Journal of Applied Research in Intellectual Disabilities最新文献

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Solomon Judges Medea: Experiences of Mothers With Intellectual Disabilities Whose Children Were Removed 所罗门审判美狄亚:孩子被带走的智障母亲的经历
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-16 DOI: 10.1111/jar.70082
Egle Sumskiene, Violeta Gevorgianiene
{"title":"Solomon Judges Medea: Experiences of Mothers With Intellectual Disabilities Whose Children Were Removed","authors":"Egle Sumskiene,&nbsp;Violeta Gevorgianiene","doi":"10.1111/jar.70082","DOIUrl":"https://doi.org/10.1111/jar.70082","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This paper explores experiences of mothers with intellectual disabilities, with an emphasis on oppressive circumstances and stereotypes that contribute to poorer antenatal and social outcomes for mothers and their children, potentially leading to child removal. Drawing parallels to archetypical figures of Solomon and Medea, we explore how society treats these mothers differently. The research question is: what social, institutional, and personal circumstances lead to the loss of parental rights for mothers with intellectual disabilities?</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We conducted a small qualitative study to explore the experiences of mothers with intellectual disabilities whose children had been removed in Lithuania. Twelve mothers participated in semi-structured interviews to examine the interplay of oppressive social, institutional, and personal factors contributing to the loss of their parental rights. A thematic analysis was conducted, identifying six key themes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The mothers in this study shared experiences of being trapped in cycles of abuse, feeling unsupported by others, and the emotional toll of separation from their children. Their experiences of being devalued and set up to fail resonate with stereotypical mother figures in the myths of Solomon and Medea.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Authority leverages its power to separate these mothers from their children and erase their maternal identity, punishing women who challenge traditional expectations of how a mother should behave.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144292453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Narrative Practice in Investigative Interviews of Individuals With Intellectual Disability 智障人士调查访谈中的叙事实践
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-13 DOI: 10.1111/jar.70074
Misun Yi
{"title":"Narrative Practice in Investigative Interviews of Individuals With Intellectual Disability","authors":"Misun Yi","doi":"10.1111/jar.70074","DOIUrl":"https://doi.org/10.1111/jar.70074","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Individuals with intellectual disabilities are amongst the groups most vulnerable to sexual crimes. However, their limited cognitive abilities can make it challenging to obtain detailed statements from victims during investigative interviews. This study examined whether practising answering open-ended questions early in the interview increases the accuracy and abundance of incident-related information provided by individuals with intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Forty-eight adults with intellectual disabilities and 32 children without disabilities aged 5–7 were interviewed about a photography event.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>When practising with open-ended questions, adults with intellectual disability and children without disabilities gave greater detail than those whose practise narrative involved specific questions. Furthermore, both groups provided more information in response to open-ended questions. No effects were observed for inaccurate details.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Narrative practices could afford individuals with intellectual disability the opportunity to familiarise themselves with open-ended prompts, enabling them to provide more information during the substantive phase of the interview.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70074","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144273058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Views of People With Intellectual Disabilities About What Contributes Towards Optimal End-of-Life Care: A Qualitative Evidence Synthesis 智障人士对最佳临终关怀的看法:一项定性证据综合
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-11 DOI: 10.1111/jar.70067
Corrina Alex Bebbington, Elizabeth Croot
{"title":"The Views of People With Intellectual Disabilities About What Contributes Towards Optimal End-of-Life Care: A Qualitative Evidence Synthesis","authors":"Corrina Alex Bebbington,&nbsp;Elizabeth Croot","doi":"10.1111/jar.70067","DOIUrl":"https://doi.org/10.1111/jar.70067","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disabilities face inequities in access to end-of-life care and inequalities in its quality and delivery. This review aimed to synthesise qualitative evidence to understand their own perspectives about what contributes to optimal end-of-life care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methodology</h3>\u0000 \u0000 <p>Data from 93 participants in five qualitative studies were thematically synthesised to identify optimal care and inform recommendations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four overarching and interrelated analytical themes were generated. (1) Optimal care recognises heterogeneity and is person-centred. It aligns with individuals' wishes and preferences which are established through ‘active’ communication. (2) This enables an individual's holistic support needs to be identified. (3) It fulfils ethical obligations around autonomy, equity and a person's ‘right to know’. (4) It involves the necessary people to ensure all needs are met.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Optimal end-of-life care is person-centred, holistic, uses ‘active’ communication, meets ethical obligations and involves the necessary people in care.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70067","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144264609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Successful Online Exercise Intervention Studies for Individuals With Intellectual Disabilities Including Down Syndrome: Best Practices and Recommendations 包括唐氏综合症在内的智力残疾个体的成功在线运动干预研究:最佳实践和建议
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-10 DOI: 10.1111/jar.70080
Thessa Hilgenkamp, Amy Bodde, Sarah Mann, Brain Helsel, Joseph Sherman, Jessica Danon, Lauren Ptomey
{"title":"Successful Online Exercise Intervention Studies for Individuals With Intellectual Disabilities Including Down Syndrome: Best Practices and Recommendations","authors":"Thessa Hilgenkamp,&nbsp;Amy Bodde,&nbsp;Sarah Mann,&nbsp;Brain Helsel,&nbsp;Joseph Sherman,&nbsp;Jessica Danon,&nbsp;Lauren Ptomey","doi":"10.1111/jar.70080","DOIUrl":"https://doi.org/10.1111/jar.70080","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Online exercise interventions can improve access to tailored programmes for individuals with intellectual disabilities (including Down syndrome). This paper aimed to describe best practices and provide recommendations for online physical activity or exercise programmes for this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Two research teams with extensive experience delivering online physical activity and exercise interventions in &gt; 240 individuals with intellectual disabilities, combined with input from participant/caregiver dyads, describe adaptations to online delivery of programmes with regard to development, recruitment, data collection, intervention delivery, communication and staff requirements, based on two specific online programmes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Adaptations to an online delivery are necessary for every aspect of exercise interventions for individuals with intellectual disabilities. All phases benefit from input from the community.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>When the appropriate adaptations are made for online delivery, as described in this paper, online physical activity or exercise interventions can be highly successful for individuals with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70080","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144244645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Direct Support Professionals' Perspectives on Enabling Meaningful Activities for People With Intellectual Disabilities 直接支援专业人士为智障人士举办有意义活动的观点
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-10 DOI: 10.1111/jar.70078
Christophe Wille, Geert van Hove, Jos van Loon, Dominique Van de Velde, Patricia de Vriendt
{"title":"Direct Support Professionals' Perspectives on Enabling Meaningful Activities for People With Intellectual Disabilities","authors":"Christophe Wille,&nbsp;Geert van Hove,&nbsp;Jos van Loon,&nbsp;Dominique Van de Velde,&nbsp;Patricia de Vriendt","doi":"10.1111/jar.70078","DOIUrl":"https://doi.org/10.1111/jar.70078","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disabilities in Flanders (Belgium) often rely on their direct support professionals (DSPs) to engage in meaningful activities. While structured approaches exist to guide engagement, limited insight is available into the specific support DSPs need in practice.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A descriptive qualitative study was conducted using in-depth interviews with 13 DSPs. Thematic analysis was performed using NVivo 12.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five themes emerged: (1) Basic assumptions regarding meaningful activities, (2) Relationship between people with intellectual disabilities and DSPs as a prerequisite for enabling meaningful activities, (3) Facilitating factors in enabling meaningful activities, (4) Areas of tension in enabling meaningful activities, and (5) Barriers to enabling meaningful activities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>DSPs recognise the importance of meaningful activities but face significant challenges in practice. Addressing these challenges requires training and support tailored to their specific needs and the realities of their daily work, ensuring they are better equipped to foster engagement in meaningful activities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144244644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using Grief for Good: The Transformative Effect of Participatory Action Research for Parents With Intellectual Disability Who Have Experienced Child Removal 利用悲伤为善:参与式行动研究对经历过孩子被带走的智障父母的变革影响
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-09 DOI: 10.1111/jar.70066
Margaret Spencer, Susan Collings, Hannah Wilkinson
{"title":"Using Grief for Good: The Transformative Effect of Participatory Action Research for Parents With Intellectual Disability Who Have Experienced Child Removal","authors":"Margaret Spencer,&nbsp;Susan Collings,&nbsp;Hannah Wilkinson","doi":"10.1111/jar.70066","DOIUrl":"https://doi.org/10.1111/jar.70066","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parents with intellectual disability experience high rates of child removal, which affects their well-being.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Participatory action research (PAR) was undertaken with eight parents with intellectual disability who had children removed from their care. Parents were interviewed before and after the PAR. Three themes emerged: a safe space, revisiting the past and grief for good.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Result</h3>\u0000 \u0000 <p>Parents reported that participating in the PAR was cathartic, allowing them to transform feelings of grief and injustice into actions that benefitted other parents.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>PAR can be transformative, enabling parents with intellectual disabilities to advocate for and contribute to improved practices.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70066","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144244957","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Investigating the Impact of Embedded Learning Opportunities on the Engagement of Children With Autism and Intellectual Disability 探究嵌入式学习机会对自闭症和智障儿童参与的影响
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-05 DOI: 10.1111/jar.70073
Salih Rakap, Serife Balikci
{"title":"Investigating the Impact of Embedded Learning Opportunities on the Engagement of Children With Autism and Intellectual Disability","authors":"Salih Rakap,&nbsp;Serife Balikci","doi":"10.1111/jar.70073","DOIUrl":"https://doi.org/10.1111/jar.70073","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Engagement is essential for fostering learning and development in young children with disabilities, including those with autism spectrum disorder (ASD) and intellectual disability (ID).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This study used a non-concurrent multiple-baseline across participants design to examine the effects of embedded learning opportunities (ELOs) on engagement and learning in four preschool-aged children diagnosed with ASD and ID.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Results showed a consistent increase in engagement for each child following the introduction of ELOs by teachers, with children generalising this engagement to other settings and sustaining high engagement levels during follow-up. Additionally, enhanced engagement was linked with improvements in independent performance of target behaviours. Social validity data from teachers further supported the intervention's effectiveness.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>These findings highlight ELOs as a promising and individualised approach to enhancing engagement and learning outcomes for preschool children with dual diagnoses of ASD and ID.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70073","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144213854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Challenges in Providing Parenting Support for Parents With Intellectual Disabilities in Japan 日本为智障父母提供育儿支持的挑战
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-03 DOI: 10.1111/jar.70068
Emiko Tanaka, Kinuko Sugiura, Marja W. Hodes, Maurice A. Feldman
{"title":"Challenges in Providing Parenting Support for Parents With Intellectual Disabilities in Japan","authors":"Emiko Tanaka,&nbsp;Kinuko Sugiura,&nbsp;Marja W. Hodes,&nbsp;Maurice A. Feldman","doi":"10.1111/jar.70068","DOIUrl":"https://doi.org/10.1111/jar.70068","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>While there is now considerable research on parenting by persons with intellectual disabilities, most of this research comes from Western countries. A dearth of information exists about families headed by parents with intellectual disabilities from other countries. This paper summarises the state of research and practice in Japan, related to existing knowledge in the field.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We conducted a review of Japanese research and media information about parents with intellectual disabilities, relating the situation in Japan to existing research from primarily Western countries.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Evidence obtained suggests that Japan is only recently making progress to dispel eugenics mythology about sexuality and parenting in persons with intellectual disabilities and recognising the need for specialised supports.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>We make eight recommendations for future research, policy, and practice in Japan, including ending discriminatory practices, funding needed supports, and educating and training workers and professionals in evidence-based supports.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70068","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144206437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding Death: Inclusive Insights From Individuals With Intellectual Disabilities 理解死亡:来自智障人士的包容性见解
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-31 DOI: 10.1111/jar.70069
Monika Parchomiuk, Katarzyna Ćwirynkało, Agnieszka Żyta
{"title":"Understanding Death: Inclusive Insights From Individuals With Intellectual Disabilities","authors":"Monika Parchomiuk,&nbsp;Katarzyna Ćwirynkało,&nbsp;Agnieszka Żyta","doi":"10.1111/jar.70069","DOIUrl":"https://doi.org/10.1111/jar.70069","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The perception and experience of death with respect to individuals with intellectual disability are almost unexplored in the Polish context. We aimed to understand how these persons conceptualise death, understand their experiences associated with it, and the meanings they ascribe to it.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The study was designed and conducted with co-researchers with intellectual disabilities. Thirty-four participants with intellectual disabilities were interviewed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>The diverse meanings, emotions, feelings and activities associated with death were encapsulated in four main themes: meanings ascribed to death, experiencing death, celebrating death and anticipating one's own death and that of significant others.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The study underscores the significance of death in the experiences of individuals with intellectual disabilities in the context of religious experiences and the importance of inclusive practices that recognise their needs and rights to grieve while also pointing to the need for proactive planning to better prepare them for life's inevitable losses.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144179303","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prevalence of Respiratory Symptoms in Individuals With Down's Syndrome in Saudi Arabia: A Cross-Sectional Study 沙特阿拉伯唐氏综合征患者呼吸系统症状患病率:一项横断面研究
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-29 DOI: 10.1111/jar.70072
Sohil Alqazlan, Faraj K. Alenezi, Khalid S. Alwadeai, Adel Saber Alanazi, Abdulrhman S. Alghamdi, Shahad Alarifi, Saleh Aba-Alkhayl, Mohammed A. Almeshari
{"title":"Prevalence of Respiratory Symptoms in Individuals With Down's Syndrome in Saudi Arabia: A Cross-Sectional Study","authors":"Sohil Alqazlan,&nbsp;Faraj K. Alenezi,&nbsp;Khalid S. Alwadeai,&nbsp;Adel Saber Alanazi,&nbsp;Abdulrhman S. Alghamdi,&nbsp;Shahad Alarifi,&nbsp;Saleh Aba-Alkhayl,&nbsp;Mohammed A. Almeshari","doi":"10.1111/jar.70072","DOIUrl":"https://doi.org/10.1111/jar.70072","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Asthma and respiratory diseases pose significant global health risks. Respiratory infections substantially impact individuals with Down syndrome, affecting their overall well-being. This study examines respiratory health risks associated with Down syndrome in Saudi Arabia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A survey of 115 participants used convenience sampling to assess chronic respiratory disease incidence. Caregivers provided insights for cross-sectional analysis, with chi-square tests for categorical variables and Kendall's Tau for binary relationships. Hypothesis testing was done at a 5% significance level.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>There was a significant increase in respiratory infections among people with Down syndrome in Saudi Arabia. Most participants (53%) reported chest pain, followed by wheezing in 47.8%. There was a need for interventions to be targeted by region, resulting in improved health outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Individuals who have Down syndrome in Saudi Arabia necessitate a gateway to healthcare, public health education and customised therapies.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144171749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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