Journal of Applied Research in Intellectual Disabilities最新文献

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Challenges in Providing Parenting Support for Parents With Intellectual Disabilities in Japan 日本为智障父母提供育儿支持的挑战
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-06-03 DOI: 10.1111/jar.70068
Emiko Tanaka, Kinuko Sugiura, Marja W. Hodes, Maurice A. Feldman
{"title":"Challenges in Providing Parenting Support for Parents With Intellectual Disabilities in Japan","authors":"Emiko Tanaka,&nbsp;Kinuko Sugiura,&nbsp;Marja W. Hodes,&nbsp;Maurice A. Feldman","doi":"10.1111/jar.70068","DOIUrl":"https://doi.org/10.1111/jar.70068","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>While there is now considerable research on parenting by persons with intellectual disabilities, most of this research comes from Western countries. A dearth of information exists about families headed by parents with intellectual disabilities from other countries. This paper summarises the state of research and practice in Japan, related to existing knowledge in the field.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We conducted a review of Japanese research and media information about parents with intellectual disabilities, relating the situation in Japan to existing research from primarily Western countries.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Evidence obtained suggests that Japan is only recently making progress to dispel eugenics mythology about sexuality and parenting in persons with intellectual disabilities and recognising the need for specialised supports.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>We make eight recommendations for future research, policy, and practice in Japan, including ending discriminatory practices, funding needed supports, and educating and training workers and professionals in evidence-based supports.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70068","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144206437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding Death: Inclusive Insights From Individuals With Intellectual Disabilities 理解死亡:来自智障人士的包容性见解
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-31 DOI: 10.1111/jar.70069
Monika Parchomiuk, Katarzyna Ćwirynkało, Agnieszka Żyta
{"title":"Understanding Death: Inclusive Insights From Individuals With Intellectual Disabilities","authors":"Monika Parchomiuk,&nbsp;Katarzyna Ćwirynkało,&nbsp;Agnieszka Żyta","doi":"10.1111/jar.70069","DOIUrl":"https://doi.org/10.1111/jar.70069","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The perception and experience of death with respect to individuals with intellectual disability are almost unexplored in the Polish context. We aimed to understand how these persons conceptualise death, understand their experiences associated with it, and the meanings they ascribe to it.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The study was designed and conducted with co-researchers with intellectual disabilities. Thirty-four participants with intellectual disabilities were interviewed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>The diverse meanings, emotions, feelings and activities associated with death were encapsulated in four main themes: meanings ascribed to death, experiencing death, celebrating death and anticipating one's own death and that of significant others.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The study underscores the significance of death in the experiences of individuals with intellectual disabilities in the context of religious experiences and the importance of inclusive practices that recognise their needs and rights to grieve while also pointing to the need for proactive planning to better prepare them for life's inevitable losses.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144179303","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prevalence of Respiratory Symptoms in Individuals With Down's Syndrome in Saudi Arabia: A Cross-Sectional Study 沙特阿拉伯唐氏综合征患者呼吸系统症状患病率:一项横断面研究
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-29 DOI: 10.1111/jar.70072
Sohil Alqazlan, Faraj K. Alenezi, Khalid S. Alwadeai, Adel Saber Alanazi, Abdulrhman S. Alghamdi, Shahad Alarifi, Saleh Aba-Alkhayl, Mohammed A. Almeshari
{"title":"Prevalence of Respiratory Symptoms in Individuals With Down's Syndrome in Saudi Arabia: A Cross-Sectional Study","authors":"Sohil Alqazlan,&nbsp;Faraj K. Alenezi,&nbsp;Khalid S. Alwadeai,&nbsp;Adel Saber Alanazi,&nbsp;Abdulrhman S. Alghamdi,&nbsp;Shahad Alarifi,&nbsp;Saleh Aba-Alkhayl,&nbsp;Mohammed A. Almeshari","doi":"10.1111/jar.70072","DOIUrl":"https://doi.org/10.1111/jar.70072","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Asthma and respiratory diseases pose significant global health risks. Respiratory infections substantially impact individuals with Down syndrome, affecting their overall well-being. This study examines respiratory health risks associated with Down syndrome in Saudi Arabia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A survey of 115 participants used convenience sampling to assess chronic respiratory disease incidence. Caregivers provided insights for cross-sectional analysis, with chi-square tests for categorical variables and Kendall's Tau for binary relationships. Hypothesis testing was done at a 5% significance level.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>There was a significant increase in respiratory infections among people with Down syndrome in Saudi Arabia. Most participants (53%) reported chest pain, followed by wheezing in 47.8%. There was a need for interventions to be targeted by region, resulting in improved health outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Individuals who have Down syndrome in Saudi Arabia necessitate a gateway to healthcare, public health education and customised therapies.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144171749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Integrating Competency Identification Digital Tools in Employment Counselling to Help Identify Competencies and Build a Relevant Career Plan for People With Disabilities 在就业咨询中整合能力识别数字工具,帮助残疾人识别能力并建立相关的职业规划
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-27 DOI: 10.1111/jar.70071
Clémence Brun, Alexis Akinyemi, Yvonne Joret, Laurène Houtin
{"title":"Integrating Competency Identification Digital Tools in Employment Counselling to Help Identify Competencies and Build a Relevant Career Plan for People With Disabilities","authors":"Clémence Brun,&nbsp;Alexis Akinyemi,&nbsp;Yvonne Joret,&nbsp;Laurène Houtin","doi":"10.1111/jar.70071","DOIUrl":"https://doi.org/10.1111/jar.70071","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with disabilities face persistent employment difficulties, mainly because of a lack of recognition of their competencies, especially people with intellectual disabilities. As employment counsellors need to identify the competencies of beneficiaries, a public competencies identification service has been developed and funded by the French Ministry of Labour, Diagoriente.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We compared the impact of a competencies identification session using Diagoriente (<i>N</i> = 48) to a more classic session using a text document (<i>N</i> = 47), with a sample composed mainly of people with intellectual disabilities (75.5%).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants who used Diagoriente felt better able to identify and explain their competencies and to create a relevant career plan than those who had followed a classic session.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Our results suggest that Diagoriente, and as we suggest, employment support digital tools, when adapted to the specific needs of people with intellectual disabilities, can provide additional keys to help them build their career plans.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144148363","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘We're Not Really Into Helping, We're Into Being Useful’: Service Provider Practices That Support Belonging Opportunities in the Lives of Adults Labelled With Intellectual Disabilities “我们不是真的在帮助,我们是在做有用的人”:服务提供者的做法,支持有智力障碍的成年人在生活中获得归属机会
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-21 DOI: 10.1111/jar.70070
Paige Reeves, David McConnell, Shanon K. Phelan
{"title":"‘We're Not Really Into Helping, We're Into Being Useful’: Service Provider Practices That Support Belonging Opportunities in the Lives of Adults Labelled With Intellectual Disabilities","authors":"Paige Reeves,&nbsp;David McConnell,&nbsp;Shanon K. Phelan","doi":"10.1111/jar.70070","DOIUrl":"https://doi.org/10.1111/jar.70070","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Social inclusion focussed on belonging is increasingly emphasised by disability advocates and policymakers, yet belonging often remains absent for adults labelled with intellectual disabilities. People labelled with intellectual disabilities often rely on service providers to support their belonging.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>In this critically informed ethnographic work, we draw on interviews with nine disability services leaders and prolonged participatory field explorations with five adults labelled with intellectual disabilities, their friends and support workers to explore how service providers support opportunities for belonging.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Reflexive thematic analysis generated three themes: centering inclusion, belonging and rights; creating opportunities for self-exploration and ‘dreaming’; and facilitating connections to people and place.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings highlight supporting belonging as complex work that requires a relational understanding of autonomy, work environments that support reflexivity, and the redistribution of resources to allow for higher staff wages, larger individual support contracts and funding for staff training and post-secondary education.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70070","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144100418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors Associated With Length of Hospital Stay for Forensic Psychiatric Inpatients With Intellectual Disabilities 智力残疾法医精神科住院病人住院时间的相关因素
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-08 DOI: 10.1111/jar.70065
Penelope McKenna, Rosie England, Carmen Fadzelmulla-Moreno, Paul A. Thompson, Harm Boer, Peter E. Langdon
{"title":"Factors Associated With Length of Hospital Stay for Forensic Psychiatric Inpatients With Intellectual Disabilities","authors":"Penelope McKenna,&nbsp;Rosie England,&nbsp;Carmen Fadzelmulla-Moreno,&nbsp;Paul A. Thompson,&nbsp;Harm Boer,&nbsp;Peter E. Langdon","doi":"10.1111/jar.70065","DOIUrl":"https://doi.org/10.1111/jar.70065","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>The aim of this study was to examine factors associated with length of stay within a psychiatric hospital for patients with intellectual disabilities who have a forensic history.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data about 111 patients were gathered retrospectively from historical records for the period of February 2011 to March 2021. Negative binomial regression was then used to examine the relationship between selected predictor variables and length of stay.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Patients who were older upon admission and those who had received psychological therapies or positive behavioural support (PBS) had a significantly longer length of stay. Those with a diagnosis of a neurodevelopmental disorder had a significantly shorter length of stay. All other predictors were not statistically significant.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>There was evidence of a clinical improvement at discharge and those with autism or ADHD had a shorter length of stay. Similar studies with larger sample sizes should be completed across England.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70065","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143925904","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factor Structure of the Center for Epidemiology Scale in Individuals With Intellectual Disabilities 智障人士流行病学中心量表的因素结构
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-07 DOI: 10.1111/jar.70064
Eun-Young Park
{"title":"Factor Structure of the Center for Epidemiology Scale in Individuals With Intellectual Disabilities","authors":"Eun-Young Park","doi":"10.1111/jar.70064","DOIUrl":"https://doi.org/10.1111/jar.70064","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Individuals with intellectual disabilities are as vulnerable to depression as their typically developing peers. This study aimed to verify the reliability and validity of the Center for Epidemiologic Studies Depression Scale (CES-D) in individuals with intellectual disabilities and determine whether the scale is appropriate for screening them.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data obtained from 275 participants from Korea's Disabled People's Development Institute were analysed. The measure used 11 items from the CES-D. Confirmatory factor analysis and Cronbach's <i>α</i> of internal consistency reliability were employed for examining validity and reliability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Cronbach's <i>α</i> of total scale was 0.860. Cronbach's <i>α</i> of the subscales was 0.842 in depressive affect, 0.647 in positive affect, 0.783 in somatic/vegetative symptoms and 0.837 in interpersonal problems. Bifactor and four-factor structures were verified using confirmatory factor analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The validity and reliability of the CES-D-11 for individuals with intellectual disabilities were verified. Results indicated the cut-off and subscale scores.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143914140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction to “Preliminary Evaluation of the Step-by-Step Parenting Program for Expectant Parents With Intellectual Disabilities” 更正“智障准父母分步育儿计划初步评估”
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-05 DOI: 10.1111/jar.70062
{"title":"Correction to “Preliminary Evaluation of the Step-by-Step Parenting Program for Expectant Parents With Intellectual Disabilities”","authors":"","doi":"10.1111/jar.70062","DOIUrl":"https://doi.org/10.1111/jar.70062","url":null,"abstract":"<p>Feldman, M. A., A. Cappon, K. Corbier, V. Caruana, M. Laronde, and K. Thomson. 2025. “Preliminary Evaluation of the Step-by-Step Parenting Program for Expectant Parents With Intellectual Disabilities.” <i>Journal of Applied Research in Intellectual Disabilities</i> 38: e70034. https://doi.org/10.1111/jar.70034.</p><p>The funder's name should be changed from “College and Community Social Innovation Fund Grant, National Science and Engineering Research Council of Canada awarded to Amanda Cappon and Kay Corbier” to “College and Community Social Innovation Fund Grant, Social Sciences and Humanities Research Council of Canada awarded to Amanda Cappon and Kay Corbier.”</p><p>We apologise for this error.</p>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70062","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143905106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Community-Informed Recommendations to Developing Inclusive Dance Opportunities: Engaging Community, Dance, and Rehabilitation Experts Using a Hybrid-Delphi Method 社区知情建议发展包容性舞蹈机会:使用混合德尔菲方法参与社区,舞蹈和康复专家
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-05-05 DOI: 10.1111/jar.70060
Jacqueline C. Ladwig, Kathryn M. Sibley, Jacquie Ripat, Cheryl M. Glazebrook
{"title":"Community-Informed Recommendations to Developing Inclusive Dance Opportunities: Engaging Community, Dance, and Rehabilitation Experts Using a Hybrid-Delphi Method","authors":"Jacqueline C. Ladwig,&nbsp;Kathryn M. Sibley,&nbsp;Jacquie Ripat,&nbsp;Cheryl M. Glazebrook","doi":"10.1111/jar.70060","DOIUrl":"https://doi.org/10.1111/jar.70060","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Amongst the growing number of examples of inclusive dance programming, community-informed recommendations for inclusive dance are scarce. Our purpose was to develop recommendations for inclusive dance with dancers with the lived experience of autism, intellectual, or developmental disability, and the professionals who work with them.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A Hybrid-Delphi method was used to generate and rank recommendations across three expert groups. The constraints model of motor development and the social model of disability framed three questions around: (i) physical environment and culture, (ii) instruction and strategies, and (iii) dance assistants.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The experts (Community; dancers, support persons/carers (<i>n</i> = 5), Rehabilitation (<i>n</i> = 6) and Dance (<i>n</i> = 7) professionals) agreed to prioritise the community perspective, highlighting the need for ongoing education around inclusive instruction, communication, and sensory considerations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The centring of community perspectives facilitated the development of a comprehensive list of actionable recommendations to guide inclusive dance instruction in a variety of dance spaces.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-05-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70060","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143905034","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Scoping Review of Health-Related Self-Management Approaches for Adults With Intellectual Disabilities 成人智障患者健康相关自我管理方法的范围综述
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-04-30 DOI: 10.1111/jar.70057
Alison Devitt, Melissa Nott, Rachel Rossiter
{"title":"A Scoping Review of Health-Related Self-Management Approaches for Adults With Intellectual Disabilities","authors":"Alison Devitt,&nbsp;Melissa Nott,&nbsp;Rachel Rossiter","doi":"10.1111/jar.70057","DOIUrl":"https://doi.org/10.1111/jar.70057","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This scoping review mapped literature on self-management approaches for adults with intellectual disabilities. A three-step search strategy was employed, involving electronic databases, reference lists, and advocacy organisation websites. Data on study design, intervention characteristics and outcomes were synthesised.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The review included 38 articles from 34 studies, focusing on adults with intellectual disabilities. Studies with varied designs and interventions reported successful engagement and positive health outcomes when self-management interventions were adapted for adults with intellectual disabilities and featured caregiver support.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Main Conclusions</h3>\u0000 \u0000 <p>Adapted self-management interventions are feasible and yield positive outcomes for adults with intellectual disabilities. Future research should focus on long-term outcomes, client–caregiver models and co-design methodology.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70057","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143889193","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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