Journal of Applied Research in Intellectual Disabilities最新文献

{"title":"Co-Creating Health Promotion Training With People With Intellectual Disabilities: A Participatory Action Research Study","authors":"Valentine Perrelet,&nbsp;Emma Mignone-Ermacora,&nbsp;Loreene Casteyde,&nbsp;William Chollet,&nbsp;Laure Maillefer,&nbsp;Margaux Favre,&nbsp;Stéphanie Pin,&nbsp;Karin Zürcher,&nbsp;Aline Veyre,&nbsp;Linda Charvoz,&nbsp;Andrea Lutz","doi":"10.1111/jar.70305","DOIUrl":"10.1111/jar.70305","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disabilities face persistent health inequalities and limited access to health promotion services. Their perspectives are rarely included in service design.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This participatory action research (Jan 2024–Apr 2025) involved co-researcher and co-trainers in the development of a new health promotion training for professionals working in institutional contexts. An Inclusive and Participatory Educational Board guided four iterative steps: identifying needs, co-designing content, co-teaching training and evaluating outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Findings revealed that people with intellectual disabilities prioritize holistic well-being, autonomy and personalized support, while professionals tend to focus on conventional health domains. Both groups highlighted needs spanning individual, social and structural levels. The co-creation process fostered inclusion and mutual learning but encountered logistical, communication and institutional challenges.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Co-creation enhances the relevance, ethical grounding and equity of training in health promotion and prevention. Future efforts must improve inclusive communication, institutional coordination and formal recognition of service users' contributions.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149032083","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Is There an Empty Seat for Me? Multiple Perspectives on Transportation of Young Adults With Intellectual Disabilities","authors":"Sima Mart,&nbsp;Fidan Güneş Gürgör-Kılıç","doi":"10.1111/jar.70308","DOIUrl":"10.1111/jar.70308","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Independent use of public transportation is an important living skill for young adults with intellectual disabilities. Although public transportation can provide an affordable means of mobility in many urban settings, using it requires complex cognitive, social, and functional skills before, during, and after travel.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This qualitative study explored the transportation experiences of young adults with intellectual disabilities living in Istanbul, Turkiye. We conducted 16 individual face-to-face semi-structured interviews with individuals with intellectual and developmental disabilities between the ages of 21 and 28 and interviewed their parents separately. We also interviewed three paratransit vehicle drivers to incorporate different perspectives.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five themes came into focus: desire of independence, safety, accompaniment, barriers for transportation, and systematic instruction.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The findings underscore the need to move beyond viewing transportation solely as a matter of physical accessibility and to consider the cognitive, social, and instructional dimensions that shape everyday mobility experiences.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149032105","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric Properties of Instruments to Assess Movement Disorders in People With Intellectual Disabilities Using Antipsychotics: A Systematic Literature Review","authors":"Maria Louise Dieudonnée Hoekstra-van Duijn,&nbsp;Maureen Bernardina Gerhardus Wissing,&nbsp;Bibi den Haan,&nbsp;Sylvie Beumer,&nbsp;Dederieke Anne Maria Maes-Festen","doi":"10.1111/jar.70303","DOIUrl":"10.1111/jar.70303","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Assessing movement disorders—side effects of antipsychotics—can be challenging in people with intellectual disabilities. This systematic literature review aims to provide a comprehensive overview of the psychometric properties of instruments used to assess movement disorders in people with intellectual disabilities using antipsychotics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A comprehensive search was conducted across multiple databases. Results of psychometric properties for each instrument in the included studies were extracted.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Ten studies were included, evaluating psychometric properties of seven instruments (DISCUS, AIMS, CLAMPS, ARMS, checklist for motor restlessness, MEDS and analogue functional analyses). There was not a singular instrument that consistently demonstrated good feasibility, interrater reliability and validity across studies.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings suggest that instruments lack evidence of good psychometric quality for assessing movement disorders in people with intellectual disabilities using antipsychotics. Future research should focus on the evaluation of psychometric properties of existing instruments and develop and validate novel instruments.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13552245/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148908030","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of Resistance Training in People With Down Syndrome: Systematic Review and Meta-Analysis","authors":"María Jesús Benzo Iglesias,&nbsp;Lucía Torres Álamo,&nbsp;Alejandro Salazar,&nbsp;Patricia Rocamora Pérez,&nbsp;David Manuel Lucena Antón","doi":"10.1111/jar.70302","DOIUrl":"10.1111/jar.70302","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>We aimed to evaluate the effectiveness of resistance training (RT) in people with Down syndrome (DS) as a way of improving strength, physical and metabolic function, and possible adverse effects.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Systematic review and meta-analysis of RCTs in PubMed, PEDro, Scopus, and WoS databases in September-2023, registered in PROSPERO (CRD42022312810). Methodological quality and risk of bias were analysed using the PEDro scale, the Downs &amp; Black Checklist, and the Cochrane Collaboration Risk of Bias Tool.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Sixteen articles were included. RT increased the strength (SMD = 1.88; 95% CI = (1.26; 2.51); <i>I</i>² = 72%) and improved physical function (SMD = −0.58; 95% CI = (−1.06; −0.11); <i>I</i>² = 13%), but there were no clear results on whether it improved anthropometric and cardiorespiratory measures. There were no serious adverse effects.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>An increase in overall and maximal muscle strength and improved physical function was produced by RT in DS people. RT is a safe technique as serious adverse effects were not produced.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13552251/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148908078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Association Between S-CARES Scores and Hospitalisation Due to Respiratory Infections in People With Profound Intellectual and Multiple Disabilities: A Retrospective Cohort Study","authors":"Masaki Oomagari,&nbsp;Hatsuka Minamino,&nbsp;Yui Harashina,&nbsp;Kanako Matsui,&nbsp;Tetsuya Kibe","doi":"10.1111/jar.70304","DOIUrl":"10.1111/jar.70304","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study aimed to determine whether S-CARES is associated with respiratory infection-related hospitalisation in people with profound intellectual and multiple disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This single-centre retrospective study involved 103 people with profound intellectual and multiple disabilities (mean age: 36 years; males: 60). Two physical therapists assessed them using the S-CARES at baseline and after 1 year. The primary outcome was respiratory infection-related hospitalisation. Associations were examined using logistic regression and receiver-operating characteristic analysis. Risk stratification was evaluated using Fisher's exact test.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Sixteen people with profound intellectual and multiple disabilities (15.5%) were hospitalised. Median S-CARES scores were higher in the hospitalised group (58.5 vs. 38.0; <i>p</i> &lt; 0.001). Higher S-CARES scores were independently associated with hospitalisation (odds ratio 1.08, 95% confidence interval 1.02–1.14; <i>p</i> = 0.005; area under the curve = 0.777).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Higher S-CARES scores may help identify people with profound intellectual and multiple disabilities at increased risk, supporting early intervention and resource prioritisation.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148901636","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing Peer-Mentored Cognitive Behavioural Therapy for Adolescents With Mild-To-Borderline Intellectual Disability and Anxiety: A Qualitative Study","authors":"Iris Langereis,&nbsp;Jasmin Rahemenia,&nbsp;Renske D. Pols,&nbsp;Marieke G. N. Bos,&nbsp;Anika Bexkens","doi":"10.1111/jar.70297","DOIUrl":"10.1111/jar.70297","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Youth with intellectual disabilities are at increased risk of developing anxiety disorders. Adapted CBT shows potential for youth with intellectual disabilities, but evidence for effectiveness is limited and mixed, urging the need for further optimisation. This study aims to develop a peer-mentored CBT intervention, together with and for youth with mild-to-borderline intellectual disability and anxiety, based on scientific evidence, clinical expertise and patient preferences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>In the intervention development phase, 40 stakeholders (youth with intellectual disability, parents, therapists, experts by experience) took part in focus groups and interviews, providing insight into clinical expertise and patient preferences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Stakeholders expected peer-mentored CBT to result in anxiety reduction and increased self-esteem, due to maximised exposure and inclusion of a peer-mentor. Stakeholders identified barriers and provided their views on solutions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Stakeholders see potential in peer-mentored CBT. Including youth with intellectual disability was feasible and led to important insights for intervention development.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13541418/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148889666","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Characterisation of Pelvic Floor Muscle Activation in Adults With Intellectual Disability Using Surface Electromyography: A Comparative Cross-Sectional Study","authors":"Ana López-Lezcano,&nbsp;Manuel Rozalén-Bustín,&nbsp;Sara Cerrolaza-Tudanca,&nbsp;Mª. Soledad Amor-Salamanca,&nbsp;Lara Sánchez-Suarez,&nbsp;Arturo Cano-Uceda,&nbsp;José Luis Maté-Muñoz,&nbsp;Pablo García-Fernández","doi":"10.1111/jar.70300","DOIUrl":"10.1111/jar.70300","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Adults with intellectual disability (ID) have high rates of urinary incontinence, yet objective neuromuscular data are limited. We compared pelvic floor muscle (PFM) activation using surface electromyography (sEMG) in adults with ID versus matched controls.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>In this cross-sectional study, 104 participants were recruited to an ID group (<i>n</i> = 52) and a matched control group (<i>n</i> = 52). Perianal sEMG recorded five maximal voluntary contractions following a standardised protocol. Intensity, variability, contraction onset and relaxation times were analysed using <i>t</i> or Mann–Whitney tests, MANOVA and multiple regression.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Compared with controls, the ID group showed lower mean activity (5.3 ± 6.0 vs. 8.8 ± 7.2 μV; <i>p</i> &lt; 0.001; <i>d</i> = 0.52), lower peaks, longer onset and greater variability; relaxation parameters did not differ. MANOVA indicated a significant global group effect (Wilks' <i>λ</i> = 0.801, <i>p</i> = 0.003). Regression identified ID as the sole independent predictor of reduced activation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Adults with ID exhibit weaker, less stable and delayed PFM activation, supporting tailored physiotherapy.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13527592/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148868324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Empowerment of Youth With Intellectual Disabilities Through Inclusive Research in Africa","authors":"Chioma Ohajunwa,&nbsp;Anthea Hansen,&nbsp;Lieketseng Ned,&nbsp;Theresa Lorenzo","doi":"10.1111/jar.70301","DOIUrl":"https://doi.org/10.1111/jar.70301","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Despite growing global interest in participatory research, the practice of including persons with intellectual disabilities as co-researchers remains largely underexplored within the African context. This paper reflects on the methodological processes of implementing inclusive research with youth with intellectual disabilities, including the lessons learned during this process.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Youth with intellectual disabilities were recruited and trained as co-researchers to conduct interviews as part of a pilot study for the qualitative evaluation of the Special Olympics Healthy Communities Programme in South Africa. The core team consisted of four co-researchers and three university researchers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results and Conclusions</h3>\u0000 \u0000 <p>The reflections and lessons learned from the research team demonstrated that conducting inclusive research with youth with intellectual disabilities is beneficial to all involved. It is achievable and speaks to the reciprocity of equity, inclusion, empowerment and social justice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70301","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148849343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Let's Just Hope for the Best’: A Photovoice Study Exploring the Impact of Covid-19 Restrictions on Children With Intellectual Disabilities in the UK","authors":"Ally Pax Arcari Mair,&nbsp;Grace Khawam,&nbsp;Hope Christie,&nbsp;Karen Goodall,&nbsp;Doug McConachie,&nbsp;Jo Van Herwegen,&nbsp;Joanna Moss,&nbsp;Carrie Ballantyne,&nbsp;Hayley Crawford,&nbsp;Caroline Richards,&nbsp;Thomas Gallagher-Mitchell,&nbsp;Laura Outhwaite,&nbsp;Karri Gillespie-Smith","doi":"10.1111/jar.70298","DOIUrl":"https://doi.org/10.1111/jar.70298","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>To date, little research has explored children with intellectual disabilities' own experience of the Covid-19 pandemic. The current study used photovoice to explore the impact of Covid-19 on children with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Sessions were carried out with (<i>n</i> = 13) children aged 8–16 years across five sessions with five small groups (either face-to-face or video calls) between November 2021—March 2022.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three main themes (1) “Nobody likes the lockdown”; (2) “You don't want the Covid [to] get you”; (3) <i>Everything is Different Now</i> were connected to an overarching theme of <i>(Im)Permanence</i>.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Children with intellectual disabilities were anxious during the Covid-19 pandemic and employed numerous coping strategies (such as distracting themselves with sensory-based activities). Despite looking forward to seeing family/friends, children reported worries and hesitancy about returning to ‘normal’, indicating potential lasting effects of the lockdown.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 5","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70298","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148849064","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parents With an Intellectual Disability in Vietnam: An Overview of the Current Situation From Professionals' Perspectives","authors":"Thu Le Thi Tran,&nbsp;Huong Cam Thi Nguyen,&nbsp;Ngoc Bich Thi Tran","doi":"10.1111/jar.70284","DOIUrl":"10.1111/jar.70284","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Aims</h3>\u0000 \u0000 <p>In Vietnam, limited empirical research on families in which parents have intellectual disabilities constrains understanding of their circumstances and effective support strategies. Meanwhile, professionals working with these families play a key role in informing policy, developing interventions and providing support.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This study employed a survey based on a questionnaire developed by the authors and administered to 182 professionals, including researchers, intervention specialists, managers and teachers with experience working in special education.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The main findings indicated that 54.4% of participants reported professional contact with such families and more than 80% endorsed the right of individuals with mild intellectual disabilities to marry. Reported forms of support primarily included counselling, parenting guidance and emotional or material assistance.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The findings underscore the urgent need for in-depth research on parents with intellectual disabilities, their family circumstances and support needs to inform practical solutions and policy recommendations.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 4","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148594909","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}