsp;E. J. M. Penterman,&nbsp;J. G. Nieuwenhuis,&nbsp;E. O. Noorthoorn","doi":"10.1111/jar.70043","DOIUrl":"https://doi.org/10.1111/jar.70043","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Understanding the associations among mild intellectual disability (IQ 50–70), borderline intellectual functioning (IQ 70–85) and post-traumatic stress disorder (PTSD) with treatment outcomes in severely mentally ill patients could contribute to better tailoring of care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>One or more assessments using the Health of the Nation Outcome Scale (HoNOS) were obtained from patients in long-term outpatient care. The Screener for Intelligence and Learning Disabilities (SCIL) was used to screen for mild intellectual disability and borderline intellectual functioning. The Trauma Screening Questionnaire was used to determine whether patients had PTSD symptoms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Having more than six trauma-related symptoms and a SCIL score indicating an IQ between 70 and 85 were associated with less improvement on the HoNOS. No significant changes were found in patients with an estimated IQ below 70.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study confirms the value of screening for intellectual disability and trauma among severely mentally ill patients.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143645715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Acceptability of a Novel Parent-Mediated Executive Function Intervention for Young Children With Down Syndrome in Italy 一种新的父母介导的执行功能干预对意大利唐氏综合症儿童的可接受性。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-19 DOI: 10.1111/jar.70038
Sara Colaianni, Madison M. Walsh, Sara Onnivello, Miranda E. Pinks, Chiara Marcolin, Kaylyn Van Deusen, Elisa Rossi, Nathaniel R. Riggs, Francesca Pulina, Lisa Daunhauer, Deborah J. Fidler, Silvia Lanfranchi
{"title":"Acceptability of a Novel Parent-Mediated Executive Function Intervention for Young Children With Down Syndrome in Italy","authors":"Sara Colaianni,&nbsp;Madison M. Walsh,&nbsp;Sara Onnivello,&nbsp;Miranda E. Pinks,&nbsp;Chiara Marcolin,&nbsp;Kaylyn Van Deusen,&nbsp;Elisa Rossi,&nbsp;Nathaniel R. Riggs,&nbsp;Francesca Pulina,&nbsp;Lisa Daunhauer,&nbsp;Deborah J. Fidler,&nbsp;Silvia Lanfranchi","doi":"10.1111/jar.70038","DOIUrl":"10.1111/jar.70038","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive function Play Opportunities), a novel caregiver-mediated intervention designed to strengthen EF skills in young children with DS.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Nineteen families of children aged 42–93 months participated. Caregivers completed questions via a smartphone app and provided feedback through Mid-Point and Exit questionnaires.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Implementation and enjoyment remained consistent throughout the intervention. Caregivers reported positive effects of EXPO on children's everyday life skills and found the coaching sessions beneficial for successful program implementation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The EXPO intervention is acceptable and enjoyable for both caregivers and children, with caregivers reporting perceived improvements in children's everyday life skills after participating in the program.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11923395/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143665558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Fostering Healthy Relationships in Special Olympic Athletes: Supporting the Intersection of Intellectual Disability and Sexual Health 促进特殊奥林匹克运动员的健康关系:支持智力残疾和性健康的交叉
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-18 DOI: 10.1111/jar.70032
Stephanie Andreasen, Tessa Allison, Brennah Kamelchuk, Victoria Formusa, Brock Reissner, Stephanie Howe, Janet McCabe, Alan S. Martino, Carly A. McMorris
{"title":"Fostering Healthy Relationships in Special Olympic Athletes: Supporting the Intersection of Intellectual Disability and Sexual Health","authors":"Stephanie Andreasen,&nbsp;Tessa Allison,&nbsp;Brennah Kamelchuk,&nbsp;Victoria Formusa,&nbsp;Brock Reissner,&nbsp;Stephanie Howe,&nbsp;Janet McCabe,&nbsp;Alan S. Martino,&nbsp;Carly A. McMorris","doi":"10.1111/jar.70032","DOIUrl":"https://doi.org/10.1111/jar.70032","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disabilities have equal rights to explore their sexuality and access sexual and reproductive healthcare, yet little is known about their needs and wants when accessing health education. The current study sought to learn about the sexual health interests, attitudes, and educational needs of Special Olympics (SO) athletes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Thirteen participants completed a questionnaire and a 45-min interview, including SO athletes, coaches and caregivers of SO athletes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Survey responses indicated the importance of access to sexual health education, but significant barriers were noted. Thematic analysis of interview transcripts highlighted the importance of healthy relationships, inequalities in learning, and need for information to promote safety.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings add to existing evidence that people with intellectual disabilities value healthy relationships and want to learn more about sexual health. Several recommendations are offered to increase the effectiveness of sexual health education.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70032","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143645794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities 一项质性研究探讨如何支持智力和发育障碍成人的父母照顾者
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-12 DOI: 10.1111/jar.70025
Kelli A. Sanderson, Meghan M. Burke, Jennifer L. Bumble
{"title":"A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities","authors":"Kelli A. Sanderson,&nbsp;Meghan M. Burke,&nbsp;Jennifer L. Bumble","doi":"10.1111/jar.70025","DOIUrl":"https://doi.org/10.1111/jar.70025","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the critical care that parents provide to their adult children with intellectual and/or developmental disabilities, we aimed to understand the supports parents need to be effective caregivers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Qualitative data (write-in responses) from a national survey completed by 315 parents of adults with intellectual and/or developmental disabilities were analysed using thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four themes emerged from the data, including the need fortangible support, social support, help navigating disability services and resources, and assistance with future planning.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Our findings point to the need for financial compensation for parent caregivers of adults with intellectual and/or developmental disabilities, enhanced disability services, and spaces for families to connect and share resources.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143595463","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Beyond the Frame: A Photo-Elicitation Study of Sibling Experiences on the Stay of Their Sibling With a Moderate to Profound Intellectual Disability in Group Homes 框架之外:对中度至重度智障儿童在集体之家的兄弟姐妹经历的照片启发研究
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-10 DOI: 10.1111/jar.70028
Sien Vandesande, Evy Meys, Bea Maes
{"title":"Beyond the Frame: A Photo-Elicitation Study of Sibling Experiences on the Stay of Their Sibling With a Moderate to Profound Intellectual Disability in Group Homes","authors":"Sien Vandesande,&nbsp;Evy Meys,&nbsp;Bea Maes","doi":"10.1111/jar.70028","DOIUrl":"https://doi.org/10.1111/jar.70028","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives due to their brother or sister's move to a group home.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Using photo-elicitation and in-depth interviews, we engaged eight children (aged 7–17) with siblings in group homes. Participants captured changes or consistencies in daily life through photographs, which served as conversation triggers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants highlighted objects and spaces reminding them of their sibling and documented missed or regained activities and interactions. Five themes emerged, reflecting their emotional experiences and perspectives.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions and Implications</h3>\u0000 \u0000 <p>Siblings provided a nuanced view of their sibling's stay, noting benefits and feelings of incompleteness. Professionals should consider siblings' emotions and beliefs in caregiving decisions, recognising the significant impact on their lives.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143594863","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
My Life: A Photovoice Exploration of Aspirations of People With Intellectual Disabilities 《我的生活:智障人士抱负的光声探索》
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-10 DOI: 10.1111/jar.70027
Gisselle Gallego, Patricia O'Brien, Clara Goossens, Trevor Parmenter, Vivienne Riches, Mary-Ann O'Donovan
{"title":"My Life: A Photovoice Exploration of Aspirations of People With Intellectual Disabilities","authors":"Gisselle Gallego,&nbsp;Patricia O'Brien,&nbsp;Clara Goossens,&nbsp;Trevor Parmenter,&nbsp;Vivienne Riches,&nbsp;Mary-Ann O'Donovan","doi":"10.1111/jar.70027","DOIUrl":"https://doi.org/10.1111/jar.70027","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study aimed to evaluate the everyday ways that individuals with mild and moderate intellectual disabilities exercise choice and control.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Photovoice with 17 adults with mild to moderate intellectual disability who were receiving individual funding was conducted. Focus groups were held to review the photos.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>While some participants directed the activity they had chosen, others appeared to have been restricted to activities planned and organised by the service provider. Many participants took photos of locations rather than activities. In these cases, the locations they photographed represented their identity or something that was personally meaningful to them. This illustrated the individuals' power to create spaces and/or travel to places that are important to them.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>It is important to understand how certain activities facilitate choice and control. A critical examination of real choice compared with generic activities framed as choice continues to be needed.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70027","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143594864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Tele-Coaching Pilot Study: An Innovative Approach to Enhance Motor Skills in Adolescents With Down Syndrome 远程辅导试点研究:一种提高唐氏综合症青少年运动技能的创新方法
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-07 DOI: 10.1111/jar.70036
Matteo Giuriato, Alessandro Gatti, Vittoria Carnevale Pellino, Alice Bianchi, Sara Zanelli, Agnese Pirazzi, Caterina Cavallo, Antonia Quatrale, Alessandra Anna Gazzarri, Matteo Vandoni, Gianvincenzo Zuccotti, Valeria Calcaterra
{"title":"A Tele-Coaching Pilot Study: An Innovative Approach to Enhance Motor Skills in Adolescents With Down Syndrome","authors":"Matteo Giuriato,&nbsp;Alessandro Gatti,&nbsp;Vittoria Carnevale Pellino,&nbsp;Alice Bianchi,&nbsp;Sara Zanelli,&nbsp;Agnese Pirazzi,&nbsp;Caterina Cavallo,&nbsp;Antonia Quatrale,&nbsp;Alessandra Anna Gazzarri,&nbsp;Matteo Vandoni,&nbsp;Gianvincenzo Zuccotti,&nbsp;Valeria Calcaterra","doi":"10.1111/jar.70036","DOIUrl":"https://doi.org/10.1111/jar.70036","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Limited knowledge exists regarding the effectiveness of training programmes for individuals with Down syndrome, particularly innovative approaches like tele-coaching. Our pilot study aimed to improve strength and balance using tele-coaching sessions in children with Down syndrome.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Materials and Methods</h3>\u0000 \u0000 <p>We enrolled 18 children and adolescents (aged 9–17 years) with Down syndrome. The intervention consisted of a training programme based on games and was conducted remotely through an online platform (e-gym) 3 days per week (15 weeks). Participants engaged in playful activities targeting limb strength and balance.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We found an improvement in systolic blood pressure (<i>p</i> = 0.04) and balance (<i>p</i> = 0.002). Our analysis showed a non-significant decrease in adiposity parameters, including weight, BMI, BMI <i>z</i>-score, WC and WC/H.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Our findings contribute to evidence supporting online exercise interventions for individuals with Down syndrome. Integrating these interventions into community support programmes could enhance access to tailored services.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70036","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143564856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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