Journal of Applied Research in Intellectual Disabilities最新文献

{"title":"Parents' Experiences of the Sexual Development of Adolescents With Intellectual Disabilities: A Systematic Review and Synthesis of Qualitative Studies","authors":"Yeşim Yurdakul,&nbsp;Yelda Kublay","doi":"10.1111/jar.70112","DOIUrl":"https://doi.org/10.1111/jar.70112","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study aims to systematically synthesise qualitative research findings regarding the sexual development of adolescents with intellectual disabilities (ID) from the perspective of their parents.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A comprehensive search across seven databases identified 15 studies on parents' experiences regarding the sexual development of adolescents (10–19 years) with intellectual disabilities. In the study, the ENTREQ guidelines were followed, and the CASP checklist was used for quality assessment. Data synthesis followed an inductive approach by Sandelowski and Barroso.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Parents' experiences were categorised into five themes: parents' perceptions of their children's sexuality, social and emotional impacts of sexual changes, parents' needs and strategies for sexual education, increasing concerns and responsibilities with sexual changes, and strategies for managing sexual behaviours.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Educational and guidance services provided by health professionals regarding the sexual development of children with intellectual disabilities could help manage sexual needs and sexual health issues within this population more effectively.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144861699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Lifestyle Composite and Resilience to Alzheimer's Disease Pathology in Down Syndrome","authors":"Emily K. Schworer,&nbsp;Matthew D. Zammit,&nbsp;Benjamin L. Handen,&nbsp;Brianna Piro-Gambetti,&nbsp;Melissa R. Jenkins,&nbsp;Courtney Brothers,&nbsp;Ozioma C. Okonkwo,&nbsp;Christy L. Hom,&nbsp;Beau M. Ances,&nbsp;Bradley T. Christian,&nbsp;Sigan L. Hartley","doi":"10.1111/jar.70109","DOIUrl":"https://doi.org/10.1111/jar.70109","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with Down syndrome (DS) have a high risk for Alzheimer's disease (AD). Identifying resiliency factors for AD is of critical importance to the DS community.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Participants were 63 adults with DS. Measures included amyloid-beta PET scans (amyloid age), National Task Group-Early Detection Screen for Dementia (NTG-EDSD), and Down Syndrome Mental Status Examination (DSMSE). Lifestyle composites were created by assessing time spent in leisure, employment, and physical activity across 7 days through informant reports and accelerometry.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>There was a significant moderation effect of the lifestyle composite on the association between amyloid age and the NTG-EDSD and DSMSE. Participants with a higher lifestyle composite (higher leisure, employment engagement, and physical activity) had fewer dementia symptoms than those with a lower lifestyle composite score of a similar amyloid age.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Modifiable lifestyle factors may allow adults with DS to maintain cognitive functioning for longer in the face of AD pathology.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70109","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144832932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Unseen and Invisible? Issues of Recognition for Parents With Intellectual Disabilities Accessing Social Work and Social Care Services for Adults in England","authors":"Beth Tarleton,&nbsp;Gillian MacIntyre,&nbsp;Danielle Turney,&nbsp;Rhian Fawcett","doi":"10.1111/jar.70075","DOIUrl":"https://doi.org/10.1111/jar.70075","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parents in England with an intellectual disability may be eligible for support with parenting from Local Authority's Adult services under the Care Act (2014).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This study investigated how adult social workers support these parents through 18 interviews with managers and commissioners and focus groups with 52 social workers, analysed using thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Parents with a diagnosed ‘intellectual disability’ accessed ‘gold standard of support’ from intellectual disability teams. Parents with a milder or borderline intellectual disability accessed support from the ‘general’ team if they had two eligible needs under the Care Act. There were inclusive and more restrictive approaches, related to a lack of resources and social worker knowledge and skills, to the recognition of two eligible needs.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Parents with milder intellectual disabilities are rendered invisible to services due to not having a ‘label’ or ‘obvious’ eligibility for support under the Care Act.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70075","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144767514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Provider Perspectives on Using School-Based Mental Health/Speech Co-Therapy to Meet the Mental Health Needs of Students With Intellectual/Developmental Disabilities","authors":"Eve Müller,&nbsp;Kelly Offutt,&nbsp;Michael Stromberg,&nbsp;Ann Kern,&nbsp;Jessica Oginz","doi":"10.1111/jar.70104","DOIUrl":"https://doi.org/10.1111/jar.70104","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Many students with intellectual/developmental disabilities (I/DD) and co-occurring communication challenges have trouble accessing mental health services, especially traditional talk therapies.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This study is based on interviews with 19 school mental health providers (MHPs), speech-language therapists (SLPs), and administrators working in a school that recently added MHP/SLP co-therapy as a service delivery option.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Following COVID, MHPs reported an increased need for mental health support, specifically language support to help students access mental health concepts. Interviewees found MHP/SLP co-therapy to be a highly beneficial model resulting in both direct benefits (i.e., student progress, generalisation of skills, and access to the expertise of two disciplines at once) and indirect benefits (i.e., greater confidence and competence of MHPs providing mental health supports to their I/DD students).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>MHP/SLP co-therapy may offer a promising means of helping individuals with I/DD and co-occurring communication challenges access appropriate mental health therapies in schools.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144758539","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding Capabilities, Opportunities, and Motivations of Walking for Physical Activity Among Adults With Intellectual Disabilities: A Qualitative Theory-Based Study","authors":"Sophie C. Westrop,&nbsp;Ailsa Niven,&nbsp;Craig Melville,&nbsp;Donna-Marie Speir,&nbsp;Arlene M. McGarty","doi":"10.1111/jar.70105","DOIUrl":"https://doi.org/10.1111/jar.70105","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study aimed to apply the COM-B model to understand the <b>c</b>apabilities, <b>o</b>pportunities, and <b>m</b>otivations for walking <b>b</b>ehaviour among adults with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A qualitative study was conducted with adults (≥ 18 years) with mild to moderate intellectual disabilities living in Greater Glasgow using one-to-one interviews (<i>n</i> = 12; women = 5) and a photo-elicitation activity followed by a focus group discussion (<i>n</i> = 5; women = 1). The framework approach to analysis allowed for the influences of walking to be mapped onto the COM-B model.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Walking is a complex behaviour with many capabilities, opportunities and motivations to consider. Adults with intellectual disabilities were involved in making decisions about what results should be prioritised.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The COM-B model is a flexible framework that can be applied to understand health behaviours of adults with intellectual disabilities. It is imperative to work with adults with intellectual disabilities throughout the research process.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-07-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70105","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144725405","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perceptions of Barriers, Facilitators, and Outcomes of Aerobic Exercise in Community Fitness Facilities by Adults With Intellectual Disability","authors":"Iva Obrusnikova,&nbsp;Ashley M. Steinbrecher,&nbsp;Albert R. Cavalier,&nbsp;Richard R. Suminski,&nbsp;Cora J. Firkin","doi":"10.1111/jar.70108","DOIUrl":"https://doi.org/10.1111/jar.70108","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Adults with intellectual disability do not meet recommended physical activity (PA) levels, contributing to sedentary lifestyles and health disparities. Community fitness facilities (CFFs) present valuable opportunities for engagement but are often underutilised.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This mixed-methods study, grounded in Social Cognitive Theory, combined semi-structured interviews and quantitative functional assessments to examine the perceived benefits, costs, barriers, and facilitators of aerobic exercise amongst 20 adults with intellectual disability, aged 19–43. Associations between perceptions, PA, and exercise performance were examined.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants perceived substantial health benefits from aerobic exercise. However, physical discomfort and environmental constraints were commonly cited and were associated with lower PA levels and performance. Some perceived facilitators were unexpectedly correlated with increased sedentariness and lower functional performance, possibly due to programme design misalignments.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>To enhance participation and health outcomes, CFF programmes must be tailored to address individual psychological needs and physical capabilities, whilst also improving accessibility and support.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144725741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘It's Really Who They Are and What They Want’: Staff Perspectives on Supporting Autonomy for Autistic Adults With Intellectual Disabilities","authors":"Jackie Ryan,&nbsp;Heather M. Brown,&nbsp;Anne Borden,&nbsp;Christina Devlin,&nbsp;Adam Kedmy,&nbsp;Austin Lee,&nbsp;David B. Nicholas,&nbsp;Sandy Thompson-Hodgetts","doi":"10.1111/jar.70106","DOIUrl":"https://doi.org/10.1111/jar.70106","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Autonomy is a crucial component of self-determination, yet it is limited for Autistic individuals, especially those with co-occurring intellectual disabilities. We explored how professionals supported Autistic people with intellectual disabilities' autonomy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Materials and Methods</h3>\u0000 \u0000 <p>This qualitative study used a community-based participatory approach. Nine staff who worked within a post-secondary transition programme to support Autistic young adults with intellectual disabilities were interviewed. Data were analysed using reflexive thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The quality and depth of relationships between staff and Autistic adults with intellectual disabilities, and a safe, supportive environment, were critical to supporting autonomy. Staff also identified several skill areas that would benefit program participants to exert their autonomy, including self-advocacy, interoceptive awareness, working with others, and understanding choices.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This crucial information for supporting autonomy for Autistic adults with intellectual disabilities provides a basis for enacting programme change to promote self-determination. Recommendations for staff and programme development are provided.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70106","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144725740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Brief Report: Caregiver-Reported Effects of Sensory Safety Beds on Paediatric Sleep Quality","authors":"Chelsea Marlborough,&nbsp;Katja Lemermeyer,&nbsp;Daniel J. Coletti,&nbsp;Chris P. Madsen,&nbsp;Caleb Polley,&nbsp;Garrett Sharp,&nbsp;Adam E. Block","doi":"10.1111/jar.70096","DOIUrl":"https://doi.org/10.1111/jar.70096","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Children with neurodisabilities, including those with intellectual and developmental disabilities (IDD), autism and other complex needs, frequently experience sleep disturbances, impacting their health, behaviour and caregiver well-being. This study evaluates the effectiveness of Cubby Beds, sensory safety beds designed to improve sleep quality and safety for children with neurodisabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A survey of 225 caregivers assessed changes before and after Cubby Bed adoption using multiple-choice and Likert-scale questions. A Wilcoxon signed-rank test was used to analyse key outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Caregivers reported significant improvements in sleep duration (median increase from 4–6 to 8–10 h per night, <i>p</i> &lt; 0.001) and reductions in self-injurious behaviours, minor injuries and elopement incidents (<i>p</i> &lt; 0.001). Effects on medical procedures, seizures and life-threatening events were mixed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings suggest Cubby Beds enhance sleep and safety for children with neurodisability. Further research is needed to assess long-term impacts and integration into healthcare strategies.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70096","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144714834","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Scoping Review on the Use of Navigation Services to Improve Accessibility of Programming for People With Intellectual Disabilities","authors":"Jennifer Christianson-Barker,&nbsp;Arielle Lomness,&nbsp;Nour Youssef,&nbsp;Dina Yaghi,&nbsp;Florence Ng,&nbsp;Laura Hockman,&nbsp;Rachel Mills,&nbsp;Rachelle Hole","doi":"10.1111/jar.70101","DOIUrl":"https://doi.org/10.1111/jar.70101","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Canadians with intellectual disabilities experience barriers in accessing federal government services and programmes. Evolving from established models of patient navigation, service navigation has emerged as a potential way to address systematic barriers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A scoping review was conducted with a search strategy implemented across six databases, including APA PsycInfo, Medline, CINAHL, Embase, Scopus, and ProQuest Sociology Collection.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>One hundred and twelve studies were identified as relevant to the research question. Despite variance in terminology, definition, and practice, included studies affirm the need for navigational support and highlight the potential impact of support.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The included literature identifies navigation support as a promising practice to remove barriers and advance access to programs and services for people with intellectual disabilities. Additional study is needed to specify the impact related to accessing federal programs and services in a Canadian context.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70101","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144705313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relationship Between Affiliate Stigma, Stress and Perceived Quality of Life Among Parents of Children With Down Syndrome","authors":"Shin Ying Chu,&nbsp;Jaehoon Lee,&nbsp;Dini Sofea Binti Zamsyari,&nbsp;Chun Hong Gan,&nbsp;Pui Juan Woi,&nbsp;Agnes Shu Sze Chong,&nbsp;Maria Garraffa,&nbsp;Ling-Yi Lin","doi":"10.1111/jar.70099","DOIUrl":"https://doi.org/10.1111/jar.70099","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>To examine the relationship between affiliate stigma, stress and perceived quality of life amongst parents of children with Down syndrome (DS).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Seventy-eight parents of children with DS completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI) and Care-related Quality of Life (CarerQol) scales.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Pearson correlations revealed that parents did not feel stigmatised for having a child with DS (<i>M</i> = 30.51, SD = 10.47) and reported a low caregiver burden (CBI Total <i>M</i> = 19.73, SD = 12.72). The relatively lower caregiving burden, challenges and future barriers in the DS group explained its lesser stigma, higher quality of life and greater happiness compared to the ASD and CP groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Healthcare professionals who provide rehabilitation services to children with DS need to be more aware of the needs of families and caregivers and educated about how to best support them.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144705682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}