Journal of Applied Research in Intellectual Disabilities最新文献

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Assistive Technology Uses and Barriers in the Home and Workplace for Adults With Intellectual and Developmental Disabilities 智力和发育障碍成人在家庭和工作场所的辅助技术使用和障碍。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-27 DOI: 10.1111/jar.13306
Kristina N. Randall, Hannah Drew, Elizabeth S. Gilman, Emma Dixon
{"title":"Assistive Technology Uses and Barriers in the Home and Workplace for Adults With Intellectual and Developmental Disabilities","authors":"Kristina N. Randall,&nbsp;Hannah Drew,&nbsp;Elizabeth S. Gilman,&nbsp;Emma Dixon","doi":"10.1111/jar.13306","DOIUrl":"10.1111/jar.13306","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Assistive technology (AT) has been successfully used by researchers and practitioners to increase task completion and independence in work and home environments for individuals with intellectual and developmental disabilities. While prior research has shown increased outcomes of incorporating AT into daily tasks, research has also indicated that actual use of AT in these settings is much lower.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The current qualitative study used semi-structured interviews with a sample of 25 adults (22 individuals with intellectual and developmental disabilities and three job coaches) to examine the perceived use and implementation of AT into home and work environments, along with potential challenges and barriers. Interviews were analyzed using a thematic analysis approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three themes were identified: (1) technologies used to support daily living skills, (2) technologies used to support employment and (3) challenges and barriers to using technologies.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings indicate that while individuals with intellectual and developmental disabilities are using a variety of AT in their homes both successfully and independently, they have extremely limited use in their workplaces. Implications for practice and future research are discussed.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13306","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142514191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feasibility, Experiences and Short-Term Outcomes on Challenging Behaviour and Well-Being of a Partially Online Music Intervention Pilot Study for Adults With Intellectual Disabilities 针对智障成人的部分在线音乐干预试点研究的可行性、经验以及对挑战行为和幸福感的短期影响。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-24 DOI: 10.1111/jar.13314
Gerianne J. J. Smeets, Karin M. Volkers, Eline A. K. Swart, Xavier M. H. Moonen, Erik J. A. Scherder
{"title":"Feasibility, Experiences and Short-Term Outcomes on Challenging Behaviour and Well-Being of a Partially Online Music Intervention Pilot Study for Adults With Intellectual Disabilities","authors":"Gerianne J. J. Smeets,&nbsp;Karin M. Volkers,&nbsp;Eline A. K. Swart,&nbsp;Xavier M. H. Moonen,&nbsp;Erik J. A. Scherder","doi":"10.1111/jar.13314","DOIUrl":"10.1111/jar.13314","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>During the COVID-19 pandemic we implemented a partially online music intervention to examine the feasibility, experiences and short-term outcomes on the challenging behaviour and well-being of adults with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This mixed-methods study included 10 participants with mild or moderate intellectual disabilities who received 16 one-hour individual music sessions in 10 weeks, either face-to-face or online. Data on feasibility and experiences from participants and music workers were collected and analysed using inductive thematic analysis. Challenging behaviour and well-being were measured before and after intervention.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Overall experiences were positive and concerned appreciation, positive feelings, musical abilities, attention span, relatedness and personalisation. Online experiences varied, but most participants preferred face-to-face over online sessions. After the intervention, challenging behaviour scores were better than before.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Engaging in a partially online music intervention is feasible for people with intellectual disabilities and seems to improve challenging behaviour. Experiences are discussed and recommendations for future online sessions are provided.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13314","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142514192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Stress, Anxiety and Coping in Adults With Down Syndrome: An Exploratory Co-Research Study 唐氏综合症成人的压力、焦虑与应对:一项探索性合作研究。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-24 DOI: 10.1111/jar.13311
Ashley Scott, Ryan Gould, Liam Quidore, Keryden Koeut-Futch, Emily Bock, Prisha Sujin Kumar, Staci Christensen, Augusta Edouard, Benjamin Golden, Eden Rapp, Kaethe Sigelko, Alexis Sokoloff, Caley Versfelt, Eric Rubenstein
{"title":"Stress, Anxiety and Coping in Adults With Down Syndrome: An Exploratory Co-Research Study","authors":"Ashley Scott,&nbsp;Ryan Gould,&nbsp;Liam Quidore,&nbsp;Keryden Koeut-Futch,&nbsp;Emily Bock,&nbsp;Prisha Sujin Kumar,&nbsp;Staci Christensen,&nbsp;Augusta Edouard,&nbsp;Benjamin Golden,&nbsp;Eden Rapp,&nbsp;Kaethe Sigelko,&nbsp;Alexis Sokoloff,&nbsp;Caley Versfelt,&nbsp;Eric Rubenstein","doi":"10.1111/jar.13311","DOIUrl":"10.1111/jar.13311","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Our group of researchers and adults with Down syndrome conducted an online survey on mental health for adults with Down syndrome. We analysed quantitative data and thematically grouped coping mechanisms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Sixty adults with Down syndrome completed the survey, mean age was 30 years, and 55% of respondents had some employment. Approximately 80% of respondents reported experiencing stress and 75% reported experiencing anxiety. Employed respondents were more likely to use social coping mechanisms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Soliciting responses from adults with Down syndrome about their mental health can provide valuable insights. Mental health is a concern for people with Down syndrome that should be addressed.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142514196","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mental Health Services for Adults With Intellectual Disabilities: A Qualitative Study of Patient Characteristics, Associated Factors and Consequent Needs for Adaptation in Assessment and Treatment 为智障成人提供的心理健康服务:对患者特征、相关因素及评估和治疗中的相应适应需求的定性研究。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-24 DOI: 10.1111/jar.13315
Kjersti Karlsen, Ellen Kathrine Munkhaugen, Hanne Kari Fossum, Trine Lise Bakken, Arvid Nikolai Kildahl
{"title":"Mental Health Services for Adults With Intellectual Disabilities: A Qualitative Study of Patient Characteristics, Associated Factors and Consequent Needs for Adaptation in Assessment and Treatment","authors":"Kjersti Karlsen,&nbsp;Ellen Kathrine Munkhaugen,&nbsp;Hanne Kari Fossum,&nbsp;Trine Lise Bakken,&nbsp;Arvid Nikolai Kildahl","doi":"10.1111/jar.13315","DOIUrl":"10.1111/jar.13315","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Individuals with intellectual disabilities are at increased risk of mental health disorders, but may struggle to access appropriate services. While assessment/treatment may need to be adapted, knowledge is limited about what such adaptations may entail.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>During a service development project, the participants (33 professionals, 13 family members) were asked to identify the characteristics/associated factors of individuals with intellectual disabilities and co-occurring mental health disorders. Using thematic analysis, 1103 participant responses were analyzed to identify the needs for adaptation in assessment/treatment.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three core themes were identified: (1) A broader assessment: Gaining an accurate and comprehensive understanding of the individual's history, abilities and difficulties, (2) Adjusting/modifying existing treatment strategies, (3) Ensuring that the individual's day-to-day needs are met.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>According to the participants, assessment/treatment of mental health disorder in this population requires more time and broader assessments are necessary. Family/caregiver involvement and cross-service organisation/collaboration represent other important adaptations.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13315","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142514194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘It's Got Its Ups and Downs’: What People With Intellectual Disabilities Living in Supported Living and Residential Care Like and Dislike About Their Home 有喜有忧":住在辅助生活和寄宿护理机构的智障人士对自己家的喜恶。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-24 DOI: 10.1111/jar.13313
Francesca Ribenfors, Lauren Blood, Chris Hatton, Anna Marriott
{"title":"‘It's Got Its Ups and Downs’: What People With Intellectual Disabilities Living in Supported Living and Residential Care Like and Dislike About Their Home","authors":"Francesca Ribenfors,&nbsp;Lauren Blood,&nbsp;Chris Hatton,&nbsp;Anna Marriott","doi":"10.1111/jar.13313","DOIUrl":"10.1111/jar.13313","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Given the current sociopolitical climate, people with intellectual disabilities are spending more time at home. Much housing-related research focuses on informant-completed measures and quantifiable outcomes. By contrast, this article explores the perspectives of adults with intellectual disabilities concerning what they liked or disliked about their homes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Data is drawn from 53 semi-structured interviews with people with intellectual disabilities in supported living or residential care in England.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three themes were generated: space and place; people make or break a home; and day-to-day autonomy. These highlight the importance of belonging and the significance of other people in the creation of ‘home’.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>If people are to flourish, attention must be paid to aspects of the home that provide comfort, enjoyment, and a sense of belonging. These findings can benefit professionals, family members and people with intellectual disabilities, when considering current or future living arrangements.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13313","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142514193","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Physical Activity, Sedentary Behaviour, Sleep and Mental Wellbeing in Family Caregivers of Adults With Intellectual and/or Developmental Disabilities 智力和/或发育障碍成人家庭照顾者的体育活动、久坐行为、睡眠和心理健康。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-23 DOI: 10.1111/jar.13310
Laura C. Koch, Yona Lunsky, Laura St. John
{"title":"Physical Activity, Sedentary Behaviour, Sleep and Mental Wellbeing in Family Caregivers of Adults With Intellectual and/or Developmental Disabilities","authors":"Laura C. Koch,&nbsp;Yona Lunsky,&nbsp;Laura St. John","doi":"10.1111/jar.13310","DOIUrl":"10.1111/jar.13310","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Canadian 24-h movement guidelines recommend that adults achieve 150 min per week of moderate-to-vigorous physical activity (MVPA), 7–9 h of sleep per night and spend no more than 8-h per day sedentary to optimise health and wellbeing.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Using a cross-sectional survey of 131 family caregivers of adults with intellectual and developmental disabilities, we aimed to (a) determine whether adherence to these guidelines predicts mental wellbeing in family caregivers and (b) explore the relationship between movement behaviours of family caregivers and their loved ones.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>While MVPA was found to weakly predict wellbeing, sleep and sedentary behaviour did not. The movement behaviours of the family caregivers were not closely related to that of their loved ones.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Fostering physical activity is important to promote the wellbeing of adults with intellectual and developmental disabilities, as well as their family caregivers. Opportunities to be active together may be even more beneficial.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13310","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142514195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Scoping Review of Outcomes Measured and Involvement of People With Intellectual Disabilities in Active Support Research 智障人士积极支持研究的成果衡量与参与范围综述
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-13 DOI: 10.1111/jar.13309
Jenny Aspling, Veronica Svärd, Lincoln Humphreys, Christine Bigby, Magnus Tideman
{"title":"A Scoping Review of Outcomes Measured and Involvement of People With Intellectual Disabilities in Active Support Research","authors":"Jenny Aspling,&nbsp;Veronica Svärd,&nbsp;Lincoln Humphreys,&nbsp;Christine Bigby,&nbsp;Magnus Tideman","doi":"10.1111/jar.13309","DOIUrl":"https://doi.org/10.1111/jar.13309","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Active Support is a staff practice that aims to increase engagement of people with intellectual disabilities. This study seeks to: (1) identify the outcomes of staff using Active Support and how these are measured; (2) identify how the views of people with intellectual disabilities have been included in Active Support research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A scoping review was conducted of peer-reviewed articles about Active Support published between 2009 and 2023.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Sixteen articles were identified. Outcomes included engagement, the quality of staff support, choice and challenging behaviour. Structured observations were the most frequently used measurement method. Only two studies explored people with intellectual disabilities' perspectives about Active Support.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Consistent use of similar measures is a strength of Active Support research. Including perspectives of people with intellectual disabilities may provide insight into dimensions of support not been measured and assist in further developing these measures and Active Support practice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"37 6","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13309","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142435452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parent Perspectives on Parent-Mediated Intervention for Young Children With Down Syndrome 家长对以家长为主导的唐氏综合症幼儿干预措施的看法。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-08 DOI: 10.1111/jar.13307
Madison M. Walsh, Kaylyn Van Deusen, Miranda E. Pinks, Benedetta Ceci, Susan Hepburn, Nathanial R. Riggs, Francesca Pulina, Chiara Marcolin, Sara Onnivello, Sara Colaianni, Bethany Gray, Lisa A. Daunhauer, Silvia Lanfranchi, Deborah J. Fidler
{"title":"Parent Perspectives on Parent-Mediated Intervention for Young Children With Down Syndrome","authors":"Madison M. Walsh,&nbsp;Kaylyn Van Deusen,&nbsp;Miranda E. Pinks,&nbsp;Benedetta Ceci,&nbsp;Susan Hepburn,&nbsp;Nathanial R. Riggs,&nbsp;Francesca Pulina,&nbsp;Chiara Marcolin,&nbsp;Sara Onnivello,&nbsp;Sara Colaianni,&nbsp;Bethany Gray,&nbsp;Lisa A. Daunhauer,&nbsp;Silvia Lanfranchi,&nbsp;Deborah J. Fidler","doi":"10.1111/jar.13307","DOIUrl":"10.1111/jar.13307","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parent-mediated intervention (PMI) is a potentially scalable approach for tailored interventions in neurogenetic conditions like Down syndrome (DS). Because PMIs require ongoing parent engagement, they must be developed in alignment with the needs of intended users. The present study examined caregiver opinions and preferences to inform the development of syndrome-informed interventions for children with DS.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Parents of children with DS (<i>n</i> = 34) participated in focus groups discussing PMI. Interviews were transcribed and a thematic analysis was applied to code the data.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three themes were identified: advantages of PMI, disadvantages of PMI and preferred features of PMI. To align with parent preferences, future PMIs for children with DS should require a brief time commitment, blend intervention activities into daily routines and include family members in activities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings have implications for developing novel interventions to support early development in children with DS and other neurogenetic conditions.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"37 6","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13307","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142395747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Discovering the Current ‘State of Play’ in Pain Recognition and Assessment for People With Profound Intellectual Disabilities by Nurses: An Appreciative Inquiry Approach 发现当前护士识别和评估重度智障人士疼痛的 "现状":欣赏式探究方法
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-06 DOI: 10.1111/jar.13305
Maeve Goodall, Kate Irving, Mary Nevin
{"title":"Discovering the Current ‘State of Play’ in Pain Recognition and Assessment for People With Profound Intellectual Disabilities by Nurses: An Appreciative Inquiry Approach","authors":"Maeve Goodall,&nbsp;Kate Irving,&nbsp;Mary Nevin","doi":"10.1111/jar.13305","DOIUrl":"10.1111/jar.13305","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Pain recognition and assessment in individuals with profound intellectual disabilities are challenging. Exploring effective methods of addressing this is essential. This study aims to discover current nursing practice in this area of care as the first of a four-phased appreciative inquiry study, to inform further research and practice.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data from individual and focus group interviews with co-researching nurses were collated and developed into themes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Six themes were identified: unconditional positive regard, honouring of relationship, creative best practice, pain through a competing lens, accurate assessment—an impossible task? Medicating pain—oversimplified and undervalued?</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Relationship is essential, in recognising pain and distress. There is an understanding of the multifaceted nature of pain in the care of this population; however, physical pain recognition and assessment are prioritised, to prevent serious ill health and death. Formal methods of assessment and communication between professionals are needed.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"37 6","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-10-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13305","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142382643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social Workers' Experiences of Working With Support Workers in Services for Adults With Intellectual Disabilities in Hong Kong 香港智障成人服务机构中社工与辅助人员的合作经验》(Social Workers' Experiences of Working With Support Workers in Services for Adults With Intellectual Disabilities in Hong Kong)。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-06 DOI: 10.1111/jar.13301
Kangwei Xun, Ruoshui Jiao, Yunxue Deng
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