Beyond the Frame: A Photo-Elicitation Study of Sibling Experiences on the Stay of Their Sibling With a Moderate to Profound Intellectual Disability in Group Homes

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-10 DOI:10.1111/jar.70028

Sien Vandesande, Evy Meys, Bea Maes

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引用次数: 0

Abstract

Background

Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives due to their brother or sister's move to a group home.

Methods

Using photo-elicitation and in-depth interviews, we engaged eight children (aged 7–17) with siblings in group homes. Participants captured changes or consistencies in daily life through photographs, which served as conversation triggers.

Results

Participants highlighted objects and spaces reminding them of their sibling and documented missed or regained activities and interactions. Five themes emerged, reflecting their emotional experiences and perspectives.

Conclusions and Implications

Siblings provided a nuanced view of their sibling's stay, noting benefits and feelings of incompleteness. Professionals should consider siblings' emotions and beliefs in caregiving decisions, recognising the significant impact on their lives.

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框架之外：对中度至重度智障儿童在集体之家的兄弟姐妹经历的照片启发研究

背景父母为智障儿童提供家庭外支持的决定会对包括兄弟姐妹在内的所有家庭成员产生重大影响。然而，兄弟姐妹对这种过渡到集体之家的看法仍未得到充分探讨。这项研究考察了兄弟姐妹的情感经历以及由于他们的兄弟姐妹搬到集体之家而导致的个人和家庭生活的变化。方法采用照片启发法和深度访谈法，对8名7-17岁的儿童及其兄弟姐妹在集体之家进行调查。参与者通过照片捕捉日常生活中的变化或一致性，这些照片作为对话的触发器。结果参与者突出了提醒他们兄弟姐妹的物体和空间，并记录了错过或重新获得的活动和互动。出现了五个主题，反映了他们的情感经历和观点。结论和启示兄弟姐妹提供了一个微妙的观点，他们的兄弟姐妹的逗留，注意到好处和不完整的感觉。专业人士在做出照顾决定时应考虑兄弟姐妹的情绪和信仰，认识到这对他们生活的重大影响。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.