Journal of Applied Research in Intellectual Disabilities最新文献

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Parental Experiences of Quality of Life When Caring for Their Children With Intellectual Disability: A Meta-Aggregation Systematic Review 父母在照顾智障儿童时的生活质量经验:一项Meta-Aggregation系统回顾。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-06 DOI: 10.1111/jar.70005
Macey Barratt, Peter Lewis, Natalie Duckworth, Natasha Jojo, Viktorija Malecka, Signe Tomsone, Dita Rituma, Nathan J. Wilson
{"title":"Parental Experiences of Quality of Life When Caring for Their Children With Intellectual Disability: A Meta-Aggregation Systematic Review","authors":"Macey Barratt,&nbsp;Peter Lewis,&nbsp;Natalie Duckworth,&nbsp;Natasha Jojo,&nbsp;Viktorija Malecka,&nbsp;Signe Tomsone,&nbsp;Dita Rituma,&nbsp;Nathan J. Wilson","doi":"10.1111/jar.70005","DOIUrl":"10.1111/jar.70005","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A qualitative systematic review following Joanna Briggs Institute meta-aggregation approach has been completed and reported according to PRISMA guidelines.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>Seventeen qualitative studies were included. Three synthesised findings were identified: ‘Challenges and rewards of being a parent carer’, ‘The real cost of caregiver burden’ and ‘Surrendering self for duty – the mothers role’.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Parents of children with moderate to profound intellectual disabilities reported diminished quality of life for themselves and their families, experiencing increased physical and mental health issues associated with caregiving burdens. Future research is needed that determine what effective support systems and interventions are needed to alleviate parental caregiver burden.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11724350/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142959837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Sociodemographic Characteristics of Mothers With Intellectual Disability: A Review of Population-Level Studies 智力残疾母亲的社会人口学特征:人口水平研究综述
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-06 DOI: 10.1111/jar.13331
S. Collings, G. Hindmarsh, H. Wilkinson, G. Llewellyn
{"title":"The Sociodemographic Characteristics of Mothers With Intellectual Disability: A Review of Population-Level Studies","authors":"S. Collings,&nbsp;G. Hindmarsh,&nbsp;H. Wilkinson,&nbsp;G. Llewellyn","doi":"10.1111/jar.13331","DOIUrl":"https://doi.org/10.1111/jar.13331","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Population studies confirm mothers with intellectual disability have poorer antenatal outcomes than other mothers but less is known about any differences in sociodemographic characteristics between these groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A systematic review of population-level studies on parents with intellectual disability was undertaken from January to August 2023. Seven electronic databases and references from two literature reviews were examined and 27 studies met inclusion criteria for the review.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>All studies reported on mothers and only one on fathers. Maternal age and socioeconomic status were most frequently reported; age in 26 studies and socioeconomic status in 23 studies. Most studies found mothers with intellectual disability were significantly younger (73%) and more disadvantaged (83%) than their peers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Maternal intellectual disability co-occurs with established parenting risk factors in the general population. Social welfare programs must become disability-inclusive and population datasets should routinely include disability items. A knowledge gap remains in relation to fathers with intellectual disability.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143112293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Childhood and Adulthood Predictors of Community Participation by Autistic Adults With and Without Intellectual Disability 有或无智障的自闭症成人儿童及成年后社区参与的预测因子。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-23 DOI: 10.1111/jar.70001
Lauren A. Cameron, Bruce J. Tonge, Patricia Howlin, Stewart L. Einfeld, Roger J. Stancliffe, Kylie M. Gray
{"title":"Childhood and Adulthood Predictors of Community Participation by Autistic Adults With and Without Intellectual Disability","authors":"Lauren A. Cameron,&nbsp;Bruce J. Tonge,&nbsp;Patricia Howlin,&nbsp;Stewart L. Einfeld,&nbsp;Roger J. Stancliffe,&nbsp;Kylie M. Gray","doi":"10.1111/jar.70001","DOIUrl":"10.1111/jar.70001","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Few studies have explored community participation for autistic adults, with or without intellectual disability. This study aims to investigate how autistic adults participate in the community, and the childhood and adulthood factors that predict community participation in adulthood.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Eighty-four autistic adults (mean age 34 years; 67% with co-occurring intellectual disability) initially recruited as children and adolescents, participated in the current study. Community participation frequency and variety were measured in adulthood. Childhood and adulthood predictors of community participation were investigated.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants engaged in the community an average of 18.2 times (range 0–49) over the previous 30-day period, in an average of 6.3 different activities (range 0–13). Childhood and adulthood factors (autism symptoms, intellectual disability, living arrangements) were associated with community participation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Areas for additional support and resources were identified.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11666882/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142883761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children With Intellectual Disabilities and/or Who Are Autistic 为智障及/或自闭症儿童家庭提供正面家庭关系的计划受助人及促进者经验。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-19 DOI: 10.1111/jar.70003
Daniel Sutherland, Samantha Flynn, Joanna Griffin, Richard P. Hastings
{"title":"Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children With Intellectual Disabilities and/or Who Are Autistic","authors":"Daniel Sutherland,&nbsp;Samantha Flynn,&nbsp;Joanna Griffin,&nbsp;Richard P. Hastings","doi":"10.1111/jar.70003","DOIUrl":"10.1111/jar.70003","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8–13. We investigated experiences of Positive Family Connections, and the processes involved in change.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We conducted semi-structured interviews with eight family carers who took part in Positive Family Connections and nine facilitators. Data were analysed using framework analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Programme recipients' and facilitators generally reported positive experiences of Positive Family Connections and described beneficial effects on wellbeing and family relationships. We developed a model showing how the lived experience of facilitators and positive approach led to reductions in isolation and perceived changes in mindset that were described as improving family carers' wellbeing and family relationships.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Positive Family Connections appears to be an acceptable programme which programme recipients and facilitators perceive to be beneficial.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70003","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142866521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
External Factors Influencing the Motivation and Performance of Staff in Their Nutritional Work With Adults With Intellectual Disabilities 影响工作人员与智障成人营养工作的动机和绩效的外部因素。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-18 DOI: 10.1111/jar.70002
Helen K. Røstad-Tollefsen, Benedicte Hagen Venås, Svein O. Kolset, Kjetil Retterstøl, Hanne Hennig Havdal, Marianne Nordstrøm
{"title":"External Factors Influencing the Motivation and Performance of Staff in Their Nutritional Work With Adults With Intellectual Disabilities","authors":"Helen K. Røstad-Tollefsen,&nbsp;Benedicte Hagen Venås,&nbsp;Svein O. Kolset,&nbsp;Kjetil Retterstøl,&nbsp;Hanne Hennig Havdal,&nbsp;Marianne Nordstrøm","doi":"10.1111/jar.70002","DOIUrl":"10.1111/jar.70002","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Staff working in municipal care homes with adults with intellectual disabilities impact their diet significantly.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>To explore how external factors influence staff's motivation and performance of nutritional work with these residents.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Semi-structured qualitative interviews with 11 staff using systematic text condensation for analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five main themes were revealed: Need for the implementation of the official nutritional guidelines, lack of nutritional skills and knowledge, prioritisation of nutritional work tasks, staff's ethical dilemmas with the different legislations and management anchoring and collaboration.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Implementing systematic nutritional routines and clarifying nutritional work in practice were emphasised to promote continuity and better cooperation among the staff. This, and the need for increased nutritional competence in the municipality organisation, adequate framework conditions for nutritional work and practical and pedagogical measures for nutritional tasks, were crucial factors for staff's motivation, performance, consistency and equality in nutritional practice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70002","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142848622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Teaching Early Reading Skills to Adults With Intellectual Disabilities Using a Support Worker/Family Carer Mediated Online Reading Programme: A Feasibility Randomised Controlled Trial 使用支持工作者/家庭护理人员中介的在线阅读计划向智障成人教授早期阅读技能:一项可行性随机对照试验。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-11 DOI: 10.1111/jar.13332
Louise D. Denne, Gwenllian Moody, Elinor Coulman, David Gillespie, Kate Ingarfield, Nicholas Manktelow, Corinna F. Grindle, J. Carl Hughes, Zac Taylor, Richard P. Hastings
{"title":"Teaching Early Reading Skills to Adults With Intellectual Disabilities Using a Support Worker/Family Carer Mediated Online Reading Programme: A Feasibility Randomised Controlled Trial","authors":"Louise D. Denne,&nbsp;Gwenllian Moody,&nbsp;Elinor Coulman,&nbsp;David Gillespie,&nbsp;Kate Ingarfield,&nbsp;Nicholas Manktelow,&nbsp;Corinna F. Grindle,&nbsp;J. Carl Hughes,&nbsp;Zac Taylor,&nbsp;Richard P. Hastings","doi":"10.1111/jar.13332","DOIUrl":"10.1111/jar.13332","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>There is a paucity of research into interventions that help people with intellectual disabilities learn to read. This feasibility study examines whether an online reading programme, Headsprout, with additional support strategies and supervision (the intervention), can be delivered by support workers/family carers and the feasibility of conducting a later large-scale effectiveness trial.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The study used a 2-arm randomised controlled trial (RCT) design with an embedded process evaluation using a mixed methods approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thirty-six adults with intellectual disabilities were recruited. Informed consent and data were obtained remotely. Progression criteria for recruitment, retention, randomisation and usual practice were met; intervention adherence and fidelity were poor. Pressure on support services was a key barrier.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Whilst progression to a large-scale effectiveness trial was not recommended, the success of conducting an RCT and remotely obtaining informed consent and data from adults with intellectual disabilities opens opportunities for increased participation in research for a currently under-represented group.</p>\u0000 \u0000 <p><b>Registration:</b> ISRCTN11409097</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11635184/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142815078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adapting a Self-Concept Questionnaire for Students With Intellectual Disabilities: An Inclusive Research Approach 智障学生自我概念问卷的改编:一种包容性研究方法。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-11 DOI: 10.1111/jar.13333
Montserrat Yepes-Baldó, Marina Romeo, Núria Codina, Gemma Pallarés
{"title":"Adapting a Self-Concept Questionnaire for Students With Intellectual Disabilities: An Inclusive Research Approach","authors":"Montserrat Yepes-Baldó,&nbsp;Marina Romeo,&nbsp;Núria Codina,&nbsp;Gemma Pallarés","doi":"10.1111/jar.13333","DOIUrl":"10.1111/jar.13333","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Given the significant gap in tailored assessment tools, this research seeks to adapt the Self-concept (Form 5-AF5) questionnaire for young students with intellectual disabilities, employing an inclusive approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Twenty-three disability experts initially assessed questionnaire suitability, leading to revisions for clarity. Cognitive interviews with eight students with intellectual disabilities clarified questions, and both original and adapted questionnaires were administered to students with and without intellectual disabilities for equivalence verification.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The adapted scale showed good internal consistency. The correlation between scores of students without intellectual disabilities on original and adapted questionnaires exceeded 0.70. Students with intellectual disabilities reported higher levels of academic self-concept than their peers without intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The adaptation of the Self-concept (Form 5-AF5) questionnaire in this research facilitates the comparison of diverse student populations, as demonstrated by the alignment of results between the original and adapted questionnaires in the general student population.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Language and Ageing in Adults With Down Syndrome: An Analysis of Receptive and Expressive Language Measures 唐氏综合症成人的语言与衰老:接受性和表达性语言测量的分析。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-08 DOI: 10.1111/jar.13330
Mario Figueroa, Sònia Darbra
{"title":"Language and Ageing in Adults With Down Syndrome: An Analysis of Receptive and Expressive Language Measures","authors":"Mario Figueroa,&nbsp;Sònia Darbra","doi":"10.1111/jar.13330","DOIUrl":"10.1111/jar.13330","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The evidence on the effect of age on the receptive and expressive language skills of individuals with Down syndrome is inconclusive. Recent research highlights the relevance of having tools to detect age-related changes in language skills.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Data were collected on 45 adults with Down syndrome. All were assessed with the Peabody test, token test, verbal fluency tasks and an expressive language sample.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Scores on token and Peabody showed a decline in older adults, whereas no significant effect of age was observed for expressive language measures. A quadratic regression confirmed the association between age and receptive language measures. Highly significant associations were also found between the performance on receptive and expressive language measures.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Receptive language skills are more age-sensitive than the expressive language skills. In addition to expressive language skills, receptive language skills should be measured because they show age associated changes not observed in expressive language.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11625501/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796456","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using Virtual Care to Assess the Health Needs of People With Intellectual Disabilities: A Scoping Review 利用虚拟护理评估智障人士的健康需求:范围审查》。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-08 DOI: 10.1111/jar.13328
Alison Devitt, Melissa Nott, Stephanie Nelson, Julia Sgarlata, Michelle Gray, Srilaxmi Balachandran, Asma Taskin
{"title":"Using Virtual Care to Assess the Health Needs of People With Intellectual Disabilities: A Scoping Review","authors":"Alison Devitt,&nbsp;Melissa Nott,&nbsp;Stephanie Nelson,&nbsp;Julia Sgarlata,&nbsp;Michelle Gray,&nbsp;Srilaxmi Balachandran,&nbsp;Asma Taskin","doi":"10.1111/jar.13328","DOIUrl":"10.1111/jar.13328","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW Virtual Health Strategy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Evidence exists to support the use of virtual care for screening, diagnosis, assessment, and review of people with intellectual disabilities, with benefits for clients, carers, and clinicians. Evidence mapped well to the priority areas of the NSW Virtual Health Strategy, highlighting the need for clinician training and specific supports and adaptations to ensure accessibility for people with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The use of virtual care to assess the health needs of people with intellectual disabilities across the lifespan is nascent. An opportunity exists for co-design with people with intellectual disabilities to reduce barriers to accessing and engaging in virtual care.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11626090/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
To Identify and Compare ActivPAL Objectively Measured Activity Levels With Self-Reported Activity From the International Physical Activity Questionnaire in Older Adults With Intellectual Disability 识别并比较ActivPAL客观测量的活动水平与国际体育活动问卷中老年人智力残疾的自我报告活动水平
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-02 DOI: 10.1111/jar.13327
Louise Lynch, Mary McCarron, Philip McCallion, Eilish Burke
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