Journal of Applied Research in Intellectual Disabilities最新文献

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Feasibility and Preliminary Impacts of a Stress Reduction Intervention for Caregivers of Adolescents and Young Adults With Intellectual and Developmental Disabilities 对智力和发育障碍青少年看护者实施减压干预的可行性及初步影响。
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-25 DOI: 10.1111/jar.70202
Amy E. Bodde, Brian C. Helsel, Erik Willis, Robert N. Montgomery, Lauren T. Ptomey, Bethany Forseth
{"title":"Feasibility and Preliminary Impacts of a Stress Reduction Intervention for Caregivers of Adolescents and Young Adults With Intellectual and Developmental Disabilities","authors":"Amy E. Bodde,&nbsp;Brian C. Helsel,&nbsp;Erik Willis,&nbsp;Robert N. Montgomery,&nbsp;Lauren T. Ptomey,&nbsp;Bethany Forseth","doi":"10.1111/jar.70202","DOIUrl":"10.1111/jar.70202","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Family caregivers of individuals with intellectual and developmental disabilities often experience chronic stress and poor mental and physical health. This study examined the feasibility of a 12-week single-arm intervention to reduce caregiver stress.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The caregiver intervention included a yoga class and informational support group. Feasibility measures included recruitment, attendance, retention, fidelity and acceptability (interviews). Exploratory impacts on perceived and physiological stress (salivary cortisol), social support, caregiver strain, family empowerment, sleep, physical activity and body mass index were assessed by percent change across the intervention.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty caregivers enrolled (95% retained) and participants attended 67% of sessions. Intervention fidelity was 95%. Semi-structured interviews revealed high acceptability of the intervention. Perceived stress decreased by 5.8% and cortisol decreased by 24.1%. Changes in all but one exploratory outcome were in desirable directions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The intervention was feasible and acceptable among participants with positive initial effects on the majority of exploratory outcomes.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 2","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147313341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Future Care Planning for Ageing Adults With Intellectual Disabilities: Family Caregiver Perspectives in Thailand 未来护理计划的老年人与智力残疾:家庭看护者的观点在泰国。
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-20 DOI: 10.1111/jar.70204
Kanokporn Vibulpatanavong, Cheerapat Sirirak, Aporn Saardaium, Kamalaporn Sittichan
{"title":"Future Care Planning for Ageing Adults With Intellectual Disabilities: Family Caregiver Perspectives in Thailand","authors":"Kanokporn Vibulpatanavong,&nbsp;Cheerapat Sirirak,&nbsp;Aporn Saardaium,&nbsp;Kamalaporn Sittichan","doi":"10.1111/jar.70204","DOIUrl":"10.1111/jar.70204","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Thailand faces rapid demographic ageing and limited formal support for persons with intellectual disabilities. As this population lives longer, ageing family caregivers must prepare for future care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Semi-structured interviews were conducted with nine caregivers of adults with intellectual disabilities in four Thai provinces. The adults with intellectual disabilities were aged over 40 years. Data were analysed using Braun and Clarke's thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The analysis identified key themes reflecting reliance on family-based care, present-focused coping, financial insecurity, limited planning knowledge, caregiver self-care and the need for respite support.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Most families lacked clear future care plans due to limited services, financial constraints and cultural values. While a present-focused mindset provided comfort, it often delayed planning. The findings highlight the need for stronger financial support, employment opportunities, planning resources and respite services.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146260190","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mental Ill-Health in Mothers Caring for Offspring With Intellectual Disabilities at Different Stages of Caregiving: Secondary Data Analysis and Data Linkage of Administrative and Health Records 照顾智障子女的母亲在不同照顾阶段的心理健康状况:行政档案与健康档案的二次数据分析与数据联动
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-18 DOI: 10.1111/jar.70200
Deborah Cairns, Kirsty Dunn, Robin Young, Nicola Greenlaw, Sally Ann Cooper, Jill P. Pell, Ewelina Rydzewska
{"title":"Mental Ill-Health in Mothers Caring for Offspring With Intellectual Disabilities at Different Stages of Caregiving: Secondary Data Analysis and Data Linkage of Administrative and Health Records","authors":"Deborah Cairns,&nbsp;Kirsty Dunn,&nbsp;Robin Young,&nbsp;Nicola Greenlaw,&nbsp;Sally Ann Cooper,&nbsp;Jill P. Pell,&nbsp;Ewelina Rydzewska","doi":"10.1111/jar.70200","DOIUrl":"10.1111/jar.70200","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Little research has investigated maternal-carer mental ill-health at different stages of care-giving, including following the death of offspring with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Population cohort study of 9787 mothers of offspring with intellectual disabilities, matched with 30,235 mothers of offspring without intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Mental ill-health was significantly higher for mothers of offspring with intellectual disabilities (OR = 1.28, 95% CI [1.22–1.34]) than mothers of offspring without intellectual disabilities and at different stages: child (OR = 1.40, 95% CI [1.30–1.51]), adult (OR = 1.22 95% CI [1.14–1.29]) but not older adults (OR = 1.22, 95% CI [0.91–1.65]). Mothers with a mental health diagnosis, compared to those without, were significantly more likely to have long-term health problems, poorer health and socioeconomic circumstances (e.g., greater neighbourhood deprivation) (all at <i>p</i> &lt; 0.0001). No difference was found between mothers' mental health whose offspring with/without intellectual disabilities died (<i>p</i> = 0.68).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study provides unique insights into factors associated with the mental health of maternal carers and the need for services to better meet their needs.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12916229/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146222283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors Associated With Social Inclusion and Labour Status in People With Intellectual Disabilities, From Urban and Rural Areas of Peru 秘鲁城乡地区智障人士社会包容和劳动地位相关因素
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-18 DOI: 10.1111/jar.70198
Alicia Boluarte Carbajal, Gina Chávez-Ventura, Sebastian Enrique Lezcano De La Cruz, Angel Christopher Zegarra López
{"title":"Factors Associated With Social Inclusion and Labour Status in People With Intellectual Disabilities, From Urban and Rural Areas of Peru","authors":"Alicia Boluarte Carbajal,&nbsp;Gina Chávez-Ventura,&nbsp;Sebastian Enrique Lezcano De La Cruz,&nbsp;Angel Christopher Zegarra López","doi":"10.1111/jar.70198","DOIUrl":"10.1111/jar.70198","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disabilities face obstacles to their social-labour inclusion due to factors that must be identified in the Peruvian context.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A total of 542 people with intellectual disabilities were recruited, including 250 from urban areas and 292 from the jungle. Sociodemographic information, quality of life, adaptive behaviour, caregiver burden, and risk of maltreatment were collected from caregivers, who served as the primary source of data. Two models were proposed: social inclusion and employment status, as dependent variables. In both cases, region was considered as a grouping variable to control for random intercepts.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The caregiver burden, along with gender, age, employment status, and self-care were predictors of social inclusion, whereas age, social inclusion, verbal communication, and self-determination were predictors of employment status.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The factors identified will allow improving interventions or public policies for the benefit of people with intellectual disabilities and their families.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12916083/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146222373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction to ‘Inclusive Housing Environments for People With Intellectual Disabilities: Systematic Review of Characteristics and Influencing Factors’ 修正“智障人士的包容性住房环境:特征和影响因素的系统回顾”。
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-18 DOI: 10.1111/jar.70205
{"title":"Correction to ‘Inclusive Housing Environments for People With Intellectual Disabilities: Systematic Review of Characteristics and Influencing Factors’","authors":"","doi":"10.1111/jar.70205","DOIUrl":"10.1111/jar.70205","url":null,"abstract":"<p>\u0000 <span>Quesada-Cubo, M.</span>, <span>A. Iáñez-Domínguez</span>, and <span>R. M. Díaz-Jiménez</span>. <span>2025</span>. “ <span>Inclusive Housing Environments for People With Intellectual Disabilities: Systematic Review of Characteristics and Influencing Factors</span>.” <i>Journal of Applied Research in Intellectual Disabilities</i> <span>38</span>, no. <span>6</span>: e70142. https://doi.org/10.1111/jar.70142.\u0000 </p><p>The author requests the addition of Rosa Mª. Díaz-Jiménez as a co-corresponding author. The corresponding authors will now be Mª. Ángeles Quesada-Cubo and Rosa Mª. Díaz-Jiménez.</p><p>Furthermore, the following Acknowledgements section should be included:</p>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70205","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146222375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Love and People With Intellectual Disabilities: A Meta-Ethnography of Qualitative Research in the United Kingdom 爱与智障人士:英国定性研究的元民族志。
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-17 DOI: 10.1111/jar.70132
Rachel Forrester-Jones, Manar Mustafa, Amy Randall
{"title":"Love and People With Intellectual Disabilities: A Meta-Ethnography of Qualitative Research in the United Kingdom","authors":"Rachel Forrester-Jones,&nbsp;Manar Mustafa,&nbsp;Amy Randall","doi":"10.1111/jar.70132","DOIUrl":"10.1111/jar.70132","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Love is part of human experience, yet people with intellectual disabilities face numerous barriers to expressing and engaging in loving relationships. Few UK studies have investigated this topic in depth.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Eight databases were searched for articles published between 1998 and 2024. Article selection followed PRISMA and CASP guidelines. Included articles were subjected to thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Eight UK-based studies met the inclusion criteria. These explored how individuals conceptualised love, their experiences of loving relationships, and factors influencing their romantic lives. Participants were able to articulate what love meant to them and how experiences of love linked to their identity, purpose, and well-being. Barriers, including lack of privacy, control of carers and social isolation, were identified as hindering participants' pursuit of love.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Policies need to facilitate inclusive practices that challenge societal and structural attitudes around love and romance for people with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12914089/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146215146","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cognitive Predictors of Adaptive Behaviour in Children With Down Syndrome: A Systematic Review 唐氏综合症儿童适应性行为的认知预测因素:系统综述。
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-17 DOI: 10.1111/jar.70201
Fernanda Silva Pereira, Renata Maria Silva Santos, Luiz Humberto Souza Junior, Núbia Hadassa França Ferreira de Carvalho, Clara de Paula Gomes, Alice Martins Ferreira, Marco Aurélio Romano-Silva, Leandro Fernandes Malloy-Diniz, Débora Marques de Miranda
{"title":"Cognitive Predictors of Adaptive Behaviour in Children With Down Syndrome: A Systematic Review","authors":"Fernanda Silva Pereira,&nbsp;Renata Maria Silva Santos,&nbsp;Luiz Humberto Souza Junior,&nbsp;Núbia Hadassa França Ferreira de Carvalho,&nbsp;Clara de Paula Gomes,&nbsp;Alice Martins Ferreira,&nbsp;Marco Aurélio Romano-Silva,&nbsp;Leandro Fernandes Malloy-Diniz,&nbsp;Débora Marques de Miranda","doi":"10.1111/jar.70201","DOIUrl":"10.1111/jar.70201","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Children with Down Syndrome, caused by trisomy 21, frequently exhibit deficits in adaptive behaviour. This systematic review aimed to identify predictors of adaptive behaviour in children with Down Syndrome.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The review followed PRISMA guidelines and was registered in PROSPERO (CRD420251071028). Searches were conducted in June 2025 in PsycINFO, Scopus, ERIC, Web of Science and PubMed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 257 articles were yielded, of which eight met the eligibility criteria. Across studies, executive functions consistently stood out as the strongest predictors of adaptive behaviour, explaining variance in communication, socialisation and daily living skills. General cognitive skills were also associated, although with smaller effects.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Overall, these findings highlight that deficits in executive and intellectual functioning constrain autonomy and everyday functioning in Down Syndrome, underscoring the importance of targeted interventions to improve adaptive outcomes.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12914088/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146215221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing Perinatal Care for Women With Intellectual Disabilities: Clinician Insights on Involving Family Caregivers 加强智障妇女围产期护理:临床医生对家庭照顾者参与的见解。
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-16 DOI: 10.1111/jar.70194
Lauren D. Smith, Anne Valentine, Tiffany A. Moore Simas, Susan L. Parish, Robyn Powell, Luanjiao Hu, Monika Mitra
{"title":"Enhancing Perinatal Care for Women With Intellectual Disabilities: Clinician Insights on Involving Family Caregivers","authors":"Lauren D. Smith,&nbsp;Anne Valentine,&nbsp;Tiffany A. Moore Simas,&nbsp;Susan L. Parish,&nbsp;Robyn Powell,&nbsp;Luanjiao Hu,&nbsp;Monika Mitra","doi":"10.1111/jar.70194","DOIUrl":"10.1111/jar.70194","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Women with intellectual disabilities experience disparities in perinatal outcomes and unmet needs in perinatal care. Many women with intellectual disabilities receive support from family caregivers, including accompaniment to healthcare visits. This qualitative study explores the experiences of obstetric care clinicians navigating perinatal care with family caregivers of women with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Transcripts from interviews (<i>n</i> = 9) and a focus group (<i>n</i> = 8) with 17 obstetric care clinicians were analyzed using a thematic analysis approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four major themes emerged: (1) determining intellectual disability and guardianship status; (2) decision-making; (3) navigating ethical, legal, relational, and clinical challenges; (4) caregivers as an integral part of perinatal care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Family caregiver involvement in perinatal care of women with intellectual disabilities has benefits but can also present challenges for obstetric care clinicians. Clinicians need guidance on how to appropriately manage perinatal care of women with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12907783/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146204151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing Self-Efficacy in Older Family Caregivers of Adults With Intellectual Disabilities: A Pretest-Posttest Pilot Study 提高智障长者家庭照护者自我效能:一项前测后测先导研究。
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-15 DOI: 10.1111/jar.70197
Michela Saretta, Ascensión Doñate-Martínez, Tamara Alhambra-Borrás, Jorge Garcés-Ferrer
{"title":"Enhancing Self-Efficacy in Older Family Caregivers of Adults With Intellectual Disabilities: A Pretest-Posttest Pilot Study","authors":"Michela Saretta,&nbsp;Ascensión Doñate-Martínez,&nbsp;Tamara Alhambra-Borrás,&nbsp;Jorge Garcés-Ferrer","doi":"10.1111/jar.70197","DOIUrl":"10.1111/jar.70197","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study examined the effects of an adapted Savvy Caregiver Program on older family caregivers of adults with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A non-randomised pretest-posttest pilot study was conducted with caregivers aged ≥ 60 years assigned to an intervention group (<i>n</i> = 52) or a comparison group receiving usual support (<i>n</i> = 51). Outcomes included the Revised Scale for Caregiving Self-Efficacy (primary), coping strategies, social support, burden and functional limitations. Intervention effects were examined using ANCOVA and correlation analyses.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A significant intervention effect emerged for self-efficacy related to obtaining respite, with higher posttest scores in the intervention group. Significant group effects were also observed for problem-solving coping and avoidance strategies and caregiver burden. A significant group × baseline interaction was identified for positive-attitude coping. Correlations highlighted significant associations between self-efficacy, social support and burden.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>An adapted intervention may enhance specific dimensions of caregiving self-efficacy and coping among older family caregivers.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146204135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Redefining Professionalism in Disability Services: Digital Transformation, Boundary Work, and Professional Capital in Frontline Care During the COVID-19 Pandemic 重新定义残疾服务的专业精神:2019冠状病毒病大流行期间一线护理的数字化转型、边界工作和专业资本。
IF 1.9 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-15 DOI: 10.1111/jar.70196
Richard Gäddman Johansson, Kristina Engwall
{"title":"Redefining Professionalism in Disability Services: Digital Transformation, Boundary Work, and Professional Capital in Frontline Care During the COVID-19 Pandemic","authors":"Richard Gäddman Johansson,&nbsp;Kristina Engwall","doi":"10.1111/jar.70196","DOIUrl":"10.1111/jar.70196","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>During the COVID-19 pandemic, frontline care workers in day centre services for adults with intellectual disabilities rapidly adapted their roles through use of digital technologies. This study examines how these developments shaped professional roles and identities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The study draws on qualitative interviews with 14 frontline staff and 5 managers in day centres that shifted from on-site to remote services. Thematic analysis was guided by the concepts of boundary work and professional capital.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Digitalisation temporarily reshaped professional identity by enabling increased digital competence, peer collaboration, and creative agency. Staff experienced tensions between digitally mediated practices and values tied to co-presence, embodied interaction, and relational care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Digitalisation created both opportunities and strains in frontline care work. Sustaining constructive digital practices will require organisational support that recognises frontline workers' expertise, integrates digital competence with reflective professional development, and involves staff and service users in shaping how technologies are used.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12907469/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146204176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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