{"title":"框架之外:对中度至重度智障儿童在集体之家的兄弟姐妹经历的照片启发研究","authors":"Sien Vandesande, Evy Meys, Bea Maes","doi":"10.1111/jar.70028","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives due to their brother or sister's move to a group home.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>Using photo-elicitation and in-depth interviews, we engaged eight children (aged 7–17) with siblings in group homes. Participants captured changes or consistencies in daily life through photographs, which served as conversation triggers.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Participants highlighted objects and spaces reminding them of their sibling and documented missed or regained activities and interactions. Five themes emerged, reflecting their emotional experiences and perspectives.</p>\n </section>\n \n <section>\n \n <h3> Conclusions and Implications</h3>\n \n <p>Siblings provided a nuanced view of their sibling's stay, noting benefits and feelings of incompleteness. Professionals should consider siblings' emotions and beliefs in caregiving decisions, recognising the significant impact on their lives.</p>\n </section>\n </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2025-03-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Beyond the Frame: A Photo-Elicitation Study of Sibling Experiences on the Stay of Their Sibling With a Moderate to Profound Intellectual Disability in Group Homes\",\"authors\":\"Sien Vandesande, Evy Meys, Bea Maes\",\"doi\":\"10.1111/jar.70028\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Background</h3>\\n \\n <p>Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives due to their brother or sister's move to a group home.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>Using photo-elicitation and in-depth interviews, we engaged eight children (aged 7–17) with siblings in group homes. Participants captured changes or consistencies in daily life through photographs, which served as conversation triggers.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Participants highlighted objects and spaces reminding them of their sibling and documented missed or regained activities and interactions. Five themes emerged, reflecting their emotional experiences and perspectives.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusions and Implications</h3>\\n \\n <p>Siblings provided a nuanced view of their sibling's stay, noting benefits and feelings of incompleteness. Professionals should consider siblings' emotions and beliefs in caregiving decisions, recognising the significant impact on their lives.</p>\\n </section>\\n </div>\",\"PeriodicalId\":51403,\"journal\":{\"name\":\"Journal of Applied Research in Intellectual Disabilities\",\"volume\":\"38 2\",\"pages\":\"\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2025-03-10\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Applied Research in Intellectual Disabilities\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/jar.70028\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PSYCHOLOGY, EDUCATIONAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Applied Research in Intellectual Disabilities","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jar.70028","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, EDUCATIONAL","Score":null,"Total":0}
Beyond the Frame: A Photo-Elicitation Study of Sibling Experiences on the Stay of Their Sibling With a Moderate to Profound Intellectual Disability in Group Homes
Background
Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives due to their brother or sister's move to a group home.
Methods
Using photo-elicitation and in-depth interviews, we engaged eight children (aged 7–17) with siblings in group homes. Participants captured changes or consistencies in daily life through photographs, which served as conversation triggers.
Results
Participants highlighted objects and spaces reminding them of their sibling and documented missed or regained activities and interactions. Five themes emerged, reflecting their emotional experiences and perspectives.
Conclusions and Implications
Siblings provided a nuanced view of their sibling's stay, noting benefits and feelings of incompleteness. Professionals should consider siblings' emotions and beliefs in caregiving decisions, recognising the significant impact on their lives.
期刊介绍:
JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.